Publications

Publication Title	Disease Area	Publication Link	Conference
Quality of life in post-menopausal women in five European countries	Menopause		ISPOR US, 2001
Chronic obstructive pulmonary disease - the patient perspective	Chronic obstructive pulmonary disease		ERS, 2001
Disability, resource utilisation and work absences associated with osteoarthritis and rheumatoid arthritis - an international database analysis	Rheumatoid arthritis		ISPOR EU, 2001
Quality of life of menopausal age women in Europe	Menopause		N/A
Doctor/patient prescribing dynamics: impact on prescribing of better understanding of subjective and clinical evaluation of the patient and burden of disease	Various		PBIRG, 2003
Impact and economic burden observed in asthma patients considered as mild: an analysis of the respiratory disease specific programme I	Asthma		ERS, 2003
Differences between doctors' and patients' perceptions of osteoporosis symptoms in five countries	Osteoporosis		ECCEO, 2003
Differences between doctor and patient recall of events in and investigations for osteoporosis in five countries	Osteoporosis		ECCEO, 2003
The detrimental impact of symptoms on quality of life of patients across severity levels: respiratory disease specific programme III	Asthma		ATS, 2004
Differences between doctor and patient recall of events in and investigations for osteoporosis in five countries	Osteoporosis		ISPOR US, 2004
COPD in primary care - international survey DSP III (patient population description)	Chronic obstructive pulmonary disease		ERS, 2004
Quality of life and asthma control with low-dose inhaled corticosteroids	Asthma	https://pubmed.ncbi.nlm.nih.gov/15573004/	N/A
Resource use in patients with exacerbations of asthma with different underlying degrees of severity in five European countries	Asthma		ISPOR EU, 2004
Unscheduled healthcare resource use among patients considered to have mild asthma	Asthma		ATS, 2005
Patterns of resource use in patients with different severities of Parkinson's disease	Parkinson’s disease		ISPOR US, 2005
Patient advocacy - an emerging challenge for innovative market research	Various		PBIRG, 2005
Health status and its determinants in COPD patients	Chronic obstructive pulmonary disease		ATS, 2005
Unscheduled healthcare resource use among asthma patients receiving low-dose inhaled corticosteroids maintenance treatment	Asthma	https://pubmed.ncbi.nlm.nih.gov/16115175/	N/A
The human impact of severe persistent allergic asthma: results from a multinational study	Asthma		ISPOR EU, 2005
The economic and human impact of poor control in patients with severe persistant allergic asthma: results from a multinational study	Asthma		BTS, 2005
Assessing symptomatic burden of patients suffering from allergic rhinitis	Allergic rhinitis		AAAAI, 2006
Allergic rhinitis and its impact on cost, productivity and healthcare resource use of patients	Allergic rhinitis		AAAAI, 2006
Symptomatic burden of allergic rhinitis among children/adolescents	Allergic rhinitis		EAACI, 2006
Symptomatic burden of allergic rhinitis among adults	Allergic rhinitis		EAACI, 2006
Patient satisfaction with osteoarthritis treatments and key attributes of the satisfaction	Osteoarthritis		EULAR, 2006
Impact of osteoarthritis symptoms on patient QoL	Osteoarthritis		EULAR, 2006
Comparing the burden of allergic rhinitis in primary care and specialist settings	Allergic rhinitis		EAACI, 2006
Analysis of a multinational, cross-sectional survey of physician perceptions of negative symptoms of schizophrenia	Schizophrenia		NCDEU, 2006
Negative symptoms of schizophrenia: analysis of a multinational, cross-sectional survey of physician perceptions	Schizophrenia		CINP, 2006
Negative symptoms of schizophrenia: analysis of a multinational, cross-sectional survey of physician perceptions	Schizophrenia		ECNP, 2006
Impact on resource use and quality of life of incomplete patient compliance with instructions for taking bisphosphonate medication for osteoporosis	Osteoporosis		ASBMR, 2006
Resource use among patients with schizophrenia in five European countries	Schizophrenia		ISPOR EU, 2006
Quality of life in patients with bipolar disorder in five European countries	Bipolar disorder		ISPOR EU, 2006
Impact of negative symptoms on functioning of patients with schizophrenia in five European countries	Schizophrenia		ISPOR EU, 2006
Higher psoriasis disease severity is associated with increased healthcare resource utilization and employment disadvantages in Europe	Psoriasis		EADV, 2006
Higher psoriasis disease severity is associated with increased co-morbidities in Europe	Psoriasis		EADV, 2006
Analysis of a multinational, cross-sectional survey of physician observations and perceptions of patients with negative symptoms of schizophrenia	Schizophrenia		ISPOR EU, 2006
Proportion of psoriasis patients with BSA > 20% patients treated with topicals alone	Psoriasis		AAD, 2007
Poor quality of life is associated with increased health care resource utilization independent of disease severity in European plaque psoriasis patients	Psoriasis		AAD, 2007
Physician and patient perception differ for symptoms associated with allergic rhinitis	Allergic rhinitis		AAAAI, 2007
Health care resource utilization and disease burden among European psoriasis and psoriatic arthritis patients	Psoriatic arthritis		AAD, 2007
Do allergic rhinitis patients achieve 24-hour symptom control	Allergic rhinitis		AAAAI, 2007
Patterns of glycaemic control across UK and Europe - a patient record study	Diabetes		DUKPC, 2007
Impact of incomplete patient compliance With medication instructions for bisphosphonate therapy on healthcare utilization and quality of life	Osteoporosis		ECCEO, 2007
Quality of life and resource use in patients with bipolar disorder in the United States and five European countries	Bipolar disorder		APA, 2007
Plaque psoriasis patients with more than 10 years of disease history are almost 5 times more likely to have psoriatic arthritis than those with less than 5 years of disease	Psoriasis		EADV, 2007
Patients with plaque psoriasis tend to rate their disease as more severe than their dermatologists	Psoriasis		EADV, 2007
Negative symptoms of schizophrenia and their impact on functioning in US and European patients	Schizophrenia		APA, 2007
Impact of positive and negative symptoms of schizophrenia on resource use in the United States and Europe	Schizophrenia		APA, 2007
Physician and patient perception differ for symptoms associated with allergic rhinitis in five European countries	Allergic rhinitis		EAACI, 2007
Impact of allergic rhinitis on patients' quality of life in five European countries	Allergic rhinitis		EAACI, 2007
Compliance with medication in rhinitis patients is poor and over-estimated by physicians	Bipolar disorder		ISBD, 2007
Allergic rhinitis: the impact of discordant perspectives of patient and physician on treatment decisions	Allergic rhinitis	https://pubmed.ncbi.nlm.nih.gov/17825694/	N/A
A survey of dermatologist perception of psoriasis severity and resultant prescribing patterns	Psoriasis		AAD, 2007
Impact of increasing body mass index on medical resources for patients with type 2 diabetes - a retrospective analysis in the United States	Metabolic syndrome		EASD, 2007
Physician observations and perceptions of positive and negative symptoms of schizophrenia: a multinational, cross-sectional survey	Schizophrenia	https://pubmed.ncbi.nlm.nih.gov/17521890/	N/A
Time from psoriatic arthritis symptoms to diagnosis by management style between a dermatologist and rheumatologist in the EU	Psoriasis		WCD, 2007
Real-world antipyschotic prescribing patterns for schizophrenia treatment across Europe	Schizophrenia		ECNP, 2007
Impact on health care cost of increasing body mass index for people with type 2 diabetes - a cross-sectional study in the USA	Metabolic syndrome		ISPOR EU, 2007
Impact of socio-economic factors on patients' knowledge of their condition, involvement in treatment decisions and the subsequent compliance with their treatment regimen	Asthma		ISPOR EU, 2007
Impact of increasing BMI on medical resources for patients with type 2 diabetes - a retrospective analysis in the USA	Metabolic syndrome		ISPOR EU, 2007
Carer burden in dementia	Dementia		ECNP, 2007
Behavioural and functional symptoms in patients with Alzheimer's disease	Dementia		ECNP, 2007
A multinational assessment of quality of life and resource use by bipolar disorder patients in Europe and the United States	Bipolar disorder		ECNP, 2007
A survey of the burden of allergic rhinitis in Europe	Allergic rhinitis	https://pubmed.ncbi.nlm.nih.gov/17927674/	N/A
Physician and patient survey of allergic rhinitis: methodology	Allergic rhinitis	https://pubmed.ncbi.nlm.nih.gov/17927672/	N/A
A survey of the burden of allergic rhinitis in the USA	Allergic rhinitis	https://pubmed.ncbi.nlm.nih.gov/17927673/	N/A
Real-world usage of valproate in bipolar disorder: results of a cross-sectional survey of European psychiatrists	Bipolar disorder		ISBD, 2008
Quality of life and resource use in patients with bipolar disorder in Europe and the United States	Bipolar disorder		ISAD, 2008
Is pharmacy care or self-medication sufficient for rhinitis patients?	Allergic rhinitis		AAAAI, 2008
Compliance with medication in rhinitis patients is poor and over-estimated by physicians	Allergic rhinitis		AAAAI, 2008
Factors associated with treatment nonadherence among US bipolar disorder patients	Bipolar disorder	https://pubmed.ncbi.nlm.nih.gov/18058849/	N/A
Resource utilization among patients with metabolic syndrome: isolated versus multiple lipid disorders	Metabolic syndrome		EAS, 2008
Multinational study of asthma medications prescribed at discharge from the emergency department	Asthma		ATS, 2008
Multinational approach to acute asthma care for adults admitted to the emergency department	Asthma		ATS, 2008
Major depressive disorder: burden of illness across US and EU	Major depressive disorder		APA, 2008
Generalized anxiety disorder: burden of illness across US and EU	Generalized anxiety disorder		APA, 2008
The effects of obesity on concomitant conditions and resource use among patients with cardiometabolic risk factors	Metabolic syndrome		ADA, 2008
Relationship between body mass index and risk factors, conditions, resource use and productivity among patients with cardiometabolic risk factors	Metabolic syndrome		ADA, 2008
Physician perception of patient weight in primary care practice	Metabolic syndrome		ADA, 2008
Impact of body mass index on health-related quality of life for persons with type 2 diabetes in the USA	Diabetes		ADA, 2008
Psoriasis treatment patterns - results of a cross-sectional survey of dermatologists	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/18378352/	N/A
The burden of allergic rhinitis as reported by UK patients compared with their doctors	Allergic rhinitis	https://pubmed.ncbi.nlm.nih.gov/18575009/	N/A
Real-world physician and patient behaviour across countries: disease-specific programmes - a means to understand	Methodology	https://pubmed.ncbi.nlm.nih.gov/18826746/	N/A
Increasing dependence on others is associated with increased resource use in dementia	Dementia		ICAPD, 2009
Impact of OAB on aspects of daily life: results of a European survey	Overactive bladder		EAU, 2009
The asthma control test (ACT) as a predictor of GINA guideline-defined asthma control: analysis of a multinational cross-sectional survey	Asthma	https://pubmed.ncbi.nlm.nih.gov/19240948/	N/A
The perceived difficulty and importance of weight control for patients with type 2 diabetes: data from the US and Europe	Diabetes		AHA-QCOR, 2009
Factors associated with nursing home placement in Alzheimer's disease	Dementia		AAN, 2009
Perception versus reality - categorisation of patient weight by type 2 diabetes patients and their physicians in the US and Europe	Diabetes		ISPOR US, 2009
Factors impacting the health related quality of life in female breast cancer patients - an observational, cross-sectional study	Breast cancer		ISPOR US, 2009
Quality of life and work productivity in allergic rhinitis patients suffering from both nasal and ocular symptoms - an observational, cross-sectional study in 4 countries in Europe	Allergic rhinitis		EAACI, 2009
Impact of perceived weight and level of lifestyle control on health-related quality of life in patients with type 2 diabetes: data from US and Europe	Diabetes		ADA, 2009
Impact of ocular symptoms on resource utilisation and work productivity in managment of AR - an observational, cross-sectional study in 4 countries in Europe	Allergic rhinitis		EAACI, 2009
Quality of life and work productivity in allergic rhinitis patients suffering from both nasal and ocular symptoms - an observational, cross-sectional study in 4 countries in Europe	Allergic rhinitis		ISPOR EU, 2009
Predictors for development of stricture/obstruction in patients with Crohn's disease	Inflammatory Bowel Disease		ACG, 2009
Moderate to severe rheumatoid arthritis is associated with significant work and activity impairment in Brazil - findings from an observational study	Rheumatoid arthritis		ACR/ARHP, 2009
Medical resource utlilization and workdays lost in a European survey of patients with fibromyalgia	Fibromyalgia		ACR/ARHP, 2009
Medical resource utilisation and workdays lost in patients with fibromyalgia	Fibromyalgia		ISPOR EU, 2009
Impact of ocular symptoms on resource utilisation and work productivity in managment of AR - an observational, cross-sectional study in 4 coutnries in Europe	Allergic rhinitis		ISPOR EU, 2009
Impact of dementia upon caregiver employment and quality of life	Dementia		ISPOR EU, 2009
Impact of cough and/or sputum symptoms on the burden of COPD: a cross-sectional, observational study	Chronic obstructive pulmonary disease		ISPOR EU, 2009
Impact of cough and/or sputum symptoms on health-related quality of life in COPD patients: an observational, cross-sectional study	Chronic obstructive pulmonary disease		ISPOR EU, 2009
Predictors of Hepatitis C treatment outcome in genotype 1 patients in a real-world setting	Hepatitis C virus		BSG, 2010
Health-related quality of life and healthcare resource use in European patients with plaque psoriasis - an association independent of observed disease severity	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/20569255/	N/A
Impact of rheumatoid arthritis severity on HRQoL in Brazil	Rheumatoid arthritis		PANLAR, 2010
The risk of psoriatic arthritis remains constant following initial diagnosis of psoriasis among patients seen in European dermatology clinics	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/19874432/	N/A
Do patients on intra-nasal fluticasone furoate, mometasone furoate and fluticasone proprionate experience similar numbers of symptom-free days and quality of life? a cross-sectional study in 3 European countries	Allergic rhinitis		EAACI, 2010
Pulmonary function testing in the emergency department and medications prescribed at discharge results of MAMBO study	Asthma	https://pubmed.ncbi.nlm.nih.gov/20104373/	N/A
Patient and physician satisfaction with osteoarthritis treatment in Germany, Spain and the UK	Osteoarthritis		IASP WCP, 2010
Relationship between patient-reported disease severity in osteoarthritis and self-reported pain, function and work productivity	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/20738855/	N/A
The economic burden of advanced Parkinson's disease: an analysis of a UK patient dataset	Parkinson’s disease		WPC, 2010
Status and treatment of type 2 diabetes in China	Diabetes		ISPOR APAC, 2010
Prevalence of thrombocytopenia in patients with chronic hepatitis C infection in Germany	Hepatitis C virus		DGVS, 2010
Key attributes of inhalers for patients versus physicians	Asthma		ERS, 2010
Glycaemic control is worse and complications more prevalent in type 2 diabetes patients with a higher BMI in China	Diabetes		ISPOR APAC, 2010
The patient-physician partnership in asthma: real-world observations associated with clinical and patient-reported outcomes	Asthma	https://pubmed.ncbi.nlm.nih.gov/20680534/	N/A
Quantifying the patient-reported burden of herpes zoster and post-herpetic neuralgia in the UK - practical considerations	Post-herpetic neuralgia		ISOQOL, 2010
Emergence of walking and mobility problems among patients with multiple sclerosis and its impact on quality of life: a cross-sectional assessment in 5 EU countries	Multiple sclerosis		ECTRIMS, 2010
The effects of isolated versus multiple lipid disorders on resource utilization among metabolic syndrome patients with lipid abnormalities despite lipid-modifying treatment	Metabolic syndrome	https://pubmed.ncbi.nlm.nih.gov/20938176/	N/A
Relationship of patient-reported chronic low back pain severity with other patient-reported outcomes	Chronic lower back pain		ASRA, 2010
Relationship between patient-reported chronic low back pain severity and medication resources	Chronic lower back pain		ASRA, 2010
Herpes zoster and post-herpetic neuralgia - considerations for a prospective, cross-sectional patient reported outcomes study	Post-herpetic neuralgia		ISPOR EU, 2010
Association of patient-reported inhaler satisfaction with physician-perceived compliance with asthma treatment - results of a cross-sectional study in five European countries	Asthma		ISPOR EU, 2010
The economic burden of advanced Parkinson's disease: an analysis of a UK patient dataset	Parkinson’s disease	https://pubmed.ncbi.nlm.nih.gov/21235405/	N/A
Presence of cardiovascular comorbidities and prior medical history affect cardioversion treatment patterns among patients with acute atrial fibrillation	Atrial fibrillation		AHA, 2011
Influence of atrial fibrillation and cardioversion treatment patterns on perceived health-related qualiy of life among patients with acute atrial fibrillation	Atrial fibrillation		AHA, 2011
Do neurologists in Germany adhere to national Parkinson's disease guidelines	Parkinson’s disease	https://pubmed.ncbi.nlm.nih.gov/21552312/	N/A
Importance of inhaler-device satisfaction in asthma treatment: real-world observations of physician-observed compliance and clinical/patient-reported outcomes	Asthma	https://pubmed.ncbi.nlm.nih.gov/21331556/	N/A
Prevalence and impact of night-time symptoms in COPD patients - results of a cross-sectional study in five European countries	Chronic obstructive pulmonary disease		WACF, 2011
Concordance between physicians' and patients' ratings of cognitive impairments and functioning associated with schizophrenia	Schizophrenia		ICSR, 2011
Characteristics of COPD patients experiencing night-time symptoms - results of a cross-sectional study in five European countries	Chronic obstructive pulmonary disease		WACF, 2011
Dupuytren's contracture: a retrospective database analysis to assess clinical management and costs in England	Dupuytren's contracture	https://pubmed.ncbi.nlm.nih.gov/21486483/	N/A
Impact of ocular symptoms on quality of life (QoL), work productivity and resource utilisation in allergic rhinitis patients-an observational, cross sectional study in four countries in Europe	Allergic rhinitis	https://pubmed.ncbi.nlm.nih.gov/21488807/	N/A
Treatment patterns and characteristics of European castration-resistant prostate cancer (CRPC) patients	Prostate cancer		AUA, 2011
Real-life outcomes in 2nd line advanced or metastatic non-small cell lung cancer (NSCLC): a pilot study in France and Germany analysing erloginib versus chemotherapy	Non-small cell lung cancer		ISPOR US, 2011
Real life outcomes in 1st line non-squamous non-small cell lung cancer (NSCLC): a pilot study in France and Germany analysing bevacizumab-based versus non-bevacizumab-based treatments	Non-small cell lung cancer		ISPOR US, 2011
Real life outcomes and health-related quality of life (HRQOL) in 1st line non-squamous non-small cell lung cancer (NSCLC): a European pilot study analysing bevacizumab-based versus non-bevacizumab-based treatments	Non-small cell lung cancer		ISPOR US, 2011
Impact of walking and mobility problems on requirement for healthcare among multiple sclerosis patients	Multiple sclerosis		ISPOR US, 2011
Impact of cognitive impairment on function, medical resource utilisation, adherence and health-related quality of life in patients with schizophrenia	Schizophrenia		ISPOR US, 2011
Dupuytren's contracture: a retrospective database analysis to assess clinical management and costs in England	Dupuytren's contracture		FESSH, 2011
Cardioversion treatment patterns and outcomes among acute atrial fibrillation patients in 5 European markets	Atrial fibrillation		ISPOR US, 2011
Burden of walking problems in multiple sclerosis: analysis of caregiver and indirect costs	Multiple sclerosis		ISPOR US, 2011
Delays in insulin initiation	Diabetes		ADA, 2011
Relationship between patient-reported disease severity and other clinical outcomes in osteoarthritis - a European perspective	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/21574904/	N/A
Smoking and treatment among asthma patients in South Korea	Smoking		ERS, 2011
Association of patient-reported osteoarthritis severity with other patient-reported outcomes in the European clinical setting	Osteoarthritis		WCO, 2011
Psychometric validation of the hamburg quality of life questionnaire (HAQUAMS) in Germany, Italy, Spain, France, UK and the United States	Multiple sclerosis		ECTRIMS, 2011
Mapping the EQ-5D index from the I-QOL in patients with neurogenic and ideopathic overactive bladder (OAB): results of a cross-sectional study in the US and 4 European countries	Overactive bladder		ISPOR EU, 2011
Mapping FACT-P to country specific patient health status measured by EQ-5D in metastatic castrate resistance prostate cancer patients	Prostate cancer		ISPOR EU, 2011
HRQoL and clinical impact of mild patient-reported hypoglycaemic episodes in five European countries: extent of agreement between physician and patient-reported hypoglycaemic episodes	Diabetes		ISPOR EU, 2011
Burden of hospitalisation in patients with advanced lung cancer in France and Germany	Non-small cell lung cancer		ISPOR EU, 2011
Burden of herpes zoster and post-herpetic neuralgia - findings from a cross-sectional patient-reported outcomes study	Post-herpetic neuralgia		ISPOR EU, 2011
Relationship between patient-reported chronic low back pain severity and medication resources	Chronic lower back pain	https://pubmed.ncbi.nlm.nih.gov/22001357/	N/A
Association of patient-rated severity with other outcomes in patients with painful diabetic peripheral neuropathy	Neuropathic pain	https://pubmed.ncbi.nlm.nih.gov/22253538/	N/A
Fixed-dose combination antidiabetic therapy: real-world factors associated with prescribing choices and relationship with patient satisfaction and compliance	Diabetes	https://pubmed.ncbi.nlm.nih.gov/22246944/	N/A
Reasons for switching antimuscarinic therapy: results from a European cross-sectional survey of physicians, and patients with OAB	Overactive bladder		EAU, 2012
The burden of multiple sclerosis-related spasticity on indirect costs and requirement for non-professional care: results of a cross-sectional study in the USA	Multiple sclerosis		AAN, 2012
Impact of spasticity on healthcare resource utilisation: results of a cross-sectional study in the USA	Multiple sclerosis		AAN, 2012
Identifying disease characteristics associated with suboptimal care for COPD patients currently managed in primary care receiving inhaled corticosteroid and long-acting beta agonist FDCs	Chronic obstructive pulmonary disease		IPCRG, 2012
Real-world use of permixon in benign prostatic hyperplasia - determining appropriate monotherapy and combination treatment	Benign prostatic hypertrophy	https://pubmed.ncbi.nlm.nih.gov/22644964/	N/A
Symptoms, consultations and cormorbidities in real-world COPD patients classified by the GOLD 2011 strategy	Chronic obstructive pulmonary disease		COPD, 2012
Impact of morning symptoms on working lives of COPD patients	Chronic obstructive pulmonary disease		COPD, 2012
Healthcare resource utilization and QoL in patients with OAB due to NDO in the UK	Overactive bladder		ISPOR US, 2012
Healthcare resource utilisation is higher among UK neuropathic pain patients who have been treated for 12 months or longer	Neuropathic pain		WSPC, 2012
An assessment of impairment of productivity among systemic lupus erythematosus patients	Systemic lupus erythematosus		EULAR, 2012
A cross-national study of carer burden in dementia	Dementia		AAIC, 2012
A cross-national study of augmentation of cholinesterase inhibitors with memantine in AD	Dementia		AAIC, 2012
The impact of satisfaction/dissatisfaction with current medication on the quality of life of patients with neuropathic pain	Neuropathic pain		IASP WCP, 2012
Does level of knowledge/understanding of their diabetes affect outcomes in patients on insulin	Diabetes		AADE, 2012
The distribution of a COPD population in the GOLD assessment framework by exacerbations	Chronic obstructive pulmonary disease		ERS, 2012
The distribution of a COPD population based on the GOLD assessment framework	Chronic obstructive pulmonary disease		ERS, 2012
Quantification and treatment patterns of real-world patients classified by the GOLD 2011 strategy	Chronic obstructive pulmonary disease		ERS, 2012
Physician and patient perceptions and beliefs regarding insulin initiation and use in patients with type 2 diabetes (T2DM) in China	Diabetes		ISPOR APAC, 2012
Metabolic and cardiovascular comorbidity in COPD patients classified using the GOLD 2011 assessment framework	Chronic obstructive pulmonary disease		ERS, 2012
Impact of morning symptoms experienced by COPD patients on exacerbation risk, rescue inhaler usage and normal daily activities	Chronic obstructive pulmonary disease		ERS, 2012
Antiviral treatment rates in thrombocytopenic Hepatitis C patients - results of a retrospective chart review in five EU countries	Hepatitis C virus		EASL/AASLD, 2012
Social and economic burden of walking and mobility problems in multiple sclerosis	Multiple sclerosis	https://pubmed.ncbi.nlm.nih.gov/22989365/	N/A
The burden of multiple sclerosis-related spasticity on indirect costs and requirement for non-professional care: results of a cross-sectional study in the USA	Multiple sclerosis		ECTRIMS, 2012
Onset of multiple sclerosis-related spasticity and its impact on health-related quality of life as measured by EQ-5D and HAQUAMS	Multiple sclerosis		ECTRIMS, 2012
Incremental burden of disease in patients diagnosed with pulmonary arterial hypertension receiving monotherapy and combination vasodilator therapy	Pulmonary arterial hypertension		CHEST, 2012
Impact of spasticity on healthcare resource utilisation: results of a cross-sectional study in the USA	Multiple sclerosis		ECTRIMS, 2012
Comparison of overactive bladder patients who switch between antimuscarinic therapies with those who persist on the same therapy in the absence of improved outcomes	Overactive bladder		ICS, 2012
Alignment between patients with overactive bladder and their primary care practitioner; real-world observations associated with patient-reported outcomes	Overactive bladder		ICS, 2012
Societal burden associated with neuropathic pain in Europe	Neuropathic pain		ISPOR EU, 2012
Patient burden associated with lack of treatment satisfaction among psoriasis patients receiving traditional systemic therapies	Psoriasis		ISPOR EU, 2012
Measuring the level and impact of neuropathic pain by disease area in the EU	Neuropathic pain		ISPOR EU, 2012
Limitations of current treatment for systemic lupus erythematosus - a patient and physician survey	Systemic lupus erythematosus		ACR/ARHP, 2012
Impact of patient satisfaction on QoL in psoriasis patients receiving traditional systemic therapy	Psoriasis		ISPOR EU, 2012
Impact of bone metastases on quality of life in patients with castration-resistant prostate cancer at high risk for developing bone metastases	Prostate cancer		ISPOR EU, 2012
Quantification and treatment patterns of real-world patients classified by the GOLD 2011 strategy	Chronic obstructive pulmonary disease		BTS, 2012
Impact of patient satisfaction with their maintenance inhaler on treatment compliance and health outcomes in chronic obstructive pulmonary disease: an analysis of real-world clinical practice in Europe	Chronic obstructive pulmonary disease		BTS, 2012
Impact of morning symptoms experienced by COPD patients on exacerbation risk, rescue inhaler usage and normal daily activities	Chronic obstructive pulmonary disease		BTS, 2012
Applying the GOLD 2011 classification to a real-world COPD population in Germany	Chronic obstructive pulmonary disease		BTS, 2012
Impact of Friedreich's ataxia on health-care resource utilization in the UK and Germany	Friedrich's ataxia	https://pubmed.ncbi.nlm.nih.gov/23448170/	N/A
Relationship between self-reported low-back pain severity and other patient-reported outcomes: results from an observational study	Chronic lower back pain	https://pubmed.ncbi.nlm.nih.gov/21909037/	N/A
Estimation of the 'true' hospital burden of paediatric RSV on the NHS England	Pediatric respiratory syncytial virus		RCPCH, 2013
Mapping EQ-5D utility scores from the incontinence quality of life questionnaire among patients with neurogenic and idiopathic overactive bladder	Overactive bladder	https://pubmed.ncbi.nlm.nih.gov/23538192/	N/A
The impact of satisfaction/dissatisfaction with current medications on the quality of life of patients with neuropathic pain	Neuropathic pain		NeuPSIG, 2013
The impact of adherence to current medication on quality of life and pain intensity in patients with peripheral neuropathic pain	Neuropathic pain		NeuPSIG, 2013
Impact of ulcerative colitis on patient quality of life in a real-world clinical setting	Inflammatory Bowel Disease		DDW, 2013
Impact of bone metastases on the humanistic burden in patients with castration-resistant prostate cancer	Prostate cancer		ISPOR US, 2013
Frequency of self-measurement of blood glucose according to diabetes type and treatment	Diabetes		ISPOR US, 2013
Exploring the real world setting of chronic kidney disease patient and physician behaviours across countries: disease specific programmes	Chronic kidney disease		ISPOR US, 2013
Impact of rheumatoid arthritis on QoL, work productivity and resource utilisation - an observational, cross-sectional study in Brazil	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/23324808/	N/A
The association of satisfaction with control, current severity and duration of peripheral neuropathic pain with the likelihood of anxiety or depression	Neuropathic pain		WONCA, 2013
Neuropathic pain regimens that contain the capsaicin 8% patch: do they have a greater effect on pain reduction than other regimens?	Neuropathic pain		WONCA, 2013
Epidemiology of castration-resistant prostate cancer in 13 medium-sized European countries: data from a routine practice study	Prostate cancer		MASCC/ISOO, 2013
Burden of bone metastases in patients with castration-resistant prostate cancer: findings from a routine practice study in 13 medium-sized European countries	Prostate cancer		MASCC/ISOO, 2013
Clinical improvement and satisfaction with biologic therapy in patients with severe plaque psoriasis - results of a European cross-sectional observational study	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/22620684/	N/A
A measure of treatment response - patient and physician satisfaction with traditional NSAIDS for osteoarthritis control	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/27790025/	N/A
Limitations of current treatments for systemic lupus erythematosus - a patient and physician survey	Systemic lupus erythematosus	https://pubmed.ncbi.nlm.nih.gov/23817511/	N/A
Symptom burden and quality of life in advanced non-small cell lung cancer patients in France and Germany	Non-small cell lung cancer	https://pubmed.ncbi.nlm.nih.gov/23561304/	N/A
Mapping PDQ-39 and PDQ-8 scores onto EQ-5D utility index in patients with Parkinson's disease	Parkinson’s disease		WCN, 2013
Castration-resistant prostate cancer: understanding disease progression and associated diagnostic procedures: findings from a routine practice study in 13 medium-sized European countries	Prostate cancer		ECC, 2013
Relationship between compliance and patient-reported outcomes (PROs) in post herpetic neuralgia with insight into lidocaine medicated plaster use	Neuropathic pain		EFIC, 2013
Physician satisfaction with current psoriasis treatment	Psoriasis		LVDS, 2013
Impact of treatment compliance on HbA1c in people with insulin-treated type 2 diabetes in Europe	Diabetes		SMDM, 2013
Association of health-related quality of life with side effects in patients with neuropathic pain	Neuropathic pain		EFIC, 2013
Patient-reported visual function outcomes improve after ranibizumab treatment in patients with vision impairment due to diabetic macular edema: randomized clinical trial	Diabetic macular edema	https://pubmed.ncbi.nlm.nih.gov/23974915/	N/A
Use of dexa scans in postmenopausal osteoporosis is associated with reduced long term fracture risk	Osteoporosis		ISPOR EU, 2013
Treatment satisfaction and its association with health outcomes in patients with neuropathic pain	Neuropathic pain		ISPOR EU, 2013
Treatment patterns for Parkinson's disease: real world evidence from the EU5 (France, Germany, Italy, Spain, and the UK)	Parkinson’s disease		ISPOR EU, 2013
Relationship between COPD assessment test and EQ-5D in a real world patient population	Chronic obstructive pulmonary disease		ISPOR EU, 2013
Mapping PDQ-39 and PDQ-8 scores onto EQ-5D utility index in patients with Parkinson's disease: extended analysis	Parkinson’s disease		ISPOR EU, 2013
Exploring the burden of illness of hereditary angioedema in the UK	Angioedema		ISPOR EU, 2013
Evaluating the burden of bone metastases on patients with castration-resistant prostate cancer and their treating physicians: findings from a routine practice study in 13 medium-sized countries	Prostate cancer		ISPOR EU, 2013
Cost of illness of neuropathic pain in Spain in 2012 from a societal perspective	Neuropathic pain		ISPOR EU, 2013
Burden of hospitalization in patients with advanced lung cancer in the United States	Non-small cell lung cancer		ISPOR EU, 2013
Impact of night-time symptoms in COPD: a real-world study in five European countries	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/24348032/	N/A
Treatment patterns and characteristics of European patients with castration-resistant prostate cancer	Prostate cancer	https://pubmed.ncbi.nlm.nih.gov/24206580/	N/A
Treatment profile and insulin dose as a factor impacting glycaemic control among premix insulin users with T2DM in China	Diabetes		IDF, 2013
Glycaemic control in patients taking oral antihyperglycaemic medications only or insulin only regimens for patients with T2DM in China	Diabetes		IDF, 2013
Exploring the cost and burden of illness of hereditary angioedema in the UK	Angioedema		UK PIN, 2013
Real world burden of COPD: employed vs not in paid employment patients	Chronic obstructive pulmonary disease	None	N/A
Real world COPD: association of morning symptoms with clinical and patient reported outcomes	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/24127914/	N/A
Physician satisfaction with current psoriasis treatment	Psoriasis		CDC, 2014
Physician satisfaction with current psoriasis treatment	Psoriasis		Maui Derm, 2014
Characteristics of a COPD population categorised using the GOLD framework by health status and exacerbations	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/24041746/	N/A
The symptom burden of non-small cell lung cancer in the USA: a real-world cross-sectional study	Non-small cell lung cancer	https://pubmed.ncbi.nlm.nih.gov/24026981/	N/A
Impact of patients' satisfaction with their inhalers on treatment compliance and health status in COPD	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/24209768/	N/A
Incremental burden of disease in patients diagnosed with pulmonary arterial hypertension receiving monotherapy and combination vasodilator therapy	Pulmonary arterial hypertension	https://pubmed.ncbi.nlm.nih.gov/24449285/	N/A
Impact of psoriasis severity on clinical symptoms, comorbidities and healthcare resource utilization among US patients	Psoriasis		AAD, 2014
Impact of psoriasis disease severity and psoriasis-related itching, pain and scaling on patient reported quality of life and work productivity loss among US patients	Psoriasis		AAD, 2014
Evaluation of relationship between IL-288 single nucleotide polymorphisms and SVR after peginterferon ribavirin combination therapy in HCV genotype 1 patients in Taiwan and Korea	Hepatitis C virus		APASL, 2014
Description of patient burden observed in treated vs untreated patients with Hepatitis C virus results of a cross sectional study in US and France	Hepatitis C virus		APASL, 2014
Impact of urinary incontinence on healthcare resource utilization, health-related quality of life and productivity in patients with overactive bladder	Overactive bladder	https://pubmed.ncbi.nlm.nih.gov/24528881/	N/A
Real-world disparities between patient- and clinician-reported outcomes: results from a disease-specific program in depression and anxiety	Anxiety and depression	https://pubmed.ncbi.nlm.nih.gov/24496128/	N/A
Under-diagnosis and sub-optimal treatment of LUTS/BPH: results of a real world survey of patients in Europe	Benign prostatic hypertrophy		EAU, 2014
Negative impact of reduced first undisturbed sleep period on utility, productivity and health-related quality of life: results of a real world survey of patients in Europe and USA	Nocturia		EAU, 2014
Negative impact of nocturia on utility, productivity and health-related quality of life: results of a real world survey of patients in Europe and USA	Nocturia		EAU, 2014
Extent to which a voiding diary is used to reach diagnosis in nocturia patients: results of a real world survey of patients in Europe and USA	Nocturia		EAU, 2014
Impact of urinary incontinence on health-related quality of life, daily activities, and healthcare resource utilization in patients with neurogenic detrusor overactivity	Overactive bladder	https://pubmed.ncbi.nlm.nih.gov/24528881/	N/A
Mapping the 25-item National Eye Institute Visual Functioning Questionnaire (NEI VFQ-25) to EQ-5D utility scores	Diabetic macular edema	https://pubmed.ncbi.nlm.nih.gov/24568628/	N/A
Utility values of hepatitis C patients in France: results by liver disease stage and treatment outcome	Hepatitis C virus		ISPOR US, 2014
Understanding the cost of hereditary angioedema in the UK	Angioedema		ECRD, 2014
The secondary care cost burden to the NHS associated with the 2012 pertussis outbreak in England	Pertussis		ESPID, 2014
Physician satisfaction with current psoriasis treatment	Psoriasis		SDPA, 2014
Patient satisfaction with current psoriasis treatment	Psoriasis		DNA, 2014
Patient satisfaction with current psoriasis treatment	Psoriasis		SDPA, 2014
Impact of psoriasis disease severity and psoriasis-related itching, pain and scaling on patient reported quality of life and work productivity loss among US patients	Psoriasis		SDPA, 2014
Burden of disease in systemic lupus erythematosus patients treated with corticosteroids	Systemic lupus erythematosus		ISPOR US, 2014
Impact of physician specialty on classification of physician-perceived patient severity for patients with osteoarthritis	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/24631922/	N/A
Real-world characterization and differentiation of the global initiative for chronic obstructive lung disease strategy classification	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/24920893/	N/A
Understanding the GOLD 2011 strategy as applied to a real-world COPD population	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/24675239/	N/A
Importance of inhaler device satisfaction and adherence in outcomes measure: real-world observations in US adult asthma patients	Asthma		REG, 2014
Gout patients treated with conventional urate-lowering therapy: association between disease control and work productivity	Gout		EULAR, 2014
A real-world characterization of moderate-to-severe systemic lupus euythematosus	Systemic lupus erythematosus		EULAR, 2014
Burden of post-herpetic neuralgia in a sample of UK residents aged 50 years or older - findings from the Zoster Quality of Life (ZQoL) study	Post-herpetic neuralgia	https://pubmed.ncbi.nlm.nih.gov/24920439/	N/A
Evaluation of the consumer assessment of healthcare providers and systems in-center hemodialysis survey	Chronic kidney disease	https://pubmed.ncbi.nlm.nih.gov/24832092/	N/A
Burden of herpes zoster in the UK - findings from the zoster quality of life (ZQoL) study	Post-herpetic neuralgia	https://pubmed.ncbi.nlm.nih.gov/25038799/	N/A
Gout patients treated with conventional urate-lowering therapy: association between disease control and work productivity	Gout		WONCA, 2014
Symptom severity, quality of life and work productivity of US psoriasis patients during periods of flare and remission	Psoriasis		AAD, 2014
Evidence for validity of a national physician and patient-reported survey in China and UK: the disease specific programme	Diabetes		ISPOR APAC, 2014
Treatment of lower urinary tract symptoms (LUTS) does not always reflect physician reported diagnosis	Lower urinary tract symptoms		ICS, 2014
Quality of life in patients with nocturia: does the study design impact the outcome?	Nocturia		ICS, 2014
Physician satisfaction with current psoriasis treatment	Psoriasis		FCDC, 2014
Patient satisfaction with current psoriasis treatment	Psoriasis		LVDS, 2014
Nocturia results in work productivity and activity losses comparable with other chronic diseases	Nocturia		ICS, 2014
Impact of psoriasis disease severity and psoriasis-related itching, pain and scaling on patient reported quality of life and work productivity loss among US patients	Psoriasis		FCDC, 2014
Impact of psoriasis disease severity and psoriasis-related itching, pain and scaling on patient reported quality of life and work productivity loss among US patients	Psoriasis		LVDS, 2014
Health related quality of life and productivity impairment in chronic hepatitis C patients in Germany	Hepatitis C virus		VHC, 2014
COPD patients' needs and current treatment options	Chronic obstructive pulmonary disease	https://www.emjreviews.com/respiratory/symposium/copd-patients-needs-and-current-treatment-options/	N/A
Reasons for nonuse of antiviral treatment in patients with chronic hepatitis C infection and thrombocytopaenia - a retrospective chart review from five EU countries	Hepatitis C virus	https://pubmed.ncbi.nlm.nih.gov/24698004/	N/A
Self-reported health-related quality of life of hepatitis C virus (HCV) genotype 1 patients with and without comorbid conditions	Hepatitis C virus		ISPOR EU, 2014
Inhaler device satisfaction, smoking history, allergic rhinitis and adherence in US adult asthma patients: relationship to health-related outcomes	Asthma		ACAAI, 2014
Impact of brain metastases on quality of life and estimated life expectancy in patients with advanced non-small cell lung cancer	Non-small cell lung cancer		ISPOR EU, 2014
Establishing the relationship of inhaler satisfaction, adherence, smoking history and allergic rhinitis with patient outcomes: real world observations in US adult asthma patients	Asthma		ISPOR EU, 2014
Burden of renal impairment: relative resource use in prostate cancer patients with bone metastases	Prostate cancer		ISPOR EU, 2014
A real-world characterization of patients with moderate to severe systemic lupus erythemotosus	Systemic lupus erythematosus		ISPOR EU, 2014
A real-world characterization of moderate-to-severe systemic lupus euythematosus	Systemic lupus erythematosus		ACR/ARHP, 2014
Physician-prescribed asthma treatment regimen does not differ between smoking and non-smoking patients with asthma in Seoul and Gyunggi provinces of Korea	Smoking	https://pubmed.ncbi.nlm.nih.gov/25553260/	N/A
Severity of liver disease among chronic hepatitis C patients - an observational study of 4594 patients in five EU countries	Hepatitis C virus	https://pubmed.ncbi.nlm.nih.gov/25088088/	N/A
Patient-reported symptom burden among relapsing remitting multiple sclerosis (RRMS) vs secondary progressive multiple sclerosis patients (SPMS) in the United States	Multiple sclerosis		AMCP, 2015
Patient-reported physical function and impact on instrumental activities of daily living in RRMS and SPMS patients in the United States	Multiple sclerosis		AMCP, 2015
Health related quality of life and utility values in chronic hepatitis C patients: a cross sectional study in France, the UK and Germany	Hepatitis C virus		EASL, 2015
Characterizing gastrointestinal symptoms in HIV patients taking antiretroviral therapy	HIV		ACTHIV, 2015
Burden of illness in relapsing remitting and secondary progressive multiple sclerosis patients in the United States	Multiple sclerosis		AMCP, 2015
Antiviral treatment discontinuation among hepatitis C-infected individuals with thrombocytopenia	Hepatitis C virus	https://pubmed.ncbi.nlm.nih.gov/25847467/	N/A
The evaluation of work productivity in relapsing-remitting (RRMS) and secondary progressive multiple sclerosis (SPMS) patients in Europe	Multiple sclerosis		ISPOR US, 2015
Matching-adjusted indirect treatment comparison and survival extrapolation in radioiodine-refractory differentiated thyroid cancer	Thyroid cancer		ISPOR US, 2015
Impact of walking impairment on healthcare resource utilization in MS patients	Multiple sclerosis		ISPOR US, 2015
Exploring the real world setting of chronic ideopathic urticaria and physician attitudes towards it in the US	Urticaria		ISPOR US, 2015
Confidence in correct inhaler device technique and its association with overall treatment adherence: a retrospective data analysis of real-world US patients	Asthma		ATS, 2015
Increasing body mass index identifies Chinese patients with type 2 diabetes mellitus at risk of poor outcomes	Diabetes	https://pubmed.ncbi.nlm.nih.gov/25784086/	N/A
Unmet needs still remain in the biologic therapy options for psoriatic arthritis	Psoriatic arthritis		EULAR, 2015
Reasons for discontinuation of GLP-1 receptor agonists: data from a large cross-sectional survey of physicians and type 2 diabetic patients	Diabetes		ADA, 2015
Prevalence of joint involvement & frequency of joint exams for plaque psoriasis patients without confirmed psoriatic arthritis	Psoriatic arthritis		EULAR, 2015
Patient-reported symptom burden among relapsing-remitting multiple sclerosis (RRMS) vs secondary progressive multiple sclerosis Patients (SPMS) in Europe	Multiple sclerosis		EAN, 2015
Patient-reported physical functioning in relapsin-remitting multiple sclerosis (RRMS) and secondary progressive multiple sclerosis (SPMS) patients in Europe	Multiple sclerosis		EAN, 2015
Evaluation of burden on caregivers associated with relapsing-remitting (RRMS) and secondary progressive multiple sclerosis (SPMS) patients in Europe	Multiple sclerosis		EAN, 2015
Differences in physician-reported and DAS28-based assessment of disease remission among rheumatoid arthritis patients in clinical practice	Rheumatoid arthritis		EULAR, 2015
Clinical outcomes in relapsing-remitting multiple sclerosis (RRMS) and secondary progressive multiple sclerosis (SPMS) patients in Europe	Multiple sclerosis		EAN, 2015
Burden of illness associated with non-radiographic axial spondyloarthritis - an EU study from the clinical and healthcare system perspective	Axial spondyloarthritis		EULAR, 2015
Burden of illness associated with non-radiographic axial spondyloarthritis - a European study from the patient and societal perspective	Axial spondyloarthritis		EULAR, 2015
Glycemic control in Chinese patients with type 2 diabetes mellitus receiving oral antihyperglycemic medication-only or insulin-only treatment: a cross-sectional survey	Diabetes	https://pubmed.ncbi.nlm.nih.gov/26088603/	N/A
Patient health utility, work productivity, and lifestyle impairment in chronic hepatitis C patients in France	Hepatitis C virus	https://pubmed.ncbi.nlm.nih.gov/25511922/	N/A
Frequency and prevalence of flares in psoriasis in the US	Psoriasis		WPPA, 2015
Burden of flares on patients with moderate to severe psoriasis in the US	Psoriasis		WPPA, 2015
Alcohol dependence, co-occurring conditions and attributable burden	Alcohol dependence	https://pubmed.ncbi.nlm.nih.gov/26246514/	N/A
Frequency and prevalence of flares in psoriasis in the US	Psoriasis		AAD, 2015
Direct medical costs of severe hypooglycaemic events amongst type 2 diabetes patients in United Kingdom: a retrospective database study	Diabetes		EASD, 2015
Comparison of COPD patients with high and low symptoms from a real-world US survey	Chronic obstructive pulmonary disease		ERS, 2015
Bone targeting agent treatment patterns and the impact of bone metastases on prostate cancer patients in a real world setting	Prostate cancer		ESMO, 2015
Bone targeting agent treatment patterns and the impact of bone metastases on breast cancer patients in a real world setting	Breast cancer		ESMO, 2015
Bone targeting agent treatment patterns and the impact of bone metastases on advanced breast cancer patients in the US	Breast cancer		BCS, 2015
Establishing the relationship of inhaler satisfaction, treatment adherence, and patient outcomes: a prospective, real-world, cross-sectional survey of US adult asthma patients and physicians	Asthma	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4564954/	N/A
Increased severity of itching, pain, and scaling in psoriasis patients is associated with increased disease severity, reduced quality of life, and reduced work productivity	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/26632793/	N/A
Physician-patient concordance in pharmacological management of patients with COPD	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/26244570/	N/A
Understanding the characteristics of secondary progressive multiple sclerosis to facilitate early identification	Multiple sclerosis		ECTRIMS, 2015
Relapse rates and QoL among patients receiving disease-modifying therapy for multiple sclerosis	Multiple sclerosis		ECTRIMS, 2015
Quantifying the impact of real world severity and satisfaction with care on productivity in Crohn's disease patients	Inflammatory Bowel Disease		AMCP, 2015
Impact of walking impairment on healthcare resource utilisation in multiple sclerosis patients: an updated analysis from 2015	Multiple sclerosis		ECTRIMS, 2015
Differences in work productivity activity impairment in RRMS patients initiated on oral DMF or platform therapies	Multiple sclerosis		ECTRIMS, 2015
Confidence in correct inhaler device technique and its association with patient characteristics: a retrospective analysis of real world US COPD patients	Chronic obstructive pulmonary disease		AMCP, 2015
Comparison of the health status of COPD patients with high and low symptoms from a real-world US survey	Chronic obstructive pulmonary disease		CHEST, 2015
Real world data and LUTS	Lower urinary tract symptoms		N/A
Walking impairment and healthcare resource utilisation in multiple sclerosis patients: an updated analysis from 2015	Multiple sclerosis		PACTRIMS, 2015
Trend and factors associated with switching treatment after initial anti-TNF therapy among patients with rheumatoid arthritis	Rheumatoid arthritis		ACR/ARHP, 2015
The relationship between glucose-lowering medications, adherence and outcomes in patients with type 2 diabetes	Diabetes		ISPOR EU, 2015
The burden of nonradiographic axial spondyloarthritis from the employer perspective - a real world European study	Axial spondyloarthritis		ACR/ARHP, 2015
Symptoms, concomitant conditions and cardiac risk in European hydroxyurea treated polycythemia vera patients	Polycythemia vera		ISPOR EU, 2015
Standards for the classification of nonradiographic axial spondyloarthritis	Axial spondyloarthritis		ACR/ARHP, 2015
Satisfaction in psoriatic arthritis patients despite active joint disease	Psoriatic arthritis		ACR/ARHP, 2015
Satisfaction and impact associated with the addition of belimumab to systemic lupus erythematosus treatment	Systemic lupus erythematosus		ACR/ARHP, 2015
RRMS patients initiated on oral DMF report a better quality of life compared to patients on platform therapies as measured by EQ-5D	Multiple sclerosis		ISPOR EU, 2015
Relationship between rheumatologist perceptions of rheumatoid arthritis severity and DAS28 measures, patient impact and treatment patterns	Rheumatoid arthritis		ACR/ARHP, 2015
Relapse rates and work productivity among patients receiving disease-modifying therapy (DMT) for multiple sclerosis	Multiple sclerosis		WCN, 2015
Prevalence of joint symptoms and frequency of joint exams for patients with plaque psoriasis without confirmed PSA - a US analysis	Psoriasis		ACR/ARHP, 2015
Misalignment between physician and patient satisfaction with current psoriatic arthritis treatment	Psoriatic arthritis		ACR/ARHP, 2015
Matching-adjusted indirect treatment comparison and survival extrapolation in radioiodine-refractory differentiated thyroid cancer: updated analysis	Thyroid cancer		ISPOR EU, 2015
International differences in the role of payer and administrative controls in prescribing decisions	Multiple myeloma		ISPOR EU, 2015
Impact of staging and hormone sensitivity on quality of life in US prostate cancer patients	Prostate cancer		ISPOR EU, 2015
Factors influencing treatment adjustments in rheumatoid arthritis patients - biologic DMARD treatment start and options	Rheumatoid arthritis		ACR/ARHP, 2015
Exploring the real world profile of refractory and non-refractory chronic idiopathic urticaria patients in the US	Urticaria		ACAAI, 2015
Exploring the real world profile of refractory and non-refractory chronic idiopathic urticaria patients in the US	Urticaria		SDPA, 2015
Differences in disease specific HRQOL in RRMS patients initiated on oral DMF or platform therapies in Europe and US	Multiple sclerosis		ISPOR EU, 2015
Development of a screening tool to support identification of patients with secondary progressive multiple sclerosis (SPMS)	Multiple sclerosis		ISPOR EU, 2015
Delay of optimal nocturia treatment is costly: results of a real world survey of patients in Europe and the USA	Nocturia		ISPOR EU, 2015
Cross-sectional descriptive study of the impact of anaemia in chronic kidney disease patients on healthcare resource utilisation and work productivity across Europe	Chronic kidney disease		ISPOR EU, 2015
Clinical characteristics and health outcomes of rheumatoid arthritis patients not adequately controlled on current treatment	Rheumatoid arthritis		ACR/ARHP, 2015
Burden of residual skin and joint disease in patients with psoriatic arthritis treated with biologics	Psoriatic arthritis		ISPOR EU, 2015
Burden of illness associated with nonradiographic axial spondyloarthritis - a European real world database analysis from the clinical and healthcare system perspective	Axial spondyloarthritis		ACR/ARHP, 2015
Bone-targeting agent treatment patterns and the impact of bone metastases on advanced breast cancer patients in real world settings in Europe	Breast cancer		ISPOR EU, 2015
Bone pain and bone-targeting agent treatment patterns in patients with bone metastases from prostate cancer in real world settings in Europe	Prostate cancer		ISPOR EU, 2015
Avoidable burden and unmet need associated with nonradiographic axial spondyloarthritis treatment	Axial spondyloarthritis		ISPOR EU, 2015
Assessing the level of resistance/intolerance to hydroxyurea therapy among patients with polycythemia vera in Europe	Polycythemia vera		ISPOR EU, 2015
Adoption of treat to target management in the context of achievable goals and satisfaction in rheumatoid arthritis	Rheumatoid arthritis		ACR/ARHP, 2015
Characteristics of Chinese patients with uncontrolled type 2 diabetes mellitus who were not initiated on insulin	Diabetes		CDS, 2015
Understanding remission in real-world lupus patients across five European countries	Systemic lupus erythematosus	https://pubmed.ncbi.nlm.nih.gov/26635245/	N/A
Management of gout in the real world: current practice versus guideline recommendations	Gout	https://pubmed.ncbi.nlm.nih.gov/26592538/	N/A
Prevalence and burden of dyspnoea among patients with chronic obstructive pulmonary disease in five European countries	Chronic obstructive pulmonary disease	https://link.springer.com/article/10.1007/s41030-016-0011-5#:~:text=serious%20cardiovascular%20comorbidity.-,Prevalence%20of%20Dyspnoea,%25%20in%20the%20UK%20(Fig	N/A
Use of bone-targeted agents to prevent skeletal-related events in patients with advanced breast cancer and bone metastases	Breast cancer		EBCC, 2016
Satisfaction with treatment among IBD patients receiving subcutaneous biologic treatment and infused biologic treatment	Inflammatory Bowel Disease		ECCO, 2016
Real-world treatment patterns & factors influencing use of bone-targeted agents in combination with emerging therapeutics in patients with prostate cancer & bone metastases	Prostate cancer		EAU, 2016
HRQoL, work productivity and satisfaction with treatment among IBD patients receiving adalimumab mono vs combo therapy	Inflammatory Bowel Disease		ECCO, 2016
Confidence in correct inhaler device technique and its association with health status and patient satisfaction	Chronic obstructive pulmonary disease		SHM, 2016
Patient satisfaction with current psoriasis treatment - a real-world study in the US	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/27267186/	N/A
Physician satisfaction with current psoriasis treatment - a real-world study in the US	Psoriasis	https://journals.sagepub.com/doi/abs/10.1177/247553031600100207?journalCode=jpsa	N/A
A burden of illness study for neuropathic pain in Europe	Neuropathic pain	https://pubmed.ncbi.nlm.nih.gov/27217785/	N/A
Applying Rasch analysis to evaluate measurement equivalence of different administration formats of the Activity Limitation scale of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR)	Pulmonary arterial hypertension	https://pubmed.ncbi.nlm.nih.gov/27062133/	N/A
The burden experienced by people caring for patients with Alzheimer's disease or mild cognitive impairment	Dementia		ADI, 2016
Satisfaction in psoriatic arthritis patients despite active joint disease	Psoriasis		AMCP, 2016
Misalignment between physician and patient satisfaction with current psoriatic arthritis treatment	Psoriasis		AMCP, 2016
Different perceptions of Alzheimer's disease severity and its association with patients' and caregiver's quality of life	Dementia		ADI, 2016
Differences in work productivity & activity impairment in patients with multiple sclerosis initiated on oral dimethyl fumarate vs interferon ß or glatimer acetate	Multiple sclerosis		AAN, 2016
Comparison of biologic DMARD rheumatoid arthritis treatment dynamics across 5 EU countries	Rheumatoid arthritis		BSR, 2016
Burden of Alzheimer's disease or mild cognitive impairment on patients and their caregivers in Europe and the US	Dementia		ADI, 2016
Matching-adjusted indirect treatment comparison in patients with radioiodine-refractory differentiated thyroid cancer	Thyroid cancer	https://www.dovepress.com/matching-adjusted-indirect-treatment-comparison-in-patients-with-radio-peer-reviewed-fulltext-article-CER	N/A
Treatment with intramuscular interferon beta-1a in Brazil is associated with fewer hospitalisations due to relapse	Multiple sclerosis		ISPOR US, 2016
The use of migraine prophylaxis treatment: analysis of clinical practice data from the United States, Germany, France and Japan	Migraine		ISPOR US, 2016
Real-world evidence on health state utilities in metastatic breast cancer: data from a retrospective patient record form study and a cross-sectional patient survey	Breast cancer		ISPOR US, 2016
Real-world cross-sectional descriptive study of the quality of life of patients with anemia and chronic kidney disease across Europe	Chronic kidney disease		ISPOR US, 2016
Quantifying the cost burden of locally advanced basal cell carcinoma not amenable to surgery or radiotherapy in the United Kingdom	Basal cell carcinoma		ISPOR US, 2016
Premixed insulin treatment for type 2 diabetes mellitus in China: patient and physician perceptions	Diabetes		ISPOR US, 2016
International differences in the role of payer and administrative controls in prescribing decisions in type 2 diabetes mellitus (t2dm)	Diabetes		ISPOR US, 2016
Insulin initiation for type 2 diabetes mellitus in China: physicians' preferred HbA1c level at insulin initiation and patients' observed levels	Diabetes		ISPOR US, 2016
Inhaler preference, attribute importance and satisfaction in patients with asthma COPD or ACOS consulting for routine care	Chronic obstructive pulmonary disease		ATS, 2016
Factors associated with a history of failure and switching migraine prophylaxis treatment	Migraine		ISPOR US, 2016
Extent and consequences of inadequate disease control among adults with a history of moderate-to-severe atopic dermatitis	Atopic dermatitis		SID, 2016
Disagreement between physician and patient-reported disease severity in adults with a history of moderate-to-severe atopic dermatitis	Atopic dermatitis		SID, 2016
Current treatment and symptomatic burden of COPD patients according to 2014 GOLD	Chronic obstructive pulmonary disease		ATS, 2016
Characterizing patient reported QoL measures among users and non-users of migraine prophylaxis treatment in USA, Germany, France and Japan	Migraine		ISPOR US, 2016
Characterization and patient-reported perceptions and outcomes of insulin use amongst pre-insulin versus insulin type 2 diabetes mellitus (T2DM) populations in USA	Diabetes		ISPOR US, 2016
Characteristics of Chinese patients with uncontrolled type 2 diabetes mellitus who were not initiated on insulin	Diabetes		ISPOR US, 2016
An evaluation of disability progression and quality of life in multiple sclerosis patients in Brazil and Mexico	Multiple sclerosis		ISPOR US, 2016
Use of migraine prophylaxis treatments in USA: analysis of data from clinical practice	Migraine		AHS, 2016
Unmet needs and burden of illness in patients currently receiving biologic treatments for rheumatoid arthritis	Rheumatoid arthritis		EULAR, 2016
Unmet need in migraine prophylaxis treatment in the USA: data from clinical practice	Migraine		AHS, 2016
Trends in medication use in patients with type 2 diabetes mellitus: a long term view of real world treatment between 2000 and 2015	Diabetes		ADA, 2016
Treatment failure, switching and HR-QoL in patients with ankylosing spondylitis or psoriatic arthritis	Ankylosing spondylitis		EULAR, 2016
Satisfaction and unmet need among systemic lupus erythematosus patients taking standard of care medications in a real world setting	Systemic lupus erythematosus		EULAR, 2016
Prevalence, recurrence and cost burden of locally advanced basal cell carcinoma not amenable to surgery or radiotherapy in the United Kingdom	Basal cell carcinoma		ASCO, 2016
Minimal important difference in haq - a validation from health economic perspectives in patients with rheumatoid arthritis using real world data from adelphi database	Rheumatoid arthritis		EULAR, 2016
Migraine patients with cluster headache: exploratory study of the burden of illness	Migraine		AHS, 2016
Key drivers in biosimilar prescription in inflammatory autoimmune disease indications in Germany	Biosimilars		EULAR, 2016
Fatigue in patients with ankylosing spondylitis and low vitality in those with psoriatic arthritis	Ankylosing spondylitis		EULAR, 2016
Evolution of biologic treatment, satisfaction with control and patient-reported outcomes in European patients with psoriatic arthritis	Psoriatic arthritis		EULAR, 2016
Disease severity in patients with discoid lupus erythematosus from a real-world setting	Discoid lupus erythematosus		EULAR, 2016
Discrepancy between physician and patient satisfaction with rheumatoid arthritis disease control	Rheumatoid arthritis		EULAR, 2016
Breast cancer specific quality of life in HR+/HER2- advanced/metastatic breast cancer patients in a real world setting	Breast cancer		ASCO, 2016
Association between disease severity and patient-reported outcomes in patients with discoid lupus erythematosus in real-world cllinical practice	Discoid lupus erythematosus		EULAR, 2016
Anxiety and depression among rheumatoid arthritis patients association with clinical measurements and patient-reported disability and treatment satisfaction	Rheumatoid arthritis		EULAR, 2016
A real-world analysis of outcomes in migraineurs receiving preventive migraine treatment	Migraine		AHS, 2016
Societal burden of mild cognitive impairment and Alzheimer's disease patients measured by caregivers' productivity loss	Dementia		AAIC, 2016
Quantifying the cost burden of locally advanced basal cell carcinoma on the health care system in the United Kingdom	Basal cell carcinoma		AAD, 2016
Patients with Alzeimer's disease suffered reduced quality of life relative to general population	Dementia		AAIC, 2016
Maintaining mild cognitive impairment patients in milder disease state results in less healthcare resource utilization	Dementia		AAIC, 2016
How does the level of patient's cognitive impairment affect their caregiver's quality of life	Dementia		AAIC, 2016
How are cognitive impairment patients being diagnosed	Dementia		AAIC, 2016
Cross-sectional survey in CKD patients across Europe describing the association between quality of life and anaemia	Chronic kidney disease	https://pubmed.ncbi.nlm.nih.gov/27460779/	N/A
Evidence for validity of a national physician and patient-reported, cross-sectional survey in China and UK: the Disease Specific Programme	Diabetes	https://pubmed.ncbi.nlm.nih.gov/27531722/	N/A
Health status of patients with chronic obstructive pulmonary disease by symptom level	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/28848889/	N/A
Impact of psoriasis flare and remission on quality of life and work productivity - a real-world study in the US	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/27617715/	N/A
Quantifying the relationship between increased disability and health care resource utilization, quality of life, work productivity, health care costs in patients with multiple sclerosis in the US	Multiple sclerosis	https://pubmed.ncbi.nlm.nih.gov/27443278/	N/A
Relationship between psoriasis severity, clinical symptoms, quality of life and work productivity among patients in the US	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/27061102/	N/A
Satisfaction with current psoriasis treatment - misalignment between physician and patient perceptions	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/27617714/	N/A
Burden of illness associated with non-radiographic AxSpA - a multiperspective European cross-sectional observational study	Axial spondyloarthritis	https://pubmed.ncbi.nlm.nih.gov/27749215/	N/A
Discrepancy between physician-reported and DAS-28 reported remission in a real world study - unmet needs and boi in RA patients treated with biologics	Rheumatoid arthritis		RNS, 2016
Differences in satisfaction with RA disease control between physicians and patients	Rheumatoid arthritis		RNS, 2016
Association of anxiety and depression with clinical measurements and patient-reported disability and treatment satisfaction among rheumatoid arthritis patients	Rheumatoid arthritis		RNS, 2016
Prevalence and burden of dyspnoea among COPD patients in Japan	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/27396989/	N/A
Treatment trends of asthma-COPD overlap syndrome patients	Chronic obstructive pulmonary disease		ERS, 2016
Treatment patterns in migraine: a real-world analysis in a US population	Migraine		EHF, 2016
The disease burden of mild asthma in China	Asthma		ERS, 2016
The disease burden of mild asthma	Asthma		ERS, 2016
Satisfaction with cancer treatments in HR+/HER- metastatic breast cancer patients in a real world setting	Breast cancer		ESMO, 2016
Patient-reported pain severity and interference in HR+/HER- advanced/metastatic breast cancer in a real world setting	Breast cancer		ESMO, 2016
Night-time symptoms and sleep disturbance in patients with COPD	Chronic obstructive pulmonary disease		ERS, 2016
Migraine prophylaxis treatments patterns in Japan: analysis of data from clinical practice	Migraine		EHF, 2016
Migraine prophylaxis treatments patterns in Germany: analysis of data from clinical practice	Migraine		EHF, 2016
Migraine prophylaxis treatments patterns in France: analysis of data from clinical practice	Migraine		EHF, 2016
Direct medical costs of severe hypoglycemic events among type 2 diabetes patients in England	Diabetes		EASD, 2016
Association of COPD symptom burden with healthcare resource utilization and impairment on work and activity	Chronic obstructive pulmonary disease		ERS, 2016
Adherence among type 2 diabetes mellitus (T2DM) patients	Diabetes		EASD, 2016
Weight distribution in European patients with Crohn’s disease in Adelphi 2015 DSP	Inflammatory Bowel Disease		UEGW, 2016
The impact of increasing disability on employment status and caregiver burden among multiple sclerosis patients in Brazil	Multiple sclerosis		ISPOR EU, 2016
Relapse rates and symptom management among patients receiving natalizumab and other disease-modifying therapies for relapsing-remitting multiple sclerosis	Multiple sclerosis		ISPOR EU, 2016
Real-world impact of gender, age and socio-economic status on type 2 diabetes mellitus (T2DM) patients' disease engagement and adherence with treatment regimens	Diabetes		ISPOR EU, 2016
Real world treatment patterns of PCSK9 inhibitors and other lipid lowering therapy among patients with dyslipidemia	Dyslipidemia		AMCP, 2016
Quantification of quality of life differences due to age-related diseases in the 50+ age group in the United Kingdom	Age-related diseases		ISPOR EU, 2016
Quality of life of patients with Alzheimer's disease: a comparison with the general population	Dementia		ISPOR EU, 2016
Perception from patients with ulcerative colitis or Crohn's disease toward the performance of biosimilars versus bio-originators	Biosimilars		UEGW, 2016
Patient-reported need vs concern around injectable therapy and impact on adherence: a real world survey of 5EU/US type 2 diabetes mellitus (T2DM) patients	Diabetes		ISPOR EU, 2016
Patient reported health utility in HR+/HER2- advanced/metastatic breast cancer	Breast cancer		ISPOR EU, 2016
Migraine prophylaxis treatment patterns in Japan: analysis of data from clinical practice	Migraine		JHS, 2016
Economic and humanistic benefits of maintaining cognitive impairment patients in the early stage	Dementia		ISPOR EU, 2016
Disease severity and control in adults with a history of moderate and-or severe atopic dermatitis	Atopic dermatitis		ISPOR EU, 2016
Cost and resource utilization among multiple sclerosis patients with increasing disability in Latin America	Multiple sclerosis		ISPOR EU, 2016
Correlation between structural damage and work/activity impairment among rheumatoid arthritis patients	Rheumatoid arthritis		ISPOR EU, 2016
Comparison of informal caregiving time required by Alzheimer's disease patients and mild cognitive impairment patients	Dementia		ISPOR EU, 2016
Burden and work productivity impairment from providing care to Alzheimer's disease patients	Dementia		ISPOR EU, 2016
Association of anxiety and depression with clinical measurements and patient-reported disability and treatment satisfaction among rheumatoid arthritis patients	Rheumatoid arthritis		ISPOR EU, 2016
Assessment of patient preference in the treatment of relapsing remitting multiple sclerosis in public and private systems in Latin America	Multiple sclerosis		ISPOR EU, 2016
Analysis of costs associated with vitamin K antagonist treatment for stroke prevention in non valvular atrial fibrillation in Russia	Atrial fibrillation		ISPOR EU, 2016
Analysis of costs associated with vitamin K antagonist treatment for stroke prevention in non valvular atrial fibrillation in Mexico	Atrial fibrillation		ISPOR EU, 2016
A regional analysis of relapsing remitting MS (RRMS) patients treated with natalizumab suggests a need to diagnose and treat early in Latin America	Multiple sclerosis		ISPOR EU, 2016
Patients with gout treated with conventional urate-lowering therapy: association with disease control, health-related quality of life, and work productivity	Gout	https://pubmed.ncbi.nlm.nih.gov/27036386/	N/A
Satisfaction with control of systemic lupus erythematosus and lupus nephritis - physician and patient perspectives	Systemic lupus erythematosus	https://pubmed.ncbi.nlm.nih.gov/27784995/	N/A
Unhappiness is related to worse outcomes for patients with ankylosing spondylitis and increased impairment in daily life activities	Ankylosing spondylitis		ACR/ARHP, 2016
Trends and factors associated with use of biologic agents as monotherapy among US RA patients	Rheumatoid arthritis		ACR/ARHP, 2016
The relationship between physical functioning and work for people with psoriatic arthritis - results from a large real-world study in 16 countries	Psoriatic arthritis		ACR/ARHP, 2016
The impact of myeloproliferative neoplasms on patient quality of life and productivity - results from the international MPN Landmark study	Myeloproliferative neoplasms		ASH, 2016
Psoriatic arthritis limits patients' abilities to undertake activities crucial for normal daily life and impacts happiness	Psoriatic arthritis		ACR/ARHP, 2016
Physician-reported and patient-reported anxiety and depression in rheumatoid arthritis	Rheumatoid arthritis		ACR/ARHP, 2016
Patient attitudes towards being prescribed biosimilars in inflammatory autoimmune diseases in Germany	Biosimilars		ACR/ARHP, 2016
Impact of pill burden on adherence and patient-reported quality of life - analysis of real world non-dialysis chronic kidney disease patient population	Chronic kidney disease		ASN, 2016
Impact of disease flare perception on work productivity and treatment satisfaction in patients with psoriatic arthritis	Psoriatic arthritis		ACR/ARHP, 2016
Discordance between physician-stated remission and DAS28-defined remission in rheumatoid arthritis patients	Rheumatoid arthritis		ACR/ARHP, 2016
Comparison of patients prescribed biosimilar or bio-originators for autoimmune diseases in Germany	Biosimilars		ACR/ARHP, 2016
Nocturia is often inadequately assessed, diagnosed and treated by physicians: results of an observational, real-life practice database containing 8659 European and US-American patients	Nocturia	https://pubmed.ncbi.nlm.nih.gov/27753248/	N/A
The cost of warfarin treatment for stroke prevention in patients with non-valvular atrial fibrillation in Mexico	Atrial fibrillation	https://pubmed.ncbi.nlm.nih.gov/28151036/	N/A
Trends in medication use in patients with type 2 diabetes mellitus: a long-term view of real-world treatment between 2000 and 2015	Diabetes	https://pubmed.ncbi.nlm.nih.gov/27843332/	N/A
Assessing the impact of nocturia on health-related quality-of-life and utility: results of an observational survey in adults	Nocturia	https://pubmed.ncbi.nlm.nih.gov/27388879/	N/A
The incremental disease burden associated with the persistence of morning daytime and night-time symptoms in COPD patients	Chronic obstructive pulmonary disease		BTS, 2016
The humanistic burden associated with caring for advanced NSCLC patients in Europe - a real world survey of caregivers	Non-small cell lung cancer		IASLC WCLC, 2016
The humanistic burden associated with advanced NSCLC patients in Europe - a real world survey	Non-small cell lung cancer		IASLC WCLC, 2016
Bronchodilator reliever use and its association with the economic and humanistic burden of COPD: a propensity-matched study	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/27564685/	N/A
The humanistic burden of advanced non-small cell lung cancer on patients and their caregivers	Non-small cell lung cancer		CSS, 2017
A cross-sectional survey of night-time symptoms and impact of sleep disturbance on symptoms and health status in patients with COPD	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/28243077/	N/A
COPD symptom burden: impact on health care resource utilization, and work and activity impairment	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/28260874/	N/A
Misalignment between physicians and patient satisfaction with psoriatic arthritis disease control	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/28238086/	N/A
Assessing physician and patient acceptance of infliximab biosimilars in rheumatid arthritis, ankylosing spondyloarthritis and psoriatic arthritis across Germany	Biosimilars	https://pubmed.ncbi.nlm.nih.gov/28331299/	N/A
Understanding disease burden, severity and progression in patients with cutaneous lupus erythematosus in a real world setting	Cutaneous lupus erythematosus		ICSLE, 2017
Symptomatic burden of asthma patients adherent to medium or high dose ICS LABA	Asthma		AAAAI, 2017
Real-world treatment patterns and characteristics in patients with triple negative breast cancer in the United States	Breast cancer		MBCC, 2017
Real-world disease burden in US adults with moderate-severe atopic dermatitis eligible for treatment with systemic immunosuppressants	Atopic dermatitis		AAD, 2017
Real world treatment patterns and characteristics in patients with CLL in the united states	Chronic lymphocytic leukemia		ASCO QCS, 2017
Patient and physician-perceived disconnects in the communication and disease management of myeloproliferative neoplasms	Myeloproliferative neoplasms		BSH, 2017
Most frequently utilized diagnostic test and scans across two North American and five European countries	Dementia		ICAPD, 2017
International Landmark survey - UK patient perceptions on the symptomatic and economic burden of myeloproliferative neoplasms	Myeloproliferative neoplasms		BSH, 2017
Impact of patient perceptions of psoriasis and sporiatic arthritis severity on patient-reported outcomes: an analysis from the Adelphi database	Psoriasis		AAD, 2017
Health care resource utilization and work impairment for asthma patients adherent to medium or high dosage ICS/LABA fixed combination treatment	Asthma		AAAAI, 2017
Country variations in the duration of the diagnostic process	Dementia		ICAPD, 2017
Country variations in the diagnostic experience of patients with cognitive impairment	Dementia		ICAPD, 2017
Cardiologist perspectives in treatment of patients with dyslipidemia with proprotein convertase subtilisin/kexin type 9 (pcsk9) inhibitors and other lipid-lowering therapies	Dyslipidemia		ACC, 2017
A multinational assessment of work-related productivity loss and indirect costs for patients with psoriasis	Psoriasis		AAD, 2017
Assessing gastroenterologist and patient acceptance of biosimilars in ulcerative colitis and Crohn's disease across Germany	Biosimilars	https://pubmed.ncbi.nlm.nih.gov/28410403/	N/A
Regional variations in the diagnosis of cognitively impaired patients	Dementia		ADI, 2017
Investigation of HRQoL burden in spondyloarthritis - effects of failure of advanced therapy and fatigue	Axial spondyloarthritis		JCR, 2017
Increasing cognitive impairment requires significantly more hours of caregiving	Dementia		ADI, 2017
Discordance between physician- and patient-reported disease severity in adults with atopic dermatitis - a US cross-sectional survey	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/28447213/	N/A
Clinical profile, treatment patterns and outcomes of stage IV SCCHN patients receiving 2nd line active drug treatment	Squamous cell carcinoma of the head and neck		AHNS, 2017
Disease burden of mild asthma: findings from a cross-sectional real-world survey	Asthma	https://pubmed.ncbi.nlm.nih.gov/28391549/	N/A
A cross-sectional survey of current treatment and symptom burden of patients with COPD consulting for routine care according to GOLD 2014 classifications	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/28579771/	N/A
Work productivity and activity impairment in patients with HR+/HER2- advanced/metastatic breast cancer	Breast cancer		ISPOR US, 2017
Treatment patterns, treatment satisfaction and treatment switching in patients with non-radiographic AxSpA	Axial spondyloarthritis		ISPOR US, 2017
Treatment patterns and healthcare resource use of rheumatoid arthritis patients treated with biologic disease-modifying anti-rheumatic drugs in South Korea: results from HIRA Health Insurance Claims Database	Rheumatoid arthritis		ISPOR US, 2017
Treatment failure, treatment switching and HRQoL in patients with psoriatic arthritis - results from a real world sample in the US	Psoriatic arthritis		ISPOR US, 2017
Treatment failure, switching and HRQoL in patients with ankylosing spondylitis - results from a real world sample in the US	Ankylosing spondylitis		ISPOR US, 2017
Time of day of COPD symptoms and their association with work productivity and healthcare resource utilization	Chronic obstructive pulmonary disease		ATS, 2017
Squamous cell carcinoma of the head and neck (SCCHN) patient reported satisfaction with cancer therapy	Squamous cell carcinoma of the head and neck		ISPOR US, 2017
Rheumatologist and patient-specific factors associated with current advanced therapy use in rheumatoid arthritis	Rheumatoid arthritis		ISPOR US, 2017
Real world treatment patterns in glioblastoma multiforme	Glioblastoma multiforme		WFNOS, 2017
Real world treatment patterns among patients with squamous cell carcinoma of the head and neck in Canada	Squamous cell carcinoma of the head and neck		ISPOR US, 2017
Patient reported QoL in patients with stage IV squamous cell carcinoma of the head and neck (SCCHN)	Squamous cell carcinoma of the head and neck		ISPOR US, 2017
Inhaler confidence and satisfaction among COPD patients with comorbidities - a comparison of handheld verus nebulized maintenance bronchodilators	Chronic obstructive pulmonary disease		ISPOR US, 2017
Impact of glioblastoma multiforme on patient quality of life	Glioblastoma multiforme		WFNOS, 2017
Humanistic burden of disease in earlier stage metastatic versus late stage metastatic melanoma patients in a real world setting in 5 EU countries	Melanoma		ISPOR US, 2017
Disease status, symptomatology and remission rates of NrAxSpA and AS patients in the US	Axial spondyloarthritis		ISPOR US, 2017
Discordance of acute myeloid leukemia symptoms reported by US physicians and patients	Acute myeloid leukemia		ISPOR US, 2017
Determinants of patient and physician treatment satisfactgion in moderate to severe psoriasis - a multinational assessment	Psoriasis		ISPOR US, 2017
Delay in treatment progression among diabetics: a real world assessment	Diabetes		ISPOR US, 2017
Asthma symptoms and health care resource utilization by level of asthma control in patients adherent to ICS/LABA treatment	Asthma		ATS, 2017
Direct medical costs of severe hypoglycaemic events in patients with type 2 diabetes in England: a retrospective database study	Diabetes	https://pubmed.ncbi.nlm.nih.gov/28544081/	N/A
Weight management as a treatment intervention for NAFLD patients - real world practice and physician satisfaction with treatment effectiveness	Diabetes		ICFL, 2017
Understanding the real-world clinical characteristics of multiple myeloma patients	Multiple myeloma		EHA, 2017
Treatment and management of patients with MPNs - findings from the International MPN Landmark survey	Myeloproliferative neoplasms		EHA, 2017
Symptomatology, disease status and remission rates of NrAxSpA and AS patients in Europe	Psoriatic arthritis		EULAR, 2017
Real-world prescribing patterns in acute myeloid leukemia in the United States	Acute myeloid leukemia		ASCO, 2017
Real-world clinical inertia among T2DM patients clinical, physician and patient viewpoints	Diabetes		ADA, 2017
Quality of life of acute myeloid leukemia patients in a real-world setting	Acute myeloid leukemia		ASCO, 2017
Presence of multiple drivers in the selection of high and low intensity chemotherapy in AML	Acute myeloid leukemia		EHA, 2017
Physician-estimated incidence of NASH in diabetes compared with physician-confirmed diagnosis of NASH in a real world population of diabetes patients	Diabetes		ICFL, 2017
Physician-estimated incidence of NAFLD in diabetes compared with physician-confirmed diagnosis of NAFLD in a real world population of diabetes patients	Diabetes		ICFL, 2017
Perception of symptom burden and treatment goals between physicians and patients with MPNS	Myeloproliferative neoplasms		EHA, 2017
Patterns of HPV testing and treatment decision in patients with SCCHN	Squamous cell carcinoma of the head and neck		ASCO, 2017
Patient characteristics and treatment patterns in chronic heart failure: results from a real-world cross-sectional survey in Argentina, Brazil, Colombia and Mexico	Chronic heart failure		ACC LA, 2017
Pain still remains a high unmet need among psoriatic arthritis patients receiving existing biologic treatment	Psoriatic arthritis		EULAR, 2017
Later line drug treatment patterns of classical Hodgkin's lymphoma patients in Canada, France, Germany and the UK	Hodgkin's lymphoma		EHA, 2017
Humanistic burden of disease in earlier stage versus late stage metastatic melanoma patients in the US	Melanoma		ASCO, 2017
Economics of inhaled oxygen use as an acute therapy for cluster headache in the United States of America	Cluster headache		AHS, 2017
Disease characteristics and treatment patterns of AML patients <60 years old versus >60 years old	Acute myeloid leukemia		EHA, 2017
Comparing adherence levels of CLL treatment from both the patient and physician perspective in the US	Chronic lymphocytic leukemia		ASCO, 2017
Caregiver burden in chronic heart failure: pooled results from a real-world cross-sectional survey in Argentina, Brazil, Colombia and Mexico	Chronic heart failure		ACC LA, 2017
Burden of disease on chronic heart failure patients: pooled results from a real-world cross-sectional survey in Argentina, Brazil, Colombia and Mexico	Chronic heart failure		ACC LA, 2017
Assessing real-world treatment patterns, outcomes and resource use across Europe in newly diagnosed multiple myeloma patients post autologous stem cell transplant	Multiple myeloma		EHA, 2017
Frequency, prevalence, and burden of flares on patients with moderate to severe psoriasis - a retrospective cross-sectional analysis	Psoriasis	https://journals.sagepub.com/doi/abs/10.1177/247553031700200306	N/A
Quantifying the benefits of dimethyl fumarate over beta interferon and glatiramer acetate therapies on work productivity outcomes in MS patients	Multiple sclerosis	https://pubmed.ncbi.nlm.nih.gov/28093681/	N/A
The cost of warfarin treatment for stroke prevention in patients with non-valvular atrial fibrillation in Russia	Atrial fibrillation	https://pubmed.ncbi.nlm.nih.gov/28151036/	N/A
Treatment trends in patients with asthma-COPD overlap syndrome in a COPD cohort: findings from a real-world survey	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/28670116/	N/A
Confidence in correct inhaler technique and its association with treatment adherence and health status among US patients with chronic obstructive pulmonary disease	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/28744110/	N/A
The race to diagnose - disease severity as a factor of Alzheimer's disease diagnosis	Alzheimer's disease		AAIC, 2017
Real world administration of the Alzheimer's Disease Assessment Scale-Cognitive (ADAS-Cog)	Alzheimer's disease		AAIC, 2017
Real-world impact of cardiovascular disease and anemia on quality of life and productivity in patients with non-dialysis-dependent chronic kidney disease	Chronic kidney disease	https://pubmed.ncbi.nlm.nih.gov/28578500/	N/A
Treatment-related burden of illness of castration-resistant prostate cancer with bone metastases in France	Prostate cancer	http://verizonaonlinepublishing.com/CANCERPDF/JournalofCancerEpidemiologyandTreatment18.pdf	N/A
Patient-reported pain severity, pain interference and health status in HR+/HER2- advanced/metastatic breast cancer	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/29209529/	N/A
Patient-reported quality of life and treatment satisfaction in patients with HR+/HER2- advanced/metastatic breast cancer	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/28751098/	N/A
The impact of myeloproliferative neoplasms on patient quality of life and productivity - results from the International MPN Landmark survey	Myeloproliferative neoplasms	https://pubmed.ncbi.nlm.nih.gov/28780729/	N/A
Treatment patterns of COPD patients in France: a retrospective analysis of an administrative primary care database	Chronic obstructive pulmonary disease		ERS, 2017
Treatment patterns of chronic heart failure in Brazil	Chronic heart failure		ISPOR LA, 2017
Treatment patterns and satisfaction for rheumatoid arthritis patients in Latin America undergoing advanced therapy	Rheumatoid arthritis		ISPOR LA, 2017
Treatment patterns and impact of not achieving skin clearance for psoriasis patients in Latin America	Psoriasis		ISPOR LA, 2017
The cost burden of COPD in France: a retrospective analysis of an administrative primary care database	Chronic obstructive pulmonary disease		ERS, 2017
Symptomatic burden of COPD for patients receiving dual or triple therapy	Chronic obstructive pulmonary disease		ERS, 2017
Real-world productivity, HRU and QoL in patients with advanced gastric cancer in Canada and Europe	Gastric cancer		ESMO, 2017
Psoriatic arthritis limits patient ability to contribute to society as part of the workforce results from multinational survey including Latin America	Psoriatic arthritis		ISPOR LA, 2017
Patient characteristics and treatment patterns of chronic heart failure in Mexico	Chronic heart failure		ISPOR LA, 2017
Patient characteristics and treatment patterns of chronic heart failure in Argentina	Chronic heart failure		ISPOR LA, 2017
Generating patient reported outcome norms for an EU cancer population using real world data (FACT-G)	Various		ESMO, 2017
Diabetes kidney disease (DKD) severity classifications and therapy impact in a real-world setting across 5EU and US	Diabetes		EASD, 2017
Delayed biologic switching among psoriatic arthritis patients may result in poor hrqol results from multinational survey including Latin America	Psoriatic arthritis		ISPOR LA, 2017
Delayed biologic switching among ankylosing spondylitis patients in Latin America may result in poor HRQoL	Ankylosing spondylitis		ISPOR LA, 2017
Cost impact of time to initiation of triple therapy in COPD patients in Japan: a retrospective analysis of an administrative primary care database	Chronic obstructive pulmonary disease		ERS, 2017
Characteristics of psoriasis patients in Latin America	Psoriasis		ISPOR LA, 2017
Characteristics of Latin American patients with rheumatoid arthritis receiving advanced therapy	Rheumatoid arthritis		ISPOR LA, 2017
Assessing the burden of disease in peripheral and AxSpA in Mexico and Brazil	Axial spondyloarthritis		ISPOR LA, 2017
Assessing the burden of chronic heart failure on patients in Mexico	Chronic heart failure		ISPOR LA, 2017
Assessing the burden of chronic heart failure on patients in Brazil	Chronic heart failure		ISPOR LA, 2017
Assessing the burden of chronic heart failure on patients in Argentina	Chronic heart failure		ISPOR LA, 2017
Assessing the burden of chronic heart failure on patients' caregivers in Mexico	Chronic heart failure		ISPOR LA, 2017
Assessing the burden of chronic heart failure on patients' caregivers in Brazil	Chronic heart failure		ISPOR LA, 2017
Assessing the burden of chronic heart failure on patients' caregivers in Argentina	Chronic heart failure		ISPOR LA, 2017
Appropriate PsA treatment is delayed for years - results from multi-national survey including Latin America	Psoriatic arthritis		ISPOR LA, 2017
Appropriate ankylosing spondylitis treatment is delayed for years results from multi-national survey including Latin America	Ankylosing spondylitis		ISPOR LA, 2017
Ankylosing spondylitis limits patient ability to contribute to society as part of the workforce - results from multinational survey including Latin America	Ankylosing spondylitis		ISPOR LA, 2017
Patient and physician-reported satisfaction with systemic lupus erythematosus treatment in US clinical practice	Systemic lupus erythematosus	https://pubmed.ncbi.nlm.nih.gov/28803702/	N/A
Reasons for discontinuation of GLP1 receptor agonists: data from a real-world cross-sectional survey of physicians and their patients with type 2 diabetes	Diabetes	https://pubmed.ncbi.nlm.nih.gov/29033597/	N/A
Economics of inhaled oxygen use as an acute therapy for cluster headache in the United States of America	Cluster headache	https://pubmed.ncbi.nlm.nih.gov/28842974/	N/A
Psoriatic arthritis patients failing biologic treatment have poor outcomes: survey results including APAC and Middle East	Psoriatic arthritis		APLAR, 2017
Impact of tobacco smoking on humanistic and financial burden of advanced non-small cell lung cancer	Non-small cell lung cancer		IASLC WCLC, 2017
Impact of multimorbidity on patient-reported QoL analysis of a real world chronic kidney disease patient populations	Chronic kidney disease		ASN, 2017
Impact of brain metastases on the humanistic burden incurred by patients with advanced non-small cell lung cancer	Non-small cell lung cancer		IASLC WCLC, 2017
Changing disease-modifying therapy switching dynamics for relapsing-remitting multiple sclerosis patients	Multiple sclerosis		ECTRIMS, 2017
Burden of heart failure in Saudi Arabia - results from a cross-sectional survey	Chronic heart failure		ACC, 2017
Appropriate psoriatic arthritis treatment is delayed for years - multi-national survey results including APAC and Middle East	Psoriatic arthritis		APLAR, 2017
Appropriate ankylosing spondylitis treatment is delayed for years - multi-national survey results including APAC and Middle East	Ankylosing spondylitis		APLAR, 2017
Ankylosing spondylitis patients failing biologic treatment are less able to work - survey results including APAC and Middle East	Ankylosing spondylitis		APLAR, 2017
A real-world analysis of migraine: a cross-sectional study of disease burden and treatment patterns	Migraine	https://pubmed.ncbi.nlm.nih.gov/28984356/	N/A
Time from first symptom onset to first advanced therapy among rheumatoid patients in Latin America	Rheumatoid arthritis		ACR/ARHP, 2017
The impact of disability on activities of daily living, productivity and independency in patients with multiple sclerosis - findings from a 2016 study in Europe and the US	Multiple sclerosis		ISPOR EU, 2017
Real-world treatment patterns in patients with advanced gastric cancer in Western and Asian countries	Gastric cancer		ESMO Asia, 2017
Real-world productivity, HRU and QoL in patients with advanced gastric cancer in Korea and Japan	Gastric cancer		ESMO Asia, 2017
Real-world evaluation of physician attitudes to prescription of androgen deprivation therapy for patients with prostate cancer	Prostate cancer		ISPOR EU, 2017
Real world treatment patterns of PCSK9 inhibitors among patients with dyslipidemia in Germany, Spain and United Kingdom	Dyslipidemia		ISPOR EU, 2017
Predicting EQ-5D utility index scores for gastric cancer patients in Japan: a preliminary model	Gastric cancer		ISPOR EU, 2017
Patient characteristics and treatment patterns in chronic heart failure - results from a multinational cross sectional survey	Chronic heart failure		ISPOR EU, 2017
Patient characteristics and reasons for biologic monotherapy in EU5 markets in rheumatoid arthritis	Rheumatoid arthritis		ISPOR EU, 2017
Level of satisfaction with rheumatoid arthritis treatment and associated alignment between rheumatologists and patients across Latin America	Rheumatoid arthritis		ACR/ARHP, 2017
Impairment of work ability in patients with rheumatoid arthritis	Rheumatoid arthritis		ISPOR EU, 2017
Impact of isocitrate dehydrogenase status on the performance status and QoL of GBM patients	Glioblastoma multiforme		ISPOR EU, 2017
Health-related quality of life in oncology - are we getting better?	Various		ISPOR EU, 2017
Flaring among atopic dermatitis patients - the perception of flaring burden between physicians and patients	Atopic dermatitis		ISPOR EU, 2017
Economic and humanistic burden of illness among diabetes patients experiencing treatment inertia	Diabetes		ISPOR EU, 2017
Cost effectiveness of dolutegravir in HIV-1 treatment-naive patients in Russia	HIV		ISPOR EU, 2017
Cost burden associated with advanced non-small cell lung cancer - impact of disease stage	Non-small cell lung cancer		ISPOR EU, 2017
Clinical characteristics and peripheral joint involvement at the time of diagnosis of Nr-AxSpA patients in the US and Europe	Axial spondyloarthritis		ACR/ARHP, 2017
Characterising the relative impact of established cardiovascular disease and chronic kidney disease on quality of life in diabetes patients	Diabetes		ISPOR EU, 2017
Burden of disease on chronic heart failure patients - a multinational cross-sectional survey in real world setting	Chronic heart failure		ISPOR EU, 2017
Burden of chronic heart failure on caregivers - a multinational cross-sectional survey in real world setting	Chronic heart failure		ISPOR EU, 2017
Assessing the disease course and treatment of psoriatic arthritis in Canada	Psoriatic arthritis		ISPOR EU, 2017
Assessing the burden of disease in peripheral and axial spondyloarthritis in Mexico	Axial spondyloarthritis		ISPOR EU, 2017
Assessing the burden of disease in peripheral and axial spondyloarthritis in Brazil	Axial spondyloarthritis		ISPOR EU, 2017
Assessing the burden of chronic heart failure on patients in Colombia	Chronic heart failure		ISPOR EU, 2017
Assessing the burden of chronic heart failure on caregivers of patients in Colombia	Chronic heart failure		ISPOR EU, 2017
Are there differences in FACT-G scores between different tumour types for an EU population using real world data?	Various		ISPOR EU, 2017
Access perceptions - a key driver of NSCLC targeted therapy prescription in Russia	Non-small cell lung cancer		ISPOR EU, 2017
Extent and consequences of inadequate disease control among adults with a history of moderate to severe atopic dermatitis	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/29131384/	N/A
Therapeutic inertia among real world population with T2DM from 2013-2016: data from 33,203 patients across EU and US	Diabetes		IDF, 2017
Quantifying levels of physical activity in patients with COPD - a US cross-sectional survey	Chronic obstructive pulmonary disease		BTS, 2017
Impact of active maintenance treatment compared to no maintenance on QoL of mutiple myeloma patients following first autologous stem cell transplant	Multiple myeloma		ASH, 2017
Assessing outcomes, HRU and costs across Europe in newly diagnosed multiple myeloma patients post autologous stem cell transplant	Multiple myeloma		ASH, 2017
Redefining cut-points for high symptom burden of the global initiative for chronic obstructive lung disease classification in 18,577 patients with chronic obstructive pulmonary disease	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/29169740/	N/A
Current later-line drug treatment patterns of patients with classical hodgkin lymphoma (CHL) in Germany	Hodgkin's lymphoma		DKK, 2018
A survey of caregiver burden in those providing informal care for patients with schizophrenia or bipolar disorder with agitation - results from an EU study	Various	https://pubmed.ncbi.nlm.nih.gov/29456588/	N/A
Treatment modification with sunitinib in first-line metastatic renal cell carcinoma: an analysis of the STAR-TOR registry	Metastatic renal cell carcinoma		ASCO GU, 2018
The impact of biologic treatment on patients with psoriasis from Argentina, Brazil, Columbia and Mexico	Psoriasis		AAD, 2018
The humanistic burden of advanced non-small cell lung cancer: What are the key drivers of caregiver burden?	Non-small cell lung cancer		CSS, 2018
Nail psoriasis and psoriatic arthritis - assessing the association between these and real world impact of biologic treatment	Psoriasis		AAD, 2018
Assessing the impact of patient support programs on patient outcomes in adalimumab-treated patients with psoriasis in Europe	Psoriasis		AAD, 2018
Quantifying the diagnostic pathway for patients with cognitive impairment: real-world data from seven European and North American countries	Dementia	https://pubmed.ncbi.nlm.nih.gov/29439347/	N/A
Chart review across EU5 in multiple myeloma post-ASCT patients	Multiple myeloma	https://pubmed.ncbi.nlm.nih.gov/30302236/	N/A
Clinical characteristics and patient-reported outcomes in patients with inadequately controlled rheumatoid arthritis despite ongoing treatment	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/29593881/	N/A
Real world treatment patterns and clinical outcomes of advanced metastatic breast cancer patient receiving palbociclib in combination	Breast cancer		EBCC, 2018
Real world treatment clinical outcomes associated with palbociclib combination therapy in the US - results from the IRIS study	Breast cancer		MBCC, 2018
BRCA screening patterns, demographics, and clinical characteristics among women with second line ovarian cancer: results from the Adelphi Disease Specific Cancer Programme	Ovarian cancer		SGO, 2018
Maintenance inhaler preference, attribute importance, and satisfaction in prescribing physicians and patients with asthma, COPD, or asthma-COPD overlap syndrome consulting for routine care	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/29588581/	N/A
Characterizing the experience of agitation in patients with bipolar disorder and schizophrenia	Various	https://pubmed.ncbi.nlm.nih.gov/29661160/	N/A
Disease burden of mild asthma in China	Asthma	https://pubmed.ncbi.nlm.nih.gov/29052915/	N/A
Treatment beliefs, adherence and outcomes in asthma patients: importance of beliefs in ICS nonadherence	Asthma		SBM, 2018
Rheumatologist perception on switching vs cycling treatment after tumour necrosis factor inhibitor therapy among US rheumatoid arthritis patients	Rheumatoid arthritis		AMCP, 2018
Physician beliefs regarding the use of biologic DMARD monotherapy vs combination therapy among US rheumatoid arthritis patients	Rheumatoid arthritis		AMCP, 2018
Pharmacotherapeutic treatment paradigms of osteoarthritis in the United States	Osteoarthritis		OARSI, 2018
Levels of satisfaction with psa treatment and associated alignment between rheumatologists and their patients across Latin America	Psoriatic arthritis		PANLAR, 2018
Impact of chorea on employment, self-care activities and independency in huntington disease patients in the United States	Huntington disease		AMCP, 2018
Burden of disease in immune thrombocytopenia (ITP): The results for UK patients from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		BSH, 2018
Patient characteristics and real-world treatment patterns among early users of PCSK9 inhibitors	Dyslipidemia	https://pubmed.ncbi.nlm.nih.gov/28849360/	N/A
Symptomatic burden of COPD for patients receiving dual or triple therapy	Chronic obstructive pulmonary disease	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5927353/	N/A
The economic burden of skin symptoms in psoriatic arthritis	Psoriatic arthritis		ISPOR US, 2018
Remote reporting of patient outcomes in ulcerative colitis - a prospective real world study	Inflammatory Bowel Disease		ISPOR US, 2018
Real-world out-of-pocket expenses among advanced breast cancer patients undergoing treatment in the US	Breast cancer		ISPOR US, 2018
Real-world outcomes associated with standard half-life and extended half-life factor replacement products for Hemophilia A and B	Hemophilia		ECRD, 2018
Quality of life in patients with osteoporosis: a US cross-sectional study	Osteoporosis		ISPOR US, 2018
Perceptions of heart failure treatment decision-making and side effects of heart failure treatment by patients and cardiologists	Chronic heart failure		ESC-HF, 2018
Perceptions of heart failure symptoms and disease severity by patients and cardiologists: a multinational survey in the real world cardiology setting	Chronic heart failure		ESC-HF, 2018
Inhaler use confidence and treatment adherence among COPD patients using neohaler: analysis of physician prescriptions from a US survey	Chronic obstructive pulmonary disease		ATS, 2018
Health state utility of patients with CKD and anemia: analysis of EQ-5D in a real world population	Chronic kidney disease		ERA-EDTA, 2018
Effect of painful lumbrosacral radiculopathy on employment and quality of life among patients in Europe	Neuropathic pain		ISPOR US, 2018
Association of treatment resistant depression with healthcare resource utilization and physician satisfaction with disease management	Depression		ISPOR US, 2018
The impacts of morning, daytime, and nighttime symptoms on disease burden in real-world patients with COPD	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/29805254/	N/A
Bone-targeted agent treatment patterns and the impact of bone metastases on patients with advanced breast cancer in real-world practice in six European countries	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/29892519/	N/A
Burden of heart failure on caregivers in China: results from a cross-sectional survey	Chronic heart failure	https://pubmed.ncbi.nlm.nih.gov/29922041/	N/A
Burden of heart failure on patients from China: results from a cross-sectional survey	Chronic heart failure	https://pubmed.ncbi.nlm.nih.gov/29922040/	N/A
Using real-world data to generate reference values for patient-reported outcome meaures	Various		PSI, 2018
Treatment patterns in psoriatic arthritis - results from a real world international study	Psoriatic arthritis		EULAR, 2018
The burden of disease and impact of immune thrombocytopenia (ITP) on patient quality of life and productivity: Results from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		EHA, 2018
The burden associated with temporary worsening of ulcerative colitis symptoms from the patient perspective	Inflammatory Bowel Disease		DDW, 2018
Real-world assessment of the effect of 'off' episodes on patient quality of life among patients with Parkinson's disease	Parkinson’s disease		PAS, 2018
Real-world assessment of 'off' episode-related health resource use among patients with Parkinson's disease	Parkinson’s disease		PAS, 2018
Real world treatment patterns and clinical outcomes associated with palbociclib combination therapy in Argentina - results from IRIS study	Breast cancer		ASCO, 2018
Patient-perceived involvement in disease management drives patient-physician alignment in satisfaction with disease control in PSA	Psoriatic arthritis		EULAR, 2018
Impact of chorea on employment, self-care activities and independency in huntington disease patients in the United States	Huntington disease		PAS, 2018
Health care resource utilization and lost productivity time due to migraine in the US population	Migraine		AHS, 2018
Experience with an anti-IL17a inhibitor in biologic naive and biologic experienced PsA patients	Psoriatic arthritis		EULAR, 2018
Evaluation of the impact of migraine on patient function and HRQoL in the US population	Migraine		AHS, 2018
Cost-effectiveness of dolutegravir in HIV1 treatment-naive patients in China	HIV		APACC, 2018
Clinical outcomes in patients receiving palbociclib and fulvestrant first line for ABC/MBC in the US	Breast cancer		ASCO, 2018
Nocturia is more bothersome than daytime LUTS: results from an observational, real-life practice database including 8659 European and American LUTS patients	Nocturia	https://pubmed.ncbi.nlm.nih.gov/29767479/	N/A
Care pathways and treatment patterns for patients with heart failure in China: results from a cross-sectional survey	Chronic heart failure	https://pubmed.ncbi.nlm.nih.gov/30100706/	N/A
Real-world, multinational, retrospective observational survey of the ADAS-Cog and associations with healthcare resource utilization in patients with Alzheimer's disease	Dementia	https://pubmed.ncbi.nlm.nih.gov/29966202/	N/A
Nocturia diagnosis in LUTS patients is associated with decreased sleep quality, work productivity and daytime tiredness	Nocturia		ICS, 2018
Cost effectiveness of dolutegravir as a first-line treatment option in the HIV-1-infected treatment-naive patients in Russia	HIV	https://pubmed.ncbi.nlm.nih.gov/30296624/	N/A
Functional performance in patients with COPD: association with treatment regimen, GOLD group, lung function, and symptom burden in a cross-sectional study	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/30233169/	N/A
The discrepancy between patient and physician perceptions of pain and treatment satisfaction among PLSR patients in France and Germany	Neuropathic pain		IASP WCP, 2018
Real world disease burden in patients with dyslipidemia with-without diabetes mellitus in China	Dyslipidemia		ISPOR APAC, 2018
Painful lumbrosacral radiculopathy: current treatment regimens and associated patient satisfaction in France and Germany	Neuropathic pain		IASP WCP, 2018
Medication use and treatment satisfaction for trigeminal neuralgia patients in France and Germany	Neuropathic pain		IASP WCP, 2018
Impact of mild or moderate atopic dermatitis on adult patients - results from a real-world study in 3 European countries	Atopic dermatitis		EADV, 2018
Health care resource use by disease severity for patients with osteoarthritis in the United States	Osteoarthritis		Pain Week, 2018
Exacerbation frequency and eosinophil levels for GOLD C and D COPD patients currently prescribed multiple inhaler triple therapy (MITT)	Chronic obstructive pulmonary disease		ERS, 2018
Current and future opportunities for the use of real world data in the Asia Pacific region	Various		ISPOR APAC, 2018
Burden of mild and moderate atopic dermatitis - results from a real-world study in the US and Europe	Atopic dermatitis		EADV, 2018
Assessment of the benefit of achieving complete vs almost complete skin clearance of psoriasis patients in the US - a patient perspective	Psoriasis		EADV, 2018
Adult patients experiencing mild or moderate atopic dermatitis are significantly impacted by their condition - results from a real-world study in the US	Atopic dermatitis		EADV, 2018
Acute and preventive treatment patterns and associated WPAI among patients with migraine in Germany	Migraine		EHF, 2018
A real-world analysis of global patient-reported outcomes in patients with migraine	Migraine		EHF, 2018
Factors influencing the use of biologic therapy and adoption of treat-to-target recommendations in current EU rheumatology practice	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/30323570/	N/A
Use of DLQI subdomains to measure overall work productivity loss in moderate-severe psoriasis patients	Psoriasis		AMCP, 2018
Treatment patterns among patients with moderate to severe ulcerative colitis in Western Europe	Inflammatory Bowel Disease		UEGW, 2018
Treatment patterns among patients with moderate to severe ulcerative colitis in the US	Inflammatory Bowel Disease		ACG, 2018
The burden of disease and impact of immune thrombocytopenia (ITP) on patient quality of life and productivity: Results from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		ECTH, 2018
The association between disease activity and PROs in patients with moderate to severe ulcerative colitis in the US	Inflammatory Bowel Disease		ACG, 2018
The association between disease activity and PROs in patients with moderate to severe ulcerative colitis in Europe	Inflammatory Bowel Disease		UEGW, 2018
Real world treatment patterns associated wtih palbociclib combination therapy in Germany - results from the IRIS study	Breast cancer		ESMO, 2018
Quality of life in CKD patients with hyperkalemia in the US: results from the KDQOL-36	Chronic kidney disease		ASN, 2018
Physical and emotional burden on caregivers of patients with heart failure in Japan	Chronic heart failure		JHFS, 2018
Incremental hourly burden of 'off' episodes on quality of life and health resource use among patients with Parkinson's disease: A neurologist/patient real-world assessment in the US	Parkinson’s disease		ICPDMD (MDS), 2018
Full, partial or modified - understanding relationships between permutations of the Mayo score in real-world ulcerative colitis patients	Inflammatory Bowel Disease		ACG, 2018
From onset of symptoms to a diagnosis of hypothyroidism - the real world experience	Hypothyroidism		ATA, 2018
Discordance in symptoms reported by patients with hypothyroidism versus by their patients	Hypothyroidism		ATA, 2018
Clinical atherosclerotic cardiovascular disease (ASCVD): patient attitudes and awareness in Canada	Dyslipidemia		CAPT, 2018
Burden of illness among patients with chronic hypoparathyroidism not adequately controlled with standard therapy by self-perception	Hypoparathyroidism		ASBMR, 2018
Burden of heart failure on patients in Japan	Chronic heart failure		JHFS, 2018
Associations of hemoglobin levels and quality of life in patients with chronic kidney disease	Chronic kidney disease		ASN, 2018
Assessing the relationship between disease severity and pros in psoriasis patients in the US	Psoriasis		FCDC, 2018
Assessing the impact of hyperkalemia on patient-reported quality of life: a global analysis of the KDQOL-36 in a real-world CKD patient population	Chronic kidney disease		ASN, 2018
Anemia treatment patterns in chronic kidney disease - results from three international surveys among physicians	Chronic kidney disease		ASN, 2018
A real world assessment of hospitalizations due to falls among patients with and without 'off' episodes in Parkinson's disease	Parkinson’s disease		ICPDMD (MDS), 2018
HRQoL for multiple myeloma patients according to treatment strategy after autologous stem cell transplant - a cross-sectional study using EORTC, EQ-5D and My-20 scales	Multiple myeloma	https://pubmed.ncbi.nlm.nih.gov/30380358/	N/A
Treatment patterns and clinical outcomes among patients receiving palbociclib with an aromatase inhibitor or fulvestrant for HR+ HER2- advanced-metastatic breast cancer in real-world settings in the US - results from the IRIS study	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/30391832/	N/A
Work productivity and EQ-5D utility of CKD patients by anemia severity	Chronic kidney disease		ISPOR EU, 2018
Reduced relapse rates and improved QoL for relapsing-remitting multiple sclerosis (RRMS) patients treated with natalizumab vs injectable therapies	Multiple sclerosis		ISPOR EU, 2018
Reduced healthcare resource utilisation for patients treated with delayed release dimethyl fumarate vs injectable therapies: findings from a real-world cross-sectional study of MS patients	Multiple sclerosis		ISPOR EU, 2018
Real-world treatment patterns and health outcomes in episodic and chronic migraine in Japan	Migraine		JHS, 2018
Real world treatment patterns of patients with advanced ovarian cancer resistant or refractory to frontline platinum-based therapy	Ovarian cancer		ISPOR EU, 2018
Real world bortezomib usage in combination with VMP as FL treatment in SCT ineligible multiple myeloma patients across 5EU	Multiple myeloma		ISPOR EU, 2018
Real world bortezomib usage in combination with thalidomide and dexamathasone as frontline treatment in stem cell transplant eligible MM patients	Multiple myeloma		ISPOR EU, 2018
Physician reported adherence in MS patients treated with injectable platform therapies versus delayed-release dimethyl fumarate: Findings from a real-world cross-sectional study	Multiple sclerosis		ISPOR EU, 2018
Peginterferon beta-1a is associated with reduced relapse rates and hospitalisation compared with other first line injectable therapies for multiple sclerosis	Multiple sclerosis		ISPOR EU, 2018
Increased burden of multimorbidity among diabetes patients	Diabetes		ISPOR EU, 2018
Health resource utilization across stages of Alzheimer's	Alzheimer's disease		ISPOR EU, 2018
Health related quality of live in patients with advanced ovarian cancer resistant or refractory to frontline platinum-based therapy	Ovarian cancer		ISPOR EU, 2018
Functional loss across stages of Alzheimer's	Alzheimer's disease		ISPOR EU, 2018
Caregiver needs across stages of Alzheimer's	Alzheimer's disease		ISPOR EU, 2018
Assessing real world usage of PD-1 inhibitors in advanced melanoma across EU5	Melanoma		ISPOR EU, 2018
Perceptions of heart failure symptoms, disease severity, treatment decision-making and side effects by patients and cardiologists	Chronic heart failure	https://pubmed.ncbi.nlm.nih.gov/30532549/	N/A
Sunitinib treatment modification in first-line metastatic renal cell carcinoma: analysis of the STAR-TOR registry	Renal cell carcinoma	https://pubmed.ncbi.nlm.nih.gov/30396966/	N/A
COPD treatment pathways in France: a retrospective analysis of electronic medical record data from general practitioners	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/30587961/	N/A
Results from the ITP World Impact Survey (I-WISh): Patients with immune thrombocytopenia experience impaired quality of life regarding daily activities, social interactions, emotional well-being, and working lives	Immune thrombocytopenia		ASH, 2018
Real world treatment patterns and outcomes of patients receiving palbociclib plus fulvestrant in the US from the IRIS Study	Breast cancer		SABCS, 2018
Real world treatment patterns and outcomes of patients receiving palbociclib plus aromatase inhibitor in the US from the IRIS study	Breast cancer		SABCS, 2018
Patients with immune thrombocytopenia frequently experience severe fatigue but it is under-recognized by physicians: results from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		ASH, 2018
Adult patients experiencing mild or moderate atopic dermatitis are significantly impacted by their condition - results from a real-world study in the US	Atopic dermatitis		ASHP, 2018
Non-professional caregiver burden is associated with the severity of patients' cognitive impairment	Dementia	https://pubmed.ncbi.nlm.nih.gov/30521532/	N/A
A real-world study assessing the use of bone-targeted agents and their impact on bone metastases in patients with prostate cancer treated in clinical practice in Europe	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/30627511/	N/A
Humanistic burden of refractory and non-refractory chronic idiopathic urticaria - a real-world study in the United States	Chronic idiopathic urticaria	https://pubmed.ncbi.nlm.nih.gov/30606639/	N/A
Treatment patterns, determinants and outcomes of hemophilia	Hemophilia		EAHAD, 2019
Physician practice patterns associated with diagnostic evaluation of patients with suspected mild cognitive impairment and Alzheimer's disease	Alzheimer's disease	https://pubmed.ncbi.nlm.nih.gov/30937189/	N/A
Real-world treatment patterns and outcomes of patients with stage IV squamous cell carcinoma of the head and neck	Head and neck cancer	https://pubmed.ncbi.nlm.nih.gov/30426780/	N/A
Bone-targeted agent treatment patterns and the impact of bone metastases on patients with advanced breast cancer in the United States	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/30550358/	N/A
Burden of asthma among patients adherent to ICS/LABA - a real-world study	Asthma	https://pubmed.ncbi.nlm.nih.gov/29624458/	N/A
Cost burden associated with advanced non-small cell lung cancer in Europe and influence of disease stage	Non-small cell lung cancer	https://pubmed.ncbi.nlm.nih.gov/30849964/	N/A
Symptom burden and lack of remission among adult patients with ulcerative colitis (UC): retrospective analysis of cross-sectional survey data from the US and Germany	Inflammatory Bowel Disease		ECCO, 2019
Physician-recommended and patient-implemented lifestyle interventions among non-alcoholic steatohepatitis (NASH) patients with and without cardiovascular-metabolic (CVM) related comorbidities: A European real-world study	Non‐alcoholic steatohepatitis		DUKPC, 2019
Physician-recommended and patient-implemented lifestyle interventions among non-alcoholic steatohepatitis (NASH) patients with and without cardiovascular-metabolic (CVM) related comorbidities: A European real-world study	Non‐alcoholic steatohepatitis		DUKPC, 2019
Patient demographics and BRCA1/2 testing in HER2– Breast Cancer: results from the US and EU5 countries	Breast cancer		MBCC, 2019
Opiod use, rebound headache and resource utilization among migraine patients with insufficient response to triptans based on real-world data	Migraine		AMCP, 2019
Living with ulcerative colitis in Germany: quantifying the socioeconomic impact of moderate to severe ulcerative colitis	Inflammatory Bowel Disease		ECCO, 2019
Living with ulcerative colitis in Germany: quantifying the healthcare resource utilisation and direct healthcare costs associated with treatment of moderate to severe ulcerative colitis	Inflammatory Bowel Disease		ECCO, 2019
Burden of disease in patients with Crohn’s disease: retrospective analysis of cross-sectional survey data from the US and Germany	Inflammatory Bowel Disease		ECCO, 2019
BRCA1/2 status and patient characteristics, health utility/health status, and work impairment in HER2- advanced breast cancer: results from a real-world study	Breast cancer		MBCC, 2019
Physician-recommended lifestyle interventions and associated effects among NASH patients with and without CV-metabolic related comorbidities - a European real-world study	Non‐alcoholic steatohepatitis		EASL, 2019
Impact of pain severity among patients with osteoarthritis on health care use in the United States	Osteoarthritis		APS, 2019
Differences between NASH patient characterisation and management approaches - a multi-national real-world study	Non‐alcoholic steatohepatitis		EASL, 2019
Cluster analysis of patients with SLE in the Adelphi Lupus Disease Specific Programme	Systemic lupus erythematosus		ICSLE, 2019
Assessing the differences between psoriasis patients who are aligned with their physician on their current disease severity versus patients who are misaligned	Psoriasis		SPIN, 2019
Alignment between physician-estimated vs objectively derived fibrosis scores in NASH - RWE suggests clinicians underestimate disease severity in secondary care	Non‐alcoholic steatohepatitis		EASL, 2019
Inhaled corticosteroid use by exacerbations and eosinophils - a real-world COPD population	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/31114183/	N/A
Real world impact of physician and patient discordance on HRQoL in US patients with acute myeloid leukemia	Acute myeloid leukemia	https://pubmed.ncbi.nlm.nih.gov/32700197/	N/A
Use of an Adelphi Disease Specific Programme to assess the impact of institute for clinical and economic review report publication on specialty category management by US insurers; a physician-based approach	Psoriasis		ISPOR US, 2019
Understanding the real-world clinical characteristics and treatment patterns of follicular lymphoma patients in EU5 markets	Follicular lymphoma		ISPOR US, 2019
The impact of anxiety and depression in type 1 diabetes mellitus (T1DM) patients who experience severe hypoglycemic episodes (hypos)	Diabetes		ISPOR US, 2019
The burden of osteoarthritis pain from the patient’s perspective in the United States	Osteoarthritis		OARSI, 2019
The burden of non-motor symptoms on healthcare resource utilisation among patients with Parkinson's disease: a neurologist/patient real-world assessment in the US	Parkinson’s disease		ISPOR US, 2019
Real-world productivity, healthcare resource utilization (HCRU) and quality of life (QOL) in patients receiving first-line treatment for advanced gastric cancer (GC) in Canada and Europe	Gastric cancer		ISPOR US, 2019
Real-world experience with dolutegravir-based two-drug regimens	HIV		ISPOR US, 2019
Real world treatment patterns for first line (1L) recurrent/metastatic (R/M) squamous cell carcinoma of the head and neck (SCCHN) patients	Squamous cell carcinoma of the head and neck		ISPOR US, 2019
Psychometric evaluation and score interpretation of the NCCN-FACT ovarian symptom index-18 in patients with advanced ovarian cancer: Real-world evidence	Ovarian cancer		ISPOR US, 2019
Opioid use, rebound headache, and resource utilization among migraine patients with insufficient response to triptans based on real-world data	Migraine		AAN, 2019
Impact of chronic hypoparathyroidism on HRQoL, symptoms, employment and relationships - findings from a 13-country patient survey	Hypoparathyroidism		ECE, 2019
Impact of BRCA1/2 mutations status on patient reported outcomes in HER2- advanced breast cancer: Results from a multi-country real-world study	Breast cancer		ESMO BC, 2019
Impact of BRCA1/2 mutation status on patient-reported general health status in HER2- advanced breast cancer: results from a US real-world study	Breast cancer		ISPOR US, 2019
Healthcare resource use and humanistic burden associated with attack frequency in episodic cluster headache	Cluster headache		AAN, 2019
Features of episodic cluster headache in the real world setting: clinical characteristics from a large, multi-national, cross-sectional survey	Cluster headache		AAN, 2019
Factors associated with and implications of meeting or not meeting HbA1c targets in type 2 diabetes mellitus	Diabetes		ISPOR US, 2019
Development of a conceptual framework qualitative RWD-based needs assessment of PROs in ulcerative colitis	Inflammatory Bowel Disease		ISPOR US, 2019
Comparative disease burden for non-radiographic axial spondyloarthritis and ankylosing spondylitis: results from a large multi-national real world database	Various		ISPOR US, 2019
BRCA status, treatment patterns and outcomes in HER2- advanced breast cancer (ABC): A multi-country real-world study	Breast cancer		ESMO BC, 2019
Assessment of outcomes in partially versus fully compliant schizophrenia patients	Schizophrenia		ISPOR US, 2019
Assessment of outcomes and symptom severity in schizophrenia patients according to physician perception of illness	Schizophrenia		ISPOR US, 2019
An Assessment of the humanistic impact of schizophrenia in relation to caregiver and productivity burden	Schizophrenia		ISPOR US, 2019
Acute and preventive treatment patterns in episodic cluster headache: findings from the United States, United Kingdom and Germany	Cluster headache		AAN, 2019
A real world assessment of outcomes in schizophrenia patients according to treatment response	Schizophrenia		ISPOR US, 2019
Physician perceptions about barriers to prompt diagnosis of mild cognitive impairment and Alzheimer's Disease	Alzheimer's disease	https://pubmed.ncbi.nlm.nih.gov/31263595/	N/A
The humanistic burden associated with caring for patients with advanced non-small cell lung cancer (NSCLC) in three European countries—a real-world survey of caregivers	Non-small cell lung cancer	https://pubmed.ncbi.nlm.nih.gov/30121787/	N/A
Treatment patterns in patients with acute myeloid leukemia in the United States: a cross-sectional, real-world survey	Acute myeloid leukemia	https://pubmed.ncbi.nlm.nih.gov/30712406/	N/A
A real-world cross-sectional community survey of symptoms and health-related quality of life of adults with acute myeloid leukemia	Acute myeloid leukemia	https://pubmed.ncbi.nlm.nih.gov/30912462/	N/A
Treatment approaches in myelofibrosis: a survey of haematologists in Australia	Myelofibrosis		ESH, 2019
The burden of osteoarthritis pain from the patient’s perspective in Europe	Osteoarthritis		EULAR, 2019
Relative impact of joint and skin symptoms on quality of life and work productivity in psoriatic arthritis (PsA) patients	Psoriatic arthritis		EULAR, 2019
Real world physician satisfaction with secukinumab in psoriatic arthritis and ankylosing spondylitis in Europe	Various		EULAR, 2019
Quantifying the relative importance of COPD symptoms to patients	Chronic obstructive pulmonary disease		HTAi, 2019
Physicians’ perceptions on causes of primary and secondary ITP and leading causes of misdiagnosis: results from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		EHA, 2019
Patient perceptions on splenectomy outcomes: results from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		EHA, 2019
Lack of consistent standard of care in systemic lupus erythematosus patients in real world	Systemic lupus erythematosus		EULAR, 2019
Impact of sickle cell disease from patients’ and physicians’ perspectives: results from the international sickle cell world assessment survey (SWAY)	Sickle cell disease		EHA, 2019
Impact of myeloproliferative neoplams (MPNs) and perceptions of treatment goals among physicians and patients in 6 countires - an expansion of the MPN Landmark Survey	Myeloproliferative neoplasms		EHA, 2019
Impact of hypoglycemic episodes (Hypos) on type 1 diabetes mellitus (T1DM)	Diabetes		ADA, 2019
Gender differences in disease status, quality of life and treatment patterns in axial spondyloarthritis patients: findings from a global survey	Axial spondyloarthritis		EULAR, 2019
Features of episodic cluster headache in the real world setting - clinical characteristics from a large, multi-national cross-sectional survey	Cluster headache		EAN, 2019
Enthesitis, dactylitis, and axial disease in psoriatic arthritis (PsA): impact on patient quality of life and work productivity	Psoriatic arthritis		EULAR, 2019
Disease course and treatment patterns in progressive supranuclear palsy	Progressive supranuclear palsy		IAPRD, 2019
Differences in perceptions on treatment approaches between physicians and ITP patients: Results from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		EHA, 2019
Differences in clinical characteristics, quality of life, disability, and work productivity in psoriatic arthritis patients by gender: findings from a cross-sectional survey in the US and Europe	Psoriatic arthritis		EULAR, 2019
Cluster profiling of patients in a real-world data set with systemic lupus erythematosus and their associated treatments	Systemic lupus erythematosus		EULAR, 2019
Assessing the prevalence and use of validated systemic lupus erythematosus disease activity metrics in real world practice	Systemic lupus erythematosus		EULAR, 2019
Acute and preventive treatment patterns in episodic cluster headache: findings from the United States, United Kingdom and Germany	Cluster headache		EAN, 2019
Acute and preventive treatment patterns among patients with migraine in Spain	Migraine		AES, 2019
Real-world treatment patterns and patient-reported outcomes in episodic and chronic migraine in Japan: analysis of data from the Adelphi migraine disease specific programme	Migraine	https://pubmed.ncbi.nlm.nih.gov/31174464/	N/A
Unmet needs in psoriatic arthritis patients receiving immunomodulatory therapy: results from a large multinational real-world study	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/30719594/	N/A
Awareness of and compliance with Domperidone revised labelling after a risk-minimization in Europe	Nausea	https://pubmed.ncbi.nlm.nih.gov/31325111/	N/A
Healthcare resource use and humanistic burden associated with attack frequency in episodic cluster headache	Cluster headache		AHS, 2019
Features of episodic cluster headache in the real world setting - clinical characteristics from a large, multi-national cross-sectional survey	Cluster headache		AHS, 2019
Behavioural symptoms and disturbances in dementa - a highly prevalent condition	Dementia		AAIC, 2019
Acute and preventive treatment patterns in episodic cluster headache - findings from the United States, United Kingdom and Germany	Cluster headache		AHS, 2019
A real-world assessment of the impact on the health-related quality of life and work productivity of triptan non-responders compared with responders: results from a global study	Migraine		AHS, 2019
Mapping the kidney disease QoL 36-item short form survey (KDQOL-36) to EQ5D-3L and EQ5D-5L in patients undergoing dialysis	Chronic kidney disease	https://pubmed.ncbi.nlm.nih.gov/31338698/	N/A
The humanistic burden of advanced non-small cell lung cancer (NSCLC) in Europe – a real-world survey linking patient clinical factors to patient and caregiver burden	Non-small cell lung cancer	https://pubmed.ncbi.nlm.nih.gov/30825160/	N/A
The prevalence and type of discordance between physician perception and objective data from standardized measure of rheumatoid arthritis disease activity in the US	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/31312786/	N/A
Exploring the real-world profile of refractory and non-refractory chronic idiopathic urticaria in the USA - clinical burden and healthcare resource Use	Chronic idiopathic urticaria	https://pubmed.ncbi.nlm.nih.gov/30793986/	N/A
UK results from the myeloproliferative neoplasms (MPN) landmark survey on the symptom, emotional and economic burden of MPN	Myeloproliferative neoplasms	https://pubmed.ncbi.nlm.nih.gov/30854625/	N/A
What matters most in diagnosis and monitoring of osteoarthritis by physician specialty	Osteoarthritis		Pain Week, 2019
Triptan use and associated patient reported outcomes in migraine patients	Migraine		IHC, 2019
The impact of progressive supranuclear palsy disease severity on HCRU	Progressive supranuclear palsy		ICPDMD (MDS), 2019
The impact of progressive supranuclear palsy disease severity on caregivers	Progressive supranuclear palsy		ICPDMD (MDS), 2019
The impact of osteoarthritis disease severity on current healthcare resource utilisation in the EU - Results from a real-world study	Osteoarthritis		EFIC, 2019
The impact of osteoarthritis disease severity on current healthcare resource utilisation in Japan - Results from a real world study	Osteoarthritis		EFIC, 2019
Relationship between progressive supranuclear palsy and caregiver burden	Progressive supranuclear palsy		ICPDMD (MDS), 2019
Physician and patient reporting of depression and anxiety in a US pulmonary arterial hypertension population	Pulmonary arterial hypertension		ERS, 2019
Physician and patient concordance of perceived asthma control - a US real world study	Asthma		ERS, 2019
Patient and physician perspectives on the care and assistance needs in Huntingdon's disease	Progressive supranuclear palsy		ICPDMD (MDS), 2019
Opiod use for the treatment of osteoarthritis among PCPs, rheumatologists and orthopedic surgeons	Osteoarthritis		Pain Week, 2019
Medication use and reasons for switching biologic therapy in patients with non-radiographic axial spondyloarthritis: findings from a global survey	Axial spondyloarthritis		ISPOR LA, 2019
Measuring the severity of osteoarthritis - do patients and physicians agree	Osteoarthritis		Pain Week, 2019
Impact of caring for patients with Huntington's disease on work status	Progressive supranuclear palsy		ICPDMD (MDS), 2019
Current treatment patterns among patients with osteoarthritis in Japan: analysis of a real-world dataset	Osteoarthritis		EFIC, 2019
Current treatment patterns among patients in Japan with chronic low back pain: analysis of real-world data	Chronic lower back pain		EFIC, 2019
Current treatment patterns among patients in Europe with chronic low back pain: analysis of real world data	Chronic lower back pain		EFIC, 2019
Current treatment patterns among European patients with osteoarthritis: analysis of a real-world dataset	Osteoarthritis		EFIC, 2019
Comparing quality of life, symptoms, and treatment patterns of non-radiographic axial spondyloarthritis and ankylosing spondylitis patients: findings from a global survey	Various		ISPOR LA, 2019
Comorbidities, hypersensitivity and biomarkers in a real-world US nasal polyps population	Nasal polyps		ERS, 2019
Clinical characteristics and PROs among chronic rhinosinusitis with nasal polyps patients with a history of sinus surgery	Nasal polyps		ARS, 2019
Burden of comorbid depression and anxiety on HRQOL in adult migraine patients in the US	Migraine		IHC, 2019
BRCA 1/2 testing in HER2 advanced breast cancer - results from the European component of a multi-country real world study	Breast cancer		ESMO, 2019
Adherence to ESMO 2014 guidelines on bone-targeting agent initiation for breast and prostate cancer patients - real world insights from practising European physicians	Breast cancer		ESMO, 2019
Acute and preventive treatment patterns in episodic cluster headache - findings from the United States, United Kingdom and Germany	Cluster headache		IHC, 2019
A real-world study of the patient experience of osteoporosis following treatment with abaloparatide	Osteoporosis		ASBMR, 2019
A real-world study of the patient experience of osteoporosis following treatment with abaloparatide	Osteoporosis		ASBMR, 2019
Remote monitoring of patient-reported outcomes in ulcerative colitis - a prospective real world study	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/30900117/	N/A
Characteristics of patients with dyslipidemia treated in routine care setting in China	Dyslipidemia	https://pubmed.ncbi.nlm.nih.gov/31723453/	N/A
Impact of fractures on quality of life in patients with osteoporosis: a US cross-sectional survey	Osteoporosis	https://pubmed.ncbi.nlm.nih.gov/31692954/	N/A
Work productivity loss and associated indirect costs for patients with ulcerative colitis in the US	Inflammatory Bowel Disease		AMCP, 2019
Work productivity loss and associated indirect costs for patients with Crohn's Disease in the US	Inflammatory Bowel Disease		AMCP, 2019
To assess the level of unmet need within ulcerative colitis (UC) patients currently prescribed biologic treatment and patients prescribed conventional treatments in Europe and the USA	Inflammatory Bowel Disease		ACG, 2019
Relationship between progressive supranuclear palsy and caregiver burden and quality of life	Progressive supranuclear palsy		NORD, 2019
Relationship between partial Mayo Score and patient-reported outcomes for UC patients in the US using the Adelphi Real-World Disease Specific Programme	Inflammatory Bowel Disease		ACG, 2019
Relationship between Crohn’s Disease Activity Index and patient-reported outcomes for CD patients in the US using the Adelphi Real-World Disease Specific Programme	Inflammatory Bowel Disease		ACG, 2019
Real world experience with dolutegravir plus rilpivirine two-drug regimen	HIV		IDWeek, 2019
Living with ulcerative colitis in Germany - exploring concomitant steroid and immunosuppressant use among patients with moderate to severe ulcerative colitis’	Inflammatory Bowel Disease		UEGW, 2019
Living with ulcerative colitis in Germany - estimating the frequency and extent of dose escalations among patients with moderate to severe ulcerative colitis	Inflammatory Bowel Disease		UEGW, 2019
Impact of myeloproliferative neoplasms (MPNs) and perceptions of treatment goals among physicians and patients in 6 countries: an expansion of the MPN Landmark Survey	Myeloproliferative neoplasms		EHOC, 2019
Impact of atopic dermatitis lesion location on quality of life in adult patients - results from a real-world study	Atopic dermatitis		EADV, 2019
Health-related quality of life based on response to triptans in people with migraine	Migraine		AMCP, 2019
Assessing the level of unmet need amongst ulcerative colitis patients in the US and EU	Inflammatory Bowel Disease		ACG, 2019
Adult patients with mild or moderate atopic dermatitis are significantly impacted by their condition: results from a real-world study in the United States	Atopic dermatitis		AMCP, 2019
The diagnostic pathway from cognitive impairment to dementia in Japan: quantification using real-world data	Dementia	https://pubmed.ncbi.nlm.nih.gov/31135457/	N/A
The multifaceted impact of anxiety and depression on patients with rheumatoid arthritis arthritis	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/31673680/	N/A
Exacerbation frequency and eosinophil counts among patients with COPD currently prescribed triple therapycurrently prescribed multiple inhaler triple therapy (MITT)	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/31819403/	N/A
What are the prescribing trends and satisfaction levels with analgesics for osteoarthritis as reported by US rheumatologists, orthopedic surgeons, and primary care physicians?	Osteoarthritis		ACR, 2019
Variations in BRCA screening and treatment patterns among ovarian cancer patients in Europe and the United States	Ovarian cancer		ESGO, 2019
Treatment patterns and clinical characteristics of COPD patients in South Korea An analysis of the Korea COPD Subgroup Study (KOCOSS) Cohort	Chronic obstructive pulmonary disease		APSR, 2019
The relationship between pruritus, sleep disruption and quality of life among patients with moderate-to-severe atopic dermatitis	Atopic dermatitis		WCI, 2019
Real world multi-country retrospective study of treatment travel time and work productivity and activity impairment among HER2 negative advanced breast cancer patients and BRCA1/2 mutation(s)	Breast cancer		ISPOR EU, 2019
Real world health related quality of life for first line recurrent/metastases squamous cell carcinoma of the head and neck patients	Head and neck cancer		ISPOR EU, 2019
Real world effectiveness of secukinumab in patients with ankylosing spondylitis: findings from a recent cross-sectional survey of rheumatologists and patients in Europe	Ankylosing spondylitis		ACR, 2019
Physician rationale for prescribing tyrosine kinase inhibitors and immuno-oncology treatments in the first-line treatment of advanced renal cell carcinoma in the United States: results from a cross-sectional real-world survey	Renal cell carcinoma		IKCS, 2019
Patient-reported quality of life in dialysis compared with non-dialysis CKD patients with hyperkalemia in the USA and EU5: results from the KDQOL	Chronic kidney disease		ASN, 2019
Medication use and reasons for switching biologic therapy in patients with non-radiographic axial spondyloarthritis: findings from a US survey	Axial spondyloarthritis		ACR, 2019
Living with ulcerative colitis in Japan - biologic persistence and healthcare resource utilization	Inflammatory Bowel Disease		JDDW, 2019
Inter-regional inequality in Italian healthcare delivery affects choice of selective estrogen receptor modulators (SERMS) for the treatment of hormone-receptor-positive breast cancer	Breast cancer		ISPOR EU, 2019
Impact of the follicular lymphoma (FL) treatment continuum on patient quality of life (QoL) in Europe (EU5)	Follicular lymphoma		ISPOR EU, 2019
Impact of enthesitis on patient reported outcomes and physician satisfaction with treatment: data from a multinational patient and physician survey	Psoriatic arthritis		ACR, 2019
Healthcare resource utilisation (HCRU) associated with transcatheter arterial chemoembolisation (TACE) treatment in intermediate stage hepatocellular carcinoma (HCC) patients in Europe	Hepatocellular carcinoma		ISPOR EU, 2019
Exploring pre and post agenzia italiana del farmaco (AIFA) reimbursed access to immunotherapy for the treatment of squamous cell carcinoma of the head and neck (SCCHN)	Squamous cell carcinoma of the head and neck		ISPOR EU, 2019
European real-world treatment patterns of systemic therapies for second line (2L) hepatocellular carcinoma (HCC) patients who previously received sorafenib	Hepatocellular carcinoma		ISPOR EU, 2019
Enthesitis, dactylitis, and axial disease in psoriatic arthritis (PsA): impact on patient quality of life and work productivity	Psoriatic arthritis		ACR, 2019
Enthesitis frequency and treatment patterns in patients with psoriatic arthritis in Europe and Japan	Psoriatic arthritis		ACR, 2019
Differences in clinical characteristics, quality of life, disability, and work productivity in psoriatic arthritis patients by gender: findings from a cross-sectional survey in the US and Europe	Psoriatic arthritis		ACR, 2019
Differences across heart failure patients' characteristics, disease experience and quality of life in Shanghai compared with the rest of China	Chronic heart failure		ISPOR EU, 2019
Data availability and quality in Asia Pacific: assessment and implications for horizon scanning	Various		HTAi, 2019
Comparing symptoms, treatment patterns, and quality of life of non-radiographic axial spondyloarthritis and ankylosing spondylitis patients: findings from a US survey	Axial spondyloarthritis		ACR, 2019
Cluster profiling of patients in a real-world data set with systemic lupus erythematosus and their associated treatments	Systemic lupus erythematosus		ACR, 2019
Characteristics and treatment patterns of a real-world lupus nephritis cohort based on primary physician specialty	Lupus nephritis		ASN, 2019
Burden of comorbid depression and anxiety on work productivity in adult migraine patients in the US	Migraine		ISPOR EU, 2019
Burden of comorbid depression and anxiety on HRQOL in adult migraine patients in the US	Migraine		ISPOR EU, 2019
BRCA screening and burden of treatment in patients receiving active therapy for ovarian cancer	Ovarian cancer		ESGO, 2019
Association between patients’ perception of their asthma control and the symptomatic burden of asthma	Asthma		ACAAI, 2019
Assessing the impact of hyperkalemia on the quality of life of dialysis patients compared with non-dialysis patients: results from a real world study in the US and EU5	Chronic kidney disease		ASN, 2019
Assessing the humanistic and economic burden of enthesitis among patients with peripheral and axial spondyloarthritis: results from a multi-national real world survey database	Axial spondyloarthritis		ACR, 2019
A retrospective chart review study to quantify the monthly medical resource use and costs of treating patients with treatment resistant depression in the United Kingdom	Depression		ISPOR EU, 2019
Improving access to antiretrovirals in China - economic analyses of dolutegravir in HIV-1 patients	HIV	https://pubmed.ncbi.nlm.nih.gov/31827410/	N/A
Treatment patterns of patients with advanced renal cell carcinoma receiving first-line treatment: results from a cross-sectional real-world study	Renal cell carcinoma		ESMO, 2019
Physicians’ and patients’ perspectives on treatments in ITP – A multi-country perspective: results from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		ASH, 2019
Patient characteristics, treatment outcomes and healthcare resource utilization across Europe in multiple myeloma patients ineligible for stem cell transplantation who received lenalidomide or bortezomib-base regimens	Multiple myeloma		ASH, 2019
Management strategies and satisfaction levels in patients with sickle cell disease: final results from the International Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		ASH, 2019
Impact of sickle cell disease symptoms on patients’ daily lives: final results from the International Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		ASH, 2019
Real-world bevacizumab utilization and outcomes in first line ovarian cancer	Ovarian cancer		ASCO, 2019
Patterns of genetic testing in Huntington's disease	Huntington disease		HSG, 2019
Patient and physician perspectives on the care and assistance needs in Huntingdon's disease	Huntington disease		HSG, 2019
Impact on work status of people caring for someone with Huntington's disease	Huntington disease		HSG, 2019
Impact of atopic dermatitis lesion location on quality of life in adult patients - results from a real-world study	Atopic dermatitis		WCD, 2020
The association between disease activity and patient-reported outcomes in patients with moderate-to-severe ulcerative colitis in the United States and Europe	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/31964359/	N/A
Treatment patterns among patients with moderate-to-severe ulcerative colitis in the United States and Europe	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/31945774/	N/A
A mixed methods approach towards understanding key disease characteristics with the progression of RRMS to SPMS - physicians and patients views	Multiple sclerosis	https://pubmed.ncbi.nlm.nih.gov/31865132/	N/A
Burden of illness in not adequately controlled chronic hypoparathyroidism - findings from a 13 country patient and caregiver survey	Hypoparathyroidism	https://pubmed.ncbi.nlm.nih.gov/31721256/	N/A
Triptan use and associated patient-reported outcomes in patients with migraine	Migraine		PPADHP, 2020
Treatment duration and response in patients with advanced renal cell carcinoma who have completed first-line treatment: results from a cross-sectional real-world study	Renal cell carcinoma		ASCO GU, 2020
Impact of sickle cell disease (SCD) symptoms on patients’ daily lives and management strategies in the Middle East: results from the International Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		SSH/PAHA, 2020
Impact of increasing disease symptom concordance between patients with inflammatory bowel disease and their physicians: insights from US, France, Germany, Italy, Spain, and UK (5EU)	Inflammatory Bowel Disease		ECCO, 2020
Real-world treatment persistence of non-tumor necrosis factor inhibitors versus tumor necrosis factor inhibitors among patients with rheumatoid arthritis in South Korea	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/31670976/	N/A
Impact of chronic kidney disease and anemia on health-related quality of life and work productivity: analysis of multinational real-world data	Chronic kidney disease	https://pubmed.ncbi.nlm.nih.gov/32143582/	N/A
Treatment patterns and clinical outcomes in patients receiving palbociclib combinations as first line treatment for aBC/mBC in real-world settings in Latin America	Breast cancer		MBCC, 2020
Real-world study of patient demographics, clinical characteristics, and BRCA1/2 testing in HER2-negative (HER2–) advanced breast cancer (ABC) in the US and Europe	Breast cancer		MBCC, 2020
Real-world clinical outcomes associated with palbociclib combination therapy in Canada: results from the IRIS study	Breast cancer		MBCC, 2020
Nasal polyp symptoms: how well do physicians know their patients?	Nasal polyps		AAAAI, 2020
Heart failure hospitalizations and urgent heart failure visits for patients with heart failure in a real world population in the US	Chronic heart failure		ACC, 2020
Availability of fractional exhaled nitric oxide (FeNO) and eosinophil (EOS) count data among patients with severe asthma in five European countries	Asthma		AAAAI, 2020
Unmet needs in ankylosing spondylitis patients receiving tumour necrosis factor inhibitor therapy; results from a large multinational real-world study	Ankylosing spondylitis	https://pubmed.ncbi.nlm.nih.gov/32159075/	N/A
A global real-world assessment of the impact on health-related quality of life and work productivity of migraine in patients with insufficient versus good response to triptan medication	Migraine	https://pubmed.ncbi.nlm.nih.gov/32349662/	N/A
A novel, integrative approach for evaluating progression in multiple sclerosis: development of a scoring algorithm	Multiple sclerosis	https://pubmed.ncbi.nlm.nih.gov/32286236/	N/A
UK results from the International Sickle Cell World Assessment Survey (SWAY): patients with sickle cell disease (SCD) experience work impairment and decreased productivity	Sickle cell disease		BSH, 2020
UK patient perceptions on the symptomatic and emotional burden of vaso-occlusive crises resulting from sickle cell disease	Sickle cell disease		BSH, 2020
The impact of immune thrombocytopenia (ITP) on activities of daily living: findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		BSH, 2020
Symptom burden in immune thrombocytopenia (ITP): findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		BSH, 2020
Real-world experience with an IL-17a blocker in biologic-naïve and biologic-experienced radiographic and non-radiographic axial spondyloarthritis patients	Axial spondyloarthritis		BSR, 2020
Patterns of genetic testing in Huntington’s disease	Huntington disease		AMCP, 2020
Patients’ and physicians’ perceptions of treatments and goal setting in immune thrombocytopenia (ITP): findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		BSH, 2020
Patients’ and health care professionals’ perspectives on treatment goals in sickle cell disease – a UK perspective: results from the international sickle cell world assessment survey (SWAY)	Sickle cell disease		BSH, 2020
Patient and physician perspectives on the care and assistance needs in Huntington’s disease	Huntington disease		AMCP, 2020
Health-related quality of life based on response to triptans in people with migraine - analysis of real-world data	Migraine		AAN, 2020
Effect of genotype on the impact of sickle cell disease and burden of vaso-occlusive crises: results from the International Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		GCSCD, 2020
Direct healthcare costs among heart failure patients with reduced and preserved ejection fraction in the US	Chronic heart failure		AMCP, 2020
Burden of comorbid depression and anxiety on work productivity in adult migraine patients in the United States	Migraine		AMCP, 2020
Burden of comorbid depression and anxiety on HRQOL in adult migraine patients in the US	Migraine		AMCP, 2020
Assessing the relationship between patient-reported psoriasis treatment satisfaction and work productivity	Psoriasis		AMCP, 2020
Living with ulcerative colitis in Germany: a retrospective analysis of dose escalation, concomitant treatment use and healthcare costs	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/31858853/	N/A
Real-world outcomes associated with standard half-life and extended half-life factor replacement products for treatment of haemophilia A and B	Hemophilia	https://pubmed.ncbi.nlm.nih.gov/32271314/	N/A
Work productivity impact across four types of cancer: real-world evidence	Various		ISPOR US, 2020
Treatment outcomes in locally advanced squamous cell carcinoma of head and neck patients who subsequently progressed: real-world evidence from Europe and the US	Head and neck cancer		ISPOR US, 2020
The impact of severe vasomotor symptoms on work productivity and activity impairment: findings from a US real world study	Menopause		ISPOR US, 2020
The burden of incremental “off” hours on caregivers of patients with Parkinson’s disease: a neurologist⁄patient⁄caregiver real-world assessment in the US	Parkinson’s disease		ISPOR US, 2020
Relationship between progressive supranuclear palsy and healthcare resource utilization	Progressive supranuclear palsy		ISPOR US, 2020
Real-world treatment patterns and outcomes in US patients newly diagnosed with glioblastoma multiforme (GBM) by O6-methylguanine DNA methyltransferase promotor (MGMT) status	Glioblastoma multiforme		ISPOR US, 2020
Real-world experience of subcutaneous belimumab treatment for systemic lupus erythematosus - a cross-sectional survey of rheumatologists and their patients	Systemic lupus erythematosus		ICA, 2020
Real world evidence on patient characteristics and frontline treatment patterns in locally advanced squamous cell carcinoma of the head and neck from Europe and US	Head and neck cancer		ISPOR US, 2020
Poor prognostic factors and their impact on treatment patterns and outcomes for women with hormone receptor-positive, human epidermal growth factor receptor-negative (HR+/HER2-) advanced breast cancer (aBC) in Canada	Breast cancer		ISPOR US, 2020
Physician assessment of alopecia areata disease severity: results from a real-world study	Alopecia areata		SID, 2020
Patient-reported concern, understanding and lifestyle management of non alcoholic steatohepatatis patients: a 12-country real world study	Non‐alcoholic steatohepatitis		ISPOR US, 2020
Patient-reported and cancer-specific health-related quality of life among patients with early stage HR+/HER2- breast cancer (BC)	Breast cancer		ESMO BC, 2020
Patient (pt) demographics, treatment patterns (tx) and hematologic (heme) toxicities among pts with HER2− advanced breast cancer (ABC) and BRCA1/2 mutation(s) (BRCA1/2mut): A multi-country real-world (RW) study	Breast cancer		ESMO BC, 2020
Latent class analysis (LCA) to identify and describe clinically relevant subgroups in a multinational study of patients with HR+/HER2- early breast cancer (eBC)	Breast cancer		ESMO BC, 2020
Impact of sickle cell disease symptoms on patients' daily lives in the US - patients from the sickle cell world assessment survey (SWAY)	Sickle cell disease		ISPOR US, 2020
Healthcare resource utilisation and health outcomes among young patients with heart failure: a contemporary real-world US study	Chronic heart failure		ESC-HF, 2020
Health related quality of life among patients with early breast cancer: a multinational study	Breast cancer		ISPOR US, 2020
Germline BRCA1/2 (gBRCA1/2) testing patterns among oncologists (ONC) treating HER2- advanced breast cancer (ABC): results from a multi-country real-world study	Breast cancer		ESMO BC, 2020
First line treatment with natalizumab reduces healthcare resource use and impairment of work productivity and activity impairment in relapsing-remitting Multiple Sclerosis (RRMS) patients compared to natalizumab delayed use	Multiple sclerosis		ISPOR US, 2020
Discordance between psychiatrists and their patients on disease severity and treatment outcomes in schizophrenia	Schizophrenia		ACCP, 2020
Discordance between psychiatrists and their patients on disease severity and treatment outcomes in schizophrenia	Schizophrenia		ISPOR US, 2020
Development of a cross-walk of the Assessment of Spondyloarthritis International Society Health Index (ASAS HI) and Ankylosing Spondylitis Quality of Life (ASQoL) scores using data from patients with ankylosing spondylitis and non-radiographic axial spondyloarthritis	Ankylosing spondylitis		ISPOR US, 2020
Describing patients with primary sjogren's syndrome - analysis of real-world data from the Adelphi Disease Specific Programme	Sjogren's syndrome		ICA, 2020
Deleterious impact of advanced nonalcoholic steatohepatitis on multiple patient-relevant outcomes: an international, cross-sectional, real-world study	Non‐alcoholic steatohepatitis		DDW, 2020
Comparing work productivity and activity impairment outcomes among patients with Multiple Sclerosis treated with ocrelizumab vs other disease-modifying therapies	Multiple sclerosis		ISPOR US, 2020
Burden of illness in patients with chronic hypoparathyroidism not adequately controlled with conventional therapy: european subanalysis of a global patient survey	Hypoparathyroidism		ECE, 2020
Alignment of IBD symptoms reported by patients and their treating physicians in the US	Inflammatory Bowel Disease		DDW, 2020
A real-world study of the patient experience with abaloparatide	Osteoporosis		ISPOR US, 2020
A multinational study of real-world treatment patterns among patients with early stage HR+/HER2- breast cancer (BC)	Breast cancer		ESMO BC, 2020
Multinational, cross-sectional survey of healthcare resource utilisation in patients with all stages of cognitive impairment, analysed by disease severity, country and geographical region	Dementia	https://pubmed.ncbi.nlm.nih.gov/32390613/	N/A
Quantifying the diagnostic pathway for patients with cognitive impairment: real-world data from Australia	Dementia	https://pubmed.ncbi.nlm.nih.gov/31762429/	N/A
Real-world treatment patterns in patients with advanced (stage III IV) ovarian cancer in the United States and Europe	Ovarian cancer	https://pubmed.ncbi.nlm.nih.gov/32326746/	N/A
Assessment of the benefits of achieving complete versus almost complete skin clearance in psoriasis: a patient’s perspective	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/32432957/	N/A
Levels of satisfaction with rheumatoid arthritis treatment and associated alignment between physicians and patients across Latin America	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/32030635/	N/A
Utilization of low vs high dose of newer antihyperglycemic agents	Diabetes		ADA, 2020
Use of opioids in patients with sickle cell disease (SCD): a country and age analysis of the International Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		EHA, 2020
Usage of C-reactive protein testing in the diagnosis and monitoring of psoriatic arthritis (PsA): results from a real-world survey in the US and Europe	Psoriatic arthritis		EULAR, 2020
Understanding current prescription drug treatment paradigms for patients with osteoarthritis in Europe	Osteoarthritis		EULAR, 2020
Treatment and disease management practices in patients with MPNs in 6 countries: an expansion of the MPN Landmark Survey	Myeloproliferative neoplasms		EHA, 2020
The impact of osteoarthritis disease severity on healthcare resource use: analysis of real-world European data	Osteoarthritis		EULAR, 2020
The impact of high disease activity as measured by SLEDAI and drug burden-on healthcare utilization, quality of life and work productivity in systemic lupus erythematosus patients	Systemic lupus erythematosus		EULAR, 2020
Skin involvement in psoriatic arthritis (PsA) - the incremental impact of psoriasis on quality of life, disability and work productivity: real-world survey in US and Europe	Psoriatic arthritis		EULAR, 2020
Physician attitudes towards diagnosing anaemia, treatment initiation and the current unmet need in the management and treatment of anaemia: interim results from a cross-sectional real-world survey in Germany, Italy and the UK	Chronic kidney disease		ERA-EDTA, 2020
Patients’ reported perceptions on satisfaction with immune thrombocytopenia treatments: results from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		EHA, 2020
Patient-reported physical, emotional and economic impact of myeloproliferative neoplasms in an expansion of the MPN Landmark Survey	Myeloproliferative neoplasms		EHA, 2020
Patient journey to diagnosis of Ankylosing Spondylitis (AS) and its treatment patterns across Central Eastern Europe and the United States	Ankylosing spondylitis		EULAR, 2020
Patient and healthcare professional perceptions of the impact of sickle cell disease on daily life, symptom burden and treatment: results from the International Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		EHA, 2020
Incidence and management of vaso-occlusive crises in patients with sickle cell disease: a country and age analysis of the International Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		EHA, 2020
Impact of immune thrombocytopenia on emotional wellbeing: a patient’s perspective from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		EHA, 2020
Impact of flares on healthcare resource usage and PROs in systemic lupus erytematosus patients	Systemic lupus erythematosus		EULAR, 2020
How does osteoarthritis pain impact function, mobility and requirement for help in daily activities in European patients?	Osteoarthritis		EULAR, 2020
Higher symptom burden in patients with immune thrombocytopenia experiencing fatigue: results from the ITP World Impact Survey (I-WISh)	Immune thrombocytopenia		EHA, 2020
Flares among patients with psoriatic arthritis (PsA) - Frequency and impact on patient outcomes: real-world survey in the US and Europe	Psoriatic arthritis		EULAR, 2020
Diagnostic cluster profiling of patients in a real-world data set with systemic lupus erythematosus	Systemic lupus erythematosus		EULAR, 2020
Content validity of MANAGE-PD tool: real-world evidence from PD patients in G7 countries	Parkinson’s disease		IAPRD, 2020
Comparing symptoms, treatment patterns, and quality of life of ankylosing spondylitis patients and non-radiographic axial spondyloarthritis in Japan	Various		EULAR, 2020
Burden of joint-related complications in moderate to severe hemophilia A and B without inhibitors	Hemophilia		WFH, 2020
Anxiety and depression in psoriatic arthritis (PsA) - Prevalence and impact on patient reported outcomes: real-world survey in the US and Europe	Psoriatic arthritis		EULAR, 2020
Physician-patient alignment in satisfaction with psoriatic arthritis treatment in Latin America	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/31993888/	N/A
Use and switching of biologic therapy in patients with non-radiographic axial spondyloarthritis: a patient and provider survey in the United States	Axial spondyloarthritis	https://pubmed.ncbi.nlm.nih.gov/32328928/	N/A
A Real-world analysis of patient characteristics, treatment patterns and level of impairment in patients with migraine who are insufficient responders versus responders to acute treatment	Migraine	https://pubmed.ncbi.nlm.nih.gov/32510611/	N/A
Factors associated with insufficient response to acute treatment of migraine in Japan: analysis of real-world data from the Adelphi Migraine Disease Specific Programme	Migraine	https://pubmed.ncbi.nlm.nih.gov/32641075/	N/A
Opioid use, rebound headache, and resource utilization among migraine patients with insufficient response to triptans based on real-world data	Migraine		AHS, 2020
Health-related quality of life based on response to triptans in people with migraine: analysis of real-world data	Migraine		AHS, 2020
A real-world observational study to describe NHS resource use for the management of moderate-to-severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17	Atopic dermatitis		BAD, 2020
Real-world experience with dolutegravir-based two-drug regimens	HIV	https://pubmed.ncbi.nlm.nih.gov/32724674/	N/A
The burden of pain associated with osteoarthritis in the hip or knee from the patient’s perspective: a multinational cross-sectional study	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/32729010/	N/A
The relationship of pain and fatigue with health-related quality of life and work in patients with psoriatic arthritis on TNFi: results of a multi-national real-world study	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/32611650/	N/A
Assessment of real-life outcomes in schizophrenia patients according to compliance	Schizophrenia	https://pubmed.ncbi.nlm.nih.gov/32934955/	N/A
Patients with heart failure and a LVEF less than 40% present an overall lower health related quality of life than those with LVEF between 40% and 60%: a multinational real-world survey in EU	Chronic heart failure		ESC, 2020
Patient-reported benefits for future non-alcoholic steatohepatitis therapy; a global real-world study among 1,035 patients across 12 countries	Non‐alcoholic steatohepatitis		EASL, 2020
Female patients with heart failure and a LVEF less than or equal to 60% present an overall lower health related quality of life than males: a multinational real-world survey in EU	Chronic heart failure		ESC, 2020
Deleterious impact of advanced non-alcoholic steatohepatitis on multiple patient-relevant outcomes: an international, cross-sectional, real-world study	Non‐alcoholic steatohepatitis		EASL, 2020
Concordance between patient and physician reported symptoms in patients with heart failure and a LVEF equal to or less than 60%: a multinational real-world survey in EU	Chronic heart failure		ESC, 2020
Caregiver burden of patients with heart failure with a left ventricular ejection fraction (LVEF) less than or equal to 60%: a multinational real-world survey in EU	Chronic heart failure		ESC, 2020
A multinational assessment of work-related productivity loss and indirect costs from a survey of patients with psoriasis	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/31840228/	N/A
Biologic disease-modifying antirheumatic drug prescription patterns among rheumatologists in Europe and Japan	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/32440826/	N/A
Disease characteristics and the burden of joint and skin involvement amongst people with psoriatic arthritis: a population survey	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/32700230/	N/A
Drug treatment patterns and work productivity in chronic kidney disease patients with anemia in China: cross sectional analysis of real-world data	Chronic kidney disease	https://pubmed.ncbi.nlm.nih.gov/32958723/	N/A
Living with Ulcerative Colitis Study (LUCY) in England: A retrospective study evaluating healthcare resource utilisation and direct healthcare costs of postoperative care in ulcerative colitis	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/32938582/	N/A
Type 2 inflammation-related comorbidities among patients with asthma, chronic rhinosinusitis with nasal polyps and atopic dermatitis	Various		ERS, 2020
Treatment sequencing In HR+/HER2- locally advanced or metastatic breast cancer: a real-world retrospective study In France, Germany, Italy, And Spain	Breast cancer		ESMO, 2020
The humanistic burden reported by patients with unresectable locally advanced or metastatic (adv/met) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC): an international real-world survey	Gastric cancer		ESMO, 2020
Real-world multi-country study of treatment trends among patients (pts) with HER2− BRCA1/2 mutated (BRCA1/2mut) advanced breast cancer (ABC)	Breast cancer		ESMO, 2020
Real-world (RW) multi-country study of BRCA1/2 testing in adult patients (pts) with HER2−advanced breast cancer (ABC)	Breast cancer		ESMO, 2020
Real-world (RW) multi-country study of BRCA1/2 mutation (BRCA1/2mut) testing trends among adult patients (pts) with HER2− advanced breast cancer (ABC)	Breast cancer		ESMO, 2020
Real world data availability and quality in Asia Pacific. Assessment and implications for research and healthcare decision-making	Various		ISPOR APAC, 2020
Quantifying the incremental burden of advancing Parkinson's Disease in patients meeting the “5-2-1” Criteria: Results from an international dataset from G7 Countries	Parkinson’s disease		ICPDMD (MDS), 2020
Psychometric properties of clinical indicators of device-aided therapy eligibility among Parkinson’s Disease patients: real-world data from 6 countries	Parkinson’s disease		ICPDMD (MDS), 2020
Individualized glycemic control in type 2 diabetes in Europe and the United States	Diabetes		ICPE, 2020
Impact on work productivity in unresectable locally advanced or metastatic gastric cancer, gastroesophageal junction cancer and esophageal adenocarcinoma patients and their caregivers	Gastric cancer		ESMO, 2020
Impact of T2DM patients’ knowledge of their individualized HbA1c goal on glycemic control	Diabetes		EASD, 2020
Impact of clinical characteristics, patients' perception of treatment goals and endocrine therapy history on HRQOL in HR+, HER2- early stage breast cancer patients	Breast cancer		ESMO, 2020
Idiopathic pulmonary fibrosis (IPF): the patient journey	Idiopathic pulmonary fibrosis		ERS, 2020
Genomic/genetic testing (GT) patterns for patients with metastatic castrate-resistant prostate cancer (mCRPC): interim results from a real-world study in Europe (EU5)	Prostate cancer		ESMO, 2020
Genomic testing, biomarkers, and treatment patterns in early breast cancer	Breast cancer		ESMO, 2020
First-line treatment patterns in HR+/HER2- locally advanced or metastatic breast cancer in Europe	Breast cancer		ESMO, 2020
Economic impact of delayed multiple-inhailer triple therapy initiation in COPD patients	Chronic obstructive pulmonary disease		ERS, 2020
Drivers of prescribing long-acting injectable antipsychotics to patients with schizophrenia	Schizophrenia		Psych Congress , 2020
Does “5-2-1” identify patients with suspected advanced Parkinson’s disease? Evidence of clinical accuracy from G7 countries	Parkinson’s disease		ICPDMD (MDS), 2020
Demonstrating the clinical value of MANAGE-PD tool in assessing symptom control of Parkinson’s disease patients: evidence from G7 Countries	Parkinson’s disease		ICPDMD (MDS), 2020
Clinical burden of idiopathic pulmonary fibrosis (IPF): physician and patient perception	Idiopathic pulmonary fibrosis		ERS, 2020
Characterization and treatment goals of patients treated with long-acting injectable antipsychotics versus oral antipsychotics: results from a patient/caregiver/psychiatrist survey	Schizophrenia		ASCP, 2020
Burden of illness in patients With chronic hypoparathyroidism not adequately controlled with conventional therapy: european subanalysis of a global patient survey	Hypoparathyroidism		ECE, 2020
Burden of idiopathic pulmonary fibrosis (IPF) on quality of life (QoL), work productivity, and healthcare use	Idiopathic pulmonary fibrosis		ERS, 2020
A multinational real-world study on HR+, HER2- early stage breast cancer patients' disease awareness, satisfaction, and involvement in treatment decisions	Breast cancer		ESMO, 2020
Real-world patient-reported outcomes of women receiving initial endocrine-based therapy for HR+/HER2− advanced breast cancer in five European countries	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/32894087/	N/A
Immune thrombocytopenia (ITP) World Impact Survey (I-WISh): impact of ITP on health-related quality of life	Immune thrombocytopenia	https://pubmed.ncbi.nlm.nih.gov/33107998/	N/A
What can patient-reported treatment satisfaction and dissatisfaction tell us about unmet needs in psoriasis?	Psoriasis		EADV, 2020
Treatment patterns for moderate-to-severe atopic dermatitis among patients in Europe	Atopic dermatitis		EADV, 2020
The relationship between pruritus, sleep disruption, and quality of life (QoL) among patients with moderate-to-severe atopic dermatitis (AD) in Europe	Atopic dermatitis		EADV, 2020
Risk factors of satisfaction with treatment in Chinese rheumatoid arthritis patients and rheumatologists: findings from a cross-sectional survey	Rheumatoid arthritis		APLAR, 2020
Real world effectiveness of secukinumab in patients with ankylosing spondylitis: findings from a recent cross sectional survey of rheumatologists and patients in Europe	Ankylosing spondylitis		SCR, 2020
Physician attitudes towards diagnosis, treatment initiation, and unmet needs in the management of anemia due to CKD: results from a real world survey in Germany, Italy, and the United Kingdom	Chronic kidney disease		ASN, 2020
Management and unmet need amongst mild And moderate/ severe CD and UU patients: findings from a cross sectional study in the US and France, Germany, Italy, Spain, UK (EU5).	Inflammatory Bowel Disease		UEGW, 2020
Humanistic burden and impact of the disease In moderate to severe patients with Crohn’s Disease (CD) and Ulcerative Colitis (UC): findings from a cross sectional study in the US and France, Germany, Italy, Spain, UK (EU5)	Inflammatory Bowel Disease		UEGW, 2020
Health-related quality of life and its predictors in patients receiving first-line treatment for newly diagnosed glioblastoma multiforme in EU5: a real-world study	Glioblastoma multiforme		ASCO QCS, 2020
Cross-sectional survey to assess chronic obstructive pulmonary disease (COPD) medication use by United States (US) physicians	Chronic obstructive pulmonary disease		ACCP, 2020
Corticosteroid use and the associated impact on patients with Crohn’s Disease (CD) And Ulcerative Colitis (UC) in the US, France, Germany, Italy, Spain, and UK (EU5).	Inflammatory Bowel Disease		UEGW, 2020
Patient-physician alignment in satisfaction with psoriatic arthritis treatment: analysis from a cross-sectional survey in the United States and Europe	Psoriatic arthritis	https://journals.sagepub.com/doi/abs/10.1177/2475530320963196?journalCode=jpsa	N/A
A retrospective chart review study to quantify the monthly medical resource use and costs of treating patients with treatment resistant depression in the United Kingdom	Depression	https://pubmed.ncbi.nlm.nih.gov/33253055/	N/A
Burden of illness amongst subgroups of patients with primary Sjögren’s Syndrome and systemic involvement	Sjogren's syndrome	https://pubmed.ncbi.nlm.nih.gov/33147609/	N/A
Immune thrombocytopenia (ITP) World Impact Survey (I-WISh): patient and physician perceptions of diagnosis, signs and symptoms, and treatment	Immune thrombocytopenia	https://pubmed.ncbi.nlm.nih.gov/33170956/	N/A
Work productivity and activity impairment in HR+/HER2- early stage breast cancer	Breast cancer		ISPOR EU, 2020
Work productivity and activity impairment among patients with HR+/HER2- locally advanced or metastatic breast cancer in France, Germany, Israel, Italy, Spain, and the United States	Breast cancer		ISPOR EU, 2020
Treatment patterns and performance status in unresectable advanced or metastatic (ADV/MET) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC) patients receiving first line (1L) treatment	Gastric cancer		ISPOR EU, 2020
The impact of PsA disease control status on patient treatment satisfaction: real-world survey in US and Europe	Psoriatic arthritis		ACR, 2020
The impact of high disease activity as measured by SLEDAI and drug burden on healthcare utilization, quality of life and work productivity in systemic lupus erythematosus patients	Systemic lupus erythematosus		ACR, 2020
The burden of caring for patients with glioblastoma multiforme (GBM): a real-world study conducted in EU5 and USA	Glioblastoma multiforme		ISPOR EU, 2020
Skin involvement in psoriatic arthritis (PsA) - the incremental impact of psoriasis on quality of life, disability and work productivity: real-world survey in US and Europe	Psoriatic arthritis		ACR, 2020
Real-world multi-country study of germline BRCA1/2 mutation (Gbrca1/2mut) testing and genetic counseling (GC) among patients (Pts) with human epidermal growth factor receptor 2- negative (HER2-) advanced breast cancer (ABC)	Breast cancer		NSGC, 2020
Real world patient characteristics and outcomes of patients with familial hyperlipidemia	Familial hyperlypidemia		ISPOR EU, 2020
Real world burden and impact of brain metastases on quality of life and healthcare resource utilization among metastatic breast cancer patient	Breast cancer		ISPOR EU, 2020
Quantifying the real-world economic burden of major depressive disorder and treatment-resistant depression in England: national and regional estimates	Depression		ISPOR EU, 2020
Qualitative interviews to explore drivers and behaviours associated with medication non-adherence across a range of diseases, treatment modalities, and countries	Various		ISPOR EU, 2020
Osteoarthritis patient hopes and satisfaction with prescription NSAIDs and opioids	Osteoarthritis		ISPOR EU, 2020
Incremental quality of life burden of nonalcoholic steatohepatitis driven by fibrosis or type 2 diabetes status – or both?	Non‐alcoholic steatohepatitis		AASLD, 2020
Impact of flares on healthcare resource usage and PROs in systemic lupus erythematosus patients	Systemic lupus erythematosus		ACR, 2020
Impact of comorbidities on the quality of life in patients with haematological tumours across Europe and the US	Various		ISPOR EU, 2020
Healthcare resource use (HCRU) of non-muscle invasive bladder cancer (NMIBC) patients post Bacillus Calmette-Guérin (BCG)-unresponsive status in multiple countries	Bladder cancer		ISPOR EU, 2020
Health status/utilities in adult patients with germline BRCA1/2 mutated (gBRCA1/2mut) HER2- advanced breast cancer (ABC) treated with poly(ADP-ribose) polymerase inhibitors (PARPi) versus chemotherapy in a real world (RW) setting	Breast cancer		ISPOR EU, 2020
Flares among patients with psoriatic arthritis (PsA) - frequency and impact on patient outcomes: real-world survey in the US and Europe	Psoriatic arthritis		ACR, 2020
First line treatment with natalizumab reduces healthcare resource use and impairment of work productivity and activity impairment in relapsing-remitting multiple sclerosis (RRMS) patients compared to natalizumab delayed use	Multiple sclerosis		ISPOR EU, 2020
Fatigue in psoriatic arthritis (PsA): prevalence in patients from the US and Europe, and impact on quality of life and work productivity	Psoriatic arthritis		ACR, 2020
Direct and indirect costs associated with unresectable advanced or metastatic (ADV/MET) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC) for patients and their caregivers	Gastric cancer		ISPOR EU, 2020
Current practice and future thinking on the multidisciplinary management of osteoarthritis pain	Osteoarthritis		PCRMM, 2020
Characterization and treatment goals of patients on long-acting injectable antipsychotics vs oral antipsychotics: results from a patient/caregiver/psychiatrist survey	Schizophrenia		NEI MAX!, 2020
Burden of idiopathic pulmonary fibrosis (IPF) on quality of life (QoL), work productivity and healthcare use	Idiopathic pulmonary fibrosis		ISPOR EU, 2020
Association of atypical treatment switches with outcomes in patients with schizophrenia	Schizophrenia		ISPOR EU, 2020
Anxiety and depression in psoriatic Arthritis (PsA) - prevalence and impact on patient reported outcomes: real-world survey in the US and Europe	Psoriatic arthritis		ACR, 2020
Analysis of treatment goals for patients with schizophrenia: a US survey of psychiatrists, patients with schizophrenia and caregivers	Schizophrenia		NEI MAX!, 2020
A multinational assessment of direct and indirect costs from a survey of patients with idiopathic pulmonary fibrosis (IPF)	Idiopathic pulmonary fibrosis		ISPOR EU, 2020
A comparison of characteristics of patients with osteoarthritis of the hip or knee who are willing or not to undergo total joint replacement surgery	Osteoarthritis		ISPOR EU, 2020
Real-world effectiveness of belimumab in the treatment of systemic lupus erythematosus: pooled analysis of multi-country data from the OBSErve studies	Systemic lupus erythematosus	https://pubmed.ncbi.nlm.nih.gov/33206344/	N/A
Treatment persistence and colectomy-free outcomes in patients with ulcerative colitis receiving golimumab or adalimumab: a UK experience	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/33199269/	N/A
A real-world analysis of patient-reported outcomes in patients with migraine by preventive treatment eligibility status in the US and Europe	Migraine	https://pubmed.ncbi.nlm.nih.gov/32632891/	N/A
A real-world assessment of outcomes in schizophrenia patients according to treatment response	Schizophrenia	https://pubmed.ncbi.nlm.nih.gov/33369293/	N/A
Burden of heart failure on patient daily life and patient–physician discordance in disease management: results from a cross-sectional survey in Japan	Chronic heart failure	https://pubmed.ncbi.nlm.nih.gov/33693202/	N/A
Multimodal treatment patterns for osteoarthritis and their relationship to patient-reported pain severity: a cross-sectional survey in the United States	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/33380823/	N/A
The association between schizophrenia relapses and real-world psychosocial outcomes in patients with schizophrenia	Schizophrenia		ASHP, 2020
Reasons for non-surgical management of patients with Bacillus Calmette–Guérin (BCG)-unresponsive non-muscle invasive bladder cancer (NMIBC)	Bladder cancer		SUO, 2020
Real-world psychosocial outcomes and disease burden in patients with schizophrenia and their caregivers	Schizophrenia		ASHP, 2020
Presence of comorbidities and use of concomitant medications associated with QTc prolongation/torsades de pointes In patients with HR+/HER2- advanced breast cancer	Breast cancer		SABCS, 2020
Physician and patient satisfaction with poly(ADP-Ribose) polymerase inhibitors (PARPi) versus chemotherapy in adult patients with germline BRCA1/2 mutated (Gbrca1/2mut) HER2- advanced breast cancer (ABC): results from a multi-country real-world (RW) study	Breast cancer		SABCS, 2020
Patient reported outcomes (PROs) with Poly(ADP ribose) polymerase inhibitors (PARPi) versus chemotherapy (CTX) in patients (pts) with germline BRCA 1/2 mutated (gBRCA1/2 mut) HER2 advanced breast cancer (ABC): results from a multi country real world (RW) study	Breast cancer		SABCS, 2020
Multi-country study of the use of genomic assays in HR+, HER2- early breast cancer and characteristics of patients tested	Breast cancer		SABCS, 2020
Impact of sickle cell disease symptoms on patients daily lives - final results from SWAY	Sickle cell disease		ASH, 2020
Treatment patterns, outcomes and clinical characteristics in advanced renal cell carcinoma: a real-world US study	Renal cell carcinoma	https://pubmed.ncbi.nlm.nih.gov/32885666/	N/A
Unmet needs in Japanese patients who report insufficient efficacy with triptans for acute treament of migraine: retrospective analysis of real-world data	Migraine	https://pubmed.ncbi.nlm.nih.gov/33306190/	N/A
International perspectives on management of inflammatory bowel disease: opinion differences and similarities between patients and physicians from the IBD GAPPS survey	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/33512475/	N/A
Pain severity and healthcare resource utilization in patients with osteoarthritis in the United States	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/33131380/	N/A
Real-world assessment of the impact of “OFF” episodes on health-related quality of life among patients with Parkinson’s disease in the United States	Parkinson’s disease	https://pubmed.ncbi.nlm.nih.gov/33516182/	N/A
Abaloparatide real-world patient experience study	Osteoporosis	https://pubmed.ncbi.nlm.nih.gov/33778325/	N/A
Characterizing the role of, and physical and emotional burden on caregivers of patients with heart failure: results from a cross-sectional survey in Japan	Chronic heart failure	https://pubmed.ncbi.nlm.nih.gov/33621781/	N/A
Comparing symptoms, treatment patterns, and quality of life of ankylosing spondylitis and non-radiographic axial spondyloarthritis patients in the USA: findings from a patient and rheumatologist survey	Various	https://pubmed.ncbi.nlm.nih.gov/33611647/	N/A
Disease burden and economic impact of diagnosed non‐alcoholic steatohepatitis in five European countries in 2018: a cost‐of‐illness analysis	Non‐alcoholic steatohepatitis	https://pubmed.ncbi.nlm.nih.gov/33590598/	N/A
Disease course and treatment patterns in progressive supranuclear palsy: a real-world study	Progressive supranuclear palsy	https://pubmed.ncbi.nlm.nih.gov/33385754/	N/A
Full, partial, and modified permutations of the Mayo Score: characterizing clinical and patient-reported outcomes in ulcerative colitis patients	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/36777063/	N/A
Genomic/genetic testing patterns for patients with metastatic castrate-resistant prostate cancer: results from a real-world study in the United States	Prostate cancer		ASCO GU, 2021
Real-world symptoms, disease burden, resource use and quality of life in US patients with advanced renal cell cancer	Renal cell carcinoma	https://pubmed.ncbi.nlm.nih.gov/33631973/	N/A
Contemporary economic burden in a real-world heart failure population with commercial and Medicare supplemental plans	Chronic heart failure	https://pubmed.ncbi.nlm.nih.gov/33704817/	N/A
Disease burden and economic impact of diagnosed non-alcoholic steatohepatitis (NASH) in the United Kingdom (UK) in 2018	Non‐alcoholic steatohepatitis	https://pubmed.ncbi.nlm.nih.gov/33751289/	N/A
Treatment patterns and unmet need in multiple myeloma in Europe: a real-world survey	Multiple myeloma		EBMT, 2021
The real-world use of tyrosine kinase inhibitors (TKIs) in epidermal growth factor receptor mutated (EGFRm) advanced (stage IIIb / IIIc / IV) non-small cell lung cancer (NSCLC) patients	Non-small cell lung cancer		ELCC, 2021
The burden of progressive supranuclear palsy on patients and caregivers by PSP phenotype: a cross-sectional study	Progressive supranuclear palsy		ADPD, 2021
Symptom burden and loss of independence in activities of daily living among patients with amyotrophic lateral sclerosis	Amyotrophic lateral sclerosis		MDA, 2021
Physician perceptions of barriers to epidermal growth factor receptor mutation (EGFRm) testing in advanced (stage IIIb / IIIc / IV) non-small cell lung cancer (NSCLC)	Non-small cell lung cancer		ELCC, 2021
Delays in epidermal growth factor receptor mutation (EGFRm) testing in advanced (stage IIIb / IIIc / IV) non-small cell lung cancer (NSCLC) patients and their impact on the use of first line tyrosine kinase inhibitor (TKIs) in a real-world setting	Non-small cell lung cancer		ELCC, 2021
Cross-walk of the Assessment of Spondyloarthritis International Society Health Index and Ankylosing Spondylitis Quality of Life Scores in ankylosing spondylitis and non-radiographic axial spondyloarthritis patients	Ankylosing spondylitis	https://pubmed.ncbi.nlm.nih.gov/33864593/	N/A
Extent and impact of inadequate disease control in US adults with a history of moderate to severe atopic dermatitis following introduction of new treatments	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/33496957/	N/A
Impact of sickle cell disease on patients’ daily lives, symptoms reported, and disease management strategies: results from the international Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease	https://pubmed.ncbi.nlm.nih.gov/33264445/	N/A
Long-acting bronchodilator use in chronic obstructive pulmonary disease in primary care in New Zealand: a retrospective study of treatment patterns and evolution using the HealthStat database	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/33907394/	N/A
Osteoarthritis in Italy: impact on health-related quality of life and health care resources	Osteoarthritis	http://journals.seedmedicalpublishers.com/index.php/FE/article/view/1496/1869#:~:text=In%20this%20cross%2Dsectional%20study,work%20productivity%20and%20daily%20activities.	N/A
Unmet needs and treatment patterns of advanced Parkinson’s disease patients in the United States	Parkinson’s disease		AAN, 2021
The patient-reported burden of alopecia areata by current severity: a real-world study in the United States	Alopecia areata		AAD, 2021
Real-world outcomes for schizophrenia patients and caregivers by disease severity	Schizophrenia		SIRS, 2021
Quantifying the healthcare resource utilisation in the management of moderate-to-severe chronic pain among patients with chronic lower back pain in England: retrospective analysis of linked primary & secondary care data	Chronic lower back pain		BPS, 2021
Quantifying the healthcare resource utilisation in the management of moderate-to-severe chronic pain among patients in England with concomitant chronic low back pain and osteoarthritis	Osteoarthritis		BPS, 2021
Quantifying the healthcare resource utilisation for the management of moderate to severe chronic pain among patients with osteoarthritis in England: a retrospective analysis of linked primary and secondary care data	Osteoarthritis		OARSI, 2021
Physician-reported satisfaction with treatment and pain reduction in endometriosis patients receiving elagolix compared with other prescribed treatments	Endometriosis		ACOG, 2021
Patient- and dermatologist-reported impacts of alopecia areata on patients stratified by disease severity: results from a real-world study in the United States	Alopecia areata		AAD, 2021
Identifying care gaps in Parkinson’s disease patients eligible for device-aided therapies: results from using the MANAGE-PD tool in patients from G7 countries	Parkinson’s disease		AAN, 2021
Demonstrating the clinical value of MANAGE-PD tool in assessing symptom control of Parkinson’s disease patients: evidence from G7 countries	Parkinson’s disease		SNS, 2021
Characterising the morbidity and mental health profile of patients with moderate-to-severe chronic pain in osteoarthritis: a retrospective analysis of linked primary and secondary care data in England	Osteoarthritis		BPS, 2021
Cardiovascular risk profiles: How do eligibility criteria of the glucagon-like peptide-1 receptor agonist cardiovascular outcomes trials REWIND, LEADER and SUSTAIN-6 translate to a real-world population with Type 2 diabetes in the UK?	Diabetes		DUKPC, 2021
A characterisation of the pharmacological management of moderate-to-severe chronic pain in patients with osteoarthritis in clinical practice in England: a retrospective analysis of primary care data	Osteoarthritis		BPS, 2021
Physician-patient concordance in the assessment of asthma control	Asthma	https://pubmed.ncbi.nlm.nih.gov/33872813/	N/A
The value of optional alarms in continuous glucose monitoring devices: a survey on patients and their physicians	Diabetes	https://www.diabetologie-online.de/a/originalie-the-value-of-optional-alarms-in-continuous-glucose-monitoring-devices-a-survey-on-patients-and-their-physicians-2378027	N/A
Caregivers of patients with heart failure: burden and the determinants of health-related quality of life	Chronic heart failure	https://pubmed.ncbi.nlm.nih.gov/34079236/	N/A
Current treatments used in clinical practice for major depressive disorder and treatment resistant depression in England: a retrospective database study	Depression	https://pubmed.ncbi.nlm.nih.gov/34077893/	N/A
Health-related quality of life and lifestyle changes in patients with chronic kidney disease and hyperkalaemia: real-world data from the US, five European countries and China	Chronic kidney disease	https://pubmed.ncbi.nlm.nih.gov/33960068/	N/A
Treatment patterns and real-world outcomes among patients with episodic migraine in China: results from the Chinese Adelphi Disease Specific Programme	Migraine		ISPOR US, 2021
The impact of COVID-19 on patient management across the EU and US	Covid-19		ISPOR US, 2021
Rectal urgency among ulcerative colitis and Crohn’s disease patients: analyses from a global survey	Inflammatory Bowel Disease		DDW, 2021
Real-world outcomes associated with cognitive impairment among patients with schizophrenia	Schizophrenia		APA, 2021
Real-world evidence of reported symptoms and quality of life burden associated with chronic rhinosinusitis with nasal polyposis across disease severity and region	Chronic rhinosinusitis with nasal polyposis		ATS, 2021
Physician reported reasons for advanced therapy treatment switches in rheumatoid arthritis patients: results from a cross-sectional survey in the USA	Rheumatoid arthritis		ISPOR US, 2021
Patients with COPD prefer improvement of cough and mucus over shortness of breath and improvement of combined daily symptoms over the reduction of exacerbations: A multi-country patient preference study	Chronic obstructive pulmonary disease		ATS, 2021
Healthcare resource utilization (HCRU) for early-, middle- and late-stage amyotrophic lateral sclerosis (ALS) patients: results from a real-world point-in-time survey	Amyotrophic lateral sclerosis		ISPOR US, 2021
Burden of fatigue among Crohn’s disease and ulcerative colitis patients: analyses from a global survey of patients and gastroenterologists	Inflammatory Bowel Disease		DDW, 2021
Atopic dermatitis: patient characteristics and patient-reported outcomes on topical therapy	Atopic dermatitis		SID, 2021
Real-world assessment of “OFF” episode–related healthcare resource utilization among patients with Parkinson’s disease in the United States	Parkinson’s disease	https://pubmed.ncbi.nlm.nih.gov/33819121/	N/A
A real-world analysis of treatment patterns and clinical characteristics among patients with COPD who initiated multiple-inhaler triple therapy in New Zealand	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/34177262/	N/A
Impact of chorea on self-care activity, employment, and health-care resource use in patients with Huntington’s disease	Huntington disease	https://pubmed.ncbi.nlm.nih.gov/34183975/	N/A
Impact of dementia-related behavioral symptoms on healthcare resource use and caregiver burden: real-world data from Europe and the United States	Dementia	https://pubmed.ncbi.nlm.nih.gov/34057080/	N/A
Patient-reported outcomes for migraine in the US and Europe: burden associated with multiple preventive treatment failures	Migraine	https://pubmed.ncbi.nlm.nih.gov/34285524/	N/A
Patient-reported pain severity and health-related quality of life in patients with multiple myeloma in real world clinical practice	Multiple myeloma	https://pubmed.ncbi.nlm.nih.gov/34110106/	N/A
Physical, emotional and social pain communication by patients diagnosed and living with multiple myeloma	Multiple myeloma	https://pubmed.ncbi.nlm.nih.gov/34139887/	N/A
The impact of COVID-19 on patient management and prescribing strategy across the EU and US: a real-world survey of rheumatologists, dermatologists, and gastroenterologists	Covid-19		EULAR, 2021
The burden of sickle cell disease (SCD) on patients in Ghana and Nigeria compared with other low-/middle-income and high-income countries: results from the Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		EHA, 2021
Quantifying the incremental economic burden of Advanced Parkinson’s Disease: real-world evidence from EU5 countries	Parkinson’s disease		EAN, 2021
Quantifying the economic burden prior to total joint replacement among patients with moderate-to-severe chronic pain in osteoarthritis: a retrospective analysis of linked primary and secondary care data in England	Osteoarthritis		BHS, 2021
Physician and patient perceptions of surgical procedures for knee OA across Japan, the US and 5 EU countries: results of a real-world study	Osteoarthritis		EULAR, 2021
Physician and patient attitudes towards treat-to-target, its implementation and stated treatment goals in patients with rheumatoid arthritis in a real-world setting across Europe	Rheumatoid arthritis		EULAR, 2021
Onabotulinumtoxin A treatment satisfaction among patients with chronic migraine	Migraine		EAN, 2021
Inadequate disease control, treatment dissatisfaction, and quality-of-life impairments among US patients receiving topical therapy for atopic dermatitis	Atopic dermatitis		RAD, 2021
Impact of sickle cell disease on daily life in patients managing vaso-occlusive crises at home vs the emergency room/hospital: results from the international sickle cell world assessment survey (SWAY)	Sickle cell disease		EHA, 2021
Humanistic and healthcare resource use burden in Japanese chronic kidney disease patients with anemia	Chronic kidney disease		JSN, 2021
ESSDAI and its association with patient outcomes in Sjögren’s syndrome: a real-world survey in the US	Sjogren's syndrome		EULAR, 2021
Effectiveness of ixekizumab in patients with psoriatic arthritis: results from a real-world European survey	Psoriatic arthritis		EULAR, 2021
Does fibrosis severity or diabetes status influence patient-reported lifestyle changes and degree of success among non-alcoholic steatohepatitis patients?	Non‐alcoholic steatohepatitis		EASL, 2021
Characterization and treatment goals of patients on long-acting injectable antipsychotics vs oral antipsychotics: results from a patient/caregiver/psychiatrist survey	Schizophrenia		ASCP, 2021
Assessment of how modifiable and non-modifiable factors can impact fibrosis outcomes in non-alcoholic steatohepatitis patients: a 12-country real-world assessment	Non‐alcoholic steatohepatitis		EASL, 2021
Analysis of treatment goals for patients with schizophrenia: a US survey of psychiatrists, patients with schizophrenia and caregivers	Schizophrenia		ASCP, 2021
Burden and quality of life among female and male patients with heart failure in Europe: a real-world cross-sectional study	Chronic heart failure	https://pubmed.ncbi.nlm.nih.gov/34354345/	N/A
Concern about addiction is associated with lower quality of life in patients with osteoarthritis: an exploratory, real‑world data analysis	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/34219192/	N/A
Health related quality of life among patients with HR+/HER2- early stage breast cancer	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/34256965/	N/A
Inadequate disease control, treatment dissatisfaction, and quality-of-life impairments among US patients receiving topical therapy for atopic dermatitis	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/34268709/	N/A
Investigating diagnosis, treatment, and burden of disease in patients with ankylosing spondylitis in central eastern Europe and the United States: a real-world study	Ankylosing spondylitis	https://pubmed.ncbi.nlm.nih.gov/34319479/	N/A
Unmet needs in advanced therapy-naïve and advanced therapy-experienced moderate-to-severe ulcerative colitis patients in the United States	Inflammatory Bowel Disease		ECCO, 2021
Unmet clinical needs of paediatric psoriasis patients based on real-world data from the EU5 and US	Psoriasis		SPD, 2021
Treatment patterns of paediatric patients with moderate to severe psoriasis based on real-world data from the EU5 and US	Psoriasis		SPD, 2021
Symptomology and most bothersome symptoms among pediatric Crohn’s disease and ulcerative colitis patients: results from a physician and patient survey	Inflammatory Bowel Disease		ECCO, 2021
Exploring differences in clinical burden between adult and pediatric psoriasis patients: results from a real world survey	Psoriasis		SPD, 2021
Real world effectiveness and satisfaction with secukinumab in the treatment of patients with psoriatic arthritis: a population survey in five European countries	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/34256669/	N/A
Real-world study of the impact of recurrent/metastatic squamous cell carcinoma of the head and neck (R/M SCCHN) on quality of life and productivity in Europe	Squamous cell carcinoma of the head and neck	https://pubmed.ncbi.nlm.nih.gov/34303346/	N/A
Reliability, validity, and important difference estimates for the NCCN-FACT Ovarian Symptom Index-18 (NFOSI-18)	Ovarian cancer	https://pubmed.ncbi.nlm.nih.gov/34287020/	N/A
Agitation in dementia: real-world impact and burden on patients and the healthcare system	Dementia	https://pubmed.ncbi.nlm.nih.gov/34250934/	N/A
Quantifying the employer burden of persistent musculoskeletal pain at a large employer in the United Kingdom: a non interventional, retrospective study of Rolls Royce employee data	Musculoskeletal pain		WCO IOF ESCEO, 2021
Fatigue in psoriatic arthritis: Prevalence in patients from the US and Europe, and impact on quality of life and work productivity	Psoriatic arthritis		PANLAR, 2021
Real-world clinical profile, treatment patterns and patient-reported outcomes in a subset of HR+/HER2− advanced breast cancer patients with poor prognostic factors: data from an international study	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/34371379/	N/A
Biologic and targeted synthetic DMARD utilization in the United States: Adelphi Real World Disease Specific Programme for rheumatoid arthritis	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/34487340/	N/A
Factors leading to discontinuation of biologic therapy in patients with severe asthma	Asthma	https://pubmed.ncbi.nlm.nih.gov/34486912/	N/A
Unmet clinical needs and burden of disease in hidradenitis suppurativa: real-world experience from EU5 and US	Hidradenitis suppurativa		EADV, 2021
Understanding the diagnostic and treatment landscape in EGFRm advanced non-small dell lung cancer (aNSCLC) patients with exon 20 insertion mutations (Ex20ins)	Non-small cell lung cancer		ESMO, 2021
The relationship between employment status, WPAI and HRQoL for patients with HR+/HER2- early-stage breast cancer	Breast cancer		ESMO, 2021
Suboptimal clinical and quality of life outcomes in psoriasis patients undertreated with systemic oral therapies: evidence from an international physician and patient survey	Psoriasis		EADV, 2021
Receipt of neoadjuvant treatment and impact of types of surgery on HRQoL among patients with early-stage HR+/HER2 - breast cancer	Breast cancer		ESMO, 2021
Real-world study of Rearranged during transfection [RET] testing in patients with papillary thyroid cancer [PTC] in Europe [EU5]	Thyroid cancer		ESMO, 2021
Real-world study of REarranged during transfection [RET] testing in patients with medullary thyroid cancer [MTC] in Europe [EU5]	Thyroid cancer		ESMO, 2021
Real-world evidence of reported symptoms and quality of life burden associated with chronic rhinosinusitis with nasal polyposis and comorbid asthma atatus	Chronic rhinosinusitis with nasal polyposis		ERS, 2021
Real-world evaluation of the impact, treatment patterns, and patient and physician perceptions of vasomotor symptoms associated with menopause in Europe and the United States	Menopause		EMAS, 2021
Real-world adherence to single-inhaler vs multiple-inhaler triple therapy among patients with COPD in a primary care treated UK population	Chronic obstructive pulmonary disease		ERS, 2021
Real world study of treatments received and treatment satisfaction among HER2- advanced breast cancer (ABC) patients in EU3 and US	Breast cancer		ESMO, 2021
Real world health-related quality of life (HRQoL) among HER2-negative (HER2-) advanced breast cancer (ABC) patients in EU3 and US	Breast cancer		ESMO, 2021
Physician considered treatment attributes for 3rd line diffuse-large B-cell lymphoma treatment decision-making: physician perspectives from a survey across western Europe and US	Diffuse large B-cell lymphoma		ESMO, 2021
Osteoarthritis medication satisfaction	Osteoarthritis		AAFP, 2021
Characteristics and treatment patterns in patients with medullary thyroid cancer [MTC] with and without Rearranged during transfection [RET] mutations in Europe	Thyroid cancer		ESMO, 2021
Characteristics and treatment pathways of patients with COPD receiving an inhaled corticosteroid/long-acting β2-agonist (ICS/LABA) in the UK	Chronic obstructive pulmonary disease		ERS, 2021
Characteristics and treatment pathways of patients with COPD receiving a long-acting muscarinic antagonist/long-acting β2-agonist (LABA/LAMA) in the UK	Chronic obstructive pulmonary disease		ERS, 2021
A real-world observational study to describe NHS resource use for the management of moderate to severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17	Atopic dermatitis		BAD, 2021
Burden of illness in patients with chronic rhinosinusitis with nasal polyps in a real-world setting in Europe	Chronic rhinosinusitis with nasal polyposis		ERS, 2021
Real-world treatment patterns and outcomes in patients with head and neck cancer: point-in-time survey of oncologists in Italy and Spain	Head and neck cancer	https://pubmed.ncbi.nlm.nih.gov/34319551/	N/A
Associations between relapses and psychosocial outcomes in patients with schizophrenia in real-world settings in the United States	Schizophrenia	https://pubmed.ncbi.nlm.nih.gov/34764891/	N/A
Determinants of patient and physician treatment satisfaction in moderate to severe psoriasis: a multinational survey of psoriasis patients	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/35130382/	N/A
Idiopathic pulmonary fibrosis: physician and patient perspectives on the pathway to care from symptom recognition to diagnosis and disease burden	Idiopathic pulmonary fibrosis	https://pubmed.ncbi.nlm.nih.gov/34611971/	N/A
Unmet needs in advanced therapy-naïve and advanced therapy-experienced moderate-to-severe ulcerative colitis patients in the United States	Inflammatory Bowel Disease		ACG, 2021
Quantifying the economic impact of delayed multiple-inhaler triple therapy initiation in patients with COPD: a retrospective cohort study of linked electronic medical record and hospital administrative data in England	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/34675504/	N/A
The burden of sickle cell disease on patients in Ghana and Nigeria compared with other low-/middle-income and high-income countries: results from the sickle cell world assessment survey (SWAY)	Sickle cell disease		SCDAA, 2021
Symptom and quality of life burden among patients with eosinophilic oesophagitis in a real-world setting	Eosinophilic oesophagitis		UEGW, 2021
Real-world experience of subcutaneous belimumab treatment for systemic lupus erythematosus: a cross-sectional survey of rheumatologists and their patients	Systemic lupus erythematosus		LUPUS & CORA, 2021
Real-world effectiveness of ustekinumab in patients with Crohn's disease: findings from a survey of gastroenterologists in the US	Inflammatory Bowel Disease		ACG, 2021
Real-world clinical presentation of patients with portopulmonary hypertension in comparison with idiopathic/hereditary pulmonary arterial hypertension in the USA	Various		CHEST, 2021
Functional class and physician-perceived severity are similar in treated and untreated patients with pulmonary arterial hypertension: a real-world survey	Pulmonary arterial hypertension		CHEST, 2021
Perspectives on myasthenia gravis: the quality of life and productivity of caregivers	Myasthenia gravis		AANEM, 2021
Perspectives on myasthenia gravis: the impact on quality of life, productivity and employment in the United States	Myasthenia gravis		AANEM, 2021
Outcomes of early and late advanced therapy use in patients with ulcerative colitis: findings from a European real-world study	Inflammatory Bowel Disease		UEGW, 2021
MRI activity versus relapses as markers of disease activity in SPMS: data from real world and pivotal clinical studies	Multiple sclerosis		ECTRIMS, 2021
Misdiagnosis in paediatric inflammatory bowel disease – findings from a real-world study in Europe	Inflammatory Bowel Disease		UEGW, 2021
Impact of rare diseases on work, productivity, and activity impairment: analysis of real-world patient outcomes collected in the Adelphi Disease Specific Programmes™ (DSPs™)	Various		NORD, 2021
High prevalence of intolerability with interferon beta and glatiramer acetate in patients with MS	Multiple sclerosis		ECTRIMS, 2021
Healthcare insurance coverage and treatment patterns among patients with amyotrophic lateral sclerosis in the United States	Amyotrophic lateral sclerosis		AMCP Nexus, 2021
Frequency of diagnosed concomitant conditions among patients with rare diseases: analysis of real-world patient data from Europe and the United States	Various		NORD, 2021
Epidemiology and treatment patterns of the patients with locally advanced or metastatic urothelial carcinoma: a retrospective analysis of real-world data in Japan	Urothelial carcinoma		JSCO, 2021
Effects of COVID-19 on treatment and patient management in inflammatory bowel disease: findings from a real-world survey in Europe	Inflammatory Bowel Disease		UEGW, 2021
Discordance between neurologists and people living with multiple sclerosis on the perception of the presence and burden of cognitive impairment	Multiple sclerosis		ECTRIMS, 2021
Concordance in perceptions of the impact of subcutaneous belimumab treatment for systemic lupus erythematosus between patients and their physicians: a cross-sectional, real-world survey	Systemic lupus erythematosus		LUPUS & CORA, 2021
Characteristics and real world treatment history of patients treated with tofacitinib for ulcerative colitis in Europe	Inflammatory Bowel Disease		UEGW, 2021
Burden among caregivers of patients with amyotrophic lateral sclerosis in the United States	Amyotrophic lateral sclerosis		ANA, 2021
A comparison of treatment patterns and healthcare resource utilization in portopulmonary hypertension and idiopathic/hereditary pulmonary arterial hypertension in the USA	Various		CHEST, 2021
Cognitive debriefing of the Adelphi Adherence Questionnaire (ADAQ©): a novel generic patient-reported measure of medication adherence drivers and behaviours	Various		ISOQOL, 2021
Real-world analysis of patient characteristics, treatment outcomes, and healthcare resource utilization across Europe in patients with newly diagnosed multiple myeloma ineligible for stem cell transplantation who received lenalidomide- or bortezomib-based regimens	Multiple myeloma	https://pubmed.ncbi.nlm.nih.gov/34121589/	N/A
Treatment goals in schizophrenia: a real-world survey of patients, psychiatrists, and caregivers in the United States, with an analysis of current treatment (long-acting injectable vs oral antipsychotics) and goal selection	Schizophrenia	https://pubmed.ncbi.nlm.nih.gov/34707359/	N/A
Living with ulcerative colitis in Japan: biologic persistence and health-care resource use	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/35083284/	N/A
Treatment trends among men with metastatic castration sensitive prostate cancer (mCSPC): results from the European component of an international study	Prostate cancer		EMUC, 2021
Treatment patterns among men with metastatic castration resistant prostate cancer (mCRPC): results from a European international study	Prostate cancer		EMUC, 2021
The impact of delayed primary Sjögren’s syndrome diagnosis on patient outcomes: a real-world survey in the US	Sjogren's syndrome		ACR, 2021
Real-world assessment of healthcare resource utilisation and direct medical costs in patients with COPD receiving LAMA/LABA Therapy in England	Chronic obstructive pulmonary disease		ISPOR EU, 2021
Real-world assessment of healthcare resource utilisation and direct medical costs in patients with COPD receiving ICS/LABA Therapy in England	Chronic obstructive pulmonary disease		ISPOR EU, 2021
Real-world (RW) patient-reported outcomes (PROs) in frontline maintenance therapy for advanced Non-Small Cell Lung Cancer (aNSCLC) in France, Germany, and the UK	Non-small cell lung cancer		ISPOR EU, 2021
Real world treatment patterns and clinical outcomes associated with palbociclib combination therapy across Europe, North and South America, and Asia: a pooled analysis from the IRIS study	Breast cancer		ISPOR EU, 2021
Physicians’ reasons for prescribing Janus kinase inhibitors (JAKi) in patients with rheumatoid arthritis, and associated alignment between physicians and patients in a real-world clinical setting	Rheumatoid arthritis		ACR, 2021
Physician perception and assessment of alopecia areata severity and the corresponding patient-reported QoL	Alopecia areata		JDA, 2021
Patient characteristics, diagnostic testing and treatment patterns in patients with hormone receptor-positive, human epidermal growth factor receptor 2-negative (HR+, HER2-), node-positive, high-risk early breast cancer (EBC) in Italy: A real-world study	Breast cancer		ISPOR EU, 2021
Machine learning: Identifying lupus nephritis within systemic lupus erythematosus in the real world	Systemic lupus erythematosus		ACR, 2021
Health-related quality of life across King’s and MiToS stages among amyotrophic lateral sclerosis patients: results from a real-world point-in-time survey	Amyotrophic lateral sclerosis		ISPOR EU, 2021
Evaluating real-world health-related quality of life in a survey of patients with advanced renal cell carcinoma receiving first-line treatment in the US	Renal cell carcinoma		ISPOR EU, 2021
Describing the disease burden of primary Sjögren’s Syndrome patients: results from a real-world survey in the US	Sjogren's syndrome		ACR, 2021
Characterisation of the management pathway for muscle-invasive urothelial carcinoma (MIUC) from physician perspectives in France, Germany, Italy, Spain, UK (EU5), US, Canada, China, and Japan	Urothelial carcinoma		ISPOR EU, 2021
Characterisation of existing treatment patterns in muscle-invasive urothelial carcinoma (MIUC) across North America, Europe, and EAST ASIA	Urothelial carcinoma		ISPOR EU, 2021
Are patients with COPD more adherent to fluticasone furoate/umeclidinium/vilanterol (FF/UMEC/VI) compared with multiple-inhaler triple therapy in a real-world UK primary care treated population?	Chronic obstructive pulmonary disease		BTS, 2021
Approaches to immune checkpoint inhibitor (ICI) first-line maintenance therapy (1L-MT) in unresectable locally advanced (LA) or metastatic urothelial cancer (mUC) in France, Germany, Italy, Spain, and the UK (EU5)	Urothelial carcinoma		ISPOR EU, 2021
A real world evaluation to describe resource use for the management of moderate to severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17 in the Republic of Ireland	Atopic dermatitis		ISPOR EU, 2021
Real-world effectiveness and rheumatologist satisfaction with secukinumab in the treatment of patients with axial spondyloarthritis.	Axial spondyloarthritis	https://pubmed.ncbi.nlm.nih.gov/34800174/	N/A
Real-world management of non-alcoholic steatohepatitis differs from clinical practice guideline recommendations and across regions	Non‐alcoholic steatohepatitis	https://pubmed.ncbi.nlm.nih.gov/34977520/	N/A
Validation and clinical value of the MANAGE-PD tool: a clinician-reported tool to identify Parkinson's disease patients inadequately controlled on oral medications	Parkinson’s disease	https://pubmed.ncbi.nlm.nih.gov/34695657/	N/A
Individualized HbA1c goals, and patient awareness and attainment of goals in type 2 diabetes mellitus: a real-world multinational survey	Diabetes	https://pubmed.ncbi.nlm.nih.gov/34951678/	N/A
Pain and fatigue in patients with ankylosing spondylitis treated with TNF inhibitors: multi-national real-world findings	Ankylosing spondylitis	https://pubmed.ncbi.nlm.nih.gov/32611650/	N/A
Point-in-time survey of healthcare resource utilization, employment, quality of life and caregiver status by disease severity in patients with schizophrenia in the US	Schizophrenia	https://pubmed.ncbi.nlm.nih.gov/34812100/	N/A
Variation in age of onset and disease progression among genetic subsets of amyotrophic lateral sclerosis (ALS) patients: results from a real-world point-in-time survey	Amyotrophic lateral sclerosis		ALS/MND, 2021
Treatment patterns of patients with metastatic castrate-resistant prostate cancer: results from a real-world study in Japan	Prostate cancer		JUA, 2021
The evolving diagnostic and treatment landscape in metastatic non-small cell lung cancer (mNSCLC) across Europe – a real world evidence survey	Non-small cell lung cancer		ESMO IO, 2021
The burden of moderate-to-severe atopic dermatitis: results from a real-world study in Spain	Atopic dermatitis		AEDV, 2021
Real-world health-related quality of life in patients with diffuse large B-cell lymphoma: information comparisons with reference populations and by line of therapy	Diffuse large B-cell lymphoma		ASH, 2021
Real-world bevacizumab utilization and outcomes among women with ovarian cancer in Europe and the United States	Ovarian cancer	https://www.imrpress.com/journal/EJGO/42/6/10.31083/j.ejgo4206181	N/A
Patterns of genetic testing among patients with amyotrophic lateral sclerosis (ALS): real-world results from the United States and Europe	Amyotrophic lateral sclerosis		ALS/MND, 2021
Improvement in annualized bleed rate in patients with hemophilia A initiating emicizumab – physician reported outcomes from the Adelphi Hemophilia A Disease Specific Programme	Hemophilia		ASH, 2021
Improvement in annualized bleed rate in patients with hemophilia A initiating emicizumab – physician reported outcomes from the Adelphi Hemophilia A Disease Specific Programme	Hemophilia		ASH, 2021
Impact of cluster headache attack duration on aspects of patients’ mental health and sleep patterns – results from a real-world survey	Cluster headache		Pain360, 2021
Genomic and genetic testing patterns for patients with metastatic castrate resistant prostate cancer: real world study results in Japan	Prostate cancer		JUA, 2021
Exploring the real-world impact of COVID-19 on first line (1L) treatment and management of EGFR-wild type (EGFR-WT) and ALK-wild type (ALK-WT) metastatic non-small cell lung cancer (mNSCLC) across Europe	Non-small cell lung cancer		ESMO IO, 2021
Experiences of sickle cell disease (SCD) reported by healthcare professionals (HCPs) across different regions: International Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		ASH, 2021
Current clinical practice and decision-making in multiple myeloma treatment in the United States of America: A real-world survey	Multiple myeloma		ASH, 2021
Children in the United States with sickle cell disease experience greater educational burden than those living in low/middle income and other high-income countries	Sickle cell disease		ASH, 2021
Care and mobility aid dependence in activities of daily living among patients with ALS in the US: results from a real-world study	Amyotrophic lateral sclerosis		APF, 2021
Real-world impact of flaring on patient-reported outcomes and healthcare resource utilization in systemic lupus erythematosus	Systemic lupus erythematosus	https://pubmed.ncbi.nlm.nih.gov/34905485/	N/A
Symptom burden of patients with moderate-to-severe atopic dermatitis	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/34935621/	N/A
Treatment and disease management patterns for bacillus Calmette–Guérin unresponsive nonmuscle invasive bladder cancer in North America, Europe and Asia: a real-world data analysis	Bladder cancer	https://pubmed.ncbi.nlm.nih.gov/36204362/	N/A
Impact of day-to-day itch frequency on the burden of disease in adult patients with moderate-to-severe atopic dermatitis	Atopic dermatitis		EADV, 2021
Does the 5–2-1 criteria identify patients with advanced Parkinson’s disease? Real-world screening accuracy and burden of 5–2-1-positive patients in 7 countries	Parkinson’s disease	https://pubmed.ncbi.nlm.nih.gov/35073872/	N/A
Initiation of bone-targeted agents in patients with bone metastases and breast or castrate-resistant prostate cancer actively treated in routine clinical practice in Europe	Prostate cancer	https://pubmed.ncbi.nlm.nih.gov/34757213/	N/A
Patient and caregiver socioeconomic burden of first-line systemic therapy for advanced gastroesophageal adenocarcinoma	Gastric cancer	https://pubmed.ncbi.nlm.nih.gov/34984914/	N/A
Psychometric properties of clinical indicators for identification and management of advanced Parkinson's disease: real-world evidence from G7 countries	Parkinson’s disease	https://pubmed.ncbi.nlm.nih.gov/35015215/	N/A
Regional assessment of the experiences of healthcare professionals (HCPs) treating patients with sickle cell disease (SCD): the international Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease		ASCAT, 2022
Real world utilization of adalimumab biosimilar (ABP 501) in patients with inflammatory bowel disease in Europe	Inflammatory Bowel Disease		CCC, 2022
Real-world homologous recombination repair mutation testing in metastatic castration-resistant prostate cancer in the USA, Europe and Japan	Prostate cancer	https://pubmed.ncbi.nlm.nih.gov/35043687/	N/A
Real-world multi-country study of BRCA1/2 mutation testing among adult women with HER2-negative advanced breast cancer	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/35098723/	N/A
Real-world study of regional differences in patient demographics, clinical characteristics, and BRCA1/2 mutation testing in patients with human epidermal growth factor receptor 2‒negative advanced breast cancer in the United States, Europe, and Israel	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/36333567/	N/A
Real-world treatment of patients with palbociclib for HR+/HER2– advanced/metastatic breast cancer: the Europe IRIS study	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/34842454/	N/A
Satisfaction with medications prescribed for osteoarthritis: a cross-sectional survey of patients and their physicians in the United States	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/35028917/	N/A
Usage of C-reactive protein testing in the diagnosis and monitoring of psoriatic arthritis (PsA): results from a real-world survey in the US and Europe	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/35032324/	N/A
Validity of a single item indicator of treatment side effect bother in a diverse sample of cancer patients	Various	https://pubmed.ncbi.nlm.nih.gov/35031830/	N/A
Cardiovascular risk profiles: a cross-sectional study evaluating the generalizability of the glucagon-like peptide-1 receptor agonist cardiovascular outcome trial populations in REWIND, LEADER and SUSTAIN-6 against a real-world type 2 diabetes population in the United Kingdom	Diabetes	https://pubmed.ncbi.nlm.nih.gov/34668637/	N/A
Multi-country clinical practice patterns, including use of biomarkers, among physicians’ treatment of BCG-unresponsive non-muscle invasive bladder cancer (NMIBC)	Bladder cancer	https://pubmed.ncbi.nlm.nih.gov/35219307/	N/A
Use of perioperative treatment among patients undergoing radical resection for muscle invasive urothelial cancer in France, Germany, Italy, Spain, UK, US, Canada, China, and Japan	Urothelial carcinoma		ASCO GU, 2022
Treatment trends among men with metastatic castration sensitive prostate cancer (mCSPC): results from the US component of an international study	Prostate cancer		ASCO GU, 2022
Treatment patterns among men with metastatic castration-resistant prostate cancer (mCRPC) in the United States (US)	Prostate cancer		ASCO GU, 2022
Treatment (tx) patterns among men with metastatic castration resistant prostate cancer (mCRPC) in the United States (US)	Prostate cancer		ASCO GU, 2022
Real-world health-related quality of life and caregiver need in patients with metastatic hormone-sensitive and metastatic castration-resistant prostate cancer	Prostate cancer		ASCO GU, 2022
Persistent burden of disease in patients with Crohn’s disease treated with biologic therapy: results from a real-world survey in the United States (US), France, Germany, Italy, Spain, and United Kingdom (5EU)	Inflammatory Bowel Disease		ECCO, 2022
Insights from patients with ulcerative colitis on disease burden: findings from a real-world survey in Europe	Inflammatory Bowel Disease		ECCO, 2022
Impact of disease location on burden of illness in patients with moderate-severe Crohn’s disease: a real-world survey in the United States, France, Germany, Italy, Spain, and United Kingdom (5EU)	Inflammatory Bowel Disease		ECCO, 2022
Do real-world diagnostic, management and speciality approaches differ in NASH patients with/without cardiovascular-metabolic comorbidities	Non‐alcoholic steatohepatitis		ICFL, 2022
Criteria used to determine platinum eligibility and first-line (1L) treatment patterns among platinum-eligible (PE) and -ineligible (PI) patients with metastatic urothelial cancer (mUC) in France, Germany, Spain, Italy, and the UK (Eu5)	Urothelial carcinoma		ASCO GU, 2022
Characteristics and outcomes of rheumatoid arthritis patients treated with upadacitinib in real-world Canadian clinical practice	Rheumatoid arthritis		CRA, 2022
Burden of bowel urgency across specific treatment groups among ulcerative colitis patients – real world global study analyses	Inflammatory Bowel Disease		ECCO, 2022
Impact of next-generation hormonal agents on treatment patterns among patients with metastatic hormone-sensitive prostate cancer: a real-world study from the United States, five European countries and Japan	Prostate cancer	https://pubmed.ncbi.nlm.nih.gov/35277153/	N/A
Patient and physician perspectives on alopecia areata: a real-world assessment of severity and burden in Japan	Alopecia areata	https://pubmed.ncbi.nlm.nih.gov/35343611/	N/A
Patient-psychiatrist discordance and drivers of prescribing long-acting injectable antipsychotics for schizophrenia management in the real-world: a point-in-time survey	Schizophrenia	https://pubmed.ncbi.nlm.nih.gov/35300629/	N/A
Quantifying the employer burden of persistent musculoskeletal pain at a large employer in the United Kingdom: a non interventional, retrospective study of Rolls-Royce employee data	Musculoskeletal pain	https://pubmed.ncbi.nlm.nih.gov/34941604/	N/A
Physician perceptions of testing practices in patients with early and advanced stage EGFR mutation positive (EGFRm) NSCLC: a global survey	Non-small cell lung cancer		ELCC, 2022
Physician behaviour and perceptions around genetic biomarker test utilisation for the management of newly diagnosed advanced ovarian cancer patients - US Physician Survey	Ovarian cancer		SGO, 2022
Prescription patterns for patients with hereditary angioedema in the United States	Hereditary angioedema		AMCP, 2022
Impact of day-to-day sleep disruption on the burden of disease in moderate-severe adult atopic dermatitis patients	Atopic dermatitis		AAD, 2022
Current clinical practices and patient-reported outcomes in frontline maintenance for advanced non-small cell lung cancer in France, Germany and the UK: real-world evidence from the Adelphi Disease Specific Programme	Non-small cell lung cancer		AMCP, 2022
Atopic dermatitis treatment patterns and patient burden in Russia and Poland	Atopic dermatitis		AAD, 2022
Real-world treatment patterns in metastatic castration-resistant prostate cancer across Europe (France, Germany, Italy, Spain, and the United Kingdom) and Japan	Prostate cancer	https://pubmed.ncbi.nlm.nih.gov/35316501/	N/A
Treatment patterns, safety, and patient reported outcomes among adult women with human epidermal growth factor receptor 2–negative advanced breast cancer with or without, or with unknown, BRCA1/2 mutation(s): Results of a real-world study from the United States, United Kingdom, and four EU countries	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/36684399/	N/A
BRCA screening, treatment patterns and response among patients with ovarian cancer in the second line treatment setting: results from a real-world survey	Ovarian cancer	https://www.ejgo.net/articles/10.31083/j.ejgo4302026	N/A
Burden of disease, treatment utilization, and the impact on education and employment in patients with sickle cell disease: a comparative analysis of high‐ and low‐ to middle‐income countries for the international Sickle Cell World Assessment Survey (SWAY)	Sickle cell disease	https://pubmed.ncbi.nlm.nih.gov/35472249/	N/A
The clinical and humanistic value of “Good On-Time” among patients with advanced Parkinson’s disease: a real-world study from 7 Countries	Parkinson’s disease		AAN, 2022
Real-world clinical characteristics and treatment patterns in patients with advanced renal cell carcinoma treated with first-line immunotherapy + axitinib in Germany	Renal cell carcinoma		IKCS, 2022
Treatment patterns for chronic obstructive pulmonary disease (COPD) in the United States: results from an observational cross sectional physician and patient survey	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/35418752/	N/A
Unmet clinical needs and burden of disease in hidradenitis suppurativa: real-world experience from EU5 and US	Hidradenitis suppurativa	https://pubmed.ncbi.nlm.nih.gov/35445469/	N/A
Atypical treatment switches in schizophrenia patients: drivers and associated outcomes	Schizophrenia	https://pubmed.ncbi.nlm.nih.gov/35611118/	N/A
Factors associated with physician-reported treatment status of patients with osteoarthritis pain	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/35619074/	N/A
Understanding patient characteristics and healthcare resource utilization in patients with HAE currently prescribed prophylactic treatment	Hereditary angioedema		ISPOR US, 2022
The patient journey in patients With CRSwNP in the United States and Europe	Chronic rhinosinusitis with nasal polyposis		ATS, 2022
Real-world treatment patterns and clinical outcomes in patients receiving palbociclib combinations for HR+/HER2– advanced/metastatic breast cancer in Japan: Results from the IRIS study	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/35567914/	N/A
The burden of asthma in subjects receiving low-dose ICS/LABA –an analysis from a real world survey	Asthma		ATS, 2022
Pulmonary arterial hypertension treatment patterns and patient health related quality of life: findings from a multinational real world database	Pulmonary arterial hypertension		ATS, 2022
Physicians' reasons for prescribing Janus kinase inhibitors (JAKi) in patients with rheumatoid arthritis, and associated alignment between physicians and patients in a real-world clinical setting	Rheumatoid arthritis		SER, 2022
Operationalizing the 2019 GINA Asthma treatment steps for application to real-world data from the UK	Asthma		ISPOR US, 2022
Physician-reported characterization and treatment utilization of patients with alopecia areata using survey data	Alopecia areata		EADV, 2022
Omalizumab treatment is effective for patients with chronic spontaneous urticaria despite delay in treatment initiation: a real-world study	Urticaria		ISPOR US, 2022
Improvement in work productivity loss and associated costs for Crohn’s disease patients receiving ustekinumab in the United States: findings from a real-world survey	Inflammatory Bowel Disease		ISPOR US, 2022
Extent and use of ICS-LABA (maintenance only and MART) in routine clinical practice and associated clinical and symptom unmet need in the US	Asthma		ATS, 2022
Comparative analysis of Hidradenitis Suppurativa Quality Of Life (HiSQOL) and Dermatology Life Quality Index (DLQI) scores using data from patients with hidradenitis suppurativa	Hidradenitis suppurativa		ISPOR US, 2022
Characteristics and outcomes of patients with severe eosinophilic asthma treated with Benralizumab enrolled in the connect 360 patient support programme	Eosinophilic asthma		ATS, 2022
Burden of antibiotic use among pediatric patients with varicella infection: a retrospective cohort analysis of real-world data in England	Varicella		ESPID, 2022
Clinical profile and real world outcomes of ulcerative colitis patients receiving standard and escalated doses of targeted therapies – findings from a global study	Inflammatory Bowel Disease		DDW, 2022
The impact of osteoarthritis disease severity on treatment patterns and healthcare resource use: analysis of real-world data	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/35587006/	N/A
Burden of moderate to severe atopic dermatitis in adults from France, Italy, and the UK: patient-reported outcomes and treatment patterns	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/35913548/	N/A
Evaluation of the impact, treatment patterns, and patient and physician perceptions of vasomotor symptoms associated with menopause in Europe and the United States	Menopause	https://pubmed.ncbi.nlm.nih.gov/35785563/	N/A
Healthcare resource utilization and quality of life by cognitive impairment in patients with schizophrenia	Schizophrenia	https://pubmed.ncbi.nlm.nih.gov/35004189/	N/A
Malignant pleural mesothelioma: treatment patterns and humanistic burden of disease in Europe	Mesothelioma	https://pubmed.ncbi.nlm.nih.gov/35739480/	N/A
People living with moderate-to-severe COPD prefer improvement of daily symptoms over the improvement of exacerbations: a multicountry patient preference study	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/35734770/	N/A
Unmet medical needs and burden of disease in hidradenitis suppurativa: real clinical practice experience in Spain	Hidradenitis suppurativa		EADV, 2022
Treatment attributes for 3rd line follicular lymphoma treatment decision-making: physician perspectives from a survey across Western Europe and the United States	Follicular lymphoma		EHA, 2022
Real-world effectiveness of first-line maintenance olaparib in women with BRCA mutated advanced ovarian cancer – US retrospective cohort study	Ovarian cancer		ASCO, 2022
Reasons for oncologist and urologist treatment choice in metastatic castration-sensitive prostate cancer (mCSPC): a physician survey linked to patient chart reviews in the United States	Prostate cancer		ASCO GU, 2022
Quality of life, work impairment, and daily activity impairment of patients with psoriasis versus psoriatic arthritis: a real-world survey in US and Europe	Psoriatic arthritis		EULAR, 2022
Prevalence of comorbid conditions amongst myasthenia gravis patients: analysis of real world data from the Adelphi Disease Specific Programme	Myasthenia gravis		EAN, 2022
Physicians' reasons for prescribing Janus kinase inhibitors (JAKi) in patients with rheumatoid arthritis, and associated alignment between physicians and patients in a real-world clinical setting	Rheumatoid arthritis		EULAR, 2022
Physicians and patients have different perspectives on burden of hidden symptoms of multiple sclerosis to patients	Multiple sclerosis		CMSC, 2022
Physician perspective on alopecia areata – a real-world assessment of severity and treatment patterns in Taiwan	Alopecia areata		TAPSI, 2022
Overall cancer survival inequalities in the state of Sao Paulo: a comparison between public and private systems	Various		ASCO, 2022
Management of early-stage HR+, HER2- breast cancer in a real-word setting in Germany: a patient perspective	Breast cancer		DGS, 2022
Management and impact of vitiligo on patient lives: survey of US dermatologists	Vitiligo		Maui Derm, 2022
Impact of generalised myasthenia gravis on activities of daily living and employment for patients and caregivers: analysis of real-world data from the Adelphi Disease Specific Programme	Myasthenia gravis		EAN, 2022
Healthcare professionals opinions on treatments for sickle cell disease and the HCP–patient relationship: results from the International Sickle Cell World Assessment Survey	Sickle cell disease		EHA, 2022
Fatigue in active and nonactive primary and secondary progressive multiple sclerosis patients in the United States	Multiple sclerosis		CMSC, 2022
Exploratory analysis of factors driving quality of life (QoL) in people with Parkinson’s disease using Adelphi Real World’s DSP™dataset	Parkinson’s disease		EAN, 2022
Differences in physician and patient perspectives on patients’ burden related to hidden symptoms of multiple sclerosis	Multiple sclerosis		CMSC, 2022
Concordance of physician and patient reported presence and severity of pulmonary arterial hypertension symptoms: findings from a real-world survey in Latin America	Pulmonary arterial hypertension		SIAC, 2022
Clinical characteristics and burden among patients with SLE stratified by SLEDAI derived severity: results from a real-world study in the US	Systemic lupus erythematosus		EULAR, 2022
Clinical characteristics and burden among patients with SLE and musculoskeletal organ involvement: results from a real-world study in the US	Systemic lupus erythematosus		EULAR, 2022
Impact of itch and skin pain on quality of life in adult patients with atopic dermatitis in Japan: results from a real-world, point-in-time, survey of physicians and patients	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/35787197/	N/A
Physician-reported perspectives on myasthenia gravis in the United States: a real-world survey	Myasthenia gravis	https://pubmed.ncbi.nlm.nih.gov/35859033/	N/A
Treatment by line in patients with persistent and chronic immune thrombocytopenia: a real-world point-in-time study immune thrombocytopenia: a real-world point-in-time study	Thrombocytopenia		ISTH, 2022
Real-world treatment experience of single tablet dolutegravir/lamivudine in the US: results from the Tandem study	HIV		IAS, 2022
Prescription patterns for patients with hereditary angioedema in the United States	Hereditary angioedema		EAACI, 2022
Frequency of HAE attacks, clinical outcomes, and quality of life for patients prescribed lanadelumab and other prophylaxis: analysis of real‐world patient data	Hereditary angioedema		EAACI, 2022
Disease burden and diagnosis pathways among patients with EoE in five European countries: evidence from real-world clinical practice	Eosinophilic oesophagitis		EAACI, 2022
The burden of nocturnal symptoms in patients with chronic obstructive pulmonary disease: results of a real-world survey in the USA	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/35877036/	N/A
The burden of progressive supranuclear palsy on patients, caregivers, and healthcare systems by PSP phenotype: a cross-sectional study’	Progressive supranuclear palsy	https://pubmed.ncbi.nlm.nih.gov/35865639/	N/A
Work-related productivity loss and associated indirect costs in patients with crohn’s disease or ulcerative colitis in the United States	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/36777416/	N/A
Characterisation of patients with chronic obstructive pulmonary disease initiating single-device inhaled corticosteroids/long-acting β2-agonist dual therapy in a primary care setting in England	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/36171051/	N/A
Characterization of patients with chronic obstructive pulmonary disease initiating single-inhaler long-acting muscarinic antagonist/long-acting β2-agonist dual therapy in a primary care setting in England	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/35983168/	N/A
Effect of fatigue on health-related quality of life and work productivity in psoriatic arthritis: findings from a real-world survey	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/35840154/	N/A
Real-world health outcomes in US adult patients with mild to moderate plaque psoriasis taking topical therapy	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/35920355/	N/A
Perception of real world Lyumjev® (insulin lispro-aabc) use by patients and healthcare providers: a qualitative study	Diabetes		ADCES, 2022
Physician perceptions and prescribing practices related to treatment options for hemophilia A prophylaxis – results from the Adelphi Hemophilia A Disease Specific Programme™	Hemophilia		NHF, 2022
Osteoarthritis imaging patterns in US clinical practice	Osteoarthritis		ICPE, 2022
Health-related quality of life among patients with hemophilia A receiving prophylactic therapy	Hemophilia		NHF, 2022
Frequency of HAE attacks, clinical outcomes, and quality of life for patients prescribed lanadelumab and other prophylaxis: analysis of real-world patient data	Hereditary angioedema		IWAA , 2022
Development of a feasibility and conceptual design framework for comparative effectiveness research	Chronic obstructive pulmonary disease		ICPE, 2022
Effectiveness of ixekizumab in patients with psoriatic arthritis: results from a real-world European survey	Psoriatic arthritis		DGRh, 2022
Work Productivity, Activity Impairment (WPAI) and quality of life in patients treated for asthma in China	Asthma		CTS, 2022
Differences in asthma severity definitions impact disease burden and healthcare resource utilization outcomes in China	Asthma		CTS, 2022
The impact of agitation in dementia on caregivers: a real-world survey	Dementia	https://pubmed.ncbi.nlm.nih.gov/35694920/	N/A
Women with psoriatic arthritis experience higher disease burden than men: findings from a real-world survey in the United States and Europe	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/35970531/	N/A
A real-world retrospective observational study exploring NHS resource use in England for the management of moderate-to-severe atopic dermatitis in secondary care for children and adolescents	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/36127813/	N/A
Comparative adherence and persistence of single and multiple inhaler triple therapies among patients with chronic obstructive pulmonary disease in an English real-world primary care setting	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/36185170/	N/A
Implementation of the treat-to-target approach and treatment satisfaction in patients with rheumatoid arthritis: perspectives of Chinese rheumatologists	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/35579773/	N/A
Physician- and patient-reported symptom concordance and association with quality of life in hepatocellular carcinoma	Hepatocellular carcinoma	https://pubmed.ncbi.nlm.nih.gov/36377818/	N/A
Qualitative interviews to support development and cognitive debriefing of the Adelphi Adherence Questionnaire (ADAQ©): a patient-reported measure of medication adherence developed for use in a range of diseases, treatment modalities, and countries Measure of Medication Adherence Developed for Use in a Range of Diseases, Treatment Modalities, and Countries	Various	https://pubmed.ncbi.nlm.nih.gov/36133076/	N/A
VOCAL (views of ovarian cancer patients-how maintenance therapy affects their lives) study: a lens into the financial and quality of life (QoL) impact of disease burden and ethnic disparities reported directly by the patient	Ovarian cancer		ASCO QCS, 2022
VOCAL (Views of ovarian cancer patients - how maintenance therapy affects their lives) study: patient preference for treatment formulation and administration	Ovarian cancer		IGCS, 2022
Unmet needs among hidradenitis suppurativa patients receiving biologic therapy in the United States of America and Europe by response status: analysis of a real-world dataset	Hidradenitis suppurativa		EADV, 2022
Unmet needs among atopic dermatitis patients receiving biologic therapy in the United States and Europe by response status: analysis of a real-world dataset	Atopic dermatitis		EADV, 2022
Treatment patterns, outcomes, and physician decision-making in multiple myeloma: a real-world European study	Multiple myeloma		ESMO, 2022
The impact of osteoporotic fractures on activities of daily living and the indirect economic measures in five countries	Osteoporosis		ASBMR, 2022
Rescue medication use in patients with chronic obstructive pulmonary disease receiving umeclidinium/vilanterol versus tiotropium bromide/olodaterolin England	Chronic obstructive pulmonary disease		ERS, 2022
Reduced exacerbations following switch from multiple inhaler to once daily single inhaler triple therapy in COPD patients in a real world primary care setting in England	Chronic obstructive pulmonary disease		ERS, 2022
Treatment patterns of patients with alopecia areata based on physician assessed severity: results from a real-world survey in 5 European countries	Alopecia areata		EADV, 2022
Real-world treatment patterns and clinical outcomes for patients with non-segmental vitiligo in the United States and Europe	Vitiligo		EADV, 2022
Quality of life in non-small cell lung cancer patients with brain/CNS metastases– real-world evidence	Non-small cell lung cancer		NACLC, 2022
Physician behaviour and perceptions of genetic biomarker test use for the management of newly diagnosed advanced ovarian cancer patients	Ovarian cancer		ESMO, 2022
Patient-reported burden of alopecia areata: results from a real-world survey in 5 European countries	Alopecia areata		BHM, 2022
Patient characteristics, disease profile and treatment patterns in mild and moderate PsO patients in European real world practices	Psoriasis		ESDR, 2022
Patient characteristics, disease profile and treatment patterns in mild and moderate PsO Patients in Europe and US Real World Practices (PROSPECT Study)	Psoriasis		EADV, 2022
Misalignment between nurse practitioners and physician assistants and their adult atopic dermatitis patients on severity, disease progression and satisfaction: results of a real-world study in the United States	Atopic dermatitis		Maui Derm, 2022
Impact of scalp hair loss on treatment patterns and physician satisfaction with disease control for alopecia areata patients in Europe	Alopecia areata		EADV, 2022
ICS-LABA prescribing in asthma (maintenance only and MART), clinical and symptom unmet need in Japan	Asthma		ERS, 2022
Exploring triptan use & treatment sequencing for the management of migraine in adults in the UK: a feasibility study using the Clinical Practice Research Datalink (CPRD)	Migraine		MTIS, 2022
Frequency and impact of retreatment in relapsed refractory multiple myeloma: real-world survey conducted in 5 European countries (France, Germany, Italy, Spain, and the United Kingdom)	Multiple myeloma		ESMO, 2022
COVID 19 incidence and hospitalisation in routine clinical practice among COPD patients in England in 2020	Chronic obstructive pulmonary disease		ERS, 2022
Comparative effectiveness of umeclidinium/vilanterol versus indacaterol/glycopyrronium on acute exacerbations in patients with chronic obstructive pulmonary disease in England	Chronic obstructive pulmonary disease		ERS, 2022
Evaluating real-world caregiver involvement from a survey of patients (pts) with metastatic urothelial cancer (mUC) receiving systemic anticancer treatment in France, Germany, Italy, Spain, and the UK (Eu5)	Urothelial carcinoma		ESMO, 2022
Combination therapy prescribing in pulmonary arterial hypertension patients in a real-world setting in Latin America	Pulmonary arterial hypertension		ERS, 2022
Benefit of prompt initiation of single-inhaler triple therapy in COPD patients in England following an exacerbation	Chronic obstructive pulmonary disease		ERS, 2022
Biomarker testing and associated treatment patterns in advanced non-small cell lung cancer in the US	Non-small cell lung cancer		NACLC, 2022
Association between Hurley state and patient-reported outcomes in patients with hidradenitis suppurativa in the United States of America and Europe: analysis of a real-world dataset	Hidradenitis suppurativa		EADV, 2022
Adherence to umeclidinium/vilanterol versus inhaled corticosteroids/long-acting β2-agonist in patients with chronic obstructive pulmonary disease in England	Chronic obstructive pulmonary disease		ERS, 2022
Association between EASI score and patient-reported outcomes in patients with atopic dermatitis in the United States and Europe: analysis of a real-world dataset	Atopic dermatitis		EADV, 2022
Patient characteristics and treatment patterns of newly diagnosed locally advanced head and neck squamous cell carcinoma (LA HNSCC): a retrospective cohort analysis of real-world data in England	Squamous cell carcinoma of the head and neck		ESMO, 2022
Disease burden and treatment patterns among patients with asthma in China	Asthma		ERS, 2022
Disease burden and treatment patterns among patients with asthma on GINA 4/5 therapies in China	Asthma		ERS, 2022
Symptom burden and health-related quality of life in moderate to severe chronic rhinosinusitis with nasal polyposis	Chronic rhinosinusitis with nasal polyposis	https://www.rhinologyonline.org/Rhinology_online_issues/manuscript_2487.pdf	N/A
Real-world study of patients with germline BRCA1/2-mutated human epidermal growth factor receptor 2‒Negative advanced breast cancer: patient demographics, treatment patterns, adverse events, and physician-reported satisfaction in the United States, Europe, and Israel	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/36368161/	N/A
Understanding flaring in pediatric and adolescent patients with moderate or severe atopic dermatitis: a real-world study in the United States and Europe	Atopic dermatitis		FCDC, 2022
The utilization of clinical assessment tests in pulmonary arterial hypertension: findings from a real world survey in Latin America	Pulmonary arterial hypertension		PVRI PH LA, 2022
Real-world treatment patterns and clinical outcomes in radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) patients treated with lenvatinib monotherapy	Thyroid cancer		ATA, 2022
Real-world treatment wxperience of treatment-naïve people living with HIV who initiated treatment with single-tablet dolutegravir/lamivudine in a test and treat setting in the United States	HIV		IDWeek, 2022
Real-world treatment experience of single-tablet dolutegravir/rilpivirine in the United States: results from the TANDEM Study	HIV		AMCP Nexus, 2022
Real-world treatment experience of single-tablet dolutegravir/lamivudine in those naïve to treatment with baseline viral loads ≥100,000 copies/mL the United States.	HIV		IDWeek, 2022
Reasons for choice of advanced therapies (biologics and JAKis) for the treatment of ulcerative colitis in Europe	Inflammatory Bowel Disease		UEGW, 2022
Real-world study of HR+/HER2− early breast cancer in Japan: patient characteristics, biomarker testing, and treatment patterns by recurrence risk	Breast cancer		JSCO, 2022
Real-world evidence characterizing the burden of disease in alpha- and beta-thalassemia patients in the USA: an interim analysis	Thalassemia		ASCAT, 2022
Real-world evaluation of physician-reported symptoms and burden of vasomotor symptoms associated with menopause in the United States and Europe	Vasomotor symptoms		IMS, 2022
Real-world effectiveness of Ixekizumab in psoriatic arthritis patients: a real-world survey in the United States	Psoriatic arthritis		CCR-west, 2022
Real-world effectiveness of Ixekizumab in axial spondyloarthritis patients: a global survey	Axial spondyloarthritis		CCR-West, 2022
Physician-documented symptoms and treatment among patients with eosinophilic esophagitis in the United States: evidence from real-world clinical practice	Eosinophilic oesophagitis		ACG, 2022
Physician-documented symptoms and treatment among patients with eosinophilic esophagitis in five European countries: evidence from real-world clinical practice	Eosinophilic oesophagitis		UEGW, 2022
Physician reported disease severity and diagnostic delays in patients with rare neurological diseases: differences by sex from a real-world survey across Europe and the United States of America	Various		NORD, 2022
Patient-reported symptoms of eosinophilic esophagitis in five European countries: evidence from real-world clinical practice	Eosinophilic oesophagitis		UEGW, 2022
Patient-reported symptom burden and treatment satisfaction in patients with metastatic urothelial cancer (mUC) in France, Germany, Italy, Spain, and the UK (Eu5)	Metastatic urothelial cancer		BLADDR, 2022
Patient and physician alignment on symptoms of menopause: findings from the real-world REALISE study in the United States and Europe	Vasomotor symptoms		IMS, 2022
Impact of treatment switch on clinical outcomes in Crohn’s disease patients in the United States and 5 European countries (France, Germany, Italy, Spain, UK)	Inflammatory Bowel Disease		UEGW, 2022
How often do clinical and non-clinical factors impact physician-reported prescribing for neovascular AMD in real-world clinical practice	Age-related diseases		AMCP Nexus, 2022
Impact of suboptimal response on clinical and humanistic burden in Crohn’s disease	Inflammatory Bowel Disease		UEGW, 2022
Frequency of HAE attacks, clinical outcomes, and quality of life for patients prescribed lanadelumab and other prophylaxis: analysis of a real-world patient data	Hereditary angioedema		AMCP Nexus, 2022
Describing the burden of moderate exacerbations in patients with asthma participating in the Extended Salford Lung Study (Ex-SLS)	Asthma		CHEST, 2022
Describing asthma control and adherence in patients with Extended Salford Lung Study (Ex-SLS) prescribed inhaled corticosteroids/long-acting beta agonists (ICS/LABAs)	Asthma		CHEST, 2022
Disease burden and diagnosis pathways among patients with EoE in the United States: evidence from real-world clinical practice	Eosinophilic oesophagitis		ACG, 2022
Burden of bowel urgency across specific treatment groups among Crohn's disease patients – real world global study analyses	Inflammatory Bowel Disease		UEGW, 2022
Assessment of patient-reported pain relief in treated endometriosis patients: findings from a real-world study in the United States	Endometriosis		ASRM , 2022
Age-related differences in quality of life outcomes of people living with HIV	HIV		HIV Glasgow, 2022
Assessing the economic burden of intermediate Parkinson’s disease: results from a real-world study	Parkinson’s disease		AMCP Nexus, 2022
Patient-reported symptoms of eosinophilic oesophagitis in five European countries: evidence from real-world clinical practice	Eosinophilic oesophagitis		UEGW, 2022
VOCAL (Views of Ovarian Cancer Patients - how maintenance therapy affects their lives) study: patient preference for treatment formulation and administration	Ovarian cancer		AMCP Nexus, 2022
VOCAL (Views of Ovarian Cancer Patients - how maintenance therapy affects their lives) study: patient preference for treatment formulation and administration	Ovarian cancer		ESGO, 2022
Real world utilisation of doravirine among people living with HIV in England (DRIVE-REAL)	HIV		HIV Glasgow, 2022
Physician-documented symptoms and treatment among patients with eosinophilic oesophagitis in five European Countries: evidence from real-world clinical practice	Eosinophilic oesophagitis		UEGW, 2022
Disagreement between the perception of physicians and patients about the presence and severity of symptoms of Pulmonary Arterial Hypertension	Pulmonary arterial hypertension		SBPT, 2022
World health organization functional class and health-related quality of life In patients with pulmonary arterial hypertension: real-world findings In Latin America	Pulmonary arterial hypertension		CHEST, 2022
Understanding the burden of disease in pediatric/adolescent patients with moderate or severe atopic dermatitis: a real-world study in the US, UK, and Europe	Atopic dermatitis		Fall CDC, 2022
BRCA1/2 mutation testing in patients with HER2-negative advanced breast cancer: real-world data from the United States, Europe, and Israel	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/36358816/	N/A
Burden of fatigue among patients with ulcerative colitis and Crohn’s disease: results from a global survey of patients and gastroenterologists	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/36370288/	N/A
Impact of physician-defined flares on quality of life and work impairment: an international survey of 2238 patients with psoriatic arthritis	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/35970528/	N/A
Real-world treatment patterns and clinical outcomes associated with palbociclib combination therapy: a multinational, pooled analysis from the Ibrance real world insights study	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/36456385/	N/A
VOCAL (Views of Ovarian Cancer patients and their caregivers-how maintenance therapy Affects their Lives) study: cancer-related burden and quality of life of caregivers	Ovarian cancer		ISPOR EU, 2022
Understanding flares in pediatric and adolescent patients with moderate or severe atopic dermatitis: a real-world Study in the United States and Europe	Atopic dermatitis		PEDRA, 2022
Treatment-related and non-treatment-related out-of-pocket costs by amyotrophic lateral sclerosis disease stage: a cross-sectional patient survey and retrospective chart review	Amyotrophic lateral sclerosis		ISPOR EU, 2022
Treatment and patient-reported outcomes among people with ALS in the US: results from a real- world study	Amyotrophic lateral sclerosis		NEALS, 2022
The disease burden of invasive candidiasis in Germany: a non-interventional, retrospective cohort analysis of real-world data	Invasive candidiasis		ISPOR EU, 2022
The real-world diagnostic pathway in patients with IgAN	Immunoglobulin A nephropathy		ASN, 2022
Reduced health care resource utilisation and costs following a switch from multiple-inhaler to once-daily single-inhaler triple therapy in COPD patients in a real-world primary care setting in England	Chronic obstructive pulmonary disease		ISPOR EU, 2022
Resource utilisation in non-small cell lung cancer with brain/CNS metastases in Europe, Asia, US and Brazil	Non-small cell lung cancer		ISPOR EU, 2022
Reasons for choice and areas for improvement in advanced therapies (biologics and JAKis) for patients with ulcerative colitis in the United Kingdom	Inflammatory Bowel Disease		ISPOR EU, 2022
Real-world utilization of adalimumab biosimilar (ABP 501) in patients with rheumatoid arthritis, ankylosing spondylitis and psoriatic arthritis in Europe	Rheumatoid arthritis		ACR, 2022
Real-world treatment pathways of patients with diffuse large B-cell lymphoma receiving second line treatment or later in the UK, Canada, France, Germany, Italy and Spain: A prospective survey of physicians	Diffuse large B-cell lymphoma		ISPOR EU, 2022
Quantifying the impact of persistent musculoskeletal pain on employees at rolls-royce: a cross-sectional survey	Musculoskeletal pain		ISPOR EU, 2022
Real-world outcomes among episodic migraine patients with migraine preventive medications in China: results from the Chinese Adelphi Disease Specific Programme	Migraine		ISPOR EU, 2022
Physician and patient reported outcomes by hereditary angioedema type: data from a real-world study	Hereditary angioedema		ACAAI, 2022
Persistence of signs and symptoms in treated patients with IgAN: evidence from real-world data	Immunoglobulin A nephropathy		ASN, 2022
Patient-reported outcomes across disease stages among people with amyotrophic lateral sclerosis: results from a real-world survey	Amyotrophic lateral sclerosis		NEALS, 2022
Measuring the burden of alopecia areata with the European Quality of Life-5 Dimensions (EQ-5D): Results from a real-world survey in 5 European countries	Alopecia areata		ISPOR EU, 2022
Health-related quality of life among men receiving treatment for metastatic castration-resistant prostate cancer: results from an international real-world study	Prostate cancer		EMUC, 2022
Health-related quality of life (HRQOL) by line of treatment, treatment history, and disease status in patients with metastatic urothelial carcinoma (MUC) in EU-4 and the United Kingdom: Results from a disease specific programme	Metastatic urothelial cancer		ISPOR EU, 2022
Functional class and health-related quality of life in patients with pulmonary arterial hypertension associated with congenital heart disease: findings from a real-world study in the US	Pulmonary arterial hypertension		ISPOR EU, 2022
Equity and outcome events in patients with hidradenitis suppurativa: exploring effect modifiers associated with HS diagnostic delay	Hidradenitis suppurativa		ISPOR EU, 2022
Diagnostic testing for non-alcoholic steatohepatitis (NASH) across specialty, comorbidity, and fibrosis stage: a real world assessment in the United States	Non‐alcoholic steatohepatitis		AASLD, 2022
Delayed diagnosis amongst gMG patients: results from a European real-world study	Myasthenia gravis		ISPOR EU, 2022
Clinical and economic benefits of prompt initiation of single-inhaler triple therapy in COPD patients in England following an exacerbation	Chronic obstructive pulmonary disease		ISPOR EU, 2022
Clinical differences and patient reported outcomes between Insufficient responders and responders to prescribed acute migraine treatment: results from a real-world patient survey in China	Migraine		ISPOR EU, 2022
Changing priorities among physician reported reasons for choice of pharmacological gMG treatments across 5 European countries	Myasthenia gravis		ISPOR EU, 2022
Application processes for international classification of disease (ICD)-11 update and revision proposals	Various		ISPOR EU, 2022
Assessing treatment needs and outcomes in patients with Parkinson’s disease: results from a real-world study	Parkinson’s disease		ISPOR EU, 2022
Impact of the COVID-19 pandemic on health care resource utilisation and costs in COPD in England: a population-based study	Chronic obstructive pulmonary disease		ISPOR EU, 2022
Impact of the COVID-19 pandemic on health care resource utilisation and costs in asthma in England: a population-based study	Asthma		ISPOR EU, 2022
COVID-19 incidence and hospitalisation in routine clinical practice among asthma patients in England in 2020	Asthma		BTS, 2022
Asthma exacerbations in routine clinical practice during COVID-19 in England in 2020	Asthma		BTS, 2022
COPD exacerbations in routine clinical practice during COVID-19 in England in 2020	Chronic obstructive pulmonary disease		BTS, 2022
Characteristics and outcomes of patients with rheumatoid arthritis treated with upadacitinib in a global real-world setting	Rheumatoid arthritis		ACR, 2022
Characterization of patients with eosinophilic esophagitis managed by gastroenterologists and allergists: real-world clinical practice evidence	Eosinophilic oesophagitis		ACAAI, 2022
Patient-reported symptoms of eosinophilic esophagitis in the United States: evidence from real-world clinical practice	Eosinophilic oesophagitis		ACAAI, 2022
Misdiagnoses and the impact on disease severity in immunoglobulin A nephropathy patients: a real world study	Immunoglobulin A nephropathy		ASN, 2022
Physician and patient reported outcomes by hereditary angioedema type: data from a real-world study	Hereditary angioedema		ACAAI, 2022
Impact of COVID-19 pandemic on the management of patients with rheumatoid arthritis: a survey of rheumatologists in six European countries	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/36601518/	N/A
Impact of patient and physician disconnect on satisfaction with treatment for atopic dermatitis in Japan	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/36515820/	N/A
Physician and patient perceptions of surgical procedures for osteoarthritis of the knee in the United States, Europe, and Japan: results of a real-world study	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/36471384/	N/A
Real-world patient-reported outcomes and physician satisfaction with poly(ADP-ribose) polymerase inhibitors versus chemotherapy in patients with germline BRCA1/2-mutated human epidermal growth factor receptor 2–negative advanced breast cancer From the United States, Europe, and Israel	Breast cancer	https://pubmed.ncbi.nlm.nih.gov/36550413/	N/A
First-line (1L) treatment (tx) patterns and criteria used to determine platinum eligibility (PE) in platinum-eligible and -ineligible (PI) patients (pts) with metastatic urothelial cancer (mUC) in South Korea (KR) and Taiwan (TW)	Metastatic urothelial cancer		ESMO Asia, 2022
Systemic lupus erythematosus symptom clusters and their association with patient‐reported outcomes and treatment: analysis of real‐world data	Systemic lupus erythematosus	https://pubmed.ncbi.nlm.nih.gov/33345456/	N/A
Treat-to-target in rheumatoid arthritis: a real-world study of the application and impact of treat-to-target within the wider context of patient management, patient centricity, and advanced therapy use in Europe	Rheumatoid arthritis	https://pubmed.ncbi.nlm.nih.gov/36549856/	N/A
Gaps in the assessment and monitoring of cardiovascular risk and psychological burden in polycythemia vera: landmark 2.0, a worldwide health survey	Polycythemia vera		ASH, 2022
Treatment patterns in metastatic urothelial cancer (mUC): a real-world survey in France, Germany, Italy, Spain, and the UK (Eu5)	Urothelial carcinoma		ISPOR US, 2022
Management of myelofibrosis with ruxolitinib in Australia	Myelofibrosis		N/A
A real-world retrospective observational study exploring resource use for secondary care management of moderate-to-severe atopic dermatitis in children and adolescents at a single site in Ireland	Atopic dermatitis		N/A
Characteristics, clinical outcomes and patient-reported outcomes of patients with ulcerative colitis receiving tofacitinib: a real-world survey in the United States and five European countries	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/36658481/	N/A
Global retrospective analysis of clinician- and patient-reported clinical characteristics and humanistic burden of patients with gastroesophageal cancers on first-line treatment	Gastric cancer	https://pubmed.ncbi.nlm.nih.gov/36823552/	N/A
Impact of advanced Parkinson’s Disease on caregivers: an international real-world study	Parkinson’s disease	https://pubmed.ncbi.nlm.nih.gov/36633671/	N/A
Impact of key manifestations of psoriatic arthritis on patient quality of life, functional status, and work productivity: findings from a real-world study in the United States and Europe	Psoriatic arthritis	https://pubmed.ncbi.nlm.nih.gov/36706947/	N/A
Opioid prescribing for osteoarthritis: cross-sectional survey among primary care physicians, rheumatologists, and orthopaedic surgeons	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/36675516/	N/A
Outcomes following adalimumab bio-originator to biosimilar switch—a comparison using real-world patient- and physician-reported data in european countries	Rheumatoid arthritis	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9834672/	N/A
Tyrosine kinaseiInhibitor (TKI) real-world use in epidermal growth factor receptor mutated (EGFRm) advanced non-small cell lung cancer (NSCLC) patients	Non-small cell lung cancer		LALCA, 2023
Therapeutic inertia related to the injectable glucagon-like peptide-1 receptor agonists dulaglutide and semaglutide in patients with type 2 diabetes in UK primary care	Diabetes	https://pubmed.ncbi.nlm.nih.gov/36692268/	N/A
Usage of epidermal growth factor mutation testing and impact on treatment patterns in non-small cell lung cancer: an international observational study	Non-small cell lung cancer	https://pubmed.ncbi.nlm.nih.gov/36455396/	N/A
Prevalence and severity distribution of type 2 inflammation-related comorbidities among patients with asthma, chronic rhinosinusitis with nasal polyps, and atopic dermatitis	Various	https://pubmed.ncbi.nlm.nih.gov/36808551/	N/A
Alignment of physician-stated vs clinically derived reference fibrosis score in patients with non-alcoholic steatohepatitis: a real-world European survey	Non‐alcoholic steatohepatitis	https://pubmed.ncbi.nlm.nih.gov/36873793/	N/A
Clinical unmet needs and treatment patterns of paediatric psoriasis patients: a real world evidence study in Spain	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/36907550/	N/A
Medication beliefs, adherence, and outcomes in people with asthma: the importance of treatment beliefs in understanding inhaled corticosteroid nonadherence—a retrospective analysis of a real-world data set	Asthma	https://www.sciencedirect.com/science/article/pii/S2772829322000868	N/A
Real-world analysis of clinical characteristics, treatment patterns and patient-reported outcomes of insufficient responders and responders to prescribed acute migraine treatment in China	Migraine	https://pubmed.ncbi.nlm.nih.gov/36944864/	N/A
Real-world treatment patterns and outcomes among patients with episodic migraine in China: results from the Adelphi Migraine Disease Specific Programme™	Migraine	https://pubmed.ncbi.nlm.nih.gov/36762367/	N/A
Real-world treatment trends among patients with metastatic castration-sensitive prostate cancer: results from an international study	Prostate cancer	https://pubmed.ncbi.nlm.nih.gov/37014080/	N/A
Disease and treatment burden of Hereditary Angioedema (HAE) in pediatric patients: assessment by caregivers	Hereditary angioedema		AAAAI, 2023
Frequency of HAE attacks, clinical outcomes, and quality of life for patients prescribed lanadelumab and other prophylaxis: analysis of real-world patient data	Hereditary angioedema		WSAAI, 2023
Clinical burden of hidradenitis suppurativa (HS) with draining tunnels	Hidradenitis suppurativa		EHSF, 2023
Clinical outcomes and physician-patient alignment in patients with psoriatic arthritis receiving ixekizumab	Psoriatic arthritis		CRA, 2023
Real-world homologous recombination repair mutation testing patterns in patients with metastatic castration-sensitive prostate cancer in the US	Prostate cancer		ASCO GU, 2023
Comparison of hereditary angioedema among patients of different races and ethnicities in the United States: data From a real-world study	Hereditary angioedema		AAAAI, 2023
Disease burden and physician-reported outcomes in pediatric patients with hereditary angioedema: data From a real-world study	Hereditary angioedema		AAAAI, 2023
Treatment management of type two diabetes mellitus patients in routine clinical practice in the United Arab Emirates: a real world study	Diabetes		EDEC, 2023
Demographics and clinical characteristics of patients with type two diabetes mellitus in the United Arab Emirates: a real-world study	Diabetes		EDEC, 2023
Treatment patterns, healthcare utilization and clinical outcomes of patients with chronic obstructive pulmonary disease initiating single-inhaler long-acting β2-agonist/long-acting muscarinic antagonist dual therapy in primary care in England	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/36908830/	N/A
The burden of Fabry disease in the United States: Results from the Adelphi Fabry disease specific programme	Fabry disease		WORLDSymposium, 2023
Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience?	Mesothelioma	https://pubmed.ncbi.nlm.nih.gov/37097405/	N/A
Quantifying the burden of persistent musculoskeletal pain in employees at Rolls-Royce in the United Kingdom: a real-world cross-sectional survey	Musculoskeletal pain	https://pubmed.ncbi.nlm.nih.gov/36977358/	N/A
Symptom burden of patients with IgA nephropathy in a real-world setting across geographies	Immunoglobulin A nephropathy		WCNeph, 2023
Prognosis, dialysis and transplantation in patients with immunoglobulin A nephropathy: evidence from real-world data	Immunoglobulin A nephropathy		WCNeph, 2023
Persistence of signs and symptoms in treated patients with IgAN: evidence from real-world data	Immunoglobulin A nephropathy		WCNeph, 2023
Racial health disparities in Black people with Alzheimer’s disease: evidence of diagnosis at a later stage	Dementia		AMCP, 2023
The patient-reported impact of itch and sleep interference on pediatric and adolescent patients with moderate and severe atopic dermatitis: a real-world study in the United States and Europe	Atopic dermatitis		AAD, 2023
Impact of immunoglobulin A nephropathy on healthcare resource utilization in the United States: results from a real-world study	Immunoglobulin A nephropathy		AMCP, 2023
Disease severity and symptom control in patients with IgA nephropathy: results from a United States analysis of a real-world study	Immunoglobulin A nephropathy		AMCP, 2023
Treatment patterns and outcomes in patients with immunoglobulin A nephropathy: results from a United States data analysis of a real-world study	Immunoglobulin A nephropathy		AMCP, 2023
Impact of immunoglobulin A nephropathy on work, productivity, and activity impairment in the United States: results from a real-world study	Immunoglobulin A nephropathy		AMCP, 2023
The impact of remission on healthcare resource utilisation and costs amongst patients with inflammatory bowel disease in France, Germany, Italy, Spain, and the United Kingdom	Inflammatory Bowel Disease		ECCO, 2023
Association of uncontrolled disease with quality of life and healthcare resource utilisation in ulcerative colitis patients treated with advanced therapy in the United States	Inflammatory Bowel Disease		ECCO, 2023
Investigating the symptom burden among European patients with moderate-to-severe Crohn’s disease using a real-world survey	Inflammatory Bowel Disease		ECCO, 2023
Time from amyotrophic lateral sclerosis onset to key disease milestones: analysis of patient data from a real-world cross-sectional survey	Amyotrophic lateral sclerosis		MDA, 2023
Treatment patterns of patients with alopecia areata based on physician assessed severity: results from a real-world survey in 5 European countries	Alopecia areata		EDS, 2023
Development of a cross-walk of the chronic liver disease questionnaire for nonalcoholic steatohepatitis (CLDQ-NASH) and EuroQol Five Dimension (EQ-5D-5L) scores using data from patients with nonalcoholic steatohepatitis	Non‐alcoholic steatohepatitis		AMCP, 2023
Patient burden of nonsegmental vitiligo: perspectives from US patients	Vitiligo		GVF, 2023
Comparative effectiveness of umeclidinium/vilanterol versus inhaled corticosteroid/long-acting β2-agonist in patients with chronic obstructive pulmonary disease in a primary care setting in England	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/37155496/	N/A
Opioids for osteoarthritis: cross-sectional survey of patient perspectives and satisfaction	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/37048816/	N/A
Immunoglobulin A nephropathy patient reported health utility and quality of life: evidence from US real-world data	Immunoglobulin A nephropathy		NKF SCM, 2023
Evaluation of prompt initiation of triple inhaler therapy on exacerbations and healthcare resource use among patients with COPD in Japan	Chronic obstructive pulmonary disease		JRS, 2023
The impact of generalized myasthenia gravis severity on work and daily activities: a real world study	Myasthenia gravis		AAN, 2023
Treatment patterns in congenital heart disease associated pulmonary arterial hypertension: results from a real-world PAH-CHD study in the United States.	Pulmonary arterial hypertension		ISHLT, 2023
Patient-gastroenterologist disconnect on remission status and symptom burden in ulcerative colitis patients in the United States, France, Germany, Italy, and Spain	Inflammatory Bowel Disease		DDW, 2023
Burden of flares in patients with ulcerative colitis in the United States – a real-world study	Inflammatory Bowel Disease		DDW, 2023
Treatment satisfaction among ulcerative colitis patients with and without bowel urgency – a global real-world analysis	Inflammatory Bowel Disease		DDW, 2023
Diagnosing celiac disease in the United States of America, Germany, Italy and Spain: findings from a real-world survey	Celiac disease		DDW, 2023
Physician management of celiac disease: a comparison of disease knowledge, diagnosis, and patient management between gastroenterologists and primary care physicians in Germany, Italy, Spain, and the United States - findings from a real world survey	Celiac disease		DDW, 2023
Antibiotic use and economic burden of varicella infection among pediatric patients: a retrospective cohort analysis of real-world data in France	Varicella		ESPID, 2023
Healthcare resource utilisation and costs associated with acute COVID in pediatric patients managed in the community or hospital setting in England: a population-based study	Covid-19		ESPID, 2023
Describing renal function test use in real-world diagnosis and monitoring of lupus nephritis patients in Europe	Lupus nephritis		EULAR, 2023
Disease burden and unmet need in patients with systemic lupus erythematosus treated with advanced therapy: results from a real-world survey in Europe and the United States	Systemic lupus erythematosus		EULAR, 2023
Understanding the impact of HAE attacks on patient reported quality-of-life - analysis of real-world patient data	Hereditary angioedema		C1IDAW, 2023
Menopausal symptom burden and quality of life in women with breast cancer on endocrine adjuvant therapy: findings from the REALISE study	Vasomotor symptoms		EMAS, 2023
Menopause management: real-world analysis of treatment patterns by vasomotor symptom severity and concomitant symptoms from the US and Europe	Vasomotor symptoms		EMAS, 2023
Recognition gap between patient and physician on disease severity and treatment satisfaction level for alopecia areata	Alopecia areata		ISID, 2023
Real-world weight loss patterns and challenges among people living with obesity in Canada	Obesity		COS, 2023
Drivers of physician decision-making and patient perspectives across lines of therapy in multiple myeloma in the US	Multiple myeloma	https://pubmed.ncbi.nlm.nih.gov/37283044/	N/A
Impact of fragility fractures on activities of daily living and productivity of community-dwelling women: a multi‑national study	Osteoporosis	https://pubmed.ncbi.nlm.nih.gov/37335332/	N/A
Physician- and patient-reported perspectives on myasthenia gravis in Europe: a real-world survey	Myasthenia gravis	https://pubmed.ncbi.nlm.nih.gov/37386469/	N/A
Real-world clinical profile, treatment patterns and patient-reported outcomes for thyroid cancer in Japan	Thyroid cancer	https://pubmed.ncbi.nlm.nih.gov/37278236/	N/A
Real‑world patient‑reported outcomes and concordance between patient and physician reporting of side effects across lines of therapy in multiple myeloma within the USA	Multiple myeloma	https://pubmed.ncbi.nlm.nih.gov/37268868/	N/A
Suboptimal clinical and quality of life outcomes in patients with psoriasis undertreated with oral therapies: international physician and patient survey	Psoriasis	https://pubmed.ncbi.nlm.nih.gov/37253874/	N/A
Clinical characteristics and disease outcomes in previously treated patients with haemophilia: results from a real-world study in Europe and United States	Hemophilia		ISTH, 2023
Clinical characteristics of patients with lupus nephritis class III-V: analysis of international real-world data	Lupus nephritis		ERA, 2023
Clinical effectiveness, treatment use, satisfaction and impact on quality-of-life of pegcetacoplan treatment for patients with paroxysmal nocturnal haemoglobinuria (PNH)	Paroxysmal nocturnal hemoglobinuria		EHA, 2023
Prevalence of clinically significant extravascular hemolysis in stable c5 inhibitor-treated patients with PNH and its association with disease control, quality of life and treatment satisfaction	Paroxysmal nocturnal hemoglobinuria		EHA, 2023
Physician attitudes towards the use of pre-exposure prophylaxis (PrEP): findings from a real-world survey in Europe	Pre-exposure prophylaxis		AIDSImpact, 2023
Real-world signs and symptoms at diagnosis in patients with C3 glomerulopathy - interim results from a multi-country study	C3 glomerulopathy		ERA, 2023
C3 glomerulopathy current therapy and real-world management - interim results from a multi-country study	C3 glomerulopathy		ERA, 2023
Lennox-Gastaut Syndrome characteristics: interim results from a European real-world point-in-time study	Lennox-Gastaut syndrome		EPNS, 2023
Immunoglobulin A nephropathy: patient-reported symptoms prior to first consultation and diagnosis - results from a real-world survey	Immunoglobulin A nephropathy		ERA, 2023
The diagnostic journey of patients with Immunoglobulin A nephropathy: data analysis of a real-world survey	Immunoglobulin A nephropathy		ERA, 2023
IgA nephropathy: a real-world comparison between disease severity, symptom burden, and treatment satisfaction reported by patients and nephrologists	Immunoglobulin A nephropathy		ERA, 2023
Symptom control with currently available Immunoglobulin A nephropathy treatment: results from a real-world survey in eight countries	Immunoglobulin A nephropathy		ERA, 2023
Clinical outcomes and quality of life in patients with HAE receiving lanadelumab long-term prophylaxis: interim analysis of 3-year real-world data	Hereditary angioedema		EAACI, 2023
Patients with moderate-to-severe atopic dermatitis experience heterogeneous disease course phenotypes: results of a real-world study in the United States	Atopic dermatitis		FCDC, 2023
The impact of hepatitis D virus infection on health-related quality of life and fatigue in patients untreated for HDV: descriptive results from a cross-sectional study across Italy, Germany, Spain and the US	Hepatitis D virus		EASL, 2023
Qualitative interviews to assess the impact of chronic hepatitis delta virus infection on health-related quality of life in untreated patients from the US, Italy, Spain, and Germany	Hepatitis D virus		EASL, 2023
Key treatment attributes for moderate-to-severe atopic dermatitis: preference results for patients and APPs from a US real-world, cross-sectional study	Atopic dermatitis		Maui Derm, 2023
Treatment patterns and outcomes of patients with metastatic non-small cell lung cancer in five European countries: a real-world evidence survey	Non-small cell lung cancer	https://pubmed.ncbi.nlm.nih.gov/37386452/	N/A
Real-world effectiveness of lenvatinib monotherapy in radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) patients with confirmed BRAF mutationstatus	Thyroid cancer		WCTC, 2023
Treatment patterns and clinical outcomes of newly diagnosed early-stage and locally advanced triple negative breast cancer (TNBC): a retrospective cohort analysis of national real-world data in England	Breast cancer		ASCO, 2023
Real world characteristics, symptom burden and treatment patterns of anaemia of CKD in Egypt, Saudi Arabia, South Africa and Turkey	Chronic kidney disease		ERA, 2023
Treatment patterns and clinical outcomes of newly diagnosed locally advanced head and neck squamous cell carcinoma (LA HNSCC): a retrospective cohort analysis of national real-world data in England.	Head and neck cancer		ASCO, 2023
Assessment of joint health in patients receiving prophylaxis for haemophilia A in five European countries: a cross sectional survey	Hemophilia		EHA, 2023
Clinical burden of hidradenitis suppurativa with draining tunnels	Hidradenitis suppurativa		Maui Derm, 2023
Impact of draining tunnels on patient- and physician-reported burden in patients with hidradenitis suppurativa	Hidradenitis suppurativa		Maui Derm, 2023
Patient characteristics, disease profile and treatment patterns in mild and moderate psoriasis patients in real world practices (prospect study)	Psoriasis		Maui Derm, 2023
Gaps in the assessment and monitoring of cardiovascular risk and psychological burden in polycythemia vera: landmark 2.0, a worldwide health survey	Polycythemia vera		EHA, 2023
Treatment patterns and clinical outcomes of newly diagnosed early-stage and locally advanced triple negative breast cancer (TNBC): a retrospective cohort analysis of national real-world data in England.	Breast cancer		ASCO, 2023
The impact of surgery on patients with VHL-associated tumors: An international patient survey	Von Hippel-Lindau syndrome		ASCO, 2023
Comparison of rescue medication prescriptions in patients with chronic obstructive pulmonary disease receiving umeclidinium/vilanterol versus tiotropium bromide/olodaterol in routine clinical practice in England	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/37465818/	N/A
Economic burden of alopecia areata: a study of direct and indirect cost in Japan using real-world data	Alopecia areata	https://pubmed.ncbi.nlm.nih.gov/37435720/	N/A
Healthcare resource utilization and device-aided therapy discussions with eligible patients across the Parkinson’s disease continuum: revelations from the MANAGE-PD validation cohort	Parkinson’s disease	https://pubmed.ncbi.nlm.nih.gov/37563079/#:~:text=Conclusion%3A%20MANAGE%2DPD%20category%203,device%2Daided%20therapies%20with%20providers.	N/A
Patient characteristics, testing and treatment patterns, and outcomes in EGFR-mutated advanced non-small cell lung cancer: a multinational, real-world study	Non-small cell lung cancer	https://pubmed.ncbi.nlm.nih.gov/37221352/	N/A
Time from ALS symptom onset to key disease milestones for slow, intermediate, and fast progressors: a real-world cross-sectional survey	Amyotrophic lateral sclerosis		ENCALS, 2023
Fatigue among generalised myasthenia gravis patients: real-world data from physicians and patients across five European countries	Myasthenia gravis		EAN, 2023
Early-onset generalised myasthenia gravis in women aged 18-50: results from a real-world study in five European countries.	Myasthenia gravis		EAN, 2023
The generalized myasthenia gravis (gMG) diagnostic journey and treatment initiation: European and US real-world perspectives from physician and patient surveys	Myasthenia gravis		EAN, 2023
Disease burden and physician-reported outcomes in pediatric patients with hereditary angioedema: data from a real-world study	Hereditary angioedema		HAEA, 2023
Unmet clinical needs, burden of disease and treatment patterns in hidradenitis suppurativa: real-world experience from Spain	Hidradenitis suppurativa	https://onlinelibrary.wiley.com/doi/full/10.1002/jvc2.237	N/A
Unmet needs in real-world advanced therapy-naïve and -experienced patients with moderately to severely active ulcerative colitis in the United States	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/37458875/	N/A
Treatment patterns and criteria used to determine platinum eligibility in metastatic urothelial cancer: a real-world survey in Australia	Metastatic urothelial cancer		ANZUP, 2023
Understanding the burden of disease on the caregiver of pediatric and adolescent patients with moderate-to-severe atopic dermatitis: a real-world study in US and Europe	Atopic dermatitis		WCD, 2023
Health economic impact of moderate-to-severe chronic pain associated with osteoarthritis in England: a retrospective analysis of linked primary and secondary care data	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/37438077/	N/A
Clinical characteristics and treatment patterns of patients with episodic cluster headache: results from the United States, United Kingdom and Germany	Migraine	https://www.tandfonline.com/doi/full/10.1080/03007995.2023.2237741#:~:text=During%20their%20current%20or%20most,%2C%20120%2F328%3B%20Germany%2C	N/A
Clinical profiles and outcomes in patients with ulcerative colitis receiving standard and higher-than-standard doses of vedolizumab: findings from a real-world study in Europe	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/37545338/	N/A
Healthcare resource utilization at different stages of amyotrophic lateral sclerosis: results from a real-world survey	Amyotrophic lateral sclerosis	https://www.jns-journal.com/article/S0022-510X(23)00225-3/fulltext	N/A
Clinician perceptions and reasons for non-use of guideline-directed medical therapy for heart failure with reduced ejection fraction in the United States	Chronic heart failure		ESC, 2023
The impact of wearing ‘OFF’ (WO) episodes on non-motor symptoms (NMS) burden and quality of life (QoL) in Parkinson’s disease (PD) patients	Parkinson’s disease		ICPDMD (MDS), 2023
A description of alopecia areata in European patients based on real-world survey data: physician-reported characterization of severity and associated treatment utilization	Alopecia areata		N/A
Obesity-related complications, healthcare resource use and weight loss strategies in six European countries: the RESOURCE survey	Obesity	https://pubmed.ncbi.nlm.nih.gov/37258646/	N/A
Prescription medication use in chronic idiopathic constipation in the USA from the healthcare professional perspective: a retrospective observational study	Chronic idiopathic constipation		ANMS, 2023
Management of chronic idiopathic constipation in US patients from the healthcare professional perspective: a retrospective observational study	Chronic idiopathic constipation		ANMS, 2023
Benefit of prompt initiation of single-inhaler fluticasone furoate, umeclidinium, and vilanterol (FF/UMEC/VI) in patients with COPD in England following an exacerbation – a retrospective cohort study	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/37749551/	N/A
Comparative effectiveness of umeclidinium/vilanterol versus indacaterol/glycopyrronium on moderate-to-severe exacerbations in patients with chronic obstructive pulmonary disease in clinical practice in England	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/37731774/	N/A
Rectal urgency among patients with ulcerative colitis or Crohn’s disease: analyses from a global survey	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/37928613/	N/A
Validation of an EMR derived algorithm to identify moderate asthma exacerbations in the UK	Asthma		ERS, 2023
Characteristics and treatment pathways of COPD patients initiating single-inhaler dual or triple therapy in England	Chronic obstructive pulmonary disease		ERS, 2023
Adherence to single and multiple inhaler triple therapies among patients with COPD in the real world in Japan	Chronic obstructive pulmonary disease		ERS, 2023
Persistence to inhaled long-acting maintenance therapy in patients with COPD in UK routine clinical practice	Chronic obstructive pulmonary disease		ERS, 2023
Healthcare resource utilisation in Lennox-Gastaut syndrome: interim results from a European real-world point-in-time study	Lennox-Gastaut syndrome		IEC, 2023
Work, productivity, and activity impairment in patients with immunoglobulin A nephropathy: results from a real-world study	Immunoglobulin A nephropathy		IIGANN, 2023
Diagnostic pathways in immunoglobulin A nephropathy in Japan: results from a real-world study	Immunoglobulin A nephropathy		IIGANN, 2023
IgA nephropathy: a real-world comparison between disease severity, symptom burden, and treatment satisfaction reported by patients and nephrologists	Immunoglobulin A nephropathy		IIGANN, 2023
Characteristics of patients with asthma in China by blood eosinophil level	Asthma		ERS, 2023
Characteristics of patients with asthma on GINA 4/5 therapies in China	Asthma		ERS, 2023
Systemic therapy for patients with atopic dermatitis results in increased advanced practice provider disease control satisfaction and decreased frequency of flares: a real-world study	Atopic dermatitis		Maui Derm, 2023
Diagnosing pulmonary arterial hypertension in the Real World	Pulmonary arterial hypertension		ERS, 2023
Health related quality of life in pulmonary arterial hypertension in the US, Europe, and Japan	Pulmonary arterial hypertension		ERS, 2023
Concordance between physician and patient reported presence of symptoms in patients with pulmonary arterial hypertension in the US, Europe and Japan	Pulmonary arterial hypertension		ERS, 2023
Patient characteristics and burden in lenalidomide refractory multiple myeloma patients in Europe: a real-world survey	Multiple myeloma		IMYS, 2023
Real-world treatment patterns and outcomes in lenalidomide refractory multiple myeloma patients in Europe: a real-world survey	Multiple myeloma		IMYS, 2023
What do women with breast cancer take for menopause symptoms? A real-world analysis of treatment utilization from the US and Europe	Menopause		NAMs, 2023
Analysis of the impact, patterns of care, and perspectives of patients and physicians about moderate-to-severe menopausal vasomotor symptoms in Spain	Vasomotor symptoms	https://www.elsevier.es/en-revista-clinica-e-investigacion-ginecologia-obstetricia-7-resumen-evaluacion-del-impacto-patrones-tratamiento-S0210573X23000527	N/A
Cross-walk of the Chronic Liver Disease Questionnaire for Nonalcoholic Steatohepatitis (CLDQ-NASH) and the EuroQol EQ-5D-5L in patients with NASH	Non‐alcoholic steatohepatitis	https://pubmed.ncbi.nlm.nih.gov/37838660/	N/A
Misdiagnosis of amyotrophic lateral sclerosis in clinical practice in Europe and the USA: a patient chart review and physician survey	Amyotrophic lateral sclerosis	https://pubmed.ncbi.nlm.nih.gov/37794794/	N/A
The clinical and economic burden of antibiotic use in pediatric patients with varicella Infection: a retrospective cohort analysis of real-world data in England	Varicella	https://pubmed.ncbi.nlm.nih.gov/37795662	N/A
Treatment for vasomotor symptoms in women on adjuvant endocrine therapy after breast cancer: real-world findings from the REALISE study	Vasomotor symptoms		ESMO, 2023
Presence of mental health concerns is associated with poor adherence in people taking pre-exposure prophylaxis in real-world clinical practice in the United States	Pre-exposure prophylaxis		IDWeek, 2023
Adherence to antiretroviral therapy and its effect on quality of life among persons with HIV in the United States using real-world data	HIV		IDWeek, 2023
Factors driving decisions in the use of HIV pre-exposure prophylaxis: data from a real-world study in the United States	Pre-exposure prophylaxis		IDWeek, 2023
Healthcare resource utilisation and treatment usage among flaring and non-flaring patients with ulcerative colitis - a real-world global study	Inflammatory Bowel Disease		UEGW, 2023
Patient-reported adherence: differences by education, employment and socioeconomic status from three cross-sectional studies in Germany	Various		ISOQOL, 2023
Patient-reported cost-driven adherence: differences by ethnicity and socioeconomic status from seven cross-sectional studies in the United States	Various		ISOQOL, 2023
Healthcare resource utilisation and treatment usage among flaring and non-flaring patients with ulcerative colitis - a real-world global study	Inflammatory Bowel Disease		ACG, 2023
Burden of illness among Japanese paroxysmal nocturnal hemoglobinuria patients: a real-world study	Paroxysmal nocturnal hemoglobinuria		JSH, 2023
Disease control and physician satisfaction with ruxolitinib cream in US adults with mild to moderate atopic dermatitis	Atopic dermatitis		AMCP Nexus, 2023
The diagnostic journey of patients with mild cognitive impairment or Alzheimer’s disease dementia, and challenges associated with timely diagnosis: results from a real-world survey in the United States	Dementia		AMCP Nexus, 2023
Prevalence of misdiagnosis and time to diagnosis amongst NMOSD and MOGAD patients	Various		ECTRIMS, 2023
Drivers of discontinuation of oral PrEP within Europe: findings from a real-world survey of PrEP use	Pre-exposure prophylaxis		EACS, 2023
Drivers of satisfaction and health-related quality of life of people living with HIV within Europe: Findings from a real-world survey of people living with HIV	HIV		EACS, 2023
Clinical burden of hidradenitis suppurativa with draining tunnels	Hidradenitis suppurativa		EADV, 2023
Clinical burden of hidradenitis suppurativa with draining tunnels	Hidradenitis suppurativa		SHSA, 2023
Impact of draining tunnels on patient- and physician-reported burden in patients with hidradenitis suppurativa	Hidradenitis suppurativa		SHSA, 2023
Burden of bowel urgency among pediatric patients with ulcerative colitis: results from a physician and patient survey	Ulcerative colitis		ACG, 2023
Profili clinici dei pazienti affetti da colite ulcerosa che ricevono dosi standard e intensificate di targeted therapies in Italia: risultati da uno studio real-world	Ulcerative colitis		SIFO, 2023
Patient characteristics, disease profile and treatment patterns in mild and moderate psoriasis patients in real world practices (prospect study)	Psoriasis		AMCP Nexus, 2023
Patient characteristics, disease profile and treatment patterns in mild and moderate psoriasis patients in real world practices (prospect study)	Psoriasis		FCDC, 2023
Real-world analysis of treatment patterns and platinum-based treatment eligibility of patients with metastatic urothelial cancer in 5 European countries	Urothelial carcinoma	https://pubmed.ncbi.nlm.nih.gov/37945404/	N/A
Real-world treatment patterns, healthcare resource use and disease burden in patients with multiple myeloma in Europe	Multiple myeloma	https://pubmed.ncbi.nlm.nih.gov/37706245/	N/A
Physician- and patient-reported severity and quality of life impact of alopecia areata: results from a real-world survey in five European countries	Alopecia areata	https://pubmed.ncbi.nlm.nih.gov/37889388/	N/A
Virological Suppression in People with HIV-1 (PWH) receiving dolutegravir/lamivudine was high and similar across age groups despite older PWH having increased rates of comorbidities and polypharmacy (TANDEM subgroup analysis)	HIV		IDWeek, 2023
Impact of VHL-associated tumor treatment on mental health: An international patient survey	Von Hippel-Lindau syndrome		ESMO, 2023
The diagnostic journey of patients with mild cognitive impairment and Alzheimer’s disease dementia, and the importance of biomarker testing for timely diagnosis: a real-world survey in Europe	Dementia		ISPOR EU, 2023
Characteristics of progressive myasthenia gravis patients in real world practice in the USA and five European countries	Myasthenia gravis		AANEM, 2023
Real world insights into differing presentation of myasthenia gravis patients on pharmacological treatment in the USA and five European countries	Myasthenia gravis		AANEM, 2023
Impact of lifestyle changes on quality of life in patients with chronic kidney disease: results from a real-world study	Chronic kidney disease		ASN, 2023
Predictors of disease progression in patients with chronic kidney disease: results from a real-world study	Chronic kidney disease		ASN, 2023
Signs and symptoms at diagnosis in patients with C3 glomerulopathy - results from a real-world multi-country study	C3 glomerulopathy		ASN, 2023
Real-world time to diagnosis in C3G	C3 glomerulopathy		ASN, 2023
C3 glomerulopathy current treatment options and real-world management - results from a multi-country study	C3 glomerulopathy		ASN, 2023
Persistence of signs and symptoms in treated patients with C3G: evidence from real-world data	C3 glomerulopathy		ASN, 2023
Treatment satisfaction with ravulizumab in patients with atypical hemolytic uremic syndrome in a real-world setting	Atypical hemolytic uremic syndrome		ASN, 2023
Ravulizumab is associated with positive clinical and quality of life outcomes in patients with atypical hemolytic uremic syndrome in a real-world setting	Atypical hemolytic uremic syndrome		ASN, 2023
The Impact of duchenne muscular dystrophy on caregiver employment: a survey in Europe, Japan, and the United States	Duchenne muscular dystrophy		ISPOR EU, 2023
Characteristics of individuals living with obesity in Germany, weight-loss methods attempted and healthcare resource use over a 12-month period	Obesity		ISPOR EU, 2023
Demographics of patients and societal burden of obstructive hypertrophic cardiomyopathy: results from a real-world survey in Italy and Spain	Obstructive hypertrophic cardiomyopathy		ISPOR EU, 2023
Healthcare resource utilization for pediatric and adolescent duchenne muscular dystrophy patients: analysis of real-world data	Duchenne muscular dystrophy		ISPOR EU, 2023
Humanistic burden of paroxysmal nocturnal hemoglobinuria from the patient perspective: results from a cross-sectional study	Paroxysmal nocturnal hemoglobinuria		ISPOR EU, 2023
Impact of paroxysmal nocturnal haemoglobinuria on employment and activity: results from a real-world study	Paroxysmal nocturnal hemoglobinuria		ISPOR EU, 2023
EQ-5D utilities for patients with nonalcoholic steatohepatitis (NASH): a comparison of historical utilities to a recent real-world multi-country patient survey	Non‐alcoholic steatohepatitis		ISPOR EU, 2023
Impact of obesity on health-related quality of life, sleep, and work – a multinational survey	Obesity		ISPOR EU, 2023
Impact and management of comorbidities in people with obesity: a multinational survey	Obesity		ISPOR EU, 2023
Impact of amyotrophic lateral sclerosis on work and daily living: results from a real-world survey	Amyotrophic lateral sclerosis		ISPOR EU, 2023
Healthcare resource utilization (HCRU), quality of life (QoL), and employment changes for early, middle and late-stage people with amyotrophic lateral sclerosis (pALS) in Italy: results from a real-world survey	Amyotrophic lateral sclerosis		ISPOR EU, 2023
Physician reported reasons for CIDP treatment choice across 5 european countries: results from a real-world survey	Chronic inflammatory demyelinating polyneuropathy		ISPOR EU, 2023
Deriving caregiver health utilities from patient endpoints: a predictive modelling approach using real-world survey data	Various		ISPOR EU, 2023
Understanding the reasons not to treat all HAE attacks and satisfaction for on-demand treatment: physician-and patient-reported data	Hereditary angioedema		ACAAI, 2023
Changing priorities among physician reported reasons for choice of pharmacological generalized myasthenia gravis treatments across five European countries	Myasthenia gravis		AANEM, 2023
Delayed diagnosis amongst generalized myasthenia gravis patients: results from a European real world study	Myasthenia gravis		AANEM, 2023
The generalized myasthenia gravis (gMG) diagnostic journey and treatment initiation: European and US real-world perspectives from physician and patient surveys	Myasthenia gravis		AANEM, 2023
Impact of up to 24 months intravenous (IV) belimumab (BEL) treatment on steroid use and disease activity in patients with SLE in clinical practice: additional post hoc pooled analysis of multicountry OBSErve cohort data	Systemic lupus erythematosus		ACR, 2023
Assessing the impact of relapses on patient outcomes in neuromyelitis optica spectrum disorder	Neuromyelitis optica spectrum disorder		ISPOR EU, 2023
Assessing the impact of relapses on burden to the patient and caregiver in neuromyelitis optica spectrum disorder	Neuromyelitis optica spectrum disorder		ISPOR EU, 2023
Treatment satisfaction and health-related quality of life in people living with HIV receiving DTG/3TC who are treatment experienced or treatment naive in Europe	HIV		ISPOR EU, 2023
COVID-19 related work absenteeism and Its associated lost productivity cost in Germany: a population-based study	Covid-19		ISPOR EU, 2023
Impact of haemophilia severity on healthcare resource usage: results from a multinational real-world survey	Hemophilia		ISPOR EU, 2023
Impact of bleeds on the quality of life of patients with haemophilia: results from a multinational real-world survey	Hemophilia		ISPOR EU, 2023
The Adelphi Adherence Questionnaire (ADAQ©): psychometric validation of a new patient self-report measure of medication adherence across multiple disease areas	Various		ISPOR EU, 2023
Patient characteristics and treatment patterns in patients with mantle cell lymphoma in Spain: a real-world, cross-sectional study	Mantle cell lymphoma		ISPOR EU, 2023
Treatment patterns and adverse even in patients with chronic lymphocytic leukemia/small lymphocytic lymphoma in France, Italy, and the United Kingdom	Chronic lymphocytic leukemia		ISPOR EU, 2023
Physician-reported treatment attributes considered in first-line or later-line settings and perceptions around BTKi treatment in CLL/SLL in the United States	Chronic lymphocytic leukemia		ISPOR EU, 2023
Drivers of physicians’ treatment decision-making and future treatment expectations: analysis of the Adelphi real-world ovarian cancer II disease specific programme (DSPTM)	Ovarian cancer		ISPOR EU, 2023
Understanding physicians’ decision-making practices related to biomarker testing: analysis of the Adelphi real-world ovarian cancer II disease specific programme (DSPTM)	Ovarian cancer		ISPOR EU, 2023
Association between health-related quality of life and requirement for non-professional care in adults with rare diseases: a real-world study	Various		ISPOR EU, 2023
Treatment of IgA Nephropathy in Chinese Patients: Evidence from Real-World Data	Immunoglobulin A nephropathy		ASN, 2023
Association of a treat-to-target management approach with physician and patient-reported outcomes among real-world patients with rheumatoid arthritis receiving advanced therapy in Europe	Rheumatoid arthritis		ACR, 2023
Real-world rearranged during transfection [RET]-alteration testing and treatment patterns of patients with medullary and papillary thyroid cancer [MTC, PTC] in Australia	Thyroid cancer		COSA, 2023
Treatment patterns and drivers of biologic prescriptions in patients with primary sjögren's disease: results from a multinational, real-world survey	Sjogren's syndrome		ACR, 2023
Disease burden of patients with sjögren’s disease: results from a multinational real-world survey	Sjogren's syndrome		ACR, 2023
Effectiveness of esketamine as a treatment for depression: a real-world survey of disease improvement	Depression		NEI, 2023
Chronic low back pain with and without concomitant osteoarthritis: a retrospective, longitudinal cohort study of patients in England	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/37221352/	N/A
Real world characteristics, symptom burden and treatment patterns of anaemia of CKD in Egypt, Saudi Arabia, South Africa and Turkey	Chronic kidney disease		SATS, 2023
Real world characteristics, symptom burden and treatment patterns of anaemia of CKD in Egypt, Saudi Arabia, South Africa and Turkey	Chronic kidney disease		ACPN, 2023
Clinical profiles and outcomes in patients with inflammatory bowel disease receiving standard and escalated doses of targeted therapies: findings from a global real-world study	Inflammatory Bowel Disease	https://pubmed.ncbi.nlm.nih.gov/37927078	N/A
Estimating the cost and epidemiology of mild to severe chronic pain associated with osteoarthritis in England: a retrospective analysis of linked primary and secondary care data	Osteoarthritis	https://pubmed.ncbi.nlm.nih.gov/38030255/	N/A
A real world study of cough burden and quality of life of UK patients who have undergone evaluation for chronic cough	Chronic Cough	https://www.tandfonline.com/doi/full/10.1080/03007995.2023.2284371?scroll=top&needAccess=true	N/A
Treatment patterns and criteria used to determine platinum eligibility in metastatic urothelial cancer: a real-world survey in Australia	Metastatic urothelial cancer		COSA, 2023
Real-world evidence generation from patients, their caregivers and physicians supporting clinical, regulatory and guideline decisions: an update on Disease Specific Programmes	Methodology	https://pubmed.ncbi.nlm.nih.gov/37933204/	N/A
The need for caregiver support in patients with hepatitis D virus infection: descriptive results from a real world survey in Germany, Italy, Spain and the United States of America	Hepatitis D virus		AASLD, 2023
Patient-reported outcomes in a real-world study of anemia of chronic kidney disease in the Middle East and Africa	Chronic kidney disease		ASN, 2023
Virological suppression in people living with HIV-1 (PLWH) receiving dolutegravir/lamivudine was high and similar across age groups despite older PLWH having increased rates of comorbidities and polypharmacy (TANDEM subgroup analysis)	HIV		ACCP, 2023
Real-world outcomes in patients with HAE receiving lanadelumab long-term prophylaxis for 3 years or longer	Hereditary angioedema		ACAAI, 2023
Real-world quality of life in patients with HAE receiving lanadelumab or other long-term prophylaxis	Hereditary angioedema		ACAAI, 2023
Physician-reported detection and challenges of timely diagnosis of MCI and AD dementia in Japan	Dementia		JSDR, 2023
Impact of obesity on individuals in the Kingdom of Saudi Arabia: a real-world patient and physician survey	Obesity		DeepDive , 2023
Healthcare resource utilisation and costs of hospitalisation and primary care among adults with COVID-19 in England: a population-based cohort study	Covid-19	https://bmjopen.bmj.com/content/13/12/e075495	N/A
Treatment patterns and outcomes among patients with Lennox-Gastaut Syndrome from real-world clinical practice settings across the USA, Europe, and Asia	Lennox-Gastaut syndrome		AES, 2023
Real world treatment patterns and outcomes among patients with Dravet syndrome	Dravet syndrome		AES, 2023
Real-world clinical burden of non-seizure symptoms on patients with Dravet or Lennox-Gastaut Syndromes: results from a global multinational survey	Various		AES, 2023
Investigating geographical differences in time from ALS symptom onset to key disease milestones: data from a real-world survey	Amyotrophic lateral sclerosis		ALS/MND, 2023
Benefit of prompt vs delayed initiation of triple therapy following an exacerbation in patients with COPD in Japan: a retrospective cohort study	Chronic obstructive pulmonary disease	https://pubmed.ncbi.nlm.nih.gov/38089540/	N/A
Time from amyotrophic lateral sclerosis symptom onset to key disease milestones: analysis of data from a real-world, cross-sectional survey	Amyotrophic lateral sclerosis	https://www.tandfonline.com/doi/full/10.1080/21678421.2023.2297795	N/A
Real-world treatment patterns and clinical outcomes in patients with radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) treated with first line Lenvatinib monotherapy in the United States	Thyroid cancer	https://pubmed.ncbi.nlm.nih.gov/38102498/	N/A
Burden of cycling through ineffective treatments and the impact on healthcare resource utilization: a real-world study in Europe	Crohn's disease		AIBD, 2023
Remission status and reasons for treatment switching in patients with Crohn’s disease by treatment line: a real-world study in Europe and the United States of America	Crohn's disease		AIBD, 2023
Physician perceptions of clinical endpoints and future treatments and dynamics: analysis of the Adelphi Real-World Non-Muscle Invasive Bladder Cancer (NMIBC) Disease specific programme (DSP™)	Bladder cancer		AUA, 2023
Passive flow: a real-world US study characterizing the Fontan patient with elevated pulmonary vascular resistance	Pulmonary arterial hypertension		WCPCCS, 2023
Lost in transition: pulmonary arterial hypertention associated with congenital heart disease (PAH-CHD): real world survey findings in the US	Pulmonary arterial hypertension		WCPCCS, 2023
Real-World use of tyrosine kinase inhibitors (TKI) in epidermal growth factor receptor mutated (EGFRm) advanced non-small cell lung cancer (NSCLC) in nine countries	Non-small cell lung cancer		ELCC, 2023
Characteristics of patients with resectable non metastatic non small cell lung cancer treated with or without neoadjuvant therapy in Europe and Canada a real world survey	Non-small cell lung cancer		ELCC, 2023
Healthcare resource utilization and costs associated with acute COVID in adult patients managed in the community or hospital setting in England: a population-based study	Covid-19		ISPOR US, 2023
Patient reported outcomes in psoriasis over time: differences by sex from three cross-sectional, real world studies in the United States	Psoriasis		ISPOR US, 2023
Impact of clinical features on patient reported outcomes and treatment satisfaction in psoriatic arthritis	Psoriatic arthritis		ISPOR US, 2023
Effect of physicians’ prescribing choices of first- or second-line tumor necrosis factor inhibitor biologics versus non-tumor necrosis factor inhibitor biologic therapies on psoriatic arthritis patient-reported outcomes	Psoriatic arthritis		ISPOR US, 2023
Patient and physician satisfaction of treatment with eculizumab or ravulizumab in paroxysmal nocturnal hemoglobinuria: results from a real-world disease-specific programme	Paroxysmal nocturnal hemoglobinuria		ISPOR US, 2023
Real-world differences between people living with HIV receiving B/FTC/TAF and those receiving other single tablet regimens (STR) in the United States	HIV		ISPOR US, 2023
Understanding the real-world clinical effectiveness of pegcetacoplan for the treatment of paroxysmal nocturnal hemoglobinuria (PNH)	Paroxysmal nocturnal hemoglobinuria		ISPOR US, 2023
Persons diagnosed with COVID-19 in the clinical practice research datalink (CPRD) primary care dataset: a cohort description	Covid-19		ISPOR US, 2023
Persons diagnosed with COVID-19 in linked clinical practice research datalink (CPRD) – hospital episode statistics (HES) data: a cohort description	Covid-19		ISPOR US, 2023
Patient and physician concordance in treatment satisfaction and symptom severity among male and female myasthenia gravis patients in the United States and five European countries	Myasthenia gravis		ISPOR US, 2023
Correlation between myasthenia gravis disease severity and impairment of daily living activities of real-world patients in the United States and five European countries	Myasthenia gravis		ISPOR US, 2023
Impact of amyotrophic lateral sclerosis disease progression on health care resource use and health-related quality of life using MiToS staging and ALSFRS-R: analysis of a real-world cross-sectional survey	Amyotrophic lateral sclerosis		ISPOR US, 2023
Differences in healthcare resource utilization for the management of immunoglobulin A nephropathy in Europe, the US, China and Japan	Immunoglobulin A nephropathy		ISPOR US, 2023
Immunoglobulin A nephropathy patient reported health utility and quality of life: evidence from real-world data	Immunoglobulin A nephropathy		ISPOR US, 2023
Work, productivity, and activity impairment in patients with immunoglobulin A nephropathy: results from a real-world study	Immunoglobulin A nephropathy		ISPOR US, 2023
Impact of draining tunnels on patient- and physician-reported burden in patients with hidradenitis suppurativa (HS)	Hidradenitis suppurativa		ISPOR US, 2023
Virological status in people living with HIV-1 (PLWH) was similar across age subgroups despite older PLWH having increased rates of comorbidities and polypharmacy (TANDEM subgroup analysis)	HIV		ISPOR US, 2023
PAIRED - patient reported experiences and perceived benefit of treatment with DOVATO (dolutegravir/lamivudine): interim analysis (n=100)	HIV		ISPOR US, 2023
Healthcare resource utilization in patients with hidradenitis suppurativa in five European Countries and the USA using real world evidence	Hidradenitis suppurativa		ISPOR US, 2023
Real-world rearranged during transfection [RET]-alteration testing, treatment and referral patterns of patients with medullary and papillary thyroid cancer [MTC, PTC] in Taiwan	Thyroid cancer		ISPOR US, 2023
Disease burden, treatment landscape, and health related quality of life outcomes in myasthenia gravis: results from the adelphi real world disease specific programme in the United States and Europe	Myasthenia gravis		ISPOR US, 2023
Real-world outcomes, characteristics and ability to work of patients with treatment-resistant depression in the United States	Depression		ASCP, 2023
Real-world treatment patterns and clinical outcomes in elderly radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) patients treated with lenvatinib monotherapy	Thyroid cancer		ATA, 2023
Patient-reported outcomes and healthcare resource utilization in systemic lupus erythematosus: impact of disease activity	Systemic lupus erythematosus		N/A
Treatment of metastatic urothelial carcinoma in the United Kingdom, France, Germany, Italy, and Spain	Metastatic urothelial cancer		N/A
Real-world experience of adalimumab biosimilar (ABP 501) use in patients with inflammatory bowel disease in Europe	Inflammatory Bowel Disease	https://link.springer.com/article/10.1007/s12325-023-02712-w?utm_source=rct_congratemailt&utm_medium=email&utm_campaign=oa_20231114&utm_content=10.1007/s12325-023-02712-w	N/A
Real world utilisation of doravirine among people living with HIV in England (DRIVE-REAL)	HIV	https://pubmed.ncbi.nlm.nih.gov/37970812/	N/A
Degree of alignment between Japanese patients and physicians on alopecia areata disease severity and treatment satisfaction: a real-world survey	Alopecia areata	https://link.springer.com/article/10.1007/s13555-023-01067-y#citeas	N/A
Health-related quality of life across disease stages in patients with amyotrophic lateral sclerosis: results from a real-world survey	Amyotrophic lateral sclerosis	https://pubmed.ncbi.nlm.nih.gov/38200398/	N/A
Persons diagnosed with COVID-19 in England in the clinical practice research datalink (CPRD): a cohort description	Covid-19	https://pubmed.ncbi.nlm.nih.gov/38216179/#:~:text=Results%3A%20Compared%20with%20national%20estimates,20%25%20primary%20care%20and%2020%25	N/A
Economic burden of Parkinson’s disease: a multinational, real-world cost-of-illness study	Parkinson’s disease	https://link.springer.com/article/10.1007/s40801-023-00410-1	N/A
Social determinants of health, psychosocial burden and quality of life among adolescents in China, India, and South Africa	Vitiligo		Maui Derm, 2024
Social determinants of health, quality of life, and productivity outcomes among adults with vitiligo in Brazil, China, India, and South Africa	Vitiligo		Maui Derm, 2024
Real-world effectiveness of ustekinumab in patients with ulcerative colitis in the United States of America	Ulcerative colitis		CCC, 2024
Real-world clinical profile, RET mutation testing, treatments and patient-related outcomes for medullary thyroid cancer in Europe	Thyroid cancer	https://pubmed.ncbi.nlm.nih.gov/38189657/	N/A
The diagnostic journey of pulmonary arterial hypertension patients: results from a multinational real-world survey	Pulmonary arterial hypertension	https://pubmed.ncbi.nlm.nih.gov/38357903/#:~:text=Patient%2Dreported%20data%20showed%20an,the%20USA%20(15.3%20months)%5D.	N/A
Characteristics and outcomes of patients enrolled in the Connect 360 benralizumab patient support programme in the UK: a retrospective cohort study	Eosinophilic asthma	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10824014/	N/A
Social care data in the UK; current landscape, challenges, and future recommendations	Various	https://www.tandfonline.com/doi/full/10.1080/14737167.2023.2274843	N/A
Treatment pathways, economic burden, and clinical outcomes in new users of inhaled corticosteroid/long-acting β2-agonist dual therapy with chronic obstructive pulmonary disease in a primary care setting in England: a retrospective cohort study	Chronic obstructive pulmonary disease		N/A
Factors associated with chronic spontaneous urticaria diagnostic and treatment delay in real-world clinical practice	Urticaria		AAAAI, 2024
Real-world clinical effectiveness of loncastuximab tesirine monotherapy for the treatment of relapsed/refractory diffuse large B-cell lymphoma following chimeric antigen T cell therapy in the US	Diffuse large B-cell lymphoma		ASTCT and CIBMTR, 2024
Understanding the reasons not to treat all HAE attacks and patient satisfaction for on-demand treatment (ODT). Results From The HAE Wave II Disease Specific Program™ (DSP™) 2023	Hereditary angioedema		AAAAI, 2024
Real-world treatment outcomes in patients with hereditary angioedema receiving lanadelumab or other long-term prophylaxis	Hereditary angioedema		AAAAI, 2024
Physician and patient concordance in the perception of hereditary angioedema attacks and their management: Results from a real-world survey	Hereditary angioedema		AAAAI, 2024
Clinical and economic burden of antibiotic use among pediatric patients with varicella infection in the outpatient setting: a retrospective cohort analysis of real-world data in France	Varicella	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10919277/	N/A
Burden of disease among ulcerative colitis patients with isolated proctitis in the United States and Europe	Ulcerative colitis		ECCO, 2024
Burden of steroid use in patients with moderate ulcertaive colitis in Europe and the United States	Ulcerative colitis		ECCO, 2024
The impact of Myasthenia Gravis severity on work and daily activities	Myasthenia gravis	https://pubmed.ncbi.nlm.nih.gov/38348518/	N/A
Health care resource utilization and costs associated with COVID-19 among pediatrics managed in the community or hospital setting in England: a population-based cohort study	Covid-19	https://journals.lww.com/pidj/fulltext/9900/health_care_resource_utilization_and_costs.672.aspx	N/A
Differences in the perception of systemic sclerosis disease management by sex: real-world findings from a multi-national survey	Systemic sclerosis		SSWC, 2024
Exploring the very early diagnosis of systemic sclerosis (VEDOSS) criteria usage in the real-world: a multinational survey of rheumatologists	Systemic sclerosis		SSWC, 2024
Real-world work productivity losses and associated costs in patients with alopecia areata in the US	Alopecia areata		AAD, 2024
Impact of intravenous belimumab treatment on steroid use and disease activity in patients with systemic lupus erythematosus in the US in clinical practice: 24-month results from the OBSErve study	Systemic lupus erythematosus		ELM, 2024
Real-world treatment patterns & neurologist treatment satisfaction for Duchenne muscular dystrophy patients by ambulatory status in the United States	Duchenne muscular dystrophy		MDA, 2024
Understanding patient reasons not to treat all hereditary angioedema (HAE) attacks and characteristics of untreated HAE attacks: results from a real world survey	Hereditary angioedema		HAEI Americas , 2024
Effectiveness of esketamine as a treatment for depression: a real-world survey of disease improvement	Depression		Psych Congress , 2024
The patient-reported impact of flares on quality of life in pediatric and adolescent patients with moderate-to-severe atopic dermatitis: a real-world study in the United States and Europe	Atopic dermatitis		AAD, 2024
COVID-19-related work absenteeism and associated lost productivity cost in Germany: a population-based study	Covid-19	https://pubmed.ncbi.nlm.nih.gov/38489399/#:~:text=Results%3A%20In%20the%20outpatient%20cohort,743%2C%203%2C394)%2C%20respectively.	N/A
Country differences in physician’s biomarker testing patterns and treatment in advanced ovarian cancer: analysis of the Adelphi Real World Disease Specific Programme (DSP)	Ovarian cancer		ESGO, 2024
Adult patients with ulcerative colitis (UC) in Spain: a real-world survey	Ulcerative colitis		AEG, 2024
Satisfaction with Control of Mild to Moderate Atopic Dermatitis with Ruxolitinib Cream: US Physician and Patient Perspectives	Atopic dermatitis	https://pubmed.ncbi.nlm.nih.gov/38453811/	N/A
The chronic rhinosinusitis with nasal polyp patient journey in the United States and Europe	Chronic rhinosinusitis with nasal polyposis	https://pubmed.ncbi.nlm.nih.gov/38409099/	N/A
Pegcetacoplan in paroxysmal nocturnal haemoglobinuria: its use, its clinical effectiveness, and its influence on health-related quality of life and productivity	Paroxysmal nocturnal hemoglobinuria	https://pubmed.ncbi.nlm.nih.gov/37994576/	N/A
Timing of single inhaler triple therapy (SITT) initiation following an initial asthma exacerbation: Japanese claims database analyses	Asthma		JRS, 2024
Treatment patterns in patients with immunoglobulin a nephropathy - evidence from real-world data	Immunoglobulin A nephropathy		WCNeph, 2024
Real-world analysis of patients with immunoglobulin a nephropathy – diagnosis and disease monitoring	Immunoglobulin A nephropathy		WCNeph, 2024
Treatment goals from the perspective of immunoglobulin a nephropathy patients - results from a real-world study	Immunoglobulin A nephropathy		WCNeph, 2024
Self-reported quality of life in complement 3 glomerulopathy patients delineated by CKD stage: a real-world, multi-country survey	C3 glomerulopathy		WCNeph, 2024
Prevalence and clinical characteristics of kidney transplants in complement 3 glomerulopathy patients: results from a real-world, multi-country survey	C3 glomerulopathy		WCNeph, 2024
Health outcomes stratified by number of adverse events experienced by patients with dravet syndrome: insights from a global real-world study	Dravet syndrome		AAN, 2024
Real world treatment patterns of patients with dravet syndrome (DS) and lennox-gastaut syndrome (LGS) in the United States (US)	Various		AAN, 2024
Treatment patterns, barriers, and associated costs reported by patients with chronic idiopathic constipation in the USA: analysis from a cross-sectional observational study	Chronic idiopathic constipation		AMCP, 2024
Achievement of HbA1c and weight targets in adults with type 2 diabetes (T2D) on once weekly (OW) glucagon-like peptide-1 receptor agonist (GLP-1 RA) therapy in UK primary care	Diabetes		DUKPC, 2024
Achievement of HbA1c and weight targets in adults with type 2 diabetes (T2D) on once weekly (OW) glucagon-like peptide-1 receptor agonist (GLP-1 RA) therapy in UK primary care	Diabetes		DUKPC, 2024
A real-world analysis of treatment adherence and clinical outcomes for patients with paroxysmal nocturnal haemoglobinuria (PNH) receiving pegcetacoplan	Paroxysmal nocturnal hemoglobinuria		EBMT, 2024
Physician versus patient perception of disease, symptomatic burden and preference for treatment administration in paroxysmal nocturnal hemoglobinuria (PNH): results from a real-world study	Paroxysmal nocturnal hemoglobinuria		EBMT, 2024
Clinical outcomes in mild-moderate and severe patients with hemophilia B: results from a real-world, multi-national survey	Hemophilia		THSNA, 2024
Diagnostic journey of MCI/AD Dementia patients, and importance of biomarkers testing: a real-world survey	Dementia		ABN, 2024
Disease Burden and Treatment in Patients With Essential Tremor in the United States: Real-World Evidence From a Cross-Sectional Survey of Physicians and Patients	Tremor		ISPOR US, 2024
Unmet Treatment Needs in the Management of Patients with Eosinophilic Esophagitis: Insights from a Real-world Survey	Eosinophilic Esophagitis		ISPOR US, 2024
Need for Care in Essential Tremor and the Indirect Burden on Care Partners	Tremor		ISPOR US, 2024
Substantial Productivity Impairment in Patients with Essential Tremor	Tremor		ISPOR US, 2024
Drivers of Depression and Anxiety in US Non-Segmental Vitiligo Patients	Non-segmental vitiligo		ISPOR US, 2024
Unmet Treatment Needs in the Management of Patients with Eosinophilic Esophagitis: Insights from a Real-world Survey	Eosinophilic Esophagitis		ISPOR US, 2024
Characterization of physician-reported outcomes of people with HIV switching treatment: findings from a real-world survey in the United States	HIV		ISPOR US, 2024
Clinical Characteristics, Diagnosis, and Impact on Employment in Patients with Obstructive Hypertrophic Cardiomyopathy: Results from a Real-World Survey in Canada	Obstructive Hypertrophic Cardiomyopathy		ISPOR US, 2024
Real-World Treatment Patterns in the Metastatic Hormone-Sensitive Prostate Cancer Setting across Europe	Prostate cancer		ISPOR US, 2024
Homologous Recombination Repair Testing Patterns and Barriers in Metastatic Hormone-Sensitive and Metastatic Castration-Resistant Prostate Cancer across Europe: A Real-World Survey	Prostate cancer		ISPOR US, 2024
Real-World Treatment Patterns in the Metastatic Hormone-Sensitive Prostate Cancer Setting across Europe	Prostate cancer		ISPOR US, 2024
Using a database analysis to determine alignment between physician-reported and objectively derived fibrosis scores for US patients with metabolic dysfunction-associated steatohepatitis (MASH)	MASH		ISPOR US, 2024
Quality of life and fatigue burden in individuals living with Complement 3 Glomerulopathy – a real-world study	C3 glomerulopathy		ERA-EDTA , 2024
Challenges in obesity management and psychosocial impact: a real-world perspective among people with obesity and their physicians	Obesity		ECO, 2024
Healthcare resource utilization and health-related quality of life in patients with resectable non-metastatic non-small cell lung cancer treated with neoadjuvant chemotherapy in China: a real-world survey	Non-small cell lung cancer		ISPOR US, 2024
Treatment adherence and associated clinical outcomes for Wilson disease patients: a real-world, retrospective, multinational survey	Wilsons Disease		EASL, 2024
Real-World Diagnostic Pathway and Disease Burden among Patients with DS and LGS in Brazil	Lennox-Gastaut syndrome		ILAE LATAM , 2024
Weight gain and health-related quality of life in people with HIV on antiretroviral therapy	HIV		AIDS, 2024
Insights into Lennox-Gastaut Syndrome: A European Real-World Study on Patient Profiles and Unmet Needs	Lennox-Gastaut syndrome		EEC, 2024
Management of Patients with Dravet Syndrome in Real-world Clinical Practice Across Five Countries in Europe: Impact of Treatment-related Burden on Health Outcomes	Dravet syndrome		EEC, 2024
Treatment patterns and disease burden among patients with Lennox-Gastaut Syndrome in Europe: a real-world survey	Lennox-Gastaut syndrome		EEC, 2024
Real-world clinical burden of non-seizure symptoms among patients with Dravet Syndrome or Lennox-Gastaut Syndrome in Europe: results from a global multinational survey	Various		EEC, 2024
Patient characteristics and treatment patterns in patients with Dravet Syndrome: real-world evidence from a cross-sectional survey of physicians in Europe	Dravet syndrome		EEC, 2024
Patient characteristics and treatment patterns in patients with Lennox-Gastaut Syndrome: real-world evidence from a cross-sectional survey of physicians in Europe	Lennox-Gastaut syndrome		EEC, 2024
Understanding burden and health outcomes based on number of adverse events in patients with Lennox-Gastaut Syndrome in real-world clinical practice settings	Lennox-Gastaut syndrome		AAN, 2024
A real-world analysis of treatment adherence and clinical outcomes for patients with paroxysmal nocturnal haemoglobinuria (PNH) receiving pegcetacoplan	Paroxysmal nocturnal hemoglobinuria		EBMT, 2024
Characteristics of Chronic Inflammatory Demyelinating Polyneuropathy subtypes: Results from a Multinational, Real-World Survey	Chronic inflammatory demyelinating polyneuropathy		PNS, 2024
Clinical outcomes of people with hemophilia B treated with N9-GP in real-world settings: the Adelphi Disease Specific Programme™ hemophilia study	Hemophilia		ISTH, 2024
Treatment satisfaction and joint health outcomes within a real-world haemophilia B population: the Adelphi Disease Specific Programme™ survey	Hemophilia		ISTH, 2024
Real-world clinical outcomes for Duchenne muscular dystrophy patients in Europe: results from a multi-national survey	Duchenne muscular dystrophy		EAN, 2024
Impact of Duchenne muscular dystrophy on caregiver employment and quality of life: a real-world survey in Europe	Duchenne muscular dystrophy		EAN, 2024
Unmet need in patients with chronic inflammatory demyelinating polyneuropathy: results from a real-world survey	Chronic inflammatory demyelinating polyneuropathy		EAN, 2024
Diagnostic delay and burden of disease in chronic inflammatory demyelinating polyneuropathy: a real-world survey	Chronic inflammatory demyelinating polyneuropathy		EAN, 2024
Underdiagnosis and Impact of Menstrual Migraine in Real-World Clinical Practice	Menstrual migraine		EAN, 2024
Treatment patterns for patients with MM in Japan: a real-world analysis of the Adelphi Disease Specific Programme™	Multiple myeloma		JMS, 2024
Patients with radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) with BRAF V600E and/or K601E mutation status: A real-world view of effectiveness of lenvatinib monotherapy.	Thyroid cancer		ASCO, 2024
The presence and burden of cognitive issues: discordance between the perception of neurologists and people living with multiple sclerosis	Multiple sclerosis		N/A
Disease landscape of advanced HER2- breast cancer patients by treatment line in three EU countries and the US	Breast cancer		N/A
Real-world treatment patterns, clinical outcomes and symptom burden in patients with psoriatic arthritis prescribed ixekizumab in the United States	Psoriatic arthritis		N/A
Patient burden of nonsegmental vitiligo: A US real-world survey of dermatologists and their patients	Non-segmental vitiligo		N/A
Outcomes of patients with COPD switching from multiple-inhaler to once-daily single-inhaler triple therapy in a real-world primary care setting in England: A retrospective pre-post cohort study	Chronic obstructive pulmonary disease		N/A