Publications
| Publication Title | Disease Area | Publication Link | Conference | |
|---|---|---|---|---|
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: experiences of bowel urgency in patients with ulcerative colitis in Canada, compared to the US and EU | Inflammatory Bowel Disease | ECCO, 2026 | ||
| Understanding care experiences in systemic sclerosis: Physician and patient perspectives stratified by clinical clusters | Systemic sclerosis | |||
| Mapping the journey to diagnosis in systemic sclerosis: a real-world cluster-based analysis | Systemic sclerosis | |||
| Regional differences in mental health burden and support in systemic sclerosis: patient and physician perspectives from a multinational real-world survey | Systemic sclerosis | |||
| Real-world effectiveness and unmet need among adult patients with Atopic Dermatitis on advanced systemic therapy: results from the Adelphi Real World Disease Specific Programme in US and Europe | Atopic dermatitis | |||
| Clinical and humanistic burden of skin pain amongst adult patients with a history of moderate-to-severe atopic dermatitis receiving an advanced systemic therapy: results from the Adelphi Real World Disease Specific Programme in US and Europe | Atopic dermatitis | |||
| Effectiveness of ustekinumab and improvement in real-world work productivity and associated indirect costs in patients with moderate-severe Crohn’s disease in the United States of America | Crohn's disease | |||
| Spotlight on Sjögren’s: a patient perspective on burden of illness and unmet needs - results from a real-world survey | Sjogren's syndrome | |||
| Caregiver burden in Duchenne muscular dystrophy in Europe, Japan, and the United States – a real-world study | Duchenne muscular dystrophy | |||
| The impact of relapse on patient disability, clinical outcomes, and subsequent burdens to patients with neuromyelitis optica spectrum disorder and caregivers | Neuromyelitis optica spectrum disorder | |||
| Real-world treatment patterns and burden of chronic thromboembolic pulmonary hypertension patients across consultation settings in the United States | Chronic thromboembolic pulmonary hypertension | |||
| Rheumatologist and patient perspectives on axial spondyloarthritis management and treatment satisfaction in Europe | Axial spondyloarthritis | |||
| The use of triptans and other acute treatments for the management of migraine in routine clinical practice in England: a retrospective cohort study using data from Clinical Practice Research Datalink (CPRD) | Migraine | |||
| Burden, treatment patterns and real-world barriers to prescribing advanced treatments in adults with atopic dermatitis in Brazil and Colombia | Atopic dermatitis | |||
| A retrospective, multinational, cross-sectional survey of real-world outcomes for patients with axial spondyloarthritis receiving subcutaneous infliximab | Axial spondyloarthritis | |||
| Reasons for discontinuation of non-hormonal treatments in women experiencing vasomotor symptoms associated with menopause | Vasomotor symptoms | |||
| Physician-reported reasons for discontinuation of non-hormonal treatments in women experiencing post-menopausal vasomotor symptoms | Vasomotor symptoms | |||
| Real-world assessment of systemic disease activity in seropositive and seronegative patients with Sjögren’s disease and association with patient-reported outcomes | Sjogren's syndrome | |||
| Disease management landscape in patients with mantle cell lymphoma in Japan: a real-world study | Mantle cell lymphoma | |||
| Clinical outcomes and disease management for patients with paroxysmal nocturnal haemoglobinuria in China: results from a real-world study | Paroxysmal nocturnal haemoglobinuria | |||
| Treatment and disease burden of pulmonary arterial hypertension in Japan: a survey of current clinical practice | Pulmonary arterial hypertension | |||
| Physician- and patient-reported outcomes for bictegravir/emtricitabine/tenofovir alafenamide versus other antiretroviral regimens: a real-world survey in the United States | HIV | |||
| Reduced costs of managing adverse reactions with DT3aP-HBV-IPV/Hib versus DT2aP-HBV-IPV-Hib in Vietnam: Results of a cross-sectional survey and mathematical projections of vaccination of infants | Various | |||
| Patient journey in progressive pulmonary fibrosis in Europe, USA, and Japan: real-world survey findings | Progressive pulmonary fibrosis | ERS, 2025 | ||
| Disease burden and unmet needs in Chinese patients with symptomatic exacerbating COPD and on inhaled triple therapy: a cross-sectional real-world study | Chronic obstructive pulmonary disease | ERS, 2025 | ||
| Symptoms and health-related quality of life by surgical history in patients with chronic rhinosinusitis with nasal polyps: A real-world survey in Europe, the United States of America and Japan | Nasal polyps | ERS, 2025 | ||
| EGPA disease burden in Europe and US: evidence from real-world clinical practice | Eosinophilic granulomatosis | ERS, 2025 | ||
| Multidisciplinary team (MDT) perceptions towards the treatment of limited-stage small-cell lung cancer (LS-SCLC): A US physician survey | Small-cell lung cancer | ASTRO, 2025 | ||
| Clinical management and treatment patterns in patients with chronic rhinosinusitis with nasal polyps (CRSwNP) in the USA | CRSwNP | ARS, 2025 | ||
| Characteristics and treatment patterns of patients with mantle cell lymphoma in Brazil: a real-world study | Mantle cell lymphoma | HEMO, 2025 | ||
| A real-world study of patient demographics, clinical characteristics and the treatment patterns of chronic lymphocytic leukemia and small lymphocytic lymphoma in Brazil | Chronic lymphocytic leukemia | HEMO, 2025 | ||
| Patient and physician perspectives on hidradenitis suppurativa treatment: real-world survey results | Hidradenitis suppurativa | SHSA, 2025 | ||
| Treatment patterns across disease stages in transthyretin amyloidosis polyneuropathy: results from a real-world, multi-national survey | Transthyretin amyloid polyneuropathy | AANEM, 2025 | ||
| Treatment and physician satisfaction for a US amyotrophic lateral sclerosis population: analysis of real-world data | Amyotrophic lateral sclerosis | AANEM, 2025 | ||
| Physician and patient satisfaction with chronic inflammatory demyelinating polyradiculoneuropathy treatment: results of a real-world survey in the United States | Chronic inflammatory demyelinating polyneuropathy | AANEM, 2025 | ||
| The diagnostic experience of patients with chronic inflammatory demyelinating polyradiculoneuropathy: results of a real-world survey in the United States | Chronic inflammatory demyelinating polyneuropathy | AANEM, 2025 | ||
| Factors associated with myasthenia gravis – activities of daily living score in a real-world, United States population prescribed standard of care therapy | Myasthenia gravis | AANEM, 2025 | ||
| Treatment utilization and clinical outcomes by serostatus in a real-world US generalized myasthenia gravis population | Myasthenia gravis | AANEM, 2025 | ||
| Physician- and patient-reported outcomes by disease severity in a United States real-world myasthenia gravis population | Myasthenia gravis | AANEM, 2025 | ||
| Physician, patient and caregiver concordance in a real-world US generalized myasthenia gravis population | Myasthenia gravis | AANEM, 2025 | ||
| Treatment-related characteristics among younger women with generalized myasthenia gravis | Myasthenia gravis | AANEM, 2025 | ||
| Physician-reported outcomes versus location of attack in a real-world hereditary angioedema patient population in Europe | Hereditary angioedema | C1-INH , 2025 | ||
| Physician and patient level of agreement in hereditary angioedema attack reporting among a real-world European population | Hereditary angioedema | C1-INH , 2025 | ||
| Real-world ritlecitinib treatment of severe alopecia areata (AA) in the US: patient characteristics and physician satisfaction | Alopecia areata | FCPANP, 2025 | ||
| Understanding the impact of long-term prophylaxis switches for patients with hereditary angioedema | Hereditary angioedema | EAC, 2025 | ||
| Differences in patient (pt) characteristics and therapy choice across treatment (tx) groups in locally advanced or metastatic urothelial cancer (la/mUC) in the US: A survey on unmet patient needs | Urothelial carcinoma | ASCO, 2025 | ||
| Real-world survey on physician treatment choice and dosing schedules for anti-VEGF therapies in the treatment of Neovascular Age-Related Macular Degeneration | Neovascular age-related macular degeneration | ASRS, 2025 | ||
| Describing the population of patients with prolonged seizures: results from a global real-world point-in-time study | Prolonged seizures | IEC, 2025 | ||
| Patterns of treatment and genetic testing in transthyretin amyloid cardiomyopathy: a real-world, multinational survey | Transthyretin amyloid cardiomyopathy | ESC, 2025 | ||
| Humanistic burden and medical care patterns of real-world patients with myasthenia gravis in Japan | Myasthenia gravis | Front Neurol, 2025 | ||
| Patient characteristics, disease profile and treatment patterns in mild and moderate psoriasis patients: results from real‐world clinical practices in five European countries (PROSPECT Study) | Psoriasis | JEADV Clin Pract, 2025 | ||
| Rates of biopsy-confirmed celiac disease diagnosis and gluten-free diet adherence in Europe and the United States: a real-world survey | Celiac disease | ICDS, 2025 | ||
| Psychometric validation of the Quality of Life Inventory - Disability (QI-Disability) among caregivers of patients with Lennox-Gastaut syndrome and Dravet syndrome | Various | https://pubmed.ncbi.nlm.nih.gov/41337852/ | ||
| Does age impact headache diagnosis and migraine management in England? A retrospective cohort study of primary care medical records | Migraine | EHC, 2025 | ||
| Does ethnicity impact headache diagnosis and migraine management in England? A retrospective cohort study of primary care medical records | Migraine | EHC, 2025 | ||
| Does deprivation impact headache diagnosis and migraine management in England? A retrospective cohort study of primary care medical records | Migraine | EHC, 2025 | ||
| Does sex impact headache diagnosis and migraine management in England? A retrospective cohort study of primary care medical records | Migraine | EHC, 2025 | ||
| Real-world clinical characteristics and treatment outcomes in PNH patients prescribed pegcetacoplan across Europe, the United States and Canada | Paroxysmal nocturnal hemoglobinuria | ASH, 2025 | ||
| Quality of life and functional improvements with efanesoctocog alfa in patients with moderate-to-severe Hemophilia A: a real-world survey | Hemophilia | ASH, 2025 | ||
| Patient (pt) characteristics, HER2 testing, and treatment (Tx) patterns in advanced HER2 (ERBB2)-mutant (HER2m) NSCLC in real-world clinical practice | Non-small cell lung cancer | ESMO Asia, 2025 | ||
| INO-transit: Inotuzumab ozogamicin treatment prior to chimeric antigen receptor T-cell therapy in Relapsed/Refractory B-cell acute lymphoblastic leukemia: Real-world patient characteristics and outcomes in Spain, the UK and US | Acute lymphoblastic leukemia | ASH, 2025 | ||
| Physician-reported impact of vaso-occlusive crises in people with sickle cell disease: a multinational, real-world survey | Sickle cell disease | ASH, 2025 | ||
| Real-world insights into the patient experience and gender disparities during treatment for high-risk non-muscle invasive bladder cancer | Bladder cancer | SUO, 2025 | ||
| Describing the population of patients with prolonged seizures: US subgroup results from a global real-world point-in-time study | Prolonged seizures | AES, 2025 | ||
| Patient- and physician-reported symptom burden among patients with bronchiectasis in Europe | Bronchiectasis | BTS, 2025 | ||
| Diagnosis and treatment in adult patients with C3 glomerulopathy in Japan: a real‑world survey | C3 glomerulopathy | https://pubmed.ncbi.nlm.nih.gov/41177855/ | ||
| Impact of CIDP on health-related quality of Life, fatigue and daily activities: results from a real-world international survey | Chronic inflammatory demyelinating polyneuropathy | ISPOR EU, 2025 | ||
| The journey to diagnosis for patients with CIDP: results from a real-world international survey | Chronic inflammatory demyelinating polyneuropathy | ISPOR EU, 2025 | ||
| Global real-world use of radical cystectomy in patients with high-risk non–muscle invasive bladder cancer | Bladder cancer | EMUC, 2025 | ||
| Health-related quality of life in muscle invasive bladder cancer patients receiving radical surgery versus those who do not: a real-world survey | Bladder cancer | EMUC, 2025 | ||
| Real-world Ritlecitinib Treatment of Severe Alopecia Areata (AA) in the US: Patient Characteristics and Physician Satisfaction | Alopecia areata | CHRS, 2025 | ||
| Real-world treatment patterns of patients with platinum-resistant recurrent ovarian cancer within the United States: an analysis of secondary data | Ovarian cancer | IGCS, 2025 | ||
| Factors related to adherence and compliance in patients with overweight or obesity receiving semaglutide for weight management | Obesity | Obesity Week, 2025 | ||
| Real-world physician and patient perspectives on compliance and adherence of semaglutide for obesity or overweight | Obesity | Obesity Week, 2025 | ||
| Economic burden of non-cirrhotic patients with chronic hepatitis B virus infection in the United States | Hepatitis B | AASLD, 2025 | ||
| Real world assessment of current PBC treatment, key goals, and level of treatment satisfaction according to healthcare professionals across France, Italy, Germany, Spain, United Kingdom, and the United States | Primary biliary cholangitis | AASLD, 2025 | ||
| Clinical characteristics, disease status and symptomatology of patients with primary biliary cholangitis in Europe and the United States of America: analysis of a real-world dataset | Primary biliary cholangitis | AASLD, 2025 | ||
| Physician reported assessment of pruritus amongst patients with PSC: Results from a real-world survey in France, Germany, Italy and the United States | Primary sclerosing cholangitis | AASLD, 2025 | ||
| Real world experience; an interim analysis of effectiveness of tezepelumab in patients with severe uncontrolled asthma across the UK | Asthma | BTS, 2025 | ||
| Real-world frequency and burden of autonomic dysfunction among patients with transthyretin amyloidosis with polyneuropathy | Transthyretin amyloid polyneuropathy | AAS, 2025 | ||
| Potential obesity cost savings resulting from naltrexone-bupropion treatment: a US real-world survey | Obesity | Obesity Week, 2025 | ||
| Adult/pediatric perspectives and experiences with activated phosphoinositide 3-kinase delta syndrome (APDS) and leniolisib: APPEAL survey | Activated phosphoinositide 3-kinase delta syndrome | ACAAI, 2025 | ||
| Perspectives on the diagnostic protocol for Alzheimer's disease (AD): results of a real-life survey in Spain | Dementia | SEN, 2025 | ||
| Improved outcomes, emergency visits, and quality-of-life for patients with food allergy on omalizumab monotherapy | Food allergy | ACAAI, 2025 | ||
| Real-world burden of illness in patients with ER+/HER2- ABC receiving second-line treatment: interim results of longitudinal health utility data | Breast cancer | ISPOR EU, 2025 | ||
| Healthcare resource utilization and economic burden among adults with alopecia areata in the United Arab Emirate | Alopecia areata | ISPOR EU, 2025 | ||
| Healthcare resource utilization and economic burden among adults with alopecia areata in the Kingdom of Saudi Arabia | Alopecia areata | ISPOR EU, 2025 | ||
| The Impact of treatment compliance on healthcare resource utilization amongst kidney transplant recipients: results from a real-world survey | Kidney Transplant | ISPOR EU, 2025 | ||
| Economic burden and unmet need among adult patients with varying patterns of atopic dermatitis: results from the Adelphi Real World Disease Specific Programme | Atopic dermatitis | ISPOR EU, 2025 | ||
| Productivity impacts and the need for carer support in obstructive HCM - a patient and carer survey | Hypertrophic cardiomyopathy | ISPOR EU, 2025 | ||
| Health-related quality of life for patients with transthyretin amyloid cardiomyopathy: a real-world study in Europe, Canada and Japan | Transthyretin amyloid cardiomyopathy | ISPOR EU, 2025 | ||
| Healthcare resource utilization for patients with transthyretin amyloid cardiomyopathy: a real-world study in Europe, Canada and Japan. | Transthyretin amyloid cardiomyopathy | ISPOR EU, 2025 | ||
| Patterns of treatment, adherence, and administration preferences for people with transthyretin amyloid cardiomyopathy: a real-world survey in Europe, the United States, and Japan | Transthyretin amyloid cardiomyopathy | ISPOR EU, 2025 | ||
| Describing the burden of transthyretin amyloid cardiomyopathy (ATTR-CM) on patients and their caregivers: a real-world survey in Europe, the United States, and Japan | Transthyretin amyloid cardiomyopathy | ISPOR EU, 2025 | ||
| Disability, resource utilisation, and caregiver support among a real-world sample of patients with transthyretin amyloidosis with polyneuropathy | Transthyretin amyloid polyneuropathy | ISPOR EU, 2025 | ||
| Treatment patterns and healthcare resource utilization among patients with immune thrombocytopenia: a real-world survey | Thrombocytopenia | ISPOR EU, 2025 | ||
| Healthcare resource utilisation in patients with hidradenitis suppurativa using Adelphi real-world data from EU5 and US | Hidradenitis suppurativa | ISPOR EU, 2025 | ||
| Impact of disease progression on healthcare resource utilization and quality of life in patients with hypertrophic cardiomyopathy: a real-world cross-sectional survey | Hypertrophic cardiomyopathy | ISPOR EU, 2025 | ||
| A real-world survey of health inequalities as drivers for burden on male hemophilia patients in the US, EU5 and Asia | Hemophilia | ISPOR EU, 2025 | ||
| A real-world survey of healthcare resource utilisation, treatment usage, and unmet need for haemophilia patients in Spain | Hemophilia | ISPOR EU, 2025 | ||
| Clinical profile of patients with paroxysmal nocturnal hemoglobinuria (PNH) not treated with complement inhibitors: results from a real-world study | Paroxysmal nocturnal hemoglobinuria | ISPOR EU, 2025 | ||
| Burden of transfusion in patients with paroxysmal nocturnal hemoglobinuria (PNH): results from a real-world study in European countries | Paroxysmal nocturnal hemoglobinuria | ISPOR EU, 2025 | ||
| Medical and non-medical resource utilization associated with CIDP: results from a real-world international survey | Chronic inflammatory demyelinating polyneuropathy | ISPOR EU, 2025 | ||
| Correspondence between patients' and neurologists' satisfaction with treatment in patients with CIDP: results from a real-world international survey | Chronic inflammatory demyelinating polyneuropathy | ISPOR EU, 2025 | ||
| Biomarker levels in patients with ulcerative colitis post-advanced therapy induction: a real-world survey in Europe | Ulcerative colitis | ISPOR EU, 2025 | ||
| Biomarker levels in patients with Crohn’s disease post-advanced therapy induction: a real-world survey in Europe | Crohn's disease | ISPOR EU, 2025 | ||
| Treatment patterns, inadequate disease control and burden/unmet need among adult patients with moderate-to-severe atopic dermatitis: results from the Adelphi Real World Disease Specific Programme | Atopic dermatitis | ISPOR EU, 2025 | ||
| Transfusion healthcare resource utilization and associated impact of quality of life among patients with myelofibrosis and anemia: a multinational real-world survey | Myelofibrosis | ISPOR EU, 2025 | ||
| Assessing the real-world impact of earlier initiation of anti-tumor necrosis factor vs. conventional synthetic DMARDs on clinical and patient-reported outcomes in patients with rheumatoid arthritis in Europe | Rheumatoid arthritis | ISPOR EU, 2025 | ||
| Significant burden of chronic obstructive pulmonary disease (COPD) on health status and well-being persists among patients experiencing one severe or two or more moderate exacerbations of COPD (ECOPD) and their caregivers (CGs) | Chronic obstructive pulmonary disease | ISPOR EU, 2025 | ||
| Impact of transfusion-dependent thalassemia on adult patients’ health-related quality of life and work productivity in the Kingdom of Saudi Arabia and United Arab Emirates | Thalassemia | ISPOR EU, 2025 | ||
| Clinical burden and transfusion-related outcomes in transfusion-dependent thalassemia in the Kingdom of Saudi Arabia and United Arab Emirates | Thalassemia | ISPOR EU, 2025 | ||
| Impact of non-transfusion-dependent thalassemia on adult patients' health-related quality of life and work productivity in the Kingdom of Saudi Arabia and United Arab Emirates | Thalassemia | ISPOR EU, 2025 | ||
| Humanistic and financial burden experienced by non-professional care partners of patients with mild cognitive impairment and dementia due to Alzheimer’s disease: Results from a real-world survey in Spain | Dementia | ISPOR EU, 2025 | ||
| Real-world drivers of adherence in obesity highlight the need for patient-centred interventions | Obesity | ISPOR EU, 2025 | ||
| Development of the Adelphi Caregiver Experience Questionnaire© (ACARE): a novel tool designed to measure and understand the burden and quality of life impacts of the caregiver role | Various | ISPOR EU, 2025 | ||
| Association of recurrences with health care resource utilisation in high-risk non-muscle invasive bladder cancer patients across Europe: a real-world survey | Bladder cancer | ISPOR EU, 2025 | ||
| Health-related quality of life in patients with metastatic urothelial cancer: results of a cross-sectional survey in Europe | Urothelial carcinoma | ISPOR EU, 2025 | ||
| Concordance between patient and physician reporting of symptoms for metastatic urothelial cancer in Europe: a real-world survey | Urothelial carcinoma | ISPOR EU, 2025 | ||
| Advanced therapies and the unmet need in systemic lupus erythematosus patients, results from a real-world study in the United States and Germany | Systemic lupus erythematosus | ISPOR EU, 2025 | ||
| Characteristics and healthcare resource use of patients receiving care for chronic hepatitis b virus Infection in the US: a cross-sectional survey | Hepatitis D virus | AASLD, 2025 | ||
| Patient-reported burden and health-related quality of life among patients with hepatitis delta: results from a real-world study in Europe | Hepatitis D virus | AASLD, 2025 | ||
| Treatment patterns in chronic lymphocytic leukemia: a real-world survey in Japan | Chronic lymphocytic leukemia | JSH, 2025 | ||
| High symptom burden and exacerbation risk in people with COPD despite treatment with maximum inhaled standard of care in the real world | Chronic obstructive pulmonary disease | CHEST, 2025 | ||
| Symptoms and quality of life benefits of achieving deep remission: a real-world survey of patients with Ulcerative Colitis | Ulcerative colitis | ACG, 2025 | ||
| Symptoms and quality of life benefits of achieving deep remission: a real-world survey of patients with Crohn's disease | Crohn's disease | ACG, 2025 | ||
| Specialist care improves diagnosis and treatment for patients with chronic spontaneous urticaria: a real-world survey | Urticaria | JACI: Global, 2025 | ||
| Real-world effectiveness and satisfaction with risankizumab for the treatment of psoriatic arthritis in biologic-naïve patients: a population survey in the United States and Europe | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/41128765/ | ||
| Embedding genetic testing in the metastatic prostate cancer pathway: understanding patient and physician perspectives | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/41170715/ | ||
| GO-First: Real-world data of front line gemtuzumab ozogamicin in intermediate and favorable risk AML patients in a multicenter retrospective chart review | Acute myeloid leukemia | DGHO, 2025 | ||
| The cost of migraine in England: a retrospective cohort study using electronic health record data from Clinical Practice Research Datalink (CPRD) and Hospital Episode Statistics (HES) | Migraine | https://pubmed.ncbi.nlm.nih.gov/41058444/ | ||
| Clinical status, treatment, and disease burden of generalised myasthenia gravis in the Asia-Pacific | Myasthenia gravis | Neurol Ther, 2025 | ||
| Real world steroid burden, treatment patterns, and rheumatologists’ perceptions on advanced therapy in giant cell arteritis | Giant cell arteritis | ACR, 2025 | ||
| Real-world diagnosis and management of mild cognitive impairment and Alzheimer’s disease dementia in the United Kingdom | Dementia | J Alzheimers Dis Rep, 2025 | ||
| PAIRED: quantitative and qualitative PAtIent-Reported Experiences and perceiveD benefit of treatment with dolutegravir/lamivudine in the United States | HIV | Patient, 2025 | ||
| Economic burden of liver progression in patients with chronic hepatitis B virus infection in the United States | Hepatitis B | AMCP Nexus, 2025 | ||
| Real-world use of Bacillus Calmette-Guérin (BCG) in patients with high-risk non-muscle invasive bladder cancer (HR-NMIBC) | Bladder cancer | ESMO, 2025 | ||
| Real-world analysis of clinical characteristics and treatment patterns in patients with type 2 diabetes in the United Arab Emirates | Diabetes | Dubai Diabetes Endocrinol J , 2025 | ||
| Impact of moderate-to-severe atopic dermatitis on daily functioning among adolescent patients: a real-world study in the United States | Atopic dermatitis | FCDC, 2025 | ||
| The impact of moderate-to-severe atopic dermatitis on sleep in adolescent patients from the Adelphi Real World Disease Specific Programme (DSP)™ | Atopic dermatitis | FCDC, 2025 | ||
| Real-world assessment of advanced psoriasis therapies in the US: clinical burden, treatment patterns, and perceptions | Psoriasis | FCDC, 2025 | ||
| Real-world work productivity is impaired in people with metabolic dysfunction-associated steatotic liver disease in the USA | Metabolic dysfunction associated steatohepatitis | JHEP Rep, 2025 | ||
| Treatment satisfaction with topical therapies in adolescent and adult patients with moderate-to- severe atopic dermatitis: a real- world study in the United States | Atopic dermatitis | FCDC, 2025 | ||
| Understanding topical treatment experiences in patients with moderate-to-severe atopic dermatitis: results from a US cross-sectional survey | Atopic dermatitis | FCDC, 2025 | ||
| Use of renal function tests in the diagnosis and follow-up of patients with lupus nephritis: results of a survey conducted in Spain with real-life data | Lupus nephritis | SEN, 2025 | ||
| PAIRED - PAtIent Reported Experiences and perceiveD benefit of treatment with dolutegravir/lamivudine (DTG/3TC): a diverse sample of people with HIV-1 reporting high treatment satisfaction, good adherence, and high quality of life | HIV | IDWeek, 2025 | ||
| Differences in patient-physician satisfaction for migraine treatment medications in patients with and without medication-overuse headache: a cross-sectional real-world survey | Migraine | https://pubmed.ncbi.nlm.nih.gov/40826258/ | ||
| Real-world evidence of the impact of Dravet syndrome and Lennox-Gastaut syndrome on patient and caregiver quality of life | Various | JES, 2025 | ||
| Employment status and care requirements among people with amyotrophic lateral sclerosis in the United States | Amyotrophic lateral sclerosis | AMCP Nexus, 2025 | ||
| Real-world experience with efanesoctocog alfa in patients with moderate and severe hemophilia A: final analysis of the Adelphi Haemophilia Wave III Disease Specific ProgrammeTM | Hemophilia | AMCP Nexus, 2025 | ||
| Characteristics and unmet need in patients with hereditary angioedema treated with long-term prophylaxis in Spain: a survey with real-life data | Hereditary angioedema | SEAIC, 2025 | ||
| Patient characteristics and treatment patterns in patients with Lennox-Gastaut syndrome: real-world evidence from a cross-sectional survey of physicians in Europe | Lennox-Gastaut syndrome | SEEP, 2025 | ||
| Impact of bulevirtide therapy on physician-reported disease severity among patients with hepatitis delta: findings from a real-world survey in Europe | Hepatitis D virus | Delta Cure, 2025 | ||
| PREFER-LA: People with HIV (PWH) in the United States with prior adherence challenges with oral antiretroviral therapy (ART) prefer cabotegravir + rilpivirine long-ccting (CAB+RPV LA) therapy after switch | HIV | IDWeek, 2025 | ||
| PREFER-LA: Improved adherence and viral control in a real-world study of people with HIV in the United States with adherence challenges on oral antiretroviral therapy (ART) switching to cabotegravir + rilpivirine long-acting (CAB+RPV LA) | HIV | IDWeek, 2025 | ||
| Impact of transfusion dependent alpha- and beta-thalassemia on adult patients’ health-related quality of life and work productivity: a multi-region real-world survey | Thalassemia | ISOQOL, 2025 | ||
| Patient-reported and transfusion-related outcomes in alpha- and beta-transfusion-dependent thalassemia: a multi-region real-world survey | Thalassemia | ISOQOL, 2025 | ||
| An epidemiological study on patient characteristics and treatment patterns in Japanese patients with asthma using a claims database | Asthma | JSA, 2025 | ||
| Impact of non-transfusion-dependent thalassemia on adult patients’ health-related quality of life and work productivity: a multi-region real-world survey | Thalassemia | ASCAT, 2025 | ||
| Physician-reported patient population overview in sickle cell disease: a multinational, real-world survey | Sickle cell disease | ASCAT, 2025 | ||
| The presence of learning difficulties is associated with higher disease burden in patients diagnosed with influenza: a real-world survey in an older population | Influenza | IDWeek, 2025 | ||
| Impact of fatigue as a side effect of anti-retroviral therapy on the quality of life of people living with HIV: a real-world survey | HIV | IDWeek, 2025 | ||
| Comprehensive analysis of Lennox-Gastaut syndrome in Europe: treatment patterns, healthcare utilisation, and quality of life | Lennox-Gastaut syndrome | JFE, 2025 | ||
| Navigating diagnostic challenges: insights into the patient journey and delays in diagnosing dermatomyositis from a real-world survey in the United States and Europe | Dermatomyositis | ACR, 2025 | ||
| Patient characteristics, and physician-reported treatment effectiveness and treatment satisfaction with bimekizumab for axial spondyloarthritis in the United States: interim analysis from a real-world study | Axial spondyloarthritis | ACR, 2025 | ||
| Real-world effectiveness and satisfaction in biologic-naïve patients with psoriatic arthritis and limited joint involvement treated with risankizumab in the United States and Europe | Psoriatic arthritis | ACR, 2025 | ||
| Real-world comparative effectiveness of upadacitinib in psoriatic arthritis: evaluation of switching to upadacitinib versus tumor necrosis factor inhibitors or interleukin-17 inhibitors after first-line tumor necrosis factor inhibitors | Psoriatic arthritis | ACR, 2025 | ||
| Real-world effectiveness of risankizumab on axial symptoms in biologic-naïve patients with psoriatic arthritis in the United States and Europe | Psoriatic arthritis | ACR, 2025 | ||
| A real-world survey on physicians' perspectives of uncontrolled gout and gout management practices | Gout | ACR, 2025 | ||
| The care pathway and treatment patterns in patients with uncontrolled gout: a real-world survey of physicians in the United States | Gout | ACR, 2025 | ||
| Prevalence and factors associated with optimal disease control in CD and UC: Views on Inflammatory bowel disease (IBD) Expectations and Well-being by Patients and Treatment providers (VIEW-PT) | Inflammatory Bowel Disease | UEGW, 2025 | ||
| Exploring the value of achieving complete or near complete skin clearance in patients with a history of moderate-severe psoriasis: a real-world survey in Europe | Psoriasis | EADV, 2025 | ||
| Treatment experience of early-stage hormone receptor-positive, human epidermal growth factor receptor 2-negative breast cancer in a real-world setting: European patients’ perspectives | Breast cancer | Breast Care, 2025 | ||
| Describing patients with hidradenitis suppurativa receiving secukinumab: a real-world survey in the United States | Hidradenitis suppurativa | EADV, 2025 | ||
| The impact of surgery on patients with Von Hippel-Lindau-associated tumors: An international patient survey | Von Hippel-Lindau syndrome | https://pubmed.ncbi.nlm.nih.gov/40796357/ | ||
| Real-world comparative effectiveness of upadacitinib in psoriatic arthritis: evaluation of switching to upadacitinib versus tumor necrosis factor inhibitors or interleukin-17 inhibitors after first-line tumor necrosis factor inhibitors | Psoriatic arthritis | SBR, 2025 | ||
| Real-world effectiveness and satisfaction with risankizumab for the treatment of early psoriatic arthritis in biologic-naïve patients: a population survey in the United States and Europe | Psoriatic arthritis | SBR, 2025 | ||
| Real-world effectiveness and satisfaction with risankizumab for the treatment of early psoriatic arthritis in biologic-naïve patients: a population survey in the United States and Europe | Psoriatic arthritis | APLAR, 2025 | ||
| Real-world comparative effectiveness of upadacitinib in psoriatic arthritis: evaluation of switching to upadacitinib versus tumor necrosis factor inhibitors or interleukin-17 inhibitors after first-line tumor necrosis factor inhibitors | Psoriatic arthritis | DGRh, 2025 | ||
| Real-World clinical characteristics and healthcare resource utilisation of patients with metabolic dysfunction-associated steatohepatitis in Italy | Metabolic dysfunction associated steatohepatitis | Paris MASH Meeting, 2025 | ||
| Real-world clinical characteristics and treatment patterns of patients with metabolic dysfunction-associated steatohepatitis in Germany | Metabolic dysfunction associated steatohepatitis | Paris MASH Meeting, 2025 | ||
| Real-world clinical characteristics and healthcare resource utilisation of patients with metabolic dysfunction-associated steatohepatitis in France | Metabolic dysfunction associated steatohepatitis | Paris MASH Meeting, 2025 | ||
| A real-world analysis of the clinical journey, diagnosis, and monitoring patterns of patients with Alzheimer disease by stage in the United States | Dementia | https://pubmed.ncbi.nlm.nih.gov/40940699/ | ||
| Social determinants of health, quality of life, and productivity outcomes among adults with vitiligo in Brazil, China, India, and South Africa | Vitiligo | https://pubmed.ncbi.nlm.nih.gov/40916214/ | ||
| Nonseizure symptoms and broader seizure impacts in patients with Dravet syndrome and Lennox–Gastaut syndrome in clinical practice settings: Results from a multinational survey | Various | https://pubmed.ncbi.nlm.nih.gov/40982357/ | ||
| Real-world comparative effectiveness study in patients with asthma initiating fluticasone furoate/vilanterol or beclometasone dipropionate/dormoterol dumarate in general practice in England | Asthma | https://pubmed.ncbi.nlm.nih.gov/40996636/ | ||
| Real-world comparative effectiveness in patients with asthma newly initiating fluticasone furoate/vilanterol or budesonide/formoterol: a United Kingdom general practice cohort study | Asthma | https://pubmed.ncbi.nlm.nih.gov/40956480/ | ||
| Understanding patient types prescribed oral advanced therapies or biologics for psoriasis: Results from a real-world survey in Germany | Psoriasis | EADV, 2025 | ||
| Clinical burden of people with symptomatic and exacerbating COPD while on triple inhaled therapy | Chronic obstructive pulmonary disease | J Clin Med, 2025 | ||
| Treatment discontinuation and adherence in patients with chronic hepatitis B infection newly initiating nucleos(t)ide analogues in Japan: a retrospective cohort study | Hepatitis B virus | https://pubmed.ncbi.nlm.nih.gov/40810215/ | ||
| A real-world study of health-related quality of life among patients with transthyretin amyloidosis with polyneuropathy | Transthyretin amyloid polyneuropathy | ATTR, 2025 | ||
| GO-First: Real-world data of front line gemtuzumab ozogamicin in intermediate and favorable risk AML patients in a multicenter retrospective chart review | Acute myeloid leukemia | SOHO, 2025 | ||
| Real-world ritlecitinib treatment of severe alopecia areata (AA) in the US: patient characteristics and physician satisfaction | Alopecia areata | EADV, 2025 | ||
| Clinical characteristics, treatment patterns, and quality of life impacts among patients with alopecia areata in Saudi Arabia and the United Arab Emirates | Alopecia areata | EADV, 2025 | ||
| Dermatologist perceptions and experiences treating alopecia areata in Saudi Arabia and the United Arab Emirates | Alopecia areata | EADV, 2025 | ||
| Treatment patterns and physician satisfaction among patients with alopecia areata in the United States in the JAK inhibitors era | Alopecia areata | EADV, 2025 | ||
| Real-world impact of disease severity on disease progression and mental health among patients with alopecia areata in the United States | Alopecia areata | EADV, 2025 | ||
| Barriers to biologic treatment in patients with systemic lupus erythematosus: results from a real-world study in Japan and China | Systemic lupus erythematosus | APLAR, 2025 | ||
| Patient-reported psychosocial burdens and quality of life and work productivity impacts among patients with clinically distinct alopecia areata severity profiles | Alopecia areata | https://pubmed.ncbi.nlm.nih.gov/40690154/ | ||
| Real-world burden of illness in thyroid eye disease patients in Canada: A physician-reported analysis | Thyroid eye disease | ESOPRS, 2025 | ||
| Real-world multinational survey of chronic inflammatory demyelinating polyneuropathy: disease characteristics and therapeutic landscape | Chronic inflammatory demyelinating polyneuropathy | https://pubmed.ncbi.nlm.nih.gov/40826893/ | ||
| Describing the population of patients with prolonged seizures: China subgroup results from a global real-world point-in-time study | Prolonged seizures | NACCMA, 2025 | ||
| Interim analysis of a European real-world study on the effectiveness and physician satisfaction of bimekizumab treatment in patients with psoriatic arthritis: insights from France, Germany, Spain and the United Kingdom | Psoriatic arthritis | EADV, 2025 | ||
| A real-world survey of the diagnostic journey, current treatment, and burden of mild cognitive impairment or dementia due to Alzheimer’s disease in China | Dementia | CTAD AWC, 2025 | ||
| Treatment and disease burden in patients with C3G: multinational real-world study results | C3 glomerulopathy | https://pmc.ncbi.nlm.nih.gov/articles/PMC12503786/ | ||
| Identifying treatable traits of patients with asthma prescribed an ICS/LABA: a descriptive analytic database study in England | Asthma | https://pubmed.ncbi.nlm.nih.gov/40828350/ | ||
| Eligible patients with heart failure prescribed versus not prescribed vericiguat in the United States | Chronic heart failure | Front Cardiovasc Med, 2025 | ||
| Burden of hemophilia for patients in India: a real-world survey of physicians and patients | Hemophilia | NHU, 2025 | ||
| Integrating mixed methods and actigraphy to advance understanding of adverse events in metastatic breast cancer: a multi-country study | Breast cancer | ISPE, 2025 | ||
| A real-world comparison of clinical effectiveness of upadacitinib, tumor necrosis factor inhibitors or interleukin-17 inhibitors in patients with axial spondyloarthritis after switching from an initial tumor necrosis factor inhibitor treatment | Axial spondyloarthritis | https://pubmed.ncbi.nlm.nih.gov/40682631/ | ||
| Clinical characteristics and treatment satisfaction of individuals prescribed tirzepatide for obesity or overweight: results from a US survey | Obesity | ENDO, 2025 | ||
| Obesity-related work impairment in people with obesity treated with tirzepatide and those not currently prescribed obesity management medications | Obesity | ENDO, 2025 | ||
| Understanding the burden experienced by patients with mild cognitive impairment and dementia due to Alzheimer’s disease at different stages of disease severity in a real–world setting | Dementia | AAIC, 2025 | ||
| Understanding the clinical care pathway of patients with mild cognitive impairment due to Alzheimer’s disease and dementia due to Alzheimer’s disease: Results from a global real-world survey | Dementia | AAIC, 2025 | ||
| Humanistic and financial burden experienced by informal care partners of patients with mild cognitive impairment and dementia due to Alzheimer’s disease: Results from real-world survey | Dementia | AAIC, 2025 | ||
| Weight gain and health-related quality of life in people living with HIV on antiretroviral therapy in the United States | HIV | https://pubmed.ncbi.nlm.nih.gov/40726406/ | ||
| Effects of antiretroviral resistance on outcomes and health care resource utilization among people with HIV in the United States and Europe: a real-world survey | HIV | https://pubmed.ncbi.nlm.nih.gov/40631599/ | ||
| Management and burden of disease in people with myelin oligodendrocyte glycoprotein antibody-associated disease: data from an international, cross-sectional survey | Myelin oligodendrocyte glycoprotein antibody-associated disease | https://pubmed.ncbi.nlm.nih.gov/40696221/ | ||
| Broad impact of bowel urgency in ulcerative colitis and Crohn’s disease: US, European, and Japanese patient and health care professional perspectives from the communicating needs and features of IBD experiences (CONFIDE) survey | Inflammatory Bowel Disease | Adv Ther, 2025 | ||
| Impact of moderate-to-severe ulcerative colitis and Crohn's disease on sexual activity: United States and European patient perspectives from the communicating needs and features of IBD experiences (CONFIDE) survey | Inflammatory Bowel Disease | Curr Med Res Opin, 2025 | ||
| Current Status, Perceptions, and Barriers Regarding Weight Loss Approaches in China | Obesity | Endocrine, 2025 | ||
| Abemaciclib in combination with endocrine therapy for the treatment of HR-positive/HER2-negative locally advanced/metastatic breast cancer in the UK: An observational study | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/40684084/ | ||
| Long-term real-world outcomes in patients with hereditary angioedema receiving lanadelumab for 3 or more years | Hereditary angioedema | Int Arch Allergy Immunol, 2025 | ||
| A real-world survey of the diagnostic journey, current treatment, and burden of mild cognitive impairment or dementia due to Alzheimer’s disease in China | Dementia | AAIC, 2025 | ||
| Patient perspectives on disease burden and management of hypereosinophilic syndrome in Europe and the US: evidence from a real-world survey in clinical practice | Hypereosinophilic syndrome | IES, 2025 | ||
| First-line treatment in MSI-H/dMMR metastatic colorectal cancer across Europe, Canada and the United States: a real-world survey of patients and clinicians | Colorectal cancer | ESMO GI, 2025 | ||
| Global physician and patient-reported symptom concordance in association with quality of life in HER2-negative advanced gastric, gastroesophageal or esophageal adenocarcinoma | Gastric cancer | ESMO GI, 2025 | ||
| Joint bleed diagnosis and treatment delays in people with hemophilia: global real-world data | Hemophilia | ISTH, 2025 | ||
| The economic burden of RSV in hospitalised adults in England: a study using linked data from the clinical practice research datalink and hospital episode statistics | Respiratory syncytial virus | CVN, 2025 | ||
| GO-First: Real-world data of front line gemtuzumab ozogamicin in intermediate and favorable risk AML patients in a multicenter retrospective chart review | Acute myeloid leukemia | EHA, 2025 | ||
| Impact of body mass index and comorbidities on health-related quality of life and work productivity in people with overweight or obesity: a survey-based study in the United Kingdom | Obesity | JHEOR, 2025 | ||
| US physician-reported prophylactic treatment satisfaction and joint health of people with hemophilia | Hemophilia | ISTH, 2025 | ||
| Haemophilia treatment usage and satisfaction in Japan: results from a multinational real-world survey | Hemophilia | JSTH, 2025 | ||
| Health care provider– and patient-reported outcomes for bictegravir/emtricitabine/tenofovir alafenamide versus other antiretroviral regimens: an observational survey in the United States (July 2021–March 2022) | HIV | https://pubmed.ncbi.nlm.nih.gov/40525252/ | ||
| Burden of Disease and Unmet Clinical Needs in Pediatric Patients with Asthma: Real-World Experience from the United States and Five European Countries | Asthma | J Asthma, 2025 | ||
| Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study | Various | Orphanet J Rare Dis, 2025 | ||
| Clinical characteristics, treatment patterns and healthcare resource utilisation for portopulmonary hypertension patients in the USA: a real-world study | Pulmonary arterial hypertension | https://pubmed.ncbi.nlm.nih.gov/40537224/ | ||
| Underdiagnosis and impact of menstrual migraine in real-world clinical practice: A real-world survey | Migraine | https://pubmed.ncbi.nlm.nih.gov/40586413/ | ||
| Psychometric evaluation of the Adelphi Adherence Questionnaire (ADAQ©) in a type 2 diabetes mellitus population as a new measure of adherence and the complex factors influencing adherence in routine care | Diabetes | https://pubmed.ncbi.nlm.nih.gov/40653964/ | ||
| Real-world experiences and treatment patterns among congenital heart disease patients with associated pulmonary vascular disease: Results from a real-world survey in the United States | Pulmonary hypertension congenital heart disease | JHLT Open, 2025 | ||
| Barriers to biological treatment in patients with systemic lupus erythematosus: Results from a real-world survey in Europe and the United States of America | Systemic lupus erythematosus | EULAR, 2025 | ||
| A real-world survey assessing the extent and impact of misdiagnosis for patients with neuromyelitis optica spectrum disorder in Europe | Neuromyelitis optica spectrum disorder | EAN, 2025 | ||
| Patient and physician concordance in treatment satisfaction and symptom severity among Myasthenia Gravis patients in the United States and five European countries | Myasthenia gravis | https://pubmed.ncbi.nlm.nih.gov/40485493/ | ||
| A portrait of generalized myasthenia gravis in canada: analysis of the Adelphi MG II Disease Specific Programme | Myasthenia gravis | CNSF, 2025 | ||
| Patient perspectives on disease burden and management of hypereosinophilic syndrome in Europe and the US: evidence from a real-world survey in clinical practice | Hypereosinophilic syndrome | EHA, 2025 | ||
| Real-world effectiveness of upadacitinib in patients with atopic dermatitis in germany, italy, and spain: results from the adelphi disease registry | Atopic dermatitis | CND, 2025 | ||
| Health-related quality of life and preference for treatment modalities of patients with paroxysmal nocturnal hemoglobinuria (PNH): results of a real-world study | Paroxysmal nocturnal hemoglobinuria | EHA, 2025 | ||
| Real-world outcomes and clinical burden of patients with paroxysmal nocturnal hemoglobinuria | Paroxysmal nocturnal hemoglobinuria | EHA, 2025 | ||
| Patient-reported vaso-occlusive events, their associated pain severity, and impact of sickle cell disease on fatigue and quality of life: a real-world survey in the United States | Sickle cell disease | EHA, 2025 | ||
| Impact of non-transfusion-dependent thalassemia on adult patients’ health-related quality of life and work productivity: a multi-region real-world survey | Thalassemia | EHA, 2025 | ||
| Real-world insights into the burden of Sjögren’s disease: a patient-centered analysis | Sjogren's syndrome | EULAR, 2025 | ||
| Real-world insights into the treatment satisfaction and unmet needs of Sjögren’s disease: a patient-centred analysis | Sjogren's syndrome | EULAR, 2025 | ||
| A thematic analysis of healthcare provider perspectives on the care pathway and unmet needs in C3G and primary IC-MPGN in the US and Europe | C3 glomerulopathy | ERA, 2025 | ||
| A real-world survey of treatment patterns and clinical characteristics for idiopathic inflammatory myopathy patients in Europe and the USA | Idiopathic inflammatory myopathies | EULAR, 2025 | ||
| Clinical outcomes and unmet need for Dermatomyositis patients: results from a multi-national real-world survey | Dermatomyositis | EULAR, 2025 | ||
| Polypharmacy in patients with systemic sclerosis (SSc) contributes to reduced treatment adherence and satisfaction: a real-world multinational survey of physicians and patients | Systemic sclerosis | EULAR, 2025 | ||
| Interim analysis of a European real-world study on the effectiveness, physician satisfaction, and patient characteristics in axial spondyloarthritis treated with bimekizumab: insights from Germany, Spain, and the United Kingdom | Axial spondyloarthritis | EULAR, 2025 | ||
| Interim analysis of a European real-world study on the effectiveness, physician satisfaction, and patient characteristics in psoriatic arthritis treated with bimekizumab: insights from Germany, Spain, and the United Kingdom | Psoriatic arthritis | EULAR, 2025 | ||
| Real-world effectiveness and satisfaction in biologic-naïve patients with psoriatic arthritis and limited joint involvement treated with risankizumab in the United States and Europe | Psoriatic arthritis | EULAR, 2025 | ||
| Real-world effectiveness and satisfaction with risankizumab for the treatment of early psoriatic arthritis in biologic-naïve patients: a population survey in the United States and Europe | Psoriatic arthritis | EULAR, 2025 | ||
| Real-world comparative effectiveness of upadacitinib in psoriatic arthritis: evaluation of switching to upadacitinib versus tumor necrosis factor inhibitors or interleukin-17 inhibitors after first-line tumor necrosis factor inhibitors | Psoriatic arthritis | EULAR, 2025 | ||
| Health-related quality of life and clinical characteristics in people living with hereditary angioedema prescribed long term prophylaxis alone and on-demand treatment alone | Hereditary angioedema | EAACI, 2025 | ||
| A comparison of treatment satisfaction in CIDP across 5 countries: results from a real-world multinational survey | Chronic inflammatory demyelinating polyneuropathy | EAN, 2025 | ||
| The impact of CIDP on patients’ employment: results from a real-world multinational survey | Chronic inflammatory demyelinating polyneuropathy | EAN, 2025 | ||
| CIDP patients’ journey to diagnosis: results from a real-world multinational survey | Chronic inflammatory demyelinating polyneuropathy | EAN, 2025 | ||
| Healthcare resource utilization and caregiver burden in CIDP: results from a real-world multinational survey | Chronic inflammatory demyelinating polyneuropathy | EAN, 2025 | ||
| Treatment utilization and clinical outcomes by serostatus in a real-world US generalized myasthenia gravis population | Myasthenia gravis | EAN, 2025 | ||
| Physician- and patient-reported outcomes by disease severity in a United States real-world myasthenia gravis population | Myasthenia gravis | EAN, 2025 | ||
| Clinical characteristics and unmet treatment need in patients with hereditary angioedema treated with long-term prophylaxis: A real-world survey | Hereditary angioedema | EAACI, 2025 | ||
| Emerging biologic use may reduce the need for corticosteroid treatment and surgery for chronic rhinosinusitis with nasal polyps (CRSwNP) in France, Germany, Italy, Spain and the UK | Chronic rhinosinusitis with nasal polyposis | EAACI, 2025 | ||
| Describing patients with prolonged seizures: European subgroup results from a global real-world point-in-time study | Prolonged seizures | EAN, 2025 | ||
| Patient-reported impact of atopic dermatitis on pediatric and adolescent patients with moderate-to-severe disease: results of a real-world, cross-sectional survey | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/40254467/ | ||
| Variability of criteria used to confirm progressive pulmonary fibrosis: results from a real-world survey | Progressive pulmonary fibrosis | ATS, 2025 | ||
| PAIRED - PAtIent Reported Experiences and perceiveD benefit of treatment with dolutegravir/lamivudine (DTG/3TC): a sub-analysis of people with HIV switching from bictegravir/emtricitabine/tenofovir alafenamide (BIC/FTC/TAF) in the United States (US) | HIV | ACTHIV, 2025 | ||
| People with obesity and physicians’ perceptions of the causes of obesity according to body mass index in France | Obesity | SOFFCO MM, 2025 | ||
| Clinical outcomes and events in a United States generalized myasthenia gravis population: analysis of real-world data | Myasthenia gravis | MGFA, 2025 | ||
| Obesity impacts employment, work productivity and quality of life in real-world settings in Europe, the United States, and Australia | Obesity | ECO, 2025 | ||
| Disconnect between the perceptions of people with obesity and their physicians in real-world settings in Europe, the United States, and Australia | Obesity | ECO, 2025 | ||
| Diagnostic and monitoring practices and health resource utilization of obesity in real-world settings in Europe, the USA, and Australia | Obesity | ECO, 2025 | ||
| CIDP patients’ health-related quality of life, utility values, daily activities and fatigue: results from a multinational real-world survey | Chronic inflammatory demyelinating polyneuropathy | PNS, 2025 | ||
| Use of renal function tests in the diagnosis and monitoring of patients with lupus nephritis: Results from a real-world survey in Spain | Lupus nephritis | SER, 2025 | ||
| Relationship between hemoglobin, fatigue, and health-related quality of life in patients with paroxysmal nocturnal hemoglobinuria (PNH): results from a real world study | Paroxysmal nocturnal hemoglobinuria | IPIG, 2025 | ||
| Radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) patients treated with lenvatinib monotherapy: real-world treatment patterns and clinical outcomes in Europe and Canada | Thyroid cancer | BTA, 2025 | ||
| A real-world study on healthcare resource utilisation and patient care for people with transthyretin amyloid polyneuropathy | Transthyretin amyloid polyneuropathy | ISPOR US, 2025 | ||
| Describing the amyotrophic lateral sclerosis US population and use of supportive aids and interventions: results from a real-world survey | Amyotrophic lateral sclerosis | ISPOR US, 2025 | ||
| Physician-reported satisfaction with, challenges in, and patient adherence to, immunosuppressive treatment among kidney transplant recipients: results from a real-world survey | Kidney Transplant | ISPOR US, 2025 | ||
| Exploring the value of total/near total skin clearance in patients with a history of moderate-severe psoriasis: a real-world survey | Psoriasis | ISPOR US, 2025 | ||
| Examining gaps in real-world reporting of symptoms and side effects among HR+/HER2- metastatic breast cancer | Breast cancer | ESMO BC, 2025 | ||
| Do existing caregiver assessments measure what’s important to caregivers? | Methodology | ISPOR US, 2025 | ||
| Understanding the caregiver experience through an exploration of the literature | Methodology | ISPOR US, 2025 | ||
| Unmet need in CIDP patients treated with immunoglobin: results of a multinational real-world survey | Chronic inflammatory demyelinating polyneuropathy | ISPOR US, 2025 | ||
| Burden of illness in CIDP: results of a multinational real-world survey | Chronic inflammatory demyelinating polyneuropathy | ISPOR US, 2025 | ||
| Real-world unmet needs in patients with HER2-negative advanced gastric, gastro-esophageal or esophageal adenocarcinoma receiving first-line treatment globally | Gastric cancer | ISPOR US, 2025 | ||
| Understanding barriers to the early diagnosis of mild cognitive impairment due to Alzheimer's disease from the perspective of physicians and patients: results from a real-world survey in Germany | Dementia | ISPOR US, 2025 | ||
| Physician, patient and caregiver concordance in a real-world US generalized myasthenia gravis population | Myasthenia gravis | ISPOR US, 2025 | ||
| Impact of cardiovascular, renal and metabolic comorbidities on activity and health-related quality of life in patients with metabolic dysfunction-associated steatohepatitis in France, Italy, Germany, and Canada | Metabolic dysfunction associated steatohepatitis | ISPOR US, 2025 | ||
| Impact of cirrhosis on health-related quality of life and activity among patients with metabolic dysfunction-associated steatohepatitis in France, Italy, Germany, and Canada | Metabolic dysfunction associated steatohepatitis | ISPOR US, 2025 | ||
| Patient-reported symptoms and quality of life: a real-world survey of patients with muscle invasive bladder cancer | Bladder cancer | ISPOR US, 2025 | ||
| Real-world health-related quality of life and treatment satisfaction in patients with high-risk non-muscle invasive bladder cancer | Bladder cancer | ISPOR US, 2025 | ||
| Real-world assessment of clinical burden and healthcare resource utilisation among patients with metabolic dysfunction-associated steatohepatitis with additional cardiovascular, renal and metabolic comorbidities in France, Italy, Germany and Canada | Metabolic dysfunction associated steatohepatitis | EASL, 2025 | ||
| Patient characteristics and treatment patterns amongst hepatitis D patients: results from a real-world survey in Europe | Hepatitis D virus | EASL, 2025 | ||
| Clinical and humanistic burden of obstructive sleep apnoea in people living with obesity: a multinational survey | Obesity | ECO, 2025 | ||
| Features of optimal disease control in Crohn’s disease and ulcerative colitis: views on IBD expectations and well-being by patients and treatment providers | Inflammatory Bowel Disease | DDW, 2025 | ||
| Treatment patterns of a United States generalized myasthenia gravis population: analysis of real-world data | Myasthenia gravis | MGFA, 2025 | ||
| Patient-reported outcomes from a survey of real-world generalized myasthenia gravis patients in the United States | Myasthenia gravis | MGFA, 2025 | ||
| Real-world treatment patterns in patients with eosinophilic granulomatosis with polyangiitis (EGPA) | Eosinophilic granulomatosis | ATS, 2025 | ||
| Treatment adherence, satisfaction and quality of life in adult patients with hemophilia A: a real-world survey of physicians and patients in the Kingdom of Saudi Arabia | Hemophilia | WFH, 2025 | ||
| Phenotypic variants of progressive supranuclear palsy in a real-world dataset as identified by existing algorithms | Progressive supranuclear palsy | https://pubmed.ncbi.nlm.nih.gov/40339436/ | ||
| Factors associated with increased severity of generalized myasthenia gravis among patients in the United States and Europe | Myasthenia gravis | https://pubmed.ncbi.nlm.nih.gov/40169850/ | ||
| Real-world cross-sectional study evaluating patient characteristics, disease burden, and treatment approaches in people with obesity disease in Japan | Obesity | https://pubmed.ncbi.nlm.nih.gov/40162611/ | ||
| The patient journey and burden of disease in progressive pulmonary fibrosis in Japan: a cross-sectional survey | Progressive pulmonary fibrosis | Front Med, 2025 | ||
| Demographics and clinical characteristics among patients with distinct psychosocial burden profiles related to vitiligo: results of a latent class analysis | Vitiligo | https://pubmed.ncbi.nlm.nih.gov/40208558/ | ||
| Impact of choice of tariff when calculating clinically meaningful EQ-5D scores in metabolic dysfunction-associated steatohepatitis | Metabolic dysfunction associated steatohepatitis | https://pubmed.ncbi.nlm.nih.gov/40192123/ | ||
| Healthcare resource utilisation and costs in paediatric patients with invasive aspergillosis in England: a population-based study | Invasive fungal infections | ESCMID, 2025 | ||
| Treatment outcomes in people with migraine receiving rimegepant or triptans: a descriptive analysis from a real-world survey | Migraine | AAN, 2025 | ||
| PatIent reported experiences and perceived benefit of treatment with Dolutegravir/Lamivudine in Europe (PAIRED Europe) | HIV | BHIVA, 2025 | ||
| Obesity phenotyping: a real-world survey of patients and their physicians | Obesity | OMA, 2025 | ||
| Incidence of invasive fungal infections in hospitalised paediatric patients in England | Invasive fungal infections | ESCMID, 2025 | ||
| Clinical outcomes and events in a United States generalised myasthenia gravis population: analysis of real-world data | Myasthenia gravis | AAN, 2025 | ||
| Real-world analysis of the clinical care pathway of patients living with Alzheimer’s disease in the United States according to stage of cognitive impairment at diagnosis | Dementia | AAN, 2025 | ||
| Treatment-related characteristics among younger women with generalized myasthenia gravis | Myasthenia gravis | AAN, 2025 | ||
| Patient characteristics and treatment patterns in patients with mantle cell lymphoma in Japan: a real-world study | Mantle cell lymphoma | JSMO, 2025 | ||
| Comparing advanced treatment utilization and adherence, disease burden and disconnect on patient and physician-reported severity between white patients with atopic dermatitis and those of other races/ethnicities in the United States | Atopic dermatitis | AAD, 2025 | ||
| Assessing physician and patient-reported clinical and humanistic disease burden among white patients with atopic dermatitis and those from other races/ethnicities in the United States | Atopic dermatitis | AAD, 2025 | ||
| US and European patient and health care professional perspectives on fatigue in ulcerative colitis and crohn's disease: results from the Communicating Needs and Features of IBD Experiences (CONFIDE) survey | Inflammatory Bowel Disease | Crohns Colitis 360, 2025 | ||
| Burden of eosinophilic esophagitis in adult and adolescent patients: results from a real-world analysis | Eosinophilic oesophagitis | https://pubmed.ncbi.nlm.nih.gov/40188493/ | ||
| Diagnostic journey and management of patients with mild cognitive impairment and Alzheimer’s disease dementia: a multinational, real-world survey | Dementia | https://pubmed.ncbi.nlm.nih.gov/40112330/ | ||
| Managing oral anticancer therapies in patients with early or advanced HR+ HER2- breast cancer: a US-based community healthcare provider survey | Breast cancer | MBCC, 2025 | ||
| What headache types present to primary care in England? A retrospective cohort study of medical records | Migraine | CONy, 2025 | ||
| Describing the burden of moderate exacerbations in patients with asthma participating in the Extended Salford Lung Study (Ex-SLS): a retrospective cohort study | Asthma | https://pubmed.ncbi.nlm.nih.gov/40158113/ | ||
| Real-world treatment patterns for patients with high-risk biochemically recurrent nonmetastatic castration sensitive prostate cancer | Prostate cancer | AMCP, 2025 | ||
| Unmet needs in adult patients with ulcerative colitis in Spain: a real-world Adelphi Disease Specific Programme study | Ulcerative colitis | https://pubmed.ncbi.nlm.nih.gov/40166589/ | ||
| Real-world treatment patterns and genetic testing in a metastatic castration-resistant prostate cancer setting in Europe | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/40105456/ | ||
| Clinical characteristics, treatment patterns, and outcomes of first-line brigatinib in patients with advanced ALK+ NSCLC: a multinational real-world study | Non-small cell lung cancer | ELCC, 2025 | ||
| Real-world first-line (1L) treatment characteristics and physician-reported areas of improvement for patients with advanced/metastatic non-small cell lung cancer (aNSCLC) with PD-L1 expression ≥50% and without actionable genomic alternations (AGA) in Europe (EU), United States (US) and Asia | Non-small cell lung cancer | ELCC, 2025 | ||
| Effectiveness of switching from multiple-inhaler to once-daily single-inhaler triple therapy in patients with COPD in a real-world setting in Japan | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/40078928/ | ||
| Burden of mild and moderate atopic dermatitis in adults: results from a real-world study in the United States | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/40072609/ | ||
| Patient and physician perspectives on disease burden in chronic spontaneous urticaria | Urticaria | https://pubmed.ncbi.nlm.nih.gov/39662669/ | ||
| Real‑world experience with an adalimumab biosimilar (ABP 501) in patients with rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis and psoriasis in Europe: Results from the Adelphi Disease Specific Programme | Various | https://pubmed.ncbi.nlm.nih.gov/40064802/ | ||
| Burden of illness and unmet need among patients with CIDP: results from a real-world survey | Chronic inflammatory demyelinating polyneuropathy | Re(ACT), 2025 | ||
| Employment, daily activities and caregiver burden in CIDP: results of a real-world US survey | Chronic inflammatory demyelinating polyneuropathy | MDA, 2025 | ||
| Physician and patient perspectives on the diagnosis and treatment of Alzheimer’s Disease (AD): A real-world survey in the United Kingdom (UK) | Dementia | Faculty of Old Age Psychiatry, 2025 | ||
| Predictors of willingness to vaccinate against respiratory syncytial virus (RSV) among healthcare providers and their older adult RSV patients (≥60 years): a real-world survey in five European countries | Respiratory syncytial virus | IRSV, 2025 | ||
| The health and humanistic burden among older adult patients (≥60 years) with respiratory syncytial virus: a real-world survey in five European countries | Respiratory syncytial virus | IRSV, 2025 | ||
| Treatment patterns of a United States generalized myasthenia gravis population: analysis of real-world data | Myasthenia gravis | MDA, 2025 | ||
| Treatment patterns in muscle invasive bladder cancer patients across Europe and the United Kingdom: a real-world survey | Bladder cancer | EAU, 2025 | ||
| Treatment of amyotrophic lateral sclerosis in general and specialist US healthcare settings: results from a real-world survey | Amyotrophic lateral sclerosis | MDA, 2025 | ||
| Real-world patient- and physician‑reported satisfaction with alopecia areata treatments: evidence from 5 European countries | Alopecia areata | AAD, 2025 | ||
| Real-world effectiveness of upadacitinib in patients with atopic dermatitis in germany, italy, and spain: results from the adelphi disease registry | Atopic dermatitis | AAD, 2025 | ||
| Patient-reported outcomes from a real-world United States generalized myasthenia gravis patient survey | Myasthenia gravis | MDA, 2025 | ||
| Insights into Lennox-Gastaut Syndrome: a European real-world study on patient profiles and unmet needs | Lennox-Gastaut syndrome | DOGESE-L, 2025 | ||
| Evaluating persistence in patients with chronic hepatitis B (CHB) infection treated with long-term nucleos(t)ide analogues (NAs) in Japan | Hepatitis B virus | APASL, 2025 | ||
| Comprehensive analysis of Lennox-Gastaut syndrome in Europe: treatment patterns, healthcare utilisation, and quality of life | Lennox-Gastaut syndrome | DOGESE-L, 2025 | ||
| Comparison of dermatology life quality index (DLQI) scores by anatomical region: insights from Brazil, China, India and South Africa among patients reporting very large disease effect | Vitiligo | AAD, 2025 | ||
| Burden of disease among ulcerative colitis patients with isolated proctitis in the United States and Europe | Ulcerative colitis | AEG, 2025 | ||
| A real world study of haemophilia treatment satisfaction, bleeds, health related quality of life as reported by patients and physicians to demonstrate gaps | Hemophilia | EAHAD, 2025 | ||
| Management and impact of obesity in Canada: a real-world survey of people with obesity and their physicians | Obesity | https://pubmed.ncbi.nlm.nih.gov/40134800/ | ||
| Patient and physician perceptions regarding treatment expectations and symptomatology in polycythemia vera: insights from the Landmark 2.0 global health survey | Polycythemia vera | https://pubmed.ncbi.nlm.nih.gov/40130070/ | ||
| Assessment of the real-world effectiveness of upadacitinib in patients with moderate-severe ulcerative colitis in a global real-world setting | Inflammatory Bowel Disease | ECCO, 2025 | ||
| Assessment of real-world effectiveness of risankizumab in patients with moderate-severe Crohn's disease in a global setting | Inflammatory Bowel Disease | ECCO, 2025 | ||
| Patient profiles as drivers of physician choice for first-line treatment in locally advanced or metastatic urothelial cancer: perspectives from a US study | Urothelial carcinoma | ASCO GU, 2025 | ||
| Global real-world patients characteristics, treatment patterns, and impact of BCG shortage in patients with high-risk non-muscle invasive bladder cancer | Bladder cancer | ASCO GU, 2025 | ||
| Treatment patterns of MIBC in patients not receiving radical cystectomy: Results from a real-world survey in Europe | Bladder cancer | ASCO GU, 2025 | ||
| Burden of illness among patients with asthma prescribed inhaled corticosteroids/long-acting β2-agonists | Asthma | NPJ Prim Care Respir Med, 2025 | ||
| Replicating the real-world evidence methods available in human health to assess burden and outcomes for dogs with chronic kidney disease, their owners, and the veterinary healthcare system in the United States of America | Canine chronic kidney disease | Front Vet Sci, 2025 | ||
| Treatment landscape and disease burden of patients with multiple myeloma in Japan: a real-world survey | Multiple myeloma | https://pubmed.ncbi.nlm.nih.gov/39902484/ | ||
| Characteristics, treatment patterns, and biomarker testing of patients with advanced RET fusion-positive non-small cell lung cancer in a real-world multi-country observational study: a brief report | Non-small cell lung cancer | https://pubmed.ncbi.nlm.nih.gov/39980547/ | ||
| Patient disease characteristics and treatment patterns in mild–moderate psoriasis: results from real‑world clinical practice in the United States (PROSPECT Study) | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/39961971/ | ||
| Health-related quality of life in patients with metastatic prostate cancer: Results from an international real-world survey | Prostate cancer | ASCO GU, 2025 | ||
| Homologous recombination repair mutation testing patterns in metastatic castration-resistant prostate cancer: analysis of real-world data in the United States | Prostate cancer | ASCO GU, 2025 | ||
| Characteristics of patients with major depressive disorder eligible for and prescribed esketamine, treatment outcomes and physician experiences: a physician and patient survey in the United States | Depression | https://pubmed.ncbi.nlm.nih.gov/39953828/ | ||
| Are treatment adherence factors apparent in patients with asthma and to physicians? results from the APPaRENT 3 survey | Asthma | https://pubmed.ncbi.nlm.nih.gov/39912987/ | ||
| The impact of COVID vaccination on incidence of long COVID and healthcare resource utilisation in a primary care cohort in England, 2021–202 | COVID-19 | BMC Infect Dis, 2025 | ||
| Understanding the impact of long-term prophylaxis treatment switches on hereditary angioedema attack characteristics | Hereditary angioedema | WSAAI, 2025 | ||
| Key treatment attributes and preferences of allergists and dermatologists for moderate-to-severea atopic dermatitis: results from a US-based real-world, cross-sectional study | Atopic dermatitis | AAAAI, 2025 | ||
| Features of optimal disease control in Crohn’s disease and ulcerative colitis: views on IBD expectations and well-being by patients and treatment providers | Inflammatory Bowel Disease | ECCO, 2025 | ||
| Diagnostic pathway and disease burden in patients with Dravet Syndrome and Lennox-Gastaut syndrome in Australia and Brazil: results from a real-world survey | Various | ILAE Asia and Oceania, 2025 | ||
| An exploration of treatments for platinum-resistant ovarian cancer: analysis of the Adelphi Real World Disease Specific Programme | Ovarian cancer | ESGO, 2025 | ||
| A real-world survey-based study on the characteristics and treatment patterns of people with transthyretin amyloid polyneuropathy | Transthyretin amyloid polyneuropathy | THT, 2025 | ||
| Evaluating the timing of triple therapy initiation for the treatment of asthma in Japan: prompt versus delayed | Asthma | https://pubmed.ncbi.nlm.nih.gov/39210778/ | ||
| Underdiagnosis and impact of menstrual migraine in real-world clinical practice | Migraine | HCOP, 2025 | ||
| Treatment of metastatic urothelial carcinoma in the United Kingdom, France, Germany, Italy, and Spain | Urothelial carcinoma | Future Oncol, 2025 | ||
| Consistency of effect of rimegepant as an acute treatment for migraine attacks: data from a real-world survey | Migraine | HCOP, 2025 | ||
| Treatment inertia and symptom burden in anemia of CKD: insights from the SATISFY survey in the Middle East, South Africa, and Türkiye | Chronic kidney disease | Int J Nephrol Renovasc Dis, 2025 | ||
| Treatment patterns and clinical profile in progressive pulmonary fibrosis: a Japanese cross-sectional survey | Progressive pulmonary fibrosis | https://pubmed.ncbi.nlm.nih.gov/39882519/ | ||
| Real-world biomarker testing patterns, first line treatment and drivers of treatment choice in patients with advanced/metastatic gastric/gastroesophageal junction adenocarcinoma in the United States and Europe | Gastric cancer | ASCO GI, 2025 | ||
| Physician knowledge, use, and perceptions of genetic biomarker testing for the management of patients with newly diagnosed advanced ovarian cancer: an international physician survey | Ovarian cancer | https://pubmed.ncbi.nlm.nih.gov/39815643/ | ||
| Experiences and overall impact reported by people living with obesity: results from a multinational study | Obesity | https://pubmed.ncbi.nlm.nih.gov/39871849/#:~:text=People%2Fpatients%20with%20obesity%20reported,%2C%20and%20presenteeism%20(31%25). | ||
| Blood eosinophil count and treatment patterns of chronic obstructive pulmonary disease patients in South Korea using real-world data | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/39778528/ | ||
| An evaluation of generic and disease-specific patient reported outcome measures to assess the impact of percentage of scalp hair loss on health-related quality of life in a European population | Alopecia areata | JEADV, 2025 | ||
| Achievement of HbA1c and weight targets in adults with type 2 diabetes on once weekly injectable glucagon-like peptide-1 receptor agonist therapy in UK primary care: A retrospective, real-world study | Diabetes | Diabetes Obes Metab, 2025 | ||
| Treatment satisfaction in patients with hidradenitis suppurativa: A real-world survey from the EU5 and USA | Hidradenitis suppurativa | Dermatology, 2024 | ||
| Evaluation of functional impairment and treatment satisfaction in patients with essential tremor: a cross-sectional study of physicians using real-world data | Tremor | ICPDMD (MDS), 2024 | ||
| Disease burden and treatment in patients with essential tremor in the United States: real-world evidence from a cross-sectional survey of physicians and patients | Tremor | ICPDMD (MDS), 2024 | ||
| Clinical burden and treatment satisfaction in a real-world survey of patients with major depressive disorder with prominent anhedonia | Depression | Psych Congress , 2024 | ||
| Disease burden associated with prominent anhedonia in patients with major depressive disorder from Adelphi Depression Disease Specific Programme™ | Depression | Psych Congress , 2024 | ||
| Treatment patterns for patients with multiple myeloma in Japan: a real-world analysis of the Adelphi Disease Specific Programme™ | Multiple myeloma | JMS, 2024 | ||
| Unmet needs associated with non-androgen injectable long-term prophylaxis therapies for HAE | Hereditary angioedema | EAACI, 2024 | ||
| Understanding treatment switching patterns and continuation rates for patients with hereditary angioedema receiving lanadelumab: analysis of real-world data | Hereditary angioedema | EAACI, 2024 | ||
| Exploring the relationship between airway attacks and patient-reported outcomes in hereditary angioedema | Hereditary angioedema | EAACI, 2024 | ||
| Attack characteristics in patients with hereditary angioedema receiving non-androgen long-term prophylaxis | Hereditary angioedema | EAACI, 2024 | ||
| Radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) patients with BRAF V600E and/or K601E mutation status – a real-world view of effectiveness of lenvatinib monotherapy | Thyroid cancer | ASCO, 2024 | ||
| Unmet need in patients with chronic inflammatory demyelinating polyneuropathy: results from a real-world survey | Chronic inflammatory demyelinating polyneuropathy | EAN, 2024 | ||
| Underdiagnosis and Impact of menstrual migraine in real-world clinical practice | Migraine | EAN, 2024 | ||
| Real-world clinical outcomes for Duchenne muscular dystrophy patients in Europe: results from a multi-national survey | Duchenne muscular dystrophy | EAN, 2024 | ||
| Impact of Duchenne muscular dystrophy on caregiver employment and quality of life: a real-world survey in Europe | Duchenne muscular dystrophy | EAN, 2024 | ||
| Diagnostic delay and burden of disease in chronic inflammatory demyelinating polyneuropathy: a real-world survey | Chronic inflammatory demyelinating polyneuropathy | EAN, 2024 | ||
| Treatment landscape and caregiver status for Alzheimer's disease patients in Canada by disease severity: results from a real-world survey | Dementia | AAIC, 2024 | ||
| Real-world analysis of the clinical care pathway of patients living with Alzheimer’s disease in the United States according to stage of cognitive impairment at diagnosis | Dementia | AAIC, 2024 | ||
| Diagnostic journey and barriers to diagnosis for patients with mild cognitive impairment or Alzheimer's disease in Canada: results from a real-world survey | Dementia | AAIC, 2024 | ||
| Physician reasons for or against treatment intensification in patients with metastatic prostate cancer | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/39652349/ | ||
| Exploring racial and ethnic disparities in the hidradenitis suppurativa patient disease journey: results from a real-world study in Europe and the United States of America | Hidradenitis suppurativa | J Dermatol, 2024 | ||
| Clinical profiles of Crohn’s disease patients receiving standard or escalated doses of biologic therapies in Italy – findings from a real-world survey | Crohn's disease | ISPOR-ITR, 2024 | ||
| Bimekizumab treatment goals and satisfaction among patients with psoriasis in Europe: A real-world survey | Psoriasis | G2C, 2024 | ||
| A real-world evaluation to assess the burden of chronic cough in urodynamic stress incontinence (USI) patients | Chronic cough | EUGA, 2024 | ||
| Health inequalities associated with sociodemographic characteristics in migraine within primary care in England (HEAD-PAIN) | Migraine | EHC, 2024 | ||
| Consistency of effect of rimegepant as an acute treatment for migraine attacks: data from a real-world survey | Migraine | EHC, 2024 | ||
| Characteristics of people with migraine using rimegepant: results from the Adelphi Migraine Disease Specific Programme (DSP) in the United States | Migraine | EHC, 2024 | ||
| Characterisation and treatment of patients with menstrual migraine in real-world clinical practice | Migraine | EHC, 2024 | ||
| The Impact of obesity in the UAE: real-world physician and patient perspectives | Obesity | Dubai Diabetes Endocrinol J , 2024 | ||
| Alopecia areata treatment patterns and satisfaction: results of a real-world cross-sectional survey in Europe | Alopecia areata | https://pubmed.ncbi.nlm.nih.gov/39414726/ | ||
| Patient-reported outcomes related to migraine burden among patients treated with standard-of-care preventive medications or calcitonin gene-related monoclonal antibodies: a United States and Europe cross-sectional survey | Migraine | https://pubmed.ncbi.nlm.nih.gov/39523857/ | ||
| Pathway to care, treatment, and disease burden of pulmonary arterial hypertension: a real-world survey of physicians and patients in Latin America | Pulmonary arterial hypertension | https://pubmed.ncbi.nlm.nih.gov/39740943/ | ||
| Unmet needs, factor consumption, and healthcare resource use among people with Hemophilia a: real-world analysis of the Adelphi Hemophilia Disease Specific Programme™ | Hemophilia | ASH, 2024 | ||
| Unmet needs in people with hemophilia receiving prophylaxis treatment: a real-world survey | Hemophilia | ASH, 2024 | ||
| Treatment adherence, satisfaction and quality of life of adult patients with severe haemophilia A: results from a real-world survey of physicians and patients | Hemophilia | ASH, 2024 | ||
| Relationship between frequency of treatment administration, adherence to treatment, and quality of life in patients with hemophilia a or hemophilia B, with or without Inhibitors: a real-world survey | Hemophilia | ASH, 2024 | ||
| Real-world patient-reported treatment patterns and treatment satisfaction for sickle cell disease patients in the United States | Sickle cell disease | ASH, 2024 | ||
| Real-world patient-reported sickle cell disease burden in the United States | Sickle cell disease | ASH, 2024 | ||
| Real-world experience with emicizumab for hemophilia A from the physician perspective based on survey data | Hemophilia | ASH, 2024 | ||
| Real-world experience of switching to prophylactic efanesoctocog alfa in patients with moderate and severe hemophilia a: an analysis of the Adelphi Hemophilia Wave III Disease Specific Programme | Hemophilia | ASH, 2024 | ||
| Real-world analysis of healthcare resource utilization in patients with hemophilia a and B with or without Inhibitors using data from Disease Specific Programmes™ | Hemophilia | ASH, 2024 | ||
| Physical and psychological burden on people with hemophilia: global real-world data | Hemophilia | ASH, 2024 | ||
| Health-related quality of life, work productivity and activity impairment, and fatigue in patients with idiopathic or lymphocytic hypereosinophilic syndrome: a real-world survey | Hypereosinophilic syndrome | ASH, 2024 | ||
| Burden of Treatment on People with Hemophilia: Global Real-World Data | Hemophilia | ASH, 2024 | ||
| Patient and physician attitudes towards vaccination in adult patients with asthma – APPaRENT3 study findings | Asthma | APAAACI, 2024 | ||
| Comprehensive analysis of Lennox-Gastaut syndrome in Europe: treatment patterns, healthcare utilisation, and quality of life | Lennox-Gastaut syndrome | AES, 2024 | ||
| Clinical characteristics and treatment patterns in patients with Dravet syndrome and Lennox-Gastaut syndrome who are prescribed cannabidiol (CBD) | Various | AES, 2024 | ||
| Rates of biopsy-confirmed celiac disease diagnosis and gluten-free diet adherence in Europe and the United States: a real-world survey | Celiac disease | AOECS, 2024 | ||
| Characteristics of exacerbating COPD patients with productive cough and on inhaled triple therapy, by smoking status: a real-world multi-country study | Chronic obstructive pulmonary disease | SIP, 2024 | ||
| Exploring knowledge, awareness and diagnosis of hidradenitis suppurativa amongst dermatologists and their patients: a real-world survey in the United States and Europe | Hidradenitis suppurativa | SHSA, 2024 | ||
| Exploring the journey to diagnosis in hidradenitis suppurativa: a real-world survey in the United States and Europe | Hidradenitis suppurativa | SHSA, 2024 | ||
| Persistence of signs and symptoms in treated patients with C3G: evidence from real-world data | Glomerulopathy | SEN, 2024 | ||
| Humanistic burden of obesity in spain: a real-world survey of people with obesity and their doctors | Obesity | SEEDO, 2024 | ||
| Health-related quality of life and symptom concordance between patients and physicians in pulmonary arterial hypertension in the United States, Europe, and Japan | Pulmonary arterial hypertension | Respir Med, 2024 | ||
| Impact of overweight and obesity on health-related quality of life by body mass index and comorbidities: a real-world UK survey | Obesity | Obesity Week, 2024 | ||
| Impact of comorbidities on work productivity in overweight and obesity:a real-world UK survey | Obesity | Obesity Week, 2024 | ||
| Management patterns of teduglutide use in short bowel syndrome: A survey of 70 healthcare professionals | Short bowel syndrome | Nutrients, 2024 | ||
| Real-world evaluation of treatment utilization by women experiencing vasomotor symptoms associated with menopause in the United States and Europe: Findings from the REALISE study | Vasomotor symptoms | https://pubmed.ncbi.nlm.nih.gov/39208496/ | ||
| Clinical characteristics and outcomes for treated myasthenia gravis patients on maintenance therapy in south Korea: a retrospective analysis of real-world data | Myasthenia gravis | KNA, 2024 | ||
| Timing of diagnosis of generalized myasthenia gravis and survey on diagnosis | Myasthenia gravis | JSNT, 2024 | ||
| Reported symptoms of gMG from physicians and patient perspective | Myasthenia gravis | JSNT, 2024 | ||
| Recognition of symptoms of generalized myasthenia gravis: from the perspective of physicians and patients | Myasthenia gravis | JSNT, 2024 | ||
| Clinical characteristics and outcomes for treated generalised myasthenia gravis patients in Asia-Pacific: a retrospective analysis of real-world data | Myasthenia gravis | JSNT, 2024 | ||
| Burden of illness amongst generalised myasthenia gravis patients: an Asia-Pacific real-world study | Myasthenia gravis | JSNT, 2024 | ||
| A patient and physician’s survey on the time of diagnosis and misdiagnosis of generalized myasthenia gravis | Myasthenia gravis | JSNT, 2024 | ||
| Unveiling the burden and impact of flare in patients with moderate-to-severe atopic dermatitis: results from the Adelphi Real World Disease Specific Programme in Europe | Atopic dermatitis | ISPOR EU, 2024 | ||
| Unmet medical need in patients with paroxysmal noctural hemoglobinuria treated with complement 5 inhibitors: results from a cross-sectional survey in Canada | Paroxysmal nocturnal hemoglobinuria | ISPOR EU, 2024 | ||
| Understanding the treatment landscape in mild cognitive impairment/Alzheimer’s disease dementia and physicians’ opinions on future developments in disease-modifying therapies: a real-world survey | Dementia | ISPOR EU, 2024 | ||
| Real-world survey on treatment pathways and patterns for patients with primary immune complex membranoproliferative glomerulonephritis | Glomerulopathy | ISPOR EU, 2024 | ||
| Real-world survey on healthcare resource utilization and physician-reported burden in patients with primary immune complex membranoproliferative glomerulonephritis | Glomerulopathy | ISPOR EU, 2024 | ||
| Real-world evidence of the impact of Dravet syndrome and Lennox-Gastaut syndrome on patient and caregiver quality of life | Various | ISPOR EU, 2024 | ||
| Real-world data of severe viral lower respiratory tract disease; current landscape, challenges, and future recommendations | Lower respiratory tract disease | ISPOR EU, 2024 | ||
| Perspectives on disease burden among informal care partners of people with mild cognitive impairment or dementia due to Alzheimer’s disease: a real-world survey | Dementia | ISPOR EU, 2024 | ||
| European multi-country real-world effectiveness in oncology using physician and patient survey data: what did we learn? | Advanced renal cell carcinoma | ISPOR EU, 2024 | ||
| Estimating the socioeconomic burden of paroxysmal nocturnal hemoglobinuria (PNH): results from Germany and Japan | Paroxysmal nocturnal hemoglobinuria | ISPOR EU, 2024 | ||
| Dermatologists’ perspectives and real-world assessment of alopecia areata severity among adults in Taiwan | Alopecia areata | ISPOR EU, 2024 | ||
| Clinical characteristics and frailty of patients with mild cognitive impairment or dementia due to Alzheimer’s disease: a real-world survey | Dementia | ISPOR EU, 2024 | ||
| Assessing healthcare resource use and economic burden among an older population of patients with respiratory syncytial virus in five European countries using real-world data | Respiratory syncytial virus | ISPOR EU, 2024 | ||
| PAIRED - PAtIent Reported Experiences and perceiveD benefit of treatment with dolutegravir/lamivudine (DTG/3TC): a sub-analysis of people with HIV (PWH) switching from bictegravir/emtricitabine/tenofovir alafenamide (BIC/FTC/TAF) in the United States (US) | HIV | HIV Glasgow, 2024 | ||
| PrEP-associated stigma in Europe: findings from a real-world survey | HIV | HIV Glasgow, 2024 | ||
| Physician attitudes towards anti-retroviral therapy adherence and unmet treatment needs in people with HIV: a real-worldsurvey in Europe and the United States | HIV | HIV Glasgow, 2024 | ||
| Demographic and clinical characteristics of treatment naïve people with HIV, and their healthcare professionals' reasons fortreatment choice: findings from a real-world survey in five European countries | HIV | HIV Glasgow, 2024 | ||
| Unmet weight loss targets in real-world clinical practice: weight management and perceptions in China | Obesity | https://pubmed.ncbi.nlm.nih.gov/39574954/ | ||
| Treatment patterns in treatment naïve high-risk non-muscle invasive bladder cancer across EU4 + UK: A real-world study | Bladder cancer | EMUC, 2024 | ||
| Metastatic castration-sensitive prostate cancer treatment patterns by year: a real-world study in Europe | Prostate cancer | EMUC, 2024 | ||
| Equity and outcome events in hidradenitis suppurativa: exploring effect modifiers associated with diagnostic delay in the real-world | Hidradenitis suppurativa | Dermatol Ther, 2024 | ||
| Effectiveness of tezepelumab in patients with difficult-to-treat severe asthma: early insights from the Tezepelumab Patient Access Programme | Asthma | BTS, 2024 | ||
| Comparative adherence and persistence of single- and multiple-inhaler triple therapies among patients with chronic obstructive pulmonary disease in Japan: a retrospective cohort study | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/39632104/ | ||
| Outcomes with loncastuximab tesirine following CAR T-cell therapy in patients with relapsed or refractory diffuse large B-cell lymphoma | Diffuse large B-cell lymphoma | https://pubmed.ncbi.nlm.nih.gov/39609431/#:~:text=Patients%20with%203%20L%20CAR,at%2012%20months%20was%2095%25. | ||
| Non-pharmacological interventions for managing abemaciclib-associated adverse events in patients with early/advanced HR+/HER2- breast cancer – A US-based healthcare provider survey | Breast cancer | AONN, 2024 | ||
| Clinical characteristics and treatment of patients diagnosed with pulmonary arterial hypertension: a real-world study in the USA, Europe and Japan | Pulmonary arterial hypertension | Adv Ther, 2024 | ||
| Current disease management and treatment satisfaction in axial spondyloarthritis in Europe: Patient and rheumatologist perspectives | Axial spondyloarthritis | ACR, 2024 | ||
| The impact of eosinophilic granulomatosis with polyangiitis on the health-related quality of life of patients and their ability to work: evidence from a real-world survey in clinical practice | Eosinophilic granulomatosis | ACR, 2024 | ||
| Impact of Patient and Physician Alignment on Sjögren’s Disease Severity: a Real-World Survey on Patients’ Clinical Outcomes and Health-Related Quality of Life | Sjogren's syndrome | ACR, 2024 | ||
| Health inequalities exist between the United States and Europe for patients with axial spondyloarthritis | Axial spondyloarthritis | ACR, 2024 | ||
| Comparative effectiveness of upadacitinib versus other JAK inhibitors in patients with rheumatoid arthritis in a global setting | Rheumatoid arthritis | ACR, 2024 | ||
| Clinical impact of acute symptomatic vertebral fractures in the United States: an observational study | Acute symptomatic vertebral fractures | ACR, 2024 | ||
| A real-world study on the clinical characteristics and patient reported outcomes of patients with active axSpA prescribed CT-P13 SC in five European countries | Axial spondyloarthritis | ACR, 2024 | ||
| Burden of illness and unmet need among patients with CIDP: results from a real-world survey | Chronic inflammatory demyelinating polyneuropathy | WODC, 2024 | ||
| Real-world symptom progression in Duchenne muscular dystrophy patients in Europe, Japan, and the United States | Duchenne muscular dystrophy | WMS, 2024 | ||
| Physician and caregiver concordance in Duchenne muscular dystrophy patients in Europe, Japan, and the United States: a multi-national survey | Duchenne muscular dystrophy | WMS, 2024 | ||
| Misdiagnosis is common on the path to eosinophilic esophagitis | Eosinophilic esophagitis | UEGW, 2024 | ||
| Impact of non-remission in patients with Crohn's disease and ulcerative colitis: a real-world survey | Inflammatory Bowel Disease | UEGW, 2024 | ||
| Exploring the age spectrum of real-world patients with inflammatory bowel disease: a machine learning approach | Inflammatory Bowel Disease | UEGW, 2024 | ||
| Shared decision making and patient educational resources in anaemia of chronic kidney disease | Chronic kidney disease | SA Renal Congress, 2024 | ||
| Treatment patterns and patient journey in progressive pulmonary fibrosis: a cross-sectional survey | Progressive pulmonary fibrosis | Respir Res, 2024 | ||
| Non-alcoholic steatohepatitis patient characterization and real-world management approaches in Italy | Non‐alcoholic steatohepatitis | https://pubmed.ncbi.nlm.nih.gov/39403308/ | ||
| Clinical, humanistic, and economic value of ‘good ON‑time’ in advanced parkinson’s disease: a multinational real‑world study | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/40455370/ | ||
| Treatment utilization and non-drug interventions for vasomotor symptoms in breast cancer survivors taking endocrine therapy: Real-world findings from the United States and Europe | Vasomotor symptoms | https://pubmed.ncbi.nlm.nih.gov/39059108/ | ||
| Clinical and humanistic burden of IgA nephropathy in adult patients: a global real-world survey | Immunoglobulin A nephropathy | https://pubmed.ncbi.nlm.nih.gov/39437219/ | ||
| Treatment pattern of generalized myasthenia gravis in actual clinical practice in Japan | Myasthenia gravis | JSNI, 2024 | ||
| Real world data on the burden of disease of generalized myasthenia gravis | Myasthenia gravis | JSNI, 2024 | ||
| Burden of systemic myasthenia gravis treatment on work and household | Myasthenia gravis | JSNI, 2024 | ||
| Patient-reported disease burden in paroxysmal nocturnal hemoglobinuria in Japan: a real-world survey | Paroxysmal nocturnal hemoglobinuria | JSH, 2024 | ||
| Psychometric evaluation of the Adelphi Adherence Questionnaire (ADAQ©) in adults with osteoarthritis | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/39400887/ | ||
| Sub-optimal disease control and low blood eosinophil testing frequency in Chinese adult patients with asthma receiving GINA Step 4/5 treatment: a real-world study | Asthma | https://pubmed.ncbi.nlm.nih.gov/39464421/ | ||
| Clinical and economic burden of severe asthma with low blood eosinophil counts | Asthma | https://pubmed.ncbi.nlm.nih.gov/39032830/ | ||
| People with HIV in the United States (US) switching to Cabotegravir + Rilpivirine Long-Acting (CAB+RPV LA) from Oral Antiretroviral Therapy (ART) have numerous real-world benefits, including high adherence and treatment satisfaction | HIV | IDWeek, 2024 | ||
| Effects of antiretroviral resistance on outcomes and healthcare resource use of people with HIV in the United States and Europe: a real-world survey | HIV | IDWeek, 2024 | ||
| Anxiety and depression are associated with poor antiretroviral adherence in people living with HIV: a real-world survey in Europe | HIV | IDWeek, 2024 | ||
| Clinical characteristics and outcomes for treated generalised myasthenia gravis patients in Asia-Pacific: a retrospective analysis of real-world data | Myasthenia gravis | ICNMD, 2024 | ||
| Burden of illness amongst generalised myasthenia gravis patients: an Asia-Pacific real-world study | Myasthenia gravis | ICNMD, 2024 | ||
| Treatment preferences, monthly injection is the preferred frequency of administration in the treatment of moderate to severe atopic dermatitis: results from a real-world survey in the United States | Atopic dermatitis | FCDC, 2024 | ||
| Real-world data in lupus nephritis: results from a European survey on renal function testing and burden of disease progression | Lupus nephritis | Curr Med Res Opin, 2024 | ||
| Physician patient alignment on menopause-associated symptom burden real-world evidence from the USA and Europe | Vasomotor symptoms | https://pubmed.ncbi.nlm.nih.gov/39400034/#:~:text=Conclusions%3A%20Only%20slight%20to%20moderate,to%20improve%20physician%2Dpatient%20communication. | ||
| Patient characteristics and treatment patterns in patients with Lennox-Gastaut syndrome: real-world evidence from a cross-sectional survey of physicians in Europe | Lennox-Gastaut syndrome | CLAE, 2024 | ||
| Comparing patient adherence and persistence to single-inhaler triple therapy versus multiple-inhaler triple therapy: A narrative review of real-world observational studies | Chronic obstructive pulmonary disease | CHEST, 2024 | ||
| Impact of obesity on individuals in Brazil: a real-world patient and physician survey | Obesity | CBEM, 2024 | ||
| Validation of the real-world application of the hidradenitis suppurativa quality of life (HiSQOL) score to adults with hidradenitis suppurativa | Hidradenitis suppurativa | Br J Dermatol, 2024 | ||
| Clinical characteristics and impairment of activities of daily living among patients with myasthenia gravis with differing degrees of muscle weakness: a real-world study of patients in the US and five European countries | Myasthenia gravis | https://pubmed.ncbi.nlm.nih.gov/39395956/ | ||
| Characterization of patients with glomerular inflammation in IgAN: data from the adelphi DSP TM | Immunoglobulin A nephropathy | ASN, 2024 | ||
| Characterization of patients with active glomerular inflammation in IgAN: data from the Adelphi DSP | Immunoglobulin A nephropathy | ASN, 2024 | ||
| Australians living with obesity: disease murden, management and resource impact | Obesity | ANZOS, 2024 | ||
| Unveiling the burden and impact of flare in patients with moderate-to-severe atopic dermatitis: results from the Adelphi real world disease specific programme in the United States | Atopic dermatitis | AMCP Nexus, 2024 | ||
| Real world treatment patterns of patients with Dravet syndrome and Lennox-Gastaut syndrome in the United States | Various | AMCP Nexus, 2024 | ||
| Benefits of an educational migraine program on those living with migraine in the workplace: the ENLiGHTEN study | Migraine | AMCP Nexus, 2024 | ||
| Unmet needs among patients with eosinophilic esophagitis despite biologic use | Eosinophilic esophagitis | ACG, 2024 | ||
| Assessing the concordance between patients with eosinophilic esophagitis and their treating physicians: evidence from a real-world study | Eosinophilic esophagitis | ACG, 2024 | ||
| A real-word survey of disease burden among patients with hypereosinophilic syndrome | Hypereosinophilic syndrome | ACAAI, 2024 | ||
| Characteristics and treatment patterns of a United States generalized myasthenia gravis population: interim analysis of real-world data | Myasthenia gravis | AANEM, 2024 | ||
| The impact of COVID vaccination on incidence of long COVID in a primary care cohort in England, 2021-2022 | COVID-19 | VACC, 2024 | ||
| Using GitHub for collaborative analysis | Various | UK Stata Conference, 2024 | ||
| Real-world study of the burden of myelodysplastic syndromes in patients and their caregivers in Europe and the United States | Myelodysplastic syndromes | https://pubmed.ncbi.nlm.nih.gov/39298037/ | ||
| Treatment outcomes in people with migraine receiving rimegepant or triptans: a descriptive analysis from a real-world survey | Migraine | MTIS, 2024 | ||
| The use of triptans and other acute treatments for the management of migraine in routine clinical practice in England: a retrospective cohort study using data from Clinical Practice Research Datalink (CPRD) | Migraine | MTIS, 2024 | ||
| The healthcare burden of migraine in England: a retrospective cohort study using electronic health record data from Clinical Practice Research Datalink (CPRD) | Migraine | MTIS, 2024 | ||
| Current treatments in atopic dermatitis provide limited disease control even in patients reported as having the best disease control by advanced practice providers | Atopic dermatitis | Maui Derm NP+PA Fall, 2024 | ||
| Real-world treatment of atopic dermatitis with topical therapy provides limited disease and flare improvements in patients with history of moderate-to-severe disease | Atopic dermatitis | Maui Derm NP+PA Fall, 2024 | ||
| Inadequate disease control with current therapies among patients with a history of moderate-to-severe atopic dermatitis: real-world health care provider and patient perspectives | Atopic dermatitis | Maui Derm NP+PA Fall, 2024 | ||
| Patient characteristics and treatment patterns in Lennox-Gastaut syndrome and Dravet syndrome: real-world evidence from physician-reported data in Japan | Various | JES, 2024 | ||
| Health and Socioeconomic burden of paroxysmal nocturnal hemoglobinuria (PNH) in patients using anti-c5 treatments | Paroxysmal nocturnal hemoglobinuria | JACR, 2024 | ||
| Physician-reported reasons for not initiating guideline-directed medical therapy for heart failure | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/39297863/ | ||
| Disease burden, treatment patterns and asthma control in adult patients with asthma in China: a real-world study | Asthma | https://pubmed.ncbi.nlm.nih.gov/39371223/ | ||
| Diagnosis, treatment and burden in advanced ovarian cancer: a UK real-world survey of healthcare professionals and patients | Ovarian cancer | https://pubmed.ncbi.nlm.nih.gov/39229967/ | ||
| Real world outcomes of patients with radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) treated in 1L with lenvatinib 24mg: an international multicenter real-world study in Europe and Canada | Thyroid cancer | ETA, 2024 | ||
| Radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) patients treated with lenvatinib monotherapy: real-world treatment patterns and clinical outcomes in Europe and Canada | Thyroid cancer | ESMO, 2024 | ||
| Perception of COPD control by physicians managing symptomatic exacerbating patients receiving inhaled triple therapy: a real-world multi-country 2022 survey | Chronic obstructive pulmonary disease | ERS, 2024 | ||
| Inhaled corticosteroid/long-acting beta2-agonist (ICS/LABA) new-user analysis: identifying asthma-exacerbation/short-acting beta2-agonist (SABA) overuse-associated characteristics | Asthma | ERS, 2024 | ||
| Direct and indirect healthcare resource utilisation in severe asthma patients in China | Asthma | ERS, 2024 | ||
| Characteristics of exacerbating COPD patients with productive cough and on inhaled triple therapy, by smoking status: a real-world multi-country study | Chronic obstructive pulmonary disease | ERS, 2024 | ||
| Treatment patterns and outcomes among patients with Dravet syndrome in clinical practice settings across five countries in Europe | Dravet syndrome | EEC, 2024 | ||
| Treatment patterns and disease burden among patients with Lennox-Gastautsyndrome in Europe: A real-world survey | Lennox-Gastaut syndrome | EEC, 2024 | ||
| Treatment patterns and disease burden among patients with Lennox-Gastaut Syndrome in Europe: a real-world survey | Lennox-Gastaut syndrome | EEC, 2024 | ||
| Real-world clinical burden of non-seizure symptoms among patients with Dravet Syndrome or Lennox-Gastaut Syndrome in Europe: results from a global multinational survey | Various | EEC, 2024 | ||
| Patient characteristics and treatment patterns in patients with Lennox-Gastaut syndrome: real-world evidence from a cross-sectional survey of physicians in Europe | Lennox-Gastaut syndrome | EEC, 2024 | ||
| Patient characteristics and treatment patterns in patients with Dravet Syndrome: real-world evidence from a cross-sectional survey of physicians in Europe | Dravet syndrome | EEC, 2024 | ||
| Management of patients with Dravet syndrome in real-world clinical practiceacross 5 countriesin Europe: Impact of treatment-related burden on health outcomes | Dravet syndrome | EEC, 2024 | ||
| Management of patients with Dravet Syndrome in real-world clinical practice across five countries in Europe: impact of treatment-related burden on health outcomes | Dravet syndrome | EEC, 2024 | ||
| Insights into Lennox-Gastaut syndrome: A European real-world study on patient profiles and unmet needs | Lennox-Gastaut syndrome | EEC, 2024 | ||
| Impact of demographic and clinical characteristics on health-related quality of life and mental well-being of patients with vitiligo | Vitiligo | EADV, 2024 | ||
| Exploring the journey to diagnosis in hidradenitis suppurativa: a real-world survey in the United States and Europe | Hidradenitis suppurativa | EADV, 2024 | ||
| Exploring knowledge and awareness of hidradenitis suppurativa amongst dermatologists and their patients: a real-world survey in the United States and Europe | Hidradenitis suppurativa | EADV, 2024 | ||
| Patient journey to diagnosis and treatment of hypereosinophilic syndrome in Europe and the United States: evidence from a real-world survey in clinical practice | Hypereosinophilic syndrome | DGRh, 2024 | ||
| Predictive factors of right heart catheterization to diagnose pulmonary arterial hypertension using least absolute shrinkage selection operator (LASSO) regression | Pulmonary arterial hypertension | https://pubmed.ncbi.nlm.nih.gov/39319437/ | ||
| A real-world retrospective analysis of patients with generalized myasthenia gravis: comparison in Asia-Pacific, China, Japan | Myasthenia gravis | CNS, 2024 | ||
| A real-world retrospective analysis of patients with generalized myasthenia gravis: comparison in Asia-Pacific, China, Japan | Myasthenia gravis | CNS, 2024 | ||
| ABCL-370 real-world clinical effectiveness of loncastuximab tesirine monotherapy for the treatment of relapsed/refractory diffuse large B-cell lymphoma following chimeric antigen T-cell therapy in the US | Diffuse large B-cell lymphoma | Clin Lymphoma Myeloma Leuk, 2024 | ||
| Treatment landscape and caregiver status for Alzheimer's disease patients in Canada by disease severity: results from a real-world survey | Dementia | CADTH, 2024 | ||
| Diagnostic journey and barriers to diagnosis for patients with mild cognitive impairment or Alzheimer's disease in Canada: results from a real-world survey | Dementia | CADTH, 2024 | ||
| A portrait of generalized myasthenia gravis in Canada: interim analysis of the Adelphi MG II Disease Specific Programme | Myasthenia gravis | CADTH, 2024 | ||
| Assessment of joint health in patients receiving prophylaxis for haemophilia A: a cross-sectional survey in five European countries | Hemophilia | BMJ Open, 2024 | ||
| A real-world survey on the treatment patterns and neurologist treatment satisfaction for Duchenne muscular dystrophy patients in Japan | Duchenne muscular dystrophy | AOMC-JMS, 2024 | ||
| A real-world comparison of clinical effectiveness in patients with rheumatoid arthritis treated with upadacitinib, tumor necrosis factor inhibitors, and other advanced therapies after switching from an initial tumor necrosis factor inhibitor | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/39110310/ | ||
| Factors driving decisions in the use of HIV pre-exposure prophylaxis: a real-world study in the United States | Pre-exposure prophylaxis | https://pubmed.ncbi.nlm.nih.gov/39115193/ | ||
| Burden of bowel urgency in patients with ulcerative colitis and crohn’s disease: a real-world global study | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/39281848/ | ||
| Variance between clinical guidance and real-world management of metabolic dysfunction-associated steatotic liver disease in US | Metabolic dysfunction associated steatohepatitis | https://pubmed.ncbi.nlm.nih.gov/39209205/ | ||
| Consistency of effect of rimegepant as an acute treatment for migraine attacks: data from a real-world survey | Migraine | ANZHS, 2024 | ||
| The impact of diagnosis delay on European patients with generalised myasthenia gravis | Myasthenia gravis | Ann Clin Transl Neurol, 2024 | ||
| Adherence to antiretroviral therapy and its association with quality of life among people with HIV in the United States | HIV | https://pubmed.ncbi.nlm.nih.gov/39159289/#:~:text=Having%20AIDS%2Ddefining%20illnesses%2C%20anxiety,in%20the%20completely%20adherent%20group. | ||
| Healthcare resource utilization and economic burden of multiple sclerosis in Chinese patients: results from a real-world survey | Multiple sclerosis | https://pubmed.ncbi.nlm.nih.gov/38956085/ | ||
| PAIRED - PAtIent Reported Experiences and perceiveD benefit of treatment with dolutegravir/lamivudine (DTG/3TC) - qualitative interviews: diverse group of people With HIV-1 (PWH) reflect on life and health | HIV | IAS, 2024 | ||
| Atopic dermatitis disease control measured with the Recap of Atopic Eczema (RECAP) instrument: the real-world impact of disease characteristics and treatments | Atopic dermatitis | DEF DERM, 2024 | ||
| Treatment patterns and humanistic burden of malignant pleural mesothelioma in Spain | Mesothelioma | https://pubmed.ncbi.nlm.nih.gov/38970770/ | ||
| Physician- and patient-reported outcomes by hereditary angioedema type: Data from a real-world study | Hereditary Angioedema | https://pubmed.ncbi.nlm.nih.gov/38982603/ | ||
| Weight gain and health-related quality of life in people with HIV on antiretroviral therapy | HIV | AIDS, 2024 | ||
| Quality of life evaluation in patients with follicular cell lymphoma: a real-world study in Europe and the United States | Follicular lymphoma | https://pubmed.ncbi.nlm.nih.gov/38976122/ | ||
| Characteristics of chronic inflammatory demyelinating polyneuropathy subtypes: results from a multinational, real-world survey | Chronic inflammatory demyelinating polyneuropathy | PNS, 2024 | ||
| Improving assessment of adherence behaviors and drivers: targeted literature review and concept elicitation interviews in multiple countries and disease populations | Methodology | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11192640/ | ||
| COVID-19-related work absenteeism and associated lost productivity cost in Germany: a population-based study | Covid-19 | https://pubmed.ncbi.nlm.nih.gov/38489399/#:~:text=Results%3A%20In%20the%20outpatient%20cohort,743%2C%203%2C394)%2C%20respectively. | ||
| Treatment satisfaction and joint health outcomes within a real-world haemophilia B population: the Adelphi Disease Specific Programme™ survey | Hemophilia | ISTH, 2024 | ||
| Clinical outcomes of people with hemophilia B treated with N9-GP in real-world settings: the Adelphi Disease Specific Programme™ hemophilia study | Hemophilia | ISTH, 2024 | ||
| The Communicating Needs and Features of IBD Experiences (CONFIDE) Study: US and European Patient and Health Care Professional Perceptions of the Experience and Impact of Symptoms of Moderate-to-Severe Ulcerative Colitis | Inflammatory Bowel Disease | Inflamm Bowel Dis, 2024 | ||
| Residual disease burden among European patients with inflammatory bowel disease: a real-world survey | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/38848452/ | ||
| Real-world diagnostic pathway and disease burden among patients with DS and LGS in Brazil | Lennox-Gastaut syndrome | ILAE LATAM , 2024 | ||
| Real-world evaluation of health-related quality of life in patients with diffuse large B-cell lymphoma based on a multinational survey | Diffuse large B-cell lymphoma | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11228594/ | ||
| Treatment patterns and quality of life in patients with controlled and uncontrolled gout | Gout | EULAR, 2024 | ||
| Sjögren’s disease activity and clinical characteristics of patients with seropositive and seronegative anti-SSA/Ro and anti-SSB/La antibody test | Sjogren's syndrome | EULAR, 2024 | ||
| Association of Sjögren’s disease activity (ClinESSDAI) and symptom burden (ESSPRI) with patient-reported outcome measures | Sjogren's syndrome | EULAR, 2024 | ||
| A real-world study to evaluate biomarker testing and treatment management in patients with locally advanced unresectable or metastatic gastric/gastroesophageal junction (G/GEJ) adenocarcinoma in France, Germany, Italy, Spain, the United kingdom, and Canada: Adelphi Real World G/GEJ cancer Disease Specific Programme | Gastric cancer | ESMO GI, 2024 | ||
| Healthcare resource utilization (HCRU), quality of life (QoL), employment and economic burden among people living with amyotrophic lateral sclerosis (plwALS) in Spain | Amyotrophic lateral sclerosis | ENCALS, 2024 | ||
| Understanding the relationship between hemoglobin, fatigue and health-related quality of life for patients with paroxysmal nocturnal hemoglobinuria (PNH) | Paroxysmal nocturnal hemoglobinuria | EHA, 2024 | ||
| Understanding the real-world burden of living with myelodysplastic syndrome across the EU5: discordance between physician and patient perspectives | Myelodysplastic syndromes | EHA, 2024 | ||
| Treatment landscape and clinical unmet needs for patients with paroxysmal nocturnal hemoglobinuria in China: results from a real-world study | Paroxysmal nocturnal hemoglobinuria | EHA, 2024 | ||
| Patient-reported disease burden in paroxysmal nocturnal hemoglobinuria in China: results from a real-world study | Paroxysmal nocturnal hemoglobinuria | EHA, 2024 | ||
| Patient journey to diagnosis and treatment of hypereosinophilic syndrome in Europe and the United States: evidence from a real-world survey in clinical practice | Hypereosinophilic syndrome | EHA, 2024 | ||
| Diagnostic pathway and clinical monitoring of patients with paroxysmal nocturnal hamoglobinuria (PNH): results from a real-world study | Paroxysmal nocturnal hemoglobinuria | EHA, 2024 | ||
| Clinical profile of patients with paroxysmal nocturnal hemoglobinuria (PNH) receiving complement protein 5 inhibitors: results from a real-world study | Paroxysmal nocturnal hemoglobinuria | EHA, 2024 | ||
| Chronic lymphocytic leukemia (CLL) and small lymphocytic lymphoma (SLL) patient demographics and patient-reported burden in ibrutinib and non-ibrutinib receivers in the US: a real-world study | Chronic lymphocytic leukemia | EHA, 2024 | ||
| Treatment adherence and associated clinical outcomes for Wilson disease patients: a real-world, retrospective, multinational survey | Wilsons Disease | EASL, 2024 | ||
| Health-related quality of life burden among adults with vitiligo: relationship to disease severity and disease location | Vitiligo | Health-Related Quality of Life Burden Among Adults with Vitiligo: Relationship to Disease Severity and Disease Location | Dermatology and Therapy (springer.com) | ||
| Disease course, treatment patterns and goals among patients with non-segmental vitiligo across Europe and the United States | Vitiligo | https://pubmed.ncbi.nlm.nih.gov/38926302/ | ||
| Real-world outcomes in patients with chronic spontaneous urticaria receiving omalizumab: insights from a clinical practice survey | Urticaria | https://pubmed.ncbi.nlm.nih.gov/38738706/ | ||
| Factors Involved in Anti-VEGF Treatment Decisions for Neovascular Age-Related Macular Degeneration: Insights From Real-World Clinical Practice | Neovascular age-related macular degeneration | https://pubmed.ncbi.nlm.nih.gov/38860119/ | ||
| Patient-reported outcomes and healthcare resource utilization in systemic lupus erythematosus: impact of disease activity | Systemic lupus erythematosus | https://pubmed.ncbi.nlm.nih.gov/38840229/ | ||
| Consistency of effect of rimegepant as an acute treatment for migraine attacks: data from a real-world survey | Migraine | AHS, 2024 | ||
| Characteristics of people with migraine using rimegepant: results from the Adelphi Migraine Disease Specific Programme (DSP) in the United States | Migraine | AHS, 2024 | ||
| Characterisation and treatment of patients with menstrual migraine in real-world clinical practice | Migraine | AHS, 2024 | ||
| APPaRENT 3: Asthma patients’ and physicians' perspectives on the burden and management of asthma in seven countries | Asthma | https://pubmed.ncbi.nlm.nih.gov/38874879/ | ||
| Drivers of depression and anxiety in German non-segmental vitiligo patients | Vitiligo | SID, 2024 | ||
| Health-related quality of life across disease stages in patients with amyotrophic lateral sclerosis: results from a real-world survey | Amyotrophic lateral sclerosis | https://pubmed.ncbi.nlm.nih.gov/38200398/ | ||
| Using a database analysis to determine alignment between physician-reported and objectively derived fibrosis scores for US patients with metabolic dysfunction-associated steatohepatitis (MASH) | Metabolic dysfunction associated steatohepatitis | ISPOR US, 2024 | ||
| Unmet Treatment Needs in the Management of Patients with Eosinophilic Esophagitis: Insights from a Real-world Survey | Eosinophilic esophagitis | ISPOR US, 2024 | ||
| Substantial Productivity Impairment in Patients with Essential Tremor | Tremor | ISPOR US, 2024 | ||
| Real-world treatment patterns and treatment sequences in the metastatic hormone-sensitive prostate cancer setting across Europe: a real-world survey | Prostate cancer | ISPOR US, 2024 | ||
| Real-world treatment patterns and treatment sequences in the metastatic castration-resistant prostate cancer setting across Europe: a real-world survey | Prostate cancer | ISPOR US, 2024 | ||
| Need for care in essential tremor and the indirect burden on care partners | Tremor | ISPOR US, 2024 | ||
| Homologous recombination repair testing patterns and barriers in metastatic hormone-sensitive and metastatic castration-resistant prostate cancer across Europe: a real-world survey | Prostate cancer | ISPOR US, 2024 | ||
| Healthcare resource utilization and health-related quality of life in patients with resectable non-metastatic non-small cell lung cancer treated with neoadjuvant chemotherapy in China: a real-world survey | Non-small cell lung cancer | ISPOR US, 2024 | ||
| Drivers of Depression and Anxiety in US Non-Segmental Vitiligo Patients | Vitiligo | ISPOR US, 2024 | ||
| Disease Burden and Treatment in Patients With Essential Tremor in the United States: Real-World Evidence From a Cross-Sectional Survey of Physicians and Patients | Tremor | ISPOR US, 2024 | ||
| Clinical characteristics, diagnosis, and impact on employment in patients with obstructive hypertrophic cardiomyopathy: results from a real-world survey in Canada | Obstructive Hypertrophic Cardiomyopathy | ISPOR US, 2024 | ||
| Characterization of physician-reported outcomes of people with HIV switching treatment: findings from a real-world survey in the United States | HIV | ISPOR US, 2024 | ||
| Real-world treatment patterns and quality of life among patients with locally advanced or metastatic urothelial carcinoma living in Saudi Arabia, South Korea, Taiwan, and Turkey | Urothelial carcinoma | https://pubmed.ncbi.nlm.nih.gov/38787505/ | ||
| Patient and family burden of pediatric atopic dermatitis and its pattern of treatment in Japan | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/38812086/ | ||
| Disease landscape of advanced HER2- breast cancer patients by treatment line in three EU countries and the US | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/38861292/ | ||
| Quality of life and fatigue burden in individuals living with Complement 3 Glomerulopathy – a real-world study | Glomerulopathy | ERA-EDTA, 2024 | ||
| Real-world signs and symptoms at diagnosis in patients with IgA nephropathy | Immunoglobulin A nephropathy | ERA, 2024 | ||
| Real-world treatment patterns and clinical outcomes in patients with radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) treated with first line Lenvatinib monotherapy in the United States | Thyroid cancer | https://pubmed.ncbi.nlm.nih.gov/38102498/ | ||
| Challenges in obesity management and psychosocial impact: a real-world perspective among people with obesity and their physicians | Obesity | ECO, 2024 | ||
| Patient and health care professional perceptions of the experience and impact of symptoms of moderate-to-severe crohn's disease in US and Europe: results from the cross-sectional CONFIDE study | Crohn's disease | Dig Dis Sci, 2024 | ||
| Patient burden of nonsegmental vitiligo: a US real-world survey of dermatologists and their patients | Vitiligo | https://pubmed.ncbi.nlm.nih.gov/38753072/ | ||
| Diagnostic journey of patients with chronic idiopathic constipation in the USA: analysis from a cross-sectional observational study | Chronic idiopathic constipation | DDW, 2024 | ||
| Real-world clinical evaluation of natural and induced vasomotor symptoms in the USA and Europe | Vasomotor symptoms | https://pubmed.ncbi.nlm.nih.gov/38695491/ | ||
| Outcomes of patients with COPD switching from multiple-inhaler to once-daily single-inhaler triple therapy in a real-world primary care setting in England: A retrospective pre-post cohort study | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/38772900/ | ||
| Patient journey, disease burden and treatment paradigms in patients with interstitial lung disease with progressive pulmonary fibrosis in Europe: a cross-sectional survey | PF-ILD | ATS, 2024 | ||
| Gaps in asthma severity and asthma control between clinical practice and guideline according to a real-world survey in China | Asthma | ATS, 2024 | ||
| Characteristics of patients with interstitial lung disease with progressive pulmonary fibrosis in Europe: a cross-sectional survey | PF-ILD | ATS, 2024 | ||
| Real-world treatment patterns, clinical outcomes and symptom burden in patients with psoriatic arthritis prescribed ixekizumab in the United States | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/38705580/ | ||
| Diagnostic journey of MCI/AD Dementia patients, and importance of biomarkers testing: a real-world survey | Dementia | ABN, 2024 | ||
| Treatment patterns in patients with immunoglobulin a nephropathy - evidence from real-world data | Immunoglobulin A nephropathy | WCNeph, 2024 | ||
| Treatment goals from the perspective of immunoglobulin a nephropathy patients - results from a real-world study | Immunoglobulin A nephropathy | WCNeph, 2024 | ||
| Self-reported quality of life in complement 3 glomerulopathy patients delineated by CKD stage: a real-world, multi-country survey | Glomerulopathy | WCNeph, 2024 | ||
| Real-world analysis of patients with immunoglobulin a nephropathy – diagnosis and disease monitoring | Immunoglobulin A nephropathy | WCNeph, 2024 | ||
| Prevalence and clinical characteristics of kidney transplants in complement 3 glomerulopathy patients: results from a real-world, multi-country survey | Glomerulopathy | WCNeph, 2024 | ||
| Clinical outcomes in mild-moderate and severe patients with hemophilia B: results from a real-world, multi-national survey | Hemophilia | THSNA, 2024 | ||
| Clinical and economic burden of antibiotic use among pediatric patients with varicella infection in the outpatient setting: a retrospective cohort analysis of real-world data in France | Varicella | https://pubmed.ncbi.nlm.nih.gov/38456715/ | ||
| Treatment patterns in women with postmenopausal osteoporosis using abaloparatide: a real-world observational study | Osteoporosis | https://pubmed.ncbi.nlm.nih.gov/38653862/ | ||
| Timing of single inhaler triple therapy (SITT) initiation following an initial asthma exacerbation: Japanese claims database analyses | Asthma | JRS, 2024 | ||
| Sjögren’s disease activity and clinical characteristics of patients with seropositive and seronegative anti-SSA/Ro and anti-SSB/La antibody test | Sjogren's syndrome | ISSjD, 2024 | ||
| Association of Sjögren’s disease activity (ClinESSDAI) and symptom burden (ESSPRI) with patient-reported outcome measures | Sjogren's syndrome | ISSjD, 2024 | ||
| Rate of physician visits and hospitalizations in pulmonary arterial hypertension in Argentina, Brazil, Colombia, and Mexico | Pulmonary arterial hypertension | ISHLT, 2024 | ||
| Journey from symptom onset to diagnosis of pulmonary arterial hypertension: results from a cross-sectional survey of real-world patients in Latin America | Pulmonary arterial hypertension | ISHLT, 2024 | ||
| Camphor quality of life scores for patients diagnosed with pulmonary arterial hypertension in Brazil and Colombia | Pulmonary arterial hypertension | ISHLT, 2024 | ||
| Real-world effectiveness of dolutegravir/lamivudine in people with HIV-1 in test-and-treat settings or with high baseline viral loads: TANDEM study subgroup analyses | HIV | https://pubmed.ncbi.nlm.nih.gov/38570444/ | ||
| Two-drug regimens dolutegravir/lamivudine and dolutegravir/rilpivirine are effective with few discontinuations in US real-world settings: results from the TANDEM study | HIV | https://pubmed.ncbi.nlm.nih.gov/38570443/ | ||
| Pegcetacoplan in paroxysmal nocturnal haemoglobinuria: its use, its clinical effectiveness, and its influence on health-related quality of life and productivity | Paroxysmal nocturnal hemoglobinuria | https://pubmed.ncbi.nlm.nih.gov/37994576/ | ||
| A description of alopecia areata in European patients based on real-world survey data: physician-reported characterization of severity and associated treatment utilization | Alopecia areata | https://pubmed.ncbi.nlm.nih.gov/38465546/ | ||
| Physician versus patient perception of disease, symptomatic burden and preference for treatment administration in paroxysmal nocturnal hemoglobinuria (PNH): results from a real-world study | Paroxysmal nocturnal hemoglobinuria | EBMT, 2024 | ||
| A real-world analysis of treatment adherence and clinical outcomes for patients with paroxysmal nocturnal haemoglobinuria (PNH) receiving pegcetacoplan | Paroxysmal nocturnal hemoglobinuria | EBMT, 2024 | ||
| Achievement of HbA1c and weight targets in adults with type 2 diabetes (T2D) on once weekly (OW) glucagon-like peptide-1 receptor agonist (GLP-1 RA) therapy in UK primary care | Diabetes | DUKPC, 2024 | ||
| Achievement of HbA1c and weight targets in adults with type 2 diabetes (T2D) on once weekly (OW) glucagon-like peptide-1 receptor agonist (GLP-1 RA) therapy in UK primary care | Diabetes | DUKPC, 2024 | ||
| Treatment patterns, barriers, and associated costs reported by patients with chronic idiopathic constipation in the USA: analysis from a cross-sectional observational study | Chronic idiopathic constipation | AMCP, 2024 | ||
| The diagnostic journey of patients with mild cognitive impairment and Alzheimer’s disease dementia, and the importance of biomarker testing for timely diagnosis: a real-world survey in Europe | Dementia | AIP, 2024 | ||
| Understanding burden and health outcomes based on number of adverse events in patients with Lennox-Gastaut Syndrome in real-world clinical practice settings | Lennox-Gastaut syndrome | AAN, 2024 | ||
| Real world treatment patterns of patients with dravet syndrome (DS) and lennox-gastaut syndrome (LGS) in the United States (US) | Various | AAN, 2024 | ||
| Health outcomes stratified by number of adverse events experienced by patients with dravet syndrome: insights from a global real-world study | Dravet syndrome | AAN, 2024 | ||
| Associations among tremor amplitude, activities of daily living, and quality of life in patients with essential tremor | Tremor | TOHM, 2024 | ||
| Exploring the very early diagnosis of systemic sclerosis (VEDOSS) criteria usage in the real-world: a multinational survey of rheumatologists | Systemic sclerosis | SSWC, 2024 | ||
| Differences in the perception of systemic sclerosis disease management by sex: real-world findings from a multi-national survey | Systemic sclerosis | SSWC, 2024 | ||
| Effectiveness of esketamine as a treatment for depression: a real-world survey of disease improvement | Depression | Psych Congress , 2024 | ||
| Health care resource utilization and costs associated with COVID-19 among pediatrics managed in the community or hospital setting in England: a population-based cohort study | Covid-19 | https://journals.lww.com/pidj/fulltext/9900/health_care_resource_utilization_and_costs.672.aspx | ||
| Real-world treatment patterns & neurologist treatment satisfaction for Duchenne muscular dystrophy patients by ambulatory status in the United States | Duchenne muscular dystrophy | MDA, 2024 | ||
| Need for caregiver support for people living with hereditary angioedema in European countries | Hereditary Angioedema | ITACA , 2024 | ||
| Real-world epidemiology and treatment patterns of patients with locally advanced or metastatic urothelial carcinoma: retrospective data analysis of Diagnosis Procedure Combination claims data in Japan | Urothelial carcinoma | Int J Urol, 2024 | ||
| Understanding patient reasons not to treat all hereditary angioedema (HAE) attacks and characteristics of untreated HAE attacks: results from a real world survey | Hereditary angioedema | HAEI Americas , 2024 | ||
| The presence and burden of cognitive issues: discordance between the perception of neurologists and people living with multiple sclerosis | Multiple sclerosis | https://pubmed.ncbi.nlm.nih.gov/38500270/ | ||
| Country differences in physician’s biomarker testing patterns and treatment in advanced ovarian cancer: analysis of the Adelphi Real World Disease Specific Programme (DSP) | Ovarian cancer | ESGO, 2024 | ||
| Impact of intravenous belimumab treatment on steroid use and disease activity in patients with systemic lupus erythematosus in the US in clinical practice: 24-month results from the OBSErve study | Systemic lupus erythematosus | ELM, 2024 | ||
| Economic burden of Parkinson’s disease: a multinational, real-world cost-of-illness study | Parkinson’s disease | https://link.springer.com/article/10.1007/s40801-023-00410-1 | ||
| Satisfaction with control of mild to moderate atopic dermatitis with ruxolitinib cream: US physician and patient perspectives | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/38453811/ | ||
| Characteristics and management of patients with alopecia areata and selected comorbid conditions: results from a survey in five European countries | Alopecia areata | https://pubmed.ncbi.nlm.nih.gov/38509379/ | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: patient perspectives on experience of ulcerative colitis symptoms in Canada | Inflammatory Bowel Disease | CDDW, 2024 | ||
| Real-world experience of patients receiving treatment for hormone receptor-positive/human epidermal growth factor receptor-2 negative metastatic breast cancer (HR+/HER2- mBC): a multinational survey of psychosocial symptoms and side effects | Breast cancer | APOS, 2024 | ||
| The chronic rhinosinusitis with nasal polyp patient journey in the United States and Europe | Chronic rhinosinusitis with nasal polyposis | https://pubmed.ncbi.nlm.nih.gov/38409099/ | ||
| Adult patients with ulcerative colitis (UC) in Spain: a real-world survey | Ulcerative colitis | AEG, 2024 | ||
| The patient-reported impact of flares on quality of life in pediatric and adolescent patients with moderate-to-severe atopic dermatitis: a real-world study in the United States and Europe | Atopic dermatitis | AAD, 2024 | ||
| Real-world work productivity losses and associated costs in patients with alopecia areata in the US | Alopecia areata | AAD, 2024 | ||
| Real-world quality of life in patients with HAE receiving lanadelumab or other long-term prophylaxis | Hereditary angioedema | WSAAI, 2024 | ||
| The impact of myasthenia gravis severity on work and daily activities | Myasthenia gravis | https://pubmed.ncbi.nlm.nih.gov/38348518/ | ||
| Social care data in the UK; current landscape, challenges, and future recommendations | Various | https://www.tandfonline.com/doi/full/10.1080/14737167.2023.2274843 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: prevalence and patients' experience of moderate-to-severe crohn's disease symptoms in Canada | Inflammatory Bowel Disease | ECCO, 2024 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: European and US patient and healthcare professional perspectives on the broad impact of bowel urgency in ulcerative colitis | Inflammatory Bowel Disease | ECCO, 2024 | ||
| Burden of steroid use in patients with moderate ulcertaive colitis in Europe and the United States | Ulcerative colitis | ECCO, 2024 | ||
| Burden of disease among ulcerative colitis patients with isolated proctitis in the United States and Europe | Ulcerative colitis | ECCO, 2024 | ||
| Treatment pathways, economic burden, and clinical outcomes in new users of inhaled corticosteroid/long-acting β2-agonist dual therapy with chronic obstructive pulmonary disease in a primary care setting in England: a retrospective cohort study | Chronic obstructive pulmonary disease | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10860111/ | ||
| Real-world clinical effectiveness of loncastuximab tesirine monotherapy for the treatment of relapsed/refractory diffuse large B-cell lymphoma following chimeric antigen T cell therapy in the US | Diffuse large B-cell lymphoma | ASTCT and CIBMTR, 2024 | ||
| Understanding the impact of long-term prophylaxis switches for patients with hereditary angioedema | Hereditary angioedema | AAAAI, 2024 | ||
| Understanding patient reasons not to treat all hereditary angioedema attacks and patient satisfaction with on-demand treatment: results from the HAE wave II Disease Specific Programme™(DSP™) 2023 | Hereditary angioedema | AAAAI, 2024 | ||
| Real-world treatment outcomes in patients with hereditary angioedema receiving lanadelumab or other long-term prophylaxis | Hereditary angioedema | AAAAI, 2024 | ||
| Physician and patient concordance in the perception of hereditary angioedema attacks and their management: Results from a real-world survey | Hereditary angioedema | AAAAI, 2024 | ||
| Factors associated with chronic spontaneous urticaria diagnostic and treatment delay in real-world clinical practice | Urticaria | AAAAI, 2024 | ||
| The diagnostic journey of pulmonary arterial hypertension patients: results from a multinational real-world survey | Pulmonary arterial hypertension | https://pubmed.ncbi.nlm.nih.gov/38357903/#:~:text=Patient%2Dreported%20data%20showed%20an,the%20USA%20(15.3%20months)%5D. | ||
| Social determinants of health, quality of life, and productivity outcomes among adults with vitiligo in Brazil, China, India, and South Africa | Vitiligo | Maui Derm, 2024 | ||
| Social determinants of health, psychosocial burden and quality of life among adolescents in China, India, and South Africa | Vitiligo | Maui Derm, 2024 | ||
| Real world utilisation of doravirine among people living with HIV in England (DRIVE-REAL) | HIV | https://pubmed.ncbi.nlm.nih.gov/37970812/ | ||
| Real-world clinical profile, RET mutation testing, treatments and patient-related outcomes for medullary thyroid cancer in Europe | Thyroid cancer | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10895329/ | ||
| Degree of alignment between Japanese patients and physicians on alopecia areata disease severity and treatment satisfaction: a real-world survey | Alopecia areata | https://link.springer.com/article/10.1007/s13555-023-01067-y#citeas | ||
| Real-world effectiveness of ustekinumab in patients with ulcerative colitis in the United States of America | Ulcerative colitis | CCC, 2024 | ||
| Characteristics and outcomes of patients enrolled in the Connect 360 benralizumab patient support programme in the UK: a retrospective cohort study | Eosinophilic asthma | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10824014/ | ||
| Persons diagnosed with COVID-19 in England in the clinical practice research datalink (CPRD): a cohort description | Covid-19 | https://pubmed.ncbi.nlm.nih.gov/38216179/#:~:text=Results%3A%20Compared%20with%20national%20estimates,20%25%20primary%20care%20and%2020%25 | ||
| What criteria do clinicians use to classify men as “high-risk” among patients with biochemically recurrent nonmetastatic castration-sensitive prostate cancer? | Prostate cancer | ASCO GU, 2024 | ||
| Real-world treatment patterns for patients with high-risk biochemically recurrent nonmetastatic castration-sensitive prostate cancer | Prostate cancer | ASCO GU, 2024 | ||
| Real-world experience of adalimumab biosimilar (ABP 501) use in patients with inflammatory bowel disease in Europe | Inflammatory Bowel Disease | https://link.springer.com/article/10.1007/s12325-023-02712-w?utm_source=rct_congratemailt&utm_medium=email&utm_campaign=oa_20231114&utm_content=10.1007/s12325-023-02712-w | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) Survey: United States and European Patient Perspectives on the Impact of Moderate-to-Severe Crohn's Disease on Sexual Activity | Inflammatory Bowel Disease | AIBD, 2023 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) Survey: Impact of Moderate-to-Severe Crohn's Disease Symptoms on Health Care Professional Treatment Decisions in the United States and Europe | Inflammatory Bowel Disease | AIBD, 2023 | ||
| Real-world treatment patterns and clinical outcomes in elderly radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) patients treated with lenvatinib monotherapy | Thyroid cancer | ATA, 2023 | ||
| Real-world outcomes, characteristics and ability to work of patients with treatment-resistant depression in the United States | Depression | ASCP, 2023 | ||
| Work, productivity, and activity impairment in patients with immunoglobulin A nephropathy: results from a real-world study | Immunoglobulin A nephropathy | ISPOR US, 2023 | ||
| Virological status in people living with HIV-1 (PLWH) was similar across age subgroups despite older PLWH having increased rates of comorbidities and polypharmacy (TANDEM subgroup analysis) | HIV | ISPOR US, 2023 | ||
| Understanding the real-world clinical effectiveness of pegcetacoplan for the treatment of paroxysmal nocturnal hemoglobinuria (PNH) | Paroxysmal nocturnal hemoglobinuria | ISPOR US, 2023 | ||
| Real-world rearranged during transfection [RET]-alteration testing, treatment and referral patterns of patients with medullary and papillary thyroid cancer [MTC, PTC] in Taiwan | Thyroid cancer | ISPOR US, 2023 | ||
| Real-world differences between people living with HIV receiving B/FTC/TAF and those receiving other single tablet regimens (STR) in the United States | HIV | ISPOR US, 2023 | ||
| Persons diagnosed with COVID-19 in the clinical practice research datalink (CPRD) primary care dataset: a cohort description | Covid-19 | ISPOR US, 2023 | ||
| Persons diagnosed with COVID-19 in linked clinical practice research datalink (CPRD) – hospital episode statistics (HES) data: a cohort description | Covid-19 | ISPOR US, 2023 | ||
| Patient reported outcomes in psoriasis over time: differences by sex from three cross-sectional, real world studies in the United States | Psoriasis | ISPOR US, 2023 | ||
| Patient and physician satisfaction of treatment with eculizumab or ravulizumab in paroxysmal nocturnal hemoglobinuria: results from a real-world disease-specific programme | Paroxysmal nocturnal hemoglobinuria | ISPOR US, 2023 | ||
| Patient and physician concordance in treatment satisfaction and symptom severity among male and female myasthenia gravis patients in the United States and five European countries | Myasthenia gravis | ISPOR US, 2023 | ||
| PAIRED - patient reported experiences and perceived benefit of treatment with DOVATO (dolutegravir/lamivudine): interim analysis (n=100) | HIV | ISPOR US, 2023 | ||
| Impact of draining tunnels on patient- and physician-reported burden in patients with hidradenitis suppurativa (HS) | Hidradenitis suppurativa | ISPOR US, 2023 | ||
| Impact of clinical features on patient reported outcomes and treatment satisfaction in psoriatic arthritis | Psoriatic arthritis | ISPOR US, 2023 | ||
| Impact of amyotrophic lateral sclerosis disease progression on health care resource use and health-related quality of life using MiToS staging and ALSFRS-R: analysis of a real-world cross-sectional survey | Amyotrophic lateral sclerosis | ISPOR US, 2023 | ||
| Immunoglobulin A nephropathy patient reported health utility and quality of life: evidence from real-world data | Immunoglobulin A nephropathy | ISPOR US, 2023 | ||
| Healthcare resource utilization in patients with hidradenitis suppurativa in five European Countries and the USA using real world evidence | Hidradenitis suppurativa | ISPOR US, 2023 | ||
| Healthcare resource utilization and costs associated with acute COVID in adult patients managed in the community or hospital setting in England: a population-based study | Covid-19 | ISPOR US, 2023 | ||
| Effect of physicians’ prescribing choices of first- or second-line tumor necrosis factor inhibitor biologics versus non-tumor necrosis factor inhibitor biologic therapies on psoriatic arthritis patient-reported outcomes measures | Psoriatic arthritis | ISPOR US, 2023 | ||
| Disease burden, treatment landscape, and health related quality of life outcomes in myasthenia gravis: results from the Adelphi real world disease specific programme in the United States and Europe | Myasthenia gravis | ISPOR US, 2023 | ||
| Differences in healthcare resource utilization for the management of immunoglobulin A nephropathy in Europe, the US, China and Japan | Immunoglobulin A nephropathy | ISPOR US, 2023 | ||
| Correlation between myasthenia gravis disease severity and impairment of daily living activities of real-world patients in the United States and five European countries | Myasthenia gravis | ISPOR US, 2023 | ||
| Real-World use of tyrosine kinase inhibitors (TKI) in epidermal growth factor receptor mutated (EGFRm) advanced non-small cell lung cancer (NSCLC) in nine countries | Non-small cell lung cancer | ELCC, 2023 | ||
| Characteristics of patients with resectable non metastatic non small cell lung cancer treated with or without neoadjuvant therapy in Europe and Canada a real world survey | Non-small cell lung cancer | ELCC, 2023 | ||
| Passive flow: a real-world US study characterizing the Fontan patient with elevated pulmonary vascular resistance | Pulmonary arterial hypertension | WCPCCS, 2023 | ||
| Lost in transition: pulmonary arterial hypertension associated with congenital heart disease (PAH-CHD): real world survey findings in the US | Pulmonary arterial hypertension | WCPCCS, 2023 | ||
| Physician perceptions of clinical endpoints and future treatments and dynamics: analysis of the Adelphi Real-World Non-Muscle Invasive Bladder Cancer (NMIBC) Disease specific programme (DSP™) | Bladder cancer | AUA, 2023 | ||
| Treatment patterns and unmet need for patients with progressive multiple sclerosis in the United States: survey results from 2016 to 2021 | Multiple sclerosis | https://pubmed.ncbi.nlm.nih.gov/37682512/ | ||
| Treatment patterns and outcomes among patients with Lennox-Gastaut Syndrome from real-world clinical practice settings across the USA, Europe, and Asia | Lennox-Gastaut syndrome | AES, 2023 | ||
| Time from amyotrophic lateral sclerosis symptom onset to key disease milestones: analysis of data from a real-world, cross-sectional survey | Amyotrophic lateral sclerosis | https://www.tandfonline.com/doi/full/10.1080/21678421.2023.2297795 | ||
| Remission status and reasons for treatment switching in patients with Crohn’s disease by treatment line: a real-world study in Europe and the United States of America | Crohn's disease | AIBD, 2023 | ||
| Real-world treatment outcomes of paroxysmal nocturnal hemoglobinuria (PNH) patients treated with pegcetacoplan and complement protein 5 Inhibitors (C5i) | Paroxysmal nocturnal hemoglobinuria | ASH, 2023 | ||
| Real-world experience of patients receiving treatment for hormone receptor-positive/human epidermal growth factor receptor 2-negative metastatic breast cancer: a global analysis of symptoms and side effects | Breast cancer | SABCS, 2023 | ||
| Real-world clinical burden of non-seizure symptoms on patients with Dravet or Lennox-Gastaut Syndromes: results from a global multinational survey | Various | AES, 2023 | ||
| Real world treatment patterns and outcomes among patients with Dravet syndrome | Dravet syndrome | AES, 2023 | ||
| Investigating geographical differences in time from ALS symptom onset to key disease milestones: data from a real-world survey | Amyotrophic lateral sclerosis | ALS/MND, 2023 | ||
| Healthcare resource utilisation and costs of hospitalisation and primary care among adults with COVID-19 in England: a population-based cohort study | Covid-19 | https://bmjopen.bmj.com/content/13/12/e075495 | ||
| Burden of cycling through ineffective treatments and the impact on healthcare resource utilization: a real-world study in Europe | Crohn's disease | AIBD, 2023 | ||
| Benefit of prompt vs delayed initiation of triple therapy following an exacerbation in patients with COPD in Japan: a retrospective cohort study | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/38089540/ | ||
| Virological suppression in people living with HIV-1 (PLWH) receiving dolutegravir/lamivudine was high and similar across age groups despite older PLWH having increased rates of comorbidities and polypharmacy (TANDEM subgroup analysis) | HIV | ACCP, 2023 | ||
| Understanding the reasons not to treat all HAE attacks and satisfaction for on-demand treatment: physician-and patient-reported data | Hereditary angioedema | ACAAI, 2023 | ||
| Understanding the reasons not to treat all HAE attacks and patient satisfaction for on-demand treatment (ODT). Results from the HAE Wave II Disease Specific Program™ (DSP™) 2023 | Hereditary angioedema | ISPOR EU, 2023 | ||
| Understanding physicians’ decision-making practices related to biomarker testing: analysis of the Adelphi real-world ovarian cancer II disease specific programme (DSPTM) | Ovarian cancer | ISPOR EU, 2023 | ||
| Treatment satisfaction with ravulizumab in patients with atypical hemolytic uremic syndrome in a real-world setting | Atypical hemolytic uremic syndrome | ASN, 2023 | ||
| Treatment satisfaction and health-related quality of life in people living with HIV receiving DTG/3TC who are treatment experienced or treatment naive in Europe | HIV | ISPOR EU, 2023 | ||
| Treatment patterns and drivers of biologic prescriptions in patients with primary sjögren's disease: results from a multinational, real-world survey | Sjogren's syndrome | ACR, 2023 | ||
| Treatment patterns and criteria used to determine platinum eligibility in metastatic urothelial cancer: a real-world survey in Australia | Urothelial carcinoma | COSA, 2023 | ||
| Treatment patterns and adverse events in patients with chronic lymphocytic leukemia/small lymphocytic lymphoma in France, Italy, and the United Kingdom | Chronic lymphocytic leukemia | ISPOR EU, 2023 | ||
| Treatment of IgA Nephropathy in Chinese Patients: Evidence from Real-World Data | Immunoglobulin A nephropathy | ASN, 2023 | ||
| The need for caregiver support in patients with hepatitis D virus infection: descriptive results from a real world survey in Germany, Italy, Spain and the United States of America | Hepatitis D virus | AASLD, 2023 | ||
| The Impact of duchenne muscular dystrophy on caregiver employment: a survey in Europe, Japan, and the United States | Duchenne muscular dystrophy | ISPOR EU, 2023 | ||
| The generalized myasthenia gravis (gMG) diagnostic journey and treatment initiation: European and US real-world perspectives from physician and patient surveys | Myasthenia gravis | AANEM, 2023 | ||
| The diagnostic journey of patients with mild cognitive impairment and Alzheimer’s disease dementia, and the importance of biomarker testing for timely diagnosis: a real-world survey in Europe | Dementia | ISPOR EU, 2023 | ||
| The Adelphi Adherence Questionnaire (ADAQ©): psychometric validation of a new patient self-report measure of medication adherence across multiple disease areas | Various | ISPOR EU, 2023 | ||
| Signs and symptoms at diagnosis in patients with C3 glomerulopathy - results from a real-world multi-country study | C3 glomerulopathy | ASN, 2023 | ||
| Real-world time to diagnosis in C3G | C3 glomerulopathy | ASN, 2023 | ||
| Real-world rearranged during transfection [RET]-alteration testing and treatment patterns of patients with medullary and papillary thyroid cancer [MTC, PTC] in Australia | Thyroid cancer | COSA, 2023 | ||
| Real-world quality of life in patients with HAE receiving lanadelumab or other long-term prophylaxis | Hereditary angioedema | ACAAI, 2023 | ||
| Real-world outcomes in patients with HAE receiving lanadelumab long-term prophylaxis for 3 years or longer | Hereditary angioedema | ACAAI, 2023 | ||
| Real-world evidence generation from patients, their caregivers and physicians supporting clinical, regulatory and guideline decisions: an update on Disease Specific Programmes | Methodology | https://pubmed.ncbi.nlm.nih.gov/37933204/ | ||
| Real world insights into differing presentation of myasthenia gravis patients on pharmacological treatment in the USA and five European countries | Myasthenia gravis | AANEM, 2023 | ||
| Real world characteristics, symptom burden and treatment patterns of anaemia of CKD in Egypt, Saudi Arabia, South Africa and Turkey | Chronic kidney disease | ACPN, 2023 | ||
| Real world characteristics, symptom burden and treatment patterns of anaemia of CKD in Egypt, Saudi Arabia, South Africa and Turkey | Chronic kidney disease | SATS, 2023 | ||
| Ravulizumab is associated with positive clinical and quality of life outcomes in patients with atypical hemolytic uremic syndrome in a real-world setting | Atypical hemolytic uremic syndrome | ASN, 2023 | ||
| Predictors of disease progression in patients with chronic kidney disease: results from a real-world study | Chronic kidney disease | ASN, 2023 | ||
| Predictive factors of right heart catheterization to diagnose pulmonary arterial hypertension using least absolute shrinkage selection operator (LASSO) regression | Pulmonary arterial hypertension | AHA, 2023 | ||
| Physician-reported treatment attributes considered in first-line or later-line settings and perceptions around BTKi treatment in CLL/SLL in the United States | Chronic lymphocytic leukemia | ISPOR EU, 2023 | ||
| Physician-reported detection and challenges of timely diagnosis of MCI and AD dementia in Japan | Dementia | JSDR, 2023 | ||
| Physician reported reasons for CIDP treatment choice across 5 european countries: results from a real-world survey | Chronic inflammatory demyelinating polyneuropathy | ISPOR EU, 2023 | ||
| Persistence of signs and symptoms in treated patients with C3G: evidence from real-world data | C3 glomerulopathy | ASN, 2023 | ||
| Patient-reported outcomes in a real-world study of anemia of chronic kidney disease in the Middle East and Africa | Chronic kidney disease | ASN, 2023 | ||
| Patient characteristics and treatment patterns in patients with mantle cell lymphoma in Spain: a real-world, cross-sectional study | Mantle cell lymphoma | ISPOR EU, 2023 | ||
| Omalizumab use in patients with chronic spontaneous urticaria: a real-world survey in the United States | Urticaria | ACAAI, 2023 | ||
| Impact of up to 24 months intravenous (IV) belimumab (BEL) treatment on steroid use and disease activity in patients with SLE in clinical practice: additional post hoc pooled analysis of multicountry OBSErve cohort data | Systemic lupus erythematosus | ACR, 2023 | ||
| Impact of paroxysmal nocturnal haemoglobinuria on employment and activity: results from a real-world study | Paroxysmal nocturnal hemoglobinuria | ISPOR EU, 2023 | ||
| Impact of obesity on individuals in the United Arab Emirates: a real-world patient and physician survey | Obesity | AACE, 2023 | ||
| Impact of obesity on individuals in the Kingdom of Saudi Arabia: a real-world patient and physician survey | Obesity | DeepDive , 2023 | ||
| Impact of obesity on health-related quality of life, sleep, and work – a multinational survey | Obesity | ISPOR EU, 2023 | ||
| Impact of lifestyle changes on quality of life in patients with chronic kidney disease: results from a real-world study | Chronic kidney disease | ASN, 2023 | ||
| Impact of haemophilia severity on healthcare resource usage: results from a multinational real-world survey | Hemophilia | ISPOR EU, 2023 | ||
| Impact of bleeds on the quality of life of patients with haemophilia: results from a multinational real-world survey | Hemophilia | ISPOR EU, 2023 | ||
| Impact of amyotrophic lateral sclerosis on work and daily living: results from a real-world survey | Amyotrophic lateral sclerosis | ISPOR EU, 2023 | ||
| Impact and management of comorbidities in people with obesity: a multinational survey | Obesity | ISPOR EU, 2023 | ||
| Humanistic burden of paroxysmal nocturnal hemoglobinuria from the patient perspective: results from a cross-sectional study | Paroxysmal nocturnal hemoglobinuria | ISPOR EU, 2023 | ||
| Healthcare resource utilization for pediatric and adolescent duchenne muscular dystrophy patients: analysis of real-world data | Duchenne muscular dystrophy | ISPOR EU, 2023 | ||
| Healthcare resource utilization (HCRU), quality of life (QoL), and employment changes for early, middle and late-stage people with amyotrophic lateral sclerosis (pALS) in Italy: results from a real-world survey | Amyotrophic lateral sclerosis | ISPOR EU, 2023 | ||
| Estimating the cost and epidemiology of mild to severe chronic pain associated with osteoarthritis in England: a retrospective analysis of linked primary and secondary care data | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/38030255/ | ||
| EQ-5D utilities for patients with nonalcoholic steatohepatitis (NASH): a comparison of historical utilities to a recent real-world multi-country patient survey | Non‐alcoholic steatohepatitis | ISPOR EU, 2023 | ||
| Effectiveness of esketamine as a treatment for depression: a real-world survey of disease improvement | Depression | NEI, 2023 | ||
| Drivers of physicians’ treatment decision-making and future treatment expectations: analysis of the Adelphi real-world ovarian cancer II disease specific programme (DSPTM) | Ovarian cancer | ISPOR EU, 2023 | ||
| Disease burden of patients with sjögren’s disease: results from a multinational real-world survey | Sjogren's syndrome | ACR, 2023 | ||
| Diagnostic pathway differences across physician specialties for patients with chronic spontaneous urticaria: real-world survey | Urticaria | ACAAI, 2023 | ||
| Deriving caregiver health utilities from patient endpoints: a predictive modelling approach using real-world survey data | Various | ISPOR EU, 2023 | ||
| Demographics of patients and societal burden of obstructive hypertrophic cardiomyopathy: results from a real-world survey in Italy and Spain | Obstructive hypertrophic cardiomyopathy | ISPOR EU, 2023 | ||
| Delayed diagnosis amongst generalized myasthenia gravis patients: results from a European real world study | Myasthenia gravis | AANEM, 2023 | ||
| COVID-19 related work absenteeism and Its associated lost productivity cost in Germany: a population-based study | Covid-19 | ISPOR EU, 2023 | ||
| Clinical profiles and outcomes in patients with inflammatory bowel disease receiving standard and escalated doses of targeted therapies: findings from a global real-world study | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/37927078 | ||
| Chronic low back pain with and without concomitant osteoarthritis: a retrospective, longitudinal cohort study of patients in England | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/37221352/ | ||
| Characteristics of progressive myasthenia gravis patients in real world practice in the USA and five European countries | Myasthenia gravis | AANEM, 2023 | ||
| Characteristics of individuals living with obesity in Germany, weight-loss methods attempted and healthcare resource use over a 12-month period | Obesity | ISPOR EU, 2023 | ||
| Changing priorities among physician reported reasons for choice of pharmacological generalized myasthenia gravis treatments across five European countries | Myasthenia gravis | AANEM, 2023 | ||
| C3 glomerulopathy current treatment options and real-world management - results from a multi-country study | C3 glomerulopathy | ASN, 2023 | ||
| Bowel urgency in patients with ulcerative colitis and Crohn’s disease: a cross-sectional real-world survey in Japan | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/37999831/ | ||
| Association of a treat-to-target management approach with physician and patient-reported outcomes among real-world patients with rheumatoid arthritis receiving advanced therapy in Europe | Rheumatoid arthritis | ACR, 2023 | ||
| Association between health-related quality of life and requirement for non-professional care in adults with rare diseases: a real-world study | Various | ISPOR EU, 2023 | ||
| Assessing the impact of relapses on patient outcomes in neuromyelitis optica spectrum disorder | Neuromyelitis optica spectrum disorder | ISPOR EU, 2023 | ||
| Assessing the impact of relapses on burden to the patient and caregiver in neuromyelitis optica spectrum disorder | Neuromyelitis optica spectrum disorder | ISPOR EU, 2023 | ||
| A real world study of cough burden and quality of life of UK patients who have undergone evaluation for chronic cough | Chronic cough | Citations: A real world study of cough burden and quality of life of UK patients who have undergone evaluation for chronic cough (tandfonline.com) | ||
| The impact of surgery on patients with VHL-associated tumors: An international patient survey | Von Hippel-Lindau syndrome | NORD, 2023 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: patient and healthcare professional perspectives on communication relating to ulcerative colitis symptoms in Canada | Inflammatory Bowel Disease | ACG, 2023 | ||
| The effect of patients' current ulcerative colitis disease severity perception on prevalence and experiences of bowel urgency: results from the Communicating Needs and Features of IBD Experiences (CONFIDE) survey | Ulcerative colitis | ACG, 2023 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: prevalence and experiences of bowel urgency-comparison between male and female patients with moderate-to-severe ulcerative colitis | Inflammatory Bowel Disease | ACG, 2023 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: burden and impact of bowel urgency is similar in patients with moderate-to-severe crohn's disease and ulcerative colitis | Inflammatory Bowel Disease | ACG, 2023 | ||
| Communication gap between patients and healthcare professionals on bowel urgency with focus on crohn's disease: results from the Communicating Needs and Features of IBD Experiences (CONFIDE) survey | Crohn's disease | ACG, 2023 | ||
| Virological Suppression in People with HIV-1 (PWH) receiving dolutegravir/lamivudine was high and similar across age groups despite older PWH having increased rates of comorbidities and polypharmacy (TANDEM subgroup analysis) | HIV | IDWeek, 2023 | ||
| Treatment for vasomotor symptoms in women on adjuvant endocrine therapy after breast cancer: real-world findings from the REALISE study | Vasomotor symptoms | ESMO, 2023 | ||
| The diagnostic journey of patients with mild cognitive impairment or Alzheimer’s disease dementia, and challenges associated with timely diagnosis: results from a real-world survey in the United States | Dementia | AMCP Nexus, 2023 | ||
| The clinical and economic burden of antibiotic use in pediatric patients with varicella Infection: a retrospective cohort analysis of real-world data in England | Varicella | https://pubmed.ncbi.nlm.nih.gov/37795662 | ||
| Real-world treatment patterns, healthcare resource use and disease burden in patients with multiple myeloma in Europe | Multiple myeloma | https://pubmed.ncbi.nlm.nih.gov/37706245/ | ||
| Real-world practices and physician perspectives on biomarker testing and treatment patterns in patients with locally advanced unresectable or metastatic (La/m) gastric/gastroesophageal junction (G/GEJ) adenocarcinoma in the US | Gastric cancer | ESMO, 2023 | ||
| Real-world analysis of treatment patterns and platinum-based treatment eligibility of patients with metastatic urothelial cancer in 5 European countries | Urothelial carcinoma | https://pubmed.ncbi.nlm.nih.gov/37945404/ | ||
| Real world patient characteristics and treatment patterns in HR+/HER2+ metastatic breast cancer patients across five European countries and the United States | Breast cancer | ESMO, 2023 | ||
| Profili clinici dei pazienti affetti da colite ulcerosa che ricevono dosi standard e intensificate di targeted therapies in Italia: risultati da uno studio real-world | Ulcerative colitis | SIFO, 2023 | ||
| Prevalence of misdiagnosis and time to diagnosis amongst NMOSD and MOGAD patients | Various | ECTRIMS, 2023 | ||
| Presence of mental health concerns is associated with poor adherence in people taking pre-exposure prophylaxis in real-world clinical practice in the United States | Pre-exposure prophylaxis | IDWeek, 2023 | ||
| Physician- and patient-reported severity and quality of life impact of alopecia areata: results from a real-world survey in five European countries | Alopecia areata | https://pubmed.ncbi.nlm.nih.gov/37889388/ | ||
| Patient-reported cost-driven adherence: differences by ethnicity and socioeconomic status from seven cross-sectional studies in the United States | Various | ISOQOL, 2023 | ||
| Patient-reported adherence: differences by education, employment and socioeconomic status from three cross-sectional studies in Germany | Various | ISOQOL, 2023 | ||
| Patient characteristics, disease profile and treatment patterns in mild and moderate psoriasis patients in real world practices (prospect study) | Psoriasis | FCDC, 2023 | ||
| Patient characteristics, disease profile and treatment patterns in mild and moderate psoriasis patients in real world practices (prospect study) | Psoriasis | AMCP Nexus, 2023 | ||
| Misdiagnosis of amyotrophic lateral sclerosis in clinical practice in Europe and the USA: a patient chart review and physician survey | Amyotrophic lateral sclerosis | https://pubmed.ncbi.nlm.nih.gov/37794794/ | ||
| Impact of VHL-associated tumor treatment on mental health: An international patient survey | Von Hippel-Lindau syndrome | ESMO, 2023 | ||
| Impact of draining tunnels on patient- and physician-reported burden in patients with hidradenitis suppurativa | Hidradenitis suppurativa | SHSA, 2023 | ||
| Healthcare resource utilisation and treatment usage among flaring and non-flaring patients with ulcerative colitis - a real-world global study | Inflammatory Bowel Disease | ACG, 2023 | ||
| Healthcare resource utilisation and treatment usage among flaring and non-flaring patients with ulcerative colitis - a real-world global study | Inflammatory Bowel Disease | UEGW, 2023 | ||
| Factors driving decisions in the use of HIV pre-exposure prophylaxis: data from a real-world study in the United States | Pre-exposure prophylaxis | IDWeek, 2023 | ||
| Drivers of satisfaction and health-related quality of life of people living with HIV within Europe: Findings from a real-world survey of people living with HIV | HIV | EACS, 2023 | ||
| Drivers of discontinuation of oral PrEP within Europe: findings from a real-world survey of PrEP use | Pre-exposure prophylaxis | EACS, 2023 | ||
| Disease control and physician satisfaction with ruxolitinib cream in US adults with mild to moderate atopic dermatitis | Atopic dermatitis | AMCP Nexus, 2023 | ||
| Disease burden among moderate-severe to severe major depressive disorder patients in five European countries: evidence from real-world clinical practice | Depression | ECNP, 2023 | ||
| Cross-walk of the Chronic Liver Disease Questionnaire for Nonalcoholic Steatohepatitis (CLDQ-NASH) and the EuroQol EQ-5D-5L in patients with NASH | Non‐alcoholic steatohepatitis | https://pubmed.ncbi.nlm.nih.gov/37838660/ | ||
| Clinical burden of hidradenitis suppurativa with draining tunnels | Hidradenitis suppurativa | SHSA, 2023 | ||
| Clinical burden of hidradenitis suppurativa with draining tunnels | Hidradenitis suppurativa | EADV, 2023 | ||
| Burden of illness among Japanese paroxysmal nocturnal hemoglobinuria patients: a real-world study | Paroxysmal nocturnal hemoglobinuria | JSH, 2023 | ||
| Burden of bowel urgency among pediatric patients with ulcerative colitis: results from a physician and patient survey | Ulcerative colitis | ACG, 2023 | ||
| Analysis of the impact, patterns of care, and perspectives of patients and physicians about moderate-to-severe menopausal vasomotor symptoms in Spain | Vasomotor symptoms | https://www.elsevier.es/en-revista-clinica-e-investigacion-ginecologia-obstetricia-7-resumen-evaluacion-del-impacto-patrones-tratamiento-S0210573X23000527 | ||
| Adherence to antiretroviral therapy and its effect on quality of life among persons with HIV in the United States using real-world data | HIV | IDWeek, 2023 | ||
| Work, productivity, and activity impairment in patients with immunoglobulin A nephropathy: results from a real-world study | Immunoglobulin A nephropathy | IIGANN, 2023 | ||
| What do women with breast cancer take for menopause symptoms? A real-world analysis of treatment utilization from the US and Europe | Vasomotor symptoms | NAMs, 2023 | ||
| Validation of an EMR derived algorithm to identify moderate asthma exacerbations in the UK | Asthma | ERS, 2023 | ||
| Systemic therapy for patients with atopic dermatitis results in increased advanced practice provider disease control satisfaction and decreased frequency of flares: a real-world study | Atopic dermatitis | Maui Derm NP+PA Fall, 2023 | ||
| Rectal urgency among patients with ulcerative colitis or Crohn’s disease: analyses from a global survey | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/37928613/ | ||
| Real-world treatment patterns and outcomes in lenalidomide refractory multiple myeloma patients in Europe: a real-world survey | Multiple myeloma | IMYS, 2023 | ||
| Persistence to inhaled long-acting maintenance therapy in patients with COPD in UK routine clinical practice | Chronic obstructive pulmonary disease | ERS, 2023 | ||
| Patient characteristics and burden in lenalidomide refractory multiple myeloma patients in Europe: a real-world survey | Multiple myeloma | IMYS, 2023 | ||
| IgA nephropathy: a real-world comparison between disease severity, symptom burden, and treatment satisfaction reported by patients and nephrologists | Immunoglobulin A nephropathy | IIGANN, 2023 | ||
| Healthcare resource utilisation in Lennox-Gastaut syndrome: interim results from a European real-world point-in-time study | Lennox-Gastaut syndrome | IEC, 2023 | ||
| Health related quality of life in pulmonary arterial hypertension in the US, Europe, and Japan | Pulmonary arterial hypertension | ERS, 2023 | ||
| Diagnostic pathways in immunoglobulin A nephropathy in Japan: results from a real-world study | Immunoglobulin A nephropathy | IIGANN, 2023 | ||
| Diagnosing pulmonary arterial hypertension in the Real World | Pulmonary arterial hypertension | ERS, 2023 | ||
| Concordance between physician and patient reported presence of symptoms in patients with pulmonary arterial hypertension in the US, Europe and Japan | Pulmonary arterial hypertension | ERS, 2023 | ||
| Comparative effectiveness of umeclidinium/vilanterol versus indacaterol/glycopyrronium on moderate-to-severe exacerbations in patients with chronic obstructive pulmonary disease in clinical practice in England | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/37731774/ | ||
| Characteristics of patients with asthma on GINA 4/5 therapies in China | Asthma | ERS, 2023 | ||
| Characteristics of patients with asthma in China by blood eosinophil level | Asthma | ERS, 2023 | ||
| Characteristics and treatment pathways of COPD patients initiating single-inhaler dual or triple therapy in England | Chronic obstructive pulmonary disease | ERS, 2023 | ||
| Benefit of prompt initiation of single-inhaler fluticasone furoate, umeclidinium, and vilanterol (FF/UMEC/VI) in patients with COPD in England following an exacerbation – a retrospective cohort study | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/37749551/ | ||
| Adherence to single and multiple inhaler triple therapies among patients with COPD in the real world in Japan | Chronic obstructive pulmonary disease | ERS, 2023 | ||
| The impact of wearing ‘OFF’ (WO) episodes on non-motor symptoms (NMS) burden and quality of life (QoL) in Parkinson’s disease (PD) patients | Parkinson’s disease | ICPDMD (MDS), 2023 | ||
| Prescription medication use in chronic idiopathic constipation in the USA from the healthcare professional perspective: a retrospective observational study | Chronic idiopathic constipation | ANMS, 2023 | ||
| Obesity-related complications, healthcare resource use and weight loss strategies in six European countries: the RESOURCE survey | Obesity | https://pubmed.ncbi.nlm.nih.gov/37258646/ | ||
| Management of chronic idiopathic constipation in US patients from the healthcare professional perspective: a retrospective observational study | Chronic idiopathic constipation | ANMS, 2023 | ||
| Healthcare resource utilization at different stages of amyotrophic lateral sclerosis: results from a real-world survey | Amyotrophic lateral sclerosis | https://www.jns-journal.com/article/S0022-510X(23)00225-3/fulltext | ||
| Clinician perceptions and reasons for non-use of guideline-directed medical therapy for heart failure with reduced ejection fraction in the United States | Chronic heart failure | ESC, 2023 | ||
| Clinical profiles and outcomes in patients with ulcerative colitis receiving standard and higher-than-standard doses of vedolizumab: findings from a real-world study in Europe | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/37545338/ | ||
| Clinical characteristics and treatment patterns of patients with episodic cluster headache: results from the United States, United Kingdom and Germany | Migraine | https://www.tandfonline.com/doi/full/10.1080/03007995.2023.2237741#:~:text=During%20their%20current%20or%20most,%2C%20120%2F328%3B%20Germany%2C | ||
| Quality of life and treatment-related side effects in patients with HR+/HER2- advanced breast cancer: findings from a multicountry survey | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/37523663/ | ||
| Unmet needs in real-world advanced therapy-naïve and -experienced patients with moderately to severely active ulcerative colitis in the United States | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/37458875/ | ||
| Unmet clinical needs, burden of disease and treatment patterns in hidradenitis suppurativa: real-world experience from Spain | Hidradenitis suppurativa | https://onlinelibrary.wiley.com/doi/full/10.1002/jvc2.237 | ||
| Understanding the burden of disease on the caregiver of pediatric and adolescent patients with moderate-to-severe atopic dermatitis: a real-world study in US and Europe | Atopic dermatitis | WCD, 2023 | ||
| Treatment patterns and criteria used to determine platinum eligibility in metastatic urothelial cancer: a real-world survey in Australia | Urothelial carcinoma | ANZUP, 2023 | ||
| Time from ALS symptom onset to key disease milestones for slow, intermediate, and fast progressors: a real-world cross-sectional survey | Amyotrophic lateral sclerosis | ENCALS, 2023 | ||
| The generalized myasthenia gravis (gMG) diagnostic journey and treatment initiation: European and US real-world perspectives from physician and patient surveys | Myasthenia gravis | EAN, 2023 | ||
| Patient characteristics, testing and treatment patterns, and outcomes in EGFR-mutated advanced non-small cell lung cancer: a multinational, real-world study | Non-small cell lung cancer | https://pubmed.ncbi.nlm.nih.gov/37221352/ | ||
| Menopausal symptom burden and quality of life in women with breast cancer on endocrine adjuvant therapy: findings from the REALISE study | Vasomotor symptoms | Maturitas, 2023 | ||
| Healthcare resource utilization and device-aided therapy discussions with eligible patients across the Parkinson’s disease continuum: revelations from the MANAGE-PD validation cohort | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/37563079/#:~:text=Conclusion%3A%20MANAGE%2DPD%20category%203,device%2Daided%20therapies%20with%20providers. | ||
| Health economic impact of moderate-to-severe chronic pain associated with osteoarthritis in England: a retrospective analysis of linked primary and secondary care data | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/37438077/ | ||
| Fatigue among generalised myasthenia gravis patients: real-world data from physicians and patients across five European countries | Myasthenia gravis | EAN, 2023 | ||
| Economic burden of alopecia areata: a study of direct and indirect cost in Japan using real-world data | Alopecia areata | https://pubmed.ncbi.nlm.nih.gov/37435720/ | ||
| Early-onset generalised myasthenia gravis in women aged 18-50: results from a real-world study in five European countries. | Myasthenia gravis | EAN, 2023 | ||
| Disease burden and physician-reported outcomes in pediatric patients with hereditary angioedema: data from a real-world study | Hereditary angioedema | HAEA, 2023 | ||
| Comparison of rescue medication prescriptions in patients with chronic obstructive pulmonary disease receiving umeclidinium/vilanterol versus tiotropium bromide/olodaterol in routine clinical practice in England | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/37465818/ | ||
| Treatment patterns and outcomes of patients with metastatic non-small cell lung cancer in five European countries: a real-world evidence survey | Non-small cell lung cancer | https://pubmed.ncbi.nlm.nih.gov/37386452/ | ||
| Treatment patterns and clinical outcomes of newly diagnosed locally advanced head and neck squamous cell carcinoma (LA HNSCC): a retrospective cohort analysis of national real-world data in England. | Head and neck cancer | ASCO, 2023 | ||
| Treatment patterns and clinical outcomes of newly diagnosed early-stage and locally advanced triple negative breast cancer (TNBC): a retrospective cohort analysis of national real-world data in England | Breast cancer | ASCO, 2023 | ||
| Treatment patterns and clinical outcomes of newly diagnosed early-stage and locally advanced triple negative breast cancer (TNBC): a retrospective cohort analysis of national real-world data in England | Breast cancer | ASCO, 2023 | ||
| The impact of surgery on patients with VHL-associated tumors: An international patient survey | Von Hippel-Lindau syndrome | ASCO, 2023 | ||
| The impact of hepatitis D virus infection on health-related quality of life and fatigue in patients untreated for HDV: descriptive results from a cross-sectional study across Italy, Germany, Spain and the US | Hepatitis D virus | EASL, 2023 | ||
| The diagnostic journey of patients with Immunoglobulin A nephropathy: data analysis of a real-world survey | Immunoglobulin A nephropathy | ERA, 2023 | ||
| Symptom control with currently available Immunoglobulin A nephropathy treatment: results from a real-world survey in eight countries | Immunoglobulin A nephropathy | ERA, 2023 | ||
| Suboptimal clinical and quality of life outcomes in patients with psoriasis undertreated with oral therapies: international physician and patient survey | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/37253874/ | ||
| Real-world signs and symptoms at diagnosis in patients with C3 glomerulopathy - interim results from a multi-country study | C3 glomerulopathy | ERA, 2023 | ||
| Real‑world patient‑reported outcomes and concordance between patient and physician reporting of side effects across lines of therapy in multiple myeloma within the USA | Multiple myeloma | https://pubmed.ncbi.nlm.nih.gov/37268868/ | ||
| Real-world effectiveness of lenvatinib monotherapy in radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) patients with confirmed BRAF mutationstatus | Thyroid cancer | WCTC, 2023 | ||
| Real-world clinical profile, treatment patterns and patient-reported outcomes for thyroid cancer in Japan | Thyroid cancer | https://pubmed.ncbi.nlm.nih.gov/37278236/ | ||
| Real world characteristics, symptom burden and treatment patterns of anaemia of CKD in Egypt, Saudi Arabia, South Africa and Turkey | Chronic kidney disease | ERA, 2023 | ||
| Qualitative interviews to assess the impact of chronic hepatitis delta virus infection on health-related quality of life in untreated patients from the US, Italy, Spain, and Germany | Hepatitis D virus | EASL, 2023 | ||
| Prevalence of clinically significant extravascular hemolysis in stable c5 inhibitor-treated patients with PNH and its association with disease control, quality of life and treatment satisfaction | Paroxysmal nocturnal hemoglobinuria | EHA, 2023 | ||
| Physician attitudes towards the use of pre-exposure prophylaxis (PrEP): findings from a real-world survey in Europe | Pre-exposure prophylaxis | AIDSImpact, 2023 | ||
| Physician- and patient-reported perspectives on myasthenia gravis in Europe: a real-world survey | Myasthenia gravis | https://pubmed.ncbi.nlm.nih.gov/37386469/ | ||
| PATRON study: real world patient and specialist evaluation of the impact of advanced epithelial ovarian cancer (aEOC) on patients’ quality of life (QoL) | Ovarian cancer | BGCS, 2023 | ||
| PATRON study: real world patient and specialist evaluation into diagnostic pathways and treatment patterns in advanced epithelial ovarian cancer (aEOC) in the United Kingdom | Ovarian cancer | BGCS, 2023 | ||
| Patients with moderate-to-severe atopic dermatitis experience heterogeneous disease course phenotypes: results of a real-world study in the United States | Atopic dermatitis | FCPANP, 2023 | ||
| Patient characteristics, disease profile and treatment patterns in mild and moderate psoriasis patients in real world practices (prospect study) | Psoriasis | Maui Derm NP+PA Summer, 2023 | ||
| Lennox-Gastaut Syndrome characteristics: interim results from a European real-world point-in-time study | Lennox-Gastaut syndrome | EPNS, 2023 | ||
| Key treatment attributes for moderate-to-severe atopic dermatitis: preference results for patients and APPs from a US real-world, cross-sectional study | Atopic dermatitis | Maui Derm NP+PA Summer, 2023 | ||
| Impact of fragility fractures on activities of daily living and productivity of community-dwelling women: a multi‑national study | Osteoporosis | https://pubmed.ncbi.nlm.nih.gov/37335332/ | ||
| Impact of draining tunnels on patient- and physician-reported burden in patients with hidradenitis suppurativa | Hidradenitis suppurativa | Maui Derm NP+PA Summer, 2023 | ||
| Immunoglobulin A nephropathy: patient-reported symptoms prior to first consultation and diagnosis - results from a real-world survey | Immunoglobulin A nephropathy | ERA, 2023 | ||
| IgA nephropathy: a real-world comparison between disease severity, symptom burden, and treatment satisfaction reported by patients and nephrologists | Immunoglobulin A nephropathy | ERA, 2023 | ||
| Gaps in the assessment and monitoring of cardiovascular risk and psychological burden in polycythemia vera: landmark 2.0, a worldwide health survey | Polycythemia vera | EHA, 2023 | ||
| Drivers of physician decision-making and patient perspectives across lines of therapy in multiple myeloma in the US | Multiple myeloma | https://pubmed.ncbi.nlm.nih.gov/37283044/ | ||
| Clinical outcomes and quality of life in patients with HAE receiving lanadelumab long-term prophylaxis: interim analysis of 3-year real-world data | Hereditary angioedema | EAACI, 2023 | ||
| Clinical effectiveness, treatment use, satisfaction and impact on quality-of-life of pegcetacoplan treatment for patients with paroxysmal nocturnal haemoglobinuria (PNH) | Paroxysmal nocturnal hemoglobinuria | EHA, 2023 | ||
| Clinical characteristics of patients with lupus nephritis class III-V: analysis of international real-world data | Lupus nephritis | ERA, 2023 | ||
| Clinical characteristics and disease outcomes in previously treated patients with haemophilia: results from a real-world study in Europe and United States | Hemophilia | ISTH, 2023 | ||
| Clinical burden of hidradenitis suppurativa with draining tunnels | Hidradenitis suppurativa | Maui Derm NP+PA Summer, 2023 | ||
| C3 glomerulopathy current therapy and real-world management - interim results from a multi-country study | C3 glomerulopathy | ERA, 2023 | ||
| Assessment of joint health in patients receiving prophylaxis for haemophilia A in five European countries: a cross sectional survey | Hemophilia | EHA, 2023 | ||
| Unmet needs in uncomplicated urinary tract infection in the United States and Germany: a physician survey | Urinary tract infection | https://pubmed.ncbi.nlm.nih.gov/37138215/ | ||
| Understanding the impact of HAE attacks on patient reported quality-of-life - analysis of real-world patient data | Hereditary angioedema | C1-INH, 2023 | ||
| Treatment satisfaction among ulcerative colitis patients with and without bowel urgency – a global real-world analysis | Inflammatory Bowel Disease | DDW, 2023 | ||
| Treatment patterns and comorbidities in patients with HR+/HER2-mBC: a real-world study in five European countries | Breast cancer | ESMO BC, 2023 | ||
| Recognition gap between patient and physician on disease severity and treatment satisfaction level for alopecia areata | Alopecia areata | ISID, 2023 | ||
| Real-world weight loss patterns and challenges among people living with obesity in Canada | Obesity | COS, 2023 | ||
| Predictors of earlier PAH combination therapy: findings from a real-world survey in the US, Europe and Japan | Pulmonary arterial hypertension | ATS, 2023 | ||
| Physician management of celiac disease: a comparison of disease knowledge, diagnosis, and patient management between gastroenterologists and primary care physicians in Germany, Italy, Spain, and the United States - findings from a real world survey | Celiac disease | DDW, 2023 | ||
| Patient-gastroenterologist disconnect on remission status and symptom burden in ulcerative colitis patients in the United States, France, Germany, Italy, and Spain | Inflammatory Bowel Disease | DDW, 2023 | ||
| Menopause management: real-world analysis of treatment patterns by vasomotor symptom severity and concomitant symptoms from the US and Europe | Vasomotor symptoms | EMAS, 2023 | ||
| Menopausal symptom burden and quality of life in women with breast cancer on endocrine adjuvant therapy: findings from the REALISE study | Vasomotor symptoms | EMAS, 2023 | ||
| Healthcare resource utilisation and costs associated with acute COVID in pediatric patients managed in the community or hospital setting in England: a population-based study | Covid-19 | ESPID, 2023 | ||
| Disease burden and unmet need in patients with systemic lupus erythematosus treated with advanced therapy: results from a real-world survey in Europe and the United States | Systemic lupus erythematosus | EULAR, 2023 | ||
| Diagnosing celiac disease in the United States of America, Germany, Italy and Spain: findings from a real-world survey | Celiac disease | DDW, 2023 | ||
| Describing renal function test use in real-world diagnosis and monitoring of lupus nephritis patients in Europe | Lupus nephritis | EULAR, 2023 | ||
| Burden of flares in patients with ulcerative colitis in the United States – a real-world study | Inflammatory Bowel Disease | DDW, 2023 | ||
| Antibiotic use and economic burden of varicella infection among pediatric patients: a retrospective cohort analysis of real-world data in France | Varicella | ESPID, 2023 | ||
| Treatment patterns in congenital heart disease associated pulmonary arterial hypertension: results from a real-world PAH-CHD study in the United States. | Pulmonary arterial hypertension | ISHLT, 2023 | ||
| The impact of generalized myasthenia gravis severity on work and daily activities: a real world study | Myasthenia gravis | AAN, 2023 | ||
| Opioids for osteoarthritis: cross-sectional survey of patient perspectives and satisfaction | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/37048816/ | ||
| Immunoglobulin A nephropathy patient reported health utility and quality of life: evidence from US real-world data | Immunoglobulin A nephropathy | NKF SCM, 2023 | ||
| Evaluation of prompt initiation of triple inhaler therapy on exacerbations and healthcare resource use among patients with COPD in Japan | Chronic obstructive pulmonary disease | JRS, 2023 | ||
| Comparative effectiveness of umeclidinium/vilanterol versus inhaled corticosteroid/long-acting β2-agonist in patients with chronic obstructive pulmonary disease in a primary care setting in England | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/37155496/ | ||
| United States and European patient perspectives on the impact of moderate-to-severe ulcerative colitis on sexual activity: Communicating Needs and Features of IBD Experiences (CONFIDE) survey | Inflammatory Bowel Disease | ECCO, 2023 | ||
| Treatment patterns of patients with alopecia areata based on physician assessed severity: results from a real-world survey in 5 European countries | Alopecia areata | EDS, 2023 | ||
| Treatment patterns and outcomes in patients with immunoglobulin A nephropathy: results from a United States data analysis of a real-world study | Immunoglobulin A nephropathy | AMCP, 2023 | ||
| Time from amyotrophic lateral sclerosis onset to key disease milestones: analysis of patient data from a real-world cross-sectional survey | Amyotrophic lateral sclerosis | MDA, 2023 | ||
| The patient-reported impact of itch and sleep interference on pediatric and adolescent patients with moderate and severe atopic dermatitis: a real-world study in the United States and Europe | Atopic dermatitis | AAD, 2023 | ||
| The impact of remission on healthcare resource utilisation and costs amongst patients with inflammatory bowel disease in France, Germany, Italy, Spain, and the United Kingdom | Inflammatory Bowel Disease | ECCO, 2023 | ||
| Symptom burden of patients with IgA nephropathy in a real-world setting across geographies | Immunoglobulin A nephropathy | WCNeph, 2023 | ||
| Racial health disparities in Black people with Alzheimer’s disease: evidence of diagnosis at a later stage | Dementia | AMCP, 2023 | ||
| Quantifying the burden of persistent musculoskeletal pain in employees at Rolls-Royce in the United Kingdom: a real-world cross-sectional survey | Musculoskeletal pain | https://pubmed.ncbi.nlm.nih.gov/36977358/ | ||
| Prognosis, dialysis and transplantation in patients with immunoglobulin A nephropathy: evidence from real-world data | Immunoglobulin A nephropathy | WCNeph, 2023 | ||
| Persistence of signs and symptoms in treated patients with IgAN: evidence from real-world data | Immunoglobulin A nephropathy | WCNeph, 2023 | ||
| Patient burden of nonsegmental vitiligo: perspectives from US patients | Vitiligo | GVF, 2023 | ||
| Investigating the symptom burden among European patients with moderate-to-severe Crohn’s disease using a real-world survey | Inflammatory Bowel Disease | ECCO, 2023 | ||
| Impact of immunoglobulin A nephropathy on work, productivity, and activity impairment in the United States: results from a real-world study | Immunoglobulin A nephropathy | AMCP, 2023 | ||
| Impact of immunoglobulin A nephropathy on healthcare resource utilization in the United States: results from a real-world study | Immunoglobulin A nephropathy | AMCP, 2023 | ||
| Disease severity and symptom control in patients with IgA nephropathy: results from a United States analysis of a real-world study | Immunoglobulin A nephropathy | AMCP, 2023 | ||
| Development of a cross-walk of the chronic liver disease questionnaire for nonalcoholic steatohepatitis (CLDQ-NASH) and EuroQol Five Dimension (EQ-5D-5L) scores using data from patients with nonalcoholic steatohepatitis | Non‐alcoholic steatohepatitis | AMCP, 2023 | ||
| Current treatment patterns for pulmonary arterial hypertension in the United States | Pulmonary arterial hypertension | AMCP, 2023 | ||
| Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience? | Mesothelioma | https://pubmed.ncbi.nlm.nih.gov/37097405/ | ||
| Association of uncontrolled disease with quality of life and healthcare resource utilisation in ulcerative colitis patients treated with advanced therapy in the United States | Inflammatory Bowel Disease | ECCO, 2023 | ||
| Treatment patterns, healthcare utilization and clinical outcomes of patients with chronic obstructive pulmonary disease initiating single-inhaler long-acting β2-agonist/long-acting muscarinic antagonist dual therapy in primary care in England | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/36908830/ | ||
| Treatment management of type two diabetes mellitus patients in routine clinical practice in the United Arab Emirates: a real world study | Diabetes | EDEC, 2023 | ||
| The burden of Fabry disease in the United States: Results from the Adelphi Fabry disease specific programme | Fabry disease | WORLDSymposium, 2023 | ||
| Real-world treatment trends among patients with metastatic castration-sensitive prostate cancer: results from an international study | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/37014080/ | ||
| Real-world treatment patterns and outcomes among patients with episodic migraine in China: results from the Adelphi Migraine Disease Specific Programme™ | Migraine | https://pubmed.ncbi.nlm.nih.gov/36762367/ | ||
| Real-world homologous recombination repair mutation testing patterns in patients with metastatic castration-sensitive prostate cancer in the US | Prostate cancer | ASCO GU, 2023 | ||
| Real-world analysis of clinical characteristics, treatment patterns and patient-reported outcomes of insufficient responders and responders to prescribed acute migraine treatment in China | Migraine | https://pubmed.ncbi.nlm.nih.gov/36944864/ | ||
| Prevalence and severity distribution of type 2 inflammation-related comorbidities among patients with asthma, chronic rhinosinusitis with nasal polyps, and atopic dermatitis | Various | https://pubmed.ncbi.nlm.nih.gov/36808551/ | ||
| Medication beliefs, adherence, and outcomes in people with asthma: the importance of treatment beliefs in understanding inhaled corticosteroid nonadherence—a retrospective analysis of a real-world data set | Asthma | https://www.sciencedirect.com/science/article/pii/S2772829322000868 | ||
| Frequency of HAE attacks, clinical outcomes, and quality of life for patients prescribed lanadelumab and other prophylaxis: analysis of real-world patient data | Hereditary angioedema | WSAAI, 2023 | ||
| Disease burden and physician-reported outcomes in pediatric patients with hereditary angioedema: data From a real-world study | Hereditary angioedema | AAAAI, 2023 | ||
| Disease and treatment burden of Hereditary Angioedema (HAE) in pediatric patients: assessment by caregivers | Hereditary angioedema | AAAAI, 2023 | ||
| Demographics and clinical characteristics of patients with type two diabetes mellitus in the United Arab Emirates: a real-world study | Diabetes | EDEC, 2023 | ||
| Comparison of hereditary angioedema among patients of different races and ethnicities in the United States: data from a real-world study | Hereditary angioedema | AAAAI, 2023 | ||
| Clinical unmet needs and treatment patterns of paediatric psoriasis patients: a real world evidence study in Spain | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/36907550/ | ||
| Clinical outcomes and physician-patient alignment in patients with psoriatic arthritis receiving ixekizumab | Psoriatic arthritis | CRA, 2023 | ||
| Clinical burden of hidradenitis suppurativa (HS) with draining tunnels | Hidradenitis suppurativa | EHSF, 2023 | ||
| Alignment of physician-stated vs clinically derived reference fibrosis score in patients with non-alcoholic steatohepatitis: a real-world European survey | Non‐alcoholic steatohepatitis | https://pubmed.ncbi.nlm.nih.gov/36873793/ | ||
| Usage of epidermal growth factor mutation testing and impact on treatment patterns in non-small cell lung cancer: an international observational study | Non-small cell lung cancer | https://pubmed.ncbi.nlm.nih.gov/36455396/ | ||
| Tyrosine kinaseiInhibitor (TKI) real-world use in epidermal growth factor receptor mutated (EGFRm) advanced non-small cell lung cancer (NSCLC) patients | Non-small cell lung cancer | LALCA, 2023 | ||
| Therapeutic inertia related to the injectable glucagon-like peptide-1 receptor agonists dulaglutide and semaglutide in patients with type 2 diabetes in UK primary care | Diabetes | https://pubmed.ncbi.nlm.nih.gov/36692268/ | ||
| Outcomes following adalimumab bio-originator to biosimilar switch—a comparison using real-world patient- and physician-reported data in european countries | Rheumatoid arthritis | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9834672/ | ||
| Opioid prescribing for osteoarthritis: cross-sectional survey among primary care physicians, rheumatologists, and orthopaedic surgeons | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/36675516/ | ||
| Impact of key manifestations of psoriatic arthritis on patient quality of life, functional status, and work productivity: findings from a real-world study in the United States and Europe | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/36706947/ | ||
| Impact of advanced Parkinson’s Disease on caregivers: an international real-world study | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/36633671/ | ||
| Global retrospective analysis of clinician- and patient-reported clinical characteristics and humanistic burden of patients with gastroesophageal cancers on first-line treatment | Gastric cancer | https://pubmed.ncbi.nlm.nih.gov/36823552/ | ||
| Characteristics, clinical outcomes and patient-reported outcomes of patients with ulcerative colitis receiving tofacitinib: a real-world survey in the United States and five European countries | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/36658481/ | ||
| A real-world retrospective observational study exploring resource use for secondary care management of moderate-to-severe atopic dermatitis in children and adolescents at a single site in Ireland | Atopic dermatitis | JEACP, 2023 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) Survey: Patient and Health Care Professional Perspectives on Experience of Ulcerative Colitis Symptoms | Inflammatory Bowel Disease | AIBD, 2022 | ||
| Management of myelofibrosis with ruxolitinib in Australia | Myelofibrosis | Intern Med J, 2022 | ||
| Treatment patterns in metastatic urothelial cancer (mUC): a real-world survey in France, Germany, Italy, Spain, and the UK (Eu5) | Urothelial carcinoma | ISPOR US, 2022 | ||
| Treat-to-target in rheumatoid arthritis: a real-world study of the application and impact of treat-to-target within the wider context of patient management, patient centricity, and advanced therapy use in Europe | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/36549856/ | ||
| Systemic lupus erythematosus symptom clusters and their association with patient‐reported outcomes and treatment: analysis of real‐world data | Systemic lupus erythematosus | https://pubmed.ncbi.nlm.nih.gov/33345456/ | ||
| Real-world patient-reported outcomes and physician satisfaction with poly(ADP-ribose) polymerase inhibitors versus chemotherapy in patients with germline BRCA1/2-mutated human epidermal growth factor receptor 2–negative advanced breast cancer From the United States, Europe, and Israel | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/36550413/ | ||
| Physician and patient perceptions of surgical procedures for osteoarthritis of the knee in the United States, Europe, and Japan: results of a real-world study | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/36471384/ | ||
| Impact of patient and physician disconnect on satisfaction with treatment for atopic dermatitis in Japan | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/36515820/ | ||
| Impact of COVID-19 pandemic on the management of patients with rheumatoid arthritis: a survey of rheumatologists in six European countries | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/36601518/ | ||
| Gaps in the assessment and monitoring of cardiovascular risk and psychological burden in polycythemia vera: landmark 2.0, a worldwide health survey | Polycythemia vera | ASH, 2022 | ||
| First-line (1L) treatment (tx) patterns and criteria used to determine platinum eligibility (PE) in platinum-eligible and -ineligible (PI) patients (pts) with metastatic urothelial cancer (mUC) in South Korea (KR) and Taiwan (TW) | Urothelial carcinoma | ESMO Asia, 2022 | ||
| VOCAL (Views of Ovarian Cancer patients and their caregivers-how maintenance therapy Affects their Lives) study: cancer-related burden and quality of life of caregivers | Ovarian cancer | ISPOR EU, 2022 | ||
| Understanding flares in pediatric and adolescent patients with moderate or severe atopic dermatitis: a real-world Study in the United States and Europe | Atopic dermatitis | PEDRA, 2022 | ||
| Treatment-related and non-treatment-related out-of-pocket costs by amyotrophic lateral sclerosis disease stage: a cross-sectional patient survey and retrospective chart review | Amyotrophic lateral sclerosis | ISPOR EU, 2022 | ||
| Treatment and patient-reported outcomes among people with ALS in the US: results from a real- world study | Amyotrophic lateral sclerosis | NEALS, 2022 | ||
| The real-world diagnostic pathway in patients with IgAN | Immunoglobulin A nephropathy | ASN, 2022 | ||
| The disease burden of invasive candidiasis in Germany: a non-interventional, retrospective cohort analysis of real-world data | Invasive candidiasis | ISPOR EU, 2022 | ||
| Resource utilisation in non-small cell lung cancer with brain/CNS metastases in Europe, Asia, US and Brazil | Non-small cell lung cancer | ISPOR EU, 2022 | ||
| Reduced health care resource utilisation and costs following a switch from multiple-inhaler to once-daily single-inhaler triple therapy in COPD patients in a real-world primary care setting in England | Chronic obstructive pulmonary disease | ISPOR EU, 2022 | ||
| Reasons for choice and areas for improvement in advanced therapies (biologics and JAKis) for patients with ulcerative colitis in the United Kingdom | Inflammatory Bowel Disease | ISPOR EU, 2022 | ||
| Real-world utilization of adalimumab biosimilar (ABP 501) in patients with rheumatoid arthritis, ankylosing spondylitis and psoriatic arthritis in Europe | Rheumatoid arthritis | ACR, 2022 | ||
| Real-world treatment patterns and clinical outcomes associated with palbociclib combination therapy: a multinational, pooled analysis from the Ibrance real world insights study | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/36456385/ | ||
| Real-world treatment pathways of patients with diffuse large B-cell lymphoma receiving second line treatment or later in the UK, Canada, France, Germany, Italy and Spain: A prospective survey of physicians | Diffuse large B-cell lymphoma | ISPOR EU, 2022 | ||
| Real-world outcomes among episodic migraine patients with migraine preventive medications in China: results from the Chinese Adelphi Disease Specific Programme | Migraine | ISPOR EU, 2022 | ||
| Quantifying the impact of persistent musculoskeletal pain on employees at rolls-royce: a cross-sectional survey | Musculoskeletal pain | ISPOR EU, 2022 | ||
| Physician and patient reported outcomes by hereditary angioedema type: data from a real-world study | Hereditary angioedema | ACAAI, 2022 | ||
| Physician and patient reported outcomes by hereditary angioedema type: data from a real-world study | Hereditary angioedema | ACAAI, 2022 | ||
| Persistence of signs and symptoms in treated patients with IgAN: evidence from real-world data | Immunoglobulin A nephropathy | ASN, 2022 | ||
| Patient-reported symptoms of eosinophilic esophagitis in the United States: evidence from real-world clinical practice | Eosinophilic oesophagitis | ACAAI, 2022 | ||
| Patient-reported outcomes across disease stages among people with amyotrophic lateral sclerosis: results from a real-world survey | Amyotrophic lateral sclerosis | NEALS, 2022 | ||
| Misdiagnoses and the impact on disease severity in immunoglobulin A nephropathy patients: a real world study | Immunoglobulin A nephropathy | ASN, 2022 | ||
| Measuring the burden of alopecia areata with the European Quality of Life-5 Dimensions (EQ-5D): Results from a real-world survey in 5 European countries | Alopecia areata | ISPOR EU, 2022 | ||
| Impact of the COVID-19 pandemic on health care resource utilisation and costs in COPD in England: a population-based study | Chronic obstructive pulmonary disease | ISPOR EU, 2022 | ||
| Impact of the COVID-19 pandemic on health care resource utilisation and costs in asthma in England: a population-based study | Asthma | ISPOR EU, 2022 | ||
| Impact of physician-defined flares on quality of life and work impairment: an international survey of 2238 patients with psoriatic arthritis | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/35970528/ | ||
| Health-related quality of life among men receiving treatment for metastatic castration-resistant prostate cancer: results from an international real-world study | Prostate cancer | EMUC, 2022 | ||
| Health-related quality of life (HRQOL) by line of treatment, treatment history, and disease status in patients with metastatic urothelial carcinoma (MUC) in EU-4 and the United Kingdom: Results from a disease specific programme | Urothelial carcinoma | ISPOR EU, 2022 | ||
| Functional class and health-related quality of life in patients with pulmonary arterial hypertension associated with congenital heart disease: findings from a real-world study in the US | Pulmonary arterial hypertension | ISPOR EU, 2022 | ||
| Equity and outcome events in patients with hidradenitis suppurativa: exploring effect modifiers associated with HS diagnostic delay | Hidradenitis suppurativa | ISPOR EU, 2022 | ||
| Diagnostic testing for non-alcoholic steatohepatitis (NASH) across specialty, comorbidity, and fibrosis stage: a real world assessment in the United States | Non‐alcoholic steatohepatitis | AASLD, 2022 | ||
| Delayed diagnosis amongst gMG patients: results from a European real-world study | Myasthenia gravis | ISPOR EU, 2022 | ||
| COVID-19 incidence and hospitalisation in routine clinical practice among asthma patients in England in 2020 | Asthma | BTS, 2022 | ||
| COPD exacerbations in routine clinical practice during COVID-19 in England in 2020 | Chronic obstructive pulmonary disease | BTS, 2022 | ||
| Clinical differences and patient reported outcomes between Insufficient responders and responders to prescribed acute migraine treatment: results from a real-world patient survey in China | Migraine | ISPOR EU, 2022 | ||
| Clinical and economic benefits of prompt initiation of single-inhaler triple therapy in COPD patients in England following an exacerbation | Chronic obstructive pulmonary disease | ISPOR EU, 2022 | ||
| Characterization of patients with eosinophilic esophagitis managed by gastroenterologists and allergists: real-world clinical practice evidence | Eosinophilic oesophagitis | ACAAI, 2022 | ||
| Characteristics and outcomes of patients with rheumatoid arthritis treated with upadacitinib in a global real-world setting | Rheumatoid arthritis | ACR, 2022 | ||
| Changing priorities among physician reported reasons for choice of pharmacological gMG treatments across 5 European countries | Myasthenia gravis | ISPOR EU, 2022 | ||
| Burden of fatigue among patients with ulcerative colitis and Crohn’s disease: results from a global survey of patients and gastroenterologists | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/36370288/ | ||
| BRCA1/2 mutation testing in patients with HER2-negative advanced breast cancer: real-world data from the United States, Europe, and Israel | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/36358816/ | ||
| Asthma exacerbations in routine clinical practice during COVID-19 in England in 2020 | Asthma | BTS, 2022 | ||
| Assessing treatment needs and outcomes in patients with Parkinson’s disease: results from a real-world study | Parkinson’s disease | ISPOR EU, 2022 | ||
| Application processes for international classification of disease (ICD)-11 update and revision proposals | Various | ISPOR EU, 2022 | ||
| The impact of bowel urgency on the lives of patients with ulcerative colitis in the US and Europe: Communicating Needs and Features of IBD Experiences (CONFIDE) survey | Ulcerative colitis | UEGW, 2022 | ||
| Bowel urgency communication gap between healthcare professionals and patients with ulcerative colitis in the US and Europe: Communicating Needs and Features of IBD Experiences (CONFIDE) survey | Ulcerative colitis | UEGW, 2022 | ||
| World health organization functional class and health-related quality of life In patients with pulmonary arterial hypertension: real-world findings In Latin America | Pulmonary arterial hypertension | CHEST, 2022 | ||
| VOCAL (Views of Ovarian Cancer Patients - how maintenance therapy affects their lives) study: patient preference for treatment formulation and administration | Ovarian cancer | ESGO, 2022 | ||
| VOCAL (Views of Ovarian Cancer Patients - how maintenance therapy affects their lives) study: patient preference for treatment formulation and administration | Ovarian cancer | AMCP Nexus, 2022 | ||
| Understanding the burden of disease in pediatric/adolescent patients with moderate or severe atopic dermatitis: a real-world study in the US, UK, and Europe | Atopic dermatitis | FCDC, 2022 | ||
| Understanding flaring in pediatric and adolescent patients with moderate or severe atopic dermatitis: a real-world study in the United States and Europe | Atopic dermatitis | FCDC, 2022 | ||
| The utilization of clinical assessment tests in pulmonary arterial hypertension: findings from a real world survey in Latin America | Pulmonary arterial hypertension | PVRI PH LA, 2022 | ||
| Reasons for choice of advanced therapies (biologics and JAKis) for the treatment of ulcerative colitis in Europe | Inflammatory Bowel Disease | UEGW, 2022 | ||
| Real-world treatment wxperience of treatment-naïve people living with HIV who initiated treatment with single-tablet dolutegravir/lamivudine in a test and treat setting in the United States | HIV | IDWeek, 2022 | ||
| Real-world treatment patterns and clinical outcomes in radioiodine-refractory differentiated thyroid cancer (RAI-R DTC) patients treated with lenvatinib monotherapy | Thyroid cancer | ATA, 2022 | ||
| Real-world treatment experience of single-tablet dolutegravir/rilpivirine in the United States: results from the TANDEM Study | HIV | AMCP Nexus, 2022 | ||
| Real-world treatment experience of single-tablet dolutegravir/lamivudine in those naïve to treatment with baseline viral loads ≥100,000 copies/mL the United States. | HIV | IDWeek, 2022 | ||
| Real-world study of patients with germline BRCA1/2-mutated human epidermal growth factor receptor 2‒Negative advanced breast cancer: patient demographics, treatment patterns, adverse events, and physician-reported satisfaction in the United States, Europe, and Israel | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/36368161/ | ||
| Real-world study of HR+/HER2− early breast cancer in Japan: patient characteristics, biomarker testing, and treatment patterns by recurrence risk | Breast cancer | JSCO, 2022 | ||
| Real-world evidence characterizing the burden of disease in alpha- and beta-thalassemia patients in the USA: an interim analysis | Thalassemia | ASCAT, 2022 | ||
| Real-world evaluation of physician-reported symptoms and burden of vasomotor symptoms associated with menopause in the United States and Europe | Vasomotor symptoms | IMS, 2022 | ||
| Real-world effectiveness of Ixekizumab in psoriatic arthritis patients: a real-world survey in the United States | Psoriatic arthritis | CCR-west, 2022 | ||
| Real-world effectiveness of Ixekizumab in axial spondyloarthritis patients: a global survey | Axial spondyloarthritis | CCR-West, 2022 | ||
| Real world utilisation of doravirine among people living with HIV in England (DRIVE-REAL) | HIV | HIV Glasgow, 2022 | ||
| Physician-documented symptoms and treatment among patients with eosinophilic oesophagitis in five European Countries: evidence from real-world clinical practice | Eosinophilic oesophagitis | UEGW, 2022 | ||
| Physician-documented symptoms and treatment among patients with eosinophilic esophagitis in the United States: evidence from real-world clinical practice | Eosinophilic oesophagitis | ACG, 2022 | ||
| Physician-documented symptoms and treatment among patients with eosinophilic esophagitis in five European countries: evidence from real-world clinical practice | Eosinophilic oesophagitis | UEGW, 2022 | ||
| Physician reported disease severity and diagnostic delays in patients with rare neurological diseases: differences by sex from a real-world survey across Europe and the United States of America | Various | NORD, 2022 | ||
| Patient-reported symptoms of eosinophilic oesophagitis in five European countries: evidence from real-world clinical practice | Eosinophilic oesophagitis | UEGW, 2022 | ||
| Patient-reported symptoms of eosinophilic esophagitis in five European countries: evidence from real-world clinical practice | Eosinophilic oesophagitis | UEGW, 2022 | ||
| Patient-reported symptom burden and treatment satisfaction in patients with metastatic urothelial cancer (mUC) in France, Germany, Italy, Spain, and the UK (Eu5) | Urothelial carcinoma | BLADDR, 2022 | ||
| Patient and physician alignment on symptoms of menopause: findings from the real-world REALISE study in the United States and Europe | Vasomotor symptoms | IMS, 2022 | ||
| Impact of treatment switch on clinical outcomes in Crohn’s disease patients in the United States and 5 European countries (France, Germany, Italy, Spain, UK) | Inflammatory Bowel Disease | UEGW, 2022 | ||
| Impact of suboptimal response on clinical and humanistic burden in Crohn’s disease | Inflammatory Bowel Disease | UEGW, 2022 | ||
| How often do clinical and non-clinical factors impact physician-reported prescribing for neovascular AMD in real-world clinical practice | Age-related diseases | AMCP Nexus, 2022 | ||
| Frequency of HAE attacks, clinical outcomes, and quality of life for patients prescribed lanadelumab and other prophylaxis: analysis of a real-world patient data | Hereditary angioedema | AMCP Nexus, 2022 | ||
| Disease burden and diagnosis pathways among patients with EoE in the United States: evidence from real-world clinical practice | Eosinophilic oesophagitis | ACG, 2022 | ||
| Disagreement between the perception of physicians and patients about the presence and severity of symptoms of Pulmonary Arterial Hypertension | Pulmonary arterial hypertension | SBPT, 2022 | ||
| Describing the burden of moderate exacerbations in patients with asthma participating in the Extended Salford Lung Study (Ex-SLS) | Asthma | CHEST, 2022 | ||
| Describing asthma control and adherence in patients with Extended Salford Lung Study (Ex-SLS) prescribed inhaled corticosteroids/long-acting beta agonists (ICS/LABAs) | Asthma | CHEST, 2022 | ||
| Burden of bowel urgency across specific treatment groups among Crohn's disease patients – real world global study analyses | Inflammatory Bowel Disease | UEGW, 2022 | ||
| Assessment of patient-reported pain relief in treated endometriosis patients: findings from a real-world study in the United States | Endometriosis | ASRM , 2022 | ||
| Assessing the economic burden of intermediate Parkinson’s disease: results from a real-world study | Parkinson’s disease | AMCP Nexus, 2022 | ||
| Age-related differences in quality of life outcomes of people living with HIV | HIV | HIV Glasgow, 2022 | ||
| VOCAL (views of ovarian cancer patients-how maintenance therapy affects their lives) study: a lens into the financial and quality of life (QoL) impact of disease burden and ethnic disparities reported directly by the patient | Ovarian cancer | ASCO QCS, 2022 | ||
| VOCAL (Views of ovarian cancer patients - how maintenance therapy affects their lives) study: patient preference for treatment formulation and administration | Ovarian cancer | IGCS, 2022 | ||
| Unmet needs among hidradenitis suppurativa patients receiving biologic therapy in the United States of America and Europe by response status: analysis of a real-world dataset | Hidradenitis suppurativa | EADV, 2022 | ||
| Unmet needs among atopic dermatitis patients receiving biologic therapy in the United States and Europe by response status: analysis of a real-world dataset | Atopic dermatitis | EADV, 2022 | ||
| Treatment patterns, outcomes, and physician decision-making in multiple myeloma: a real-world European study | Multiple myeloma | ESMO, 2022 | ||
| Treatment patterns of patients with alopecia areata based on physician assessed severity: results from a real-world survey in 5 European countries | Alopecia areata | EADV, 2022 | ||
| The impact of osteoporotic fractures on activities of daily living and the indirect economic measures in five countries | Osteoporosis | ASBMR, 2022 | ||
| Symptom burden and health-related quality of life in moderate to severe chronic rhinosinusitis with nasal polyposis | Chronic rhinosinusitis with nasal polyposis | https://www.rhinologyonline.org/Rhinology_online_issues/manuscript_2487.pdf | ||
| Rescue medication use in patients with chronic obstructive pulmonary disease receiving umeclidinium/vilanterol versus tiotropium bromide/olodaterolin England | Chronic obstructive pulmonary disease | ERS, 2022 | ||
| Reduced exacerbations following switch from multiple inhaler to once daily single inhaler triple therapy in COPD patients in a real world primary care setting in England | Chronic obstructive pulmonary disease | ERS, 2022 | ||
| Real-world treatment patterns and clinical outcomes for patients with non-segmental vitiligo in the United States and Europe | Vitiligo | EADV, 2022 | ||
| Quality of life in non-small cell lung cancer patients with brain/CNS metastases– real-world evidence | Non-small cell lung cancer | NACLC, 2022 | ||
| Qualitative interviews to support development and cognitive debriefing of the Adelphi Adherence Questionnaire (ADAQ©): a patient-reported measure of medication adherence developed for use in a range of diseases, treatment modalities, and countries | Various | https://pubmed.ncbi.nlm.nih.gov/36133076/ | ||
| Physician behaviour and perceptions of genetic biomarker test use for the management of newly diagnosed advanced ovarian cancer patients | Ovarian cancer | ESMO, 2022 | ||
| Physician- and patient-reported symptom concordance and association with quality of life in hepatocellular carcinoma | Hepatocellular carcinoma | https://pubmed.ncbi.nlm.nih.gov/36377818/ | ||
| Patient-reported burden of alopecia areata: results from a real-world survey in 5 European countries | Alopecia areata | BHM, 2022 | ||
| Patient characteristics, disease profile and treatment patterns in mild and moderate PsO patients in European real world practices | Psoriasis | ESDR, 2022 | ||
| Patient characteristics, disease profile and treatment patterns in mild and moderate PsO Patients in Europe and US Real World Practices (PROSPECT Study) | Psoriasis | EADV, 2022 | ||
| Patient characteristics and treatment patterns of newly diagnosed locally advanced head and neck squamous cell carcinoma (LA HNSCC): a retrospective cohort analysis of real-world data in England | Squamous cell carcinoma of the head and neck | ESMO, 2022 | ||
| Misalignment between nurse practitioners and physician assistants and their adult atopic dermatitis patients on severity, disease progression and satisfaction: results of a real-world study in the United States | Atopic dermatitis | Maui Derm NP+PA Fall, 2022 | ||
| Implementation of the treat-to-target approach and treatment satisfaction in patients with rheumatoid arthritis: perspectives of Chinese rheumatologists | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/35579773/ | ||
| Impact of scalp hair loss on treatment patterns and physician satisfaction with disease control for alopecia areata patients in Europe | Alopecia areata | EADV, 2022 | ||
| ICS-LABA prescribing in asthma (maintenance only and MART), clinical and symptom unmet need in Japan | Asthma | ERS, 2022 | ||
| Frequency and impact of retreatment in relapsed refractory multiple myeloma: real-world survey conducted in 5 European countries (France, Germany, Italy, Spain, and the United Kingdom) | Multiple myeloma | ESMO, 2022 | ||
| Exploring triptan use & treatment sequencing for the management of migraine in adults in the UK: a feasibility study using the Clinical Practice Research Datalink (CPRD) | Migraine | MTIS, 2022 | ||
| Evaluating real-world caregiver involvement from a survey of patients (pts) with metastatic urothelial cancer (mUC) receiving systemic anticancer treatment in France, Germany, Italy, Spain, and the UK (Eu5) | Urothelial carcinoma | ESMO, 2022 | ||
| Disease burden and treatment patterns among patients with asthma on GINA 4/5 therapies in China | Asthma | ERS, 2022 | ||
| Disease burden and treatment patterns among patients with asthma in China | Asthma | ERS, 2022 | ||
| COVID 19 incidence and hospitalisation in routine clinical practice among COPD patients in England in 2020 | Chronic obstructive pulmonary disease | ERS, 2022 | ||
| Comparative effectiveness of umeclidinium/vilanterol versus indacaterol/glycopyrronium on acute exacerbations in patients with chronic obstructive pulmonary disease in England | Chronic obstructive pulmonary disease | ERS, 2022 | ||
| Comparative adherence and persistence of single and multiple inhaler triple therapies among patients with chronic obstructive pulmonary disease in an English real-world primary care setting | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/36185170/ | ||
| Combination therapy prescribing in pulmonary arterial hypertension patients in a real-world setting in Latin America | Pulmonary arterial hypertension | ERS, 2022 | ||
| Biomarker testing and associated treatment patterns in advanced non-small cell lung cancer in the US | Non-small cell lung cancer | NACLC, 2022 | ||
| Benefit of prompt initiation of single-inhaler triple therapy in COPD patients in England following an exacerbation | Chronic obstructive pulmonary disease | ERS, 2022 | ||
| Association between Hurley state and patient-reported outcomes in patients with hidradenitis suppurativa in the United States of America and Europe: analysis of a real-world dataset | Hidradenitis suppurativa | EADV, 2022 | ||
| Association between EASI score and patient-reported outcomes in patients with atopic dermatitis in the United States and Europe: analysis of a real-world dataset | Atopic dermatitis | EADV, 2022 | ||
| Adherence to umeclidinium/vilanterol versus inhaled corticosteroids/long-acting β2-agonist in patients with chronic obstructive pulmonary disease in England | Chronic obstructive pulmonary disease | ERS, 2022 | ||
| A real-world retrospective observational study exploring NHS resource use in England for the management of moderate-to-severe atopic dermatitis in secondary care for children and adolescents | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/36127813/ | ||
| Work Productivity, Activity Impairment (WPAI) and quality of life in patients treated for asthma in China | Asthma | CTS, 2022 | ||
| Women with psoriatic arthritis experience higher disease burden than men: findings from a real-world survey in the United States and Europe | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/35970531/ | ||
| The impact of agitation in dementia on caregivers: a real-world survey | Dementia | https://pubmed.ncbi.nlm.nih.gov/35694920/ | ||
| Real-world health outcomes in US adult patients with mild to moderate plaque psoriasis taking topical therapy | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/35920355/ | ||
| Physician perceptions and prescribing practices related to treatment options for hemophilia A prophylaxis – results from the Adelphi Hemophilia A Disease Specific Programme™ | Hemophilia | NHF, 2022 | ||
| Perception of real world Lyumjev® (insulin lispro-aabc) use by patients and healthcare providers: a qualitative study | Diabetes | ADCES, 2022 | ||
| Osteoarthritis imaging patterns in US clinical practice | Osteoarthritis | ICPE, 2022 | ||
| Health-related quality of life among patients with hemophilia A receiving prophylactic therapy | Hemophilia | NHF, 2022 | ||
| Frequency of HAE attacks, clinical outcomes, and quality of life for patients prescribed lanadelumab and other prophylaxis: analysis of real-world patient data | Hereditary angioedema | IWAA , 2022 | ||
| Effectiveness of ixekizumab in patients with psoriatic arthritis: results from a real-world European survey | Psoriatic arthritis | DGRh, 2022 | ||
| Effect of fatigue on health-related quality of life and work productivity in psoriatic arthritis: findings from a real-world survey | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/35840154/ | ||
| Differences in asthma severity definitions impact disease burden and healthcare resource utilization outcomes in China | Asthma | CTS, 2022 | ||
| Development of a feasibility and conceptual design framework for comparative effectiveness research | Chronic obstructive pulmonary disease | ICPE, 2022 | ||
| Characterization of patients with chronic obstructive pulmonary disease initiating single-inhaler long-acting muscarinic antagonist/long-acting β2-agonist dual therapy in a primary care setting in England | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/35983168/ | ||
| Characterisation of patients with chronic obstructive pulmonary disease initiating single-device inhaled corticosteroids/long-acting β2-agonist dual therapy in a primary care setting in England | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/36171051/ | ||
| Work-related productivity loss and associated indirect costs in patients with crohn’s disease or ulcerative colitis in the United States | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/36777416/ | ||
| Treatment by line in patients with persistent and chronic immune thrombocytopenia: a real-world point-in-time study immune thrombocytopenia: a real-world point-in-time study | Thrombocytopenia | ISTH, 2022 | ||
| The burden of progressive supranuclear palsy on patients, caregivers, and healthcare systems by PSP phenotype: a cross-sectional study’ | Progressive supranuclear palsy | https://pubmed.ncbi.nlm.nih.gov/35865639/ | ||
| The burden of nocturnal symptoms in patients with chronic obstructive pulmonary disease: results of a real-world survey in the USA | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/35877036/ | ||
| Real-world treatment experience of single tablet dolutegravir/lamivudine in the US: results from the Tandem study | HIV | IAS, 2022 | ||
| Prescription patterns for patients with hereditary angioedema in the United States | Hereditary angioedema | EAACI, 2022 | ||
| Physician-reported perspectives on myasthenia gravis in the United States: a real-world survey | Myasthenia gravis | https://pubmed.ncbi.nlm.nih.gov/35859033/ | ||
| Impact of itch and skin pain on quality of life in adult patients with atopic dermatitis in Japan: results from a real-world, point-in-time, survey of physicians and patients | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/35787197/ | ||
| Frequency of HAE attacks, clinical outcomes, and quality of life for patients prescribed lanadelumab and other prophylaxis: analysis of real‐world patient data | Hereditary angioedema | EAACI, 2022 | ||
| Disease burden and diagnosis pathways among patients with EoE in five European countries: evidence from real-world clinical practice | Eosinophilic oesophagitis | EAACI, 2022 | ||
| Unmet medical needs and burden of disease in hidradenitis suppurativa: real clinical practice experience in Spain | Hidradenitis suppurativa | AEDV, 2022 | ||
| Treatment attributes for 3rd line follicular lymphoma treatment decision-making: physician perspectives from a survey across Western Europe and the United States | Follicular lymphoma | EHA, 2022 | ||
| Reasons for oncologist and urologist treatment choice in metastatic castration-sensitive prostate cancer (mCSPC): a physician survey linked to patient chart reviews in the United States | Prostate cancer | ASCO GU, 2022 | ||
| Real-world effectiveness of first-line maintenance olaparib in women with BRCA mutated advanced ovarian cancer – US retrospective cohort study | Ovarian cancer | ASCO, 2022 | ||
| Quality of life, work impairment, and daily activity impairment of patients with psoriasis versus psoriatic arthritis: a real-world survey in US and Europe | Psoriatic arthritis | EULAR, 2022 | ||
| Prevalence of comorbid conditions amongst myasthenia gravis patients: analysis of real world data from the Adelphi Disease Specific Programme | Myasthenia gravis | EAN, 2022 | ||
| Physicians' reasons for prescribing Janus kinase inhibitors (JAKi) in patients with rheumatoid arthritis, and associated alignment between physicians and patients in a real-world clinical setting | Rheumatoid arthritis | EULAR, 2022 | ||
| Physician perspective on alopecia areata – a real-world assessment of severity and treatment patterns in Taiwan | Alopecia areata | TAPSI, 2022 | ||
| People living with moderate-to-severe COPD prefer improvement of daily symptoms over the improvement of exacerbations: a multicountry patient preference study | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/35734770/ | ||
| Overall cancer survival inequalities in the state of Sao Paulo: a comparison between public and private systems | Various | ASCO, 2022 | ||
| Management of early-stage HR+, HER2- breast cancer in a real-word setting in Germany: a patient perspective | Breast cancer | DGS, 2022 | ||
| Management and impact of vitiligo on patient lives: survey of US dermatologists | Vitiligo | Maui Derm NP+PA Summer, 2022 | ||
| Malignant pleural mesothelioma: treatment patterns and humanistic burden of disease in Europe | Mesothelioma | https://pubmed.ncbi.nlm.nih.gov/35739480/ | ||
| Impact of generalised myasthenia gravis on activities of daily living and employment for patients and caregivers: analysis of real-world data from the Adelphi Disease Specific Programme | Myasthenia gravis | EAN, 2022 | ||
| Healthcare resource utilization and quality of life by cognitive impairment in patients with schizophrenia | Schizophrenia | https://pubmed.ncbi.nlm.nih.gov/35004189/ | ||
| Healthcare professionals opinions on treatments for sickle cell disease and the HCP–patient relationship: results from the International Sickle Cell World Assessment Survey | Sickle cell disease | EHA, 2022 | ||
| Fatigue in active and nonactive primary and secondary progressive multiple sclerosis patients in the United States | Multiple sclerosis | CMSC, 2022 | ||
| Exploratory analysis of factors driving quality of life (QoL) in people with Parkinson’s disease using Adelphi Real World’s DSP™dataset | Parkinson’s disease | EAN, 2022 | ||
| Evaluation of the impact, treatment patterns, and patient and physician perceptions of vasomotor symptoms associated with menopause in Europe and the United States | Menopause | https://pubmed.ncbi.nlm.nih.gov/35785563/ | ||
| Differences in physician and patient perspectives on patients’ burden related to hidden symptoms of multiple sclerosis | Multiple sclerosis | CMSC, 2022 | ||
| Concordance of physician and patient reported presence and severity of pulmonary arterial hypertension symptoms: findings from a real-world survey in Latin America | Pulmonary arterial hypertension | SIAC, 2022 | ||
| Clinical characteristics and burden among patients with SLE stratified by SLEDAI derived severity: results from a real-world study in the US | Systemic lupus erythematosus | EULAR, 2022 | ||
| Clinical characteristics and burden among patients with SLE and musculoskeletal organ involvement: results from a real-world study in the US | Systemic lupus erythematosus | EULAR, 2022 | ||
| Burden of moderate to severe atopic dermatitis in adults from France, Italy, and the UK: patient-reported outcomes and treatment patterns | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/35913548/ | ||
| Assessment of side effects (SEs) impacting quality of life (QoL) in patients (pts) undergoing treatment (tx) for advanced breast cancer (ABC) in clinical practice: A real-world (RW) multi-country survey | Breast cancer | ESMO BC, 2022 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: experience of bowel urgency for patients with moderately-to-severely active ulcerative colitis | Inflammatory Bowel Disease | ECCO, 2022 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: experience of bowel urgency for patients with moderately-to-severely active ulcerative colitis | Inflammatory Bowel Disease | DDW, 2022 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: impact of ulcerative colitis symptoms on healthcare professional treatment decisions | Inflammatory Bowel Disease | DDW, 2022 | ||
| Understanding patient characteristics and healthcare resource utilization in patients with HAE currently prescribed prophylactic treatment | Hereditary angioedema | ISPOR US, 2022 | ||
| The patient journey in patients With CRSwNP in the United States and Europe | Chronic rhinosinusitis with nasal polyposis | ATS, 2022 | ||
| The impact of osteoarthritis disease severity on treatment patterns and healthcare resource use: analysis of real-world data | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/35587006/ | ||
| The burden of asthma in subjects receiving low-dose ICS/LABA –an analysis from a real world survey | Asthma | ATS, 2022 | ||
| Real-world treatment patterns and clinical outcomes in patients receiving palbociclib combinations for HR+/HER2– advanced/metastatic breast cancer in Japan: Results from the IRIS study | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/35567914/ | ||
| Pulmonary arterial hypertension treatment patterns and patient health related quality of life: findings from a multinational real world database | Pulmonary arterial hypertension | ATS, 2022 | ||
| Physicians' reasons for prescribing Janus kinase inhibitors (JAKi) in patients with rheumatoid arthritis, and associated alignment between physicians and patients in a real-world clinical setting | Rheumatoid arthritis | SER, 2022 | ||
| Physician-reported characterization and treatment utilization of patients with alopecia areata using survey data | Alopecia areata | EADV, 2022 | ||
| Operationalizing the 2019 GINA Asthma treatment steps for application to real-world data from the UK | Asthma | ISPOR US, 2022 | ||
| Omalizumab treatment is effective for patients with chronic spontaneous urticaria despite delay in treatment initiation: a real-world study | Urticaria | ISPOR US, 2022 | ||
| Improvement in work productivity loss and associated costs for Crohn’s disease patients receiving ustekinumab in the United States: findings from a real-world survey | Inflammatory Bowel Disease | ISPOR US, 2022 | ||
| Factors associated with physician-reported treatment status of patients with osteoarthritis pain | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/35619074/ | ||
| Extent and use of ICS-LABA (maintenance only and MART) in routine clinical practice and associated clinical and symptom unmet need in the US | Asthma | ATS, 2022 | ||
| Comparative analysis of Hidradenitis Suppurativa Quality Of Life (HiSQOL) and Dermatology Life Quality Index (DLQI) scores using data from patients with hidradenitis suppurativa | Hidradenitis suppurativa | ISPOR US, 2022 | ||
| Clinical profile and real world outcomes of ulcerative colitis patients receiving standard and escalated doses of targeted therapies – findings from a global study | Inflammatory Bowel Disease | DDW, 2022 | ||
| Characteristics and outcomes of patients with severe eosinophilic asthma treated with Benralizumab enrolled in the connect 360 patient support programme | Eosinophilic asthma | ATS, 2022 | ||
| Burden of antibiotic use among pediatric patients with varicella infection: a retrospective cohort analysis of real-world data in England | Varicella | ESPID, 2022 | ||
| Atypical treatment switches in schizophrenia patients: drivers and associated outcomes | Schizophrenia | https://pubmed.ncbi.nlm.nih.gov/35611118/ | ||
| Unmet clinical needs and burden of disease in hidradenitis suppurativa: real-world experience from EU5 and US | Hidradenitis suppurativa | https://pubmed.ncbi.nlm.nih.gov/35445469/ | ||
| Treatment patterns for chronic obstructive pulmonary disease (COPD) in the United States: results from an observational cross sectional physician and patient survey | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/35418752/ | ||
| The clinical and humanistic value of “Good On-Time” among patients with advanced Parkinson’s disease: a real-world study from 7 Countries | Parkinson’s disease | AAN, 2022 | ||
| Real-world clinical characteristics and treatment patterns in patients with advanced renal cell carcinoma treated with first-line immunotherapy + axitinib in Germany | Renal cell carcinoma | IKCS, 2022 | ||
| Burden of disease, treatment utilization, and the impact on education and employment in patients with sickle cell disease: a comparative analysis of high‐ and low‐ to middle‐income countries for the international Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | https://pubmed.ncbi.nlm.nih.gov/35472249/ | ||
| BRCA screening, treatment patterns and response among patients with ovarian cancer in the second line treatment setting: results from a real-world survey | Ovarian cancer | https://www.ejgo.net/articles/10.31083/j.ejgo4302026 | ||
| Treatment patterns, safety, and patient reported outcomes among adult women with human epidermal growth factor receptor 2–negative advanced breast cancer with or without, or with unknown, BRCA1/2 mutation(s): Results of a real-world study from the United States, United Kingdom, and four EU countries | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/36684399/ | ||
| Real-world treatment patterns in metastatic castration-resistant prostate cancer across Europe (France, Germany, Italy, Spain, and the United Kingdom) and Japan | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/35316501/ | ||
| Quantifying the employer burden of persistent musculoskeletal pain at a large employer in the United Kingdom: a non interventional, retrospective study of Rolls-Royce employee data | Musculoskeletal pain | https://pubmed.ncbi.nlm.nih.gov/34941604/ | ||
| Prescription patterns for patients with hereditary angioedema in the United States | Hereditary angioedema | AMCP, 2022 | ||
| Physician perceptions of testing practices in patients with early and advanced stage EGFR mutation positive (EGFRm) NSCLC: a global survey | Non-small cell lung cancer | ELCC, 2022 | ||
| Physician behaviour and perceptions around genetic biomarker test utilisation for the management of newly diagnosed advanced ovarian cancer patients - US Physician Survey | Ovarian cancer | SGO, 2022 | ||
| Patient-psychiatrist discordance and drivers of prescribing long-acting injectable antipsychotics for schizophrenia management in the real-world: a point-in-time survey | Schizophrenia | https://pubmed.ncbi.nlm.nih.gov/35300629/ | ||
| Patient and physician perspectives on alopecia areata: a real-world assessment of severity and burden in Japan | Alopecia areata | https://pubmed.ncbi.nlm.nih.gov/35343611/ | ||
| Impact of next-generation hormonal agents on treatment patterns among patients with metastatic hormone-sensitive prostate cancer: a real-world study from the United States, five European countries and Japan | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/35277153/ | ||
| Impact of day-to-day sleep disruption on the burden of disease in moderate-severe adult atopic dermatitis patients | Atopic dermatitis | AAD, 2022 | ||
| Current clinical practices and patient-reported outcomes in frontline maintenance for advanced non-small cell lung cancer in France, Germany and the UK: real-world evidence from the Adelphi Disease Specific Programme | Non-small cell lung cancer | AMCP, 2022 | ||
| Atopic dermatitis treatment patterns and patient burden in Russia and Poland | Atopic dermatitis | AAD, 2022 | ||
| Communicating Needs and Features of IBD Experiences (CONFIDE) survey: impact of ulcerative colitis symptoms on daily life | Inflammatory Bowel Disease | ECCO, 2022 | ||
| Use of perioperative treatment among patients undergoing radical resection for muscle invasive urothelial cancer in France, Germany, Italy, Spain, UK, US, Canada, China, and Japan | Urothelial carcinoma | ASCO GU, 2022 | ||
| Treatment trends among men with metastatic castration sensitive prostate cancer (mCSPC): results from the US component of an international study | Prostate cancer | ASCO GU, 2022 | ||
| Treatment patterns among men with metastatic castration-resistant prostate cancer (mCRPC) in the United States (US) | Prostate cancer | ASCO GU, 2022 | ||
| Treatment (tx) patterns among men with metastatic castration resistant prostate cancer (mCRPC) in the United States (US) | Prostate cancer | ASCO GU, 2022 | ||
| Real-world health-related quality of life and caregiver need in patients with metastatic hormone-sensitive and metastatic castration-resistant prostate cancer | Prostate cancer | ASCO GU, 2022 | ||
| Persistent burden of disease in patients with Crohn’s disease treated with biologic therapy: results from a real-world survey in the United States (US), France, Germany, Italy, Spain, and United Kingdom (5EU) | Inflammatory Bowel Disease | ECCO, 2022 | ||
| Multi-country clinical practice patterns, including use of biomarkers, among physicians’ treatment of BCG-unresponsive non-muscle invasive bladder cancer (NMIBC) | Bladder cancer | https://pubmed.ncbi.nlm.nih.gov/35219307/ | ||
| Insights from patients with ulcerative colitis on disease burden: findings from a real-world survey in Europe | Inflammatory Bowel Disease | ECCO, 2022 | ||
| Impact of disease location on burden of illness in patients with moderate-severe Crohn’s disease: a real-world survey in the United States, France, Germany, Italy, Spain, and United Kingdom (5EU) | Inflammatory Bowel Disease | ECCO, 2022 | ||
| Do real-world diagnostic, management and speciality approaches differ in NASH patients with/without cardiovascular-metabolic comorbidities | Non‐alcoholic steatohepatitis | ICFL, 2022 | ||
| Criteria used to determine platinum eligibility and first-line (1L) treatment patterns among platinum-eligible (PE) and -ineligible (PI) patients with metastatic urothelial cancer (mUC) in France, Germany, Spain, Italy, and the UK (Eu5) | Urothelial carcinoma | ASCO GU, 2022 | ||
| Characteristics and outcomes of rheumatoid arthritis patients treated with upadacitinib in real-world Canadian clinical practice | Rheumatoid arthritis | CRA, 2022 | ||
| Cardiovascular risk profiles: a cross-sectional study evaluating the generalizability of the glucagon-like peptide-1 receptor agonist cardiovascular outcome trial populations in REWIND, LEADER and SUSTAIN-6 against a real-world type 2 diabetes population in the United Kingdom | Diabetes | https://pubmed.ncbi.nlm.nih.gov/34668637/ | ||
| Burden of bowel urgency across specific treatment groups among ulcerative colitis patients – real world global study analyses | Inflammatory Bowel Disease | ECCO, 2022 | ||
| Validity of a single item indicator of treatment side effect bother in a diverse sample of cancer patients | Various | https://pubmed.ncbi.nlm.nih.gov/35031830/ | ||
| Usage of C-reactive protein testing in the diagnosis and monitoring of psoriatic arthritis (PsA): results from a real-world survey in the US and Europe | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/35032324/ | ||
| Satisfaction with medications prescribed for osteoarthritis: a cross-sectional survey of patients and their physicians in the United States | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/35028917/ | ||
| Regional assessment of the experiences of healthcare professionals (HCPs) treating patients with sickle cell disease (SCD): the international Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | ASCAT, 2022 | ||
| Real-world treatment of patients with palbociclib for HR+/HER2– advanced/metastatic breast cancer: the Europe IRIS study | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/34842454/ | ||
| Real-world study of regional differences in patient demographics, clinical characteristics, and BRCA1/2 mutation testing in patients with human epidermal growth factor receptor 2‒negative advanced breast cancer in the United States, Europe, and Israel | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/36333567/ | ||
| Real-world multi-country study of BRCA1/2 mutation testing among adult women with HER2-negative advanced breast cancer | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/35098723/ | ||
| Real-world homologous recombination repair mutation testing in metastatic castration-resistant prostate cancer in the USA, Europe and Japan | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/35043687/ | ||
| Real world utilization of adalimumab biosimilar (ABP 501) in patients with inflammatory bowel disease in Europe | Inflammatory Bowel Disease | CCC, 2022 | ||
| Psychometric properties of clinical indicators for identification and management of advanced Parkinson's disease: real-world evidence from G7 countries | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/35015215/ | ||
| Patient and caregiver socioeconomic burden of first-line systemic therapy for advanced gastroesophageal adenocarcinoma | Gastric cancer | https://pubmed.ncbi.nlm.nih.gov/34984914/ | ||
| Initiation of bone-targeted agents in patients with bone metastases and breast or castrate-resistant prostate cancer actively treated in routine clinical practice in Europe | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/34757213/ | ||
| Does the 5–2-1 criteria identify patients with advanced Parkinson’s disease? Real-world screening accuracy and burden of 5–2-1-positive patients in 7 countries | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/35073872/ | ||
| Impact of day-to-day itch frequency on the burden of disease in adult patients with moderate-to-severe atopic dermatitis | Atopic dermatitis | EADV, 2021 | ||
| Variation in age of onset and disease progression among genetic subsets of amyotrophic lateral sclerosis (ALS) patients: results from a real-world point-in-time survey | Amyotrophic lateral sclerosis | ALS/MND, 2021 | ||
| Treatment patterns of patients with metastatic castrate-resistant prostate cancer: results from a real-world study in Japan | Prostate cancer | JUA, 2021 | ||
| Treatment and disease management patterns for bacillus Calmette–Guérin unresponsive nonmuscle invasive bladder cancer in North America, Europe and Asia: a real-world data analysis | Bladder cancer | https://pubmed.ncbi.nlm.nih.gov/36204362/ | ||
| The evolving diagnostic and treatment landscape in metastatic non-small cell lung cancer (mNSCLC) across Europe – a real world evidence survey | Non-small cell lung cancer | ESMO IO, 2021 | ||
| The burden of moderate-to-severe atopic dermatitis: results from a real-world study in Spain | Atopic dermatitis | AEDV, 2021 | ||
| Symptom burden of patients with moderate-to-severe atopic dermatitis | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/34935621/ | ||
| Real-world impact of flaring on patient-reported outcomes and healthcare resource utilization in systemic lupus erythematosus | Systemic lupus erythematosus | https://pubmed.ncbi.nlm.nih.gov/34905485/ | ||
| Real-world health-related quality of life in patients with diffuse large B-cell lymphoma: information comparisons with reference populations and by line of therapy | Diffuse large B-cell lymphoma | ASH, 2021 | ||
| Real-world bevacizumab utilization and outcomes among women with ovarian cancer in Europe and the United States | Ovarian cancer | https://www.imrpress.com/journal/EJGO/42/6/10.31083/j.ejgo4206181 | ||
| Point-in-time survey of healthcare resource utilization, employment, quality of life and caregiver status by disease severity in patients with schizophrenia in the US | Schizophrenia | https://pubmed.ncbi.nlm.nih.gov/34812100/ | ||
| Patterns of genetic testing among patients with amyotrophic lateral sclerosis (ALS): real-world results from the United States and Europe | Amyotrophic lateral sclerosis | ALS/MND, 2021 | ||
| Pain and fatigue in patients with ankylosing spondylitis treated with TNF inhibitors: multi-national real-world findings | Axial spondyloarthritis | https://pubmed.ncbi.nlm.nih.gov/32611650/ | ||
| Individualized HbA1c goals, and patient awareness and attainment of goals in type 2 diabetes mellitus: a real-world multinational survey | Diabetes | https://pubmed.ncbi.nlm.nih.gov/34951678/ | ||
| Improvement in annualized bleed rate in patients with hemophilia A initiating emicizumab – physician reported outcomes from the Adelphi Hemophilia A Disease Specific Programme | Hemophilia | ASH, 2021 | ||
| Improvement in annualized bleed rate in patients with hemophilia A initiating emicizumab – physician reported outcomes from the Adelphi Hemophilia A Disease Specific Programme | Hemophilia | ASH, 2021 | ||
| Impact of cluster headache attack duration on aspects of patients’ mental health and sleep patterns – results from a real-world survey | Cluster headache | Pain360, 2021 | ||
| Genomic and genetic testing patterns for patients with metastatic castrate resistant prostate cancer: real world study results in Japan | Prostate cancer | JUA, 2021 | ||
| Exploring the real-world impact of COVID-19 on first line (1L) treatment and management of EGFR-wild type (EGFR-WT) and ALK-wild type (ALK-WT) metastatic non-small cell lung cancer (mNSCLC) across Europe | Non-small cell lung cancer | ESMO IO, 2021 | ||
| Experiences of sickle cell disease (SCD) reported by healthcare professionals (HCPs) across different regions: International Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | ASH, 2021 | ||
| Current clinical practice and decision-making in multiple myeloma treatment in the United States of America: A real-world survey | Multiple myeloma | ASH, 2021 | ||
| Children in the United States with sickle cell disease experience greater educational burden than those living in low/middle income and other high-income countries | Sickle cell disease | ASH, 2021 | ||
| Care and mobility aid dependence in activities of daily living among patients with ALS in the US: results from a real-world study | Amyotrophic lateral sclerosis | APF, 2021 | ||
| Validation and clinical value of the MANAGE-PD tool: a clinician-reported tool to identify Parkinson's disease patients inadequately controlled on oral medications | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/34695657/ | ||
| Treatment trends among men with metastatic castration sensitive prostate cancer (mCSPC): results from the European component of an international study | Prostate cancer | EMUC, 2021 | ||
| Treatment patterns among men with metastatic castration resistant prostate cancer (mCRPC): results from a European international study | Prostate cancer | EMUC, 2021 | ||
| The impact of delayed primary Sjögren’s syndrome diagnosis on patient outcomes: a real-world survey in the US | Sjogren's syndrome | ACR, 2021 | ||
| Real-world management of non-alcoholic steatohepatitis differs from clinical practice guideline recommendations and across regions | Non‐alcoholic steatohepatitis | https://pubmed.ncbi.nlm.nih.gov/34977520/ | ||
| Real-world effectiveness and rheumatologist satisfaction with secukinumab in the treatment of patients with axial spondyloarthritis. | Axial spondyloarthritis | https://pubmed.ncbi.nlm.nih.gov/34800174/ | ||
| Real-world assessment of healthcare resource utilisation and direct medical costs in patients with COPD receiving LAMA/LABA Therapy in England | Chronic obstructive pulmonary disease | ISPOR EU, 2021 | ||
| Real-world assessment of healthcare resource utilisation and direct medical costs in patients with COPD receiving ICS/LABA Therapy in England | Chronic obstructive pulmonary disease | ISPOR EU, 2021 | ||
| Real-world (RW) patient-reported outcomes (PROs) in frontline maintenance therapy for advanced Non-Small Cell Lung Cancer (aNSCLC) in France, Germany, and the UK | Non-small cell lung cancer | ISPOR EU, 2021 | ||
| Real world treatment patterns and clinical outcomes associated with palbociclib combination therapy across Europe, North and South America, and Asia: a pooled analysis from the IRIS study | Breast cancer | ISPOR EU, 2021 | ||
| Physicians’ reasons for prescribing Janus kinase inhibitors (JAKi) in patients with rheumatoid arthritis, and associated alignment between physicians and patients in a real-world clinical setting | Rheumatoid arthritis | ACR, 2021 | ||
| Physician perception and assessment of alopecia areata severity and the corresponding patient-reported QoL | Alopecia areata | JDA, 2021 | ||
| Patient characteristics, diagnostic testing and treatment patterns in patients with hormone receptor-positive, human epidermal growth factor receptor 2-negative (HR+, HER2-), node-positive, high-risk early breast cancer (EBC) in Italy: A real-world study | Breast cancer | ISPOR EU, 2021 | ||
| Machine learning: Identifying lupus nephritis within systemic lupus erythematosus in the real world | Systemic lupus erythematosus | ACR, 2021 | ||
| Living with ulcerative colitis in Japan: biologic persistence and health-care resource use | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/35083284/ | ||
| Health-related quality of life across King’s and MiToS stages among amyotrophic lateral sclerosis patients: results from a real-world point-in-time survey | Amyotrophic lateral sclerosis | ISPOR EU, 2021 | ||
| Evaluating real-world health-related quality of life in a survey of patients with advanced renal cell carcinoma receiving first-line treatment in the US | Renal cell carcinoma | ISPOR EU, 2021 | ||
| Describing the disease burden of primary Sjögren’s Syndrome patients: results from a real-world survey in the US | Sjogren's syndrome | ACR, 2021 | ||
| Characterisation of the management pathway for muscle-invasive urothelial carcinoma (MIUC) from physician perspectives in France, Germany, Italy, Spain, UK (EU5), US, Canada, China, and Japan | Urothelial carcinoma | ISPOR EU, 2021 | ||
| Characterisation of existing treatment patterns in muscle-invasive urothelial carcinoma (MIUC) across North America, Europe, and EAST ASIA | Urothelial carcinoma | ISPOR EU, 2021 | ||
| Are patients with COPD more adherent to fluticasone furoate/umeclidinium/vilanterol (FF/UMEC/VI) compared with multiple-inhaler triple therapy in a real-world UK primary care treated population? | Chronic obstructive pulmonary disease | BTS, 2021 | ||
| Approaches to immune checkpoint inhibitor (ICI) first-line maintenance therapy (1L-MT) in unresectable locally advanced (LA) or metastatic urothelial cancer (mUC) in France, Germany, Italy, Spain, and the UK (EU5) | Urothelial carcinoma | ISPOR EU, 2021 | ||
| A real world evaluation to describe resource use for the management of moderate to severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17 in the Republic of Ireland | Atopic dermatitis | ISPOR EU, 2021 | ||
| Unmet needs in advanced therapy-naïve and advanced therapy-experienced moderate-to-severe ulcerative colitis patients in the United States | Inflammatory Bowel Disease | ACG, 2021 | ||
| Treatment goals in schizophrenia: a real-world survey of patients, psychiatrists, and caregivers in the United States, with an analysis of current treatment (long-acting injectable vs oral antipsychotics) and goal selection | Schizophrenia | https://pubmed.ncbi.nlm.nih.gov/34707359/ | ||
| The burden of sickle cell disease on patients in Ghana and Nigeria compared with other low-/middle-income and high-income countries: results from the sickle cell world assessment survey (SWAY) | Sickle cell disease | SCDAA, 2021 | ||
| Symptom and quality of life burden among patients with eosinophilic oesophagitis in a real-world setting | Eosinophilic oesophagitis | UEGW, 2021 | ||
| Real-world experience of subcutaneous belimumab treatment for systemic lupus erythematosus: a cross-sectional survey of rheumatologists and their patients | Systemic lupus erythematosus | LUPUS & CORA, 2021 | ||
| Real-world effectiveness of ustekinumab in patients with Crohn's disease: findings from a survey of gastroenterologists in the US | Inflammatory Bowel Disease | ACG, 2021 | ||
| Real-world clinical presentation of patients with portopulmonary hypertension in comparison with idiopathic/hereditary pulmonary arterial hypertension in the USA | Various | CHEST, 2021 | ||
| Real-world analysis of patient characteristics, treatment outcomes, and healthcare resource utilization across Europe in patients with newly diagnosed multiple myeloma ineligible for stem cell transplantation who received lenalidomide- or bortezomib-based regimens | Multiple myeloma | https://pubmed.ncbi.nlm.nih.gov/34121589/ | ||
| Quantifying the economic impact of delayed multiple-inhaler triple therapy initiation in patients with COPD: a retrospective cohort study of linked electronic medical record and hospital administrative data in England | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/34675504/ | ||
| Perspectives on myasthenia gravis: the quality of life and productivity of caregivers | Myasthenia gravis | AANEM, 2021 | ||
| Perspectives on myasthenia gravis: the impact on quality of life, productivity and employment in the United States | Myasthenia gravis | AANEM, 2021 | ||
| Outcomes of early and late advanced therapy use in patients with ulcerative colitis: findings from a European real-world study | Inflammatory Bowel Disease | UEGW, 2021 | ||
| MRI activity versus relapses as markers of disease activity in SPMS: data from real world and pivotal clinical studies | Multiple sclerosis | ECTRIMS, 2021 | ||
| Misdiagnosis in paediatric inflammatory bowel disease – findings from a real-world study in Europe | Inflammatory Bowel Disease | UEGW, 2021 | ||
| Impact of rare diseases on work, productivity, and activity impairment: analysis of real-world patient outcomes collected in the Adelphi Disease Specific Programmes™ (DSPs™) | Various | NORD, 2021 | ||
| Idiopathic pulmonary fibrosis: physician and patient perspectives on the pathway to care from symptom recognition to diagnosis and disease burden | Idiopathic pulmonary fibrosis | https://pubmed.ncbi.nlm.nih.gov/34611971/ | ||
| High prevalence of intolerability with interferon beta and glatiramer acetate in patients with MS | Multiple sclerosis | ECTRIMS, 2021 | ||
| Healthcare insurance coverage and treatment patterns among patients with amyotrophic lateral sclerosis in the United States | Amyotrophic lateral sclerosis | AMCP Nexus, 2021 | ||
| Functional class and physician-perceived severity are similar in treated and untreated patients with pulmonary arterial hypertension: a real-world survey | Pulmonary arterial hypertension | CHEST, 2021 | ||
| Frequency of diagnosed concomitant conditions among patients with rare diseases: analysis of real-world patient data from Europe and the United States | Various | NORD, 2021 | ||
| Epidemiology and treatment patterns of the patients with locally advanced or metastatic urothelial carcinoma: a retrospective analysis of real-world data in Japan | Urothelial carcinoma | JSCO, 2021 | ||
| Effects of COVID-19 on treatment and patient management in inflammatory bowel disease: findings from a real-world survey in Europe | Inflammatory Bowel Disease | UEGW, 2021 | ||
| Discordance between neurologists and people living with multiple sclerosis on the perception of the presence and burden of cognitive impairment | Multiple sclerosis | ECTRIMS, 2021 | ||
| Determinants of patient and physician treatment satisfaction in moderate to severe psoriasis: a multinational survey of psoriasis patients | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/35130382/ | ||
| Concordance in perceptions of the impact of subcutaneous belimumab treatment for systemic lupus erythematosus between patients and their physicians: a cross-sectional, real-world survey | Systemic lupus erythematosus | LUPUS & CORA, 2021 | ||
| Cognitive debriefing of the Adelphi Adherence Questionnaire (ADAQ©): a novel generic patient-reported measure of medication adherence drivers and behaviours | Various | ISOQOL, 2021 | ||
| Characteristics and real world treatment history of patients treated with tofacitinib for ulcerative colitis in Europe | Inflammatory Bowel Disease | UEGW, 2021 | ||
| Burden among caregivers of patients with amyotrophic lateral sclerosis in the United States | Amyotrophic lateral sclerosis | ANA, 2021 | ||
| Associations between relapses and psychosocial outcomes in patients with schizophrenia in real-world settings in the United States | Schizophrenia | https://pubmed.ncbi.nlm.nih.gov/34764891/ | ||
| A comparison of treatment patterns and healthcare resource utilization in portopulmonary hypertension and idiopathic/hereditary pulmonary arterial hypertension in the USA | Various | CHEST, 2021 | ||
| Unmet clinical needs and burden of disease in hidradenitis suppurativa: real-world experience from EU5 and US | Hidradenitis suppurativa | EADV, 2021 | ||
| Understanding the diagnostic and treatment landscape in EGFRm advanced non-small dell lung cancer (aNSCLC) patients with exon 20 insertion mutations (Ex20ins) | Non-small cell lung cancer | ESMO, 2021 | ||
| The relationship between employment status, WPAI and HRQoL for patients with HR+/HER2- early-stage breast cancer | Breast cancer | ESMO, 2021 | ||
| Suboptimal clinical and quality of life outcomes in psoriasis patients undertreated with systemic oral therapies: evidence from an international physician and patient survey | Psoriasis | EADV, 2021 | ||
| Receipt of neoadjuvant treatment and impact of types of surgery on HRQoL among patients with early-stage HR+/HER2 - breast cancer | Breast cancer | ESMO, 2021 | ||
| Real-world treatment patterns and outcomes in patients with head and neck cancer: point-in-time survey of oncologists in Italy and Spain | Head and neck cancer | https://pubmed.ncbi.nlm.nih.gov/34319551/ | ||
| Real-world study of Rearranged during transfection [RET] testing in patients with papillary thyroid cancer [PTC] in Europe [EU5] | Thyroid cancer | ESMO, 2021 | ||
| Real-world study of REarranged during transfection [RET] testing in patients with medullary thyroid cancer [MTC] in Europe [EU5] | Thyroid cancer | ESMO, 2021 | ||
| Real-world evidence of reported symptoms and quality of life burden associated with chronic rhinosinusitis with nasal polyposis and comorbid asthma atatus | Chronic rhinosinusitis with nasal polyposis | ERS, 2021 | ||
| Real-world evaluation of the impact, treatment patterns, and patient and physician perceptions of vasomotor symptoms associated with menopause in Europe and the United States | Menopause | EMAS, 2021 | ||
| Real-world adherence to single-inhaler vs multiple-inhaler triple therapy among patients with COPD in a primary care treated UK population | Chronic obstructive pulmonary disease | ERS, 2021 | ||
| Real world study of treatments received and treatment satisfaction among HER2- advanced breast cancer (ABC) patients in EU3 and US | Breast cancer | ESMO, 2021 | ||
| Real world health-related quality of life (HRQoL) among HER2-negative (HER2-) advanced breast cancer (ABC) patients in EU3 and US | Breast cancer | ESMO, 2021 | ||
| Physician considered treatment attributes for 3rd line diffuse-large B-cell lymphoma treatment decision-making: physician perspectives from a survey across western Europe and US | Diffuse large B-cell lymphoma | ESMO, 2021 | ||
| Osteoarthritis medication satisfaction | Osteoarthritis | AAFP, 2021 | ||
| Factors leading to discontinuation of biologic therapy in patients with severe asthma | Asthma | https://pubmed.ncbi.nlm.nih.gov/34486912/ | ||
| Characteristics and treatment patterns in patients with medullary thyroid cancer [MTC] with and without Rearranged during transfection [RET] mutations in Europe | Thyroid cancer | ESMO, 2021 | ||
| Characteristics and treatment pathways of patients with COPD receiving an inhaled corticosteroid/long-acting β2-agonist (ICS/LABA) in the UK | Chronic obstructive pulmonary disease | ERS, 2021 | ||
| Characteristics and treatment pathways of patients with COPD receiving a long-acting muscarinic antagonist/long-acting β2-agonist (LABA/LAMA) in the UK | Chronic obstructive pulmonary disease | ERS, 2021 | ||
| Burden of illness in patients with chronic rhinosinusitis with nasal polyps in a real-world setting in Europe | Chronic rhinosinusitis with nasal polyposis | ERS, 2021 | ||
| Biologic and targeted synthetic DMARD utilization in the United States: Adelphi Real World Disease Specific Programme for rheumatoid arthritis | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/34487340/ | ||
| A real-world observational study to describe NHS resource use for the management of moderate to severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17 | Atopic dermatitis | BAD, 2021 | ||
| Real-world clinical profile, treatment patterns and patient-reported outcomes in a subset of HR+/HER2− advanced breast cancer patients with poor prognostic factors: data from an international study | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/34371379/ | ||
| Quantifying the employer burden of persistent musculoskeletal pain at a large employer in the United Kingdom: a non interventional, retrospective study of Rolls Royce employee data | Musculoskeletal pain | WCO IOF ESCEO, 2021 | ||
| Fatigue in psoriatic arthritis: Prevalence in patients from the US and Europe, and impact on quality of life and work productivity | Psoriatic arthritis | PANLAR, 2021 | ||
| Agitation in dementia: real-world impact and burden on patients and the healthcare system | Dementia | https://pubmed.ncbi.nlm.nih.gov/34250934/ | ||
| Unmet needs in advanced therapy-naïve and advanced therapy-experienced moderate-to-severe ulcerative colitis patients in the United States | Inflammatory Bowel Disease | ECCO, 2021 | ||
| Unmet clinical needs of paediatric psoriasis patients based on real-world data from the EU5 and US | Psoriasis | SPD, 2021 | ||
| Treatment patterns of paediatric patients with moderate to severe psoriasis based on real-world data from the EU5 and US | Psoriasis | SPD, 2021 | ||
| Symptomology and most bothersome symptoms among pediatric Crohn’s disease and ulcerative colitis patients: results from a physician and patient survey | Inflammatory Bowel Disease | ECCO, 2021 | ||
| Reliability, validity, and important difference estimates for the NCCN-FACT Ovarian Symptom Index-18 (NFOSI-18) | Ovarian cancer | https://pubmed.ncbi.nlm.nih.gov/34287020/ | ||
| Real-world study of the impact of recurrent/metastatic squamous cell carcinoma of the head and neck (R/M SCCHN) on quality of life and productivity in Europe | Squamous cell carcinoma of the head and neck | https://pubmed.ncbi.nlm.nih.gov/34303346/ | ||
| Real world effectiveness and satisfaction with secukinumab in the treatment of patients with psoriatic arthritis: a population survey in five European countries | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/34256669/ | ||
| Investigating diagnosis, treatment, and burden of disease in patients with ankylosing spondylitis in central eastern Europe and the United States: a real-world study | Axial spondyloarthritis | https://pubmed.ncbi.nlm.nih.gov/34319479/ | ||
| Inadequate disease control, treatment dissatisfaction, and quality-of-life impairments among US patients receiving topical therapy for atopic dermatitis | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/34268709/ | ||
| Health related quality of life among patients with HR+/HER2- early stage breast cancer | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/34256965/ | ||
| Exploring differences in clinical burden between adult and pediatric psoriasis patients: results from a real world survey | Psoriasis | SPD, 2021 | ||
| Concern about addiction is associated with lower quality of life in patients with osteoarthritis: an exploratory, real‑world data analysis | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/34219192/ | ||
| Burden and quality of life among female and male patients with heart failure in Europe: a real-world cross-sectional study | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/34354345/ | ||
| The impact of COVID-19 on patient management and prescribing strategy across the EU and US: a real-world survey of rheumatologists, dermatologists, and gastroenterologists | Covid-19 | EULAR, 2021 | ||
| The burden of sickle cell disease (SCD) on patients in Ghana and Nigeria compared with other low-/middle-income and high-income countries: results from the Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | EHA, 2021 | ||
| Quantifying the incremental economic burden of Advanced Parkinson’s Disease: real-world evidence from EU5 countries | Parkinson’s disease | EAN, 2021 | ||
| Quantifying the economic burden prior to total joint replacement among patients with moderate-to-severe chronic pain in osteoarthritis: a retrospective analysis of linked primary and secondary care data in England | Osteoarthritis | BHS, 2021 | ||
| Physician and patient perceptions of surgical procedures for knee OA across Japan, the US and 5 EU countries: results of a real-world study | Osteoarthritis | EULAR, 2021 | ||
| Physician and patient attitudes towards treat-to-target, its implementation and stated treatment goals in patients with rheumatoid arthritis in a real-world setting across Europe | Rheumatoid arthritis | EULAR, 2021 | ||
| Physical, emotional and social pain communication by patients diagnosed and living with multiple myeloma | Multiple myeloma | https://pubmed.ncbi.nlm.nih.gov/34139887/ | ||
| Patient-reported pain severity and health-related quality of life in patients with multiple myeloma in real world clinical practice | Multiple myeloma | https://pubmed.ncbi.nlm.nih.gov/34110106/ | ||
| Patient-reported outcomes for migraine in the US and Europe: burden associated with multiple preventive treatment failures | Migraine | https://pubmed.ncbi.nlm.nih.gov/34285524/ | ||
| Onabotulinumtoxin A treatment satisfaction among patients with chronic migraine | Migraine | EAN, 2021 | ||
| Inadequate disease control, treatment dissatisfaction, and quality-of-life impairments among US patients receiving topical therapy for atopic dermatitis | Atopic dermatitis | RAD, 2021 | ||
| Impact of sickle cell disease on daily life in patients managing vaso-occlusive crises at home vs the emergency room/hospital: results from the international sickle cell world assessment survey (SWAY) | Sickle cell disease | EHA, 2021 | ||
| Impact of dementia-related behavioral symptoms on healthcare resource use and caregiver burden: real-world data from Europe and the United States | Dementia | https://pubmed.ncbi.nlm.nih.gov/34057080/ | ||
| Impact of chorea on self-care activity, employment, and health-care resource use in patients with Huntington’s disease | Huntington disease | https://pubmed.ncbi.nlm.nih.gov/34183975/ | ||
| Humanistic and healthcare resource use burden in Japanese chronic kidney disease patients with anemia | Chronic kidney disease | JSN, 2021 | ||
| ESSDAI and its association with patient outcomes in Sjögren’s syndrome: a real-world survey in the US | Sjogren's syndrome | EULAR, 2021 | ||
| Effectiveness of ixekizumab in patients with psoriatic arthritis: results from a real-world European survey | Psoriatic arthritis | EULAR, 2021 | ||
| Does fibrosis severity or diabetes status influence patient-reported lifestyle changes and degree of success among non-alcoholic steatohepatitis patients? | Non‐alcoholic steatohepatitis | EASL, 2021 | ||
| Characterization and treatment goals of patients on long-acting injectable antipsychotics vs oral antipsychotics: results from a patient/caregiver/psychiatrist survey | Schizophrenia | ASCP, 2021 | ||
| Assessment of how modifiable and non-modifiable factors can impact fibrosis outcomes in non-alcoholic steatohepatitis patients: a 12-country real-world assessment | Non‐alcoholic steatohepatitis | EASL, 2021 | ||
| Analysis of treatment goals for patients with schizophrenia: a US survey of psychiatrists, patients with schizophrenia and caregivers | Schizophrenia | ASCP, 2021 | ||
| A real-world analysis of treatment patterns and clinical characteristics among patients with COPD who initiated multiple-inhaler triple therapy in New Zealand | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/34177262/ | ||
| Treatment patterns and real-world outcomes among patients with episodic migraine in China: results from the Chinese Adelphi Disease Specific Programme | Migraine | ISPOR US, 2021 | ||
| The impact of COVID-19 on patient management across the EU and US | Covid-19 | ISPOR US, 2021 | ||
| Rectal urgency among ulcerative colitis and Crohn’s disease patients: analyses from a global survey | Inflammatory Bowel Disease | DDW, 2021 | ||
| Real-world outcomes associated with cognitive impairment among patients with schizophrenia | Schizophrenia | APA, 2021 | ||
| Real-world evidence of reported symptoms and quality of life burden associated with chronic rhinosinusitis with nasal polyposis across disease severity and region | Chronic rhinosinusitis with nasal polyposis | ATS, 2021 | ||
| Real-world assessment of “OFF” episode–related healthcare resource utilization among patients with Parkinson’s disease in the United States | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/33819121/ | ||
| Physician reported reasons for advanced therapy treatment switches in rheumatoid arthritis patients: results from a cross-sectional survey in the USA | Rheumatoid arthritis | ISPOR US, 2021 | ||
| Patients with COPD prefer improvement of cough and mucus over shortness of breath and improvement of combined daily symptoms over the reduction of exacerbations: A multi-country patient preference study | Chronic obstructive pulmonary disease | ATS, 2021 | ||
| Health-related quality of life and lifestyle changes in patients with chronic kidney disease and hyperkalaemia: real-world data from the US, five European countries and China | Chronic kidney disease | https://pubmed.ncbi.nlm.nih.gov/33960068/ | ||
| Healthcare resource utilization (HCRU) for early-, middle- and late-stage amyotrophic lateral sclerosis (ALS) patients: results from a real-world point-in-time survey | Amyotrophic lateral sclerosis | ISPOR US, 2021 | ||
| Current treatments used in clinical practice for major depressive disorder and treatment resistant depression in England: a retrospective database study | Depression | https://pubmed.ncbi.nlm.nih.gov/34077893/ | ||
| Caregivers of patients with heart failure: burden and the determinants of health-related quality of life | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/34079236/ | ||
| Burden of fatigue among Crohn’s disease and ulcerative colitis patients: analyses from a global survey of patients and gastroenterologists | Inflammatory Bowel Disease | DDW, 2021 | ||
| Atopic dermatitis: patient characteristics and patient-reported outcomes on topical therapy | Atopic dermatitis | SID, 2021 | ||
| Unmet needs and treatment patterns of advanced Parkinson’s disease patients in the United States | Parkinson’s disease | AAN, 2021 | ||
| The value of optional alarms in continuous glucose monitoring devices: a survey on patients and their physicians | Diabetes | https://www.diabetologie-online.de/a/originalie-the-value-of-optional-alarms-in-continuous-glucose-monitoring-devices-a-survey-on-patients-and-their-physicians-2378027 | ||
| The patient-reported burden of alopecia areata by current severity: a real-world study in the United States | Alopecia areata | AAD, 2021 | ||
| Real-world outcomes for schizophrenia patients and caregivers by disease severity | Schizophrenia | SIRS, 2021 | ||
| Quantifying the healthcare resource utilisation in the management of moderate-to-severe chronic pain among patients with chronic lower back pain in England: retrospective analysis of linked primary & secondary care data | Chronic lower back pain | BPS, 2021 | ||
| Quantifying the healthcare resource utilisation in the management of moderate-to-severe chronic pain among patients in England with concomitant chronic low back pain and osteoarthritis | Osteoarthritis | BPS, 2021 | ||
| Quantifying the healthcare resource utilisation for the management of moderate to severe chronic pain among patients with osteoarthritis in England: a retrospective analysis of linked primary and secondary care data | Osteoarthritis | OARSI, 2021 | ||
| Physician-reported satisfaction with treatment and pain reduction in endometriosis patients receiving elagolix compared with other prescribed treatments | Endometriosis | ACOG, 2021 | ||
| Physician-patient concordance in the assessment of asthma control | Asthma | https://pubmed.ncbi.nlm.nih.gov/33872813/ | ||
| Patient- and dermatologist-reported impacts of alopecia areata on patients stratified by disease severity: results from a real-world study in the United States | Alopecia areata | AAD, 2021 | ||
| Osteoarthritis in Italy: impact on health-related quality of life and health care resources | Osteoarthritis | http://journals.seedmedicalpublishers.com/index.php/FE/article/view/1496/1869#:~:text=In%20this%20cross%2Dsectional%20study,work%20productivity%20and%20daily%20activities. | ||
| Long-acting bronchodilator use in chronic obstructive pulmonary disease in primary care in New Zealand: a retrospective study of treatment patterns and evolution using the HealthStat database | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/33907394/ | ||
| Impact of sickle cell disease on patients’ daily lives, symptoms reported, and disease management strategies: results from the international Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | https://pubmed.ncbi.nlm.nih.gov/33264445/ | ||
| Identifying care gaps in Parkinson’s disease patients eligible for device-aided therapies: results from using the MANAGE-PD tool in patients from G7 countries | Parkinson’s disease | AAN, 2021 | ||
| Extent and impact of inadequate disease control in US adults with a history of moderate to severe atopic dermatitis following introduction of new treatments | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/33496957/ | ||
| Demonstrating the clinical value of MANAGE-PD tool in assessing symptom control of Parkinson’s disease patients: evidence from G7 countries | Parkinson’s disease | SNS, 2021 | ||
| Cross-walk of the Assessment of Spondyloarthritis International Society Health Index and Ankylosing Spondylitis Quality of Life Scores in ankylosing spondylitis and non-radiographic axial spondyloarthritis patients | Axial spondyloarthritis | https://pubmed.ncbi.nlm.nih.gov/33864593/ | ||
| Characterising the morbidity and mental health profile of patients with moderate-to-severe chronic pain in osteoarthritis: a retrospective analysis of linked primary and secondary care data in England | Osteoarthritis | BPS, 2021 | ||
| Cardiovascular risk profiles: How do eligibility criteria of the glucagon-like peptide-1 receptor agonist cardiovascular outcomes trials REWIND, LEADER and SUSTAIN-6 translate to a real-world population with Type 2 diabetes in the UK? | Diabetes | DUKPC, 2021 | ||
| A characterisation of the pharmacological management of moderate-to-severe chronic pain in patients with osteoarthritis in clinical practice in England: a retrospective analysis of primary care data | Osteoarthritis | BPS, 2021 | ||
| Treatment patterns and unmet need in multiple myeloma in Europe: a real-world survey | Multiple myeloma | EBMT, 2021 | ||
| The real-world use of tyrosine kinase inhibitors (TKIs) in epidermal growth factor receptor mutated (EGFRm) advanced (stage IIIb / IIIc / IV) non-small cell lung cancer (NSCLC) patients | Non-small cell lung cancer | ELCC, 2021 | ||
| The burden of progressive supranuclear palsy on patients and caregivers by PSP phenotype: a cross-sectional study | Progressive supranuclear palsy | ADPD, 2021 | ||
| Symptom burden and loss of independence in activities of daily living among patients with amyotrophic lateral sclerosis | Amyotrophic lateral sclerosis | MDA, 2021 | ||
| Physician perceptions of barriers to epidermal growth factor receptor mutation (EGFRm) testing in advanced (stage IIIb / IIIc / IV) non-small cell lung cancer (NSCLC) | Non-small cell lung cancer | ELCC, 2021 | ||
| Disease burden and economic impact of diagnosed non-alcoholic steatohepatitis (NASH) in the United Kingdom (UK) in 2018 | Non‐alcoholic steatohepatitis | https://pubmed.ncbi.nlm.nih.gov/33751289/ | ||
| Delays in epidermal growth factor receptor mutation (EGFRm) testing in advanced (stage IIIb / IIIc / IV) non-small cell lung cancer (NSCLC) patients and their impact on the use of first line tyrosine kinase inhibitor (TKIs) in a real-world setting | Non-small cell lung cancer | ELCC, 2021 | ||
| Contemporary economic burden in a real-world heart failure population with commercial and Medicare supplemental plans | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/33704817/ | ||
| Real-world symptoms, disease burden, resource use and quality of life in US patients with advanced renal cell cancer | Renal cell carcinoma | https://pubmed.ncbi.nlm.nih.gov/33631973/ | ||
| Genomic/genetic testing patterns for patients with metastatic castrate-resistant prostate cancer: results from a real-world study in the United States | Prostate cancer | ASCO GU, 2021 | ||
| Full, partial, and modified permutations of the Mayo Score: characterizing clinical and patient-reported outcomes in ulcerative colitis patients | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/36777063/ | ||
| Disease course and treatment patterns in progressive supranuclear palsy: a real-world study | Progressive supranuclear palsy | https://pubmed.ncbi.nlm.nih.gov/33385754/ | ||
| Disease burden and economic impact of diagnosed non‐alcoholic steatohepatitis in five European countries in 2018: a cost‐of‐illness analysis | Non‐alcoholic steatohepatitis | https://pubmed.ncbi.nlm.nih.gov/33590598/ | ||
| Comparing symptoms, treatment patterns, and quality of life of ankylosing spondylitis and non-radiographic axial spondyloarthritis patients in the USA: findings from a patient and rheumatologist survey | Various | https://pubmed.ncbi.nlm.nih.gov/33611647/ | ||
| Characterizing the role of, and physical and emotional burden on caregivers of patients with heart failure: results from a cross-sectional survey in Japan | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/33621781/ | ||
| Abaloparatide real-world patient experience study | Osteoporosis | https://pubmed.ncbi.nlm.nih.gov/33778325/ | ||
| Real-world palbociclib use in HR+/HER2- advanced breast cancer in Canada: the IRIS study | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/33498797/ | ||
| Real-world assessment of the impact of “OFF” episodes on health-related quality of life among patients with Parkinson’s disease in the United States | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/33516182/ | ||
| Pain severity and healthcare resource utilization in patients with osteoarthritis in the United States | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/33131380/ | ||
| International perspectives on management of inflammatory bowel disease: opinion differences and similarities between patients and physicians from the IBD GAPPS survey | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/33512475/ | ||
| Unmet needs in Japanese patients who report insufficient efficacy with triptans for acute treament of migraine: retrospective analysis of real-world data | Migraine | https://pubmed.ncbi.nlm.nih.gov/33306190/ | ||
| Treatment patterns, outcomes and clinical characteristics in advanced renal cell carcinoma: a real-world US study | Renal cell carcinoma | https://pubmed.ncbi.nlm.nih.gov/32885666/ | ||
| The association between schizophrenia relapses and real-world psychosocial outcomes in patients with schizophrenia | Schizophrenia | ASHP, 2020 | ||
| Reasons for non-surgical management of patients with Bacillus Calmette–Guérin (BCG)-unresponsive non-muscle invasive bladder cancer (NMIBC) | Bladder cancer | SUO, 2020 | ||
| Real-world psychosocial outcomes and disease burden in patients with schizophrenia and their caregivers | Schizophrenia | ASHP, 2020 | ||
| Presence of comorbidities and use of concomitant medications associated with QTc prolongation/torsades de pointes In patients with HR+/HER2- advanced breast cancer | Breast cancer | SABCS, 2020 | ||
| Physician and patient satisfaction with poly(ADP-Ribose) polymerase inhibitors (PARPi) versus chemotherapy in adult patients with germline BRCA1/2 mutated (Gbrca1/2mut) HER2- advanced breast cancer (ABC): results from a multi-country real-world (RW) study | Breast cancer | SABCS, 2020 | ||
| Patient reported outcomes (PROs) with Poly(ADP ribose) polymerase inhibitors (PARPi) versus chemotherapy (CTX) in patients (pts) with germline BRCA 1/2 mutated (gBRCA1/2 mut) HER2 advanced breast cancer (ABC): results from a multi country real world (RW) study | Breast cancer | SABCS, 2020 | ||
| Multimodal treatment patterns for osteoarthritis and their relationship to patient-reported pain severity: a cross-sectional survey in the United States | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/33380823/ | ||
| Multi-country study of the use of genomic assays in HR+, HER2- early breast cancer and characteristics of patients tested | Breast cancer | SABCS, 2020 | ||
| Impact of sickle cell disease symptoms on patients daily lives - final results from SWAY | Sickle cell disease | ASH, 2020 | ||
| Burden of heart failure on patient daily life and patient–physician discordance in disease management: results from a cross-sectional survey in Japan | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/33693202/ | ||
| A real-world assessment of outcomes in schizophrenia patients according to treatment response | Schizophrenia | https://pubmed.ncbi.nlm.nih.gov/33369293/ | ||
| A real-world analysis of patient-reported outcomes in patients with migraine by preventive treatment eligibility status in the US and Europe | Migraine | https://pubmed.ncbi.nlm.nih.gov/32632891/ | ||
| Work productivity and activity impairment in HR+/HER2- early stage breast cancer | Breast cancer | ISPOR EU, 2020 | ||
| Work productivity and activity impairment among patients with HR+/HER2- locally advanced or metastatic breast cancer in France, Germany, Israel, Italy, Spain, and the United States | Breast cancer | ISPOR EU, 2020 | ||
| Treatment persistence and colectomy-free outcomes in patients with ulcerative colitis receiving golimumab or adalimumab: a UK experience | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/33199269/ | ||
| Treatment patterns and performance status in unresectable advanced or metastatic (ADV/MET) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC) patients receiving first line (1L) treatment | Gastric cancer | ISPOR EU, 2020 | ||
| The impact of PsA disease control status on patient treatment satisfaction: real-world survey in US and Europe | Psoriatic arthritis | ACR, 2020 | ||
| The impact of high disease activity as measured by SLEDAI and drug burden on healthcare utilization, quality of life and work productivity in systemic lupus erythematosus patients | Systemic lupus erythematosus | ACR, 2020 | ||
| The burden of caring for patients with glioblastoma multiforme (GBM): a real-world study conducted in EU5 and USA | Glioblastoma multiforme | ISPOR EU, 2020 | ||
| Skin involvement in psoriatic arthritis (PsA) - the incremental impact of psoriasis on quality of life, disability and work productivity: real-world survey in US and Europe | Psoriatic arthritis | ACR, 2020 | ||
| Real-world multi-country study of germline BRCA1/2 mutation (Gbrca1/2mut) testing and genetic counseling (GC) among patients (Pts) with human epidermal growth factor receptor 2- negative (HER2-) advanced breast cancer (ABC) | Breast cancer | NSGC, 2020 | ||
| Real-world effectiveness of belimumab in the treatment of systemic lupus erythematosus: pooled analysis of multi-country data from the OBSErve studies | Systemic lupus erythematosus | https://pubmed.ncbi.nlm.nih.gov/33206344/ | ||
| Real world patient characteristics and outcomes of patients with familial hyperlipidemia | Familial hyperlypidemia | ISPOR EU, 2020 | ||
| Real world burden and impact of brain metastases on quality of life and healthcare resource utilization among metastatic breast cancer patient | Breast cancer | ISPOR EU, 2020 | ||
| Quantifying the real-world economic burden of major depressive disorder and treatment-resistant depression in England: national and regional estimates | Depression | ISPOR EU, 2020 | ||
| Qualitative interviews to explore drivers and behaviours associated with medication non-adherence across a range of diseases, treatment modalities, and countries | Various | ISPOR EU, 2020 | ||
| Osteoarthritis patient hopes and satisfaction with prescription NSAIDs and opioids | Osteoarthritis | ISPOR EU, 2020 | ||
| Incremental quality of life burden of nonalcoholic steatohepatitis driven by fibrosis or type 2 diabetes status – or both? | Non‐alcoholic steatohepatitis | AASLD, 2020 | ||
| Impact of flares on healthcare resource usage and PROs in systemic lupus erythematosus patients | Systemic lupus erythematosus | ACR, 2020 | ||
| Impact of comorbidities on the quality of life in patients with haematological tumours across Europe and the US | Various | ISPOR EU, 2020 | ||
| Immune thrombocytopenia (ITP) World Impact Survey (I-WISh): patient and physician perceptions of diagnosis, signs and symptoms, and treatment | Immune thrombocytopenia | https://pubmed.ncbi.nlm.nih.gov/33170956/ | ||
| Healthcare resource use (HCRU) of non-muscle invasive bladder cancer (NMIBC) patients post Bacillus Calmette-Guérin (BCG)-unresponsive status in multiple countries | Bladder cancer | ISPOR EU, 2020 | ||
| Health status/utilities in adult patients with germline BRCA1/2 mutated (gBRCA1/2mut) HER2- advanced breast cancer (ABC) treated with poly(ADP-ribose) polymerase inhibitors (PARPi) versus chemotherapy in a real world (RW) setting | Breast cancer | ISPOR EU, 2020 | ||
| Flares among patients with psoriatic arthritis (PsA) - frequency and impact on patient outcomes: real-world survey in the US and Europe | Psoriatic arthritis | ACR, 2020 | ||
| First line treatment with natalizumab reduces healthcare resource use and impairment of work productivity and activity impairment in relapsing-remitting multiple sclerosis (RRMS) patients compared to natalizumab delayed use | Multiple sclerosis | ISPOR EU, 2020 | ||
| Fatigue in psoriatic arthritis (PsA): prevalence in patients from the US and Europe, and impact on quality of life and work productivity | Psoriatic arthritis | ACR, 2020 | ||
| Direct and indirect costs associated with unresectable advanced or metastatic (ADV/MET) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC) for patients and their caregivers | Gastric cancer | ISPOR EU, 2020 | ||
| Current practice and future thinking on the multidisciplinary management of osteoarthritis pain | Osteoarthritis | PCRMM, 2020 | ||
| Characterization and treatment goals of patients on long-acting injectable antipsychotics vs oral antipsychotics: results from a patient/caregiver/psychiatrist survey | Schizophrenia | NEI MAX!, 2020 | ||
| Burden of illness amongst subgroups of patients with primary Sjögren’s Syndrome and systemic involvement | Sjogren's syndrome | https://pubmed.ncbi.nlm.nih.gov/33147609/ | ||
| Burden of idiopathic pulmonary fibrosis (IPF) on quality of life (QoL), work productivity and healthcare use | Idiopathic pulmonary fibrosis | ISPOR EU, 2020 | ||
| Association of atypical treatment switches with outcomes in patients with schizophrenia | Schizophrenia | ISPOR EU, 2020 | ||
| Anxiety and depression in psoriatic Arthritis (PsA) - prevalence and impact on patient reported outcomes: real-world survey in the US and Europe | Psoriatic arthritis | ACR, 2020 | ||
| Analysis of treatment goals for patients with schizophrenia: a US survey of psychiatrists, patients with schizophrenia and caregivers | Schizophrenia | NEI MAX!, 2020 | ||
| A retrospective chart review study to quantify the monthly medical resource use and costs of treating patients with treatment resistant depression in the United Kingdom | Depression | https://pubmed.ncbi.nlm.nih.gov/33253055/ | ||
| A multinational assessment of direct and indirect costs from a survey of patients with idiopathic pulmonary fibrosis (IPF) | Idiopathic pulmonary fibrosis | ISPOR EU, 2020 | ||
| A comparison of characteristics of patients with osteoarthritis of the hip or knee who are willing or not to undergo total joint replacement surgery | Osteoarthritis | ISPOR EU, 2020 | ||
| What can patient-reported treatment satisfaction and dissatisfaction tell us about unmet needs in psoriasis? | Psoriasis | EADV, 2020 | ||
| Treatment patterns for moderate-to-severe atopic dermatitis among patients in Europe | Atopic dermatitis | EADV, 2020 | ||
| The relationship between pruritus, sleep disruption, and quality of life (QoL) among patients with moderate-to-severe atopic dermatitis (AD) in Europe | Atopic dermatitis | EADV, 2020 | ||
| Risk factors of satisfaction with treatment in Chinese rheumatoid arthritis patients and rheumatologists: findings from a cross-sectional survey | Rheumatoid arthritis | APLAR, 2020 | ||
| Real world effectiveness of secukinumab in patients with ankylosing spondylitis: findings from a recent cross sectional survey of rheumatologists and patients in Europe | Axial spondyloarthritis | SCR, 2020 | ||
| Physician attitudes towards diagnosis, treatment initiation, and unmet needs in the management of anemia due to CKD: results from a real world survey in Germany, Italy, and the United Kingdom | Chronic kidney disease | ASN, 2020 | ||
| Patient-physician alignment in satisfaction with psoriatic arthritis treatment: analysis from a cross-sectional survey in the United States and Europe | Psoriatic arthritis | https://journals.sagepub.com/doi/abs/10.1177/2475530320963196?journalCode=jpsa | ||
| Management and unmet need amongst mild And moderate/ severe CD and UU patients: findings from a cross sectional study in the US and France, Germany, Italy, Spain, UK (EU5). | Inflammatory Bowel Disease | UEGW, 2020 | ||
| Immune thrombocytopenia (ITP) World Impact Survey (I-WISh): impact of ITP on health-related quality of life | Immune thrombocytopenia | https://pubmed.ncbi.nlm.nih.gov/33107998/ | ||
| Humanistic burden and impact of the disease In moderate to severe patients with Crohn’s Disease (CD) and Ulcerative Colitis (UC): findings from a cross sectional study in the US and France, Germany, Italy, Spain, UK (EU5) | Inflammatory Bowel Disease | UEGW, 2020 | ||
| Health-related quality of life and its predictors in patients receiving first-line treatment for newly diagnosed glioblastoma multiforme in EU5: a real-world study | Glioblastoma multiforme | ASCO QCS, 2020 | ||
| Cross-sectional survey to assess chronic obstructive pulmonary disease (COPD) medication use by United States (US) physicians | Chronic obstructive pulmonary disease | ACCP, 2020 | ||
| Corticosteroid use and the associated impact on patients with Crohn’s Disease (CD) And Ulcerative Colitis (UC) in the US, France, Germany, Italy, Spain, and UK (EU5). | Inflammatory Bowel Disease | UEGW, 2020 | ||
| Type 2 inflammation-related comorbidities among patients with asthma, chronic rhinosinusitis with nasal polyps and atopic dermatitis | Various | ERS, 2020 | ||
| Treatment sequencing In HR+/HER2- locally advanced or metastatic breast cancer: a real-world retrospective study In France, Germany, Italy, And Spain | Breast cancer | ESMO, 2020 | ||
| The humanistic burden reported by patients with unresectable locally advanced or metastatic (adv/met) gastric cancer (GC), gastroesophageal junction cancer (GEJC) and esophageal adenocarcinoma (EAC): an international real-world survey | Gastric cancer | ESMO, 2020 | ||
| Real-world patient-reported outcomes of women receiving initial endocrine-based therapy for HR+/HER2− advanced breast cancer in five European countries | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/32894087/ | ||
| Real-world multi-country study of treatment trends among patients (pts) with HER2− BRCA1/2 mutated (BRCA1/2mut) advanced breast cancer (ABC) | Breast cancer | ESMO, 2020 | ||
| Real-world (RW) multi-country study of BRCA1/2 testing in adult patients (pts) with HER2−advanced breast cancer (ABC) | Breast cancer | ESMO, 2020 | ||
| Real-world (RW) multi-country study of BRCA1/2 mutation (BRCA1/2mut) testing trends among adult patients (pts) with HER2− advanced breast cancer (ABC) | Breast cancer | ESMO, 2020 | ||
| Real world data availability and quality in Asia Pacific. Assessment and implications for research and healthcare decision-making | Various | ISPOR APAC, 2020 | ||
| Quantifying the incremental burden of advancing Parkinson's Disease in patients meeting the “5-2-1” Criteria: Results from an international dataset from G7 Countries | Parkinson’s disease | ICPDMD (MDS), 2020 | ||
| Psychometric properties of clinical indicators of device-aided therapy eligibility among Parkinson’s Disease patients: real-world data from 6 countries | Parkinson’s disease | ICPDMD (MDS), 2020 | ||
| Living with Ulcerative Colitis Study (LUCY) in England: A retrospective study evaluating healthcare resource utilisation and direct healthcare costs of postoperative care in ulcerative colitis | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/32938582/ | ||
| Individualized glycemic control in type 2 diabetes in Europe and the United States | Diabetes | ICPE, 2020 | ||
| Impact on work productivity in unresectable locally advanced or metastatic gastric cancer, gastroesophageal junction cancer and esophageal adenocarcinoma patients and their caregivers | Gastric cancer | ESMO, 2020 | ||
| Impact of T2DM patients’ knowledge of their individualized HbA1c goal on glycemic control | Diabetes | EASD, 2020 | ||
| Impact of clinical characteristics, patients' perception of treatment goals and endocrine therapy history on HRQOL in HR+, HER2- early stage breast cancer patients | Breast cancer | ESMO, 2020 | ||
| Idiopathic pulmonary fibrosis (IPF): the patient journey | Idiopathic pulmonary fibrosis | ERS, 2020 | ||
| Genomic/genetic testing (GT) patterns for patients with metastatic castrate-resistant prostate cancer (mCRPC): interim results from a real-world study in Europe (EU5) | Prostate cancer | ESMO, 2020 | ||
| Genomic testing, biomarkers, and treatment patterns in early breast cancer | Breast cancer | ESMO, 2020 | ||
| First-line treatment patterns in HR+/HER2- locally advanced or metastatic breast cancer in Europe | Breast cancer | ESMO, 2020 | ||
| Economic impact of delayed multiple-inhailer triple therapy initiation in COPD patients | Chronic obstructive pulmonary disease | ERS, 2020 | ||
| Drug treatment patterns and work productivity in chronic kidney disease patients with anemia in China: cross sectional analysis of real-world data | Chronic kidney disease | https://pubmed.ncbi.nlm.nih.gov/32958723/ | ||
| Drivers of prescribing long-acting injectable antipsychotics to patients with schizophrenia | Schizophrenia | Psych Congress , 2020 | ||
| Does “5-2-1” identify patients with suspected advanced Parkinson’s disease? Evidence of clinical accuracy from G7 countries | Parkinson’s disease | ICPDMD (MDS), 2020 | ||
| Disease characteristics and the burden of joint and skin involvement amongst people with psoriatic arthritis: a population survey | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/32700230/ | ||
| Demonstrating the clinical value of MANAGE-PD tool in assessing symptom control of Parkinson’s disease patients: evidence from G7 Countries | Parkinson’s disease | ICPDMD (MDS), 2020 | ||
| Clinical burden of idiopathic pulmonary fibrosis (IPF): physician and patient perception | Idiopathic pulmonary fibrosis | ERS, 2020 | ||
| Characterization and treatment goals of patients treated with long-acting injectable antipsychotics versus oral antipsychotics: results from a patient/caregiver/psychiatrist survey | Schizophrenia | ASCP, 2020 | ||
| Burden of illness in patients With chronic hypoparathyroidism not adequately controlled with conventional therapy: european subanalysis of a global patient survey | Hypoparathyroidism | ECE, 2020 | ||
| Burden of idiopathic pulmonary fibrosis (IPF) on quality of life (QoL), work productivity, and healthcare use | Idiopathic pulmonary fibrosis | ERS, 2020 | ||
| Biologic disease-modifying antirheumatic drug prescription patterns among rheumatologists in Europe and Japan | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/32440826/ | ||
| A multinational real-world study on HR+, HER2- early stage breast cancer patients' disease awareness, satisfaction, and involvement in treatment decisions | Breast cancer | ESMO, 2020 | ||
| A multinational assessment of work-related productivity loss and indirect costs from a survey of patients with psoriasis | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/31840228/ | ||
| Patients with heart failure and a LVEF less than 40% present an overall lower health related quality of life than those with LVEF between 40% and 60%: a multinational real-world survey in EU | Chronic heart failure | ESC, 2020 | ||
| Patient-reported benefits for future non-alcoholic steatohepatitis therapy; a global real-world study among 1,035 patients across 12 countries | Non‐alcoholic steatohepatitis | EASL, 2020 | ||
| Female patients with heart failure and a LVEF less than or equal to 60% present an overall lower health related quality of life than males: a multinational real-world survey in EU | Chronic heart failure | ESC, 2020 | ||
| Deleterious impact of advanced non-alcoholic steatohepatitis on multiple patient-relevant outcomes: an international, cross-sectional, real-world study | Non‐alcoholic steatohepatitis | EASL, 2020 | ||
| Concordance between patient and physician reported symptoms in patients with heart failure and a LVEF equal to or less than 60%: a multinational real-world survey in EU | Chronic heart failure | ESC, 2020 | ||
| Caregiver burden of patients with heart failure with a left ventricular ejection fraction (LVEF) less than or equal to 60%: a multinational real-world survey in EU | Chronic heart failure | ESC, 2020 | ||
| Assessment of real-life outcomes in schizophrenia patients according to compliance | Schizophrenia | https://pubmed.ncbi.nlm.nih.gov/32934955/ | ||
| The relationship of pain and fatigue with health-related quality of life and work in patients with psoriatic arthritis on TNFi: results of a multi-national real-world study | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/32611650/ | ||
| The burden of pain associated with osteoarthritis in the hip or knee from the patient’s perspective: a multinational cross-sectional study | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/32729010/ | ||
| Real-world experience with dolutegravir-based two-drug regimens | HIV | https://pubmed.ncbi.nlm.nih.gov/32724674/ | ||
| Opioid use, rebound headache, and resource utilization among migraine patients with insufficient response to triptans based on real-world data | Migraine | AHS, 2020 | ||
| Health-related quality of life based on response to triptans in people with migraine: analysis of real-world data | Migraine | AHS, 2020 | ||
| Factors associated with insufficient response to acute treatment of migraine in Japan: analysis of real-world data from the Adelphi Migraine Disease Specific Programme | Migraine | https://pubmed.ncbi.nlm.nih.gov/32641075/ | ||
| A real-world observational study to describe NHS resource use for the management of moderate-to-severe atopic dermatitis in secondary care for children and adolescents aged 6 to 17 | Atopic dermatitis | BAD, 2020 | ||
| A Real-world analysis of patient characteristics, treatment patterns and level of impairment in patients with migraine who are insufficient responders versus responders to acute treatment | Migraine | https://pubmed.ncbi.nlm.nih.gov/32510611/ | ||
| Utilization of low vs high dose of newer antihyperglycemic agents | Diabetes | ADA, 2020 | ||
| Use of opioids in patients with sickle cell disease (SCD): a country and age analysis of the International Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | EHA, 2020 | ||
| Use and switching of biologic therapy in patients with non-radiographic axial spondyloarthritis: a patient and provider survey in the United States | Axial spondyloarthritis | https://pubmed.ncbi.nlm.nih.gov/32328928/ | ||
| Usage of C-reactive protein testing in the diagnosis and monitoring of psoriatic arthritis (PsA): results from a real-world survey in the US and Europe | Psoriatic arthritis | EULAR, 2020 | ||
| Understanding current prescription drug treatment paradigms for patients with osteoarthritis in Europe | Osteoarthritis | EULAR, 2020 | ||
| Treatment and disease management practices in patients with MPNs in 6 countries: an expansion of the MPN Landmark Survey | Myeloproliferative neoplasms | EHA, 2020 | ||
| The impact of osteoarthritis disease severity on healthcare resource use: analysis of real-world European data | Osteoarthritis | EULAR, 2020 | ||
| The impact of high disease activity as measured by SLEDAI and drug burden-on healthcare utilization, quality of life and work productivity in systemic lupus erythematosus patients | Systemic lupus erythematosus | EULAR, 2020 | ||
| Skin involvement in psoriatic arthritis (PsA) - the incremental impact of psoriasis on quality of life, disability and work productivity: real-world survey in US and Europe | Psoriatic arthritis | EULAR, 2020 | ||
| Physician-patient alignment in satisfaction with psoriatic arthritis treatment in Latin America | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/31993888/ | ||
| Physician attitudes towards diagnosing anaemia, treatment initiation and the current unmet need in the management and treatment of anaemia: interim results from a cross-sectional real-world survey in Germany, Italy and the UK | Chronic kidney disease | ERA-EDTA, 2020 | ||
| Patients’ reported perceptions on satisfaction with immune thrombocytopenia treatments: results from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | EHA, 2020 | ||
| Patient-reported physical, emotional and economic impact of myeloproliferative neoplasms in an expansion of the MPN Landmark Survey | Myeloproliferative neoplasms | EHA, 2020 | ||
| Patient journey to diagnosis of Ankylosing Spondylitis (AS) and its treatment patterns across Central Eastern Europe and the United States | Axial spondyloarthritis | EULAR, 2020 | ||
| Patient and healthcare professional perceptions of the impact of sickle cell disease on daily life, symptom burden and treatment: results from the International Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | EHA, 2020 | ||
| Levels of satisfaction with rheumatoid arthritis treatment and associated alignment between physicians and patients across Latin America | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/32030635/ | ||
| Incidence and management of vaso-occlusive crises in patients with sickle cell disease: a country and age analysis of the International Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | EHA, 2020 | ||
| Impact of immune thrombocytopenia on emotional wellbeing: a patient’s perspective from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | EHA, 2020 | ||
| Impact of flares on healthcare resource usage and PROs in systemic lupus erytematosus patients | Systemic lupus erythematosus | EULAR, 2020 | ||
| How does osteoarthritis pain impact function, mobility and requirement for help in daily activities in European patients? | Osteoarthritis | EULAR, 2020 | ||
| Higher symptom burden in patients with immune thrombocytopenia experiencing fatigue: results from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | EHA, 2020 | ||
| Flares among patients with psoriatic arthritis (PsA) - Frequency and impact on patient outcomes: real-world survey in the US and Europe | Psoriatic arthritis | EULAR, 2020 | ||
| Diagnostic cluster profiling of patients in a real-world data set with systemic lupus erythematosus | Systemic lupus erythematosus | EULAR, 2020 | ||
| Content validity of MANAGE-PD tool: real-world evidence from PD patients in G7 countries | Parkinson’s disease | IAPRD, 2020 | ||
| Comparing symptoms, treatment patterns, and quality of life of ankylosing spondylitis patients and non-radiographic axial spondyloarthritis in Japan | Various | EULAR, 2020 | ||
| Burden of joint-related complications in moderate to severe hemophilia A and B without inhibitors | Hemophilia | WFH, 2020 | ||
| Assessment of the benefits of achieving complete versus almost complete skin clearance in psoriasis: a patient’s perspective | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/32432957/ | ||
| Anxiety and depression in psoriatic arthritis (PsA) - Prevalence and impact on patient reported outcomes: real-world survey in the US and Europe | Psoriatic arthritis | EULAR, 2020 | ||
| Work productivity impact across four types of cancer: real-world evidence | Various | ISPOR US, 2020 | ||
| Treatment outcomes in locally advanced squamous cell carcinoma of head and neck patients who subsequently progressed: real-world evidence from Europe and the US | Head and neck cancer | ISPOR US, 2020 | ||
| The impact of severe vasomotor symptoms on work productivity and activity impairment: findings from a US real world study | Menopause | ISPOR US, 2020 | ||
| The burden of incremental “off” hours on caregivers of patients with Parkinson’s disease: a neurologist⁄patient⁄caregiver real-world assessment in the US | Parkinson’s disease | ISPOR US, 2020 | ||
| Relationship between progressive supranuclear palsy and healthcare resource utilization | Progressive supranuclear palsy | ISPOR US, 2020 | ||
| Real-world treatment patterns in patients with advanced (stage III IV) ovarian cancer in the United States and Europe | Ovarian cancer | https://pubmed.ncbi.nlm.nih.gov/32326746/ | ||
| Real-world treatment patterns and outcomes in US patients newly diagnosed with glioblastoma multiforme (GBM) by O6-methylguanine DNA methyltransferase promotor (MGMT) status | Glioblastoma multiforme | ISPOR US, 2020 | ||
| Real-world experience of subcutaneous belimumab treatment for systemic lupus erythematosus - a cross-sectional survey of rheumatologists and their patients | Systemic lupus erythematosus | ICA, 2020 | ||
| Real world evidence on patient characteristics and frontline treatment patterns in locally advanced squamous cell carcinoma of the head and neck from Europe and US | Head and neck cancer | ISPOR US, 2020 | ||
| Quantifying the diagnostic pathway for patients with cognitive impairment: real-world data from Australia | Dementia | https://pubmed.ncbi.nlm.nih.gov/31762429/ | ||
| Poor prognostic factors and their impact on treatment patterns and outcomes for women with hormone receptor-positive, human epidermal growth factor receptor-negative (HR+/HER2-) advanced breast cancer (aBC) in Canada | Breast cancer | ISPOR US, 2020 | ||
| Physician assessment of alopecia areata disease severity: results from a real-world study | Alopecia areata | SID, 2020 | ||
| Patient-reported concern, understanding and lifestyle management of non alcoholic steatohepatatis patients: a 12-country real world study | Non‐alcoholic steatohepatitis | ISPOR US, 2020 | ||
| Patient-reported and cancer-specific health-related quality of life among patients with early stage HR+/HER2- breast cancer (BC) | Breast cancer | ESMO BC, 2020 | ||
| Patient (pt) demographics, treatment patterns (tx) and hematologic (heme) toxicities among pts with HER2− advanced breast cancer (ABC) and BRCA1/2 mutation(s) (BRCA1/2mut): A multi-country real-world (RW) study | Breast cancer | ESMO BC, 2020 | ||
| Multinational, cross-sectional survey of healthcare resource utilisation in patients with all stages of cognitive impairment, analysed by disease severity, country and geographical region | Dementia | https://pubmed.ncbi.nlm.nih.gov/32390613/ | ||
| Latent class analysis (LCA) to identify and describe clinically relevant subgroups in a multinational study of patients with HR+/HER2- early breast cancer (eBC) | Breast cancer | ESMO BC, 2020 | ||
| Impact of sickle cell disease symptoms on patients' daily lives in the US - patients from the sickle cell world assessment survey (SWAY) | Sickle cell disease | ISPOR US, 2020 | ||
| Healthcare resource utilisation and health outcomes among young patients with heart failure: a contemporary real-world US study | Chronic heart failure | ESC-HF, 2020 | ||
| Health related quality of life among patients with early breast cancer: a multinational study | Breast cancer | ISPOR US, 2020 | ||
| Germline BRCA1/2 (gBRCA1/2) testing patterns among oncologists (ONC) treating HER2- advanced breast cancer (ABC): results from a multi-country real-world study | Breast cancer | ESMO BC, 2020 | ||
| First line treatment with natalizumab reduces healthcare resource use and impairment of work productivity and activity impairment in relapsing-remitting Multiple Sclerosis (RRMS) patients compared to natalizumab delayed use | Multiple sclerosis | ISPOR US, 2020 | ||
| Discordance between psychiatrists and their patients on disease severity and treatment outcomes in schizophrenia | Schizophrenia | ISPOR US, 2020 | ||
| Discordance between psychiatrists and their patients on disease severity and treatment outcomes in schizophrenia | Schizophrenia | ACCP, 2020 | ||
| Development of a cross-walk of the Assessment of Spondyloarthritis International Society Health Index (ASAS HI) and Ankylosing Spondylitis Quality of Life (ASQoL) scores using data from patients with ankylosing spondylitis and non-radiographic axial spondyloarthritis | Axial spondyloarthritis | ISPOR US, 2020 | ||
| Describing patients with primary sjogren's syndrome - analysis of real-world data from the Adelphi Disease Specific Programme | Sjogren's syndrome | ICA, 2020 | ||
| Deleterious impact of advanced nonalcoholic steatohepatitis on multiple patient-relevant outcomes: an international, cross-sectional, real-world study | Non‐alcoholic steatohepatitis | DDW, 2020 | ||
| Comparing work productivity and activity impairment outcomes among patients with Multiple Sclerosis treated with ocrelizumab vs other disease-modifying therapies | Multiple sclerosis | ISPOR US, 2020 | ||
| Burden of illness in patients with chronic hypoparathyroidism not adequately controlled with conventional therapy: european subanalysis of a global patient survey | Hypoparathyroidism | ECE, 2020 | ||
| Alignment of IBD symptoms reported by patients and their treating physicians in the US | Inflammatory Bowel Disease | DDW, 2020 | ||
| A real-world study of the patient experience with abaloparatide | Osteoporosis | ISPOR US, 2020 | ||
| A multinational study of real-world treatment patterns among patients with early stage HR+/HER2- breast cancer (BC) | Breast cancer | ESMO BC, 2020 | ||
| UK results from the International Sickle Cell World Assessment Survey (SWAY): patients with sickle cell disease (SCD) experience work impairment and decreased productivity | Sickle cell disease | BSH, 2020 | ||
| UK patient perceptions on the symptomatic and emotional burden of vaso-occlusive crises resulting from sickle cell disease | Sickle cell disease | BSH, 2020 | ||
| The impact of immune thrombocytopenia (ITP) on activities of daily living: findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | BSH, 2020 | ||
| Symptom burden in immune thrombocytopenia (ITP): findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | BSH, 2020 | ||
| Real-world outcomes associated with standard half-life and extended half-life factor replacement products for treatment of haemophilia A and B | Hemophilia | https://pubmed.ncbi.nlm.nih.gov/32271314/ | ||
| Real-world experience with an IL-17a blocker in biologic-naïve and biologic-experienced radiographic and non-radiographic axial spondyloarthritis patients | Axial spondyloarthritis | BSR, 2020 | ||
| Patterns of genetic testing in Huntington’s disease | Huntington disease | AMCP, 2020 | ||
| Patients’ and physicians’ perceptions of treatments and goal setting in immune thrombocytopenia (ITP): findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | BSH, 2020 | ||
| Patients’ and health care professionals’ perspectives on treatment goals in sickle cell disease – a UK perspective: results from the international sickle cell world assessment survey (SWAY) | Sickle cell disease | BSH, 2020 | ||
| Patient and physician perspectives on the care and assistance needs in Huntington’s disease | Huntington disease | AMCP, 2020 | ||
| Living with ulcerative colitis in Germany: a retrospective analysis of dose escalation, concomitant treatment use and healthcare costs | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/31858853/ | ||
| Health-related quality of life based on response to triptans in people with migraine - analysis of real-world data | Migraine | AAN, 2020 | ||
| Effect of genotype on the impact of sickle cell disease and burden of vaso-occlusive crises: results from the International Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | GCSCD, 2020 | ||
| Direct healthcare costs among heart failure patients with reduced and preserved ejection fraction in the US | Chronic heart failure | AMCP, 2020 | ||
| Burden of comorbid depression and anxiety on work productivity in adult migraine patients in the United States | Migraine | AMCP, 2020 | ||
| Burden of comorbid depression and anxiety on HRQOL in adult migraine patients in the US | Migraine | AMCP, 2020 | ||
| Assessing the relationship between patient-reported psoriasis treatment satisfaction and work productivity | Psoriasis | AMCP, 2020 | ||
| A novel, integrative approach for evaluating progression in multiple sclerosis: development of a scoring algorithm | Multiple sclerosis | https://pubmed.ncbi.nlm.nih.gov/32286236/ | ||
| A global real-world assessment of the impact on health-related quality of life and work productivity of migraine in patients with insufficient versus good response to triptan medication | Migraine | https://pubmed.ncbi.nlm.nih.gov/32349662/ | ||
| Unmet needs in ankylosing spondylitis patients receiving tumour necrosis factor inhibitor therapy; results from a large multinational real-world study | Axial spondyloarthritis | https://pubmed.ncbi.nlm.nih.gov/32159075/ | ||
| Treatment patterns and clinical outcomes in patients receiving palbociclib combinations as first line treatment for aBC/mBC in real-world settings in Latin America | Breast cancer | MBCC, 2020 | ||
| Real-world study of patient demographics, clinical characteristics, and BRCA1/2 testing in HER2-negative (HER2–) advanced breast cancer (ABC) in the US and Europe | Breast cancer | MBCC, 2020 | ||
| Real-world clinical outcomes associated with palbociclib combination therapy in Canada: results from the IRIS study | Breast cancer | MBCC, 2020 | ||
| Nasal polyp symptoms: how well do physicians know their patients? | Nasal polyps | AAAAI, 2020 | ||
| Impact of chronic kidney disease and anemia on health-related quality of life and work productivity: analysis of multinational real-world data | Chronic kidney disease | https://pubmed.ncbi.nlm.nih.gov/32143582/ | ||
| Heart failure hospitalizations and urgent heart failure visits for patients with heart failure in a real world population in the US | Chronic heart failure | ACC, 2020 | ||
| Availability of fractional exhaled nitric oxide (FeNO) and eosinophil (EOS) count data among patients with severe asthma in five European countries | Asthma | AAAAI, 2020 | ||
| Triptan use and associated patient-reported outcomes in patients with migraine | Migraine | PPADHP, 2020 | ||
| Treatment duration and response in patients with advanced renal cell carcinoma who have completed first-line treatment: results from a cross-sectional real-world study | Renal cell carcinoma | ASCO GU, 2020 | ||
| Real-world treatment persistence of non-tumor necrosis factor inhibitors versus tumor necrosis factor inhibitors among patients with rheumatoid arthritis in South Korea | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/31670976/ | ||
| Impact of sickle cell disease (SCD) symptoms on patients’ daily lives and management strategies in the Middle East: results from the International Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | SSH/PAHA, 2020 | ||
| Impact of increasing disease symptom concordance between patients with inflammatory bowel disease and their physicians: insights from US, France, Germany, Italy, Spain, and UK (5EU) | Inflammatory Bowel Disease | ECCO, 2020 | ||
| Burden of illness in not adequately controlled chronic hypoparathyroidism - findings from a 13 country patient and caregiver survey | Hypoparathyroidism | https://pubmed.ncbi.nlm.nih.gov/31721256/ | ||
| A mixed methods approach towards understanding key disease characteristics with the progression of RRMS to SPMS - physicians and patients views | Multiple sclerosis | https://pubmed.ncbi.nlm.nih.gov/31865132/ | ||
| Treatment patterns among patients with moderate-to-severe ulcerative colitis in the United States and Europe | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/31945774/ | ||
| The association between disease activity and patient-reported outcomes in patients with moderate-to-severe ulcerative colitis in the United States and Europe | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/31964359/ | ||
| Impact of atopic dermatitis lesion location on quality of life in adult patients - results from a real-world study | Atopic dermatitis | WCD, 2020 | ||
| Patterns of genetic testing in Huntington's disease | Huntington disease | HSG, 2019 | ||
| Patient and physician perspectives on the care and assistance needs in Huntingdon's disease | Huntington disease | HSG, 2019 | ||
| Impact on work status of people caring for someone with Huntington's disease | Huntington disease | HSG, 2019 | ||
| Real-world bevacizumab utilization and outcomes in first line ovarian cancer | Ovarian cancer | ASCO, 2019 | ||
| Treatment patterns of patients with advanced renal cell carcinoma receiving first-line treatment: results from a cross-sectional real-world study | Renal cell carcinoma | ESMO, 2019 | ||
| Physicians’ and patients’ perspectives on treatments in ITP – A multi-country perspective: results from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | ASH, 2019 | ||
| Patient characteristics, treatment outcomes and healthcare resource utilization across Europe in multiple myeloma patients ineligible for stem cell transplantation who received lenalidomide or bortezomib-base regimens | Multiple myeloma | ASH, 2019 | ||
| Management strategies and satisfaction levels in patients with sickle cell disease: final results from the International Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | ASH, 2019 | ||
| Improving access to antiretrovirals in China - economic analyses of dolutegravir in HIV-1 patients | HIV | https://pubmed.ncbi.nlm.nih.gov/31827410/ | ||
| Impact of sickle cell disease symptoms on patients’ daily lives: final results from the International Sickle Cell World Assessment Survey (SWAY) | Sickle cell disease | ASH, 2019 | ||
| What are the prescribing trends and satisfaction levels with analgesics for osteoarthritis as reported by US rheumatologists, orthopedic surgeons, and primary care physicians? | Osteoarthritis | ACR, 2019 | ||
| Variations in BRCA screening and treatment patterns among ovarian cancer patients in Europe and the United States | Ovarian cancer | ESGO, 2019 | ||
| Treatment patterns and clinical characteristics of COPD patients in South Korea An analysis of the Korea COPD Subgroup Study (KOCOSS) Cohort | Chronic obstructive pulmonary disease | APSR, 2019 | ||
| The relationship between pruritus, sleep disruption and quality of life among patients with moderate-to-severe atopic dermatitis | Atopic dermatitis | WCI, 2019 | ||
| Real world multi-country retrospective study of treatment travel time and work productivity and activity impairment among HER2 negative advanced breast cancer patients and BRCA1/2 mutation(s) | Breast cancer | ISPOR EU, 2019 | ||
| Real world health related quality of life for first line recurrent/metastases squamous cell carcinoma of the head and neck patients | Head and neck cancer | ISPOR EU, 2019 | ||
| Real world effectiveness of secukinumab in patients with ankylosing spondylitis: findings from a recent cross-sectional survey of rheumatologists and patients in Europe | Axial spondyloarthritis | ACR, 2019 | ||
| Physician rationale for prescribing tyrosine kinase inhibitors and immuno-oncology treatments in the first-line treatment of advanced renal cell carcinoma in the United States: results from a cross-sectional real-world survey | Renal cell carcinoma | IKCS, 2019 | ||
| Patient-reported quality of life in dialysis compared with non-dialysis CKD patients with hyperkalemia in the USA and EU5: results from the KDQOL | Chronic kidney disease | ASN, 2019 | ||
| Medication use and reasons for switching biologic therapy in patients with non-radiographic axial spondyloarthritis: findings from a US survey | Axial spondyloarthritis | ACR, 2019 | ||
| Living with ulcerative colitis in Japan - biologic persistence and healthcare resource utilization | Inflammatory Bowel Disease | JDDW, 2019 | ||
| Inter-regional inequality in Italian healthcare delivery affects choice of selective estrogen receptor modulators (SERMS) for the treatment of hormone-receptor-positive breast cancer | Breast cancer | ISPOR EU, 2019 | ||
| Impact of the follicular lymphoma (FL) treatment continuum on patient quality of life (QoL) in Europe (EU5) | Follicular lymphoma | ISPOR EU, 2019 | ||
| Impact of enthesitis on patient reported outcomes and physician satisfaction with treatment: data from a multinational patient and physician survey | Psoriatic arthritis | ACR, 2019 | ||
| Healthcare resource utilisation (HCRU) associated with transcatheter arterial chemoembolisation (TACE) treatment in intermediate stage hepatocellular carcinoma (HCC) patients in Europe | Hepatocellular carcinoma | ISPOR EU, 2019 | ||
| Exploring pre and post agenzia italiana del farmaco (AIFA) reimbursed access to immunotherapy for the treatment of squamous cell carcinoma of the head and neck (SCCHN) | Squamous cell carcinoma of the head and neck | ISPOR EU, 2019 | ||
| Exacerbation frequency and eosinophil counts among patients with COPD currently prescribed triple therapycurrently prescribed multiple inhaler triple therapy (MITT) | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/31819403/ | ||
| European real-world treatment patterns of systemic therapies for second line (2L) hepatocellular carcinoma (HCC) patients who previously received sorafenib | Hepatocellular carcinoma | ISPOR EU, 2019 | ||
| Enthesitis, dactylitis, and axial disease in psoriatic arthritis (PsA): impact on patient quality of life and work productivity | Psoriatic arthritis | ACR, 2019 | ||
| Enthesitis frequency and treatment patterns in patients with psoriatic arthritis in Europe and Japan | Psoriatic arthritis | ACR, 2019 | ||
| Differences in clinical characteristics, quality of life, disability, and work productivity in psoriatic arthritis patients by gender: findings from a cross-sectional survey in the US and Europe | Psoriatic arthritis | ACR, 2019 | ||
| Differences across heart failure patients' characteristics, disease experience and quality of life in Shanghai compared with the rest of China | Chronic heart failure | ISPOR EU, 2019 | ||
| Data availability and quality in Asia Pacific: assessment and implications for horizon scanning | Various | HTAi, 2019 | ||
| Comparing symptoms, treatment patterns, and quality of life of non-radiographic axial spondyloarthritis and ankylosing spondylitis patients: findings from a US survey | Axial spondyloarthritis | ACR, 2019 | ||
| Cluster profiling of patients in a real-world data set with systemic lupus erythematosus and their associated treatments | Systemic lupus erythematosus | ACR, 2019 | ||
| Characteristics and treatment patterns of a real-world lupus nephritis cohort based on primary physician specialty | Lupus nephritis | ASN, 2019 | ||
| Burden of comorbid depression and anxiety on work productivity in adult migraine patients in the US | Migraine | ISPOR EU, 2019 | ||
| Burden of comorbid depression and anxiety on HRQOL in adult migraine patients in the US | Migraine | ISPOR EU, 2019 | ||
| BRCA screening and burden of treatment in patients receiving active therapy for ovarian cancer | Ovarian cancer | ESGO, 2019 | ||
| Association between patients’ perception of their asthma control and the symptomatic burden of asthma | Asthma | ACAAI, 2019 | ||
| Assessing the impact of hyperkalemia on the quality of life of dialysis patients compared with non-dialysis patients: results from a real world study in the US and EU5 | Chronic kidney disease | ASN, 2019 | ||
| Assessing the humanistic and economic burden of enthesitis among patients with peripheral and axial spondyloarthritis: results from a multi-national real world survey database | Axial spondyloarthritis | ACR, 2019 | ||
| A retrospective chart review study to quantify the monthly medical resource use and costs of treating patients with treatment resistant depression in the United Kingdom | Depression | ISPOR EU, 2019 | ||
| Work productivity loss and associated indirect costs for patients with ulcerative colitis in the US | Inflammatory Bowel Disease | AMCP, 2019 | ||
| Work productivity loss and associated indirect costs for patients with Crohn's Disease in the US | Inflammatory Bowel Disease | AMCP, 2019 | ||
| To assess the level of unmet need within ulcerative colitis (UC) patients currently prescribed biologic treatment and patients prescribed conventional treatments in Europe and the USA | Inflammatory Bowel Disease | ACG, 2019 | ||
| The multifaceted impact of anxiety and depression on patients with rheumatoid arthritis arthritis | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/31673680/ | ||
| The diagnostic pathway from cognitive impairment to dementia in Japan: quantification using real-world data | Dementia | https://pubmed.ncbi.nlm.nih.gov/31135457/ | ||
| Relationship between progressive supranuclear palsy and caregiver burden and quality of life | Progressive supranuclear palsy | NORD, 2019 | ||
| Relationship between partial Mayo Score and patient-reported outcomes for UC patients in the US using the Adelphi Real-World Disease Specific Programme | Inflammatory Bowel Disease | ACG, 2019 | ||
| Relationship between Crohn’s Disease Activity Index and patient-reported outcomes for CD patients in the US using the Adelphi Real-World Disease Specific Programme | Inflammatory Bowel Disease | ACG, 2019 | ||
| Real world experience with dolutegravir plus rilpivirine two-drug regimen | HIV | IDWeek, 2019 | ||
| Living with ulcerative colitis in Germany - exploring concomitant steroid and immunosuppressant use among patients with moderate to severe ulcerative colitis’ | Inflammatory Bowel Disease | UEGW, 2019 | ||
| Living with ulcerative colitis in Germany - estimating the frequency and extent of dose escalations among patients with moderate to severe ulcerative colitis | Inflammatory Bowel Disease | UEGW, 2019 | ||
| Impact of myeloproliferative neoplasms (MPNs) and perceptions of treatment goals among physicians and patients in 6 countries: an expansion of the MPN Landmark Survey | Myeloproliferative neoplasms | EHOC, 2019 | ||
| Impact of fractures on quality of life in patients with osteoporosis: a US cross-sectional survey | Osteoporosis | https://pubmed.ncbi.nlm.nih.gov/31692954/ | ||
| Impact of atopic dermatitis lesion location on quality of life in adult patients - results from a real-world study | Atopic dermatitis | EADV, 2019 | ||
| Health-related quality of life based on response to triptans in people with migraine | Migraine | AMCP, 2019 | ||
| Characteristics of patients with dyslipidemia treated in routine care setting in China | Dyslipidemia | https://pubmed.ncbi.nlm.nih.gov/31723453/ | ||
| Assessing the level of unmet need amongst ulcerative colitis patients in the US and EU | Inflammatory Bowel Disease | ACG, 2019 | ||
| Adult patients with mild or moderate atopic dermatitis are significantly impacted by their condition: results from a real-world study in the United States | Atopic dermatitis | AMCP, 2019 | ||
| What matters most in diagnosis and monitoring of osteoarthritis by physician specialty | Osteoarthritis | Pain Week, 2019 | ||
| Triptan use and associated patient reported outcomes in migraine patients | Migraine | IHC, 2019 | ||
| The impact of progressive supranuclear palsy disease severity on HCRU | Progressive supranuclear palsy | ICPDMD (MDS), 2019 | ||
| The impact of progressive supranuclear palsy disease severity on caregivers | Progressive supranuclear palsy | ICPDMD (MDS), 2019 | ||
| The impact of osteoarthritis disease severity on current healthcare resource utilisation in the EU - Results from a real-world study | Osteoarthritis | EFIC, 2019 | ||
| The impact of osteoarthritis disease severity on current healthcare resource utilisation in Japan - Results from a real world study | Osteoarthritis | EFIC, 2019 | ||
| Remote monitoring of patient-reported outcomes in ulcerative colitis - a prospective real world study | Inflammatory Bowel Disease | https://pubmed.ncbi.nlm.nih.gov/30900117/ | ||
| Relationship between progressive supranuclear palsy and caregiver burden | Progressive supranuclear palsy | ICPDMD (MDS), 2019 | ||
| Physician and patient reporting of depression and anxiety in a US pulmonary arterial hypertension population | Pulmonary arterial hypertension | ERS, 2019 | ||
| Physician and patient concordance of perceived asthma control - a US real world study | Asthma | ERS, 2019 | ||
| Patient and physician perspectives on the care and assistance needs in Huntingdon's disease | Progressive supranuclear palsy | ICPDMD (MDS), 2019 | ||
| Opiod use for the treatment of osteoarthritis among PCPs, rheumatologists and orthopedic surgeons | Osteoarthritis | Pain Week, 2019 | ||
| Medication use and reasons for switching biologic therapy in patients with non-radiographic axial spondyloarthritis: findings from a global survey | Axial spondyloarthritis | ISPOR LA, 2019 | ||
| Measuring the severity of osteoarthritis - do patients and physicians agree | Osteoarthritis | Pain Week, 2019 | ||
| Impact of caring for patients with Huntington's disease on work status | Progressive supranuclear palsy | ICPDMD (MDS), 2019 | ||
| Current treatment patterns among patients with osteoarthritis in Japan: analysis of a real-world dataset | Osteoarthritis | EFIC, 2019 | ||
| Current treatment patterns among patients in Japan with chronic low back pain: analysis of real-world data | Chronic lower back pain | EFIC, 2019 | ||
| Current treatment patterns among patients in Europe with chronic low back pain: analysis of real world data | Chronic lower back pain | EFIC, 2019 | ||
| Current treatment patterns among European patients with osteoarthritis: analysis of a real-world dataset | Osteoarthritis | EFIC, 2019 | ||
| Comparing quality of life, symptoms, and treatment patterns of non-radiographic axial spondyloarthritis and ankylosing spondylitis patients: findings from a global survey | Various | ISPOR LA, 2019 | ||
| Comorbidities, hypersensitivity and biomarkers in a real-world US nasal polyps population | Nasal polyps | ERS, 2019 | ||
| Clinical characteristics and PROs among chronic rhinosinusitis with nasal polyps patients with a history of sinus surgery | Nasal polyps | ARS, 2019 | ||
| Burden of comorbid depression and anxiety on HRQOL in adult migraine patients in the US | Migraine | IHC, 2019 | ||
| BRCA 1/2 testing in HER2 advanced breast cancer - results from the European component of a multi-country real world study | Breast cancer | ESMO, 2019 | ||
| Adherence to ESMO 2014 guidelines on bone-targeting agent initiation for breast and prostate cancer patients - real world insights from practising European physicians | Breast cancer | ESMO, 2019 | ||
| Acute and preventive treatment patterns in episodic cluster headache - findings from the United States, United Kingdom and Germany | Cluster headache | IHC, 2019 | ||
| A real-world study of the patient experience of osteoporosis following treatment with abaloparatide | Osteoporosis | ASBMR, 2019 | ||
| A real-world study of the patient experience of osteoporosis following treatment with abaloparatide | Osteoporosis | ASBMR, 2019 | ||
| UK results from the myeloproliferative neoplasms (MPN) landmark survey on the symptom, emotional and economic burden of MPN | Myeloproliferative neoplasms | https://pubmed.ncbi.nlm.nih.gov/30854625/ | ||
| Exploring the real-world profile of refractory and non-refractory chronic idiopathic urticaria in the USA - clinical burden and healthcare resource use | Urticaria | https://pubmed.ncbi.nlm.nih.gov/30793986/ | ||
| The prevalence and type of discordance between physician perception and objective data from standardized measure of rheumatoid arthritis disease activity in the US | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/31312786/ | ||
| The humanistic burden of advanced non-small cell lung cancer (NSCLC) in Europe – a real-world survey linking patient clinical factors to patient and caregiver burden | Non-small cell lung cancer | https://pubmed.ncbi.nlm.nih.gov/30825160/ | ||
| Mapping the kidney disease QoL 36-item short form survey (KDQOL-36) to EQ5D-3L and EQ5D-5L in patients undergoing dialysis | Chronic kidney disease | https://pubmed.ncbi.nlm.nih.gov/31338698/ | ||
| Healthcare resource use and humanistic burden associated with attack frequency in episodic cluster headache | Cluster headache | AHS, 2019 | ||
| Features of episodic cluster headache in the real world setting - clinical characteristics from a large, multi-national cross-sectional survey | Cluster headache | AHS, 2019 | ||
| Behavioural symptoms and disturbances in dementa - a highly prevalent condition | Dementia | AAIC, 2019 | ||
| Awareness of and compliance with Domperidone revised labelling after a risk-minimization in Europe | Nausea | https://pubmed.ncbi.nlm.nih.gov/31325111/ | ||
| Acute and preventive treatment patterns in episodic cluster headache - findings from the United States, United Kingdom and Germany | Cluster headache | AHS, 2019 | ||
| A real-world assessment of the impact on the health-related quality of life and work productivity of triptan non-responders compared with responders: results from a global study | Migraine | AHS, 2019 | ||
| Unmet needs in psoriatic arthritis patients receiving immunomodulatory therapy: results from a large multinational real-world study | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/30719594/ | ||
| Treatment approaches in myelofibrosis: a survey of haematologists in Australia | Myelofibrosis | ESH, 2019 | ||
| The burden of osteoarthritis pain from the patient’s perspective in Europe | Osteoarthritis | EULAR, 2019 | ||
| Relative impact of joint and skin symptoms on quality of life and work productivity in psoriatic arthritis (PsA) patients | Psoriatic arthritis | EULAR, 2019 | ||
| Real-world treatment patterns and patient-reported outcomes in episodic and chronic migraine in Japan: analysis of data from the Adelphi migraine disease specific programme | Migraine | https://pubmed.ncbi.nlm.nih.gov/31174464/ | ||
| Real world physician satisfaction with secukinumab in psoriatic arthritis and ankylosing spondylitis in Europe | Various | EULAR, 2019 | ||
| Quantifying the relative importance of COPD symptoms to patients | Chronic obstructive pulmonary disease | HTAi, 2019 | ||
| Physicians’ perceptions on causes of primary and secondary ITP and leading causes of misdiagnosis: results from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | EHA, 2019 | ||
| Patient perceptions on splenectomy outcomes: results from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | EHA, 2019 | ||
| Lack of consistent standard of care in systemic lupus erythematosus patients in real world | Systemic lupus erythematosus | EULAR, 2019 | ||
| Impact of sickle cell disease from patients’ and physicians’ perspectives: results from the international sickle cell world assessment survey (SWAY) | Sickle cell disease | EHA, 2019 | ||
| Impact of myeloproliferative neoplams (MPNs) and perceptions of treatment goals among physicians and patients in 6 countires - an expansion of the MPN Landmark Survey | Myeloproliferative neoplasms | EHA, 2019 | ||
| Impact of hypoglycemic episodes (Hypos) on type 1 diabetes mellitus (T1DM) | Diabetes | ADA, 2019 | ||
| Gender differences in disease status, quality of life and treatment patterns in axial spondyloarthritis patients: findings from a global survey | Axial spondyloarthritis | EULAR, 2019 | ||
| Features of episodic cluster headache in the real world setting - clinical characteristics from a large, multi-national cross-sectional survey | Cluster headache | EAN, 2019 | ||
| Enthesitis, dactylitis, and axial disease in psoriatic arthritis (PsA): impact on patient quality of life and work productivity | Psoriatic arthritis | EULAR, 2019 | ||
| Disease course and treatment patterns in progressive supranuclear palsy | Progressive supranuclear palsy | IAPRD, 2019 | ||
| Differences in perceptions on treatment approaches between physicians and ITP patients: Results from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | EHA, 2019 | ||
| Differences in clinical characteristics, quality of life, disability, and work productivity in psoriatic arthritis patients by gender: findings from a cross-sectional survey in the US and Europe | Psoriatic arthritis | EULAR, 2019 | ||
| Cluster profiling of patients in a real-world data set with systemic lupus erythematosus and their associated treatments | Systemic lupus erythematosus | EULAR, 2019 | ||
| Assessing the prevalence and use of validated systemic lupus erythematosus disease activity metrics in real world practice | Systemic lupus erythematosus | EULAR, 2019 | ||
| Acute and preventive treatment patterns in episodic cluster headache: findings from the United States, United Kingdom and Germany | Cluster headache | EAN, 2019 | ||
| Acute and preventive treatment patterns among patients with migraine in Spain | Migraine | AES, 2019 | ||
| A real-world cross-sectional community survey of symptoms and health-related quality of life of adults with acute myeloid leukemia | Acute myeloid leukemia | https://pubmed.ncbi.nlm.nih.gov/30912462/ | ||
| Use of an Adelphi Disease Specific Programme to assess the impact of institute for clinical and economic review report publication on specialty category management by US insurers; a physician-based approach | Psoriasis | ISPOR US, 2019 | ||
| Understanding the real-world clinical characteristics and treatment patterns of follicular lymphoma patients in EU5 markets | Follicular lymphoma | ISPOR US, 2019 | ||
| Treatment patterns in patients with acute myeloid leukemia in the United States: a cross-sectional, real-world survey | Acute myeloid leukemia | https://pubmed.ncbi.nlm.nih.gov/30712406/ | ||
| The impact of anxiety and depression in type 1 diabetes mellitus (T1DM) patients who experience severe hypoglycemic episodes (hypos) | Diabetes | ISPOR US, 2019 | ||
| The humanistic burden associated with caring for patients with advanced non-small cell lung cancer (NSCLC) in three European countries—a real-world survey of caregivers | Non-small cell lung cancer | https://pubmed.ncbi.nlm.nih.gov/30121787/ | ||
| The burden of osteoarthritis pain from the patient’s perspective in the United States | Osteoarthritis | OARSI, 2019 | ||
| The burden of non-motor symptoms on healthcare resource utilisation among patients with Parkinson's disease: a neurologist/patient real-world assessment in the US | Parkinson’s disease | ISPOR US, 2019 | ||
| Real-world treatment patterns and clinical outcomes in patients receiving palbociclib for hormone receptor-positive, human epidermal growth factor receptor 2-negative advanced or metastatic breast cancer in Argentina: the IRIS study | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/31050919/ | ||
| Real-world productivity, healthcare resource utilization (HCRU) and quality of life (QOL) in patients receiving first-line treatment for advanced gastric cancer (GC) in Canada and Europe | Gastric cancer | ISPOR US, 2019 | ||
| Real-world experience with dolutegravir-based two-drug regimens | HIV | ISPOR US, 2019 | ||
| Real world treatment patterns for first line (1L) recurrent/metastatic (R/M) squamous cell carcinoma of the head and neck (SCCHN) patients | Squamous cell carcinoma of the head and neck | ISPOR US, 2019 | ||
| Psychometric evaluation and score interpretation of the NCCN-FACT ovarian symptom index-18 in patients with advanced ovarian cancer: Real-world evidence | Ovarian cancer | ISPOR US, 2019 | ||
| Physician perceptions about barriers to prompt diagnosis of mild cognitive impairment and Alzheimer's Disease | Alzheimer's disease | https://pubmed.ncbi.nlm.nih.gov/31263595/ | ||
| Opioid use, rebound headache, and resource utilization among migraine patients with insufficient response to triptans based on real-world data | Migraine | AAN, 2019 | ||
| Impact of chronic hypoparathyroidism on HRQoL, symptoms, employment and relationships - findings from a 13-country patient survey | Hypoparathyroidism | ECE, 2019 | ||
| Impact of BRCA1/2 mutations status on patient reported outcomes in HER2- advanced breast cancer: Results from a multi-country real-world study | Breast cancer | ESMO BC, 2019 | ||
| Impact of BRCA1/2 mutation status on patient-reported general health status in HER2- advanced breast cancer: results from a US real-world study | Breast cancer | ISPOR US, 2019 | ||
| Healthcare resource use and humanistic burden associated with attack frequency in episodic cluster headache | Cluster headache | AAN, 2019 | ||
| Features of episodic cluster headache in the real world setting: clinical characteristics from a large, multi-national, cross-sectional survey | Cluster headache | AAN, 2019 | ||
| Factors associated with and implications of meeting or not meeting HbA1c targets in type 2 diabetes mellitus | Diabetes | ISPOR US, 2019 | ||
| Development of a conceptual framework qualitative RWD-based needs assessment of PROs in ulcerative colitis | Inflammatory Bowel Disease | ISPOR US, 2019 | ||
| Comparative disease burden for non-radiographic axial spondyloarthritis and ankylosing spondylitis: results from a large multi-national real world database | Various | ISPOR US, 2019 | ||
| BRCA status, treatment patterns and outcomes in HER2- advanced breast cancer (ABC): A multi-country real-world study | Breast cancer | ESMO BC, 2019 | ||
| Assessment of outcomes in partially versus fully compliant schizophrenia patients | Schizophrenia | ISPOR US, 2019 | ||
| Assessment of outcomes and symptom severity in schizophrenia patients according to physician perception of illness | Schizophrenia | ISPOR US, 2019 | ||
| An Assessment of the humanistic impact of schizophrenia in relation to caregiver and productivity burden | Schizophrenia | ISPOR US, 2019 | ||
| Acute and preventive treatment patterns in episodic cluster headache: findings from the United States, United Kingdom and Germany | Cluster headache | AAN, 2019 | ||
| A real world assessment of outcomes in schizophrenia patients according to treatment response | Schizophrenia | ISPOR US, 2019 | ||
| Real world impact of physician and patient discordance on HRQoL in US patients with acute myeloid leukemia | Acute myeloid leukemia | https://pubmed.ncbi.nlm.nih.gov/32700197/ | ||
| Physician-recommended lifestyle interventions and associated effects among NASH patients with and without CV-metabolic related comorbidities - a European real-world study | Non‐alcoholic steatohepatitis | EASL, 2019 | ||
| Inhaled corticosteroid use by exacerbations and eosinophils - a real-world COPD population | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/31114183/ | ||
| Impact of pain severity among patients with osteoarthritis on health care use in the United States | Osteoarthritis | APS, 2019 | ||
| Differences between NASH patient characterisation and management approaches - a multi-national real-world study | Non‐alcoholic steatohepatitis | EASL, 2019 | ||
| Cluster analysis of patients with SLE in the Adelphi Lupus Disease Specific Programme | Systemic lupus erythematosus | ICSLE, 2019 | ||
| Assessing the differences between psoriasis patients who are aligned with their physician on their current disease severity versus patients who are misaligned | Psoriasis | SPIN, 2019 | ||
| Alignment between physician-estimated vs objectively derived fibrosis scores in NASH - RWE suggests clinicians underestimate disease severity in secondary care | Non‐alcoholic steatohepatitis | EASL, 2019 | ||
| Symptom burden and lack of remission among adult patients with ulcerative colitis (UC): retrospective analysis of cross-sectional survey data from the US and Germany | Inflammatory Bowel Disease | ECCO, 2019 | ||
| Physician-recommended and patient-implemented lifestyle interventions among non-alcoholic steatohepatitis (NASH) patients with and without cardiovascular-metabolic (CVM) related comorbidities: A European real-world study | Non‐alcoholic steatohepatitis | DUKPC, 2019 | ||
| Physician-recommended and patient-implemented lifestyle interventions among non-alcoholic steatohepatitis (NASH) patients with and without cardiovascular-metabolic (CVM) related comorbidities: A European real-world study | Non‐alcoholic steatohepatitis | DUKPC, 2019 | ||
| Patient demographics and BRCA1/2 testing in HER2– Breast Cancer: results from the US and EU5 countries | Breast cancer | MBCC, 2019 | ||
| Opiod use, rebound headache and resource utilization among migraine patients with insufficient response to triptans based on real-world data | Migraine | AMCP, 2019 | ||
| Living with ulcerative colitis in Germany: quantifying the socioeconomic impact of moderate to severe ulcerative colitis | Inflammatory Bowel Disease | ECCO, 2019 | ||
| Living with ulcerative colitis in Germany: quantifying the healthcare resource utilisation and direct healthcare costs associated with treatment of moderate to severe ulcerative colitis | Inflammatory Bowel Disease | ECCO, 2019 | ||
| Cost burden associated with advanced non-small cell lung cancer in Europe and influence of disease stage | Non-small cell lung cancer | https://pubmed.ncbi.nlm.nih.gov/30849964/ | ||
| Burden of disease in patients with Crohn’s disease: retrospective analysis of cross-sectional survey data from the US and Germany | Inflammatory Bowel Disease | ECCO, 2019 | ||
| Burden of asthma among patients adherent to ICS/LABA - a real-world study | Asthma | https://pubmed.ncbi.nlm.nih.gov/29624458/ | ||
| BRCA1/2 status and patient characteristics, health utility/health status, and work impairment in HER2- advanced breast cancer: results from a real-world study | Breast cancer | MBCC, 2019 | ||
| Bone-targeted agent treatment patterns and the impact of bone metastases on patients with advanced breast cancer in the United States | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/30550358/ | ||
| Treatment patterns, determinants and outcomes of hemophilia | Hemophilia | EAHAD, 2019 | ||
| Real-world treatment patterns and outcomes of patients with stage IV squamous cell carcinoma of the head and neck | Head and neck cancer | https://pubmed.ncbi.nlm.nih.gov/30426780/ | ||
| Physician practice patterns associated with diagnostic evaluation of patients with suspected mild cognitive impairment and Alzheimer's disease | Alzheimer's disease | https://pubmed.ncbi.nlm.nih.gov/30937189/ | ||
| Humanistic burden of refractory and non-refractory chronic idiopathic urticaria - a real-world study in the United States | Urticaria | https://pubmed.ncbi.nlm.nih.gov/30606639/ | ||
| A real-world study assessing the use of bone-targeted agents and their impact on bone metastases in patients with prostate cancer treated in clinical practice in Europe | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/30627511/ | ||
| Results from the ITP World Impact Survey (I-WISh): Patients with immune thrombocytopenia experience impaired quality of life regarding daily activities, social interactions, emotional well-being, and working lives | Immune thrombocytopenia | ASH, 2018 | ||
| Real world treatment patterns and outcomes of patients receiving palbociclib plus fulvestrant in the US from the IRIS Study | Breast cancer | SABCS, 2018 | ||
| Real world treatment patterns and outcomes of patients receiving palbociclib plus aromatase inhibitor in the US from the IRIS study | Breast cancer | SABCS, 2018 | ||
| Patients with immune thrombocytopenia frequently experience severe fatigue but it is under-recognized by physicians: results from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | ASH, 2018 | ||
| Non-professional caregiver burden is associated with the severity of patients' cognitive impairment | Dementia | https://pubmed.ncbi.nlm.nih.gov/30521532/ | ||
| COPD treatment pathways in France: a retrospective analysis of electronic medical record data from general practitioners | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/30587961/ | ||
| Adult patients experiencing mild or moderate atopic dermatitis are significantly impacted by their condition - results from a real-world study in the US | Atopic dermatitis | ASHP, 2018 | ||
| Work productivity and EQ-5D utility of CKD patients by anemia severity | Chronic kidney disease | ISPOR EU, 2018 | ||
| Sunitinib treatment modification in first-line metastatic renal cell carcinoma: analysis of the STAR-TOR registry | Renal cell carcinoma | https://pubmed.ncbi.nlm.nih.gov/30396966/ | ||
| Reduced relapse rates and improved QoL for relapsing-remitting multiple sclerosis (RRMS) patients treated with natalizumab vs injectable therapies | Multiple sclerosis | ISPOR EU, 2018 | ||
| Reduced healthcare resource utilisation for patients treated with delayed release dimethyl fumarate vs injectable therapies: findings from a real-world cross-sectional study of MS patients | Multiple sclerosis | ISPOR EU, 2018 | ||
| Real-world treatment patterns and health outcomes in episodic and chronic migraine in Japan | Migraine | JHS, 2018 | ||
| Real world treatment patterns of patients with advanced ovarian cancer resistant or refractory to frontline platinum-based therapy | Ovarian cancer | ISPOR EU, 2018 | ||
| Real world bortezomib usage in combination with VMP as FL treatment in SCT ineligible multiple myeloma patients across 5EU | Multiple myeloma | ISPOR EU, 2018 | ||
| Real world bortezomib usage in combination with thalidomide and dexamathasone as frontline treatment in stem cell transplant eligible MM patients | Multiple myeloma | ISPOR EU, 2018 | ||
| Physician reported adherence in MS patients treated with injectable platform therapies versus delayed-release dimethyl fumarate: Findings from a real-world cross-sectional study | Multiple sclerosis | ISPOR EU, 2018 | ||
| Perceptions of heart failure symptoms, disease severity, treatment decision-making and side effects by patients and cardiologists | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/30532549/ | ||
| Peginterferon beta-1a is associated with reduced relapse rates and hospitalisation compared with other first line injectable therapies for multiple sclerosis | Multiple sclerosis | ISPOR EU, 2018 | ||
| Increased burden of multimorbidity among diabetes patients | Diabetes | ISPOR EU, 2018 | ||
| Health resource utilization across stages of Alzheimer's | Alzheimer's disease | ISPOR EU, 2018 | ||
| Health related quality of live in patients with advanced ovarian cancer resistant or refractory to frontline platinum-based therapy | Ovarian cancer | ISPOR EU, 2018 | ||
| Functional loss across stages of Alzheimer's | Alzheimer's disease | ISPOR EU, 2018 | ||
| Caregiver needs across stages of Alzheimer's | Alzheimer's disease | ISPOR EU, 2018 | ||
| Assessing real world usage of PD-1 inhibitors in advanced melanoma across EU5 | Melanoma | ISPOR EU, 2018 | ||
| Use of DLQI subdomains to measure overall work productivity loss in moderate-severe psoriasis patients | Psoriasis | AMCP, 2018 | ||
| Treatment patterns and clinical outcomes among patients receiving palbociclib with an aromatase inhibitor or fulvestrant for HR+ HER2- advanced-metastatic breast cancer in real-world settings in the US - results from the IRIS study | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/30391832/ | ||
| Treatment patterns among patients with moderate to severe ulcerative colitis in Western Europe | Inflammatory Bowel Disease | UEGW, 2018 | ||
| Treatment patterns among patients with moderate to severe ulcerative colitis in the US | Inflammatory Bowel Disease | ACG, 2018 | ||
| The burden of disease and impact of immune thrombocytopenia (ITP) on patient quality of life and productivity: Results from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | ECTH, 2018 | ||
| The association between disease activity and PROs in patients with moderate to severe ulcerative colitis in the US | Inflammatory Bowel Disease | ACG, 2018 | ||
| The association between disease activity and PROs in patients with moderate to severe ulcerative colitis in Europe | Inflammatory Bowel Disease | UEGW, 2018 | ||
| Real world treatment patterns associated wtih palbociclib combination therapy in Germany - results from the IRIS study | Breast cancer | ESMO, 2018 | ||
| Quality of life in CKD patients with hyperkalemia in the US: results from the KDQOL-36 | Chronic kidney disease | ASN, 2018 | ||
| Physical and emotional burden on caregivers of patients with heart failure in Japan | Chronic heart failure | JHFS, 2018 | ||
| Incremental hourly burden of 'off' episodes on quality of life and health resource use among patients with Parkinson's disease: A neurologist/patient real-world assessment in the US | Parkinson’s disease | ICPDMD (MDS), 2018 | ||
| HRQoL for multiple myeloma patients according to treatment strategy after autologous stem cell transplant - a cross-sectional study using EORTC, EQ-5D and My-20 scales | Multiple myeloma | https://pubmed.ncbi.nlm.nih.gov/30380358/ | ||
| Full, partial or modified - understanding relationships between permutations of the Mayo score in real-world ulcerative colitis patients | Inflammatory Bowel Disease | ACG, 2018 | ||
| From onset of symptoms to a diagnosis of hypothyroidism - the real world experience | Hypothyroidism | ATA, 2018 | ||
| Factors influencing the use of biologic therapy and adoption of treat-to-target recommendations in current EU rheumatology practice | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/30323570/ | ||
| Discordance in symptoms reported by patients with hypothyroidism versus by their patients | Hypothyroidism | ATA, 2018 | ||
| Clinical atherosclerotic cardiovascular disease (ASCVD): patient attitudes and awareness in Canada | Dyslipidemia | CAPT, 2018 | ||
| Burden of illness among patients with chronic hypoparathyroidism not adequately controlled with standard therapy by self-perception | Hypoparathyroidism | ASBMR, 2018 | ||
| Burden of heart failure on patients in Japan | Chronic heart failure | JHFS, 2018 | ||
| Associations of hemoglobin levels and quality of life in patients with chronic kidney disease | Chronic kidney disease | ASN, 2018 | ||
| Assessing the relationship between disease severity and pros in psoriasis patients in the US | Psoriasis | FCDC, 2018 | ||
| Assessing the impact of hyperkalemia on patient-reported quality of life: a global analysis of the KDQOL-36 in a real-world CKD patient population | Chronic kidney disease | ASN, 2018 | ||
| Anemia treatment patterns in chronic kidney disease - results from three international surveys among physicians | Chronic kidney disease | ASN, 2018 | ||
| A real world assessment of hospitalizations due to falls among patients with and without 'off' episodes in Parkinson's disease | Parkinson’s disease | ICPDMD (MDS), 2018 | ||
| The discrepancy between patient and physician perceptions of pain and treatment satisfaction among PLSR patients in France and Germany | Neuropathic pain | IASP WCP, 2018 | ||
| Real world disease burden in patients with dyslipidemia with-without diabetes mellitus in China | Dyslipidemia | ISPOR APAC, 2018 | ||
| Painful lumbrosacral radiculopathy: current treatment regimens and associated patient satisfaction in France and Germany | Neuropathic pain | IASP WCP, 2018 | ||
| Medication use and treatment satisfaction for trigeminal neuralgia patients in France and Germany | Neuropathic pain | IASP WCP, 2018 | ||
| Impact of mild or moderate atopic dermatitis on adult patients - results from a real-world study in 3 European countries | Atopic dermatitis | EADV, 2018 | ||
| Health care resource use by disease severity for patients with osteoarthritis in the United States | Osteoarthritis | Pain Week, 2018 | ||
| Functional performance in patients with COPD: association with treatment regimen, GOLD group, lung function, and symptom burden in a cross-sectional study | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/30233169/ | ||
| Exacerbation frequency and eosinophil levels for GOLD C and D COPD patients currently prescribed multiple inhaler triple therapy (MITT) | Chronic obstructive pulmonary disease | ERS, 2018 | ||
| Current and future opportunities for the use of real world data in the Asia Pacific region | Various | ISPOR APAC, 2018 | ||
| Cost effectiveness of dolutegravir as a first-line treatment option in the HIV-1-infected treatment-naive patients in Russia | HIV | https://pubmed.ncbi.nlm.nih.gov/30296624/ | ||
| Burden of mild and moderate atopic dermatitis - results from a real-world study in the US and Europe | Atopic dermatitis | EADV, 2018 | ||
| Assessment of the benefit of achieving complete vs almost complete skin clearance of psoriasis patients in the US - a patient perspective | Psoriasis | EADV, 2018 | ||
| Adult patients experiencing mild or moderate atopic dermatitis are significantly impacted by their condition - results from a real-world study in the US | Atopic dermatitis | EADV, 2018 | ||
| Acute and preventive treatment patterns and associated WPAI among patients with migraine in Germany | Migraine | EHC, 2018 | ||
| A real-world analysis of global patient-reported outcomes in patients with migraine | Migraine | EHC, 2018 | ||
| Nocturia diagnosis in LUTS patients is associated with decreased sleep quality, work productivity and daytime tiredness | Nocturia | ICS, 2018 | ||
| Real-world, multinational, retrospective observational survey of the ADAS-Cog and associations with healthcare resource utilization in patients with Alzheimer's disease | Dementia | https://pubmed.ncbi.nlm.nih.gov/29966202/ | ||
| Care pathways and treatment patterns for patients with heart failure in China: results from a cross-sectional survey | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/30100706/ | ||
| Using real-world data to generate reference values for patient-reported outcome meaures | Various | PSI, 2018 | ||
| Treatment patterns in psoriatic arthritis - results from a real world international study | Psoriatic arthritis | EULAR, 2018 | ||
| The burden of disease and impact of immune thrombocytopenia (ITP) on patient quality of life and productivity: Results from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | EHA, 2018 | ||
| The burden associated with temporary worsening of ulcerative colitis symptoms from the patient perspective | Inflammatory Bowel Disease | DDW, 2018 | ||
| Real-world assessment of the effect of 'off' episodes on patient quality of life among patients with Parkinson's disease | Parkinson’s disease | PAS, 2018 | ||
| Real-world assessment of 'off' episode-related health resource use among patients with Parkinson's disease | Parkinson’s disease | PAS, 2018 | ||
| Real world treatment patterns and clinical outcomes associated with palbociclib combination therapy in Argentina - results from IRIS study | Breast cancer | ASCO, 2018 | ||
| Patient-perceived involvement in disease management drives patient-physician alignment in satisfaction with disease control in PSA | Psoriatic arthritis | EULAR, 2018 | ||
| Nocturia is more bothersome than daytime LUTS: results from an observational, real-life practice database including 8659 European and American LUTS patients | Nocturia | https://pubmed.ncbi.nlm.nih.gov/29767479/ | ||
| Impact of chorea on employment, self-care activities and independency in huntington disease patients in the United States | Huntington disease | PAS, 2018 | ||
| Health care resource utilization and lost productivity time due to migraine in the US population | Migraine | AHS, 2018 | ||
| Experience with an anti-IL17a inhibitor in biologic naive and biologic experienced PsA patients | Psoriatic arthritis | EULAR, 2018 | ||
| Evaluation of the impact of migraine on patient function and HRQoL in the US population | Migraine | AHS, 2018 | ||
| Cost-effectiveness of dolutegravir in HIV1 treatment-naive patients in China | HIV | APACC, 2018 | ||
| Clinical outcomes in patients receiving palbociclib and fulvestrant first line for ABC/MBC in the US | Breast cancer | ASCO, 2018 | ||
| Burden of heart failure on patients from China: results from a cross-sectional survey | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/29922040/ | ||
| Burden of heart failure on caregivers in China: results from a cross-sectional survey | Chronic heart failure | https://pubmed.ncbi.nlm.nih.gov/29922041/ | ||
| Bone-targeted agent treatment patterns and the impact of bone metastases on patients with advanced breast cancer in real-world practice in six European countries | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/29892519/ | ||
| The impacts of morning, daytime, and nighttime symptoms on disease burden in real-world patients with COPD | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/29805254/ | ||
| The economic burden of skin symptoms in psoriatic arthritis | Psoriatic arthritis | ISPOR US, 2018 | ||
| Remote reporting of patient outcomes in ulcerative colitis - a prospective real world study | Inflammatory Bowel Disease | ISPOR US, 2018 | ||
| Real-world out-of-pocket expenses among advanced breast cancer patients undergoing treatment in the US | Breast cancer | ISPOR US, 2018 | ||
| Real-world outcomes associated with standard half-life and extended half-life factor replacement products for Hemophilia A and B | Hemophilia | ECRD, 2018 | ||
| Quality of life in patients with osteoporosis: a US cross-sectional study | Osteoporosis | ISPOR US, 2018 | ||
| Perceptions of heart failure treatment decision-making and side effects of heart failure treatment by patients and cardiologists | Chronic heart failure | ESC-HF, 2018 | ||
| Perceptions of heart failure symptoms and disease severity by patients and cardiologists: a multinational survey in the real world cardiology setting | Chronic heart failure | ESC-HF, 2018 | ||
| Inhaler use confidence and treatment adherence among COPD patients using neohaler: analysis of physician prescriptions from a US survey | Chronic obstructive pulmonary disease | ATS, 2018 | ||
| Health state utility of patients with CKD and anemia: analysis of EQ-5D in a real world population | Chronic kidney disease | ERA-EDTA, 2018 | ||
| Effect of painful lumbrosacral radiculopathy on employment and quality of life among patients in Europe | Neuropathic pain | ISPOR US, 2018 | ||
| Association of treatment resistant depression with healthcare resource utilization and physician satisfaction with disease management | Depression | ISPOR US, 2018 | ||
| Treatment beliefs, adherence and outcomes in asthma patients: importance of beliefs in ICS nonadherence | Asthma | SBM, 2018 | ||
| Symptomatic burden of COPD for patients receiving dual or triple therapy | Chronic obstructive pulmonary disease | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5927353/ | ||
| Rheumatologist perception on switching vs cycling treatment after tumour necrosis factor inhibitor therapy among US rheumatoid arthritis patients | Rheumatoid arthritis | AMCP, 2018 | ||
| Physician beliefs regarding the use of biologic DMARD monotherapy vs combination therapy among US rheumatoid arthritis patients | Rheumatoid arthritis | AMCP, 2018 | ||
| Pharmacotherapeutic treatment paradigms of osteoarthritis in the United States | Osteoarthritis | OARSI, 2018 | ||
| Patient characteristics and real-world treatment patterns among early users of PCSK9 inhibitors | Dyslipidemia | https://pubmed.ncbi.nlm.nih.gov/28849360/ | ||
| Levels of satisfaction with psa treatment and associated alignment between rheumatologists and their patients across Latin America | Psoriatic arthritis | PANLAR, 2018 | ||
| Impact of chorea on employment, self-care activities and independency in huntington disease patients in the United States | Huntington disease | AMCP, 2018 | ||
| Disease burden of mild asthma in China | Asthma | https://pubmed.ncbi.nlm.nih.gov/29052915/ | ||
| Characterizing the experience of agitation in patients with bipolar disorder and schizophrenia | Various | https://pubmed.ncbi.nlm.nih.gov/29661160/ | ||
| Burden of disease in immune thrombocytopenia (ITP): The results for UK patients from the ITP World Impact Survey (I-WISh) | Immune thrombocytopenia | BSH, 2018 | ||
| Real world treatment patterns and clinical outcomes of advanced metastatic breast cancer patient receiving palbociclib in combination | Breast cancer | EBCC, 2018 | ||
| Real world treatment clinical outcomes associated with palbociclib combination therapy in the US - results from the IRIS study | Breast cancer | MBCC, 2018 | ||
| Maintenance inhaler preference, attribute importance, and satisfaction in prescribing physicians and patients with asthma, COPD, or asthma-COPD overlap syndrome consulting for routine care | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/29588581/ | ||
| Clinical characteristics and patient-reported outcomes in patients with inadequately controlled rheumatoid arthritis despite ongoing treatment | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/29593881/ | ||
| Chart review across EU5 in multiple myeloma post-ASCT patients | Multiple myeloma | https://pubmed.ncbi.nlm.nih.gov/30302236/ | ||
| BRCA screening patterns, demographics, and clinical characteristics among women with second line ovarian cancer: results from the Adelphi Disease Specific Cancer Programme | Ovarian cancer | SGO, 2018 | ||
| Treatment modification with sunitinib in first-line metastatic renal cell carcinoma: an analysis of the STAR-TOR registry | Metastatic renal cell carcinoma | ASCO GU, 2018 | ||
| The impact of biologic treatment on patients with psoriasis from Argentina, Brazil, Columbia and Mexico | Psoriasis | AAD, 2018 | ||
| The humanistic burden of advanced non-small cell lung cancer: What are the key drivers of caregiver burden? | Non-small cell lung cancer | CSS, 2018 | ||
| Quantifying the diagnostic pathway for patients with cognitive impairment: real-world data from seven European and North American countries | Dementia | https://pubmed.ncbi.nlm.nih.gov/29439347/ | ||
| Nail psoriasis and psoriatic arthritis - assessing the association between these and real world impact of biologic treatment | Psoriasis | AAD, 2018 | ||
| Assessing the impact of patient support programs on patient outcomes in adalimumab-treated patients with psoriasis in Europe | Psoriasis | AAD, 2018 | ||
| A survey of caregiver burden in those providing informal care for patients with schizophrenia or bipolar disorder with agitation - results from an EU study | Various | https://pubmed.ncbi.nlm.nih.gov/29456588/ | ||
| Current later-line drug treatment patterns of patients with classical hodgkin lymphoma (CHL) in Germany | Hodgkin's lymphoma | DKK, 2018 | ||
| Therapeutic inertia among real world population with T2DM from 2013-2016: data from 33,203 patients across EU and US | Diabetes | IDF, 2017 | ||
| Redefining cut-points for high symptom burden of the global initiative for chronic obstructive lung disease classification in 18,577 patients with chronic obstructive pulmonary disease | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/29169740/ | ||
| Quantifying levels of physical activity in patients with COPD - a US cross-sectional survey | Chronic obstructive pulmonary disease | BTS, 2017 | ||
| Impact of active maintenance treatment compared to no maintenance on QoL of mutiple myeloma patients following first autologous stem cell transplant | Multiple myeloma | ASH, 2017 | ||
| Assessing outcomes, HRU and costs across Europe in newly diagnosed multiple myeloma patients post autologous stem cell transplant | Multiple myeloma | ASH, 2017 | ||
| Time from first symptom onset to first advanced therapy among rheumatoid patients in Latin America | Rheumatoid arthritis | ACR/ARHP, 2017 | ||
| The impact of disability on activities of daily living, productivity and independency in patients with multiple sclerosis - findings from a 2016 study in Europe and the US | Multiple sclerosis | ISPOR EU, 2017 | ||
| Real-world treatment patterns in patients with advanced gastric cancer in Western and Asian countries | Gastric cancer | ESMO Asia, 2017 | ||
| Real-world productivity, HRU and QoL in patients with advanced gastric cancer in Korea and Japan | Gastric cancer | ESMO Asia, 2017 | ||
| Real-world evaluation of physician attitudes to prescription of androgen deprivation therapy for patients with prostate cancer | Prostate cancer | ISPOR EU, 2017 | ||
| Real world treatment patterns of PCSK9 inhibitors among patients with dyslipidemia in Germany, Spain and United Kingdom | Dyslipidemia | ISPOR EU, 2017 | ||
| Predicting EQ-5D utility index scores for gastric cancer patients in Japan: a preliminary model | Gastric cancer | ISPOR EU, 2017 | ||
| Patient characteristics and treatment patterns in chronic heart failure - results from a multinational cross sectional survey | Chronic heart failure | ISPOR EU, 2017 | ||
| Patient characteristics and reasons for biologic monotherapy in EU5 markets in rheumatoid arthritis | Rheumatoid arthritis | ISPOR EU, 2017 | ||
| Level of satisfaction with rheumatoid arthritis treatment and associated alignment between rheumatologists and patients across Latin America | Rheumatoid arthritis | ACR/ARHP, 2017 | ||
| Impairment of work ability in patients with rheumatoid arthritis | Rheumatoid arthritis | ISPOR EU, 2017 | ||
| Impact of isocitrate dehydrogenase status on the performance status and QoL of GBM patients | Glioblastoma multiforme | ISPOR EU, 2017 | ||
| Health-related quality of life in oncology - are we getting better? | Various | ISPOR EU, 2017 | ||
| Flaring among atopic dermatitis patients - the perception of flaring burden between physicians and patients | Atopic dermatitis | ISPOR EU, 2017 | ||
| Extent and consequences of inadequate disease control among adults with a history of moderate to severe atopic dermatitis | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/29131384/ | ||
| Economic and humanistic burden of illness among diabetes patients experiencing treatment inertia | Diabetes | ISPOR EU, 2017 | ||
| Cost effectiveness of dolutegravir in HIV-1 treatment-naive patients in Russia | HIV | ISPOR EU, 2017 | ||
| Cost burden associated with advanced non-small cell lung cancer - impact of disease stage | Non-small cell lung cancer | ISPOR EU, 2017 | ||
| Clinical characteristics and peripheral joint involvement at the time of diagnosis of Nr-AxSpA patients in the US and Europe | Axial spondyloarthritis | ACR/ARHP, 2017 | ||
| Characterising the relative impact of established cardiovascular disease and chronic kidney disease on quality of life in diabetes patients | Diabetes | ISPOR EU, 2017 | ||
| Burden of disease on chronic heart failure patients - a multinational cross-sectional survey in real world setting | Chronic heart failure | ISPOR EU, 2017 | ||
| Burden of chronic heart failure on caregivers - a multinational cross-sectional survey in real world setting | Chronic heart failure | ISPOR EU, 2017 | ||
| Assessing the disease course and treatment of psoriatic arthritis in Canada | Psoriatic arthritis | ISPOR EU, 2017 | ||
| Assessing the burden of disease in peripheral and axial spondyloarthritis in Mexico | Axial spondyloarthritis | ISPOR EU, 2017 | ||
| Assessing the burden of disease in peripheral and axial spondyloarthritis in Brazil | Axial spondyloarthritis | ISPOR EU, 2017 | ||
| Assessing the burden of chronic heart failure on patients in Colombia | Chronic heart failure | ISPOR EU, 2017 | ||
| Assessing the burden of chronic heart failure on caregivers of patients in Colombia | Chronic heart failure | ISPOR EU, 2017 | ||
| Are there differences in FACT-G scores between different tumour types for an EU population using real world data? | Various | ISPOR EU, 2017 | ||
| Access perceptions - a key driver of NSCLC targeted therapy prescription in Russia | Non-small cell lung cancer | ISPOR EU, 2017 | ||
| A real-world analysis of migraine: a cross-sectional study of disease burden and treatment patterns | Migraine | https://pubmed.ncbi.nlm.nih.gov/28984356/ | ||
| Psoriatic arthritis patients failing biologic treatment have poor outcomes: survey results including APAC and Middle East | Psoriatic arthritis | APLAR, 2017 | ||
| Impact of tobacco smoking on humanistic and financial burden of advanced non-small cell lung cancer | Non-small cell lung cancer | IASLC WCLC, 2017 | ||
| Impact of multimorbidity on patient-reported QoL analysis of a real world chronic kidney disease patient populations | Chronic kidney disease | ASN, 2017 | ||
| Impact of brain metastases on the humanistic burden incurred by patients with advanced non-small cell lung cancer | Non-small cell lung cancer | IASLC WCLC, 2017 | ||
| Economics of inhaled oxygen use as an acute therapy for cluster headache in the United States of America | Cluster headache | https://pubmed.ncbi.nlm.nih.gov/28842974/ | ||
| Changing disease-modifying therapy switching dynamics for relapsing-remitting multiple sclerosis patients | Multiple sclerosis | ECTRIMS, 2017 | ||
| Burden of heart failure in Saudi Arabia - results from a cross-sectional survey | Chronic heart failure | ACC, 2017 | ||
| Appropriate psoriatic arthritis treatment is delayed for years - multi-national survey results including APAC and Middle East | Psoriatic arthritis | APLAR, 2017 | ||
| Appropriate ankylosing spondylitis treatment is delayed for years - multi-national survey results including APAC and Middle East | Axial spondyloarthritis | APLAR, 2017 | ||
| Ankylosing spondylitis patients failing biologic treatment are less able to work - survey results including APAC and Middle East | Axial spondyloarthritis | APLAR, 2017 | ||
| Treatment patterns of COPD patients in France: a retrospective analysis of an administrative primary care database | Chronic obstructive pulmonary disease | ERS, 2017 | ||
| Treatment patterns of chronic heart failure in Brazil | Chronic heart failure | ISPOR LA, 2017 | ||
| Treatment patterns and satisfaction for rheumatoid arthritis patients in Latin America undergoing advanced therapy | Rheumatoid arthritis | ISPOR LA, 2017 | ||
| Treatment patterns and impact of not achieving skin clearance for psoriasis patients in Latin America | Psoriasis | ISPOR LA, 2017 | ||
| The cost burden of COPD in France: a retrospective analysis of an administrative primary care database | Chronic obstructive pulmonary disease | ERS, 2017 | ||
| Symptomatic burden of COPD for patients receiving dual or triple therapy | Chronic obstructive pulmonary disease | ERS, 2017 | ||
| Reasons for discontinuation of GLP1 receptor agonists: data from a real-world cross-sectional survey of physicians and their patients with type 2 diabetes | Diabetes | https://pubmed.ncbi.nlm.nih.gov/29033597/ | ||
| Real-world productivity, HRU and QoL in patients with advanced gastric cancer in Canada and Europe | Gastric cancer | ESMO, 2017 | ||
| Psoriatic arthritis limits patient ability to contribute to society as part of the workforce results from multinational survey including Latin America | Psoriatic arthritis | ISPOR LA, 2017 | ||
| Patient characteristics and treatment patterns of chronic heart failure in Mexico | Chronic heart failure | ISPOR LA, 2017 | ||
| Patient characteristics and treatment patterns of chronic heart failure in Argentina | Chronic heart failure | ISPOR LA, 2017 | ||
| Patient and physician-reported satisfaction with systemic lupus erythematosus treatment in US clinical practice | Systemic lupus erythematosus | https://pubmed.ncbi.nlm.nih.gov/28803702/ | ||
| Generating patient reported outcome norms for an EU cancer population using real world data (FACT-G) | Various | ESMO, 2017 | ||
| Diabetes kidney disease (DKD) severity classifications and therapy impact in a real-world setting across 5EU and US | Diabetes | EASD, 2017 | ||
| Delayed biologic switching among psoriatic arthritis patients may result in poor hrqol results from multinational survey including Latin America | Psoriatic arthritis | ISPOR LA, 2017 | ||
| Delayed biologic switching among ankylosing spondylitis patients in Latin America may result in poor HRQoL | Axial spondyloarthritis | ISPOR LA, 2017 | ||
| Cost impact of time to initiation of triple therapy in COPD patients in Japan: a retrospective analysis of an administrative primary care database | Chronic obstructive pulmonary disease | ERS, 2017 | ||
| Characteristics of psoriasis patients in Latin America | Psoriasis | ISPOR LA, 2017 | ||
| Characteristics of Latin American patients with rheumatoid arthritis receiving advanced therapy | Rheumatoid arthritis | ISPOR LA, 2017 | ||
| Assessing the burden of disease in peripheral and AxSpA in Mexico and Brazil | Axial spondyloarthritis | ISPOR LA, 2017 | ||
| Assessing the burden of chronic heart failure on patients in Mexico | Chronic heart failure | ISPOR LA, 2017 | ||
| Assessing the burden of chronic heart failure on patients in Brazil | Chronic heart failure | ISPOR LA, 2017 | ||
| Assessing the burden of chronic heart failure on patients in Argentina | Chronic heart failure | ISPOR LA, 2017 | ||
| Assessing the burden of chronic heart failure on patients' caregivers in Mexico | Chronic heart failure | ISPOR LA, 2017 | ||
| Assessing the burden of chronic heart failure on patients' caregivers in Brazil | Chronic heart failure | ISPOR LA, 2017 | ||
| Assessing the burden of chronic heart failure on patients' caregivers in Argentina | Chronic heart failure | ISPOR LA, 2017 | ||
| Appropriate PsA treatment is delayed for years - results from multi-national survey including Latin America | Psoriatic arthritis | ISPOR LA, 2017 | ||
| Appropriate ankylosing spondylitis treatment is delayed for years results from multi-national survey including Latin America | Axial spondyloarthritis | ISPOR LA, 2017 | ||
| Ankylosing spondylitis limits patient ability to contribute to society as part of the workforce - results from multinational survey including Latin America | Axial spondyloarthritis | ISPOR LA, 2017 | ||
| The impact of myeloproliferative neoplasms on patient quality of life and productivity - results from the International MPN Landmark survey | Myeloproliferative neoplasms | https://pubmed.ncbi.nlm.nih.gov/28780729/ | ||
| Patient-reported quality of life and treatment satisfaction in patients with HR+/HER2- advanced/metastatic breast cancer | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/28751098/ | ||
| Patient-reported pain severity, pain interference and health status in HR+/HER2- advanced/metastatic breast cancer | Breast cancer | https://pubmed.ncbi.nlm.nih.gov/29209529/ | ||
| Treatment-related burden of illness of castration-resistant prostate cancer with bone metastases in France | Prostate cancer | http://verizonaonlinepublishing.com/CANCERPDF/JournalofCancerEpidemiologyandTreatment18.pdf | ||
| The race to diagnose - disease severity as a factor of Alzheimer's disease diagnosis | Alzheimer's disease | AAIC, 2017 | ||
| Real-world impact of cardiovascular disease and anemia on quality of life and productivity in patients with non-dialysis-dependent chronic kidney disease | Chronic kidney disease | https://pubmed.ncbi.nlm.nih.gov/28578500/ | ||
| Real world administration of the Alzheimer's Disease Assessment Scale-Cognitive (ADAS-Cog) | Alzheimer's disease | AAIC, 2017 | ||
| Confidence in correct inhaler technique and its association with treatment adherence and health status among US patients with chronic obstructive pulmonary disease | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/28744110/ | ||
| Weight management as a treatment intervention for NAFLD patients - real world practice and physician satisfaction with treatment effectiveness | Diabetes | ICFL, 2017 | ||
| Understanding the real-world clinical characteristics of multiple myeloma patients | Multiple myeloma | EHA, 2017 | ||
| Treatment trends in patients with asthma-COPD overlap syndrome in a COPD cohort: findings from a real-world survey | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/28670116/ | ||
| Treatment and management of patients with MPNs - findings from the International MPN Landmark survey | Myeloproliferative neoplasms | EHA, 2017 | ||
| The cost of warfarin treatment for stroke prevention in patients with non-valvular atrial fibrillation in Russia | Atrial fibrillation | https://pubmed.ncbi.nlm.nih.gov/28151036/ | ||
| Symptomatology, disease status and remission rates of NrAxSpA and AS patients in Europe | Psoriatic arthritis | EULAR, 2017 | ||
| Real-world prescribing patterns in acute myeloid leukemia in the United States | Acute myeloid leukemia | ASCO, 2017 | ||
| Real-world clinical inertia among T2DM patients clinical, physician and patient viewpoints | Diabetes | ADA, 2017 | ||
| Quantifying the benefits of dimethyl fumarate over beta interferon and glatiramer acetate therapies on work productivity outcomes in MS patients | Multiple sclerosis | https://pubmed.ncbi.nlm.nih.gov/28093681/ | ||
| Quality of life of acute myeloid leukemia patients in a real-world setting | Acute myeloid leukemia | ASCO, 2017 | ||
| Presence of multiple drivers in the selection of high and low intensity chemotherapy in AML | Acute myeloid leukemia | EHA, 2017 | ||
| Physician-estimated incidence of NASH in diabetes compared with physician-confirmed diagnosis of NASH in a real world population of diabetes patients | Diabetes | ICFL, 2017 | ||
| Physician-estimated incidence of NAFLD in diabetes compared with physician-confirmed diagnosis of NAFLD in a real world population of diabetes patients | Diabetes | ICFL, 2017 | ||
| Perception of symptom burden and treatment goals between physicians and patients with MPNS | Myeloproliferative neoplasms | EHA, 2017 | ||
| Patterns of HPV testing and treatment decision in patients with SCCHN | Squamous cell carcinoma of the head and neck | ASCO, 2017 | ||
| Patient characteristics and treatment patterns in chronic heart failure: results from a real-world cross-sectional survey in Argentina, Brazil, Colombia and Mexico | Chronic heart failure | ACC LA, 2017 | ||
| Pain still remains a high unmet need among psoriatic arthritis patients receiving existing biologic treatment | Psoriatic arthritis | EULAR, 2017 | ||
| Later line drug treatment patterns of classical Hodgkin's lymphoma patients in Canada, France, Germany and the UK | Hodgkin's lymphoma | EHA, 2017 | ||
| Humanistic burden of disease in earlier stage versus late stage metastatic melanoma patients in the US | Melanoma | ASCO, 2017 | ||
| Frequency, prevalence, and burden of flares on patients with moderate to severe psoriasis - a retrospective cross-sectional analysis | Psoriasis | https://journals.sagepub.com/doi/abs/10.1177/247553031700200306 | ||
| Economics of inhaled oxygen use as an acute therapy for cluster headache in the United States of America | Cluster headache | AHS, 2017 | ||
| Disease characteristics and treatment patterns of AML patients 60 years old | Acute myeloid leukemia | EHA, 2017 | ||
| Direct medical costs of severe hypoglycaemic events in patients with type 2 diabetes in England: a retrospective database study | Diabetes | https://pubmed.ncbi.nlm.nih.gov/28544081/ | ||
| Comparing adherence levels of CLL treatment from both the patient and physician perspective in the US | Chronic lymphocytic leukemia | ASCO, 2017 | ||
| Caregiver burden in chronic heart failure: pooled results from a real-world cross-sectional survey in Argentina, Brazil, Colombia and Mexico | Chronic heart failure | ACC LA, 2017 | ||
| Burden of disease on chronic heart failure patients: pooled results from a real-world cross-sectional survey in Argentina, Brazil, Colombia and Mexico | Chronic heart failure | ACC LA, 2017 | ||
| Assessing real-world treatment patterns, outcomes and resource use across Europe in newly diagnosed multiple myeloma patients post autologous stem cell transplant | Multiple myeloma | EHA, 2017 | ||
| Work productivity and activity impairment in patients with HR+/HER2- advanced/metastatic breast cancer | Breast cancer | ISPOR US, 2017 | ||
| Treatment patterns, treatment satisfaction and treatment switching in patients with non-radiographic AxSpA | Axial spondyloarthritis | ISPOR US, 2017 | ||
| Treatment patterns and healthcare resource use of rheumatoid arthritis patients treated with biologic disease-modifying anti-rheumatic drugs in South Korea: results from HIRA Health Insurance Claims Database | Rheumatoid arthritis | ISPOR US, 2017 | ||
| Treatment failure, treatment switching and HRQoL in patients with psoriatic arthritis - results from a real world sample in the US | Psoriatic arthritis | ISPOR US, 2017 | ||
| Treatment failure, switching and HRQoL in patients with ankylosing spondylitis - results from a real world sample in the US | Axial spondyloarthritis | ISPOR US, 2017 | ||
| Time of day of COPD symptoms and their association with work productivity and healthcare resource utilization | Chronic obstructive pulmonary disease | ATS, 2017 | ||
| Squamous cell carcinoma of the head and neck (SCCHN) patient reported satisfaction with cancer therapy | Squamous cell carcinoma of the head and neck | ISPOR US, 2017 | ||
| Rheumatologist and patient-specific factors associated with current advanced therapy use in rheumatoid arthritis | Rheumatoid arthritis | ISPOR US, 2017 | ||
| Real world treatment patterns in glioblastoma multiforme | Glioblastoma multiforme | WFNOS, 2017 | ||
| Real world treatment patterns among patients with squamous cell carcinoma of the head and neck in Canada | Squamous cell carcinoma of the head and neck | ISPOR US, 2017 | ||
| Patient reported QoL in patients with stage IV squamous cell carcinoma of the head and neck (SCCHN) | Squamous cell carcinoma of the head and neck | ISPOR US, 2017 | ||
| Inhaler confidence and satisfaction among COPD patients with comorbidities - a comparison of handheld verus nebulized maintenance bronchodilators | Chronic obstructive pulmonary disease | ISPOR US, 2017 | ||
| Impact of glioblastoma multiforme on patient quality of life | Glioblastoma multiforme | WFNOS, 2017 | ||
| Humanistic burden of disease in earlier stage metastatic versus late stage metastatic melanoma patients in a real world setting in 5 EU countries | Melanoma | ISPOR US, 2017 | ||
| Disease status, symptomatology and remission rates of NrAxSpA and AS patients in the US | Axial spondyloarthritis | ISPOR US, 2017 | ||
| Discordance of acute myeloid leukemia symptoms reported by US physicians and patients | Acute myeloid leukemia | ISPOR US, 2017 | ||
| Determinants of patient and physician treatment satisfactgion in moderate to severe psoriasis - a multinational assessment | Psoriasis | ISPOR US, 2017 | ||
| Delay in treatment progression among diabetics: a real world assessment | Diabetes | ISPOR US, 2017 | ||
| Asthma symptoms and health care resource utilization by level of asthma control in patients adherent to ICS/LABA treatment | Asthma | ATS, 2017 | ||
| A cross-sectional survey of current treatment and symptom burden of patients with COPD consulting for routine care according to GOLD 2014 classifications | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/28579771/ | ||
| Regional variations in the diagnosis of cognitively impaired patients | Dementia | ADI, 2017 | ||
| Investigation of HRQoL burden in spondyloarthritis - effects of failure of advanced therapy and fatigue | Axial spondyloarthritis | JCR, 2017 | ||
| Increasing cognitive impairment requires significantly more hours of caregiving | Dementia | ADI, 2017 | ||
| Disease burden of mild asthma: findings from a cross-sectional real-world survey | Asthma | https://pubmed.ncbi.nlm.nih.gov/28391549/ | ||
| Discordance between physician- and patient-reported disease severity in adults with atopic dermatitis - a US cross-sectional survey | Atopic dermatitis | https://pubmed.ncbi.nlm.nih.gov/28447213/ | ||
| Clinical profile, treatment patterns and outcomes of stage IV SCCHN patients receiving 2nd line active drug treatment | Squamous cell carcinoma of the head and neck | AHNS, 2017 | ||
| Assessing gastroenterologist and patient acceptance of biosimilars in ulcerative colitis and Crohn's disease across Germany | Biosimilars | https://pubmed.ncbi.nlm.nih.gov/28410403/ | ||
| Understanding disease burden, severity and progression in patients with cutaneous lupus erythematosus in a real world setting | Cutaneous lupus erythematosus | ICSLE, 2017 | ||
| Symptomatic burden of asthma patients adherent to medium or high dose ICS LABA | Asthma | AAAAI, 2017 | ||
| Real-world treatment patterns and characteristics in patients with triple negative breast cancer in the United States | Breast cancer | MBCC, 2017 | ||
| Real-world disease burden in US adults with moderate-severe atopic dermatitis eligible for treatment with systemic immunosuppressants | Atopic dermatitis | AAD, 2017 | ||
| Real world treatment patterns and characteristics in patients with CLL in the united states | Chronic lymphocytic leukemia | ASCO QCS, 2017 | ||
| Patient and physician-perceived disconnects in the communication and disease management of myeloproliferative neoplasms | Myeloproliferative neoplasms | BSH, 2017 | ||
| Most frequently utilized diagnostic test and scans across two North American and five European countries | Dementia | ICAPD, 2017 | ||
| International Landmark survey - UK patient perceptions on the symptomatic and economic burden of myeloproliferative neoplasms | Myeloproliferative neoplasms | BSH, 2017 | ||
| Impact of patient perceptions of psoriasis and sporiatic arthritis severity on patient-reported outcomes: an analysis from the Adelphi database | Psoriasis | AAD, 2017 | ||
| Health care resource utilization and work impairment for asthma patients adherent to medium or high dosage ICS/LABA fixed combination treatment | Asthma | AAAAI, 2017 | ||
| Country variations in the duration of the diagnostic process | Dementia | ICAPD, 2017 | ||
| Country variations in the diagnostic experience of patients with cognitive impairment | Dementia | ICAPD, 2017 | ||
| Cardiologist perspectives in treatment of patients with dyslipidemia with proprotein convertase subtilisin/kexin type 9 (pcsk9) inhibitors and other lipid-lowering therapies | Dyslipidemia | ACC, 2017 | ||
| Assessing physician and patient acceptance of infliximab biosimilars in rheumatid arthritis, ankylosing spondyloarthritis and psoriatic arthritis across Germany | Biosimilars | https://pubmed.ncbi.nlm.nih.gov/28331299/ | ||
| A multinational assessment of work-related productivity loss and indirect costs for patients with psoriasis | Psoriasis | AAD, 2017 | ||
| Misalignment between physicians and patient satisfaction with psoriatic arthritis disease control | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/28238086/ | ||
| COPD symptom burden: impact on health care resource utilization, and work and activity impairment | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/28260874/ | ||
| A cross-sectional survey of night-time symptoms and impact of sleep disturbance on symptoms and health status in patients with COPD | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/28243077/ | ||
| The humanistic burden of advanced non-small cell lung cancer on patients and their caregivers | Non-small cell lung cancer | CSS, 2017 | ||
| Bronchodilator reliever use and its association with the economic and humanistic burden of COPD: a propensity-matched study | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/27564685/ | ||
| The incremental disease burden associated with the persistence of morning daytime and night-time symptoms in COPD patients | Chronic obstructive pulmonary disease | BTS, 2016 | ||
| The humanistic burden associated with caring for advanced NSCLC patients in Europe - a real world survey of caregivers | Non-small cell lung cancer | IASLC WCLC, 2016 | ||
| The humanistic burden associated with advanced NSCLC patients in Europe - a real world survey | Non-small cell lung cancer | IASLC WCLC, 2016 | ||
| Assessing the impact of nocturia on health-related quality-of-life and utility: results of an observational survey in adults | Nocturia | https://pubmed.ncbi.nlm.nih.gov/27388879/ | ||
| Unhappiness is related to worse outcomes for patients with ankylosing spondylitis and increased impairment in daily life activities | Axial spondyloarthritis | ACR/ARHP, 2016 | ||
| Trends in medication use in patients with type 2 diabetes mellitus: a long-term view of real-world treatment between 2000 and 2015 | Diabetes | https://pubmed.ncbi.nlm.nih.gov/27843332/ | ||
| Trends and factors associated with use of biologic agents as monotherapy among US RA patients | Rheumatoid arthritis | ACR/ARHP, 2016 | ||
| The relationship between physical functioning and work for people with psoriatic arthritis - results from a large real-world study in 16 countries | Psoriatic arthritis | ACR/ARHP, 2016 | ||
| The impact of myeloproliferative neoplasms on patient quality of life and productivity - results from the international MPN Landmark study | Myeloproliferative neoplasms | ASH, 2016 | ||
| The cost of warfarin treatment for stroke prevention in patients with non-valvular atrial fibrillation in Mexico | Atrial fibrillation | https://pubmed.ncbi.nlm.nih.gov/28151036/ | ||
| Psoriatic arthritis limits patients' abilities to undertake activities crucial for normal daily life and impacts happiness | Psoriatic arthritis | ACR/ARHP, 2016 | ||
| Physician-reported and patient-reported anxiety and depression in rheumatoid arthritis | Rheumatoid arthritis | ACR/ARHP, 2016 | ||
| Patient attitudes towards being prescribed biosimilars in inflammatory autoimmune diseases in Germany | Biosimilars | ACR/ARHP, 2016 | ||
| Nocturia is often inadequately assessed, diagnosed and treated by physicians: results of an observational, real-life practice database containing 8659 European and US-American patients | Nocturia | https://pubmed.ncbi.nlm.nih.gov/27753248/ | ||
| Impact of pill burden on adherence and patient-reported quality of life - analysis of real world non-dialysis chronic kidney disease patient population | Chronic kidney disease | ASN, 2016 | ||
| Impact of disease flare perception on work productivity and treatment satisfaction in patients with psoriatic arthritis | Psoriatic arthritis | ACR/ARHP, 2016 | ||
| Discordance between physician-stated remission and DAS28-defined remission in rheumatoid arthritis patients | Rheumatoid arthritis | ACR/ARHP, 2016 | ||
| Comparison of patients prescribed biosimilar or bio-originators for autoimmune diseases in Germany | Biosimilars | ACR/ARHP, 2016 | ||
| Weight distribution in European patients with Crohn’s disease in Adelphi 2015 DSP | Inflammatory Bowel Disease | UEGW, 2016 | ||
| The impact of increasing disability on employment status and caregiver burden among multiple sclerosis patients in Brazil | Multiple sclerosis | ISPOR EU, 2016 | ||
| Satisfaction with control of systemic lupus erythematosus and lupus nephritis - physician and patient perspectives | Systemic lupus erythematosus | https://pubmed.ncbi.nlm.nih.gov/27784995/ | ||
| Relapse rates and symptom management among patients receiving natalizumab and other disease-modifying therapies for relapsing-remitting multiple sclerosis | Multiple sclerosis | ISPOR EU, 2016 | ||
| Real-world impact of gender, age and socio-economic status on type 2 diabetes mellitus (T2DM) patients' disease engagement and adherence with treatment regimens | Diabetes | ISPOR EU, 2016 | ||
| Real world treatment patterns of PCSK9 inhibitors and other lipid lowering therapy among patients with dyslipidemia | Dyslipidemia | AMCP, 2016 | ||
| Quantification of quality of life differences due to age-related diseases in the 50+ age group in the United Kingdom | Age-related diseases | ISPOR EU, 2016 | ||
| Quality of life of patients with Alzheimer's disease: a comparison with the general population | Dementia | ISPOR EU, 2016 | ||
| Perception from patients with ulcerative colitis or Crohn's disease toward the performance of biosimilars versus bio-originators | Biosimilars | UEGW, 2016 | ||
| Patients with gout treated with conventional urate-lowering therapy: association with disease control, health-related quality of life, and work productivity | Gout | https://pubmed.ncbi.nlm.nih.gov/27036386/ | ||
| Patient-reported need vs concern around injectable therapy and impact on adherence: a real world survey of 5EU/US type 2 diabetes mellitus (T2DM) patients | Diabetes | ISPOR EU, 2016 | ||
| Patient reported health utility in HR+/HER2- advanced/metastatic breast cancer | Breast cancer | ISPOR EU, 2016 | ||
| Migraine prophylaxis treatment patterns in Japan: analysis of data from clinical practice | Migraine | JHS, 2016 | ||
| Economic and humanistic benefits of maintaining cognitive impairment patients in the early stage | Dementia | ISPOR EU, 2016 | ||
| Disease severity and control in adults with a history of moderate and-or severe atopic dermatitis | Atopic dermatitis | ISPOR EU, 2016 | ||
| Cost and resource utilization among multiple sclerosis patients with increasing disability in Latin America | Multiple sclerosis | ISPOR EU, 2016 | ||
| Correlation between structural damage and work/activity impairment among rheumatoid arthritis patients | Rheumatoid arthritis | ISPOR EU, 2016 | ||
| Comparison of informal caregiving time required by Alzheimer's disease patients and mild cognitive impairment patients | Dementia | ISPOR EU, 2016 | ||
| Burden and work productivity impairment from providing care to Alzheimer's disease patients | Dementia | ISPOR EU, 2016 | ||
| Association of anxiety and depression with clinical measurements and patient-reported disability and treatment satisfaction among rheumatoid arthritis patients | Rheumatoid arthritis | ISPOR EU, 2016 | ||
| Assessment of patient preference in the treatment of relapsing remitting multiple sclerosis in public and private systems in Latin America | Multiple sclerosis | ISPOR EU, 2016 | ||
| Analysis of costs associated with vitamin K antagonist treatment for stroke prevention in non valvular atrial fibrillation in Russia | Atrial fibrillation | ISPOR EU, 2016 | ||
| Analysis of costs associated with vitamin K antagonist treatment for stroke prevention in non valvular atrial fibrillation in Mexico | Atrial fibrillation | ISPOR EU, 2016 | ||
| A regional analysis of relapsing remitting MS (RRMS) patients treated with natalizumab suggests a need to diagnose and treat early in Latin America | Multiple sclerosis | ISPOR EU, 2016 | ||
| Treatment trends of asthma-COPD overlap syndrome patients | Chronic obstructive pulmonary disease | ERS, 2016 | ||
| Treatment patterns in migraine: a real-world analysis in a US population | Migraine | EHC, 2016 | ||
| The disease burden of mild asthma in China | Asthma | ERS, 2016 | ||
| The disease burden of mild asthma | Asthma | ERS, 2016 | ||
| Satisfaction with cancer treatments in HR+/HER- metastatic breast cancer patients in a real world setting | Breast cancer | ESMO, 2016 | ||
| Patient-reported pain severity and interference in HR+/HER- advanced/metastatic breast cancer in a real world setting | Breast cancer | ESMO, 2016 | ||
| Night-time symptoms and sleep disturbance in patients with COPD | Chronic obstructive pulmonary disease | ERS, 2016 | ||
| Migraine prophylaxis treatments patterns in Japan: analysis of data from clinical practice | Migraine | EHC, 2016 | ||
| Migraine prophylaxis treatments patterns in Germany: analysis of data from clinical practice | Migraine | EHC, 2016 | ||
| Migraine prophylaxis treatments patterns in France: analysis of data from clinical practice | Migraine | EHC, 2016 | ||
| Direct medical costs of severe hypoglycemic events among type 2 diabetes patients in England | Diabetes | EASD, 2016 | ||
| Association of COPD symptom burden with healthcare resource utilization and impairment on work and activity | Chronic obstructive pulmonary disease | ERS, 2016 | ||
| Adherence among type 2 diabetes mellitus (T2DM) patients | Diabetes | EASD, 2016 | ||
| Prevalence and burden of dyspnoea among COPD patients in Japan | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/27396989/ | ||
| Discrepancy between physician-reported and DAS-28 reported remission in a real world study - unmet needs and boi in RA patients treated with biologics | Rheumatoid arthritis | RNS, 2016 | ||
| Differences in satisfaction with RA disease control between physicians and patients | Rheumatoid arthritis | RNS, 2016 | ||
| Burden of illness associated with non-radiographic AxSpA - a multiperspective European cross-sectional observational study | Axial spondyloarthritis | https://pubmed.ncbi.nlm.nih.gov/27749215/ | ||
| Association of anxiety and depression with clinical measurements and patient-reported disability and treatment satisfaction among rheumatoid arthritis patients | Rheumatoid arthritis | RNS, 2016 | ||
| Societal burden of mild cognitive impairment and Alzheimer's disease patients measured by caregivers' productivity loss | Dementia | AAIC, 2016 | ||
| Satisfaction with current psoriasis treatment - misalignment between physician and patient perceptions | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/27617714/ | ||
| Relationship between psoriasis severity, clinical symptoms, quality of life and work productivity among patients in the US | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/27061102/ | ||
| Quantifying the relationship between increased disability and health care resource utilization, quality of life, work productivity, health care costs in patients with multiple sclerosis in the US | Multiple sclerosis | https://pubmed.ncbi.nlm.nih.gov/27443278/ | ||
| Quantifying the cost burden of locally advanced basal cell carcinoma on the health care system in the United Kingdom | Basal cell carcinoma | AAD, 2016 | ||
| Patients with Alzheimer's disease suffered reduced quality of life relative to general population | Dementia | AAIC, 2016 | ||
| Maintaining mild cognitive impairment patients in milder disease state results in less healthcare resource utilization | Dementia | AAIC, 2016 | ||
| Impact of psoriasis flare and remission on quality of life and work productivity - a real-world study in the US | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/27617715/ | ||
| How does the level of patient's cognitive impairment affect their caregiver's quality of life | Dementia | AAIC, 2016 | ||
| How are cognitive impairment patients being diagnosed | Dementia | AAIC, 2016 | ||
| Health status of patients with chronic obstructive pulmonary disease by symptom level | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/28848889/ | ||
| Evidence for validity of a national physician and patient-reported, cross-sectional survey in China and UK: the Disease Specific Programme | Diabetes | https://pubmed.ncbi.nlm.nih.gov/27531722/ | ||
| Cross-sectional survey in CKD patients across Europe describing the association between quality of life and anaemia | Chronic kidney disease | https://pubmed.ncbi.nlm.nih.gov/27460779/ | ||
| Use of migraine prophylaxis treatments in USA: analysis of data from clinical practice | Migraine | AHS, 2016 | ||
| Unmet needs and burden of illness in patients currently receiving biologic treatments for rheumatoid arthritis | Rheumatoid arthritis | EULAR, 2016 | ||
| Unmet need in migraine prophylaxis treatment in the USA: data from clinical practice | Migraine | AHS, 2016 | ||
| Trends in medication use in patients with type 2 diabetes mellitus: a long term view of real world treatment between 2000 and 2015 | Diabetes | ADA, 2016 | ||
| Treatment failure, switching and HR-QoL in patients with ankylosing spondylitis or psoriatic arthritis | Axial spondyloarthritis | EULAR, 2016 | ||
| Satisfaction and unmet need among systemic lupus erythematosus patients taking standard of care medications in a real world setting | Systemic lupus erythematosus | EULAR, 2016 | ||
| Prevalence, recurrence and cost burden of locally advanced basal cell carcinoma not amenable to surgery or radiotherapy in the United Kingdom | Basal cell carcinoma | ASCO, 2016 | ||
| Minimal important difference in haq - a validation from health economic perspectives in patients with rheumatoid arthritis using real world data from Adelphi database | Rheumatoid arthritis | EULAR, 2016 | ||
| Migraine patients with cluster headache: exploratory study of the burden of illness | Migraine | AHS, 2016 | ||
| Key drivers in biosimilar prescription in inflammatory autoimmune disease indications in Germany | Biosimilars | EULAR, 2016 | ||
| Fatigue in patients with ankylosing spondylitis and low vitality in those with psoriatic arthritis | Axial spondyloarthritis | EULAR, 2016 | ||
| Evolution of biologic treatment, satisfaction with control and patient-reported outcomes in European patients with psoriatic arthritis | Psoriatic arthritis | EULAR, 2016 | ||
| Disease severity in patients with discoid lupus erythematosus from a real-world setting | Discoid lupus erythematosus | EULAR, 2016 | ||
| Discrepancy between physician and patient satisfaction with rheumatoid arthritis disease control | Rheumatoid arthritis | EULAR, 2016 | ||
| Breast cancer specific quality of life in HR+/HER2- advanced/metastatic breast cancer patients in a real world setting | Breast cancer | ASCO, 2016 | ||
| Association between disease severity and patient-reported outcomes in patients with discoid lupus erythematosus in real-world clinical practice | Discoid lupus erythematosus | EULAR, 2016 | ||
| Anxiety and depression among rheumatoid arthritis patients association with clinical measurements and patient-reported disability and treatment satisfaction | Rheumatoid arthritis | EULAR, 2016 | ||
| A real-world analysis of outcomes in migraineurs receiving preventive migraine treatment | Migraine | AHS, 2016 | ||
| Treatment with intramuscular interferon beta-1a in Brazil is associated with fewer hospitalisations due to relapse | Multiple sclerosis | ISPOR US, 2016 | ||
| The use of migraine prophylaxis treatment: analysis of clinical practice data from the United States, Germany, France and Japan | Migraine | ISPOR US, 2016 | ||
| Real-world evidence on health state utilities in metastatic breast cancer: data from a retrospective patient record form study and a cross-sectional patient survey | Breast cancer | ISPOR US, 2016 | ||
| Real-world cross-sectional descriptive study of the quality of life of patients with anemia and chronic kidney disease across Europe | Chronic kidney disease | ISPOR US, 2016 | ||
| Quantifying the cost burden of locally advanced basal cell carcinoma not amenable to surgery or radiotherapy in the United Kingdom | Basal cell carcinoma | ISPOR US, 2016 | ||
| Premixed insulin treatment for type 2 diabetes mellitus in China: patient and physician perceptions | Diabetes | ISPOR US, 2016 | ||
| International differences in the role of payer and administrative controls in prescribing decisions in type 2 diabetes mellitus (t2dm) | Diabetes | ISPOR US, 2016 | ||
| Insulin initiation for type 2 diabetes mellitus in China: physicians' preferred HbA1c level at insulin initiation and patients' observed levels | Diabetes | ISPOR US, 2016 | ||
| Inhaler preference, attribute importance and satisfaction in patients with asthma COPD or ACOS consulting for routine care | Chronic obstructive pulmonary disease | ATS, 2016 | ||
| Factors associated with a history of failure and switching migraine prophylaxis treatment | Migraine | ISPOR US, 2016 | ||
| Extent and consequences of inadequate disease control among adults with a history of moderate-to-severe atopic dermatitis | Atopic dermatitis | SID, 2016 | ||
| Disagreement between physician and patient-reported disease severity in adults with a history of moderate-to-severe atopic dermatitis | Atopic dermatitis | SID, 2016 | ||
| Current treatment and symptomatic burden of COPD patients according to 2014 GOLD | Chronic obstructive pulmonary disease | ATS, 2016 | ||
| Characterizing patient reported QoL measures among users and non-users of migraine prophylaxis treatment in USA, Germany, France and Japan | Migraine | ISPOR US, 2016 | ||
| Characterization and patient-reported perceptions and outcomes of insulin use amongst pre-insulin versus insulin type 2 diabetes mellitus (T2DM) populations in USA | Diabetes | ISPOR US, 2016 | ||
| Characteristics of Chinese patients with uncontrolled type 2 diabetes mellitus who were not initiated on insulin | Diabetes | ISPOR US, 2016 | ||
| An evaluation of disability progression and quality of life in multiple sclerosis patients in Brazil and Mexico | Multiple sclerosis | ISPOR US, 2016 | ||
| The burden experienced by people caring for patients with Alzheimer's disease or mild cognitive impairment | Dementia | ADI, 2016 | ||
| Satisfaction in psoriatic arthritis patients despite active joint disease | Psoriasis | AMCP, 2016 | ||
| Misalignment between physician and patient satisfaction with current psoriatic arthritis treatment | Psoriasis | AMCP, 2016 | ||
| Matching-adjusted indirect treatment comparison in patients with radioiodine-refractory differentiated thyroid cancer | Thyroid cancer | https://www.dovepress.com/matching-adjusted-indirect-treatment-comparison-in-patients-with-radio-peer-reviewed-fulltext-article-CER | ||
| Different perceptions of Alzheimer's disease severity and its association with patients' and caregiver's quality of life | Dementia | ADI, 2016 | ||
| Differences in work productivity & activity impairment in patients with multiple sclerosis initiated on oral dimethyl fumarate vs interferon ß or glatimer acetate | Multiple sclerosis | AAN, 2016 | ||
| Comparison of biologic DMARD rheumatoid arthritis treatment dynamics across 5 EU countries | Rheumatoid arthritis | BSR, 2016 | ||
| Burden of Alzheimer's disease or mild cognitive impairment on patients and their caregivers in Europe and the US | Dementia | ADI, 2016 | ||
| Applying Rasch analysis to evaluate measurement equivalence of different administration formats of the Activity Limitation scale of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) | Pulmonary arterial hypertension | https://pubmed.ncbi.nlm.nih.gov/27062133/ | ||
| A burden of illness study for neuropathic pain in Europe | Neuropathic pain | https://pubmed.ncbi.nlm.nih.gov/27217785/ | ||
| Use of bone-targeted agents to prevent skeletal-related events in patients with advanced breast cancer and bone metastases | Breast cancer | EBCC, 2016 | ||
| Satisfaction with treatment among IBD patients receiving subcutaneous biologic treatment and infused biologic treatment | Inflammatory Bowel Disease | ECCO, 2016 | ||
| Real-world treatment patterns & factors influencing use of bone-targeted agents in combination with emerging therapeutics in patients with prostate cancer & bone metastases | Prostate cancer | EAU, 2016 | ||
| Physician satisfaction with current psoriasis treatment - a real-world study in the US | Psoriasis | https://journals.sagepub.com/doi/abs/10.1177/247553031600100207?journalCode=jpsa | ||
| Patient satisfaction with current psoriasis treatment - a real-world study in the US | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/27267186/ | ||
| HRQoL, work productivity and satisfaction with treatment among IBD patients receiving adalimumab mono vs combo therapy | Inflammatory Bowel Disease | ECCO, 2016 | ||
| Confidence in correct inhaler device technique and its association with health status and patient satisfaction | Chronic obstructive pulmonary disease | SHM, 2016 | ||
| Prevalence and burden of dyspnoea among patients with chronic obstructive pulmonary disease in five European countries | Chronic obstructive pulmonary disease | https://link.springer.com/article/10.1007/s41030-016-0011-5#:~:text=serious%20cardiovascular%20comorbidity.-,Prevalence%20of%20Dyspnoea,%25%20in%20the%20UK%20(Fig | ||
| Management of gout in the real world: current practice versus guideline recommendations | Gout | https://pubmed.ncbi.nlm.nih.gov/26592538/ | ||
| Understanding remission in real-world lupus patients across five European countries | Systemic lupus erythematosus | https://pubmed.ncbi.nlm.nih.gov/26635245/ | ||
| Characteristics of Chinese patients with uncontrolled type 2 diabetes mellitus who were not initiated on insulin | Diabetes | CDS, 2015 | ||
| Walking impairment and healthcare resource utilisation in multiple sclerosis patients: an updated analysis from 2015 | Multiple sclerosis | PACTRIMS, 2015 | ||
| Trend and factors associated with switching treatment after initial anti-TNF therapy among patients with rheumatoid arthritis | Rheumatoid arthritis | ACR/ARHP, 2015 | ||
| The relationship between glucose-lowering medications, adherence and outcomes in patients with type 2 diabetes | Diabetes | ISPOR EU, 2015 | ||
| The burden of nonradiographic axial spondyloarthritis from the employer perspective - a real world European study | Axial spondyloarthritis | ACR/ARHP, 2015 | ||
| Symptoms, concomitant conditions and cardiac risk in European hydroxyurea treated polycythemia vera patients | Polycythemia vera | ISPOR EU, 2015 | ||
| Standards for the classification of nonradiographic axial spondyloarthritis | Axial spondyloarthritis | ACR/ARHP, 2015 | ||
| Satisfaction in psoriatic arthritis patients despite active joint disease | Psoriatic arthritis | ACR/ARHP, 2015 | ||
| Satisfaction and impact associated with the addition of belimumab to systemic lupus erythematosus treatment | Systemic lupus erythematosus | ACR/ARHP, 2015 | ||
| RRMS patients initiated on oral DMF report a better quality of life compared to patients on platform therapies as measured by EQ-5D | Multiple sclerosis | ISPOR EU, 2015 | ||
| Relationship between rheumatologist perceptions of rheumatoid arthritis severity and DAS28 measures, patient impact and treatment patterns | Rheumatoid arthritis | ACR/ARHP, 2015 | ||
| Relapse rates and work productivity among patients receiving disease-modifying therapy (DMT) for multiple sclerosis | Multiple sclerosis | WCN, 2015 | ||
| Prevalence of joint symptoms and frequency of joint exams for patients with plaque psoriasis without confirmed PSA - a US analysis | Psoriasis | ACR/ARHP, 2015 | ||
| Misalignment between physician and patient satisfaction with current psoriatic arthritis treatment | Psoriatic arthritis | ACR/ARHP, 2015 | ||
| Matching-adjusted indirect treatment comparison and survival extrapolation in radioiodine-refractory differentiated thyroid cancer: updated analysis | Thyroid cancer | ISPOR EU, 2015 | ||
| International differences in the role of payer and administrative controls in prescribing decisions | Multiple myeloma | ISPOR EU, 2015 | ||
| Impact of staging and hormone sensitivity on quality of life in US prostate cancer patients | Prostate cancer | ISPOR EU, 2015 | ||
| Factors influencing treatment adjustments in rheumatoid arthritis patients - biologic DMARD treatment start and options | Rheumatoid arthritis | ACR/ARHP, 2015 | ||
| Exploring the real world profile of refractory and non-refractory chronic idiopathic urticaria patients in the US | Urticaria | SDPA, 2015 | ||
| Exploring the real world profile of refractory and non-refractory chronic idiopathic urticaria patients in the US | Urticaria | ACAAI, 2015 | ||
| Differences in disease specific HRQOL in RRMS patients initiated on oral DMF or platform therapies in Europe and US | Multiple sclerosis | ISPOR EU, 2015 | ||
| Development of a screening tool to support identification of patients with secondary progressive multiple sclerosis (SPMS) | Multiple sclerosis | ISPOR EU, 2015 | ||
| Delay of optimal nocturia treatment is costly: results of a real world survey of patients in Europe and the USA | Nocturia | ISPOR EU, 2015 | ||
| Cross-sectional descriptive study of the impact of anaemia in chronic kidney disease patients on healthcare resource utilisation and work productivity across Europe | Chronic kidney disease | ISPOR EU, 2015 | ||
| Clinical characteristics and health outcomes of rheumatoid arthritis patients not adequately controlled on current treatment | Rheumatoid arthritis | ACR/ARHP, 2015 | ||
| Burden of residual skin and joint disease in patients with psoriatic arthritis treated with biologics | Psoriatic arthritis | ISPOR EU, 2015 | ||
| Burden of illness associated with nonradiographic axial spondyloarthritis - a European real world database analysis from the clinical and healthcare system perspective | Axial spondyloarthritis | ACR/ARHP, 2015 | ||
| Bone-targeting agent treatment patterns and the impact of bone metastases on advanced breast cancer patients in real world settings in Europe | Breast cancer | ISPOR EU, 2015 | ||
| Bone pain and bone-targeting agent treatment patterns in patients with bone metastases from prostate cancer in real world settings in Europe | Prostate cancer | ISPOR EU, 2015 | ||
| Avoidable burden and unmet need associated with nonradiographic axial spondyloarthritis treatment | Axial spondyloarthritis | ISPOR EU, 2015 | ||
| Assessing the level of resistance/intolerance to hydroxyurea therapy among patients with polycythemia vera in Europe | Polycythemia vera | ISPOR EU, 2015 | ||
| Adoption of treat to target management in the context of achievable goals and satisfaction in rheumatoid arthritis | Rheumatoid arthritis | ACR/ARHP, 2015 | ||
| Understanding the characteristics of secondary progressive multiple sclerosis to facilitate early identification | Multiple sclerosis | ECTRIMS, 2015 | ||
| Relapse rates and QoL among patients receiving disease-modifying therapy for multiple sclerosis | Multiple sclerosis | ECTRIMS, 2015 | ||
| Real world data and LUTS | Lower urinary tract symptoms | Clin Ben LUTS, 2015 | ||
| Quantifying the impact of real world severity and satisfaction with care on productivity in Crohn's disease patients | Inflammatory Bowel Disease | AMCP, 2015 | ||
| Impact of walking impairment on healthcare resource utilisation in multiple sclerosis patients: an updated analysis from 2015 | Multiple sclerosis | ECTRIMS, 2015 | ||
| Differences in work productivity activity impairment in RRMS patients initiated on oral DMF or platform therapies | Multiple sclerosis | ECTRIMS, 2015 | ||
| Confidence in correct inhaler device technique and its association with patient characteristics: a retrospective analysis of real world US COPD patients | Chronic obstructive pulmonary disease | AMCP, 2015 | ||
| Comparison of the health status of COPD patients with high and low symptoms from a real-world US survey | Chronic obstructive pulmonary disease | CHEST, 2015 | ||
| Physician-patient concordance in pharmacological management of patients with COPD | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/26244570/ | ||
| Increased severity of itching, pain, and scaling in psoriasis patients is associated with increased disease severity, reduced quality of life, and reduced work productivity | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/26632793/ | ||
| Establishing the relationship of inhaler satisfaction, treatment adherence, and patient outcomes: a prospective, real-world, cross-sectional survey of US adult asthma patients and physicians | Asthma | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4564954/ | ||
| Direct medical costs of severe hypooglycaemic events amongst type 2 diabetes patients in United Kingdom: a retrospective database study | Diabetes | EASD, 2015 | ||
| Comparison of COPD patients with high and low symptoms from a real-world US survey | Chronic obstructive pulmonary disease | ERS, 2015 | ||
| Bone targeting agent treatment patterns and the impact of bone metastases on prostate cancer patients in a real world setting | Prostate cancer | ESMO, 2015 | ||
| Bone targeting agent treatment patterns and the impact of bone metastases on breast cancer patients in a real world setting | Breast cancer | ESMO, 2015 | ||
| Bone targeting agent treatment patterns and the impact of bone metastases on advanced breast cancer patients in the US | Breast cancer | BCS, 2015 | ||
| Frequency and prevalence of flares in psoriasis in the US | Psoriasis | AAD, 2015 | ||
| Alcohol dependence, co-occurring conditions and attributable burden | Alcohol dependence | https://pubmed.ncbi.nlm.nih.gov/26246514/ | ||
| Frequency and prevalence of flares in psoriasis in the US | Psoriasis | WPPA, 2015 | ||
| Burden of flares on patients with moderate to severe psoriasis in the US | Psoriasis | WPPA, 2015 | ||
| Unmet needs still remain in the biologic therapy options for psoriatic arthritis | Psoriatic arthritis | EULAR, 2015 | ||
| Reasons for discontinuation of GLP-1 receptor agonists: data from a large cross-sectional survey of physicians and type 2 diabetic patients | Diabetes | ADA, 2015 | ||
| Prevalence of joint involvement & frequency of joint exams for plaque psoriasis patients without confirmed psoriatic arthritis | Psoriatic arthritis | EULAR, 2015 | ||
| Patient-reported symptom burden among relapsing-remitting multiple sclerosis (RRMS) vs secondary progressive multiple sclerosis Patients (SPMS) in Europe | Multiple sclerosis | EAN, 2015 | ||
| Patient-reported physical functioning in relapsin-remitting multiple sclerosis (RRMS) and secondary progressive multiple sclerosis (SPMS) patients in Europe | Multiple sclerosis | EAN, 2015 | ||
| Patient health utility, work productivity, and lifestyle impairment in chronic hepatitis C patients in France | Hepatitis C virus | https://pubmed.ncbi.nlm.nih.gov/25511922/ | ||
| Glycemic control in Chinese patients with type 2 diabetes mellitus receiving oral antihyperglycemic medication-only or insulin-only treatment: a cross-sectional survey | Diabetes | https://pubmed.ncbi.nlm.nih.gov/26088603/ | ||
| Evaluation of burden on caregivers associated with relapsing-remitting (RRMS) and secondary progressive multiple sclerosis (SPMS) patients in Europe | Multiple sclerosis | EAN, 2015 | ||
| Differences in physician-reported and DAS28-based assessment of disease remission among rheumatoid arthritis patients in clinical practice | Rheumatoid arthritis | EULAR, 2015 | ||
| Clinical outcomes in relapsing-remitting multiple sclerosis (RRMS) and secondary progressive multiple sclerosis (SPMS) patients in Europe | Multiple sclerosis | EAN, 2015 | ||
| Burden of illness associated with non-radiographic axial spondyloarthritis - an EU study from the clinical and healthcare system perspective | Axial spondyloarthritis | EULAR, 2015 | ||
| Burden of illness associated with non-radiographic axial spondyloarthritis - a European study from the patient and societal perspective | Axial spondyloarthritis | EULAR, 2015 | ||
| The evaluation of work productivity in relapsing-remitting (RRMS) and secondary progressive multiple sclerosis (SPMS) patients in Europe | Multiple sclerosis | ISPOR US, 2015 | ||
| Matching-adjusted indirect treatment comparison and survival extrapolation in radioiodine-refractory differentiated thyroid cancer | Thyroid cancer | ISPOR US, 2015 | ||
| Increasing body mass index identifies Chinese patients with type 2 diabetes mellitus at risk of poor outcomes | Diabetes | https://pubmed.ncbi.nlm.nih.gov/25784086/ | ||
| Impact of walking impairment on healthcare resource utilization in MS patients | Multiple sclerosis | ISPOR US, 2015 | ||
| Exploring the real world setting of chronic ideopathic urticaria and physician attitudes towards it in the US | Urticaria | ISPOR US, 2015 | ||
| Confidence in correct inhaler device technique and its association with overall treatment adherence: a retrospective data analysis of real-world US patients | Asthma | ATS, 2015 | ||
| Antiviral treatment discontinuation among hepatitis C-infected individuals with thrombocytopenia | Hepatitis C virus | https://pubmed.ncbi.nlm.nih.gov/25847467/ | ||
| Patient-reported symptom burden among relapsing remitting multiple sclerosis (RRMS) vs secondary progressive multiple sclerosis patients (SPMS) in the United States | Multiple sclerosis | AMCP, 2015 | ||
| Patient-reported physical function and impact on instrumental activities of daily living in RRMS and SPMS patients in the United States | Multiple sclerosis | AMCP, 2015 | ||
| Health related quality of life and utility values in chronic hepatitis C patients: a cross sectional study in France, the UK and Germany | Hepatitis C virus | EASL, 2015 | ||
| Characterizing gastrointestinal symptoms in HIV patients taking antiretroviral therapy | HIV | ACTHIV, 2015 | ||
| Burden of illness in relapsing remitting and secondary progressive multiple sclerosis patients in the United States | Multiple sclerosis | AMCP, 2015 | ||
| Severity of liver disease among chronic hepatitis C patients - an observational study of 4594 patients in five EU countries | Hepatitis C virus | https://pubmed.ncbi.nlm.nih.gov/25088088/ | ||
| Physician-prescribed asthma treatment regimen does not differ between smoking and non-smoking patients with asthma in Seoul and Gyunggi provinces of Korea | Smoking | https://pubmed.ncbi.nlm.nih.gov/25553260/ | ||
| Self-reported health-related quality of life of hepatitis C virus (HCV) genotype 1 patients with and without comorbid conditions | Hepatitis C virus | ISPOR EU, 2014 | ||
| Inhaler device satisfaction, smoking history, allergic rhinitis and adherence in US adult asthma patients: relationship to health-related outcomes | Asthma | ACAAI, 2014 | ||
| Impact of brain metastases on quality of life and estimated life expectancy in patients with advanced non-small cell lung cancer | Non-small cell lung cancer | ISPOR EU, 2014 | ||
| Establishing the relationship of inhaler satisfaction, adherence, smoking history and allergic rhinitis with patient outcomes: real world observations in US adult asthma patients | Asthma | ISPOR EU, 2014 | ||
| Burden of renal impairment: relative resource use in prostate cancer patients with bone metastases | Prostate cancer | ISPOR EU, 2014 | ||
| A real-world characterization of patients with moderate to severe systemic lupus erythemotosus | Systemic lupus erythematosus | ISPOR EU, 2014 | ||
| A real-world characterization of moderate-to-severe systemic lupus euythematosus | Systemic lupus erythematosus | ACR/ARHP, 2014 | ||
| Treatment of lower urinary tract symptoms (LUTS) does not always reflect physician reported diagnosis | Lower urinary tract symptoms | ICS, 2014 | ||
| Reasons for nonuse of antiviral treatment in patients with chronic hepatitis C infection and thrombocytopaenia - a retrospective chart review from five EU countries | Hepatitis C virus | https://pubmed.ncbi.nlm.nih.gov/24698004/ | ||
| Quality of life in patients with nocturia: does the study design impact the outcome? | Nocturia | ICS, 2014 | ||
| Physician satisfaction with current psoriasis treatment | Psoriasis | FCDC, 2014 | ||
| Patient satisfaction with current psoriasis treatment | Psoriasis | LVDS, 2014 | ||
| Nocturia results in work productivity and activity losses comparable with other chronic diseases | Nocturia | ICS, 2014 | ||
| Impact of psoriasis disease severity and psoriasis-related itching, pain and scaling on patient reported quality of life and work productivity loss among US patients | Psoriasis | LVDS, 2014 | ||
| Impact of psoriasis disease severity and psoriasis-related itching, pain and scaling on patient reported quality of life and work productivity loss among US patients | Psoriasis | FCDC, 2014 | ||
| Health related quality of life and productivity impairment in chronic hepatitis C patients in Germany | Hepatitis C virus | VHC, 2014 | ||
| COPD patients' needs and current treatment options | Chronic obstructive pulmonary disease | https://www.emjreviews.com/respiratory/symposium/copd-patients-needs-and-current-treatment-options/ | ||
| Evidence for validity of a national physician and patient-reported survey in China and UK: the disease specific programme | Diabetes | ISPOR APAC, 2014 | ||
| Symptom severity, quality of life and work productivity of US psoriasis patients during periods of flare and remission | Psoriasis | AAD, 2014 | ||
| Gout patients treated with conventional urate-lowering therapy: association between disease control and work productivity | Gout | WONCA, 2014 | ||
| Burden of herpes zoster in the UK - findings from the zoster quality of life (ZQoL) study | Post-herpetic neuralgia | https://pubmed.ncbi.nlm.nih.gov/25038799/ | ||
| Importance of inhaler device satisfaction and adherence in outcomes measure: real-world observations in US adult asthma patients | Asthma | REG, 2014 | ||
| Gout patients treated with conventional urate-lowering therapy: association between disease control and work productivity | Gout | EULAR, 2014 | ||
| Evaluation of the consumer assessment of healthcare providers and systems in-center hemodialysis survey | Chronic kidney disease | https://pubmed.ncbi.nlm.nih.gov/24832092/ | ||
| Burden of post-herpetic neuralgia in a sample of UK residents aged 50 years or older - findings from the Zoster Quality of Life (ZQoL) study | Post-herpetic neuralgia | https://pubmed.ncbi.nlm.nih.gov/24920439/ | ||
| A real-world characterization of moderate-to-severe systemic lupus euythematosus | Systemic lupus erythematosus | EULAR, 2014 | ||
| Utility values of hepatitis C patients in France: results by liver disease stage and treatment outcome | Hepatitis C virus | ISPOR US, 2014 | ||
| Understanding the GOLD 2011 strategy as applied to a real-world COPD population | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/24675239/ | ||
| Understanding the cost of hereditary angioedema in the UK | Angioedema | ECRD, 2014 | ||
| The secondary care cost burden to the NHS associated with the 2012 pertussis outbreak in England | Pertussis | ESPID, 2014 | ||
| Real-world characterization and differentiation of the global initiative for chronic obstructive lung disease strategy classification | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/24920893/ | ||
| Physician satisfaction with current psoriasis treatment | Psoriasis | SDPA, 2014 | ||
| Patient satisfaction with current psoriasis treatment | Psoriasis | SDPA, 2014 | ||
| Patient satisfaction with current psoriasis treatment | Psoriasis | DNA, 2014 | ||
| Impact of psoriasis disease severity and psoriasis-related itching, pain and scaling on patient reported quality of life and work productivity loss among US patients | Psoriasis | SDPA, 2014 | ||
| Impact of physician specialty on classification of physician-perceived patient severity for patients with osteoarthritis | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/24631922/ | ||
| Burden of disease in systemic lupus erythematosus patients treated with corticosteroids | Systemic lupus erythematosus | ISPOR US, 2014 | ||
| Under-diagnosis and sub-optimal treatment of LUTS/BPH: results of a real world survey of patients in Europe | Benign prostatic hypertrophy | EAU, 2014 | ||
| Negative impact of reduced first undisturbed sleep period on utility, productivity and health-related quality of life: results of a real world survey of patients in Europe and USA | Nocturia | EAU, 2014 | ||
| Negative impact of nocturia on utility, productivity and health-related quality of life: results of a real world survey of patients in Europe and USA | Nocturia | EAU, 2014 | ||
| Mapping the 25-item National Eye Institute Visual Functioning Questionnaire (NEI VFQ-25) to EQ-5D utility scores | Diabetic macular edema | https://pubmed.ncbi.nlm.nih.gov/24568628/ | ||
| Impact of urinary incontinence on health-related quality of life, daily activities, and healthcare resource utilization in patients with neurogenic detrusor overactivity | Overactive bladder | https://pubmed.ncbi.nlm.nih.gov/24528881/ | ||
| Extent to which a voiding diary is used to reach diagnosis in nocturia patients: results of a real world survey of patients in Europe and USA | Nocturia | EAU, 2014 | ||
| Real-world disparities between patient- and clinician-reported outcomes: results from a disease-specific program in depression and anxiety | Anxiety and depression | https://pubmed.ncbi.nlm.nih.gov/24496128/ | ||
| Impact of urinary incontinence on healthcare resource utilization, health-related quality of life and productivity in patients with overactive bladder | Overactive bladder | https://pubmed.ncbi.nlm.nih.gov/24528881/ | ||
| Impact of psoriasis severity on clinical symptoms, comorbidities and healthcare resource utilization among US patients | Psoriasis | AAD, 2014 | ||
| Impact of psoriasis disease severity and psoriasis-related itching, pain and scaling on patient reported quality of life and work productivity loss among US patients | Psoriasis | AAD, 2014 | ||
| Evaluation of relationship between IL-288 single nucleotide polymorphisms and SVR after peginterferon ribavirin combination therapy in HCV genotype 1 patients in Taiwan and Korea | Hepatitis C virus | APASL, 2014 | ||
| Description of patient burden observed in treated vs untreated patients with Hepatitis C virus results of a cross sectional study in US and France | Hepatitis C virus | APASL, 2014 | ||
| Incremental burden of disease in patients diagnosed with pulmonary arterial hypertension receiving monotherapy and combination vasodilator therapy | Pulmonary arterial hypertension | https://pubmed.ncbi.nlm.nih.gov/24449285/ | ||
| Impact of patients' satisfaction with their inhalers on treatment compliance and health status in COPD | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/24209768/ | ||
| The symptom burden of non-small cell lung cancer in the USA: a real-world cross-sectional study | Non-small cell lung cancer | https://pubmed.ncbi.nlm.nih.gov/24026981/ | ||
| Physician satisfaction with current psoriasis treatment | Psoriasis | Maui Derm, 2014 | ||
| Physician satisfaction with current psoriasis treatment | Psoriasis | CDC, 2014 | ||
| Characteristics of a COPD population categorised using the GOLD framework by health status and exacerbations | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/24041746/ | ||
| Treatment profile and insulin dose as a factor impacting glycaemic control among premix insulin users with T2DM in China | Diabetes | IDF, 2013 | ||
| Real world COPD: association of morning symptoms with clinical and patient reported outcomes | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/24127914/ | ||
| Real world burden of COPD: employed vs not in paid employment patients | Chronic obstructive pulmonary disease | J Health Productivity, 2013 | ||
| Glycaemic control in patients taking oral antihyperglycaemic medications only or insulin only regimens for patients with T2DM in China | Diabetes | IDF, 2013 | ||
| Exploring the cost and burden of illness of hereditary angioedema in the UK | Angioedema | UK PIN, 2013 | ||
| Use of dexa scans in postmenopausal osteoporosis is associated with reduced long term fracture risk | Osteoporosis | ISPOR EU, 2013 | ||
| Treatment satisfaction and its association with health outcomes in patients with neuropathic pain | Neuropathic pain | ISPOR EU, 2013 | ||
| Treatment patterns for Parkinson's disease: real world evidence from the EU5 (France, Germany, Italy, Spain, and the UK) | Parkinson’s disease | ISPOR EU, 2013 | ||
| Treatment patterns and characteristics of European patients with castration-resistant prostate cancer | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/24206580/ | ||
| Relationship between COPD assessment test and EQ-5D in a real world patient population | Chronic obstructive pulmonary disease | ISPOR EU, 2013 | ||
| Mapping PDQ-39 and PDQ-8 scores onto EQ-5D utility index in patients with Parkinson's disease: extended analysis | Parkinson’s disease | ISPOR EU, 2013 | ||
| Impact of night-time symptoms in COPD: a real-world study in five European countries | Chronic obstructive pulmonary disease | https://pubmed.ncbi.nlm.nih.gov/24348032/ | ||
| Exploring the burden of illness of hereditary angioedema in the UK | Angioedema | ISPOR EU, 2013 | ||
| Evaluating the burden of bone metastases on patients with castration-resistant prostate cancer and their treating physicians: findings from a routine practice study in 13 medium-sized countries | Prostate cancer | ISPOR EU, 2013 | ||
| Cost of illness of neuropathic pain in Spain in 2012 from a societal perspective | Neuropathic pain | ISPOR EU, 2013 | ||
| Burden of hospitalization in patients with advanced lung cancer in the United States | Non-small cell lung cancer | ISPOR EU, 2013 | ||
| Relationship between compliance and patient-reported outcomes (PROs) in post herpetic neuralgia with insight into lidocaine medicated plaster use | Neuropathic pain | EFIC, 2013 | ||
| Physician satisfaction with current psoriasis treatment | Psoriasis | LVDS, 2013 | ||
| Patient-reported visual function outcomes improve after ranibizumab treatment in patients with vision impairment due to diabetic macular edema: randomized clinical trial | Diabetic macular edema | https://pubmed.ncbi.nlm.nih.gov/23974915/ | ||
| Impact of treatment compliance on HbA1c in people with insulin-treated type 2 diabetes in Europe | Diabetes | SMDM, 2013 | ||
| Association of health-related quality of life with side effects in patients with neuropathic pain | Neuropathic pain | EFIC, 2013 | ||
| Mapping PDQ-39 and PDQ-8 scores onto EQ-5D utility index in patients with Parkinson's disease | Parkinson’s disease | WCN, 2013 | ||
| Castration-resistant prostate cancer: understanding disease progression and associated diagnostic procedures: findings from a routine practice study in 13 medium-sized European countries | Prostate cancer | ECC, 2013 | ||
| Symptom burden and quality of life in advanced non-small cell lung cancer patients in France and Germany | Non-small cell lung cancer | https://pubmed.ncbi.nlm.nih.gov/23561304/ | ||
| Limitations of current treatments for systemic lupus erythematosus - a patient and physician survey | Systemic lupus erythematosus | https://pubmed.ncbi.nlm.nih.gov/23817511/ | ||
| A measure of treatment response - patient and physician satisfaction with traditional NSAIDS for osteoarthritis control | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/27790025/ | ||
| The association of satisfaction with control, current severity and duration of peripheral neuropathic pain with the likelihood of anxiety or depression | Neuropathic pain | WONCA, 2013 | ||
| Neuropathic pain regimens that contain the capsaicin 8% patch: do they have a greater effect on pain reduction than other regimens? | Neuropathic pain | WONCA, 2013 | ||
| Epidemiology of castration-resistant prostate cancer in 13 medium-sized European countries: data from a routine practice study | Prostate cancer | MASCC/ISOO, 2013 | ||
| Clinical improvement and satisfaction with biologic therapy in patients with severe plaque psoriasis - results of a European cross-sectional observational study | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/22620684/ | ||
| Burden of bone metastases in patients with castration-resistant prostate cancer: findings from a routine practice study in 13 medium-sized European countries | Prostate cancer | MASCC/ISOO, 2013 | ||
| The impact of satisfaction/dissatisfaction with current medications on the quality of life of patients with neuropathic pain | Neuropathic pain | NeuPSIG, 2013 | ||
| The impact of adherence to current medication on quality of life and pain intensity in patients with peripheral neuropathic pain | Neuropathic pain | NeuPSIG, 2013 | ||
| Impact of ulcerative colitis on patient quality of life in a real-world clinical setting | Inflammatory Bowel Disease | DDW, 2013 | ||
| Impact of rheumatoid arthritis on QoL, work productivity and resource utilisation - an observational, cross-sectional study in Brazil | Rheumatoid arthritis | https://pubmed.ncbi.nlm.nih.gov/23324808/ | ||
| Impact of bone metastases on the humanistic burden in patients with castration-resistant prostate cancer | Prostate cancer | ISPOR US, 2013 | ||
| Frequency of self-measurement of blood glucose according to diabetes type and treatment | Diabetes | ISPOR US, 2013 | ||
| Exploring the real world setting of chronic kidney disease patient and physician behaviours across countries: disease specific programmes | Chronic kidney disease | ISPOR US, 2013 | ||
| Mapping EQ-5D utility scores from the incontinence quality of life questionnaire among patients with neurogenic and idiopathic overactive bladder | Overactive bladder | https://pubmed.ncbi.nlm.nih.gov/23538192/ | ||
| Estimation of the 'true' hospital burden of paediatric RSV on the NHS England | Pediatric respiratory syncytial virus | RCPCH, 2013 | ||
| Relationship between self-reported low-back pain severity and other patient-reported outcomes: results from an observational study | Chronic lower back pain | https://pubmed.ncbi.nlm.nih.gov/21909037/ | ||
| Impact of Friedreich's ataxia on health-care resource utilization in the UK and Germany | Friedrich's ataxia | https://pubmed.ncbi.nlm.nih.gov/23448170/ | ||
| Quantification and treatment patterns of real-world patients classified by the GOLD 2011 strategy | Chronic obstructive pulmonary disease | BTS, 2012 | ||
| Impact of patient satisfaction with their maintenance inhaler on treatment compliance and health outcomes in chronic obstructive pulmonary disease: an analysis of real-world clinical practice in Europe | Chronic obstructive pulmonary disease | BTS, 2012 | ||
| Impact of morning symptoms experienced by COPD patients on exacerbation risk, rescue inhaler usage and normal daily activities | Chronic obstructive pulmonary disease | BTS, 2012 | ||
| Applying the GOLD 2011 classification to a real-world COPD population in Germany | Chronic obstructive pulmonary disease | BTS, 2012 | ||
| Societal burden associated with neuropathic pain in Europe | Neuropathic pain | ISPOR EU, 2012 | ||
| Patient burden associated with lack of treatment satisfaction among psoriasis patients receiving traditional systemic therapies | Psoriasis | ISPOR EU, 2012 | ||
| Measuring the level and impact of neuropathic pain by disease area in the EU | Neuropathic pain | ISPOR EU, 2012 | ||
| Limitations of current treatment for systemic lupus erythematosus - a patient and physician survey | Systemic lupus erythematosus | ACR/ARHP, 2012 | ||
| Impact of patient satisfaction on QoL in psoriasis patients receiving traditional systemic therapy | Psoriasis | ISPOR EU, 2012 | ||
| Impact of bone metastases on quality of life in patients with castration-resistant prostate cancer at high risk for developing bone metastases | Prostate cancer | ISPOR EU, 2012 | ||
| The burden of multiple sclerosis-related spasticity on indirect costs and requirement for non-professional care: results of a cross-sectional study in the USA | Multiple sclerosis | ECTRIMS, 2012 | ||
| Onset of multiple sclerosis-related spasticity and its impact on health-related quality of life as measured by EQ-5D and HAQUAMS | Multiple sclerosis | ECTRIMS, 2012 | ||
| Incremental burden of disease in patients diagnosed with pulmonary arterial hypertension receiving monotherapy and combination vasodilator therapy | Pulmonary arterial hypertension | CHEST, 2012 | ||
| Impact of spasticity on healthcare resource utilisation: results of a cross-sectional study in the USA | Multiple sclerosis | ECTRIMS, 2012 | ||
| Comparison of overactive bladder patients who switch between antimuscarinic therapies with those who persist on the same therapy in the absence of improved outcomes | Overactive bladder | ICS, 2012 | ||
| Alignment between patients with overactive bladder and their primary care practitioner; real-world observations associated with patient-reported outcomes | Overactive bladder | ICS, 2012 | ||
| The distribution of a COPD population in the GOLD assessment framework by exacerbations | Chronic obstructive pulmonary disease | ERS, 2012 | ||
| The distribution of a COPD population based on the GOLD assessment framework | Chronic obstructive pulmonary disease | ERS, 2012 | ||
| Social and economic burden of walking and mobility problems in multiple sclerosis | Multiple sclerosis | https://pubmed.ncbi.nlm.nih.gov/22989365/ | ||
| Quantification and treatment patterns of real-world patients classified by the GOLD 2011 strategy | Chronic obstructive pulmonary disease | ERS, 2012 | ||
| Physician and patient perceptions and beliefs regarding insulin initiation and use in patients with type 2 diabetes (T2DM) in China | Diabetes | ISPOR APAC, 2012 | ||
| Metabolic and cardiovascular comorbidity in COPD patients classified using the GOLD 2011 assessment framework | Chronic obstructive pulmonary disease | ERS, 2012 | ||
| Impact of morning symptoms experienced by COPD patients on exacerbation risk, rescue inhaler usage and normal daily activities | Chronic obstructive pulmonary disease | ERS, 2012 | ||
| Antiviral treatment rates in thrombocytopenic Hepatitis C patients - results of a retrospective chart review in five EU countries | Hepatitis C virus | EASL/AASLD, 2012 | ||
| The impact of satisfaction/dissatisfaction with current medication on the quality of life of patients with neuropathic pain | Neuropathic pain | IASP WCP, 2012 | ||
| Does level of knowledge/understanding of their diabetes affect outcomes in patients on insulin | Diabetes | AADE, 2012 | ||
| A cross-national study of carer burden in dementia | Dementia | AAIC, 2012 | ||
| A cross-national study of augmentation of cholinesterase inhibitors with memantine in AD | Dementia | AAIC, 2012 | ||
| Symptoms, consultations and comorbidities in real-world COPD patients classified by the GOLD 2011 strategy | Chronic obstructive pulmonary disease | COPD, 2012 | ||
| Impact of morning symptoms on working lives of COPD patients | Chronic obstructive pulmonary disease | COPD, 2012 | ||
| Healthcare resource utilization and QoL in patients with OAB due to NDO in the UK | Overactive bladder | ISPOR US, 2012 | ||
| Healthcare resource utilisation is higher among UK neuropathic pain patients who have been treated for 12 months or longer | Neuropathic pain | WSPC, 2012 | ||
| An assessment of impairment of productivity among systemic lupus erythematosus patients | Systemic lupus erythematosus | EULAR, 2012 | ||
| Real-world use of permixon in benign prostatic hyperplasia - determining appropriate monotherapy and combination treatment | Benign prostatic hypertrophy | https://pubmed.ncbi.nlm.nih.gov/22644964/ | ||
| Identifying disease characteristics associated with suboptimal care for COPD patients currently managed in primary care receiving inhaled corticosteroid and long-acting beta agonist FDCs | Chronic obstructive pulmonary disease | IPCRG, 2012 | ||
| The burden of multiple sclerosis-related spasticity on indirect costs and requirement for non-professional care: results of a cross-sectional study in the USA | Multiple sclerosis | AAN, 2012 | ||
| Impact of spasticity on healthcare resource utilisation: results of a cross-sectional study in the USA | Multiple sclerosis | AAN, 2012 | ||
| Reasons for switching antimuscarinic therapy: results from a European cross-sectional survey of physicians, and patients with OAB | Overactive bladder | EAU, 2012 | ||
| Fixed-dose combination antidiabetic therapy: real-world factors associated with prescribing choices and relationship with patient satisfaction and compliance | Diabetes | https://pubmed.ncbi.nlm.nih.gov/22246944/ | ||
| Association of patient-rated severity with other outcomes in patients with painful diabetic peripheral neuropathy | Neuropathic pain | https://pubmed.ncbi.nlm.nih.gov/22253538/ | ||
| Relationship between patient-reported chronic low back pain severity and medication resources | Chronic lower back pain | https://pubmed.ncbi.nlm.nih.gov/22001357/ | ||
| Mapping the EQ-5D index from the I-QOL in patients with neurogenic and ideopathic overactive bladder (OAB): results of a cross-sectional study in the US and 4 European countries | Overactive bladder | ISPOR EU, 2011 | ||
| Mapping FACT-P to country specific patient health status measured by EQ-5D in metastatic castrate resistance prostate cancer patients | Prostate cancer | https://pubmed.ncbi.nlm.nih.gov/25326871/ | ||
| HRQoL and clinical impact of mild patient-reported hypoglycaemic episodes in five European countries: extent of agreement between physician and patient-reported hypoglycaemic episodes | Diabetes | ISPOR EU, 2011 | ||
| Burden of hospitalisation in patients with advanced lung cancer in France and Germany | Non-small cell lung cancer | ISPOR EU, 2011 | ||
| Burden of herpes zoster and post-herpetic neuralgia - findings from a cross-sectional patient-reported outcomes study | Post-herpetic neuralgia | ISPOR EU, 2011 | ||
| Psychometric validation of the hamburg quality of life questionnaire (HAQUAMS) in Germany, Italy, Spain, France, UK and the United States | Multiple sclerosis | ECTRIMS, 2011 | ||
| Smoking and treatment among asthma patients in South Korea | Smoking | ERS, 2011 | ||
| Association of patient-reported osteoarthritis severity with other patient-reported outcomes in the European clinical setting | Osteoarthritis | WCO, 2011 | ||
| Relationship between patient-reported disease severity and other clinical outcomes in osteoarthritis - a European perspective | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/21574904/ | ||
| Delays in insulin initiation | Diabetes | ADA, 2011 | ||
| Treatment patterns and characteristics of European castration-resistant prostate cancer (CRPC) patients | Prostate cancer | AUA, 2011 | ||
| Real-life outcomes in 2nd line advanced or metastatic non-small cell lung cancer (NSCLC): a pilot study in France and Germany analysing erloginib versus chemotherapy | Non-small cell lung cancer | ISPOR US, 2011 | ||
| Real life outcomes in 1st line non-squamous non-small cell lung cancer (NSCLC): a pilot study in France and Germany analysing bevacizumab-based versus non-bevacizumab-based treatments | Non-small cell lung cancer | ISPOR US, 2011 | ||
| Real life outcomes and health-related quality of life (HRQOL) in 1st line non-squamous non-small cell lung cancer (NSCLC): a European pilot study analysing bevacizumab-based versus non-bevacizumab-based treatments | Non-small cell lung cancer | ISPOR US, 2011 | ||
| Impact of walking and mobility problems on requirement for healthcare among multiple sclerosis patients | Multiple sclerosis | ISPOR US, 2011 | ||
| Impact of cognitive impairment on function, medical resource utilisation, adherence and health-related quality of life in patients with schizophrenia | Schizophrenia | ISPOR US, 2011 | ||
| Dupuytren's contracture: a retrospective database analysis to assess clinical management and costs in England | Dupuytren's contracture | https://pubmed.ncbi.nlm.nih.gov/21486483/ | ||
| Cardioversion treatment patterns and outcomes among acute atrial fibrillation patients in 5 European markets | Atrial fibrillation | ISPOR US, 2011 | ||
| Burden of walking problems in multiple sclerosis: analysis of caregiver and indirect costs | Multiple sclerosis | ISPOR US, 2011 | ||
| Prevalence and impact of night-time symptoms in COPD patients - results of a cross-sectional study in five European countries | Chronic obstructive pulmonary disease | WACF, 2011 | ||
| Impact of ocular symptoms on quality of life (QoL), work productivity and resource utilisation in allergic rhinitis patients-an observational, cross sectional study in four countries in Europe | Allergic rhinitis | https://pubmed.ncbi.nlm.nih.gov/21488807/ | ||
| Dupuytren's contracture: a retrospective database analysis to assess clinical management and costs in England | Dupuytren's contracture | https://pubmed.ncbi.nlm.nih.gov/21486483/ | ||
| Concordance between physicians' and patients' ratings of cognitive impairments and functioning associated with schizophrenia | Schizophrenia | ICSR, 2011 | ||
| Characteristics of COPD patients experiencing night-time symptoms - results of a cross-sectional study in five European countries | Chronic obstructive pulmonary disease | WACF, 2011 | ||
| Presence of cardiovascular comorbidities and prior medical history affect cardioversion treatment patterns among patients with acute atrial fibrillation | Atrial fibrillation | AHA, 2011 | ||
| Influence of atrial fibrillation and cardioversion treatment patterns on perceived health-related quality of life among patients with acute atrial fibrillation | Atrial fibrillation | AHA, 2011 | ||
| Importance of inhaler-device satisfaction in asthma treatment: real-world observations of physician-observed compliance and clinical/patient-reported outcomes | Asthma | https://pubmed.ncbi.nlm.nih.gov/21331556/ | ||
| Do neurologists in Germany adhere to national Parkinson's disease guidelines | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/21552312/ | ||
| The economic burden of advanced Parkinson's disease: an analysis of a UK patient dataset | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/21235405/ | ||
| Relationship of patient-reported chronic low back pain severity with other patient-reported outcomes | Chronic lower back pain | ASRA, 2010 | ||
| Relationship between patient-reported chronic low back pain severity and medication resources | Chronic lower back pain | ASRA, 2010 | ||
| Herpes zoster and post-herpetic neuralgia - considerations for a prospective, cross-sectional patient reported outcomes study | Post-herpetic neuralgia | ISPOR EU, 2010 | ||
| Association of patient-reported inhaler satisfaction with physician-perceived compliance with asthma treatment - results of a cross-sectional study in five European countries | Asthma | ISPOR EU, 2010 | ||
| The effects of isolated versus multiple lipid disorders on resource utilization among metabolic syndrome patients with lipid abnormalities despite lipid-modifying treatment | Metabolic syndrome | https://pubmed.ncbi.nlm.nih.gov/20938176/ | ||
| Quantifying the patient-reported burden of herpes zoster and post-herpetic neuralgia in the UK - practical considerations | Post-herpetic neuralgia | ISOQOL, 2010 | ||
| Emergence of walking and mobility problems among patients with multiple sclerosis and its impact on quality of life: a cross-sectional assessment in 5 EU countries | Multiple sclerosis | ECTRIMS, 2010 | ||
| The patient-physician partnership in asthma: real-world observations associated with clinical and patient-reported outcomes | Asthma | https://pubmed.ncbi.nlm.nih.gov/20680534/ | ||
| The economic burden of advanced Parkinson's disease: an analysis of a UK patient dataset | Parkinson’s disease | https://pubmed.ncbi.nlm.nih.gov/21235405/ | ||
| Status and treatment of type 2 diabetes in China | Diabetes | ISPOR APAC, 2010 | ||
| Prevalence of thrombocytopenia in patients with chronic hepatitis C infection in Germany | Hepatitis C virus | DGVS, 2010 | ||
| Key attributes of inhalers for patients versus physicians | Asthma | ERS, 2010 | ||
| Glycaemic control is worse and complications more prevalent in type 2 diabetes patients with a higher BMI in China | Diabetes | ISPOR APAC, 2010 | ||
| Relationship between patient-reported disease severity in osteoarthritis and self-reported pain, function and work productivity | Osteoarthritis | https://pubmed.ncbi.nlm.nih.gov/20738855/ | ||
| Patient and physician satisfaction with osteoarthritis treatment in Germany, Spain and the UK | Osteoarthritis | IASP WCP, 2010 | ||
| Pulmonary function testing in the emergency department and medications prescribed at discharge results of MAMBO study | Asthma | https://pubmed.ncbi.nlm.nih.gov/20104373/ | ||
| Do patients on intra-nasal fluticasone furoate, mometasone furoate and fluticasone proprionate experience similar numbers of symptom-free days and quality of life? a cross-sectional study in 3 European countries | Allergic rhinitis | EAACI, 2010 | ||
| The risk of psoriatic arthritis remains constant following initial diagnosis of psoriasis among patients seen in European dermatology clinics | Psoriatic arthritis | https://pubmed.ncbi.nlm.nih.gov/19874432/ | ||
| Impact of rheumatoid arthritis severity on HRQoL in Brazil | Rheumatoid arthritis | PANLAR, 2010 | ||
| Predictors of Hepatitis C treatment outcome in genotype 1 patients in a real-world setting | Hepatitis C virus | BSG, 2010 | ||
| Health-related quality of life and healthcare resource use in European patients with plaque psoriasis - an association independent of observed disease severity | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/20569255/ | ||
| Quality of life and work productivity in allergic rhinitis patients suffering from both nasal and ocular symptoms - an observational, cross-sectional study in 4 countries in Europe | Allergic rhinitis | ISPOR EU, 2009 | ||
| Predictors for development of stricture/obstruction in patients with Crohn's disease | Inflammatory Bowel Disease | ACG, 2009 | ||
| Moderate to severe rheumatoid arthritis is associated with significant work and activity impairment in Brazil - findings from an observational study | Rheumatoid arthritis | ACR/ARHP, 2009 | ||
| Medical resource utilization and workdays lost in a European survey of patients with fibromyalgia | Fibromyalgia | ACR/ARHP, 2009 | ||
| Medical resource utilisation and workdays lost in patients with fibromyalgia | Fibromyalgia | ISPOR EU, 2009 | ||
| Impact of ocular symptoms on resource utilisation and work productivity in management of AR - an observational, cross-sectional study in 4 countries in Europe | Allergic rhinitis | ISPOR EU, 2009 | ||
| Impact of dementia upon caregiver employment and quality of life | Dementia | ISPOR EU, 2009 | ||
| Impact of cough and/or sputum symptoms on the burden of COPD: a cross-sectional, observational study | Chronic obstructive pulmonary disease | ISPOR EU, 2009 | ||
| Impact of cough and/or sputum symptoms on health-related quality of life in COPD patients: an observational, cross-sectional study | Chronic obstructive pulmonary disease | ISPOR EU, 2009 | ||
| Quality of life and work productivity in allergic rhinitis patients suffering from both nasal and ocular symptoms - an observational, cross-sectional study in 4 countries in Europe | Allergic rhinitis | EAACI, 2009 | ||
| Impact of perceived weight and level of lifestyle control on health-related quality of life in patients with type 2 diabetes: data from US and Europe | Diabetes | ADA, 2009 | ||
| Impact of ocular symptoms on resource utilisation and work productivity in management of AR - an observational, cross-sectional study in 4 countries in Europe | Allergic rhinitis | EAACI, 2009 | ||
| Perception versus reality - categorisation of patient weight by type 2 diabetes patients and their physicians in the US and Europe | Diabetes | ISPOR US, 2009 | ||
| Factors impacting the health related quality of life in female breast cancer patients - an observational, cross-sectional study | Breast cancer | ISPOR US, 2009 | ||
| The perceived difficulty and importance of weight control for patients with type 2 diabetes: data from the US and Europe | Diabetes | AHA-QCOR, 2009 | ||
| Factors associated with nursing home placement in Alzheimer's disease | Dementia | AAN, 2009 | ||
| The asthma control test (ACT) as a predictor of GINA guideline-defined asthma control: analysis of a multinational cross-sectional survey | Asthma | https://pubmed.ncbi.nlm.nih.gov/19240948/ | ||
| Increasing dependence on others is associated with increased resource use in dementia | Dementia | ICAPD, 2009 | ||
| Impact of OAB on aspects of daily life: results of a European survey | Overactive bladder | EAU, 2009 | ||
| Real-world physician and patient behaviour across countries: disease-specific programmes - a means to understand | Methodology | https://pubmed.ncbi.nlm.nih.gov/18826746/ | ||
| The effects of obesity on concomitant conditions and resource use among patients with cardiometabolic risk factors | Metabolic syndrome | ADA, 2008 | ||
| The burden of allergic rhinitis as reported by UK patients compared with their doctors | Allergic rhinitis | https://pubmed.ncbi.nlm.nih.gov/18575009/ | ||
| Relationship between body mass index and risk factors, conditions, resource use and productivity among patients with cardiometabolic risk factors | Metabolic syndrome | ADA, 2008 | ||
| Psoriasis treatment patterns - results of a cross-sectional survey of dermatologists | Psoriasis | https://pubmed.ncbi.nlm.nih.gov/18378352/ | ||
| Physician perception of patient weight in primary care practice | Metabolic syndrome | ADA, 2008 | ||
| Impact of body mass index on health-related quality of life for persons with type 2 diabetes in the USA | Diabetes | ADA, 2008 | ||
| Multinational study of asthma medications prescribed at discharge from the emergency department | Asthma | ATS, 2008 | ||
| Multinational approach to acute asthma care for adults admitted to the emergency department | Asthma | ATS, 2008 | ||
| Major depressive disorder: burden of illness across US and EU | Depression | APA, 2008 | ||
| Generalized anxiety disorder: burden of illness across US and EU | Generalized anxiety disorder | APA, 2008 | ||
| Resource utilization among patients with metabolic syndrome: isolated versus multiple lipid disorders | Metabolic syndrome | EAS, 2008 | ||
| Quality of life and resource use in patients with bipolar disorder in Europe and the United States | Bipolar disorder | ISAD, 2008 | ||
| Is pharmacy care or self-medication sufficient for rhinitis patients? | Allergic rhinitis | AAAAI, 2008 | ||
| Factors associated with treatment nonadherence among US bipolar disorder patients | Bipolar disorder | https://pubmed.ncbi.nlm.nih.gov/18058849/ | ||
| Compliance with medication in rhinitis patients is poor and over-estimated by physicians | Allergic rhinitis | AAAAI, 2008 | ||
| Real-world usage of valproate in bipolar disorder: results of a cross-sectional survey of European psychiatrists | Bipolar disorder | ISBD, 2008 | ||
| A survey of the burden of allergic rhinitis in the USA | Allergic rhinitis | https://pubmed.ncbi.nlm.nih.gov/17927673/ | ||
| Time from psoriatic arthritis symptoms to diagnosis by management style between a dermatologist and rheumatologist in the EU | Psoriasis | WCD, 2007 | ||
| Real-world antipyschotic prescribing patterns for schizophrenia treatment across Europe | Schizophrenia | ECNP, 2007 | ||
| Physician and patient survey of allergic rhinitis: methodology | Allergic rhinitis | https://pubmed.ncbi.nlm.nih.gov/17927672/ | ||
| Impact on health care cost of increasing body mass index for people with type 2 diabetes - a cross-sectional study in the USA | Metabolic syndrome | ISPOR EU, 2007 | ||
| Impact of socio-economic factors on patients' knowledge of their condition, involvement in treatment decisions and the subsequent compliance with their treatment regimen | Asthma | ISPOR EU, 2007 | ||
| Impact of increasing BMI on medical resources for patients with type 2 diabetes - a retrospective analysis in the USA | Metabolic syndrome | ISPOR EU, 2007 | ||
| Carer burden in dementia | Dementia | ECNP, 2007 | ||
| Behavioural and functional symptoms in patients with Alzheimer's disease | Dementia | ECNP, 2007 | ||
| A survey of the burden of allergic rhinitis in Europe | Allergic rhinitis | https://pubmed.ncbi.nlm.nih.gov/17927674/ | ||
| A multinational assessment of quality of life and resource use by bipolar disorder patients in Europe and the United States | Bipolar disorder | ECNP, 2007 | ||
| Physician observations and perceptions of positive and negative symptoms of schizophrenia: a multinational, cross-sectional survey | Schizophrenia | https://pubmed.ncbi.nlm.nih.gov/17521890/ | ||
| Impact of increasing body mass index on medical resources for patients with type 2 diabetes - a retrospective analysis in the United States | Metabolic syndrome | EASD, 2007 | ||
| A survey of dermatologist perception of psoriasis severity and resultant prescribing patterns | Psoriasis | AAD, 2007 | ||
| Allergic rhinitis: the impact of discordant perspectives of patient and physician on treatment decisions | Allergic rhinitis | https://pubmed.ncbi.nlm.nih.gov/17825694/ | ||
| Physician and patient perception differ for symptoms associated with allergic rhinitis in five European countries | Allergic rhinitis | EAACI, 2007 | ||
| Impact of allergic rhinitis on patients' quality of life in five European countries | Allergic rhinitis | EAACI, 2007 | ||
| Compliance with medication in rhinitis patients is poor and over-estimated by physicians | Bipolar disorder | ISBD, 2007 | ||
| Quality of life and resource use in patients with bipolar disorder in the United States and five European countries | Bipolar disorder | APA, 2007 | ||
| Plaque psoriasis patients with more than 10 years of disease history are almost 5 times more likely to have psoriatic arthritis than those with less than 5 years of disease | Psoriasis | EADV, 2007 | ||
| Patients with plaque psoriasis tend to rate their disease as more severe than their dermatologists | Psoriasis | EADV, 2007 | ||
| Negative symptoms of schizophrenia and their impact on functioning in US and European patients | Schizophrenia | APA, 2007 | ||
| Impact of positive and negative symptoms of schizophrenia on resource use in the United States and Europe | Schizophrenia | APA, 2007 | ||
| Patterns of glycaemic control across UK and Europe - a patient record study | Diabetes | DUKPC, 2007 | ||
| Impact of incomplete patient compliance With medication instructions for bisphosphonate therapy on healthcare utilization and quality of life | Osteoporosis | ECCEO, 2007 | ||
| Proportion of psoriasis patients with BSA > 20% patients treated with topicals alone | Psoriasis | AAD, 2007 | ||
| Poor quality of life is associated with increased health care resource utilization independent of disease severity in European plaque psoriasis patients | Psoriasis | AAD, 2007 | ||
| Physician and patient perception differ for symptoms associated with allergic rhinitis | Allergic rhinitis | AAAAI, 2007 | ||
| Health care resource utilization and disease burden among European psoriasis and psoriatic arthritis patients | Psoriatic arthritis | AAD, 2007 | ||
| Do allergic rhinitis patients achieve 24-hour symptom control | Allergic rhinitis | AAAAI, 2007 | ||
| Resource use among patients with schizophrenia in five European countries | Schizophrenia | ISPOR EU, 2006 | ||
| Quality of life in patients with bipolar disorder in five European countries | Bipolar disorder | ISPOR EU, 2006 | ||
| Impact of negative symptoms on functioning of patients with schizophrenia in five European countries | Schizophrenia | ISPOR EU, 2006 | ||
| Higher psoriasis disease severity is associated with increased healthcare resource utilization and employment disadvantages in Europe | Psoriasis | EADV, 2006 | ||
| Higher psoriasis disease severity is associated with increased co-morbidities in Europe | Psoriasis | EADV, 2006 | ||
| Analysis of a multinational, cross-sectional survey of physician observations and perceptions of patients with negative symptoms of schizophrenia | Schizophrenia | ISPOR EU, 2006 | ||
| Negative symptoms of schizophrenia: analysis of a multinational, cross-sectional survey of physician perceptions | Schizophrenia | ECNP, 2006 | ||
| Impact on resource use and quality of life of incomplete patient compliance with instructions for taking bisphosphonate medication for osteoporosis | Osteoporosis | ASBMR, 2006 | ||
| Negative symptoms of schizophrenia: analysis of a multinational, cross-sectional survey of physician perceptions | Schizophrenia | CINP, 2006 | ||
| Symptomatic burden of allergic rhinitis among children/adolescents | Allergic rhinitis | EAACI, 2006 | ||
| Symptomatic burden of allergic rhinitis among adults | Allergic rhinitis | EAACI, 2006 | ||
| Patient satisfaction with osteoarthritis treatments and key attributes of the satisfaction | Osteoarthritis | EULAR, 2006 | ||
| Impact of osteoarthritis symptoms on patient QoL | Osteoarthritis | EULAR, 2006 | ||
| Comparing the burden of allergic rhinitis in primary care and specialist settings | Allergic rhinitis | EAACI, 2006 | ||
| Analysis of a multinational, cross-sectional survey of physician perceptions of negative symptoms of schizophrenia | Schizophrenia | NCDEU, 2006 | ||
| Assessing symptomatic burden of patients suffering from allergic rhinitis | Allergic rhinitis | AAAAI, 2006 | ||
| Allergic rhinitis and its impact on cost, productivity and healthcare resource use of patients | Allergic rhinitis | AAAAI, 2006 | ||
| The economic and human impact of poor control in patients with severe persistant allergic asthma: results from a multinational study | Asthma | BTS, 2005 | ||
| The human impact of severe persistent allergic asthma: results from a multinational study | Asthma | ISPOR EU, 2005 | ||
| Unscheduled healthcare resource use among asthma patients receiving low-dose inhaled corticosteroids maintenance treatment | Asthma | https://pubmed.ncbi.nlm.nih.gov/16115175/ | ||
| Unscheduled healthcare resource use among patients considered to have mild asthma | Asthma | ATS, 2005 | ||
| Patterns of resource use in patients with different severities of Parkinson's disease | Parkinson’s disease | ISPOR US, 2005 | ||
| Patient advocacy - an emerging challenge for innovative market research | Various | PBIRG, 2005 | ||
| Health status and its determinants in COPD patients | Chronic obstructive pulmonary disease | ATS, 2005 | ||
| Resource use in patients with exacerbations of asthma with different underlying degrees of severity in five European countries | Asthma | ISPOR EU, 2004 | ||
| Quality of life and asthma control with low-dose inhaled corticosteroids | Asthma | https://pubmed.ncbi.nlm.nih.gov/15573004/ | ||
| COPD in primary care - international survey DSP III (patient population description) | Chronic obstructive pulmonary disease | ERS, 2004 | ||
| The detrimental impact of symptoms on quality of life of patients across severity levels: respiratory disease specific programme III | Asthma | ATS, 2004 | ||
| Differences between doctor and patient recall of events in and investigations for osteoporosis in five countries | Osteoporosis | ISPOR US, 2004 | ||
| Differences between doctors' and patients' perceptions of osteoporosis symptoms in five countries | Osteoporosis | ECCEO, 2003 | ||
| Differences between doctor and patient recall of events in and investigations for osteoporosis in five countries | Osteoporosis | ECCEO, 2003 | ||
| Impact and economic burden observed in asthma patients considered as mild: an analysis of the respiratory disease specific programme I | Asthma | ERS, 2003 | ||
| Doctor/patient prescribing dynamics: impact on prescribing of better understanding of subjective and clinical evaluation of the patient and burden of disease | Various | PBIRG, 2003 | ||
| Quality of life of menopausal age women in Europe | Menopause | Gyno-Info, 2001 | ||
| Disability, resource utilisation and work absences associated with osteoarthritis and rheumatoid arthritis - an international database analysis | Rheumatoid arthritis | ISPOR EU, 2001 | ||
| Chronic obstructive pulmonary disease - the patient perspective | Chronic obstructive pulmonary disease | ERS, 2001 | ||
| Quality of life in post-menopausal women in five European countries | Menopause | ISPOR US, 2001 |