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Publications

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Publications found: (1333)
Real-world treatment of patients with palbociclib for HR+/HER2– advanced/metastatic breast cancer: the Europe IRIS study

Manuscript

Bespoke

Real-world treatment of patients with palbociclib for HR+/HER2– advanced/metastatic breast cancer: the Europe IRIS study. Future Oncol. 2021

Management of myelofibrosis with ruxolitinib in Australia

Manuscript

Bespoke

Management of myelofibrosis with ruxolitinib in Australia. Intern Med J. 2021

Real-world impact of flaring on patient-reported outcomes and healthcare resource utilization in systemic lupus erythematosus

Manuscript

Autoimmune

Costenbader KH, Hoskin B, Atkinson C, Bell D, Pike J, Lofland JH, Berry P, Karyekar CS, Touma Z. Real-world impact of flaring on patient-reported outcomes and healthcare resource utilization in systemic lupus erythematosus. CER. 2021

Real-world and clinical practice guideline disparity of non-alcoholic steatohepatitis management: A multi-country assessment

Manuscript

Metabolic

Real-world and clinical practice guideline disparity of non-alcoholic steatohepatitis management: A multi-country assessment. JHEP Reports. 2021

Treatment and disease management patterns for bacillus Calmette–Guérin unresponsive nonmuscle invasive bladder cancer in North America, Europe and Asia: a real-world data analysis

Manuscript

Bespoke

Treatment and disease management patterns for bacillus Calmette–Guérin unresponsive nonmuscle invasive bladder cancer in North America, Europe and Asia: a real-world data analysis. 2021

Do real-world diagnostic, management and speciality approaches differ in NASH patients with/without cardiovascular-metabolic comorbidities

Poster presentation

Cardiovascular

Do real-world diagnostic, management and speciality approaches differ in NASH patients with/without cardiovascular-metabolic comorbidities. Poster presented at: ICFL; 2022 Feb 17-19; Vienna, Austria

The evolving diagnostic and treatment landscape in metastatic non-small cell lung cancer (mNSCLC) across Europe – A real world evidence survey

Poster presentation

Oncology

Bailey H, Lee A, Eccles L, Yuan Y, Khela k, Hall J, Last M, Varol N. The evolving diagnostic and treatment landscape in metastatic non-small cell lung cancer (mNSCLC) across Europe – A real world evidence survey. Poster presented at: ESMO IO; 2021 Dec 8-11; Geneva, Switzerland

Genomic and geentic testing patterns for patients with metastatic castrate resistant prostate cancer: Real world study results in Japan

Poster presentation

Oncology

Leith A, Ribbands A, Last M, Gayle A, Payne S, McCrea C, Yang L, Burgents J, Ghate S. Genomic and geentic testing patterns for patients with metastatic castrate resistant prostate cancer: Real world study results in Japan. Poster presented at: JUA; 2021 Dec 7-10; Yokohama, Japan

Treatment patterns of patients with metastatic castrate-resistant prostate cancer: Results from a real-world study in Japan

Poster presentation

Oncology

Leith A, Ribbands A, Last M, Gayle A, Payne S, McCrea C, Yang L, Burgents J, Ghate S. Treatment patterns of patients with metastatic castrate-resistant prostate cancer: Results from a real-world study in Japan. Poster presented at: JUA; 2021 Dec 7-10; Yokohama, Japan

Symptom burden of patients with moderate-to-severe atopic dermatitis

Manuscript

Autoimmune

Egeberg A, Anderson P, Piercy J, Massey L, Cappelleri JC, Encinas GA, Feeney C, Dibonaventura M. Symptom burden of patients with moderate-to-severe atopic dermatitis. Eur J Dermatol. 2021

Real-world bevacizumab utilization and outcomes among women with ovarian cancer in Europe and the United States

Manuscript

Oncology

Monberg MJ, Hall JP, Moon R, Khela K. Real-world bevacizumab utilization and outcomes among women with ovarian cancer in Europe and the United States. Eur J Gynaecol Oncol. 2021

Determinants of patient and physician treatment satisfaction in moderate to severe psoriasis: A multinational survey of psoriasis patients

Manuscript

Autoimmune

Teeple A, Villacorta R, Lee S, Fakharzadeh S, Lucas J, Li N. Determinants of patient and physician treatment satisfaction in moderate to severe psoriasis: A multinational survey of psoriasis patients. DOJ. 2021

Validation and clinical value of the MANAGE-PD tool: A clinician-reported tool to identify Parkinson’s disease patients inadequately controlled on oral medications

Manuscript

Central nervous system

Antonini A, Odin P, Schmidt P, Cubillos F, Standaert DG, Henriksen T, Jimenez-Shahed J, Alobaidi A, Jalundhwala YJ, Bao Y, Zamudio J, Carlos Parra J, Kukreja P, Onuk K, Skalicky AM, Kleinman L, Jones E, Metz S, Fernandez HH. Validation and clinical value of the MANAGE-PD tool: A clinician-reported tool to identify Parkinson's disease patients inadequately controlled on oral medications. Parkinsonism Relat Disord. 2021

Describing the disease burden of primary Sjögren’s Syndrome patients: Results from a real-world survey in the US

Poster presentation

Autoimmune

Ndife B, Hoskin B, Hughes M, Duna G, Lawerence M, Booth M. Describing the disease burden of primary Sjögren’s Syndrome patients: Results from a real-world survey in the US. Poster presented at: ACR; 2021 Nov 3-10; VIRTUAL

Treatment trends among men with metastatic castration sensitive prostate cancer (mCSPC): Results from the European component of an international study

Poster presentation

Oncology

Barata P, Leith A, Ribbands A, Montgomery R, Last M, Arondekar B, Ivanova J, Niyazov A. Treatment trends among men with metastatic castration sensitive prostate cancer (mCSPC): Results from the European component of an international study . Poster presented at: EMUC; 2021 Nov 25-28; Athens, Greece

Treatment patterns among men with metastatic castration resistant prostate cancer (mCRPC): Results from a European international study

Poster presentation

Oncology

Barata P, Leith A, Ribbands A, Montgomery R, Last M, Arondekar B, Ivanova J, Niyazov A. Treatment patterns among men with metastatic castration resistant prostate cancer (mCRPC): Results from a European international study. Poster presented at: EMUC; 2021 Nov 25-28; Athens, Greece

Are patients with COPD more adherent to fluticasone furoate/umeclidinium/vilanterol (FF/UMEC/VI) compared with multiple-inhaler triple therapy in a real-world UK primary care treated population?

Oral presentation

Respiratory

Halpin DMG, Rothnie KJ, Banks V, Czira A, Compton C, Wood R, Tritton T, Massey O, Wild R, Snowsie N, Gubba E, Sharma R, Ismaila AS, Cogelmeier CF. Are patients with COPD more adherent to fluticasone furoate/umeclidinium/vilanterol (FF/UMEC/VI) compared with multiple-inhaler triple therapy in a real-world UK primary care treated population?. Oral presentation at: BTS; 2021 Nov 24-26; VIRTUAL

Living with ulcerative colitis in Japan: Biologic persistence and health-care resource use

Manuscript

Generate

Bargo D, Tritton T, Cappelleri JC, DiBonaventura M, Smith TW, Tsuchiya T, Gardiner S, Modesto I, Holbrook T, Bluff D, Kobayashi T. Living with ulcerative colitis in Japan: Biologic persistence and health-care resource use. Inflamm Intest Dis. 2021; 6(): 186-198

Impact of cluster headache attack duration on aspects of patients’ mental health and sleep patterns – results from a real-world survey

Poster presentation

Pain

Impact of cluster headache attack duration on aspects of patients’ mental health and sleep patterns – results from a real-world survey. Poster presented at: Pain360; 2021 Dec 1-3; Vienna, Austria

Patterns of genetic testing among patients with amyotrophic lateral sclerosis (ALS): Real-world results from the United States and Europe

Oral presentation

Rare diseases

Stenson K, Nicholson K, Al-Chalabi A, Mellor J, Wright J, Gibson G, Earl L, Agnese W, O’Callaghan L. Patterns of genetic testing among patients with amyotrophic lateral sclerosis (ALS): Real-world results from the United States and Europe. Oral presentation at: ALS/MND; 2021 Dec 7-10; VIRTUAL

Variation in age of onset and disease progression among genetic subsets of amyotrophic lateral sclerosis (ALS) patients: Results from a real-world point-in-time survey

Poster presentation

Rare diseases

Stenson K, Cochrane T, O’Callaghan L, Mellor J, Wright J, Gibson G, Earl L, Barlow S, Ajroud-Driss S. Variation in age of onset and disease progression among genetic subsets of amyotrophic lateral sclerosis (ALS) patients: Results from a real-world point-in-time survey. Poster presented at: ALS/MND; 2021 Dec 7-10; VIRTUAL

The burden of moderate-to-severe atopic dermatitis: Results from a real-world study in Spain

Poster presentation

Autoimmune

Huete T, Reed C, Artime E, Austin J, Diaz S. The burden of moderate-to-severe atopic dermatitis: Results from a real-world study in Spain. Poster presented at: AEDV; 2021 Dec 1-3; Bilbao, Spain

Exploring the real-world impact of COVID-19 on first line (1L) treatment and management of EGFR-Wild Type (EGFR-WT) and ALK-Wild Type (ALK-WT) metastatic non-small cell lung cancer (mNSCLC) across Europe

Poster presentation

Oncology

Bailey H, Lee A, Eccles L, Yuan Y, Last M, Burlison H, Forshaw C, Varol N. Exploring the real-world impact of COVID-19 on first line (1L) treatment and management of EGFR-Wild Type (EGFR-WT) and ALK-Wild Type (ALK-WT) metastatic non-small cell lung cancer (mNSCLC) across Europe. Poster presented at: ESMO IO; 2021 Dec 8-11; Geneva, Switzerland

Real world treatment patterns and clinical outcomes associated with palbociclib combination therapy across Europe, North And South America, and Asia: A pooled analysis from the IRIS study

Poster presentation

Bespoke

Mycock K, Hanson K, Taylor-Stokes G, Milligan G, Atkinson C, Mitra D, Preciado S, Law E. Real world treatment patterns and clinical outcomes associated with palbociclib combination therapy across Europe, North And South America, and Asia: A pooled analysis from the IRIS study. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

Evaluating real-world health-related quality of life in a survey of patients with advanced renal cell carcinoma receiving first-line treatment in the US

Poster presentation

Oncology

Zanotti G, Ribbands A, Leith A, Forshaw C, Middleton-Dalby C, Kearney M. Evaluating real-world health-related quality of life in a survey of patients with advanced renal cell carcinoma receiving first-line treatment in the US. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

Patient characteristics, diagnostic testing and treatment patterns in patients with hormone receptor-positive, human epidermal growth factor receptor 2-negative (HR+, HER2-), node-positive, high-risk early breast cancer (EBC) in Italy: A real-world study

Poster presentation

Oncology

Buzzoni C, Tamma A, Giovannitti M, Rider A, Sanderson I, Brown J. Patient characteristics, diagnostic testing and treatment patterns in patients with hormone receptor-positive, human epidermal growth factor receptor 2-negative (HR+, HER2-), node-positive, high-risk early breast cancer (EBC) in Italy: A real-world study. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

A real world evaluation to describe resource use for the management of moderate to severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17 in the Republic of Ireland

Poster presentation

Bespoke

Irvine AD, Durkan A, Coughlan D, Surendranathan T, Hennessy L, Rajkovic I, Hudson R. A real world evaluation to describe resource use for the management of moderate to severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17 in the Republic of Ireland. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

Approaches to immune checkpoint inhibitor (ICI) first-line maintenance therapy (1L-MT) in unresectable locally advanced (LA) or metastatic urothelial cancer (mUC) in France, Germany, Italy, Spain, and the UK (EU5)

Poster presentation

Oncology

Milloy N, Berry M, Kostikas M, Kearney M, Bharmal M, Costa N, Chang J. Approaches to immune checkpoint inhibitor (ICI) first-line maintenance therapy (1L-MT) in unresectable locally advanced (LA) or metastatic urothelial cancer (mUC) in France, Germany, Italy, Spain, and the UK (EU5). Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

Characterisation of existing treatment patterns in muscle-invasive urothelial carcinoma (MIUC) across North America, Europe, and EAST ASIA

Poster presentation

Oncology

Milloy N, Teitsson S, Huo S, Kurt M, Kostikas M, Lambert A, Berry M, Broughton E. Characterisation of existing treatment patterns in muscle-invasive urothelial carcinoma (MIUC) across North America, Europe, and EAST ASIA. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

Characterisation of the management pathway for muscle-invasive urothelial carcinoma (MIUC) from physician perspectives in France, Germany, Italy, Spain, UK (EU5), US, Canada, China, and Japan

Poster presentation

Oncology

Milloy N, Teitsson S, Huo S, Maire-Arce M, Kostikas M, Lambert A, Berry M, Broughton E. Characterisation of the management pathway for muscle-invasive urothelial carcinoma (MIUC) from physician perspectives in France, Germany, Italy, Spain, UK (EU5), US, Canada, China, and Japan. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

The impact of delayed primary Sjögren’s Syndrome diagnosis on patient outcomes: A real-world survey in the US

Poster presentation

Autoimmune

Ndife B, Barlow S, Hughes M, Duna G, Lawerence M, Booth M. The impact of delayed primary Sjögren’s Syndrome diagnosis on patient outcomes: A real-world survey in the US. Poster presented at: ACR; 2021 Nov 3-10; VIRTUAL

Physician perception and assessment of alopecia areata severity and the corresponding patient-reported QoL

Poster presentation

Autoimmune

Aranishi T, Isaka Y, Anderson P, Marwaha S, Piercy J, Edson Heredia E. Physician perception and assessment of alopecia areata severity and the corresponding patient-reported QoL. Poster presented at: JDA; 2021 Nov 10-13; Yokohama, Japan

Real-world assessment of healthcare resource utilisation and direct medical costs in patients with COPD receiving LAMA/LABA Therapy in England

Poster presentation

Generate

Requena G, Banks V, Czira A, Wood R, Tritton T, Ha E, Wild R, Compton C, Ismaila AS. Real-world assessment of healthcare resource utilisation and direct medical costs in patients with COPD receiving LAMA/LABA Therapy in England. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

Real-world assessment of healthcare resource utilisation and direct medical costs in patients with COPD receiving ICS/LABA Therapy in England

Poster presentation

Generate

Czira A, Banks V, Requena G, Wood R, Tritton T, Ha E, Wild R, Compton C, Ismaila AS. Real-world assessment of healthcare resource utilisation and direct medical costs in patients with COPD receiving ICS/LABA Therapy in England. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

Real-world (RW) patient-reported outcomes (PROs) in frontline maintenance therapy for advanced Non-Small Cell Lung Cancer (aNSCLC) in France, Germany, and the UK

Poster presentation

Oncology

Hanlon J, Bailey H, Khela K, Stojadinovic A, Giove TJ, Kalilani L, Last M, Forshaw C, Hall JP, Hogea C. Real-world (RW) patient-reported outcomes (PROs) in frontline maintenance therapy for advanced Non-Small Cell Lung Cancer (aNSCLC) in France, Germany, and the UK. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

Psychometric evaluation of the Adelphi Adherence Questionnaire (ADAQ) in patients with osteoarthritis

Poster presentation

Various

Trigg A, Clarke N, Stochl J, Bentley S, Higgins V, Arbuckle R, Piercy J. Psychometric evaluation of the Adelphi Adherence Questionnaire (ADAQ) in patients with osteoarthritis. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

Physicians’ reasons for prescribing Janus Kinase inhibitors (JAKi) in patients with rheumatoid arthritis, and associated alignment between physicians and patients in a real-world clinical setting

Poster presentation

Autoimmune

Taylor PC, Fautrel B, Piette Y, Yuste SR, Broen J, Welcker M, Holdsworth E, Zignani M, Van Beneden K, Caporali R, Alten R. Physicians’ reasons for prescribing Janus Kinase inhibitors (JAKi) in patients with rheumatoid arthritis, and associated alignment between physicians and patients in a real-world clinical setting. Poster presented at: ACR; 2021 Nov 3-10; VIRTUAL

Health-related quality of life across King’s and MiToS stages among amyotrophic lateral sclerosis patients: Results from a real-world point-in-time survey

Poster presentation

Rare diseases

Stenson K, Agnese W, de Silva S, O’Callaghan L, Bryden P, Mellor J, Gibson G, Earl L, Wright J, Barlow S. Health-related quality of life across King’s and MiToS stages among amyotrophic lateral sclerosis patients: Results from a real-world point-in-time survey. Poster presented at: ISPOR EU; 2021 Nov 30-03; VIRTUAL

A comparison of treatment patterns and healthcare resource utilization in portopulmonary hypertension and idiopathic/hereditary pulmonary arterial hypertension in the USA

Poster presentation

Respiratory

DuBrock H, Small M, Scott M, Harley J, Agron P, Tsang Y, Panjabi S. A comparison of treatment patterns and healthcare resource utilization in portopulmonary hypertension and idiopathic/hereditary pulmonary arterial hypertension in the USA. Poster presented at: Chest; 2021 Oct 17-20; Orlando, FL

Real-world clinical presentation of patients with portopulmonary hypertension in comparison with idiopathic/hereditary pulmonary arterial hypertension in the USA

Poster presentation

Respiratory

DuBrock H, Small M, Scott M, Harley J, Agron P, Tsang Y, Panjabi S. Real-world clinical presentation of patients with portopulmonary hypertension in comparison with idiopathic/hereditary pulmonary arterial hypertension in the USA. Poster presented at: Chest; 2021 Oct 17-20; Orlando, FL

Discordance between neurologists and people living with multiple sclerosis on the perception of the presence and burden of cognitive impairment

Poster presentation

Central nervous system

Penner I, De Las Heras V, Jones E, Ryan S, Dominguez Castro P, Houchen E, Narasimham S, Karu H, Chetlangia R, Biswas S, Bezlyak V, Piani Meier D, Lines C. Discordance between neurologists and people living with multiple sclerosis on the perception of the presence and burden of cognitive impairment. Poster presented at: ECTRIMS; 2021 Oct 13-15; VIRTUAL

High prevalence of intolerability with interferon beta and glatiramer acetate in patients with MS

Poster presentation

Central nervous system

Lee J, Nicholas J, Hersh C, Jones E, Pike J, Dominguez-Castro P, Bezlyak V, Lines C, Ziehn M, Giovannoni G. High prevalence of intolerability with interferon beta and glatiramer acetate in patients with MS. Poster presented at: ECTRIMS; 2021 Oct 13-15; VIRTUAL

Quantifying the economic impact of delayed multiple-inhaler triple therapy initiation in patients with COPD: A retrospective cohort study of linked electronic medical record and hospital administrative data in England

Manuscript

Generate

Sansbury LB, Wood RP, Anley GA, Nam Y, Ismaila AS. Quantifying the economic impact of delayed multiple-inhaler triple therapy initiation in patients with COPD: A retrospective cohort study of linked electronic medical record and hospital administrative data in England. Int J Chron Obstruct Pulmon Dis. 2021; 16(): 2795-2808

Treatment goals in schizophrenia: A real-world survey of patients, psychiatrists, and caregivers in the United States, with an analysis of current treatment (long-acting injectable vs oral antipsychotics) and goal selection

Manuscript

Central nervous system

Fitzgerald HM, Shepherd J, Bailey H, Berry M, Wright J, Chen M. Treatment goals in schizophrenia: A real-world survey of patients, psychiatrists, and caregivers in the United States, with an analysis of current treatment (long-acting injectable vs oral antipsychotics) and goal selection. Neuropsychiatr Dis Treat. 2021; 17(): 3215–3228

Associations Between Relapses and Psychosocial Outcomes in Patients With Schizophrenia in Real-World Settings in the United States

Manuscript

Central nervous system

Lin D, Joshi K, Keenan A, Shepherd J, Bailey H, Berry M, Wright J, Meakin S, Benson C, Kim E. Associations Between Relapses and Psychosocial Outcomes in Patients With Schizophrenia in Real-World Settings in the United States. Front. Psychiatry. 2021; 12(): 1751-1762

Cardiovascular risk profiles: A cross-sectional study evaluating the generalizability of the glucagon-like peptide-1 receptor agonist cardiovascular outcome trial populations in REWIND, LEADER and SUSTAIN-6 against a real-world type 2 diabetes population in the UK

Manuscript

Generate

Webb J, Mount J, von Arx LB, Rachman J, Spanopoulos D, Wood R,Tritton T, Massey O, Idris I. Cardiovascular risk profiles: A cross-sectional study evaluating the generalizability of the glucagon-like peptide-1 receptor agonist cardiovascular outcome trial populations in REWIND, LEADER and SUSTAIN-6 against a real-world type 2 diabetes population in the UK. Diabetes Obes Metab. 2021; (): 1-7

Real-world effectiveness of ustekinumab in patients with Crohn’s disease: Findings from a survey of gastroenterologists in the US

Poster presentation

Autoimmune

Ding Z, Muser E, Izanec J, Wild R, Lukanova R, Kershaw J. Real-world effectiveness of ustekinumab in patients with Crohn's disease: Findings from a survey of gastroenterologists in the US. Poster presented at: ACG; 2021 Oct 22-27; Las Vegas, NV

Initiation of bone-targeted agents in patients with bone metastases and breast or castrate-resistant prostate cancer actively treated in routine clinical practice in Europe

Manuscript

Oncology

von Moos R, Lewis K, Massey L, Marongui A, Rider A, Seesaghur A. Initiation of bone-targeted agents in patients with bone metastases and breast or castrate-resistant prostate cancer actively treated in routine clinical practice in Europe. Bone. 2021; 154(): 116243

Perspectives on myasthenia gravis: The quality of life and productivity of caregivers

Poster presentation

Rare diseases

Mahic M, Bozorg A, Scowcroft A, Mackechnie M, Golden K, Gibson G. Perspectives on myasthenia gravis: The quality of life and productivity of caregivers. Poster presented at: AANEM; 2021 Oct 13-16; Aurora, CO

Perspectives on myasthenia gravis: The impact on quality of life, productivity and employment in the United States

Poster presentation

Rare diseases

Mahic M, Bozorg A, Scowcroft A, Mackechnie M, Golden K, Taylor C. Perspectives on myasthenia gravis: The impact on quality of life, productivity and employment in the United States. Poster presented at: AANEM; 2021 Oct 13-16; Aurora, CO

Real-world experience of subcutaneous belimumab treatment for systemic lupus erythematosus: A cross-sectional survey of rheumatologists and their patients

Poster presentation

Autoimmune

Gairy K, Hoskin B, Hetherington J, Bell D, Massey O, Levy RA. Real-world experience of subcutaneous belimumab treatment for systemic lupus erythematosus: A cross-sectional survey of rheumatologists and their patients. Poster presented at: LUPUS & CORA; 2021 Oct 6-9; VIRTUAL

Concordance in perceptions of the impact of subcutaneous belimumab treatment for systemic lupus erythematosus between patients and their physicians: A cross-sectional, real-world survey

Poster presentation

Autoimmune

Gairy K, Hoskin B, Hetherington J, Bell D, Massey O, Carnarius H, Bell C, Levy RA. Concordance in perceptions of the impact of subcutaneous belimumab treatment for systemic lupus erythematosus between patients and their physicians: A cross-sectional, real-world survey. Poster presented at: LUPUS & CORA; 2021 Oct 6-9; VIRTUAL

MRI activity versus relapses as markers of disease activity in SPMS: Data from real world and pivotal clinical studies

Poster presentation

Central nervous system

Giovannoni G, Houchen E, Sobisek L, Karu H, Ryan S, Jones E, Dominguez Castro P, Bezlyak V, Piani-Meier D, de las Heras V, Lines C. MRI activity versus relapses as markers of disease activity in SPMS: Data from real world and pivotal clinical studies. Poster presented at: ECTRIMS; 2021 Oct 13-15; VIRTUAL

Outcomes of early and late advanced therapy use in patients with ulcerative colitis: findings from a European real-world study

Poster presentation

Autoimmune

Armuzzi A, Ortwijn A, Khalid JM, Hennessy F, Barlow S. Outcomes of early and late advanced therapy use in patients with ulcerative colitis: findings from a European real-world study. Poster presented at: UEGW; 2021 Oct 3-5; VIRTUAL

Idiopathic pulmonary fibrosis: Physician and patient perspectives on the pathway to care from symptom recognition to diagnosis and disease burden

Manuscript

Respiratory

Lancaster L, Bonella F, Inoue Y, Cottin V, Siddall J, Small M, Langley J. Idiopathic pulmonary fibrosis: Physician and patient perspectives on the pathway to care from symptom recognition to diagnosis and disease burden. Respirology. 2021; ():

Misdiagnosis in paediatric inflammatory bowel disease – findings from a real-world study in Europe

Poster presentation

Autoimmune

Hennessy F, Lukanova R, Baker S. Misdiagnosis in paediatric inflammatory bowel disease – findings from a real-world study in Europe. Poster presented at: UEGW; 2021 Oct 3-5; VIRTUAL

Characteristics and Real World Treatment History of Patients Treated with Tofacitinib for Ulcerative Colitis in Europe

Poster presentation

Autoimmune

Armuzzi A, Hart A, Sharma P, Hoskin B, Woolcott J, Mammar N, Hennessy F, Capelleri JC, Milligan G, Dignass A. Characteristics and Real World Treatment History of Patients Treated with Tofacitinib for Ulcerative Colitis in Europe. Poster presented at: UEGW; 2021 Oct 3-5; VIRTUAL

Symptom and Quality of Life Burden Among Patients With Eosinophilic Oesophagitis in a Real-World Setting

Poster presentation

Rare diseases

Schoepfer AM, Olsen S, Kamat S, Mujumdar U, Nag A, Goga L, Ortiz B, Jacob-Nara JA, Khodzhayev A, McCann E,. Symptom and Quality of Life Burden Among Patients With Eosinophilic Oesophagitis in a Real-World Setting. Poster presented at: UEGW; 2021 Oct 3-5; VIRTUAL

Healthcare insurance coverage and treatment patterns among patients with amyotrophic lateral sclerosis in the United States

Poster presentation

Rare diseases

Healthcare insurance coverage and treatment patterns among patients with amyotrophic lateral sclerosis in the United States. Poster presented at: AMCP Nexus; 2021 Oct 18-21; Denver, CO

Unmet needs in advanced therapy-naïve and advanced therapy-experienced moderate-to-severe ulcerative colitis patients in the United States

Poster presentation

Autoimmune

Unmet needs in advanced therapy-naïve and advanced therapy-experienced moderate-to-severe ulcerative colitis patients in the United States. Poster presented at: ACG; 2021 Oct 22-27; Las Vegas, NV

Epidemiology and treatment patterns of the patients with locally advanced or metastatic urothelial carcinoma: a retrospective analysis of real-world data in Japan

Oral presentation

Generate

Epidemiology and treatment patterns of the patients with locally advanced or metastatic urothelial carcinoma: a retrospective analysis of real-world data in Japan. Oral presentation at: JSCO; 2021 Oct 21-12; Yokohama, Japan

Impact of rare diseases on work, productivity, and activity impairment: Analysis of real-world patient outcomes collected in the Adelphi Disease Specific Programmes (DSPs)

Poster presentation

Rare diseases

Impact of rare diseases on work, productivity, and activity impairment: Analysis of real-world patient outcomes collected in the Adelphi Disease Specific Programmes (DSPs). Poster presented at: NORD; 2021 Oct 18-19; VIRTUAL

Frequency of diagnosed concomitant conditions among patients with rare diseases: Analysis of real-world patient data from Europe and the United States

Poster presentation

Rare diseases

Libby S, Mellor J, Hatchell N, Chatterton E, Olsen S, Losel B. Frequency of diagnosed concomitant conditions among patients with rare diseases: Analysis of real-world patient data from Europe and the United States. Poster presented at: NORD; 2021 Oct 18-19; VIRTUAL

The relationship between employment status, WPAI and HRQoL for patients with HR+/HER2- early-stage breast cancer

Poster presentation

Oncology

Williams R, Bennett B, Rider A, Gillespie-Akar L, Gogate A. The relationship between employment status, WPAI and HRQoL for patients with HR+/HER2- early-stage breast cancer. Poster presented at: ESMO; 2021 Sep 16-21; VIRTUAL

Receipt of neoadjuvant treatment and impact of types of surgery on HRQoL among patients with early-stage HR+/HER2 – breast cancer

Poster presentation

Oncology

Rider A, Bennett B, Williams R, Gillespie-Akar L, Gogate A. Receipt of neoadjuvant treatment and impact of types of surgery on HRQoL among patients with early-stage HR+/HER2 - breast cancer. Poster presented at: ESMO; 2021 Sep 16-21; VIRTUAL

Real world health-related quality of life (HRQoL) among HER2-negative (HER2-) advanced breast cancer (ABC) patients in EU3 and US

Poster presentation

Oncology

Lewis K, Ndirangu K, Clayton E, Zhao Q, Lambert A, Meier G, Chabot I. Real world health-related quality of life (HRQoL) among HER2-negative (HER2-) advanced breast cancer (ABC) patients in EU3 and US. Poster presented at: ESMO; 2021 Sep 16-21; Paris, France

Real world study of treatments received and treatment satisfaction among HER2- advanced breast cancer (ABC) patients in EU3 and US

Poster presentation

Oncology

Lewis K, Chabot I, Clayton E, Ndirangu K, Lambert A, Zhao Q, Meier G. Real world study of treatments received and treatment satisfaction among HER2- advanced breast cancer (ABC) patients in EU3 and US. Poster presented at: ESMO; 2021 Sep 16-21; Paris, France

Understanding the diagnostic and treatment landscape in EGFRm advanced non-small dell lung cancer (aNSCLC) patients with exon 20 insertion mutations (Ex20ins)

Poster presentation

Oncology

Bailey H, Nasirova F, Sermon J, Rodrigues B, Khela K, Hall J, Last M, Penton J. Understanding the diagnostic and treatment landscape in EGFRm advanced non-small dell lung cancer (aNSCLC) patients with exon 20 insertion mutations (Ex20ins). Poster presented at: ESMO; 2021 Sep 16-21; Paris, France

Physician considered treatment attributes for 3rd line diffuse-large B-cell lymphoma treatment decision-making: Physician perspectives from a survey across western Europe and US

Poster presentation

Oncology

Johnson PC, Quek RGW, Bailey A, Milloy N, Sanderson I, Ma Q. Physician considered treatment attributes for 3rd line diffuse-large B-cell lymphoma treatment decision-making: Physician perspectives from a survey across western Europe and US. Poster presented at: ESMO; 2021 Sep 16-21; VIRTUAL

Real-world treatment patterns and outcomes in patients with head and neck cancer: Point-in-time survey of oncologists in Italy and Spain

Manuscript

Oncology

Singh P, Contente M, Bennett B, Hall J, Bailey H, Bailey A, Zarrelli L, Polanco Sanchez C. Real-world treatment patterns and outcomes in patients with head and neck cancer: Point-in-time survey of oncologists in Italy and Spain. Adv Ther. 2021; 38(9): 47722:4735

A real-world observational study to describe NHS resource use for the management of moderate to severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17

Oral presentation

Bespoke

McPherson T, Cork MJ, Michaelis L, Flohr C, Davis L, Petrovic M, Hennessy L, Rajkovic I, Hudson R. A real-world observational study to describe NHS resource use for the management of moderate to severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17. Oral presentation at: BAD; 2021 Sep 1; VIRTUAL

Burden Among caregivers of patients with Amyotrophic Lateral Sclerosis in the United States

Poster presentation

Rare diseases

Burden Among caregivers of patients with Amyotrophic Lateral Sclerosis in the United States. Poster presented at: ANA; 2021 Oct 17-19; VIRTUAL

Effects of COVID-19 on treatment and patient management in inflammatory bowel disease: findings from a real-world survey in Europe

Poster presentation

Autoimmune

Hennessy F, Piercy J, Lukanova R. Effects of COVID-19 on treatment and patient management in inflammatory bowel disease: findings from a real-world survey in Europe. Poster presented at: UEGW; 2021 Oct 3-5; VIRTUAL

Characteristics and treatment pathways of patients with COPD receiving an inhaled corticosteroid/long-acting ?2-agonist (ICS/LABA) in the UK

Poster presentation

Generate

Czira A, Banks V, Requena G, Wood R, Tritton T, Ha E, Wild R, Compton C, Ismaila AS. Characteristics and treatment pathways of patients with COPD receiving an inhaled corticosteroid/long-acting ?2-agonist (ICS/LABA) in the UK. Poster presented at: ERS; 2021 Sep 5-8; VIRTUAL

Real-world adherence to single-inhaler vs multiple-inhaler triple therapy among patients with COPD in a primary care treated UK population

Oral presentation

Generate

Rothnie KJ, Czira A, Compton C, Banks V, Wood R, Tritton T, Thomas J, Massey O, Blackburn S, Wild R, Ismaila AS. Real-world adherence to single-inhaler vs multiple-inhaler triple therapy among patients with COPD in a primary care treated UK population. Oral presentation at: ERS; 2021 Sep 5-8; VIRTUAL

Unmet clinical needs and burden of disease in hidradenitis suppurativa: Real-world experience from EU5 and US

Poster presentation

Autoimmune

Ingram JR, Bettoli V, Kokolakis G, Martorell A, Villani AP, Caraman M, Coak E, Wallinger H, Fang J, Kasparek T, Muscianisi E, Richardson C, Kimball A. Unmet clinical needs and burden of disease in hidradenitis suppurativa: Real-world experience from EU5 and US. Poster presented at: EADV; 2021 Sep 29-2; VIRTUAL

Biologic and targeted synthetic DMARD utilization in the United States: Adelphi Real World Disease Specific Programme for rheumatoid arthritis

Manuscript

Autoimmune

Holdsworth EA, Donaghy B, Fox KM, Desai P, Collier DH, Furst DE. Biologic and targeted synthetic DMARD utilization in the United States: Adelphi Real World Disease Specific Programme for rheumatoid arthritis. Rheumatol Ther. 2021; ():

Real-world evidence of reported symptoms and quality of life burden associated with chronic rhinosinusitis with nasal polyposis and comorbid asthma atatus

Oral presentation

Respiratory

Emmanuel B, Biswas M, Scott M, Small M, Lee L, Chen S, Ruiz S. Real-world evidence of reported symptoms and quality of life burden associated with chronic rhinosinusitis with nasal polyposis and comorbid asthma atatus. Oral presentation at: ERS; 2021 Sep 5-8; VIRTUAL

Real-world study of REarranged during transfection [RET] testing in patients with medullary thyroid cancer [MTC] in Europe [EU5]

Poster presentation

Oncology

Williams R, Hess LM, Puri T, Jen MH, Kostikas M, Rider A, Kiiskinen. Real-world study of REarranged during transfection [RET] testing in patients with medullary thyroid cancer [MTC] in Europe [EU5]. Poster presented at: ESMO; 2021 Sep 16-21; VIRTUAL

Characteristics and treatment patterns in patients with medullary thyroid cancer [MTC] with and without Rearranged during transfection [RET] mutations in Europe

Poster presentation

Oncology

Rider A, Hess LM, Puri T, Jen MH, Williams R, Sanderson I, Kiiskinen U. Characteristics and treatment patterns in patients with medullary thyroid cancer [MTC] with and without Rearranged during transfection [RET] mutations in Europe. Poster presented at: ESMO; 2021 Sep 16-21; VIRTUAL

Real-world study of Rearranged during transfection [RET] testing in patients with papillary thyroid cancer [PTC] in Europe [EU5]

Poster presentation

Oncology

Kostikas M, Kiiskinen U, Puri T, Jen MH, Williams R, Rider A, Hess LM. Real-world study of Rearranged during transfection [RET] testing in patients with papillary thyroid cancer [PTC] in Europe [EU5]. Poster presented at: ESMO; 2021 Sep 16-21; VIRTUAL

Quantifying the employer burden of persistent musculoskeletal pain at a large employer in the United Kingdom: A non interventional, retrospective study of Rolls Royce employee data

Poster presentation

Generate

Roomes D, Abraham L, Russell R, Beck C, Halsby K, Wood R, O’Brien M, Massey L, Burton K. Quantifying the employer burden of persistent musculoskeletal pain at a large employer in the United Kingdom: A non interventional, retrospective study of Rolls Royce employee data. Poster presented at: WCO IOF ESCEO; 2021 Aug 26-28; VIRTUAL

Agitation in dementia: Real-world impact and burden on patients and the healthcare system

Manuscript

Central nervous system

Jones J, Aigbogun MS, Pike J, Berry M, Houle CR, Husbands J. Agitation in dementia: Real-world impact and burden on patients and the healthcare system. J Alzheimers Dis. 2021; 83(1): 89-101

Real-world clinical profile, treatment patterns and patient-reported outcomes in a subset of HR+/HER2? advanced breast cancer patients with poor prognostic factors: data from an international study

Manuscript

Oncology

Davie A, Cuyun Carter G, Rider A, Bailey A, Lewis K, Price G, Ostojic H, Ringeisen F, Pivot X. Real-world clinical profile, treatment patterns and patient-reported outcomes in a subset of HR+/HER2? advanced breast cancer patients with poor prognostic factors: data from an international study. ESMO Open. 2021; 6(4): 100226

Factors leading to discontinuation of biologic therapy in patients with severe asthma

Manuscript

Respiratory

Silver J, Bogart M, Molfino NA, Siddall J, Small M, Hanson M, Hahn B. Factors leading to discontinuation of biologic therapy in patients with severe asthma. J Asthma. 2021; ():

Osteoarthritis medication satisfaction

Poster presentation

Pain

. Osteoarthritis medication satisfaction. Poster presented at: AAFP; 2021 Sep 28-3; VIRTUAL

Suboptimal clinical and quality of life outcomes in Psoriasis patients undertreated with systemic oral therapies: Evidence from an international physician and patient survey

Poster presentation

Autoimmune

Suboptimal clinical and quality of life outcomes in Psoriasis patients undertreated with systemic oral therapies: Evidence from an international physician and patient survey. Poster presented at: EADV; 2021 Sep 29-2; VIRTUAL

Characteristics and treatment pathways of patients with COPD receiving a long-acting muscarinic antagonist/long-acting ?2-agonist (LABA/LAMA) in the UK

Poster presentation

Generate

Requena G, Banks V, Czira A, Wood R, Tritton T, Ha E, Wild R, Compton C, Ismaila AS. Characteristics and treatment pathways of patients with COPD receiving a long-acting muscarinic antagonist/long-acting ?2-agonist (LABA/LAMA) in the UK. Poster presented at: ERS; 2021 Sep 5-8; VIRTUAL

Unmet clinical needs of paediatric psoriasis patients based on real-world data from the EU5 and US

Poster presentation

Autoimmune

Seyger M, Bachhuber T, Fang J, Scott A, Lucas J, Meakin S, Hetherington J, Richardson C,. Unmet clinical needs of paediatric psoriasis patients based on real-world data from the EU5 and US. Poster presented at: SPD; 2021 Jul 8-10; VIRTUAL

Unmet needs in advanced therapy-naïve and advanced therapy-experienced moderate-to-severe ulcerative colitis patients in the United States

Poster presentation

Autoimmune

Afzali A, Kakehi S, LaPensee K, Lukanova R, Hennessy F, Knight H, Gupte-Singh K. Unmet needs in advanced therapy-naïve and advanced therapy-experienced moderate-to-severe ulcerative colitis patients in the United States. Poster presented at: ECCO; 2021 Jul 2-3 / 8-10; VIRTUAL

Reliability, validity, and important difference estimates for the NCCN-FACT Ovarian Symptom Index-18 (NFOSI-18)

Manuscript

Oncology

Trigg A, Kelly M, Iadeluca L, Chang J, Moreno-Koehler A, Yaworsky A, Krohe M, Rider A, Cappelleri JC, Cella D, Cocks K. Reliability, validity, and important difference estimates for the NCCN-FACT Ovarian Symptom Index-18 (NFOSI-18). Future Oncol. 2021; ():

Inadequate disease control, treatment dissatisfaction, and quality-of-life impairments among US patients receiving topical therapy for atopic dermatitis

Manuscript

Autoimmune

Anderson P, Austin J, Lofland JH, Piercy P, Joish VN. Inadequate disease control, treatment dissatisfaction, and quality-of-life impairments among US patients receiving topical therapy for atopic dermatitis. Dermatol Ther. 2021; 11(): 1571-1585

Real world effectiveness and satisfaction with secukinumab in the treatment of patients with psoriatic arthritis: a population survey in five European countries

Manuscript

Autoimmune

Conaghan PG, Keininger DL, Holdsworth EA, Booth N, Modi NN, Tian H, Kiltz U. Real world effectiveness and satisfaction with secukinumab in the treatment of patients with psoriatic arthritis: a population survey in five European countries. Curr Med Res Opin. 2021; ():

Investigating diagnosis, treatment, and burden of disease in patients with ankylosing spondylitis in Central Eastern Europe and the United States: a Real-World Study

Manuscript

Autoimmune

Korotaeva T, Dina O, Holdsworth E, Fallon L, Milligan G, Meakin S, Wang L, Vasilescu R, Cappelleri JC, Deodhar A. Investigating diagnosis, treatment, and burden of disease in patients with ankylosing spondylitis in Central Eastern Europe and the United States: a Real-World Study. Clin Rheumatol. 2021; ():

Real-world study of the impact of recurrent/metastatic squamous cell carcinoma of the head and neck (R/M SCCHN) on quality of life and productivity in Europe

Manuscript

Bespoke

Singh P, Bennett B, Bailey T, Taylor-Stokes G, Rajkovic I, Contente M, Curtis S, Curtis C. Real-world study of the impact of recurrent/metastatic squamous cell carcinoma of the head and neck (R/M SCCHN) on quality of life and productivity in Europe. BMC Cancer. 2021; 21(): 854

Burden and quality of life among female and male patients with heart failure in Europe: a real-world cross-sectional study

Manuscript

Cardiovascular

Fonseca AF, Lahoz R, Proudfoot C, Corda S, Loefroth E, Jackson J, Cotton S, Studer R. Burden and quality of life among female and male patients with heart failure in Europe: a real-world cross-sectional study. Patient Prefer Adherence . 2021; 15(): 1693-1706

Health related quality of life among patients with HR+/HER2- early stage breast cancer

Manuscript

Oncology

Criscitiello C, Spurden D, Piercy J, Rider A, Williams R, Mitra D, Wild R, Corsaro M, Kurosky SK, Law EH,. Health related quality of life among patients with HR+/HER2- early stage breast cancer. Clin Ther. 2021; ():

Concern about addiction is associated with lower quality of life in patients with osteoarthritis: an exploratory, real?world data analysis

Manuscript

Pain

Garrison LP, Schepman P, Bushmakin AG, Robinson RL, Tive L, Hall J, Dzingina M, Jackson J, Berry M, Cappelleri JC, Silverman S. Concern about addiction is associated with lower quality of life in patients with osteoarthritis: an exploratory, real?world data analysis. Qual Life Res. 2021; ():

Impact of dementia-related behavioral symptoms on healthcare resource use and caregiver burden: Real-world data from Europe and the United States

Manuscript

Central nervous system

Chekani F, Pike J, Jones E, Husbands J, Khandker R. Impact of dementia-related behavioral symptoms on healthcare resource use and caregiver burden: Real-world data from Europe and the United States. JAD. 2021; 81(4): 1567-1578

Impact of chorea on self-care activity, employment, and health-care resource use in patients with Huntington’s disease

Manuscript

Rare diseases

Claassen DO, DeCourcy J, Mellor J, Johnston C, Iyer RG. Impact of chorea on self-care activity, employment, and health-care resource use in patients with Huntington’s disease. JHEOR. 2021; 8(1): 99-105

Real-world analysis of patient characteristics, treatment outcomes, and healthcare resource utilization across Europe in patients with newly diagnosed multiple myeloma ineligible for stem cell transplantation who received lenalidomide- or bortezomib-based regimens

Manuscript

Bespoke

Zamagni E, Dhanasiri S, Ghale A, Moore A, Roussel M. Real-world analysis of patient characteristics, treatment outcomes, and healthcare resource utilization across Europe in patients with newly diagnosed multiple myeloma ineligible for stem cell transplantation who received lenalidomide- or bortezomib-based regimens. Leuk Lymphoma . 2021; 62(10): 2492-2501

Exploring differences in clinical burden between adult and pediatric psoriasis patients: results from a realworld survey

Poster presentation

Autoimmune

Swanson E, Malatestinic W, Lucas J, Hetherington J, Somani N, Caraman M, Burge R, Meakin S, Konicek B,. Exploring differences in clinical burden between adult and pediatric psoriasis patients: results from a realworld survey. Poster presented at: SPD; 2021 Jul 8-10; VIRTUAL

Treatment patterns of paediatric patients with moderate to severe psoriasis based on real-world data from the EU5 and US

Poster presentation

Autoimmune

Seyger M, Bachhuber T, Fang J, Scott A, Lucas J, Meakin S, Hetherington J, Richardson C,. Treatment patterns of paediatric patients with moderate to severe psoriasis based on real-world data from the EU5 and US. Poster presented at: SPD; 2021 Jul 8-10; VIRTUAL

Patient-reported pain severity and health-related quality of life in patients with multiple myeloma in real world clinical practice

Manuscript

Oncology

Ludwig H, Bailey AL, Marongiu A, Keerun Khela K, Milligan G, Brewer Carlson K, Rider A, Seesaghur A. Patient-reported pain severity and health-related quality of life in patients with multiple myeloma in real world clinical practice. Cancer Rep. 2021; (): e1429

Patient-reported outcomes for migraine in the US and Europe: burden associated with multiple preventive treatment failures

Manuscript

Pain

Ford J, Nichols RM, Ye W, Tockhorn-Heidenreich A, Cotton S, Jackson J. Patient-reported outcomes for migraine in the US and Europe: burden associated with multiple preventive treatment failures. Clinicoecon Outcomes Res. 2021; 13(): 647-660

Analysis of treatment goals for patients with schizophrenia: a US survey of psychiatrists, patients with schizophrenia and caregivers

Poster presentation

Central nervous system

Chen M, Shepherd J, Bailey H, Wright J, Fitzgerald HM,. Analysis of treatment goals for patients with schizophrenia: a US survey of psychiatrists, patients with schizophrenia and caregivers. Poster presented at: ASCP; 2021 Jun 1-4; VIRTUAL

Characterization and treatment goals of patients on long-acting injectable antipsychotics vs oral antipsychotics: results from a patient/caregiver/psychiatrist survey

Poster presentation

Central nervous system

Fitzgerald HM, Shepherd J, Bailey H, Wright J, Chen M,. Characterization and treatment goals of patients on long-acting injectable antipsychotics vs oral antipsychotics: results from a patient/caregiver/psychiatrist survey. Poster presented at: ASCP; 2021 Jun 1-4; VIRTUAL

Humanistic and healthcare resource use burden in Japanese chronic kidney disease patients with anemia

Poster presentation

Metabolic

Okoro T, Amelio J, Matsuki T, Jackson J. Humanistic and healthcare resource use burden in Japanese chronic kidney disease patients with anemia . Poster presented at: JSN; 2021 Jun 18-20; Yokohama, Japan

Inadequate disease control, treatment dissatisfaction, and quality-of-life impairments among US patients receiving topical therapy for atopic dermatitis

Poster presentation

Autoimmune

Anderson P, Austin J, Lofland JH, Piercy J, Joish VN. Inadequate disease control, treatment dissatisfaction, and quality-of-life impairments among US patients receiving topical therapy for atopic dermatitis . Poster presented at: RAD; 2021 Jun 13; VIRTUAL

OnabotulinumtoxinA treatment satisfaction among patients with chronic migraine

Poster presentation

Pain

Tockhorn-Heidenreich A, Ford JH, Ye W, Jackson J,. OnabotulinumtoxinA treatment satisfaction among patients with chronic migraine. Poster presented at: EAN; 2021 Jun 19-22; VIRTUAL

Quantifying the incremental economic burden of Advanced Parkinson’s Disease: Real-world Evidence from EU5 countries

Oral presentation

Central nervous system

Chaudhuri KR, Odin P, Lindvall S, Domingos J, Alobaidi A, Kandukuri PL, Parra JC, Femia S, Oddsdottir J, Najlerahim S, Wright J, Ibrahim KR, Martinez-Martin P. Quantifying the incremental economic burden of Advanced Parkinson’s Disease: Real-world Evidence from EU5 countries. Oral presentation at: EAN; 2021 Jun 19-22; VIRTUAL

Physical, emotional and social pain communication by patients diagnosed and living with multiple myeloma

Manuscript

Oncology

Quinn B, Ludwig H, Bailey A, Khela K, Marongiu A, Brewer Carlson K, Rider A, Seesaghur A,. Physical, emotional and social pain communication by patients diagnosed and living with multiple myeloma. Pain Manag. 2021; ():

A real-world analysis of treatment patterns and clinical characteristics among patients with COPD who initiated multiple-inhaler triple therapy in New Zealand

Manuscript

Generate

Xu X, Milea D, Amador Navarro Rojas A, Braganza A, Holbrook T, Marett B, Young R, Scott RJ, Gribben B. A real-world analysis of treatment patterns and clinical characteristics among patients with COPD who initiated multiple-inhaler triple therapy in New Zealand. Int J Chron Obstruct Pulmon Dis. 2021; 16(): 1835-1850

The impact of COVID-19 on patient management and prescribing strategy across the EU and US: A real-world survey of rheumatologists, dermatologists, and gastroenterologists

Poster presentation

Autoimmune

Holdsworth E, Lukanova R, Hughes M, Hall J, Austin J, Taylor-Stokes G, Piercy J,. The impact of COVID-19 on patient management and prescribing strategy across the EU and US: A real-world survey of rheumatologists, dermatologists, and gastroenterologists. Poster presented at: EULAR; 2021 Jun 2-5; VIRTUAL

Physician and patient attitudes towards treat-to-target, its implementation and stated treatment goals in patients with rheumatoid arthritis in a real-world setting across europe

Poster presentation

Autoimmune

Fautrel B, Caporali R, Holdsworth E, Donaghy B, Khalid M, Moore M, Van Beneden K, Piette Y, Romero-Yuste S, Broen J, Taylor PC . Physician and patient attitudes towards treat-to-target, its implementation and stated treatment goals in patients with rheumatoid arthritis in a real-world setting across europe. Poster presented at: EULAR; 2021 Jun 2-5; VIRTUAL

Physician and patient perceptions of surgical procedures for knee OA across Japan, the US and 5 EU countries: results of a real-world study

Poster presentation

Pain

. Physician and patient perceptions of surgical procedures for knee OA across Japan, the US and 5 EU countries: results of a real-world study. Poster presented at: EULAR; 2021 Jun 2-5; VIRTUAL

ESSDAI and its association with patient outcomes in Sjögren’s syndrome: A real-world survey in the US

Poster presentation

Autoimmune

Ndife B, Hoskin B, Booth N. ESSDAI and its association with patient outcomes in Sjögren’s syndrome: A real-world survey in the US. Poster presented at: EULAR; 2021 Jun 2-5; VIRTUAL

Effectiveness of ixekizumab in patients with psoriatic arthritis: Results from a real-world European survey

Abstract only

Autoimmune

Tillett W, Navarro-Compán V, Booth N, Holzkaemper T, Hill J, Lubrano E, Truer T. Effectiveness of ixekizumab in patients with psoriatic arthritis: Results from a real-world European survey. Abstract accepted at: EULAR; 2021 Jun 2-5; VIRTUAL

Real-world outcomes associated with cognitive impairment among patients with schizophrenia

Poster presentation

Central nervous system

Kadakia A, Fan Q, Shepherd J, Bailey H, Dembek C. Real-world outcomes associated with cognitive impairment among patients with schizophrenia. Poster presented at: APA; 2021 May 1-5; VIRTUAL

Real-world evidence of reported symptoms and quality of life burden associated with chronic rhinosinusitis with nasal polyposis across disease severity and region

Poster presentation

Respiratory

Chen S, Biswas M, Scott M, Small M, Lee L, Emmanuel B, Ruiz S. Real-world evidence of reported symptoms and quality of life burden associated with chronic rhinosinusitis with nasal polyposis across disease severity and region. Poster presented at: ATS; 2021 May 14-19; VIRTUAL

Quantifying the economic burden prior to total joint replacement among patients with moderate-to-severe chronic pain in osteoarthritis: A retrospective analysis of linked primary and secondary care data in England

Oral presentation

Generate

Clewes P, Lohan C, Stevenson H, Coates G, Wood R, Blackburn S, Tritton T, Knaggs R, Dickson A, Walsh D . Quantifying the economic burden prior to total joint replacement among patients with moderate-to-severe chronic pain in osteoarthritis: A retrospective analysis of linked primary and secondary care data in England. Oral presentation at: BHS; 2021 Jun 9-11; VIRTUAL

Assessment of how modifiable and non-modifiable factors can impact fibrosis outcomes in non-alcoholic steatohepatitis patients: A 12-country real-world assessment

Poster presentation

Cardiovascular

Hallsworth K, Pike J, Carroll J, Higging V. Assessment of how modifiable and non-modifiable factors can impact fibrosis outcomes in non-alcoholic steatohepatitis patients: A 12-country real-world assessment. Poster presented at: EASL; 2021 Jun 23-26; VIRTUAL

Does fibrosis severity or diabetes status influence patient-reported lifestyle changes and degree of success among non-alcoholic steatohepatitis patients?

Poster presentation

Cardiovascular

Higgins V, Carroll J, Gillespie-Akar L. Does fibrosis severity or diabetes status influence patient-reported lifestyle changes and degree of success among non-alcoholic steatohepatitis patients?. Poster presented at: EASL; 2021 Jun 23-26; VIRTUAL

Health-related quality of life and lifestyle changes in patients with chronic kidney disease and hyperkalaemia: Real-world data from the US, five European countries and China

Manuscript

Metabolic

Grandy S, Jackson J, Moon R, Bluff D, Palaka E. Health-related quality of life and lifestyle changes in patients with chronic kidney disease and hyperkalaemia: Real-world data from the US, five European countries and China. Int J Clin Pract. 2021; ():

Caregivers of patients with heart failure: Burden and the determinants of health-related quality of life

Manuscript

Cardiovascular

Lahoz R, Proudfoot C, Fonseca AF, Loefroth E, Corda S, Jackson J, Cotton S, Studer R. Caregivers of patients with heart failure: Burden and the determinants of health-related quality of life. Patient Prefer Adherence . 2021; 15(): 1153-1164

Patients with COPD prefer improvement of cough and mucus over shortness of breath and improvement of combined daily symptoms over the reduction of exacerbations: A multi-country patient preference study

Poster presentation

Bespoke

Gutzwiller F, Criner GJ, Burgel P, Mycock K, Mellor P, Klein B, Jones B, Bottoli I, Cook N,. Patients with COPD prefer improvement of cough and mucus over shortness of breath and improvement of combined daily symptoms over the reduction of exacerbations: A multi-country patient preference study. Poster presented at: ATS; 2021 May 14-19; VIRTUAL

Real-world assessment of “OFF” episode–related healthcare resource utilization among patients with Parkinson’s disease in the United States

Manuscript

Central nervous system

Thach A, Jones E, Pappert E, Pike J, Wright J, Gillespie A,. Real-world assessment of “OFF” episode–related healthcare resource utilization among patients with Parkinson’s disease in the United States. J Med Econ. 2021; 24(1): 540-549

Current treatments used in clinical practice for major depressive disorder and treatment resistant depression in england: a retrospective database study

Manuscript

Generate

Denee T, Kerr C, Ming T, Wood R, Tritton T, Middleton-Dalby C, Massey O, Desai M. Current treatments used in clinical practice for major depressive disorder and treatment resistant depression in england: a retrospective database study . J Psychiatr Res. 2021; 139(): 172-178

Burden of fatigue among Crohn’s disease and ulcerative colitis patients: analyses from a global survey of patients and gastroenterologists

Poster presentation

Autoimmune

Regueiro M, Hunter T, Lukanova R, Shan M, Naegeli AN,. Burden of fatigue among Crohn’s disease and ulcerative colitis patients: analyses from a global survey of patients and gastroenterologists . Poster presented at: DDW; 2021 May 21-23; VIRTUAL

Rectal urgency among ulcerative colitis and crohn’s disease patients: analyses from a global survey

Poster presentation

Autoimmune

Ha C, Naegeli AN, Lukanova R, Shan M, Hunter T,. Rectal urgency among ulcerative colitis and crohn’s disease patients: analyses from a global survey. Poster presented at: DDW; 2021 May 21-23; VIRTUAL

Identifying care gaps in Parkinson’s disease patients eligible for Device-Aided Therapies: results from using the MANAGE-PD tool in patients from G7 countries

Poster presentation

Central nervous system

Fernandez HH, Odin P, Standaert DG, Henriksen T, Jimenez-Shahed J, Cubillos F, Alobaidi A, Jalundhwala YJ, Bao Y, Kukreja PK, Parra JC, Zamudio J, Onuk K, Wright J, Antonini A. Identifying care gaps in Parkinson’s disease patients eligible for Device-Aided Therapies: results from using the MANAGE-PD tool in patients from G7 countries. Poster presented at: AAN; 2021 Apr 17-22; VIRTUAL

Unmet needs and treatment patterns of advanced Parkinson’s disease patients in the United States

Poster presentation

Central nervous system

Malaty I, Jones SA, Dahodwala N, Alobaidi A, Ibrahim KR, Jalundhwala, Ladhani O, Wright J, Pike J, Rodriguez-Cruz R. Unmet needs and treatment patterns of advanced Parkinson’s disease patients in the United States. Poster presented at: AAN; 2021 Apr 17-22; VIRTUAL

The value of optional alarms in continuous glucose monitoring devices: a survey on patients and their physicians

Manuscript

Bespoke

Varughese B, Silvey M, Harper G, Rajkovic I, Hoffmann P. The value of optional alarms in continuous glucose monitoring devices: a survey on patients and their physicians. Diabetes Stoffw Herz. 2021; 30(): 231-242

Atopic dermatitis: Patient characteristics and patient-reported outcomes on topical therapy

Poster presentation

Autoimmune

Anderson P, Austin J, Lofland JH, Piercy J, Joish VN. Atopic dermatitis: Patient characteristics and patient-reported outcomes on topical therapy. Poster presented at: SID; 2021 May 3-8; VIRTUAL

The impact of COVID-19 on patient management across the EU and US

Poster presentation

Autoimmune

Piercy J, Holdsworth E, Hughes M, Austin J, Khela K, Taylor-Stoke G, Hall JP. The impact of COVID-19 on patient management across the EU and US . Poster presented at: ISPOR US; 2021 May 17-20; VIRTUAL

Treatment patterns and real-world outcomes among patients with episodic migraine in China: Results from the Chinese Adelphi Disease Specific Programme

Poster presentation

Pain

Zhao H, Zhang L, Ford J, Li Z, Zhong S, Ye W, Li J, Tockhorn-Heidenreich A, Cotton S, Chen C. Treatment patterns and real-world outcomes among patients with episodic migraine in China: Results from the Chinese Adelphi Disease Specific Programme . Poster presented at: ISPOR US; 2021 May 17-20; VIRTUAL

Physician reported reasons for advanced therapy treatment switches in rheumatoid arthritis patients: Results from a cross-sectional survey in the USA

Poster presentation

Autoimmune

Holdsworth EA, Donaghy B, Fox KM, Desai P, Collier D, Furst D. Physician reported reasons for advanced therapy treatment switches in rheumatoid arthritis patients: Results from a cross-sectional survey in the USA. Poster presented at: ISPOR US; 2021 May 17-20; VIRTUAL

Healthcare resource utilization (HCRU) for early-, middle- and late-stage amyotrophic lateral sclerosis (ALS) patients: Results from a real-world point-in-time survey

Poster presentation

Rare diseases

Stenson K, O’Callaghan L, Mellor J, Husbands J, Hatchell N, Wright J, Barlow S. Healthcare resource utilization (HCRU) for early-, middle- and late-stage amyotrophic lateral sclerosis (ALS) patients: Results from a real-world point-in-time survey. Poster presented at: ISPOR US; 2021 May 17-20; VIRTUAL

Long-acting bronchodilator use in chronic obstructive pulmonary disease in primary care in New Zealand: A retrospective study of treatment patterns and evolution using the HealthStat database

Manuscript

Generate

Milea D, Yeo SH, Nam Y, Navarro Rojas AA, Shantakumar S, Beale J, Marett B, Young RP, Scott RJ, Gribben B. Long-acting bronchodilator use in chronic obstructive pulmonary disease in primary care in New Zealand: A retrospective study of treatment patterns and evolution using the HealthStat database. Int J Chron Obstruct Pulmon Dis. 2021; 16(): 1075-1091

Physician-reported satisfaction with treatment and pain reduction in endometriosis patients receiving elagolix compared with other prescribed treatments

Poster presentation

Women's health

Taylor HS, Xu Y, Piercy J, Anderson P, Cross S, Surrey E,. Physician-reported satisfaction with treatment and pain reduction in endometriosis patients receiving elagolix compared with other prescribed treatments. Poster presented at: ACOG; 2021 Apr 30-2; VIRTUAL

Physician-patient concordance in the assessment of asthma control

Manuscript

Respiratory

Fuhlbrigge A, Marvel J, Electricwala B, Siddall J, Scott M, Middleton-Dalby C, Small M. Physician-patient concordance in the assessment of asthma control. J Allergy Clin Immunol Pract. 2021; 16(): S2213-2198

Cardiovascular risk profiles: How do eligibility criteria of the glucagon-like peptide-1 receptor agonist cardiovascular outcomes trials REWIND, LEADER and SUSTAIN-6 translate to a real-world population with Type 2 diabetes in the UK?

Poster presentation

Generate

Webb J, Rachman J, Mount J, von Arx L-B, Spanopoulos D, Wood R, Tritton T, Massey O, Idris I,. Cardiovascular risk profiles: How do eligibility criteria of the glucagon-like peptide-1 receptor agonist cardiovascular outcomes trials REWIND, LEADER and SUSTAIN-6 translate to a real-world population with Type 2 diabetes in the UK?. Poster presented at: ; 2021 Apr 19-30; VIRTUAL

A characterisation of the pharmacological management of moderate-to-severe chronic pain in patients with osteoarthritis in clinical practice in England: a retrospective analysis of primary care data

Poster presentation

Generate

Lohan C, Stevenson H, Coates G, Clewes P, Wood R, Blackburn S, Theo Tritton T, Knaggs R, Dickson A, Walsh DA,. A characterisation of the pharmacological management of moderate-to-severe chronic pain in patients with osteoarthritis in clinical practice in England: a retrospective analysis of primary care data. Poster presented at: BPS; 2021 Apr 27-29; VIRTUAL

Characterising the morbidity and mental health profile of patients with moderate-to-severe chronic pain in osteoarthritis: a retrospective analysis of linked primary and secondary care data in England

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Stevenson H, Lohan C, Coates G, Vijayakumar S, Clewes P, Wood R, Blackburn S, Tritton T, Knaggs R, Dickson A, Walsh DA. Characterising the morbidity and mental health profile of patients with moderate-to-severe chronic pain in osteoarthritis: a retrospective analysis of linked primary and secondary care data in England. Poster presented at: BPS; 2021 Apr 27-29; VIRTUAL

Quantifying the healthcare resource utilisation in the management of moderate-to-severe chronic pain among patients with chronic lower back pain in England: retrospective analysis of linked primary & secondary care data

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Coates G, Lohan C, Stevenson H, Clewes P, Wood R, Blackburn S, Tritton T, Knaggs R, Dickson A, Walsh DA. Quantifying the healthcare resource utilisation in the management of moderate-to-severe chronic pain among patients with chronic lower back pain in England: retrospective analysis of linked primary & secondary care data. Poster presented at: BPS; 2021 Apr 27-29; VIRTUAL

Quantifying the healthcare resource utilisation in the management of moderate-to-severe chronic pain among patients in England with concomitant chronic low back pain and osteoarthritis

Poster presentation

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Stevenson H, Lohan C, Coates G, Clewes P, Wood R, Blackburn S, Tritton T, Knaggs R, Dickson A, Walsh DA. Quantifying the healthcare resource utilisation in the management of moderate-to-severe chronic pain among patients in England with concomitant chronic low back pain and osteoarthritis. Poster presented at: BPS; 2021 Apr 27-29; VIRTUAL

Real-world outcomes for schizophrenia patients and caregivers by disease severity

Poster presentation

Central nervous system

Kadakia A, Fan Q, Shepherd J, Bailey H, Dembek C, Pike J, Williams R. Real-world outcomes for schizophrenia patients and caregivers by disease severity. Poster presented at: SIRS; 2021 Apr 17-21; VIRTUAL

Patient- and dermatologist-reported impacts of alopecia areata on patients stratified by disease severity: Results from a real-world study in the United States

Poster presentation

Autoimmune

Gandhi K, Anderson P, Ray M, Piercy J, Sikirica V, Manuel L, Austin J, Mostaghimi A. Patient- and dermatologist-reported impacts of alopecia areata on patients stratified by disease severity: Results from a real-world study in the United States . Poster presented at: AAD; 2021 Apr 23-25; VIRTUAL

The patient-reported burden of alopecia areata by current severity: A real-world study in the United States

Poster presentation

Autoimmune

Burge R, Anderson P, Austin J, Piercy J, Manuel L, Edson-Heredia E, McCollam J, Senna M. The patient-reported burden of alopecia areata by current severity: A real-world study in the United States. Poster presented at: AAD; 2021 Apr 23-25; VIRTUAL

Demonstrating the clinical value of MANAGE-PD tool in assessing symptom control of Parkinson’s disease patients: evidence from G7 countries

Poster presentation

Central nervous system

Antonini A, Odin P, Alobaidi A, Cubillos F, Schmidt PN, Jalundhwala YJ, Onuk K, Zamudio J, Kukreja PK, Jones E, Wright J, Fernandez HH,. Demonstrating the clinical value of MANAGE-PD tool in assessing symptom control of Parkinson’s disease patients: evidence from G7 countries. Poster presented at: SNS; 2021 Apr 9-10; VIRTUAL

Cross-walk of the Assessment of Spondyloarthritis International Society Health Index and Ankylosing Spondylitis Quality of Life Scores in Ankylosing Spondylitis and Non-radiographic Axial Spondyloarthritis patients

Manuscript

Autoimmune

Pike J, Dong Y, Piercy J, Booth N, Holdsworth E, Hunter T,. Cross-walk of the Assessment of Spondyloarthritis International Society Health Index and Ankylosing Spondylitis Quality of Life Scores in Ankylosing Spondylitis and Non-radiographic Axial Spondyloarthritis patients. Rheumatol Ther. 2021; 8(): 849–862

Quantifying the healthcare resource utilisation for the management of moderate to severe chronic pain among patients with osteoarthritis in England: a retrospective analysis of linked primary and secondary care data

Poster presentation

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Lohan C, Stevenson H, Coates G, Clewes P, Wood R, Blackburn S, Tritton T, Knaggs R, Dickson A, Walsh DA,. Quantifying the healthcare resource utilisation for the management of moderate to severe chronic pain among patients with osteoarthritis in England: a retrospective analysis of linked primary and secondary care data. Poster presented at: OARSI; 2021 Apr 29-1; VIRTUAL

Osteoarthritis in Italy: Impact on health-related quality of life and health care resources

Manuscript

Pain

Berto P, Domenica Sanna M, Jackson J, Berry M, Jackson J. Osteoarthritis in Italy: Impact on health-related quality of life and health care resources. . 2021; 22(1): 1-13

Characterizing the role of, and physical and emotional burden on caregivers of patients with heart failure: Results from a cross-sectional survey in Japan

Manuscript

Cardiovascular

Hayashi E, Mitani H, Murayama H, Anzai T, Studer R, Cotton S, Jackson J, Bailey H, Kitagawa H, Oyama N. Characterizing the role of, and physical and emotional burden on caregivers of patients with heart failure: Results from a cross-sectional survey in Japan. Geriatr Nurs. 2021; 42(2): 379-385

The burden of progressive supranuclear palsy on patients and caregivers by PSP phenotype: A cross-sectional study

Poster presentation

Rare diseases

Scowcroft A, Klein A, Gasalla T, Avbersek A, Wright J, Mellor J, Thompson A, Pillas D. The burden of progressive supranuclear palsy on patients and caregivers by PSP phenotype: A cross-sectional study . Poster presented at: ADPD; 2021 Mar 9-14; VIRTUAL

Physician perceptions of barriers to Epidermal Growth Factor Receptor mutation (EGFRm) testing in advanced (stage IIIb / IIIc / IV) Non-Small Cell Lung Cancer (NSCLC)

Poster presentation

Bespoke

Subramanian J, Chau M, Choi Y-L, Chou T-Y, Gregg J, Hui R, Leighl N, Marchetti A, Navani N, Kahangire DA, Bailey T, Silvey M, Makin R, Taylor A, Griesinger F,. Physician perceptions of barriers to Epidermal Growth Factor Receptor mutation (EGFRm) testing in advanced (stage IIIb / IIIc / IV) Non-Small Cell Lung Cancer (NSCLC) . Poster presented at: ELCC; 2021 Mar 25-27; VIRTUAL

The real-world use of Tyrosine Kinase Inhibitors (TKIs) in Epidermal Growth Factor Receptor mutated (EGFRm) advanced (stage IIIb / IIIc / IV) Non-Small Cell Lung Cancer (NSCLC) patients

Poster presentation

Bespoke

Subramanian J, Chau M, Choi Y-L, Chou T-Y, Gregg J, Hui R, Leighl N, Marchetti A, Navani N, Kahangire DA, Bailey T, Silvey M, Makin R, Taylor A, Griesinger F,. The real-world use of Tyrosine Kinase Inhibitors (TKIs) in Epidermal Growth Factor Receptor mutated (EGFRm) advanced (stage IIIb / IIIc / IV) Non-Small Cell Lung Cancer (NSCLC) patients . Poster presented at: ELCC; 2021 Mar 25-27; VIRTUAL

Delays in Epidermal Growth Factor Receptor mutation (EGFRm) testing in advanced (stage IIIb / IIIc / IV) Non-Small Cell Lung Cancer (NSCLC) patients and their impact on the use of first line Tyrosine Kinase Inhibitor (TKIs) in a real-world setting

Poster presentation

Bespoke

Griesinger F, Chau M, Choi Y-L, Chou T-Y, Gregg J, Hui R, Leighl N, Marchetti A, Navani N, Kahangire DA, Bailey T, Silvey M, Makin R, Taylor A, Subramanian J,. Delays in Epidermal Growth Factor Receptor mutation (EGFRm) testing in advanced (stage IIIb / IIIc / IV) Non-Small Cell Lung Cancer (NSCLC) patients and their impact on the use of first line Tyrosine Kinase Inhibitor (TKIs) in a real-world setting . Poster presented at: ELCC; 2021 Mar 25-27; VIRTUAL

Symptom burden and loss of independence in activities of daily living among patients with amyotrophic lateral sclerosis

Poster presentation

Rare diseases

Hagan M, Ciepielewska M, Wright J, Mellor J, Husbands J, Earl L, Hatchell N, Pike J. Symptom burden and loss of independence in activities of daily living among patients with amyotrophic lateral sclerosis. Poster presented at: MDA; 2021 Mar 15-18; VIRTUAL

Contemporary economic burden in a real-world heart failure population with Commercial and Medicare supplemental plans

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Lam CSP, Wood R, Vaduganathan M, Bueno H, Chin A, Luporini Saraiva G, Sörstadius E, Tritton T, Thomas J, Qin L. Contemporary economic burden in a real-world heart failure population with Commercial and Medicare supplemental plans. Clin Cardiol. 2021; 44(5): 646-655

Impact of sickle cell disease on patients’ daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY)

Manuscript

Bespoke

Osunkwo I, Andemariam B, Inusa BPD, El Rassi F, Francis-Gibson B, Nero A, Minniti CP, Trimnell C, Abboud MR, Arlet J, Colombatti R, de Montalembert M, Jain S, Jastaniah W, Nur E, Pita M, DeBonnett L, Ramscar N, Bailey T, RajkovicHooley O, James J. Impact of sickle cell disease on patients’ daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY). Am J Hematol . 2021; 96(4): 404?417

Extent and impact of inadequate disease control in US adults with a history of moderate to severe atopic dermatitis following introduction of new treatments

Manuscript

Autoimmune

Westh Vilsbøll A, Anderson P, Piercy J, Milligan G, Kragh N. Extent and impact of inadequate disease control in US adults with a history of moderate to severe atopic dermatitis following introduction of new treatments. Dermatol Ther. 2021; 11(2): 475-486

Genomic/genetic testing patterns for patients with metastatic castrate-resistant prostate cancer: Results from a real-world study in the United States

Poster presentation

Oncology

Genomic/genetic testing patterns for patients with metastatic castrate-resistant prostate cancer: Results from a real-world study in the United States. Poster presented at: GSC; 2021 Feb 11-13; VIRTUAL

Real-world symptoms, disease burden, resource use and quality of life in US patients with advanced renal cell cancer

Manuscript

Oncology

Hall J, Zanotti G, Kim R, Krulewicz S, Leith A, Bailey A, Liu FX, Kearney M. Real-world symptoms, disease burden, resource use and quality of life in US patients with advanced renal cell cancer. Future Oncol. 2021; 17(17): 2169–2182

Abaloparatide Real-World Patient Experience Study

Manuscript

Bespoke

Gold DT, Weiss R, Beckett T, Deal C, Epstein RS, James AL, Kernaghan JM, Mohseni M, Spiegel M, Vokes T, Roberts J, Bailey T, Wang Y, Williams SA. Abaloparatide Real-World Patient Experience Study. JBMR Plus. 2021; 5(3): e10457

Disease burden and economic impact of diagnosed non-alcoholic steatohepatitis in five European countries in 2018: A cost?of?illness analysis

Manuscript

Metabolic

Schattenberg JM, Lazarus JV, Newsome PN, Serfaty L, Aghemo A, Augustin S, Tsochatzis E, Ledinghen V de, Bugianesi E, Romero Gomez M, Bantel H, Ryder SD, Boursier J, Leroy V, Crespo J, Castera L, Floros L, Atella V, Mestre-Ferrandiz J, Elliott R, Kautz A, Morgan A, Hartmanis S, Vasudevan S, Pezzullo L, Trylesinski A, Cure S, Higgins V, Ratziu V. Disease burden and economic impact of diagnosed non-alcoholic steatohepatitis in five European countries in 2018: A cost-of-illness analysis. Liver Int. 2021; 41(): 1227-1242

Comparing symptoms, treatment patterns, and quality of life of ankylosing spondylitis and non-radiographic axial spondyloarthritis patients in the USA: findings from a patient and rheumatologist survey

Manuscript

Autoimmune

Hunter T, Sandoval D, Booth N, Holdsworth E, Deodhar A. Comparing symptoms, treatment patterns, and quality of life of ankylosing spondylitis and non-radiographic axial spondyloarthritis patients in the USA: findings from a patient and rheumatologist survey. Clin Rheumatol. 2021; ():

Full, partial, and modified permutations of the Mayo Score: Characterizing clinical and patient-reported outcomes in ulcerative colitis patients

Manuscript

Autoimmune

Naegeli A, Hunter T, Dong Y, Hoskin B, Middleton-Dalby C, Hetherington J, Stefani-Hunyady D, Canavan JB. Full, partial, and modified permutations of the Mayo Score: Characterizing clinical and patient-reported outcomes in ulcerative colitis patients. Crohns Colitis 360. 2021; 3(1): otab007

Disease course and treatment patterns in progressive supranuclear palsy: A real-world study

Manuscript

Central nervous system

Morgan JC, Ye X, Mellor JA, Golden KJ, Zamudio J, Chiodo LA, Bao Y, Xie T. Disease course and treatment patterns in progressive supranuclear palsy: A real-world study. J Neurol Sci. 2021; 421(117293):

Patient reported outcomes (PROs) with Poly(ADP ribose) polymerase inhibitors (PARPi) versus chemotherapy (CTX) in patients (pts) with germline BRCA 1/2 mutated (gBRCA1/2 mut) HER2 advanced breast cancer (ABC): results from a multi country real world (RW) study

Poster presentation

Oncology

Mahtani R, Niyazov A, Lewis L, Pike J, Rider A, Arondekar B, Patrick Lux MP. Patient reported outcomes (PROs) with Poly(ADP ribose) polymerase inhibitors (PARPi) versus chemotherapy (CTX) in patients (pts) with germline BRCA 1/2 mutated (gBRCA1/2 mut) HER2 advanced breast cancer (ABC): results from a multi country real world (RW) study. Poster presented at: SABCS; 2020 Dec 8-10; VIRTUAL

Burden of heart failure on patient daily life and patient–physician discordance in disease management: Results from a cross-sectional survey in Japan

Manuscript

Cardiovascular

Hayashi T, Morita Y, Mitani H, Murayama H, Anzai T, Studer S, Cotton S, Jackson J, Bailey H, Kitagawa H, Oyama N. Burden of heart failure on patient daily life and patient–physician discordance in disease management: Results from a cross-sectional survey in Japan. Circ Rep. 2020; 2(12): 722-729

Unmet Needs in Japanese Patients who Report Insufficient Efficacy with Triptans for Acute Treatment of Migraine: Retrospective Analysis of Real-World Data

Manuscript

Pain

Hirata K, Ueda K, Komori M, Ye W, Kim Y, Cotton S, Jackson J, Treuer T. Unmet Needs in Japanese Patients who Report Insufficient Efficacy with Triptans for Acute Treatment of Migraine: Retrospective Analysis of Real-World Data. Pain Ther. 2020; ():

Systemic lupus erythematosus symptom clusters and their association with patient?reported outcomes and treatment: Analysis of real?world data

Manuscript

Autoimmune

Touma Z, Hoskin B, Atkinson C, Bell D, Massey O, Lofland JH, Berry P, Karyekar CS, Costenbader KH. Systemic lupus erythematosus symptom clusters and their association with patient?reported outcomes and treatment: Analysis of real?world data. AC&R. 2020; ():

Multimodal Treatment Patterns for Osteoarthritis and Their Relationship to Patient-Reported Pain Severity: A Cross-Sectional Survey in the United States

Manuscript

Pain

Nalamachu SR, Robinson RL, Viktrup L, Cappelleri JC, Bushmakin AG, Tive L, Mellor J, Hatchell N, Jackson J. Multimodal Treatment Patterns for Osteoarthritis and Their Relationship to Patient-Reported Pain Severity: A Cross-Sectional Survey in the United States. J Pain Res. 2020; 13(): 3415-3425

A real-world assessment of outcomes in schizophrenia patients according to treatment response

Manuscript

Central nervous system

Khandker R, Quresh ZP, Shepherd J, Samant S, Chekani F, Bailey HML. A real-world assessment of outcomes in schizophrenia patients according to treatment response. Prim Care Companion CNS Disord. 2020; 22(6):

Pain severity and healthcare resource utilization in patients with osteoarthritis in the United States

Manuscript

Pain

Nalamachu S, Robinson RL, Viktrup L, Cappelleri JC, Bushmakin AG, Tive L, Mellor J, Hatchell N, Jackson J. Pain severity and healthcare resource utilization in patients with osteoarthritis in the United States. Postgrad Med J. 2021; 133(1): 10 ?19

Real-world assessment of the impact of “OFF” episodes on health-related quality of life among patients with Parkinson’s disease in the United States

Manuscript

Neurology

Thach A, Jones E, Pappert E, Pike J, Wright j, Gillespie A. Real-world assessment of the impact of “OFF” episodes on health-related quality of life among patients with Parkinson’s disease in the United States. BMC Neurol. 2021; 21(46):

International perspectives on management of inflammatory bowel disease: Opinion differences and similarities between patients and physicians from the IBD GAPPS survey

Manuscript

Bespoke

Rubin DT, Sninsky C, Siegmund B, Sans M, Hart A, Bressler B, Bouhnik Y, Armuzzi A, Afzali A. International perspectives on management of inflammatory bowel disease: Opinion differences and similarities between patients and physicians from the IBD GAPPS survey. Inflamm Bowel Dis. 2021; (): izab006

Impact of sickle cell disease symptoms on patients daily lives – rinal results from SWAY

Poster presentation

Bespoke

Osunkwo K, Andemariam B, Inusa B, El Rassi F, Francis-Gibson B, Nero A, Minniti C, Trimnell C, Abboud MR, Ariet JB, Colombatti R, deMontalembert M, Jain S, Jastaniah W, Nur E, DeBonnett L, James J. Impact of sickle cell disease symptoms on patients daily lives - rinal results from SWAY. Poster presented at: ASH; 2020 Dec 7-10; Orlando, FL

Reasons for non-surgical management of patients with Bacillus Calmette–Guérin (BCG)-unresponsive non-muscle invasive bladder cancer (NMIBC)

Poster presentation

Bespoke

Chun DS, Broughton E, Gooden K, Mycock K, Rajkovic I, Taylor-Stokes G. Reasons for non-surgical management of patients with Bacillus Calmette–Guérin (BCG)-unresponsive non-muscle invasive bladder cancer (NMIBC) . Poster presented at: SUO; 2020 Dec 3-5; VIRTUAL

Physician and patient satisfaction with poly(ADP-Ribose) polymerase inhibitors (Parpi) versus chemotherapy in adult patients with germline BRCA1/2 mutated (Gbrca1/2mut) HER2- advanced breast cancer (ABC): results from a multi-country real-world (RW) study

Poster presentation

Oncology

Lux MP, Niyazov A, Lewis K, Pike J, Rider A, Arondekar B, Mahtani R. Physician and patient satisfaction with poly(ADP-Ribose) polymerase inhibitors (Parpi) versus chemotherapy in adult patients with germline BRCA1/2 mutated (Gbrca1/2mut) HER2- advanced breast cancer (ABC): results from a multi-country real-world (RW) study. Poster presented at: SABCS; 2020 Dec 8-10; VIRTUAL

Presence of comorbidities and use of concomitant medications associated with Qtc prolongation/torsades de pointes In patients with Hr+/Her2- advanced breast cancer

Poster presentation

Oncology

Mahtani R, Lewis K, Clayton E, Last M, Mitra D, Kurosky S. Presence of comorbidities and use of concomitant medications associated with Qtc prolongation/torsades de pointes In patients with Hr+/Her2- advanced breast cancer. Poster presented at: SABCS; 2020 Dec 8-10; VIRTUAL

Multi-country study of the use of genomic assays in HR+, HER2- early breast cancer and characteristics of patients tested

Poster presentation

Oncology

Brown J, Williams R, Rider A, Wild R, Method M. Multi-country study of the use of genomic assays in HR+, HER2- early breast cancer and characteristics of patients tested. Poster presented at: SABCS; 2020 Dec 8-10; VIRTUAL

A real-world analysis of patient-reported outcomes in patients with migraine by preventive treatment eligibility status in the US and Europe

Manuscript

Pain

Ford JH, Foster SA, Nichols RM, Tockhorn-Heidenreich A, Ye W, Jackson J, Cotton S. A real-world analysis of patient-reported outcomes in patients with migraine by preventive treatment eligibility status in the US and Europe. JPRO. 2020; 4(): 53

Real-world psychosocial outcomes and disease burden in patients with schizophrenia and their caregivers

Poster presentation

Central nervous system

Lin D, Joshi K, Keenan A, Shepherd J, Bailey H, Berry M, Wright J, Kim E. Real-world psychosocial outcomes and disease burden in patients with schizophrenia and their caregivers. Poster presented at: ASHP; 2020 Dec 6-10; VIRTUAL

The association between schizophrenia relapses and real-world psychosocial outcomes in patients with schizophrenia

Poster presentation

Central nervous system

Lin D, Joshi K, Keenan A, Shepherd J, Bailey H, Berry M, Meakin S, Kim E. The association between schizophrenia relapses and real-world psychosocial outcomes in patients with schizophrenia. Poster presented at: ASHP; 2020 Dec 6-10; VIRTUAL

Burden of illness amongst subgroups of patients with primary Sjögren’s Syndrome and systemic involvement

Manuscript

Autoimmune

Gairy K, Knight C, Anthony P, Hoskin B. Burden of illness amongst subgroups of patients with primary Sjögren’s Syndrome and systemic involvement. Rheu. 2020; ():

Treatment persistence and colectomy-free outcomes in patients with ulcerative colitis receiving golimumab or adalimumab: a UK experience

Manuscript

Bespoke

Hoque S, Puenpatom A, Boccaletti S, Green C, Black CM, Roberts J, Rajkovic I, Milligan G. Treatment persistence and colectomy-free outcomes in patients with ulcerative colitis receiving golimumab or adalimumab: a UK experience. BMJ Open Gastro. 2020; 7(): e000476

Real-World Effectiveness of Belimumab in the Treatment of Systemic Lupus Erythematosus: Pooled Analysis of Multi-Country Data from the OBSErve Studies

Manuscript

Generate

Collins CE, Cortes-Hernandez J,Garcia MA, von Kempis J. Schwarting A. Touma Z, Kurtinecz M, Gairy K. Real-World Effectiveness of Belimumab in the Treatment of Systemic Lupus Erythematosus: Pooled Analysis of Multi-Country Data from the OBSErve Studies. Rheumatol Ther. 2020; 7(4): 949–965

Current practice and future thinking on the multidisciplinary management of osteoarthritis pain

Oral presentation

Generate

Walsh, D. Current practice and future thinking on the multidisciplinary management of osteoarthritis pain. Oral presentation at: PCRMM; 2020 Nov 12-13; VIRTUAL

Immune thrombocytopenia (ITP) World Impact Survey (I-WISh): patient and physician perceptions of diagnosis, signs and symptoms, and treatment

Manuscript

Bespoke

Cooper N, Kruse A, Kruse C, Watson S, Morgan M, Provan D, Ghanima W, Arnold DM, Tomiyama Y, Santoro C, Michel M, Laborde S, Lovrencic B, Hou M, Bailey T, Taylor-Stokes G, Haenig J, Bussel JB. Immune thrombocytopenia (ITP) World Impact Survey (I-WISh): patient and physician perceptions of diagnosis, signs and symptoms, and treatment. Am J Hematol. 2020; ():

A retrospective chart review study to quantify the monthly medical resource use and costs of treating patients with treatment resistant depression in the United Kingdom

Manuscript

Bespoke

Denee T, Ming T, Waller J, Bailey T, Rajkovic-Hooley O, Chloe Middleton-Dalby C, Le HH, Zhang Q, McCrone P, Taylor D. A retrospective chart review study to quantify the monthly medical resource use and costs of treating patients with treatment resistant depression in the United Kingdom. Curr Med Res Opin. 2020; ():

Characterization and treatment goals of patients on long-acting injectable antipsychotics vs oral antipsychotics: results from a patient/caregiver/psychiatrist survey

Poster presentation

Central nervous system

Fitzgerald HM, Shepherd J, Bailey H, Wright J, Chen M,. Characterization and treatment goals of patients on long-acting injectable antipsychotics vs oral antipsychotics: results from a patient/caregiver/psychiatrist survey. Poster presented at: NEI MAX!; 2020 Nov 5-8; VIRTUAL

Analysis of treatment goals for patients with schizophrenia: a US survey of psychiatrists, patients with schizophrenia and caregivers

Poster presentation

Central nervous system

Chen M, Shepherd J, Bailey H, Wright J, Fitzgerald HM,. Analysis of treatment goals for patients with schizophrenia: a US survey of psychiatrists, patients with schizophrenia and caregivers. Poster presented at: NEI MAX!; 2020 Nov 5-8; VIRTUAL

Health status/utilities in adult patients with germline BRCA1/2 mutated (gBRCA1/2mut) HER2- advanced breast cancer (ABC) treated with poly(ADP-ribose) polymerase inhibitors (PARPi) versus chemotherapy in a real world (RW) setting

Poster presentation

Oncology

Mahtani R, Niyazov A, Lewis K, Pike J, Rider A, Arondekar B, Lux MP. Health status/utilities in adult patients with germline BRCA1/2 mutated (gBRCA1/2mut) HER2- advanced breast cancer (ABC) treated with poly(ADP-ribose) polymerase inhibitors (PARPi) versus chemotherapy in a real world (RW) setting. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Work productivity and activity impairment among patients with HR+/HER2- locally advanced or metastatic breast cancer in France, Germany, Israel, Italy, Spain, and the United States

Poster presentation

Oncology

Mahtani R, Lewis K, Lambert A, Last M, Mitra D, Bambrick C, Kurosky S. Work productivity and activity impairment among patients with HR+/HER2- locally advanced or metastatic breast cancer in France, Germany, Israel, Italy, Spain, and the United States. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

First line treatment with natalizumab reduces healthcare resource use and impairment of work productivity and activity impairment in relapsing-remitting multiple sclerosis (RRMS) patients compared to natalizumab delayed use

Poster presentation

Neurology

Acosta C, Jones E, Pike J, Adeyemi A, Liao S, Su R, Xiong K, Husbands J. First line treatment with natalizumab reduces healthcare resource use and impairment of work productivity and activity impairment in relapsing-remitting multiple sclerosis (RRMS) patients compared to natalizumab delayed use. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Association of atypical treatment switches with outcomes in patients with schizophrenia

Poster presentation

Central nervous system

Khandker R, Chekani F, Qureshi Z, Shepherd J, Bailey H, Berry M, Pike J. Association of atypical treatment switches with outcomes in patients with schizophrenia. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

A multinational assessment of direct and indirect costs from a survey of patients with idiopathic pulmonary fibrosis (IPF)

Poster presentation

Respiratory

Coteur G, Mumford A, English B, Small M, Siddall J, Khalid JM, Langley J. A multinational assessment of direct and indirect costs from a survey of patients with idiopathic pulmonary fibrosis (IPF). Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Burden of idiopathic pulmonary fibrosis (IPF) on quality of life (QoL), work productivity and healthcare use

Poster presentation

Respiratory

Coteur G, Inoue Y, Cottin V, Small M, Siddall J, Langley J, Bonella F, Lancaster L. Burden of idiopathic pulmonary fibrosis (IPF) on quality of life (QoL), work productivity and healthcare use. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Healthcare resource use (HCRU) of non-muscle invasive bladder cancer (NMIBC) patients post Bacillus Calmette-Guérin (BCG)-unresponsive status in multiple countries

Poster presentation

Bespoke

Broughton E, Chun DS, Gooden K, Mycock K, Rajkovic I, Taylor Stokes G. Healthcare resource use (HCRU) of non-muscle invasive bladder cancer (NMIBC) patients post Bacillus Calmette-Guérin (BCG)-unresponsive status in multiple countries. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Real world burden and impact of brain metastases on quality of life and healthcare resource utilization among metastatic breast cancer patient

Poster presentation

Oncology

Ike C, Pike J, Lewis K, Bailey A, DeBusk K. Real world burden and impact of brain metastases on quality of life and healthcare resource utilization among metastatic breast cancer patient. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Real-world multi-country study of germline BRCA1/2 mutation (Gbrca1/2mut) testing and genetic counseling (GC) among patients (Pts) with human epidermal growth factor receptor 2- negative (HER2-) advanced breast cancer (ABC)

Poster presentation

Oncology

Mahtani R, Niyazov A, Lewis K, Rider A, Arondekar B, Lux MP. Real-world multi-country study of germline BRCA1/2 mutation (Gbrca1/2mut) testing and genetic counseling (GC) among patients (Pts) with human epidermal growth factor receptor 2- negative (HER2-) advanced breast cancer (ABC). Poster presented at: NSGC; 2020 Nov 18-22; VIRTUAL

Quantifying the real-world economic burden of major depressive disorder and treatment-resistant depression in England: National and regional estimates 

Poster presentation

Generate

Kailey R, Safinia L, Denee T, Wood R, Tritton T, Massey O. Quantifying the real-world economic burden of major depressive disorder and treatment-resistant depression in England: National and regional estimates . Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Qualitative interviews to explore drivers and behaviours associated with medication non-adherence across a range of diseases, treatment modalities, and countries

Oral presentation

OTHER

Morgan L, Exall E, Bentley S, Rossom R, Roche N, Higgins V, Piercy J, Arbuckle R, Khunti K. Qualitative interviews to explore drivers and behaviours associated with medication non-adherence across a range of diseases, treatment modalities, and countries . Oral presentation at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Direct and indirect costs associated with unresectable advanced or metastatic (ADV/MET) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC) for patients and their caregivers

Poster presentation

Oncology

Hall J, Khela K, Bertwistle D, Xiao H. Direct and indirect costs associated with unresectable advanced or metastatic (ADV/MET) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC) for patients and their caregivers . Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Treatment patterns and performance status in unresectable advanced or metastatic (ADV/MET) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC) patients receiving first line (1L) treatment

Poster presentation

Oncology

Hall J, Khela K, Middleton-Dalby C, Bertwistle D, Xiao H. Treatment patterns and performance status in unresectable advanced or metastatic (ADV/MET) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC) patients receiving first line (1L) treatment . Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Osteoarthritis patient hopes and satisfaction with prescription NSAIDs and opioids

Poster presentation

Pain

Conaghan P, Abraham L, Viktrup L, Cappelleri JC, Beck C, Bushmakin AG, Jackson J, Berry M, Jackson J. Osteoarthritis patient hopes and satisfaction with prescription NSAIDs and opioids. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

A comparison of characteristics of patients with osteoarthritis of the hip or knee who are willing or not to undergo total joint replacement surgery

Poster presentation

Pain

Conaghan P, Abraham L, Viktrup L, Cappelleri JC, Beck C, Bushmakin AG, Jackson J, Berry M, Jackson J. A comparison of characteristics of patients with osteoarthritis of the hip or knee who are willing or not to undergo total joint replacement surgery. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Work productivity and activity impairment in HR+/HER2- early stage breast cancer

Poster presentation

Oncology

Criscitiello C, Wild R, Rider A, Williams R, Mitra D, Bambrick C, Kurosky SK. Work productivity and activity impairment in HR+/HER2- early stage breast cancer. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

The burden of caring for patients with glioblastoma multiforme (GBM): A real-world study conducted in EU5 and USA

Poster presentation

Oncology

Singh P, Bennett B, Bailey A, Ribbands A, Kostikas M, Gogate A. The burden of caring for patients with glioblastoma multiforme (GBM): A real-world study conducted in EU5 and USA. Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

The impact of PsA disease control status on patient treatment satisfaction: Real-world survey in US and Europe

Poster presentation

Autoimmune

Orbai A, Holdsworth E, Baker T, Middleton-Dalby C, Shawi M, Booth N, Piercy J, Peterson S. The impact of PsA disease control status on patient treatment satisfaction: Real-world survey in US and Europe. Poster presented at: ACR; 2020 Nov 5-9; VIRTUAL

Fatigue in psoriatic arthritis (PsA): Prevalence in patients from the US and Europe, and impact on quality of life and work productivity

Poster presentation

Autoimmune

Walsh JA, Michaud K, Holdsworth E, Peterson S, Booth N, Meakin S, Chakravarty SD, Piercy J, Ogdie A. Fatigue in psoriatic arthritis (PsA): Prevalence in patients from the US and Europe, and impact on quality of life and work productivity. Poster presented at: ACR; 2020 Nov 5-9; VIRTUAL

The Impact Of High Disease Activity As Measured By SLEDAI And Drug Burden On Healthcare Utilization, Quality Of Life And Work Productivity In Systemic Lupus Erythematosus Patients

Poster presentation

Autoimmune

Touma Z, Hoskin B, Atkinson C, Bell D, Pike J, Lofland J, Berry P, Karyekar CS, Costenbader K. The Impact Of High Disease Activity As Measured By SLEDAI And Drug Burden On Healthcare Utilization, Quality Of Life And Work Productivity In Systemic Lupus Erythematosus Patients. Poster presented at: ACR; 2020 Nov 5-9; VIRTUAL

Impact Of Flares On Healthcare Resource Usage And PROs In Systemic Lupus Erythematosus Patients

Poster presentation

Autoimmune

Touma Z, Hoskin B, Atkinson C, Bell D, Pike J, Lofland J, Berry P, Karyekar CS, Costenbader K. Impact Of Flares On Healthcare Resource Usage And PROs In Systemic Lupus Erythematosus Patients. Poster presented at: ACR; 2020 Nov 5-9; VIRTUAL

Incremental Quality of Life Burden of Nonalcoholic Steatohepatitis Driven by Fibrosis or Type 2 Diabetes Status – or Both?

Poster presentation

Metabolic

Anstee QM, Shah D, Burslem K, Milligan G, Higgins V. Incremental Quality of Life Burden of Nonalcoholic Steatohepatitis Driven by Fibrosis or Type 2 Diabetes Status – or Both?. Poster presented at: AASLD; 2020 Nov 13-16; VIRTUAL

Real world patient characteristics and outcomes of patients with familial hyperlipidemia 

Poster presentation

CVRM

Piercy J, Shepherd J, Bailey H, Wild R. Real world patient characteristics and outcomes of patients with familial hyperlipidemia . Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Impact of comorbidities on the quality of life in patients with haematological tumours across Europe and the US 

Poster presentation

Oncology

Bailey A, Massey L, Rider A, Piercy J. Impact of comorbidities on the quality of life in patients with haematological tumours across Europe and the US . Poster presented at: ISPOR EU; 2020 Nov 14-18; VIRTUAL

Physician Attitudes towards Diagnosis, Treatment Initiation, and Unmet Needs in the Management of Anemia due to CKD: Results from a Real World Survey in Germany, Italy, and the United Kingdom

Poster presentation

Metabolic

Kabra M, Hammond T, Fleetwood A, Harrison L, Jackson J, Clayton S. Physician Attitudes towards Diagnosis, Treatment Initiation, and Unmet Needs in the Management of Anemia due to CKD: Results from a Real World Survey in Germany, Italy, and the United Kingdom. Poster presented at: ASN ; 2020 Oct 22-25; VIRTUAL

Health-related quality of life and its predictors in patients receiving first-line treatment for newly diagnosed glioblastoma multiforme in EU5: A real-world study

Poster presentation

Oncology

Bennett B, Postema R, Hall JP, Bailey A, Massey L, Fu AZ. Health-related quality of life and its predictors in patients receiving first-line treatment for newly diagnosed glioblastoma multiforme in EU5: A real-world study. Poster presented at: ASCO QCS; 2020 Oct 9-10; VIRTUAL

Patient-physician alignment in satisfaction with psoriatic arthritis treatment: Analysis from a cross-sectional survey in the United States and Europe

Manuscript

Autoimmune

Gossec L, Orbai A, Lobosco S, Moon R, Massey O, Piercy J, Cappelleri JC, Fallon L, Young P, Romero AB, Hsu MA, . Patient-physician alignment in satisfaction with psoriatic arthritis treatment: Analysis from a cross-sectional survey in the United States and Europe. J Psor Psor Arth. 2020; 5(4): 168-173

Risk factors of satisfaction with treatment in Chinese rheumatoid arthritis patients and rheumatologists : Findings from a cross-sectional survey

Poster presentation

Autoimmune

Zhao JL, Sato M, Liu X, Li JN, Meakin S, Holdsworth E, Zhan LJ. Risk factors of satisfaction with treatment in Chinese rheumatoid arthritis patients and rheumatologists : Findings from a cross-sectional survey. Poster presented at: APLAR; 2020 Oct 24-29; VIRTUAL

Cross-Sectional Survey to Assess Chronic Obstructive Pulmonary Disease (COPD) Medication Use by United States (US) Physicians

Poster presentation

Respiratory

Mannino D, Siddall J, Small M, Haq A, Bogart M. Cross-Sectional Survey to Assess Chronic Obstructive Pulmonary Disease (COPD) Medication Use by United States (US) Physicians. Poster presented at: ACCP; 2020 Oct 18-21; VIRTUAL

What can patient-reported treatment satisfaction and dissatisfaction tell us about unmet needs in psoriasis?

Poster presentation

Autoimmune

Reed C, Hill J, Schuster C, Hetherington J, Lucas J. What can patient-reported treatment satisfaction and dissatisfaction tell us about unmet needs in psoriasis?. Poster presented at: EADV; 2020 Oct 29-31; VIRTUAL

Immune thrombocytopenia (ITP) World Impact Survey (I-WISh): impact of ITP on health-related quality of life

Manuscript

Bespoke

Cooper N, Kruse A, Kruse C, Watson S, Morgan M, Provan D, Ghanima W, Arnold DM, Tomiyama Y, Santoro C, Michel M, Laborde S, Lovrencic B, Hou M, Bailey T, Taylor-Stokes G, Haenig J, Bussel JB. Immune thrombocytopenia (ITP) World Impact Survey (I-WISh): impact of ITP on health-related quality of life. Am J Hematol. 2020; ():

Flares among patients with psoriatic arthritis (PsA) – Frequency and impact on patient outcomes: Real-world survey in the US and Europe

Poster presentation

Autoimmune

Orbai A, Tillett W, Grieb S, Piercy J, Peterson S, Holdsworth E, Meakin S, Chakravarty SD, Booth N, Gossec L. Flares among patients with psoriatic arthritis (PsA) - Frequency and impact on patient outcomes: Real-world survey in the US and Europe. Poster presented at: ACR; 2020 Nov 5-9; VIRTUAL

Skin involvement in psoriatic arthritis (PsA) – The incremental impact of psoriasis on quality of life, disability and work productivity: Real-world survey in US and Europe

Poster presentation

Autoimmune

Walsh JA, Ogdie A, Michaud K, Peterson S, Holdsworth E, Meakin S, Chakravarty SD, Booth N, Schubert A, Piercy J, Gossec L. Skin involvement in psoriatic arthritis (PsA) - The incremental impact of psoriasis on quality of life, disability and work productivity: Real-world survey in US and Europe. Poster presented at: ACR; 2020 Nov 5-9; VIRTUAL

Anxiety and depression in psoriatic Arthritis (PsA) – Prevalence and impact on patient reported outcomes: Real-world survey in the US and Europe

Poster presentation

Autoimmune

L Gossec L, Walsh JA, Michaud K, Holdsworth E, Peterson S, Meakin S, Booth N, Chakravarty SD, Piercy J, Ogdie A. Anxiety and depression in psoriatic Arthritis (PsA) - Prevalence and impact on patient reported outcomes: Real-world survey in the US and Europe. Poster presented at: ACR; 2020 Nov 5-9; VIRTUAL

Does “5-2-1” identify patients with suspected Advanced Parkinson’s Disease? Evidence of clinical accuracy from G7 countries

Poster presentation

Central nervous system

Antonini A, Odin P, Henriksen T, Soileau MJ, Rodriguez-Cruz R, Alobaidi A, Jalundhwala YJ, Kandukuri PL, Parra JC, Onuk K, Kukreja PK, Gillespie A, Pike J, Chaudhuri KR. Does “5-2-1” identify patients with suspected Advanced Parkinson’s Disease? Evidence of clinical accuracy from G7 countries. Poster presented at: ICPDMD (MDS); 2020 Sep 12-16; VIRTUAL

Real world effectiveness of secukinumab in patients with ankylosing spondylitis: Findings from a recent cross sectional survey of rheumatologists and patients in Europe

Poster presentation

Autoimmune

Kiltz U, Holdsworth E, Tian H, Booth N, Anthony P, Helsche L, Keininger D, Conaghan PG. Real world effectiveness of secukinumab in patients with ankylosing spondylitis: Findings from a recent cross sectional survey of rheumatologists and patients in Europe. Poster presented at: SCR; 2020 Oct 22-25; Madrid, Spain

The Relationship Between Pruritus, Sleep Disruption, and Quality of Life (QoL) Among Patients With Moderate-to-Severe Atopic Dermatitis (AD) in Europe

Poster presentation

Autoimmune

DiBonaventura M, Anderson P, Piercy J, Massey L, Cappelleri JC, Llamado LJ, Feeney C. The Relationship Between Pruritus, Sleep Disruption, and Quality of Life (QoL) Among Patients With Moderate-to-Severe Atopic Dermatitis (AD) in Europe. Poster presented at: EADV; 2020 Oct 29-31;

Treatment Patterns for Moderate-to-Severe Atopic Dermatitis Among Patients in Europe

Poster presentation

Autoimmune

DiBonaventura M, Anderson P, Piercy J, Massey L, Cappelleri JC, Llamado LJ, Feeney C. Treatment Patterns for Moderate-to-Severe Atopic Dermatitis Among Patients in Europe. Poster presented at: EADV; 2020 Oct 29-31;

Humanistic Burden And Impact Of The Disease In Moderate To Severe Patients With Crohn’s Disease (CD) And Ulcerative Colitis (UC): Findings From A Cross Sectional Study In The US And France, Germany, Italy, Spain, UK (EU5)

Poster presentation

Autoimmune

Sikirica M, Lynch J, Lukanova R, Kershaw J, Wild R. Humanistic Burden And Impact Of The Disease In Moderate To Severe Patients With Crohn’s Disease (CD) And Ulcerative Colitis (UC): Findings From A Cross Sectional Study In The US And France, Germany, Italy, Spain, UK (EU5). Poster presented at: UEGW; 2020 Oct 11-13; VIRTUAL

Corticosteroid Use And The Associated Impact On Patients With Crohn’s Disease (CD) And Ulcerative Colitis (UC) In The US, France, Germany, Italy, Spain, And UK (EU5).

Poster presentation

Autoimmune

Sikirica M, Lynch J, Lukanova R, Kershaw J, Wild R. Corticosteroid Use And The Associated Impact On Patients With Crohn’s Disease (CD) And Ulcerative Colitis (UC) In The US, France, Germany, Italy, Spain, And UK (EU5).. Poster presented at: UEGW; 2020 Oct 11-13; VIRTUAL

Management And Unmet Need Amongst Mild And Moderate/ Severe CD And UU Patients: Findings From A Cross Sectional Study In The US And France, Germany, Italy, Spain, UK (EU5).

Poster presentation

Autoimmune

Sikirica M, Lynch J, Lukanova R, Kershaw J, Wild R. Management And Unmet Need Amongst Mild And Moderate/ Severe CD And UU Patients: Findings From A Cross Sectional Study In The US And France, Germany, Italy, Spain, UK (EU5).. Poster presented at: UEGW; 2020 Oct 11-13; VIRTUAL

Genomic/genetic testing (GT) patterns for patients with metastatic castrate-resistant prostate cancer (mCRPC): Interim results from a real-world study in Europe (EU5)

Poster presentation

Oncology

Leith A, Ribbands A, Gayle A, Payne S, McCrea C, Yang L, Burgents J, Ghate S. Genomic/genetic testing (GT) patterns for patients with metastatic castrate-resistant prostate cancer (mCRPC): Interim results from a real-world study in Europe (EU5). Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

Living with Ulcerative Colitis Study (LUCY) in England: A retrospective study evaluating healthcare resource utilisation and direct healthcare costs of postoperative care in ulcerative colitis

Manuscript

Generate

Brookes MJ, Waller J, Cappelleri JC, Modesto I, DiBonaventura MD, Bohm N, Mokgokong R, Massey O, Wood R, Bargo D. Living with Ulcerative Colitis Study (LUCY) in England: A retrospective study evaluating healthcare resource utilisation and direct healthcare costs of postoperative care in ulcerative colitis. BMJ Open Gastro. 2020; 7(): e000456

Treatment patterns, outcomes and clinical characteristics in advanced renal cell carcinoma: A real-world US study

Manuscript

Oncology

Hall J, Zanotti G, Kim R, Krulewicz S, Leith A Bailey A, Liu F, Kearney M. Treatment patterns, outcomes and clinical characteristics in advanced renal cell carcinoma: A real-world US study. Future Oncol. 2020; ():

Real World Data Availability and Quality in Asia Pacific. Assessment and implications for research and healthcare decision-making

Poster presentation

Generate

Monsanto H, Salomonsson S, Spiteri C, van Bavel J. Real World Data Availability and Quality in Asia Pacific. Assessment and implications for research and healthcare decision-making. Poster presented at: ISPOR APAC; 2020 Sep 14-16; VIRTUAL

Impact of T2DM Patients’ Knowledge of Their Individualized HbA1c Goal on Glycemic Control

Poster presentation

Metabolic

Boggs R, Lautsch L, Milligan G, Higgins V. Impact of T2DM Patients’ Knowledge of Their Individualized HbA1c Goal on Glycemic Control. Poster presented at: EASD; 2020 Sep 21-25; VIRTUAL

Demonstrating the clinical value of MANAGE-PD tool in assessing symptom control of Parkinson’s disease patients: Evidence from G7 Countries

Poster presentation

Central nervous system

Antonini A, Odin P, Alobaidi A, Cubillos F, Schmidt PN, Jalundhwala YJ, Onuk K, Zamudio J, Kukreja PK, Jones E, Wright J, Fernandez HH. Demonstrating the clinical value of MANAGE-PD tool in assessing symptom control of Parkinson’s disease patients: Evidence from G7 Countries. Poster presented at: ICPDMD (MDS); 2020 Sep 12-16; VIRTUAL

Psychometric properties of clinical indicators of device-aided therapy eligibility among Parkinson’s Disease patients: Real-world data from 6 countries

Poster presentation

Central nervous system

Chaudhuri KR, Pahwa R, Isaacson S, Merola A, Alobaidi A, Kandukuri, Parra JC, Bergmann L, Jones E, Antonini A. Psychometric properties of clinical indicators of device-aided therapy eligibility among Parkinson’s Disease patients: Real-world data from 6 countries. Poster presented at: MDS; 2020 Sep 12-16; VIRTUAL

Quantifying the incremental burden of advancing Parkinson’s Disease in patients meeting the “5-2-1” Criteria: Results from an international dataset from G7 Countries

Poster presentation

Central nervous system

Malaty IA, Skorvanek M, Alobaidi A, Onuk K, Bergmann L, Femia S, Lee MY, Jones E, Pike J, Martinez-Martin P. Quantifying the incremental burden of advancing Parkinson's Disease in patients meeting the “5-2-1” Criteria: Results from an international dataset from G7 Countries. Poster presented at: ICPDMD (MDS); 2020 Sep 12-16; VIRTUAL

Real-world patient-reported outcomes of women receiving initial endocrine-based therapy for HR+/HER2? advanced breast cancer in five European countries

Manuscript

Oncology

Davie A, Cuyun Carter G, Rider A, Pike J, Lewis K, Bailey A, Price GL, Ringeisen F, Pivot X. Real-world patient-reported outcomes of women receiving initial endocrine-based therapy for HR+/HER2? advanced breast cancer in five European countries. BMC Cancer. 2020; 20(): 855

Real-world multi-country study of treatment trends among patients (pts) with HER2? BRCA1/2 mutated (BRCA1/2mut) advanced breast cancer (ABC)

Poster presentation

Oncology

Mahtani R, Niyazov A, Lewis K, Massey L, Rider A, Arondekar B, Lux MP. Real-world multi-country study of treatment trends among patients (pts) with HER2? BRCA1/2 mutated (BRCA1/2mut) advanced breast cancer (ABC). Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

Real-world (RW) multi-country study of BRCA1/2 mutation (BRCA1/2mut) testing trends among adult patients (pts) with HER2? advanced breast cancer (ABC)

Poster presentation

Oncology

Mahtani R, Niyazov A, Lewis K, Massey L, Rider A, Arondekar B, Lux MP. Real-world (RW) multi-country study of BRCA1/2 mutation (BRCA1/2mut) testing trends among adult patients (pts) with HER2? advanced breast cancer (ABC). Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

Real-world (RW) multi-country study of BRCA1/2 testing in adult patients (pts) with HER2?advanced breast cancer (ABC)

Poster presentation

Oncology

Lux MP, Niyazov A, Lewis K, Rider A, Arondekar B, Mahtan R. Real-world (RW) multi-country study of BRCA1/2 testing in adult patients (pts) with HER2?advanced breast cancer (ABC). Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

First-line treatment patterns in HR+/HER2- locally advanced or metastatic breast cancer in Europe

Poster presentation

Oncology

Lewis K, Kurosky S, Last M, Mitra D, Lambert A, Mahtani R. First-line treatment patterns in HR+/HER2- locally advanced or metastatic breast cancer in Europe. Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

Treatment Sequencing In Hr+/Her2- Locally Advanced Or Metastatic Breast Cancer: A Real-World Retrospective Study In France, Germany, Italy, And Spain

Poster presentation

Oncology

Lewis K, Kurosky S, Last M, Mitra D, Lambert A, Mahtani R. Treatment Sequencing In Hr+/Her2- Locally Advanced Or Metastatic Breast Cancer: A Real-World Retrospective Study In France, Germany, Italy, And Spain. Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

Genomic Testing, Biomarkers, and Treatment Patterns in Early Breast Cancer

Poster presentation

Oncology

Method M, Rider A, Williams R, Brown J. Genomic Testing, Biomarkers, and Treatment Patterns in Early Breast Cancer. Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

Impact of clinical characteristics, patients’ perception of treatment goals and endocrine therapy history on HRQOL in HR+, HER2- early stage breast cancer patients

Poster presentation

Oncology

Williams R, Brown J, Rider A, Wild R, Clayton E, Method M. Impact of clinical characteristics, patients' perception of treatment goals and endocrine therapy history on HRQOL in HR+, HER2- early stage breast cancer patients. Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

A multinational real-world study on HR+, HER2- early stage breast cancer patients’ disease awareness, satisfaction, and involvement in treatment decisions

Poster presentation

Oncology

Rider A, Method M, Williams R, Piercy J, Clayton E, Brown J. A multinational real-world study on HR+, HER2- early stage breast cancer patients' disease awareness, satisfaction, and involvement in treatment decisions. Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

Idiopathic pulmonary fibrosis (IPF): the patient journey

Poster presentation

Respiratory

Cottin V, Bonella F, Small M, Siddall J, Langley J, Inoue Y, Lancaster L. Idiopathic pulmonary fibrosis (IPF): the patient journey. Poster presented at: ERS; 2020 Sep 7-9; VIRTUAL

Clinical burden of idiopathic pulmonary fibrosis (IPF): physician and patient perception

Poster presentation

Respiratory

Bonella F, Inoue Y, Small M, Siddall J, Langley J, Cottin V, Lancaster L. Clinical burden of idiopathic pulmonary fibrosis (IPF): physician and patient perception. Poster presented at: ERS; 2020 Sep 7-9; VIRTUAL

Burden of idiopathic pulmonary fibrosis (IPF) on quality of life (QoL), work productivity, and healthcare use

Poster presentation

Respiratory

Inoue Y, Cottin V, Small M, Siddall J, Langley J, Bonella F, Lancaster L. Burden of idiopathic pulmonary fibrosis (IPF) on quality of life (QoL), work productivity, and healthcare use. Poster presented at: ERS; 2020 Sep 7-9; VIRTUAL

The humanistic burden reported by patients with unresectable locally advanced or metastatic (adv/met) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC): an international real-world survey

Poster presentation

Oncology

Hall J, Khela K, Moon R, Middleton-Dalby C, Bertwistle D, Xiao H. The humanistic burden reported by patients with unresectable locally advanced or metastatic (adv/met) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC): an international real-world survey . Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

Impact on work productivity in unresectable locally advanced or metastatic gastric cancer, gastroesophageal junction cancer and esophageal adenocarcinoma patients and their caregivers

Poster presentation

Oncology

Xiao H, Hall J, Khela K, Moon R, Bertwistle D. Impact on work productivity in unresectable locally advanced or metastatic gastric cancer, gastroesophageal junction cancer and esophageal adenocarcinoma patients and their caregivers . Poster presented at: ESMO; 2020 Sep 19-21; VIRTUAL

Drug treatment patterns and work productivity in chronic kidney disease patients with anemia in China: Cross sectional analysis of real-world data

Manuscript

Metabolic

van Haalen H, Sloand J, Moon R, Palaka E, Milligan G, Allum A, Jackson J. Drug treatment patterns and work productivity in chronic kidney disease patients with anemia in China: Cross sectional analysis of real-world data . Kid Res Clin Pract. 2020; 39(3): 318-333

Biologic Disease-Modifying Antirheumatic Drug Prescription Patterns Among Rheumatologists in Europe and Japan

Manuscript

Autoimmune

Sullivan E, Kershaw J, Blackburn S, Mahajan P, Boklage SH . Biologic Disease-Modifying Antirheumatic Drug Prescription Patterns Among Rheumatologists in Europe and Japan. Rheumatol Ther. 2020; 7(3): 517-535

Pain and fatigue in patients with ankylosing spondylitis treated with TNF inhibitors: Multi-national real-world findings

Manuscript

Autoimmune

Strand V, Deodhar A, Alten R, Sullivan E, Blackburn S, Tian H, Gandhi KK, Jugl SM, Conaghan PG. Pain and fatigue in patients with ankylosing spondylitis treated with TNF inhibitors: Multi-national real-world findings. JCR. 2020; ():

Assessment of Real-Life Outcomes in Schizophrenia Patients according to Compliance

Manuscript

Central nervous system

Qureshi ZP, Khandker R, Shepherd J, Samant S, Chekani F, Bailey HML. Assessment of Real-Life Outcomes in Schizophrenia Patients according to Compliance. . 2020; (): 5848601

Characterization and treatment goals of patients treated with long-acting injectable antipsychotics versus oral antipsychotics: Results from a patient/caregiver/psychiatrist survey

Poster presentation

Central nervous system

Fitzgerald HM, Shepherd J, Bailey H, Berry M, Wright J, Chen M. Characterization and treatment goals of patients treated with long-acting injectable antipsychotics versus oral antipsychotics: Results from a patient/caregiver/psychiatrist survey. Poster presented at: ASCP; 2020 Sep 9-11; Austin, TX

Individualized Glycemic Control in Type 2 Diabetes in Europe and the United States

Poster presentation

Metabolic

Lautsch D, McLeod E, Wang T, Rajpathak S, Gonzalez C, Malkani S, Milligan G, Higgins V. Individualized Glycemic Control in Type 2 Diabetes in Europe and the United States. Poster presented at: ICPE; 2020 Sep 16-19; VIRTUAL

Economic impact of delayed multiple-inhailer triple therapy initiation in COPD patients

Poster presentation

Respiratory

Ismaila AS, Wood R, Anley G, Nam Y, Bluff D, Sansbury L. Economic impact of delayed multiple-inhailer triple therapy initiation in COPD patients. Poster presented at: ERS; 2020 Sep 7-9; VIRTUAL

Burden of Illness in Patients With Chronic Hypoparathyroidism Not Adequately Controlled With Conventional Therapy: European Subanalysis of a Global Patient Survey

Poster presentation

Bespoke

Siggelkow H, Germak J, Marelli C, Chen K, Dahl-Hansen H, Glenister E, Bent-Ennakhil N, Judge D, Mycock K, Clarke BL.. Burden of Illness in Patients With Chronic Hypoparathyroidism Not Adequately Controlled With Conventional Therapy: European Subanalysis of a Global Patient Survey. Poster presented at: ECE; 2020 Sep 5-9; VIRTUAL

Disease characteristics and the burden of joint and skin involvement amongst people with psoriatic arthritis: A population survey

Manuscript

Autoimmune

Tillett W, Merola JF, Thac¸i D, Holdsworth E, Booth N, Lobosco LS. Milligan G, Hufford MM, Birt JA, Boehncke WH. Disease characteristics and the burden of joint and skin involvement amongst people with psoriatic arthritis: A population survey. Rheumatol Ther. 2020; 7(3): 617 - 637

Drivers of Prescribing Long-Acting Injectable Antipsychotics to Patients with Schizophrenia

Poster presentation

Central nervous system

Keenan A, Lin D, Shepherd J, Bailey H, Wright J, Benson C, Bacon K, Kim E. Drivers of Prescribing Long-Acting Injectable Antipsychotics to Patients with Schizophrenia. Poster presented at: ; 2020 Sep 10-13;

Type 2 inflammation-related comorbidities among patients with asthma, chronic rhinosinusitis with nasal polyps and atopic dermatitis

Poster presentation

Autoimmune

Khan AH, Gouia I, Kamat S, Ortiz B, Johnson R, Siddall J, Small M. Type 2 inflammation-related comorbidities among patients with asthma, chronic rhinosinusitis with nasal polyps and atopic dermatitis. Poster presented at: ERS; 2020 Sep 7-9; VIRTUAL

The Burden of Pain Associated with Osteoarthritis in the Hip or Knee from the Patient’s Perspective: A Multinational Cross-Sectional Study

Manuscript

Pain

Jackson J, Iyer R, Mellor J, Wei W. The Burden of Pain Associated with Osteoarthritis in the Hip or Knee from the Patient’s Perspective: A Multinational Cross-Sectional Study. Adv Ther. 2020; (37): 3985–3999

Factors associated with insufficient response to acute treatment of migraine in Japan: analysis of real-world data from the Adelphi Migraine Disease Specific Programme

Manuscript

Pain

Hirata K, Ueda K, Ye W, Kim Y, Komori M, Jackson J, Cotton S, Rajan N, Treuer T. Factors associated with insufficient response to acute treatment of migraine in Japan: analysis of real-world data from the Adelphi Migraine Disease Specific Programme. BMC Neurol. 2020; 20(): 274

Deleterious impact of advanced non-alcoholic steatohepatitis on multiple patient-relevant outcomes: An international, cross-sectional, real-world study

Poster presentation

Metabolic

Anstee QM, Shah D, Burslem K, Piercy J, Milligan G, Higgins V. Deleterious impact of advanced non-alcoholic steatohepatitis on multiple patient-relevant outcomes: An international, cross-sectional, real-world study. Poster presented at: EASL; 2020 Aug 25-28; London, England

Patient-reported benefits for future non-alcoholic steatohepatitis therapy; a global real-world study among 1,035 patients across 12 countries

Poster presentation

Metabolic

Higgins V, Piercy J, Jackson J, Williams N. Patient-reported benefits for future non-alcoholic steatohepatitis therapy; a global real-world study among 1,035 patients across 12 countries. Poster presented at: EASL; 2020 Aug 25-28;

Caregiver burden of patients with heart failure with a left ventricular ejection fraction (LVEF) less than or equal to 60%: a multinational real-world survey in EU

Poster presentation

Cardiovascular

Lahoz R, Corda S, Proudfoot C, Fonseca, Cotton S, Jackson J, Studer R. Caregiver burden of patients with heart failure with a left ventricular ejection fraction (LVEF) less than or equal to 60%: a multinational real-world survey in EU. Poster presented at: ESC; 2020 Aug 29-02; VIRTUAL

Concordance between patient and physician reported symptoms in patients with heart failure and a LVEF equal to or less than 60%: a multinational real-world survey in EU

Poster presentation

Cardiovascular

Fonseca AF, Corda S, Lahoz R, Proudfoot C, Jackson J, Cotton S, Studer R. Concordance between patient and physician reported symptoms in patients with heart failure and a LVEF equal to or less than 60%: a multinational real-world survey in EU. Poster presented at: ESC; 2020 Aug 29-02; VIRTUAL

Patients with heart failure and a LVEF less than 40% present an overall lower health related quality of life than those with LVEF between 40% and 60%: a multinational real-world survey in EU

Poster presentation

Cardiovascular

Proudfoot C, Fonseca AF, Lahoz R, Corda S, Cotton S, Jackson J, Studer R. Patients with heart failure and a LVEF less than 40% present an overall lower health related quality of life than those with LVEF between 40% and 60%: a multinational real-world survey in EU. Poster presented at: ESC; 2020 Aug 29-02; VIRTUAL

Female patients with heart failure and a LVEF less than or equal to 60% present an overall lower health related quality of life than males: A multinational real-world survey in EU

Oral presentation

Cardiovascular

Lahoz R, Fonseca AF, Jackson J, Cotton S, Studer R. Female patients with heart failure and a LVEF less than or equal to 60% present an overall lower health related quality of life than males: A multinational real-world survey in EU. Oral presentation at: ESC; 2020 Aug 29-02; VIRTUAL

A Real-world analysis of patient characteristics, treatment patterns and level of impairment in patients with migraine who are insufficient responders versus responders to acute treatment

Manuscript

Pain

Lombard L, Ye W, Nichols R, Jackson J, Cotton S, Joshi S. A Real-world analysis of patient characteristics, treatment patterns and level of impairment in patients with migraine who are insufficient responders versus responders to acute treatment. Headache. 2020; ():

Content Validity of MANAGE-PD Tool: Real-world evidence from PD patients in G7 Countries

Poster presentation

Central nervous system

Fernandez HH, Odin P, Standaert DG, Henriksen T, Cubillos F, Alobaidi A, Jalundhwala YJ, Bao Y, Onuk K, Zamudio J, Kukreja PK, Gillespie A, Massey L, Antonini A. Content Validity of MANAGE-PD Tool: Real-world evidence from PD patients in G7 Countries. Poster presented at: IAPRD; 2020 Jun 7-10; Prague, Czech Republic

A real-world observational study to describe NHS resource use for the management of moderate-to-severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17

Oral presentation

Bespoke

Hennessy L, Rajkovic I, Roberts J, Richards L, Richard Hudson R. A real-world observational study to describe NHS resource use for the management of moderate-to-severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17. Oral presentation at: BAD; 2020 Jul 7-9; Manchester, UK

Health-related quality of life based on response to triptans in people with migraine: Analysis of real-world data

Poster presentation

Pain

Lipton RB, Silberstein SD, Baradaran S,Shewale AR, Cotton S, Jackson J, Viswanathan HN. Health-related quality of life based on response to triptans in people with migraine: Analysis of real-world data. Poster presented at: AHS; 2020 Jul 11-14; Philadelphia, PA

Opioid use, rebound headache, and resource utilization among migraine patients with insufficient response to triptans based on real-world data

Poster presentation

Pain

Silberstein SD, Shewale AR, Baradaran S, Lipton RB, Cotton S, Jackson J, Viswanathan HN. Opioid use, rebound headache, and resource utilization among migraine patients with insufficient response to triptans based on real-world data. Poster presented at: AHS; 2020 Jul 11-14; Philadelphia, PA

Real-World Experience With Dolutegravir-Based Two-Drug Regimens

Manuscript

Bespoke

Ward DJ, Ramgopal MN, Riedel D, Garris C, Dhir S, Waller J, Roberts J, Mycock K, Oglesby A, Collins B, Dominguez M, Pike JS, Mrus JM. Real-World Experience With Dolutegravir-Based Two-Drug Regimens. AIDS Res Treat. 2020; (): 5923256

The relationship of pain and fatigue with health-related quality of life and work in patients with psoriatic arthritis on TNFi: Results of a multi-national real-world study

Manuscript

Autoimmune

Conaghan PG, Alten R, Deodhar A, Sullivan E, Blackburn S, Tian H, Gandhi KK, Jugl SM, Strand V. The relationship of pain and fatigue with health-related quality of life and work in patients with psoriatic arthritis on TNFi: Results of a multi-national real-world study. RMD Open. 2020; 6(2): e001240

The impact of high disease activity as measured by SLEDAI and drug burden-on healthcare utilization, quality of life and work productivity in systemic lupus erythematosus patients

Abstract only

Autoimmune

Touma Z, Hoskin B, Atkinson C, Bell D, Pike J, Lofland J, Berry P, Karyekar CS, Costenbader K. The impact of high disease activity as measured by SLEDAI and drug burden-on healthcare utilization, quality of life and work productivity in systemic lupus erythematosus patients. Abstract accepted at: EULAR; 2020 Jun 3-6; VIRTUAL

Impact of flares on healthcare resource usage and PROs in systemic lupus erytematosus patients

Poster presentation

Autoimmune

Touma Z, Hoskin B, Atkinson C, Bell D, Pike J, Lofland J, Berry P, Karyekar CS, Costenbader K. Impact of flares on healthcare resource usage and PROs in systemic lupus erytematosus patients. Poster presented at: EULAR; 2020 Jun 3-6; VIRTUAL

Patient and healthcare professional perceptions of the impact of sickle cell disease on daily life, symptom burden and treatment: Results from the International Sickle Cell World Assessment Survey (SWAY)

Poster presentation

Bespoke

Trimnell C, James J, Andemariam B, Inusa B, El Rassi F, Francis-Gibson B, Nero A, Minniti C, Abboud MR, Arlet J-B, Colombatti R, de Montalembert M, Jain S, Jastaniah W, Nur E, Pita M, Ramscar N, Bailey T, Rajkovic-Hooley O, Osunkwo I. Patient and healthcare professional perceptions of the impact of sickle cell disease on daily life, symptom burden and treatment: Results from the International Sickle Cell World Assessment Survey (SWAY). Poster presented at: EHA; 2020 Jun 11-14; VIRTUAL

Skin involvement in psoriatic arthritis (PsA) – The incremental impact of psoriasis on quality of life, disability and work productivity: Real-world survey in US and Europe

Abstract only

Autoimmune

Walsh JA, Ogdie A, Michaud K, Peterson S, Holdsworth E, Bruce Wirta S, Meakin S, Chakravarty SD, Schubert A, Gossec L. Skin involvement in psoriatic arthritis (PsA) - The incremental impact of psoriasis on quality of life, disability and work productivity: Real-world survey in US and Europe. Abstract accepted at: EULAR; 2020 Jun 3-6; VIRTUAL

Impact of immune thrombocytopenia on emotional wellbeing: A patient’s perspective from the ITP World Impact Survey (I-WISh)

Poster presentation

Bespoke

Cooper N, Ghanima W, Kruse A, Kruse C, Tomiyama Y, Provan D, Hou M, Santoro C, Laborde S, Morgan M, Michel M, Lovrencic B, Bailey T, Haenig J, Bussel J. Impact of immune thrombocytopenia on emotional wellbeing: A patient’s perspective from the ITP World Impact Survey (I-WISh). Poster presented at: EHA; 2020 Jun 11-14; VIRTUAL

Higher symptom burden in patients with immune thrombocytopenia experiencing fatigue: Results from the ITP World Impact Survey (I-WISh)

Poster presentation

Bespoke

Bussel J, Ghanima W, Cooper N, Kruse A, Kruse C, Tomiyama Y, Hou M, Santoro C, Laborde S, Morgan M, Michel M, Lovrencic B, Bailey T, Haenig J, Provan D. Higher symptom burden in patients with immune thrombocytopenia experiencing fatigue: Results from the ITP World Impact Survey (I-WISh). Poster presented at: EHA; 2020 Jun 11-14; VIRTUAL

Patients’ reported perceptions on satisfaction with immune thrombocytopenia treatments: Results from the ITP World Impact Survey (I-WISh)

Poster presentation

Bespoke

Ghanima W, Bussel J, Provan D, Kruse A, Kruse C, Tomiyama Y, Hou M, Santoro C, Laborde S, Morgan M, Michel M, Lovrencic B, Bailey T, Haenig J, Cooper N. Patients’ reported perceptions on satisfaction with immune thrombocytopenia treatments: Results from the ITP World Impact Survey (I-WISh). Poster presented at: EHA; 2020 Jun 11-14; VIRTUAL

Use and switching of biologic therapy in patients with non-radiographic axial spondyloarthritis: A patient and provider survey in the United States

Manuscript

Autoimmune

Deodhar A, Sandoval D, Holdsworth E, Booth N, Hunter T. Use and switching of biologic therapy in patients with non-radiographic axial spondyloarthritis: A patient and provider survey in the United States. Rheumatol Ther. 2020; 7(2): 415-423

Utilization of low vs. high dose of newer antihyperglycemic agents

Poster presentation

Metabolic

Lautsch D, McLeod E, Wang T, Claudio Gonzalez C, Rajpathak S, Malkani S, Jackson J, Milligan G, Higgins V. Utilization of low vs. high dose of newer antihyperglycemic agents. Poster presented at: ADA; 2020 Jun 12-16; VIRTUAL

Assessment of the benefits of achieving complete versus almost complete skin clearance in psoriasis: A patient’s perspective

Manuscript

Autoimmune

Korman NJ, Malatestinic W, Goldblum OM, Murage MJ, Renda L, Lin C Y, Lucas J, Middleton C, Lobosco S. Assessment of the benefits of achieving complete versus almost complete skin clearance in psoriasis: A patient’s perspective. J Dermatolog Treat. 2020; (): 1471-1753

Patient journey to diagnosis of Ankylosing Spondylitis (AS) and its treatment patterns across Central Eastern Europe and the United States

Poster presentation

Autoimmune

Korotaeva T, Dina O, Holdsworth E, Fallon L, Milligan G, Meakin S, Wang L, Vasilescu R, Cappelleri JC, Deodhar A. Patient journey to diagnosis of Ankylosing Spondylitis (AS) and its treatment patterns across Central Eastern Europe and the United States. Poster presented at: EULAR; 2020 Jun 3-6; VIRTUAL

Use of opioids in patients with sickle cell disease (SCD): A country and age analysis of the International Sickle Cell World Assessment Survey (SWAY)

Poster presentation

Bespoke

Minniti C, James J, Andemariam B, Inusa B, El Rassi F, Francis-Gibson B, Nero A, Trimnell C, Abboud MR, Arlet J-B, Colombatti R, de Montalembert M, Jain S, Jastaniah W, Nur E, Pita M, Ramscar N, Bailey T, Rajkovic-Hooley O, Osunkwo I. Use of opioids in patients with sickle cell disease (SCD): A country and age analysis of the International Sickle Cell World Assessment Survey (SWAY). Poster presented at: EHA; 2020 Jun 11-14; VIRTUAL

Usage of C-reactive protein testing in the diagnosis and monitoring of psoriatic arthritis (PsA): Results from a real-world survey in the US and Europe

Poster presentation

Autoimmune

Ogdie A, Tillet W, Eder L, Booth N, Bruce Wirta S, Howell O, Schubert A, Peterson S, Chakravarty SD, Coates LC. Usage of C-reactive protein testing in the diagnosis and monitoring of psoriatic arthritis (PsA): Results from a real-world survey in the US and Europe. Poster presented at: EULAR; 2020 Jun 3-6; VIRTUAL

Flares among patients with psoriatic arthritis (PsA) – Frequency and impact on patient outcomes: Real-world survey in the US and Europe

Abstract only

Autoimmune

Orbai A, Tillett W, Grieb S, Peterson S, Holdsworth E, Meakin S, Bruce Wirta S, Chakravarty SD, Gossec L. Flares among patients with psoriatic arthritis (PsA) - Frequency and impact on patient outcomes: Real-world survey in the US and Europe. Abstract accepted at: EULAR; 2020 Jun 3-6; VIRTUAL

Incidence and management of vaso-occlusive crises in patients with sickle cell disease: A country and age analysis of the International Sickle Cell World Assessment Survey (SWAY)

Poster presentation

Bespoke

Osunkwo I, Andemariam B, Inusa B, El Rassi F, Francis-Gibson B, Nero A, Minniti C, Trimnell C, Abboud MR, Arlet J-B, Colombatti R, de Montalembert M, Jain S, Jastaniah W, Nur E, Pita M, Ramscar N, Bailey T, Rajkovic-Hooley O, James J. Incidence and management of vaso-occlusive crises in patients with sickle cell disease: A country and age analysis of the International Sickle Cell World Assessment Survey (SWAY). Poster presented at: EHA; 2020 Jun 11-14; VIRTUAL

Patient-reported physical, emotional and economic impact of myeloproliferative neoplasms in an expansion of the MPN Landmark Survey

Poster presentation

Bespoke

Saydam G, Bang S-M, Xiao Z, Chang C-S, Alzahrani M, Mycock K, Rajkovic I, Siddiqui A, Morozova EV. Patient-reported physical, emotional and economic impact of myeloproliferative neoplasms in an expansion of the MPN Landmark Survey. Poster presented at: EHA; 2020 Jun 11-14; VIRTUAL

Comparing symptoms, treatment patterns, and quality of life of ankylosing spondylitis patients and non-radiographic axial spondyloarthritis in Japan

Abstract only

Autoimmune

Tomita T, Aranishi T, Nakajo K, Hagimori K, Holdsworth E, Booth N, Hunter T. Comparing symptoms, treatment patterns, and quality of life of ankylosing spondylitis patients and non-radiographic axial spondyloarthritis in Japan. Abstract accepted at: EULAR; 2020 Jun 3-6; VIRTUAL

Diagnostic cluster profiling of patients in a real-world data set with systemic lupus erythematosus

Poster presentation

Autoimmune

Touma Z, Hoskin B, Atkinson C, Bell D, Pike J, Lofland J, Berry P, Karyekar CS, Costenbader K. Diagnostic cluster profiling of patients in a real-world data set with systemic lupus erythematosus. Poster presented at: EULAR; 2020 Jun 3-6; VIRTUAL

Treatment and disease management practices in patients with MPNs in 6 countries: An expansion of the MPN Landmark Survey

Poster presentation

Bespoke

Chang C-S, Xiao Z, Morozova EV, Bang S-M, Alzahrani M, Mycock K, Rajkovic I, Siddiqui A, Saydam G. Treatment and disease management practices in patients with MPNs in 6 countries: An expansion of the MPN Landmark Survey. Poster presented at: EHA; 2020 Jun 11-14; VIRTUAL

The impact of osteoarthritis disease severity on healthcare resource use: analysis of real-world European data

Poster presentation

Pain

Conaghan PG, Abraham L, Graham-Clarke P, Viktrup L, Cappelleri JC, Beck C, Bushmakin A, Hatchell N, Clayton E, Jackson J. The impact of osteoarthritis disease severity on healthcare resource use: analysis of real-world European data. Poster presented at: EULAR; 2020 Jun 3-6; VIRTUAL

How does osteoarthritis pain impact function, mobility and requirement for help in daily activities in European patients?

Poster presentation

Pain

Conaghan PG, Abraham L, Graham-Clarke P, Viktrup L, Cappelleri JC, Beck C, Bushmakin A, Hatchell N, Clayton E, Jackson J. How does osteoarthritis pain impact function, mobility and requirement for help in daily activities in European patients?. Poster presented at: EULAR; 2020 Jun 3-6; VIRTUAL

Understanding current prescription drug treatment paradigms for patients with osteoarthritis in Europe

Oral presentation

Pain

Conaghan PG, Abraham L, Graham-Clarke P, Viktrup L, Cappelleri JC, Beck C, Bushmakin A, Hatchell N, Clayton E, Jackson J. Understanding current prescription drug treatment paradigms for patients with osteoarthritis in Europe. Oral presentation at: EULAR; 2020 Jun 3-6; VIRTUAL

Burden of joint-related complications in moderate to severe hemophilia A and B without inhibitors

Poster presentation

Rare diseases

DasMahapatra P, Fan Q, Golden K, Mellor J, Massey L, Hamed A. Burden of joint-related complications in moderate to severe hemophilia A and B without inhibitors. Poster presented at: WFH; 2020 Jun 14-17; Kuala Lumpur, Malaysia

Anxiety and depression in psoriatic arthritis (PsA) – Prevalence and impact on patient reported outcomes: Real-world survey in the US and Europe

Abstract only

Autoimmune

Gossec L, Walsh JA, Michaud K, Holdsworth E, Peterson S, Meakin S, Bruce Wirta S, Chakravarty SD, Ogdie A. Anxiety and depression in psoriatic arthritis (PsA) - Prevalence and impact on patient reported outcomes: Real-world survey in the US and Europe. Abstract accepted at: EULAR; 2020 Jun 3-6; VIRTUAL

Physician attitudes towards diagnosing anaemia, treatment initiation and the current unmet need in the management and treatment of anaemia: interim results from a cross-sectional real-world survey in Germany, Italy and the UK

Poster presentation

CVRM

Kabra M, Hammond T, Fleetwood A, Harrison L, Jackson J, Moon R. Physician attitudes towards diagnosing anaemia, treatment initiation and the current unmet need in the management and treatment of anaemia: interim results from a cross-sectional real-world survey in Germany, Italy and the UK. Poster presented at: ERA-EDTA; 2020 Jun 6-9; VIRTUAL

Treatment Outcomes In Locally Advanced Squamous Cell Carcinoma Of Head And Neck Patients Who Subsequently Progressed: Real-World Evidence From Europe And The US

Poster presentation

Oncology

Tarallo M, Hall J, Bailey H, Bailey A, Foley G, Pawar V, Cappelleri JC. Treatment Outcomes In Locally Advanced Squamous Cell Carcinoma Of Head And Neck Patients Who Subsequently Progressed: Real-World Evidence From Europe And The US. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

The burden of incremental “off” hours on caregivers of patients with Parkinson’s disease: a neurologist?patient?caregiver real-world assessment in the US

Poster presentation

Neurology

Thach A, Jones E, Gillespie A, Grant N, Pike J. The burden of incremental “off” hours on caregivers of patients with Parkinson’s disease: a neurologist?patient?caregiver real-world assessment in the US. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

Alignment of IBD symptoms reported by patients and their treating physicians in the US

Poster presentation

Autoimmune

Ding Z, Muser E, Obando C, Izanec J, Sikirica M, Hoskin B, Lukanova R, Todd G, Meakin S. Alignment of IBD symptoms reported by patients and their treating physicians in the US. Poster presented at: DDW; 2020 May 2-5; VIRTUAL

Discordance between psychiatrists and their patients on disease severity and treatment outcomes in schizophrenia

Poster presentation

Central nervous system

Keenan A, Lin D, Joshi K, Shepherd J, Bailey H, Wright J, Meakin S, Kim E. Discordance between psychiatrists and their patients on disease severity and treatment outcomes in schizophrenia. Poster presented at: ACCP; 2020 May 26-27; VIRTUAL

Multinational, cross-sectional survey of healthcare resource utilisation in patients with all stages of cognitive impairment, analysed by disease severity, country and geographical region

Manuscript

Neurology

Khandker RK, Ritchie CW, Black CM, Wood R, Jones E, Hu X, Ambegaonkar BM. Multinational, cross-sectional survey of healthcare resource utilisation in patients with all stages of cognitive impairment, analysed by disease severity, country and geographical region. JAD. 2020; 75(): 1141-1152

Healthcare resource utilisation and health outcomes among young patients with heart failure: A contemporary real-world US study

Poster presentation

Generate

Vaduganathan M, Bueno H, Lam CSP, Wood R, Chin A, Siddiqui A, Sörstadius E, Tritton T, Thomas J, Luporini Saraiva G, Qin L. Healthcare resource utilisation and health outcomes among young patients with heart failure: A contemporary real-world US study. Poster presented at: ESC-HF; 2020 May 23-26; VIRTUAL

Germline BRCA1/2 (gBRCA1/2) testing patterns among oncologists (ONC) treating HER2- advanced breast cancer (ABC): Results from a multi-country real-world study

Poster presentation

Oncology

Mahtani R, Niyazov A, Lewis K, Wild R, Rider A, Arondekar B, Lux MP. Germline BRCA1/2 (gBRCA1/2) testing patterns among oncologists (ONC) treating HER2- advanced breast cancer (ABC): Results from a multi-country real-world study. Poster presented at: ESMO BC; 2020 May 23-24; VIRTUAL

Patient (pt) demographics, treatment patterns (tx) and hematologic (heme) toxicities among pts with HER2? advanced breast cancer (ABC) and BRCA1/2 mutation(s) (BRCA1/2mut): A multi-country real-world (RW) study

Poster presentation

Oncology

Mahtani R, Niyazov A, Lewis K, Last M, Rider A, Arondekar B, Lux MP. Patient (pt) demographics, treatment patterns (tx) and hematologic (heme) toxicities among pts with HER2? advanced breast cancer (ABC) and BRCA1/2 mutation(s) (BRCA1/2mut): A multi-country real-world (RW) study. Poster presented at: ESMO BC; 2020 May 23-24; VIRTUAL

Latent class analysis (LCA) to identify and describe clinically relevant subgroups in a multinational study of patients with HR+/HER2- early breast cancer (eBC)

Poster presentation

Oncology

Rider A, Spurden D, Williams R, Corsaro M, Pike J, Law EH, Criscitiello C. Latent class analysis (LCA) to identify and describe clinically relevant subgroups in a multinational study of patients with HR+/HER2- early breast cancer (eBC). Poster presented at: ESMO BC; 2020 May 23-24; VIRTUAL

Physician assessment of alopecia areata disease severity: Results from a real-world study

Poster presentation

Autoimmune

Burge R, Anderson P, Atkinson C, Bell D, Piercy J. Physician assessment of alopecia areata disease severity: Results from a real-world study. Poster presented at: SID; 2020 May 3-8; VIRTUAL

Health Related Quality of Life Among Patients with Early Breast Cancer: A Multinational Study

Oral presentation

Oncology

Law EH, Spurden D, Piercy J, Williams R, Corsaro M, Pike J, Criscitiello C. Health Related Quality of Life Among Patients with Early Breast Cancer: A Multinational Study. Oral presentation at: ISPOR US; 2020 May 16-20; VIRTUAL

Comparing work productivity and activity impairment outcomes among patients with Multiple Sclerosis treated with ocrelizumab vs other disease-modifying therapies

Poster presentation

Neurology

Neuberger E, Engmann NJ, Jones E, Fiore D. Comparing work productivity and activity impairment outcomes among patients with Multiple Sclerosis treated with ocrelizumab vs other disease-modifying therapies. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

Impact of sickle cell disease symptoms on patients’ daily lives in the US – patients from the sickle cell world assessment survey (SWAY)

Abstract only

Bespoke

Osunkwo I, Andemariam B, Inusa B, El Rassi F, Nero A, Minniti C, Arlet J-B, Colombatti R, Jain S, Jastaniah W, Nur E, Bailey T, Rajkovic-Hooley O, DeBonnett L, James J. Impact of sickle cell disease symptoms on patients' daily lives in the US - patients from the sickle cell world assessment survey (SWAY). Abstract accepted at: ISPOR US; 2020 May 16-20; VIRTUAL

Development of a Cross-Walk of the Assessment of Spondyloarthritis International Society Health Index (ASAS HI) and Ankylosing Spondylitis Quality of Life (ASQoL) Scores using data from Patients with Ankylosing Spondylitis and Non-Radiographic Axial Spondyloarthritis

Oral presentation

Autoimmune

Piercy J, Dong Y, Pike J, Booth N, Holdsworth E, Hunter T. Development of a Cross-Walk of the Assessment of Spondyloarthritis International Society Health Index (ASAS HI) and Ankylosing Spondylitis Quality of Life (ASQoL) Scores using data from Patients with Ankylosing Spondylitis and Non-Radiographic Axial Spondyloarthritis. Oral presentation at: ISPOR US; 2020 May 16-20; VIRTUAL

Poor prognostic factors and their impact on treatment patterns and outcomes for women with hormone receptor-positive, human epidermal growth factor receptor-negative (HR+/HER2-) advanced breast cancer (aBC) in Canada

Poster presentation

Oncology

Rider A, Bailey A, Lewis K, Ashki N, Lenhu C, Carter GC, Novick D. Poor prognostic factors and their impact on treatment patterns and outcomes for women with hormone receptor-positive, human epidermal growth factor receptor-negative (HR+/HER2-) advanced breast cancer (aBC) in Canada. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

Burden of illness in patients with chronic hypoparathyroidism not adequately controlled with conventional therapy: European subanalysis of a global patient survey

Abstract only

Bespoke

Siggelkow H, Germak J, Marelli C, Chen K, Dahl-Hansen H, Glenister E, Bent-Ennakhil N, Judge D, Mycock K, Clarke BL. Burden of illness in patients with chronic hypoparathyroidism not adequately controlled with conventional therapy: European subanalysis of a global patient survey. Abstract accepted at: ECE; 2020 May 23-26; VIRTUAL

Real World Evidence On Patient Characteristics And Frontline Treatment Patterns In Locally Advanced Squamous Cell Carcinoma Of The Head And Neck From Europe And US

Poster presentation

Oncology

Tarallo M, Hall J, Bailey H, Bailey A, Foley G, Pawar V, Cappelleri JC. Real World Evidence On Patient Characteristics And Frontline Treatment Patterns In Locally Advanced Squamous Cell Carcinoma Of The Head And Neck From Europe And US. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

A real-world study of the patient experience with abaloparatide

Poster presentation

Gold DT, Weiss R, Roberts J, Bailey T, Wang Y, James A, Mohseni M, Williams SA. A real-world study of the patient experience with abaloparatide. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

Work Productivity Impact Across Four Types Of Cancer: Real-World Evidence

Abstract only

Oncology

Hall J, Piercy J, Middleton-Dalby C. Work Productivity Impact Across Four Types Of Cancer: Real-World Evidence. Abstract accepted at: ISPOR US; 2020 May 16-20; VIRTUAL

Patient-reported concern, understanding and lifestyle management of non alcoholic steatohepatatis patients: A 12-country real world study

Oral presentation

Metabolic

Higgins V, Piercy J, Williams R, Bacon, K, Jackson J. Patient-reported concern, understanding and lifestyle management of non alcoholic steatohepatatis patients: A 12-country real world study. Oral presentation at: ISPOR US; 2020 May 16-20; VIRTUAL

Relationship between Progressive Supranuclear Palsy and healthcare resource utilization

Poster presentation

Rare diseases

Inuzuka Y, Mellor J, Wright J, Pike J, Zabar Y. Relationship between Progressive Supranuclear Palsy and healthcare resource utilization. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

The impact of severe vasomotor symptoms on work productivity and activity impairment: Findings from a US real world study

Poster presentation

Women's health

Javaherian H, Scott M, Wild R, Small M. The impact of severe vasomotor symptoms on work productivity and activity impairment: Findings from a US real world study. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

Discordance between psychiatrists and their patients on disease severity and treatment outcomes in schizophrenia

Oral presentation

Central nervous system

Keenan A, Lin D, Joshi K, Shepherd J, Bailey H, Wright J, Meakin S, Kim E. Discordance between psychiatrists and their patients on disease severity and treatment outcomes in schizophrenia. Oral presentation at: ISPOR US; 2020 May 16-20; VIRTUAL

Describing patients with primary sjogren’s syndrome – analysis of real-world data from the Adelphi Disease Specific Programme

Poster presentation

Autoimmune

Kerry Gairy, Ben Hoskin, Claudia Knight, James Hetherington. Describing patients with primary sjogren's syndrome - analysis of real-world data from the Adelphi Disease Specific Programme. Poster presented at: ICA; 2020 May 20-24; Athens, Greece

Real world effectiveness of secukinumab in patients with axial spondyloarthritis: Findings from a recent cross sectional survey of rheumatologists and patients in Europe

Poster presentation

Autoimmune

Kiltz U, Holdsworth EA, Tian H, Booth N, Anthony P, Modi N, Keininger DL, Conaghan PG,. Real world effectiveness of secukinumab in patients with axial spondyloarthritis: Findings from a recent cross sectional survey of rheumatologists and patients in Europe. Poster presented at: PANLAR; 2020 May 2-5; Miami, Florida

A Multinational Study of Real-World Treatment Patterns Among Patients with Early Stage HR+/HER2- Breast Cancer (BC)

Poster presentation

Oncology

Criscitiello C, Spurden D, Rider A, Williams R, Corsaro M, Pike J, Law EH. A Multinational Study of Real-World Treatment Patterns Among Patients with Early Stage HR+/HER2- Breast Cancer (BC). Poster presented at: ESMO BC; 2020 May 23-24; VIRTUAL

Patient-Reported and Cancer-Specific Health-Related Quality of Life Among Patients with Early Stage HR+/HER2- Breast Cancer (BC)

Poster presentation

Oncology

Criscitiello C, Spurden D, Rider A, Williams R, Corsaro M, Pike J, Law EH. Patient-Reported and Cancer-Specific Health-Related Quality of Life Among Patients with Early Stage HR+/HER2- Breast Cancer (BC). Poster presented at: ESMO BC; 2020 May 23-24; VIRTUAL

First line treatment with natalizumab reduces healthcare resource use and impairment of work productivity and activity impairment in relapsing-remitting Multiple Sclerosis (RRMS) patients compared to natalizumab delayed use

Poster presentation

Neurology

Acosta C, Jones E, Pike J, Adeyemi A, Liao S, Su R, Xiong K, Husbands J. First line treatment with natalizumab reduces healthcare resource use and impairment of work productivity and activity impairment in relapsing-remitting Multiple Sclerosis (RRMS) patients compared to natalizumab delayed use. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

Deleterious impact of advanced nonalcoholic steatohepatitis on multiple patient-relevant outcomes: An international, cross-sectional, real-world study

Poster presentation

Metabolic

Anstee QM, Shah D, Burslem K, Piercy J, Milligan G, Higgins V. Deleterious impact of advanced nonalcoholic steatohepatitis on multiple patient-relevant outcomes: An international, cross-sectional, real-world study. Poster presented at: DDW; 2020 May 2-5; VIRTUAL

Real-world treatment patterns and outcomes in US patients newly diagnosed with glioblastoma multiforme (GBM) by O6-methylguanine DNA methyltransferase promotor (MGMT) status

Poster presentation

Oncology

Fu AZ, Gogate A, Hall JP, Bailey A, Massey L, Marshall A. Real-world treatment patterns and outcomes in US patients newly diagnosed with glioblastoma multiforme (GBM) by O6-methylguanine DNA methyltransferase promotor (MGMT) status. Poster presented at: ISPOR US; 2020 May 16-20; VIRTUAL

Real-world experience of subcutaneous belimumab treatment for systemic lupus erythematosus – a cross-sectional survey of rheumatologists and their patients

Poster presentation

Autoimmune

Gairy K, Atkinson C, Bell D, Massey O, Hoskin B. Real-world experience of subcutaneous belimumab treatment for systemic lupus erythematosus - a cross-sectional survey of rheumatologists and their patients. Poster presented at: ICA; 2020 May 20-24; Athens, Greece

Assessing the relationship between patient-reported psoriasis treatment satisfaction and work productivity

Poster presentation

Autoimmune

Teeple A, Fitzgerald T, Lucas J, Milligan G, Hetherington J. Assessing the relationship between patient-reported psoriasis treatment satisfaction and work productivity. Poster presented at: AMCP; 2020 Apr 21-24; Houston, TX

A novel, integrative approach for evaluating progression in multiple sclerosis: Development of a scoring algorithm

Manuscript

Neurology

Tolley C, Piani-Meier D, Bentley S, Bennett B, Jones E, Pike J, Dahlke F, Tomic D, Ziemssen T. A novel, integrative approach for evaluating progression in multiple sclerosis: Development of a scoring algorithm. JMIR. 2020; 8(4): e17592

Direct healthcare costs among heart failure patients with reduced and preserved ejection fraction in the US

Poster presentation

Generate

Vaduganathan M, Lam C, Bueno H, Wood R, Chin A, Luporini Saraiva G, Sörstadius E, Thomas J, Tritton T, Qin L. Direct healthcare costs among heart failure patients with reduced and preserved ejection fraction in the US. Poster presented at: AMCP; 2020 Apr 21-24; VIRTUAL

A global real-world assessment of the impact on health-related quality of life and work productivity of migraine in patients with insufficient versus good response to triptan medication

Manuscript

Pain

Lombard L, Farrar M, Ye W, Kim Y, Cotton S, Buchanan AS, Jackson J, Joshi S. A global real-world assessment of the impact on health-related quality of life and work productivity of migraine in patients with insufficient versus good response to triptan medication. J Headache Pain. 2020; 21(1): 41

The impact of immune thrombocytopenia (ITP) on activities of daily living: Findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh)

Abstract only

Bespoke

Cooper N, Provan D, Morgan M, Bailey T, Taylor B. The impact of immune thrombocytopenia (ITP) on activities of daily living: Findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh) . Abstract accepted at: BSH; 2020 Apr 26-29; VIRTUAL

Patients’ and physicians’ perceptions of treatments and goal setting in immune thrombocytopenia (ITP): Findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh)

Abstract only

Bespoke

Cooper N, Provan D, Morgan M, Bailey T, Taylor B. Patients’ and physicians’ perceptions of treatments and goal setting in immune thrombocytopenia (ITP): Findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh) . Abstract accepted at: BSH; 2020 Apr 26-29; VIRTUAL

Symptom burden in immune thrombocytopenia (ITP): Findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh)

Abstract only

Bespoke

Cooper N, Provan D, Morgan M, Bailey T, Taylor B. Symptom burden in immune thrombocytopenia (ITP): Findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh) . Abstract accepted at: BSH; 2020 Apr 26-29; VIRTUAL

Real-world treatment patterns in patients with advanced (stage III IV) ovarian cancer in the United States and Europe

Manuscript

Oncology

Hall JP, Chang J, Moon R, Higson O, Byrne K, Doherty JP, Cappelleri JC. Real-world treatment patterns in patients with advanced (stage III IV) ovarian cancer in the United States and Europe. Future Oncol. 2020; 16(15):

Living with ulcerative colitis in Germany – a retrospective analysis of dose escalation, concomitant treatment and healthcare costs

Manuscript

Generate

Dignass A, Waller J, Cappeleri JC, Modesto I, Kisser A, Dietz L, DiBonaventura M, Wood R, May M, Libutzki B, Bargo D. Living with ulcerative colitis in Germany - a retrospective analysis of dose escalation, concomitant treatment and healthcare costs. JME. 2020; 23(4): 415-427

UK patient perceptions on the symptomatic and emotional burden of vaso-occlusive crises resulting from sickle cell disease

Poster presentation

Bespoke

Inusa B, James J, Rajkovic-Hooley O, Bailey T, Medalla G, Taylor B. UK patient perceptions on the symptomatic and emotional burden of vaso-occlusive crises resulting from sickle cell disease. Poster presented at: BSH; 2020 Apr 26-29; VIRTUAL

UK results from the International Sickle Cell World Assessment Survey (SWAY): Patients with sickle cell disease (SCD) experience work impairment and decreased productivity

Poster presentation

Bespoke

Inusa B, James J, Rajkovic-Hooley O, Bailey T, Medalla G, Taylor B. UK results from the International Sickle Cell World Assessment Survey (SWAY): Patients with sickle cell disease (SCD) experience work impairment and decreased productivity . Poster presented at: BSH; 2020 Apr 26-29; VIRTUAL

Patients’ and health care professionals’ perspectives on treatment goals in sickle cell disease – A UK perspective: Results from the international sickle cell world assessment survey (SWAY)

Poster presentation

Bespoke

Inusa B, James J, Rajkovic-Hooley O, Bailey T, Medalla G, Taylor B. Patients’ and health care professionals’ perspectives on treatment goals in sickle cell disease – A UK perspective: Results from the international sickle cell world assessment survey (SWAY) . Poster presented at: BSH; 2020 Apr 26-29; VIRTUAL

Burden of comorbid depression and anxiety on work productivity in adult migraine patients in the United States

Poster presentation

Pain

Lipton RB, Iyer R, Cohen J, Jackson J, Ramirez-Campos V, Cotton S, Milligan G, Buse D. Burden of comorbid depression and anxiety on work productivity in adult migraine patients in the United States. Poster presented at: AMCP; 2020 Apr 21-24; Houston, TX

Burden of comorbid depression and anxiety on HRQOL in adult migraine patients in the US

Poster presentation

Pain

Lipton RB, Iyer R, Cohen J, Jackson J, Ramirez-Campos V, Cotton S, Milligan G, Buse D. Burden of comorbid depression and anxiety on work productivity in adult migraine patients in the United States. Poster presented at: AMCP; 2020 Apr 21-24; Houston, TX

Health-related quality of life based on response to triptans in people with migraine – analysis of real-world data

Oral presentation

Pain

Lipton RB, Silberstein SD, Baradaran S, Shewale AR, Cotton S, Jackson J, Viswanathan HN. Health-related quality of life based on response to triptans in people with migraine - analysis of real-world data. Oral presentation at: AAN; 2020 Apr 25-1; Toronto, Canada

Patient and physician perspectives on the care and assistance needs in Huntington’s disease

Poster presentation

Rare diseases

Raimundo K, Tan R, To TM, de Courcy J, Ondhia U, Rickards H, Nance M. Patient and physician perspectives on the care and assistance needs in Huntington’s disease. Poster presented at: AMCP; 2020 Apr 21-24; Houston, TX

Patterns of genetic testing in Huntington’s disease

Poster presentation

Rare diseases

Raimundo K, Tan R, To TM, de Courcy J, Ondhia U, Nguyen HP, Nance M. Patterns of genetic testing in Huntington’s disease. Poster presented at: AMCP; 2020 Apr 21-24; Houston, TX

Real-world study of patient demographics, clinical characteristics, and BRCA1/2 testing in HER2-negative (HER2–) advanced breast cancer (ABC) in the US and Europe

Poster presentation

Oncology

Mahtani R, Niyazov A, Lewis K, Rider A, Arondekar B, Lux MP,. Real-world study of patient demographics, clinical characteristics, and BRCA1/2 testing in HER2-negative (HER2–) advanced breast cancer (ABC) in the US and Europe. Poster presented at: MBCC; 2020 Mar 5-8; Miami, Florida

Real-world clinical outcomes associated with palbociclib combination therapy in Canada: Results from the IRIS study

Poster presentation

Bespoke

Zhan L, Taylor-Stokes G, Mycock K, Milligan G, Ghale A, Mitra D. Real-world clinical outcomes associated with palbociclib combination therapy in Canada: Results from the IRIS study. Poster presented at: MBCC; 2020 Mar 5-8; Miami, Florida

Unmet needs in ankylosing spondylitis patients receiving tumour necrosis factor inhibitor therapy; results from a large multinational real-world study

Manuscript

Autoimmune

Deodhar A, Strand V, Conaghan PG, Sullivan E, Blackburn S, Tian H, Gandhi K, Jugl S, Alten R. Unmet needs in ankylosing spondylitis patients receiving tumour necrosis factor inhibitor therapy; results from a large multinational real-world study. BMC Rheumatol. 2020; 4(): 19

Impact of chronic kidney disease and anemia on health-related quality of life and work productivity: Analysis of multinational real-world data

Manuscript

Metabolic

van Haalen H, Jackson J, Spinowitz B, Milligan G, Moon R. Impact of chronic kidney disease and anemia on health-related quality of life and work productivity: Analysis of multinational real-world data. BMC Nephrol . 2020; 21(): 88

Effect of genotype on the impact of sickle cell disease and burden of vaso-occlusive crises: Results from the International Sickle Cell World Assessment Survey (SWAY)

Abstract only

Bespoke

Andemariam B, James J, Inusa B, El Rassi F, Francis-Gibson B, Nero A, Minniti C, Trimnell C, Abboud MR, Arlet J-B, Colombatti R, de Montalembert M, Jain S, Jastaniah W, Nur E, Pita M, DeBonnett L, Bailey T, Rajkovic-Hooley O, Osunkwo I. Effect of genotype on the impact of sickle cell disease and burden of vaso-occlusive crises: Results from the International Sickle Cell World Assessment Survey (SWAY). Abstract accepted at: GCSSD; 2020 Apr 7-9; VIRTUAL

Real-world experience with an IL-17a blocker in biologic-naïve and biologic-experienced radiographic and non-radiographic axial spondyloarthritis patients

Poster presentation

Autoimmune

Booth N, Hill J, Leage SL, Sapin C, Holdsworth E, Antonelli S. Real-world experience with an IL-17a blocker in biologic-naïve and biologic-experienced radiographic and non-radiographic axial spondyloarthritis patients. Poster presented at: BSR; 2020 Apr 20-22; VIRTUAL

Real-world outcomes associated with standard half-life and extended half-life factor replacement products for treatment of haemophilia A and B

Manuscript

Rare diseases

Chhabra A, Spurden D, Fogarty PF, Tortella BJ, Rubinstein E, Harris S, Pleil AM, Mellor J, de Courcy J, Alvira J. Real-world outcomes associated with standard half-life and extended half-life factor replacement products for treatment of haemophilia A and B. Blood Coagul Fibrinolysis. 2020; 31(3): 186-192

Burden of illness in not adequately controlled chronic hypoparathyroidism – findings from a 13 country patient and caregiver survey

Manuscript

Bespoke

Siggelkow H, Clarke B, Germak J, Marelli C, Chen K, Dahl-Hansen H, Glenister E, Bent-Ennakhil N, Judge D, Mycock K, Bollersley J, . Burden of illness in not adequately controlled chronic hypoparathyroidism - findings from a 13 country patient and caregiver survey. Clin Endocrinol. 2020; 92(2): 159-168

Treatment duration and response in patients with advanced renal cell carcinoma who have completed first-line treatment: results from a cross-sectional real-world study

Poster presentation

Oncology

Zanotti G, Kim R, Krulewicz S, Hall J, Leith A, Bailey A, Liu FX, Kearney M. Treatment duration and response in patients with advanced renal cell carcinoma who have completed first-line treatment: results from a cross-sectional real-world study. Poster presented at: ASCO GU; 2020 Feb 13-15; San Francisco, CA

Levels of satisfaction with rheumatoid arthritis treatment and associated alignment between physicians and patients across Latin America

Manuscript

Autoimmune

Alves Pereira I, Maldonado Cocco J, Feijó Azevedo V, Guerra G, Bautista-Molaono W, Casasola JC, Vega Morales D, Soriano ER, Gil DR, Zazzetti F, Aldunate L, Holdsworth EA, Massey O, Lobosco S, Lawson F. Levels of satisfaction with rheumatoid arthritis treatment and associated alignment between physicians and patients across Latin America . Clin Rheumatol. 2020; ():

A mixed methods approach towards understanding key disease characteristics with the progression of RRMS to SPMS – physicians and patients views

Manuscript

Neurology

Ziemssen T, Tolley C, Bennett B, Kilgariff S, Jones E, Pike J, Tomic D, Piani Meier D, Lahoz R. A mixed methods approach towards understanding key disease characteristics with the progression of RRMS to SPMS - physicians and patients views. MSARD. 2020; 38(): 101861

Nasal Polyp Symptoms: How Well Do Physicians Know Their Patients?

Poster presentation

Respiratory

Benson VS, Sousa AR, Small M, Scott M, Milligan G, Yang S, Chan R. Nasal Polyp Symptoms: How Well Do Physicians Know Their Patients?. Poster presented at: AAAAI; 2020 Mar 13-16; Philadelphia, PA

Treatment patterns and clinical outcomes in patients receiving palbociclib combinations as first line treatment for aBC/mBC in real-world settings in Latin America

Poster presentation

Bespoke

Guarin A, Suarez LA, Mycock K, Milligan G, Taylor-Stokes G, Ghale A. Treatment patterns and clinical outcomes in patients receiving palbociclib combinations as first line treatment for aBC/mBC in real-world settings in Latin America. Poster presented at: MBCC; 2020 Mar 5-8; Miami, Florida

Availability of Fractional Exhaled Nitric Oxide (FeNO) and Eosinophil (EOS) Count Data Among Patients with Severe Asthma in Five European Countries

Poster presentation

Respiratory

Kamat S, Gouia I, Chao J, Small M, Khan AH, Siddall J,. Availability of Fractional Exhaled Nitric Oxide (FeNO) and Eosinophil (EOS) Count Data Among Patients with Severe Asthma in Five European Countries. Poster presented at: AAAAI; 2020 Mar 13-16; Philadelphia, PA

Heart failure hospitalizations and urgent heart failure visits for patients with heart failure in a real world population in the US

Poster presentation

Generate

Lam C, Wood R, Bueno H, Vaduganathan M, Luporini Saraiva G, Chin A, Siddiqui A, Sörstadius E, Thomas J, Qin L. Heart failure hospitalizations and urgent heart failure visits for patients with heart failure in a real world population in the US. Poster presented at: ACC; 2020 Mar 28-30; VIRTUAL

Treatment patterns among patients with moderate-to-severe ulcerative colitis in the United States and Europe

Manuscript

Autoimmune

Armuzzi A, daCosta DiBonaventura M, Tarallo M, Lucas J, Bluff D, Hoskin B, Bargo D, Cappelleri JC, Quirk D, Salese L. Treatment patterns among patients with moderate-to-severe ulcerative colitis in the United States and Europe. PLoS One. 2020; 15(1): e0227914

Physician-patient alignment in satisfaction with psoriatic arthritis treatment in Latin America

Manuscript

Autoimmune

Soriano ER, Zazzetti F, Alves Pereira I, Maldonado Cocco J , Feijó Azevedo V, Guerra G, Bautista-Molano W, Casasola JC, Vega Morales D, Gil DR, Lobosco S, Lawson F. Physician-patient alignment in satisfaction with psoriatic arthritis treatment in Latin America . Clin Rheumatol. 2020; ():

The association between disease activity and patient-reported outcomes in patients with moderate-to-severe ulcerative colitis in the United States and Europe

Manuscript

Autoimmune

Armuzzi A, Tarallo M, DiBonaventura M, Bargo D, Lucas J, Bluff D, Hoskin B, Salese L, Cappelleri JC, Gigante G. The association between disease activity and patient-reported outcomes in patients with moderate-to-severe ulcerative colitis in the United States and Europe. BMC Gastroenterol. 2020; 20(1): 18

Impact of sickle cell disease (SCD) symptoms on patients’ daily lives and management strategies in the Middle East: Results from the International Sickle Cell World Assessment Survey (SWAY)

Oral presentation

Bespoke

Abboud MR, Andemariam B, Arlet J-B, Colombatti R, El Rassi F, Inusa B, Jain S, James J, Minniti C, Nero A, Nur E, Osunkwo I, Pita M, Trimnell C, DeBonnett L, Bailey T, Rajkovic-Hooley O, Jastaniah W. Impact of sickle cell disease (SCD) symptoms on patients’ daily lives and management strategies in the Middle East: Results from the International Sickle Cell World Assessment Survey (SWAY). Oral presentation at: SSH/PAHA; 2020 Feb 27-29; Muscat, Oman

Triptan use and associated patient-reported outcomes in patients with migraine

Poster presentation

Pain

Farrar M, Lombard L, Ye W, Kim Y, Cotton S, Jackson J, Brunner A. Triptan use and associated patient-reported outcomes in patients with migraine. Poster presented at: PPADHP; 2020 Feb 14-17; San Diego, CA

Impact of increasing disease symptom concordance between patients with inflammatory bowel disease and their physicians: Insights from US, France, Germany, Italy, Spain, and UK (5EU)

Poster presentation

Autoimmune

Lukanova R, Kershaw J, Wild R, Wirta S, Sikirica M. Impact of increasing disease symptom concordance between patients with inflammatory bowel disease and their physicians: Insights from US, France, Germany, Italy, Spain, and UK (5EU) . Poster presented at: ECCO; 2020 Feb 12-15; Vienna, Austria

Real-world treatment persistence of non-tumor necrosis factor inhibitors versus tumor necrosis factor inhibitors among patients with rheumatoid arthritis in South Korea

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Park JA, Lee MY, Nam JH, Shin JY, Wood R, Holbrook T, Kwon SH. Real-world treatment persistence of non-tumor necrosis factor inhibitors versus tumor necrosis factor inhibitors among patients with rheumatoid arthritis in South Korea. Curr Med Res Opin. 2020; 36(2): 343-351

Impact on work status of people caring for someone with Huntington’s disease

Poster presentation

Rare diseases

Raimundo K, Ruoding T, To TM, de Courcy J, Ondhia U, Rickards H, Nance M. Impact on work status of people caring for someone with Huntington's disease. Poster presented at: HSG; 2019 Nov 7-9; Sacramento, CA

Patterns of genetic testing in Huntington’s disease

Poster presentation

Rare diseases

Raimundo K, Ruoding T, To TM, de Courcy J, Ondhia U, Nguyen HP, Nance M. Patterns of genetic testing in Huntington's disease. Poster presented at: HSG; 2019 Nov 7-9; Sacramento, CA

Patient and physician perspectives on the care and assistance needs in Huntingdon’s disease

Poster presentation

Rare diseases

Raimundo K, Ruoding T, To TM, de Courcy J, Ondhia U, Rickards H, Nance M. Patient and physician perspectives on the care and assistance needs in Huntingdon's disease. Poster presented at: HSG; 2019 Nov 7-9; Sacramento, CA

Inhaled corticosteroid use by exacerbations and eosinophils – a real-world COPD population

Manuscript

Respiratory

Vestbo J, Vogelmeier C, Small M, Siddall J, Fogel R, Kostikas K. Inhaled corticosteroid use by exacerbations and eosinophils - a real-world COPD population. Int J Chron Obstruct Pulmon Dis. 2019; 14(): 853-861

Impact of atopic dermatitis lesion location on quality of life in adult patients – results from a real-world study

Poster presentation

Autoimmune

Lio P, Wollenberg A, Thyssen J, Pierce E, Rueda MJ, DeLozier A, Anderson P, Milligan G, Piercy J, Silverberg J, Paul C. Impact of atopic dermatitis lesion location on quality of life in adult patients - results from a real-world study. Poster presented at: WCDC; 2020 Jan 17-22; Kohala Coast, Hawaii

Improving access to antiretrovirals in China – economic analyses of dolutegravir in HIV-1 patients

Manuscript

Generate

Punekar Y, Guo N, Tremblay G, Piercy J, Holbrook T, Young B. Improving access to antiretrovirals in China - economic analyses of dolutegravir in HIV-1 patients. Cost Eff Resour Alloc. 2019; 17(): 26

Patient characteristics, treatment outcomes and healthcare resource utilization across Europe in multiple myeloma patients ineligible for stem cell transplantation who received lenalidomide or bortezomib-base regimens

Poster presentation

Bespoke

Zamagni E, Dhanasiri S, Moore A, Ghale A, Roussel M. Patient characteristics, treatment outcomes and healthcare resource utilization across Europe in multiple myeloma patients ineligible for stem cell transplantation who received lenalidomide or bortezomib-base regimens. Poster presented at: ASH; 2019 Dec 7-10; Orlando, FL

Treatment patterns of patients with advanced renal cell carcinoma receiving first-line treatment: results from a cross-sectional real-world study

Poster presentation

Oncology

Zanotti G, Kim R, Krulewicz S, Hall J, Leith A, Bailey A, Liu FX, Kearney M. Treatment patterns of patients with advanced renal cell carcinoma receiving first-line treatment: results from a cross-sectional real-world study. Poster presented at: ESMO; 2019 Dec 11-14; Geneva, Switzerland

A multinational assessment of work-related productivity loss and indirect costs from a survey of patients with psoriasis

Manuscript

Autoimmune

Villacorta R, Teeple A, Lee S, Fakharzadeh S, Lucas J, McElligott S. A multinational assessment of work-related productivity loss and indirect costs from a survey of patients with psoriasis. BJD. 2019; ():

Real-world bevacizumab utilization and outcomes in first line ovarian cancer

Poster presentation

Oncology

Monberg MJ, Hall JP, Moon B, Higson O, McLaurin K, Dalvi T. Real-world bevacizumab utilization and outcomes in first line ovarian cancer. Poster presented at: ASCO; 2019 May 31-4; Chicago, IL

Cluster profiling of patients in a real-world data set with systemic lupus erythematosus and their associated treatments

Poster presentation

Autoimmune

Touma Z, Hoskin B, Atkinson C, Bell D, Massey O, Lofland J, Berry P, Karyekar C, Costenbader K. Cluster profiling of patients in a real-world data set with systemic lupus erythematosus and their associated treatments . Poster presented at: ACR; 2019 Nov 8-13; Atlanta, GA

Data availability and quality in Asia Pacific: Assessment and Implications for Horizon Scanning

Oral presentation

Generate

Van Bavel J. Data availability and quality in Asia Pacific: Assessment and Implications for Horizon Scanning. Oral presentation at: HTAi; 2019 Nov 6-8; Hanoi, Vietnam

Enthesitis, dactylitis, and axial disease in psoriatic arthritis (PsA): Impact on patient quality of life and work productivity

Poster presentation

Autoimmune

Walsh J, Ogdie A, Michaud K, Peterson S, Holdsworth EA, Karyekar C, Booth N, Kemp J, Chakravarty SD, Kafka S, Gossec L. Enthesitis, dactylitis, and axial disease in psoriatic arthritis (PsA): Impact on patient quality of life and work productivity. Poster presented at: ACR; 2019 Nov 8-13; Atlanta, GA

Physician rationale for prescribing tyrosine kinase inhibitors and immuno-oncology treatments in the first-line treatment of advanced renal cell carcinoma in the United States: results from a cross-sectional real-world survey

Poster presentation

Oncology

Zanotti G, Kim R, Krulewicz S, Hall J, Leith A, Bailey A, Piercy J, Liu FX, Kearney M. Physician rationale for prescribing tyrosine kinase inhibitors and immuno-oncology treatments in the first-line treatment of advanced renal cell carcinoma in the United States: results from a cross-sectional real-world survey. Poster presented at: IKCS; 2019 Nov 15-16; Miami, Florida

Quantifying the diagnostic pathway for patients with cognitive impairment: real-world data from Australia

Manuscript

Central nervous system

Black CM, Woodward M, Ambegaonkar BM, Philips A, Pike J, Jones E, Jusbands J, Khandker RK. Quantifying the diagnostic pathway for patients with cognitive impairment: real-world data from Australia. Int Psychogeratr. 2019; (): 1-10

Association between patients’ perception of their asthma control and the symptomatic burden of asthma

Oral presentation

Respiratory

Fuhlbrigge A, Marvel J, Electricwala B, Siddall J, Scott M, Middleton C, Small M. Association between patients’ perception of their asthma control and the symptomatic burden of asthma. Oral presentation at: ACAAI; 2019 Nov 7-11; Houston TX, US

Physicians’ and patients’ perspectives on treatments in ITP – A multi-country perspective: Results from the ITP World Impact Survey (I-WISh)

Poster presentation

Bespoke

Bussel J, Ghanima W, Tomiyama Y, Arnold DM, Provan D, Hou M, Santoro C, Laborde S, Kruse A, Kruse C, Morgan M, Lovrencic B, Waller J, Haenig J, Cooper N. Physicians’ and patients’ perspectives on treatments in ITP – A multi-country perspective: Results from the ITP World Impact Survey (I-WISh). Poster presented at: ASH; 2019 Dec 7-10; Orlando, FL

Management strategies and satisfaction levels in patients with sickle cell disease: Final results from the International Sickle Cell World Assessment Survey (SWAY)

Poster presentation

Bespoke

James J, Andemariam B, Inusa B, El Rassi F, Francis-Gibson B, Nero A, Minniti C, Trimnell C, Abboud MR, Arlet J-B, Colombatti R, de Montalembert M, Jain S, Jastaniah W, Nur E, DeBonnett L, Ifeyinwa Osunkwo I. Management strategies and satisfaction levels in patients with sickle cell disease: Final results from the International Sickle Cell World Assessment Survey (SWAY). Poster presented at: ASH; 2019 Dec 7-10; Orlando, FL

Impact of sickle cell disease symptoms on patients’ daily lives: Final results from the International Sickle Cell World Assessment Survey (SWAY)

Poster presentation

Bespoke

Osunkwo I, Andemariam B, Inusa B, El Rassi F, Francis-Gibson B, Nero A, Minniti C, Trimnell C,Abboud MR, Arlet J-B, Colombatti R, de Montalembert M, Jain S, Jastaniah W, Nur E, DeBonnett L, James J. Impact of sickle cell disease symptoms on patients’ daily lives: Final results from the International Sickle Cell World Assessment Survey (SWAY). Poster presented at: ASH; 2019 Dec 7-10; Orlando, FL

What are the prescribing trends and satisfaction levels with analgesics for osteoarthritis as reported by US rheumatologists, orthopedic surgeons, and primary care physicians?

Poster presentation

Pain

Schnitzer TJ, Robinson RL, Viktrup L, Cappelleri JC, Bushmakin AG, Tive L, Mellor J, Williams N, Hubanova P, Jackson J. What are the prescribing trends and satisfaction levels with analgesics for osteoarthritis as reported by US rheumatologists, orthopedic surgeons, and primary care physicians?. Poster presented at: ACR; 2019 Nov 8-13; Atlanta, GA

Inter-regional inequality in Italian healthcare delivery affects choice of selective estrogen receptor modulators (SERMS) for the treatment of hormone-receptor-positive breast cancer

Poster presentation

Access

Wellam H, Pepper K, Silvey M, Rider A, Piercy J. Inter-re